81. Pierre Robin Syndrome Google, WWW Medical.WebEnds.com. pierre robin syndrome. PierreRobin Syndrome; Robin Syndrome, Pierre; Syndrome, Pierre Robin; Syndrome, Pierre-Robin. http://medical.webends.com/kw/Pierre Robin Syndrome

Medical.WebEnds.com - Medical Terminology Dictionary A B C D ... Z WWW Medical.WebEnds.com Pierre Robin Syndrome Pierre-Robin Syndrome; Robin Syndrome, Pierre; Syndrome, Pierre Robin; Syndrome, Pierre-Robin An autosomal recessive disorder characterized by brachygnathia and cleft palate , often associated with glossoptosis, backward and upward displacement of the larynx , and angulation of the manubrium sterni. Cleft palate makes sucking and swallowing difficult, permitting easy access of fluids into the larynx . It may appear in several syndromes or as an isolated hypoplasia. (Dorland, 27th ed) Directory.WebEnds.com/cat/Top/Health/Conditions_and_Diseases/Rare_Disorders/Pierre_Robin_Syndrome Google links MedlinePlus Medical Encyclopedia: Pierre ... syndrome http://www.nlm.nih.gov/medlineplus/ency/article/001607.htm PIERRE ROBIN SYNDROME : Contact a Family - for families with http://www.cafamily.org.uk/Direct/p24.html Pierre Robin Syndrome http://www.erlanger.org/craniofacial/book/clefts/cleft_9.htm NORD - National Organization for Rare Disorders, Inc. http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Pierre%20Robin%20Syndrome Pierre Robin Syndrome / Family Village http://www.familyvillage.wisc.edu/lib_pierre-robin.html

82. Association Tremplin Destin© aux parents d'enfants pr©sentant cette maladie, lieu d'information et d'©change. http://tremplin.free.fr/

Tremplin - Syndrome de Pierre Robin Association Loi 1901 - JO 16 du 17 avril 1999 Responsable du site Pierre Vandaele Pourquoi Tremplin ? Actualités ... Information sur le syndrome Liens Pour mettre en relation les parents d'enfants présentant le syndrome de Pierre Robin. Parce qu'il nous a paru important de construire un lieu d'échanges de nos expériences. la page internationale The international page la página ... nternacional Le 21 mars 2004 à Tatinghem , la troupe de théâtre TALC a donné une nouvelle fois une représentation au profit de l'association Tremplin. " Le saut du lit ", une pièce pleine de bonne humeur ... pour la bonne cause ! quelques photos de cette représentation Vous êtes adhérents à l'association Tremplin ! L' Espace Adhérent est fait pour vous. T éléchargement de la plaquette de présentation de l'association ...à diffuser ! Notre Assemblée Générale se déroulera le 05 juin 2004 à Saint Herblain (44). précisions sur cette journée Tremplin a participé au Téléthon 2003 !

83. Virtual Children's Hospital: Paediapaedia: Pierre-Robin Syndrome Paediapaedia Neurological Diseases. pierrerobin syndrome. Michael P. D'Alessandro, M.D Also can be associated with multiple rib abnormalities - cerebro-costomandibular syndrome. http://www.vh.org/Providers/TeachingFiles/PAP/NeuroDiseases/PierreRobin.html

Paediapaedia: Neurological Diseases Pierre-Robin Syndrome Michael P. D'Alessandro, M.D. Peer Review Status: Internally Peer Reviewed Clinical Presentation: Has severe, symmetric mandibular hypoplasia (micrognathia) that is present at birth that is coupled with a widely cleft palate that allows for backward displacement of the tongue into the pharynx obstructing the epiglottis and blocking air flow. Etiology/Pathophysiology: Have associated congenital heart disease, external ear deformities, microphthalmus, bird like faces. Also can be associated with multiple rib abnormalities - cerebro-costomandibular syndrome. Pathology: Not applicable Imaging Findings: Micrognathia DDX: Not applicable References: See References Chapter. Section Top Title Page See related Provider Textbooks about Radiology See related Provider Topics Diagnostic Imaging Procedures and Therapies or Radiology See related Patient Textbooks about Radiology See related Patient Topics Diagnostic Imaging Procedures and Therapies or Radiology Virtual Children's Hospital Home Virtual Hospital Home Site Map ... UI Health Care Home http://www.vh.org/pediatric/provider/radiology/PAP/NeuroDiseases/PierreRobin.html

84. ORPHANET - Maladies Rares - Médicaments Orphelins Translate this page Version pour Impression, MALADIE pierre robin, syndrome de, Synonyme(s) pierre robin, séquence de, CIM Q87.0, Le syndrome de pierre http://www.orpha.net/consor/cgi-bin/OC_Exp.php?Lng=FR&Expert=718

85. ORPHANET® Pierre Robin, Syndrome De Translate this page ORPHANET. Accès à la base de données Orphanet. pierre robin, syndrome de. Accès direct aux détails Résumé Le syndrome de pierre http://www.orpha.net/static/FR/pierrerobin.html

86. Pierre Robin, Syndrome : Arborescences MeSH Translate this page pierre robin, syndrome arborescences MeSH. Menu général CISMeF. Vous pouvez aussi consulter toutes les arborescences des mots http://www.chu-rouen.fr/navimesh/P/navipierrerobinsyndrome.html

Pierre Robin, syndrome : arborescences MeSH Menu général CISMeF Vous pouvez aussi consulter toutes les arborescences des mots clés utilisés dans CISMeF appareil locomoteur, maladies mâchoire, maladies malformation mâchoire fente palatine ... rétrognathisme 07 janvier 2004 courriel Menu général CISMeF Haut de page © CHU de Rouen . Toute utilisation partielle ou totale de ce document doit mentionner la source.

87. Virtual Children's Hospital: Paediapaedia: Pierre-Robin Syndrome Paediapaedia Neurological Diseases pierrerobin syndrome. Michael P. D Alessandro, MD Peer Review Status Internally Peer Reviewed http://www.vh.org/pediatric/provider/radiology/PAP/NeuroDiseases/PierreRobin.htm

Paediapaedia: Neurological Diseases Pierre-Robin Syndrome Michael P. D'Alessandro, M.D. Peer Review Status: Internally Peer Reviewed Clinical Presentation: Has severe, symmetric mandibular hypoplasia (micrognathia) that is present at birth that is coupled with a widely cleft palate that allows for backward displacement of the tongue into the pharynx obstructing the epiglottis and blocking air flow. Etiology/Pathophysiology: Have associated congenital heart disease, external ear deformities, microphthalmus, bird like faces. Also can be associated with multiple rib abnormalities - cerebro-costomandibular syndrome. Pathology: Not applicable Imaging Findings: Micrognathia DDX: Not applicable References: See References Chapter. Section Top Title Page See related Provider Textbooks about Radiology See related Provider Topics Diagnostic Imaging Procedures and Therapies or Radiology See related Patient Textbooks about Radiology See related Patient Topics Diagnostic Imaging Procedures and Therapies or Radiology Virtual Children's Hospital Home Virtual Hospital Home Site Map ... UI Health Care Home http://www.vh.org/pediatric/provider/radiology/PAP/NeuroDiseases/PierreRobin.html

88. Pierre Robin PO Box 11082, * Chattanooga, TN 37401. 800, 332-2373. pierre robin. What is pierre robin? pierre robin is not a syndrome or a disease. http://www.faces-cranio.org/Disord/PierreRobin.htm

The National Craniofacial Association P. O. Box 11082 * Chattanooga, TN 37401 Pierre Robin What is Pierre Robin? Pierre Robin is not a syndrome or a disease. It is usually referred to as Pierre Robin Sequence, although it is also know as "Pierre Robin Malformation Sequence", "Robin Anomalad", and "Cleft Palate, Micrognathia and Glossoptosis." It is the name given to the following birth defects if they appear together: small lower jaw (micrognathia) a tongue which tens to ball up at the back of the mouth and fall back towards the throat (glossoptosis) breathing problems cleft palate may or may not be present Why did this happen? Doctos do no know exactly why Pierre Robin occurs. They do not believe it is the result of anything the mother did or did not do during pregnancy. Will this happen to children I have in the future? Pierre Robin does not tend to run in families. The chances of you having another child with Pierre Robin are very small. What kinds of problems could my child have? In addition to the physical characteristics common to Pierre Robin, your child may have the following problems:

89. Pierre-Robin Syndrome pierrerobin syndrome. This article submitted by Indiana Parent Information Netwo on 1/31/97. Author s Email ipin@indy.net looking http://neuro-www.mgh.harvard.edu/neurowebforum/GeneralFeedbackArticles/1.31.9712

Pierre-Robin Syndrome This article submitted by Indiana Parent Information Netwo on 1/31/97. Author's Email: ipin@indy.net looking for parents of children with Pierre-Robin in Central Indiana area to talk with parent dealing with issues related to this Syndrome. Next Article Previous Article Return to Topic Menu Here is a list of responses that have been posted to this article... You now have TWO OPTIONS: Post a new Article or post a Response to this Article Click here to post a new Article! If you would like to post a Response to this article, fill out this form completely... Do not use slashes ("/") or colons (":") or other "special" characters in your Article title! Also, please be sure to make your Response Title something descriptive...NOT the same title as the original article.. Response Title: Author: Author Email: Response Text: Original Article: (Don't change this field!) Origina Article Truename: (Don't change this field!) Forum: (Don't change this field either!) Article complete. Click HERE to return to the Neurology Web-Forum Menu.

90. Robin's Syndrome (www.whonamedit.com) Also known as pierre robin’s syndrome,robin s anomalad,robin’s sequence. Who named it? Home. List categories. Eponyms AZ. Biographies by country. http://www.whonamedit.com/synd.cfm/1291.html

Home List categories Eponyms A-Z Biographies by country ... Contact Whonamedit.com does not give medical advice. This survey of medical eponyms and the persons behind them is meant as a general interest site only. No information found here must under any circumstances be used for medical purposes, diagnostically, therapeutically or otherwise. If you, or anybody close to you, is affected, or believe to be affected, by any condition mentioned here: see a doctor. Robin's syndrome Also known as: Pierre Robin’s syndrome Robin's anomalad Robin’s sequence Synonyms: Micrognathia-glossoptosis syndrome. Associated persons: Pierre Robin Description: A very rare congenital malformation syndrome characterized by unusual smallness of the jaw combined with cleft palate, downward displacement of the tongue, and an absent gag reflex. The affected child is in serious danger because of difficulty in breathing and feeding. The abnormality may occur in isolation or as a variable component of many genetic syndromes. Inheritance is autosomal recessive. Bibliography: Pierre Robin: La glossoptose. Son diagnostic, ses consequences, son traitement.

91. Welcome To The UC Davis Children's Hospital Cleft & Craniofacial Program If you or your baby have pierre robin sequence as part of a syndrome, there is an increased risk to have other features associated with that syndrome. http://www.ucdmc.ucdavis.edu/cleft/craniofacial/guide/about/pierrerobin.html

Home Craniofacial Anomalies About Craniofacial Anomalies Team Approach to Care ... Scheduling an Appointment Pierre Robin sequence is a combination of problems that begins during pregnancy with micrognathia (small jaw). If the jaw is small, there is often not enough room for the tongue to lie flat in the mouth, so it rests at the back of the mouth (this is called glossoptosis). When the tongue rests at the back of the mouth, it may prevent the palate (roof of the mouth) from closing, resulting in a cleft palate (cleft lip is not usually associated with Pierre Robin). If a child has a cleft palate this is usually repaired between the ages of 12 and 18 months. Isolated Pierre Robin sequence is often not a lifelong condition. The jaw of an affected child is often able to grow and catch up to normal size. In fact, many children have a completely normal profile by the time they start school. Isolated Pierre Robin sequence does not affect any other part of the body. A baby with isolated Pierre Robin sequence is at no greater risk than any other child for other problems, including learning difficulties. If a baby just has Pierre Robin sequence, there is only a small chance that the parents, other family members, or indeed the baby later in life will have another baby with Pierre Robin sequence. The chances of it happening again if you are the affected baby or the parents of that baby, is thought to be between 1 and 5%. Conversely, there is a 95-99% chance that it will not happen again. The risk to other family members is smaller still.

92. CISE - Recherche Translate this page Résultats de votre requête pour syndrome de pierre robin Incluant pierre robin (syndrome). http://www.hsj.qc.ca/CISE/rech_101.asp?id_sujet=100395

93. Syndrome De Pierre Robin SNOF Translate this page Séquence de pierre robin SPR. syndrome de pierre robin. Le syndrome de pierre robin atteint environ un enfant sur 8000 naissances et associe trois éléments http://www.snof.org/maladies/pierre_robin.html

Accueil Annonces Art Histoire ... Homepage Syndrome de Pierre Robin Rev 01-02-2004 jmm Le syndrome de Pierre Robin une fente palatine en forme de U 2) Historique La glossoptose, un grave danger pour nos enfants. Pierre Robin Paris, Gaston Doin, 1927. Glossoptosis due to atresia and hypertrophy of the mandible. Pierre Robin American Journal of Diseases of Children, Chicago, 1934, 48: 541. 3) Clinique une cataracte un ptosis une forte myopie La SPR peut rentrer dans le cadre de maladies polymalformatives, comme le syndrome de Stickler le syndrome de Wagner le syndrome de Weissenbacher-Zweymuller ou le syndrome velocardiofacial 4) Evolution 5) Liens Association Tremplin en anglais: e-medicine OMIM

94. Pierre Robin Sequence/Syndrome Frequently Asked Questions About pierre robin Sequence/syndrome. What is pierre robin Sequence? This is a condition named after the http://www.jpanchal.com/PierreRobinSequenceSyndrome.htm

Jayesh Panchal jayesh-panchal@ouhsc.edu Home Up Contact Us ... About Jayesh Panchal Frequently Asked Questions About Pierre Robin Sequence/Syndrome What is Pierre Robin Sequence? What are the Special Concerns with Pierre Robin? The infant with Pierre Robin Sequence will get better over time. While we wait for your baby to grow stronger, certain supportive care measures will be required. The most important aspect of care for your baby is to assure that breathing is adequate. Various supports for opening the breathing passages may be necessary. These include a soft plastic tube placed into the windpipe, a tube through the nostril past the back of the tongue, and positioning the baby on the abdomen or side. Most care, including diaper changes, feedings, and baths, will be done while your baby is lying on the tummy. How Will My Baby Eat? How Long Will My Baby Be in the Hospital? The length of the hospital stay depends upon how severe the breathing and feeding problems are. The infants must have their breathing monitored until obstructions are no longer as frequent or severe as in the immediate newborn period. Your baby may be discharged with the feeding tube in place. You will be taught how to manage the tube and the bottle feedings and will have plenty of time to practice. Your baby will also go home with a monitor which will sound an alarm if your baby has trouble breathing while at home. If your infant is among the small number of infants who require surgical intervention this could be accomplished by a gradual lengthening of the mandible utilizing a procedure known as distraction.

95. Welcome To Pierre Robin Network pierre robin Network is a group of parents, family members, professionals and adults who have an interest in pierre robin Sequence. We network and offer information so we can learn from our encouraged me to start pierre robin Network and help others pierre robin Sequence (PRS) is the name given to a This site and the pierre robin Email List server, and http://www.pierrerobin.org/

Home New parents About Us Support ... Message Board A place to call home, where you are never alone Stickler Conference in Chicago! The annual Stickler conference is in Chicago this year, July 10th and 11th. You can find info about the conference at www.sticklers.org . I would encourage families to attend if possible. I have been to several and they are wonderful. We are going to have a mini PRS conference on that Friday, July 9 at the Doubletree (as far as I know now). I would like to have anyone who can attend please email me, nancy@pierrerobin.org so I can make plans. I am going to try to get a meeting room for that afternoon. Our get together won't be a formal meeting, just a time to meet each other. I have talked to so many families over the past 9 years, I am anxious to meet some face to face. Please let me know if you will be coming and how many people in your party. You do have to register for the Stickler conference, you can find all that info on their website. Pierre Robin Network was formed in May of 1999 by the mother of a son with PRS. Our organization is made up of parents, relatives, caregivers, adults with PRS and professionals who have an interest in PRS.

96. Pierre Robin: Cleft Links, A Wide Smiles Resource cleft lip and cleft palate resources http://www.widesmiles.org/cleftlinks/pierre.html

All about Clefts and Pierre Robin General Pierre Robin Information Pierre Robin Sequence Overview Syndrome Vs Sequence Syndrome Vs Sequence: Another Definition Lip Bumper/Lower Jaw ... (Trache) Suctioning Precautions On Feeding: Feeding (plus) Advice for Newborn with PR GTube - Feeding Gastrostomy List Feeding and Pierre Robin PRS and Feeding tubes ... Reflux Websites On Palate Surgery: Feedback on PRS Palate Surgery Ryan's Palate Surgery (Pierre Robin) Brian's Palate Repair (Pierre Robin) Palate Surgery When Child Has A Trache ... David's Story: Sphincter Pharyngeoplasty Regarding Sticklers: Sticklers Overview: Check Your Kids (If they have a Pierre Robin type Cleft) Definition of Stickler Syndrome Pierre Robin, Juvenile Arthritis, Stickler Comments Sticklers/Retina Alert ... PRS/Sticklers Statistics Dave Hawley's Stickler's Page: http://members.aol.com/dhawley/stickler.html The official Stickler Involved People website: http://www.geocities.com/HotSprings/9572/ Michelle Cruse's Pierre Robin Sequence Overview What is Pierre Robin Sequence Causes Airway Management ... On-going Reference List A-K and L-Z Go to Another Section For all Parents Feeding Issues Cleft Terms Defined Uplifting Thoughts Regarding Surgery Pierre Robin Insurance Dentistry Speech Everyday Life Syndromes Possible Causes Internet Help Cleft Links Main Page Photo Gallery Wide Smiles Main Page

97. Le Syndrome http://tremplin.free.fr/Syndrome.htm

Tremplin - Syndrome de Pierre Robin Association Loi 1901 - JO 16 du 17 avril 1999 Accueil Le syndrome Les témoignages Vos droits Evénements Bibliographie ... Plan du site Responsable du site Pierre Vandaele Le Syndrome de Pierre Robin par le Dr Véronique Abadi e Extrait de l'ouvrage "112 maladies génétiques, maladies rares" édité par Allo-Gènes, Centre national d'information sur les maladies génétiques, sous la direction du Pr Marie-Louise Briard, grâce au soutien financier de la CNAMTS. Sommaire : Définition clinique Evolution Génétique G ... Glossaire Définition clinique Le syndrome de Pierre Robin se définit par l'association d'une fente palatine postérieure romane médiane, d'un rétrognathisme et d'une glossoptose . Les trois éléments de la triade sont liés entre eux par un lien de cause à effet. Sa dénomination rappelle la description faite par Pierre Robin, dans les années 20, de nourrissons atteints de détresse respiratoire obstructive par glossoptose et rétromandibulie. Au moment de la croissance anatomique de la cavité orale de l'embryon, la fente se constitue en raison de la persistance de la langue en position verticale lors de la fusion antéropostérieure et latéromédiane des processus palatins secondaires, au cours de la 7e semaine de vie intra-utérine. La langue reste en position verticale postérieure du fait de l'insuffisance de tonus de sa base et d'un défaut de croissance de la mandibule. Ce

98. Gimenei >> Health >> Conditions_and_Diseases >> Rare_Disorders >> Pierre_Robin_S Gimenei.com, Search for Scope All Words, Results per page 10. Request Timeout 2, http://www.gimenei.com/directory/top/Health/Conditions_and_Diseases/Rare_Disorde

Search for: Scope: All Words Any Word Phrase Results per page: Request Timeout: Search Depth: Gimenei Health Conditions and Diseases Rare Disorders Pierre Robin Syndrome Music: The King's Singers' Madrigal History Tour Music: Les Tres Riches Heures du Moyen Age: a Medieval Journey - I have quite a number of CDs with Medieval Age polyphony, byzantine chant and renaissance music, but this collection goes beyond what could usually be expected from such boxsets. I'd highly recommend it to all. Toy: Teen Titans 5" Massive Figure: Action Sound Robin - My son loves these characters from the new version of Teen Titans on Cartoon Network. One issue I have with the toy is that the voice is not the same as from the cartoon. My son noticed immediately that the voice wasn't "teenage" sounding at all, more like a 35 year old man. And the pieces that come with the toy are hard to snap into Robin's hands. Other than that, my son loves that character so much nothing else mattered. Robin's legs, arms, hands, and head move really well, so the construction itself is great. The price is fine too. Toy: Batman 6" 2-Pack Figure: Batman and Robin - And of course when my littlest looked at it....he HAD to have it. They are great toys, perfect for his little hands! He will not let his older brother or older sister touch them. He is super huge into batman. We didn't however pay the 11 or so dollars for them. We paid 7.95 for it. Great TOYS!!!!!And my son also LOVES the Robin, it is the only Robin that he has!

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