61. TheFetus.net - Pierre Robin Anomalad-Moshe Bronshtein MD 200207-08-11 pierre robin syndrome © Bronshtein www.TheFetus.net. Pierre Robin anomalad. Moshe Bronshtein MD. Department Obstetrics http://www.thefetus.net/page.php?id=888

62. Alexa Web Search - Subjects > Health > Conditions And Diseases > Rare Disorders pierre robin syndrome Subjects Health Conditions and Diseases Rare Disorders pierre robin syndrome. Sort by Most Popular. http://www.alexa.com/browse/general?catid=523654&mode=general

63. 06/16/1997 - Association Between Toluene And Pierre Robin Syndrome. Standard Interpretations 06/16/1997 Association between toluene and pierre robin syndrome. http://www.osha.gov/pls/oshaweb/owadisp.show_document?p_table=INTERPRETATIONS&p_

64. PillSupplier.com - Conditions And Diseases/Rare Disorders/Pierre Robin Syndrome Category pierre robin syndrome. HOME ABOUT US ORDER STATUS BMI CALCULATOR FAQ CONTACT US. Conditions and Diseases/Rare Disorders/pierre robin syndrome. http://www.pillsupplier.com/dir/968/

Category: Pierre Robin Syndrome HOME ABOUT US ORDER STATUS BMI CALCULATOR ... CONTACT US Prescription Drugs Diet Pills Adipex Bontril Didrex ... Login Conditions and Diseases/Rare Disorders/Pierre Robin Syndrome Links: Chase's Story [rate it] [review it] Personal account of one child's experience of this condition. Includes photographs. Contact a Family: Pierre Robin Syndrome [rate it] [review it] Main features of the condition and possible causes. NORD - Pierre Robin Syndrome [rate it] [review it] Sample report, plus links to organisations. [Fee required for full report] Pierre Robin Network [rate it] [review it] Provides general information about the condition, including genetics, issues and a glossary. Also offers an email group, message board, and personal accounts. Search Looking for something in particular? the entire directory only this category More search options Pages Updated On: Fri May 28 2004 - 04:41:17 About Us Frequently Asked Questions Contact Us Order Status ... Health Resources

65. Jenny And Trevor's Story: SEDC And Complications At Birth - KSG Page In Our Own Words A child with SED and Complications at Birth. Written by Jenny, a parent of Trevor with SED and pierre robin syndrome. http://www.ksginfo.org/trev_prs.html

In Our Own Words: A child with SED and Complications at Birth Written by Jenny, a parent of Trevor with SED and Pierre Robin Syndrome . Trevor is now twelve years old. He had a vent until age three, trach tube until age eight. I'll try to remember everything. Trevor was born full term by c-section, in the early 1990's. We did not know he was a dwarf, or that he had any medical problems until he was born. He had severe respiratory problems, was intubated and put on a ventilator at birth, diagnosed with SED the next day. The docs tried to extubate, but it did not work. Bronchoscopy revealed severe tracheal, laryngeal and bronchial malasia and stenosis. He was trached at 5 days. Bottling was very difficult, and caused severe respiratory distress, so he got a GT at about a week of age, and never bottled or nursed. Trevor's airway was very fragile and any little thing caused respiratory distress. They tried lots of things including CPAP, but ended up with a vent at a pretty high rate and pressure to keep the airway open. His respiratory doc said the airway was the worst he had ever seen in a child that lived. One thing that we had problems with was keeping the ventilator humidity high enough. At the time, the NICU only had regular vent tubing, and the rainout was severe. At 9 months he moved to M. Children's Chronic Care Program, and they had heated wire vent tubing. The vent humidity was then able to get turned up enough. What this did was keep the mucous thinner, and prevented a lot of episodes with mucous plugs.

66. Kniest And Spondyloepiphyseal And Spondylometaphyseal Dysplasia Page Medical Inf Top of page. Links for pierre robin syndrome The Pierre Robin Network, a helpful site for new parents http//www.pierrerobin.org/; http://www.ksginfo.org/info.html

Information about Kniest, SED, and SMD Please click on the condition you want to learn more about. Find a Skeletal Dysplasia (dwarfism) clinic Kniest Sydrome Metatropic Dysplasia Type II : See Kniest (Kniest is called Metatropic Type II by accident really and is very different from metatropic dwarfism itself.) Spondyloepiphyseal dysplasias (SED) : SED Congenita (SEDC), SED Tarda, SED X-Linked, SED-Toledo type. Spondylometaphyseal dysplasias (SMD) : SMD Corner Fracture Type, SMD Kozlowski Type (SMD-K) Wagner-Stickler's Syndrome. Other links : Ulna Metaphyseal Dysplasia Syndrome, Spondyloepimetaphyseal dysplasia type Strudwick (SEMD) also known as spondylometaepiphyseal dysplasia type Strudwick (SMED) Specific Medical Conditions common to people with Kniest, SED, and SMD: Pierre Robin Syndrome Back Care Hip Problems Knee problems Problems with IV placement and tips for surgeries. Overheating Please note that not all complications listed will necessarily occur. Where do all these names come from? See the Medical Terms page.

67. Pierre Robin Syndrome Home Up . Click Here! pierre robin syndrome. Click Here! Musice.net Just-recipes.net EnvyMag.com Scholarships-4u.com Shesearch http://www.health-server.com/pierre_robin_syndrome.htm

Home Up Pierre Robin Syndrome Music-e.net Just-recipes.net EnvyMag.com Scholarships-4u.com ... Osteoporosis [ Pierre Robin Syndrome ] Plantar Fasciitis Post Polio Syndrome Reflex Sympathetic Dystrophy Rheumatoid Arthritis ... Submit A Health Site

68. [DYSPHAGIA] Pediatric Pierre Robin Syndrome Date PrevDate Next Chronological Thread Top DYSPHAGIA Pediatric pierre robin syndrome. Subject DYSPHAGIA Pediatric pierre robin syndrome; http://list.dysphagia.com/dysphagia/1999-May/msg00157.html

Date Prev Date Next [Chronological] [Thread] ... [Top] [DYSPHAGIA] Pediatric Pierre Robin Syndrome Subject [DYSPHAGIA] Pediatric Pierre Robin Syndrome From SuzMorris@aol.com SuzMorris@aol.com Date: Mon, 24 May 1999 21:40:48 EDT http://www.new-vis.com Prev by Date: [DYSPHAGIA] Assessment Protocols Next by Date: [DYSPHAGIA] Masako Index(es): Chronological Thread

69. [DYSPHAGIA] Pediatric Pierre Robin Syndrome -Reply Date PrevDate Next Chronological Thread Top DYSPHAGIA Pediatric pierre robin syndrome Reply. Subject DYSPHAGIA Pediatric http://list.dysphagia.com/dysphagia/1999-May/msg00146.html

Date Prev Date Next [Chronological] [Thread] ... [Top] [DYSPHAGIA] Pediatric Pierre Robin Syndrome -Reply Subject [DYSPHAGIA] Pediatric Pierre Robin Syndrome -Reply From FriedmaM@allkids.org (Margie Wells-Friedman) Date: Mon, 24 May 1999 09:36:56 -0400 Prev by Date: [DYSPHAGIA] Re: Cleaning nasoendoscopes Next by Date: [DYSPHAGIA] pediatric swallowing problems Index(es): Chronological Thread

70. Conditions And Diseases: Rare Disorders: Pierre Robin Syndrome| Treasure Coast H Information on Conditions and Diseases, Rare Disorders, pierre robin syndrome and much more Treasure Coast Health. Treasure Coast http://treasurecoasthealth.com/treasurecoasthealth.php/Health/Conditions_and_Dis

Home Doctor Directory Health Resources Resources for Women Newsletter Sign Up ... Advertise with Us ** Buy text Ads! About Us Conditions and Diseases: Rare Disorders: Pierre Robin Syndrome Canadian Pharmacy See also: Health: Conditions and Diseases: Musculoskeletal Disorders Chase's Story - Personal account of one child's experience of this condition. Includes photographs. Contact a Family: Pierre Robin Syndrome - Main features of the condition and possible causes. NORD - Pierre Robin Syndrome - Sample report, plus links to organisations. [Fee required for full report] Pierre Robin Network - Provides general information about the condition, including genetics, issues and a glossary. Also offers an email group, message board, and personal accounts. Sponsors: Xango - Xango Mangosteen Xanthones benefits. Israeli Pharmacy - Israel prescriptions saving you money Oral Chelation Therapy - Oral Chelation Therapy PCA-Rx is an alternative treatment for and mercury toxicity. The result of years of rigorous research and development.PCA-Rx English Pharmacies - Buy English drugs online British Pharmacy - Buy British drugs online On Line Pharmacy Get prescription drugs online today at our pharmacy.

71. OMIM - PIERRE ROBIN SYNDROME http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=261800

72. OMIM - Online Mendelian Inheritance In Man pierre robin syndrome. pierre robin syndrome AND OLIGODACTYLY. pierre robin syndrome WITH CONGENITAL HEART MALFORMATION AND CLUBFOOT. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=PureSearch&db=omim&details_ter

73. Pierre Robin Syndrome pierre robin syndrome Directory Guide to pierre robin syndrome sites on the internet. pierre robin syndrome. http://www.directory.net/Health/Conditions_and_Diseases/Rare_Disorders/Pierre_Ro

Pierre Robin Syndrome Directory: Guide to Pierre Robin Syndrome sites on the internet. Search Engines: Google Yahoo MSN FindWhat ... City Guides Pierre Robin Syndrome Health Conditions and Diseases Rare Disorders Pierre Robin Syndrome Websites Pierre Robin Network http://www.pierrerobin.org Provides general information about the condition, including genetics, issues and a glossary. Also offers an email group, message board, and personal accounts. Contact a Family: Pierre Robin Syndrome http://www.cafamily.org.uk/direct/p24.html Main features of the condition and possible causes. Chase's Story http://www.pierrerobin.com Personal account of one child's experience of this condition. Includes photographs. NORD - Pierre Robin Syndrome http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=pierre%20robin%20syndrome Sample report, plus links to organisations. [Fee required for full report] Got eight minutes? Join in and participate in Stanford's Web Credibility Project's latest study. Help build the largest human-edited directory on the web. Submit a Site Open Directory Project Become an Editor The content of Directory.NET

74. Pierre Robin Syndrome From Linkspider UK Health Directory pierre robin syndrome by Linkspider UK, pierre robin syndrome links and pierre robin syndrome topics from our Health directory. http://linkspider.co.uk/Health/ConditionsandDiseases/RareDisorders/PierreRobinSy

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75. Welcome To AJC! pierre robin syndrome. Causes and Risks. The specific causes of pierre robin syndrome are unknown; it can be part of many genetic syndromes. http://www.ajc.com/health/healthfd/shared/health/adam/ency/article/001607.html

Main Contact us Edit profile Subscribe ... Register Now It's Free! Log in E-mail preferences Site Index Search: Site Yellow Pages Customer care ajc.com Nation/World Metro ... Personals ajc services Archives Advertise online Advertise in print Obituaries ... Sitemap Print edition Today This week A1 image E-mail News  Sign up for our  FREE newsletters: News Sports Business Travel Deals ... Logged in? ajc store Gifts Photos/pages Browser tip  Make ajc.com  your homepage: ajc guides Schools Visitors Illustrated Health Encyclopedia Important notice Ency. home Disease P Pierre Robin syndrome Overview Symptoms Treatment Prevention Alternative names: Robin sequence Definition: A group of abnormalities marked primarily by a very small lower jaw with a tongue that falls back and downward. The syndrome may include a high arched palate or cleft palate. Causes and Risks The specific causes of Pierre Robin syndrome are unknown; it can be part of many genetic syndromes. The lower jaw develops slowly over the first few months of fetal life but catches up over the first year after birth. Posterior placement of the tongue may cause choking episodes, feeding difficulty and

76. Disease - Pierre Robin Syndrome - Detroit, Michigan Disease pierre robin syndrome - courtesy of Henry Ford Health System of Detroit, Michigan. page Disease - pierre robin syndrome. http://www.henryfordhealth.org/12557.cfm

Health Encyclopedia Back to main Health Information page Disease - Pierre Robin syndrome Infant hard and soft palates Definition: Pierre Robin syndrome (also called Pierre Robin complex or sequence) is a condition present at birth that is characterized by a very small lower jaw (micrognathia). The tongue tends to fall back and downward (glossoptosis) and there is cleft soft palate. Alternative Names: Robin sequence Causes And Risk: The specific causes of Pierre Robin syndrome are unknown. It can be part of many genetic syndromes. The lower jaw develops slowly over the first few months of fetal life but catches up over the first year after birth. Posterior placement of the tongue may cause choking episodes, feeding difficulty and breathing difficulties, especially while asleep. Prevention: Prevention of the syndrome is unknown. Treatment may reduce the number of episodes of breathing problems and choking. Symptoms: very small jaw with marked receding chin tongue appears large (is actually normal size but big relative to jaw) and is placed unusually far back in the oropharynx high arched palate cleft soft palate choking on tongue (a small opening in the roof of the mouth) natal teeth Signs And Tests: A physical examination is usually sufficient for your health care provider to diagnose this condition. A genetics consultation can rule out other associated anomalies and syndromes.

77. Medical Pierre Robin Syndrome pierre robin syndrome. Mrs Jacqui Mitchell, pierre robin syndrome Contact group 83 Swallowfield road London SE7 7NT (Tel 0181 853 1811 evenings). http://www.james.hopkins.easynet.co.uk/med_p1.html

Pierre Robin Syndrome The condition is characterised by a small mandible (jaw bone), lack of tongue control with a high arched or cleft palate. Obstruction of the airway can occur due to the position of the tongue. Associated problems are feeding and breathing difficulties may be severe. However, the jaw continues to grow after birth and the condition improves with age. Inheritance Patterns : Most are sporadic events; some cases may be due to Stickler Syndrome which has autosomal dominant inheritance. Pre-Natal Diagnosis : Where a cleft palate is present it may be able to identify this using ultrasound scanning. Further information available from: Mrs Jacqui Mitchell, Pierre Robin Syndrome Contact group 83 Swallowfield road London (Tel: 0181 853 1811 evenings) The Pierre robin contact group is a small Contact group. It offers: Support especially for parents with new babies with the syndrome Support and encouragement for parents with older children Return to the Medical Index HOME EVENTS NEWS ... CONTACT US

78. Pierre Robin Syndrome Tips for printing. pierre robin syndrome. Special Resources SOS Ask experts or consultants for information pierre robin syndrome. http://ibis-birthdefects.org/start/piersyn.htm

Tips for printing Pierre Robin Syndrome About I.B.I.S. Home Search Topics Search all contents ... "In the News" Messages... Questions/comments Report Dead Links S.O.S. - Exchange Join I.B.I.S. ... Etchings Please Explore: 11 / 22 Translocation Stickler Syndrome Support Groups Professional Associations ... Key Information Sources Topics include Titles and Micrognathia Pierre Robin Syndrome Pierre Robin's sequence Retrognathia Special Resources Pierre Robin Syndrome A Selection of Internet Sites [*] Outstanding [P] For Professionals [S] Support Group [Dutch] [Norwegian] [Swedish] [Ukrainian] Pierre Robin syndrome [*][P] Pierre Robin Sequence [*][S] Information about Pierre Robin Sequence/Complex Cleft Palate Foundation Publications … Pierre Robin Sequence or Complex (pronounced "Roban") is the name given to a birth condition that involves the lower jaw being either small in size (micrognathia) or set back from the upper jaw (retrognathia). As a result, the tongue tends to be displaced back towards the throat, where it can fall back and obstruct the airway (glossoptosis). Most infants, but not all, will also have a cleft palate, but none will have a cleft lip … Frequency estimates range from 1 in 2,000 to 30,000 births, based on how strictly the condition is defined. In contrast, cleft lip and/or palate occurs once in every 700 live births … Parents who have had one child with isolated Robin Sequence probably have between a 1 and 5% chance of having another child with this condition. There have not yet been enough large-scale studies to make more accurate predictions ...

79. Disease - Pierre Robin Syndrome, North Carolina Disease pierre robin syndrome, Online Medical Encyclopedia courtesy of University Health Systems of Eastern Carolina serving 29 counties in eastern North http://www.uhseast.com/12049.cfm

Back Email Us Search Centers of Excellence ... Disease Management Disease - Pierre Robin syndrome Infant hard and soft palates Definition: Pierre Robin syndrome (also called Pierre Robin complex or sequence) is a condition present at birth that is characterized by a very small lower jaw (micrognathia). The tongue tends to fall back and downward (glossoptosis) and there is cleft soft palate. Alternative Names: Robin sequence Causes And Risk: The specific causes of Pierre Robin syndrome are unknown. It can be part of many genetic syndromes. The lower jaw develops slowly over the first few months of fetal life but catches up over the first year after birth. Posterior placement of the tongue may cause choking episodes, feeding difficulty and breathing difficulties, especially while asleep. Prevention: Prevention of the syndrome is unknown. Treatment may reduce the number of episodes of breathing problems and choking. Symptoms: very small jaw with marked receding chin tongue appears large (is actually normal size but big relative to jaw) and is placed unusually far back in the oropharynx high arched palate cleft soft palate choking on tongue (a small opening in the roof of the mouth) natal teeth Signs And Tests: A physical examination is usually sufficient for your health care provider to diagnose this condition. A genetics consultation can rule out other associated anomalies and syndromes.

80. Pierre Robin Syndrome pierre robin syndrome. Definition The specific causes of pierre robin syndrome are unknown; it can be part of many genetic syndromes. http://www.shands.org/health/information/article/001607.htm

Disease Injury Nutrition Poison ... Infant hard and soft palates Pierre Robin syndrome Definition: A group of abnormalities marked primarily by a very small lower jaw with a tongue that falls back and downward. The syndrome may include a high arched palate or cleft palate. Alternative Names: Robin sequence Causes, incidence, and risk factors: The specific causes of Pierre Robin syndrome are unknown; it can be part of many genetic syndromes. The lower jaw develops slowly over the first few months of fetal life but catches up over the first year after birth. Posterior placement of the tongue may cause choking episodes, feeding difficulty and breathing difficulties , especially while asleep. Symptoms: very small jaw with marked receding chin tongue appears large (is actually normal size but big relative to jaw) and is placed unusually far back in the oropharynx high arched palate cleft soft palate choking on tongue natal teeth Signs and tests: Physical examination is usually sufficient for your health care provider to diagnose this condition. Treatment: Infants must be kept prone (face down), which allows gravity to pull the tongue forward and keep the airway open. These problems abate over the first few years as the lower jaw grows and assumes a more normal size. In moderate cases, the patient requires placement of a nasopharyngeal airway (a tube placed through the nose and into the airway) to avoid airway blockage. In severe cases, surgery is indicated for recurrent upper

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