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         Parry-rombergs Syndrome:     more detail
  1. The Official Patient's Sourcebook on Parry-Romberg Syndrome: A Revised and Updated Directory for the Internet Age by Icon Health Publications, 2002-10
  2. Beneficial effect of immunosuppressive drugs on Parry-Romberg syndrome: a case report and review of the literature.(Case Report): An article from: Southern Medical Journal by Cengiz Korkmaz, Baki Adapinar, et all 2005-09-01

81. Craniofacial Anomalies
syndrome Cranio – Synostosis Crouzon syndrome Goodman syndrome Page 2 Jackson– Weiss Langer – Geidon Parry – Rombergs syndrome Pfeiffer syndrome
http://ibis-birthdefects.org/start/craniofa.htm
Tips for printing Craniofacial Anomalies
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Join I.B.I.S. ... Etchings Please Explore: Cleft Lip Palate Crouzon S. DiGeorge Pierre Robin S. ... Key Information Sources Topics include Titles and Craniosynostoses Special Resources Craniofacial Anomalies A Selection of Internet Sites [*] Outstanding [P] For Professionals [S] Support Group [Hungarian] [Ukrainian] CRANIOFACIAL ANOMALIES (Nicely illustrated) by Neil Feldstein MD, a pediatric neurosurgeon at Columbia - Presbyterian Medical Center in New York City from Pediatric Neurosurgery Craniofacial Anomalies Extramural Information Center [P] The Journal Of Craniofacial Surgery from The Journal Of Craniofacial Surgery An international journal dedicated to the art and science essential to the practice of craniofacional surgery ... Official ... [P] Society of Craniofacial Genetics from Society of Craniofacial Genetics Founded in 1975 to promote education, research, and communication in normal and abnormal development of the craniofacies ...

82. Any Search Info - Directory: Health Support Groups Conditions And Diseases Facia
Directory Results Web Site Matches Any Search Info. Parry Romberg syndrome Storiesfrom people affected by Parry Romberg syndrome, support and information.
http://search-info.com/search/engine/index/Health/Support_Groups/Conditions_and_
Top Health Support Groups Conditions and Diseases ... Facial Differences : Parry-Rombergs Syndrome [4] Directory Results: Web Site Matches: Parry Romberg Syndrome
Stories from people affected by Parry Romberg syndrome, support and information.
url: www.cannylink.com/diseaseparryromberg.htm Parry Romberg Syndrome Information Page
Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations.
url: www.ninds.nih.gov/health_and_medical/disorders/par.... The Romberg's Connection
International support group for families whose lives are affected by Romberg's syndrome.
url: www.geocities.com/HotSprings/1018/ Romberg's Syndrome
General information, contacts, online discussion groups and links.
url: www.familyvillage.wisc.edu/lib_rombs.html Home Link To Us About Us Submit URL ... Advertise Last update: 9:37 PT, Wednesday, May 23, 2001 Help build the largest human-edited directory on the web. Submit a Site Open Directory Project Become an Editor Powered by ODP++
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83. Wauu.DE: Health: Support Groups: Conditions And Diseases: Facial Differences: Pa
Onlye. Links URL hinzufügen. Parry Romberg syndrome Stories from peopleaffected by Parry Romberg syndrome, support and information.
http://www.wauu.de/Health/Support_Groups/Conditions_and_Diseases/Facial_Differen
Home Health Support Groups Conditions and Diseases ... Facial Differences : Parry-Rombergs Syndrome Search DMOZ-Verzeichnis:
All Categories Categories Onlye
Links:
  • Parry Romberg Syndrome
    Stories from people affected by Parry Romberg syndrome, support and information.
    http://www.cannylink.com/diseaseparryromberg.htm
  • Parry Romberg Syndrome Information Page
    Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations.
    http://www.ninds.nih.gov/health_and_medical/disorders/parry_romberg.htm
  • Romberg's Syndrome
    General information, contacts, on-line discussion groups and links.
    http://www.familyvillage.wisc.edu/lib_rombs.html
  • The Romberg's Connection International support group for families whose lives are affected by Romberg's syndrome. http://www.geocities.com/HotSprings/1018/
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84. Burns/Disfigurement Etc. Support Group Database
ParryRomberg s syndrome. The Parry-Romberg s syndrome is a degenerativedisease thats eats away the tissues, muscles and bones of the face.
http://www.burnsupportgroupsdatabase.com/files/australi.htm
Australia
Parents of Burn Survivors Lisa Smith is looking to share support and information with other parents of burns surviors. Anybody out there?
You can contact her by e-mail: Lisa
Burn Camp:
Camp Oz Location: Brisbane, Australia
Contact: Sandra King, OT, Director of Burn Camp
Royal Children's Hospital
9 Roseby Avenue, Clayfield
Queensland 4011 Australia
Tel: 011 617-3262-7242
Fax: 011-617-3262-8247 Affiliation: Royal Children's Hospital
Information: Season Length (days) # Kids Age Range Spring/October Burn Camp: Camp Oz II Location: Brisbane, Australia Contact: Sandra King, OT, Director of Burn Camp Royal Children's Hospital 9 Roseby Avenue, Clayfield Queensland 4011 Australia Tel: 011 617-3262-7242 Fax: 011-617-3262-8247 Affiliation: Royal Children's Hospital Information: Season Length (days) # Kids Age Range Spring/October 13 and up Burn Camp: Children's Burn Camp Location: Sydney, Australia Contact: Cheri Templeton, Coordinator

85. Burn Support Groups Database
hotmail.com; Link to the Parry Rombergs syndrome web site in the USA.To the top of this page Return to Home page Return to database
http://www.burnsupportgroupsdatabase.com/files/south-af.htm
South Africa
Correponder? Est ce qui'l y a quelqu 'un qui veut corresponder en Français par e-mail avec Evelyne en Africe-du-Sud? (Evelyne a 24 ans et elle etait brûler en Gabon)
E-mail: firechildren@icon.co.za Parry-Romberg's Syndrome International Support Group The Parry-Romberg's Syndrome is a degenerative disease thats eats away the tissues, muscles and bones of the face.
The newly founded group's goal is to find people with Romberg's disease all over the world to offer support and friendship. Although the group is still relatively small and very new, they have faith that people will contact them through this database. Anyone out there who would like to join?
Very little is still known about Romberg's ....so right now, all they have is each other. To contact my friend Theresa's group, e-mail or link: To the top of this page Return to Home page Return to database

86. Support Groups
www.geocities.com/HotSprings/1018/index.html Our group was formed in June of 97by Theresa Hildebrand and Terry Burau for people with Parry Rombergs syndrome.
http://www.worldcf.org/supportgroups.htm
CRANIOFACIAL TREATMENT CENTERS University of California - Los Angeles
Director: H.K. Kawamoto, Jr. MD, DDS
UCLA School of Medicine
Division of Plastic Surgery
10833 Le Conte Ave.
Los Angeles, CA 90024-1665
Phone: 310.825.5898 Fax: 310.825.2785 University of Southern California
Director: John F. Reinisch, M.D.
Children's Hospital - Los Angeles
Division of Plastic Surgery
4650 Sunset Blvd. Phone: 213.669.4542 Fax: 213.669.4106 Stanford University Director: Stephen A. Schendel, MD, DDS Stanford U. Med. Center Stanford, CA 94305 Phone: 650.723.5824 Fax: 650.725.6605 Tampa Bay Craniofacial Center Director: Mutaz B. Habal, MD 802 W. Buffalo Ave. Tampa, FL 33603-3301 Phone: 813.238.0409 Fax: 813.238.1119 University of Kansas Director: Ned Garrigues, MD University of Kansas Plastic Surgery Sutherland Institute 3901 Rainbow Blvd. Kansas City, KS 66160-7389

87. Red Box Portal
Odkazy v této kategorii seznamu. Parry Romberg syndrome Stories frompeople affected by Parry Romberg syndrome, support and information.
http://portal.redbox.cz/portal/directory/Health/Support_Groups/Conditions_and_Di
ČR Zpr¡vy Obr¡zky Seznam CoToJe ... Erotika Dnes je 3. června 2004, sv¡tek m¡ Tamara, z­tra Dalibor HomePage Vyhled¡v¡n­ Zpr¡vy Seznam ... Facial Differences Odkazy v t©to kategorii seznamu Parry Romberg Syndrome
Stories from people affected by Parry Romberg syndrome, support and information.
Parry Romberg Syndrome Information Page

Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations.
Romberg's Syndrome

General information, contacts, on-line discussion groups and links.
The Romberg's Connection

International support group for families whose lives are affected by Romberg's syndrome.
Obsah seznamu Red Box je z č¡sti založen na projektu Open Directory a zdokonalen prostřednictv­m technologie EMPYREUM CataLink. Help build the largest human-edited directory on the web. Submit a Site Open Directory Project Become an Editor

88. Welcome To Friends' Health Connection - Friends' Make All The Difference
Disorder Papillary Carcinoma Paralysis Paralysis (Vocal Cord) Paraplegia ParasitesParkinson s Disease Parotiditos Parry Rombergs syndrome PelizaeusMerzbacher
http://www.friendshealthconnection.org/illnesses.php
Items: Total: $ 0.00 About Us Find a Friend (Join) Affiliate Hospitals Promotional Items ... Home List of Illnesses
Below is a list of the health problems for which we currently have members. New members join daily. Please feel free to fill out a membership application even if your health problem is not listed. As new members join with your health problem we will connect you. A B C D ... W X Y Z A
Abdominal Adhesions
Abdominal Pain
Abherrant Regeneration
Accident survivors
Achalasia
Acid Reflux
Acne Rosacea
Acoustic Neuroma
Acute Disseminated Encephalomyelitis Adenocarcinoma Addisons Disease Agoraphobia Adrenal Dysfunction Agnogenic Myeloid Metaplasia AIDS Alcoholism (recovering) Allergic Broncho Pulmonary Aspergillosis Allergies (General) Allergies (Bee) Allergies (Food) Allergies (to chemicals) Allergies (to mold) Alloimmunthrombocytopenia Alopecia Areata Alzheimer's Amputations Amyotrophic Lateral Sclerosis (ALS) Anaphylaxis Anemia Anemia (Hemolytic) Anemia (Pernicious) Angina Angiodema Angogenic Metaplasia Ankylosing Spondylitis (see also Arthritis) Anorectal Problems Anorexia Antiphospholipid Antibody Syndrome Anxiety Aorta Pulmonary Window Aortic Valve Replacement Aphasia Apnea (Sleep) Archnoiditis Arnold-Chiari Malformation Arteriovenous Malformation (AVM) Arteritis (Giant Cell Temple) Artheroclerosis Arthralgia Arthritis Arthritis (Adult Onset) Arthritis (Degenerative) Arthritis (Juvenile Rheumatoid) Arthritis (Non-Rheumatoid Inflammatory) Arthritis (Osteo) Arthritis (Zero-negative)

89. Facial Differences From Linkspider UK Health Directory
Crouzon Support Network A network designed to offer support to individuals andfamilies dealing with Crouzon s syndrome and other craniofacial anomalies.
http://linkspider.co.uk/Health/SupportGroups/ConditionsandDiseases/FacialDiffere
Match » -All words -Any word -Exact text Search » The Web Jobs / Vacancy Images / Photos FTP / Downloads United Kingdom United States of America Argentina Austria Australia Bangladesh Belgium Bolivia Brazil Bulgaria Canada Chile China Cuba Cyprus Czech Republic Czechoslovakia Denmark Dominican Republic Ecuador Egypt Estonia Finland France Germany Ghana Greece Hong Kong Hungary Iceland India Indonesia Ireland Israel Italy Japan Jordan Kenya Kuwait Latvia Lithuania Luxembourg Malaysia Malta Mexico Moldavia Monaco Morocco Mozambique Nepal Netherlands New Zealand Nicaragua Nigeria North Korea Norway Pakistan Panama Paraguay Peru Philippines Poland Portugal Qatar Romania Russian Federation Saudi Arabia Singapore South Africa South Korea Spain Sri Lanka Sweden Switzerland Taiwan Tanzania Thailand Tunisia Turkey Ukraine United Arab Emirates Uruguay Venezuela Yemen Yugoslavia Zambia Zimbabwe Ranking » On (no duplicate) Off (allow duplicate) Add my Site Toolbar Affiliates
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90. BioDirectory.Net - Biological Sciences Search Engine
Web Sites. Parry Romberg syndrome Stories from people affected by ParryRomberg syndrome, support and information. url www.cannylink
http://www.bioinformatics.vg/cgi-bin/odp/index.cgi?base=/Health/Support_Groups/C

91. Health Support Groups Conditions And Diseases Facial Differences Parry-Rombergs
Top Web Sites Parry Romberg syndrome Stories from people affectedby Parry Romberg syndrome, support and information. Parry Romberg
http://www.yourpastconnections.com/odp/directory/Health/Support_Groups/Condition
Sponsored Links What are you looking for? the entire directory only in Facial_Differences/Parry-Rombergs_Syndrome Popular Categories Popular Searches Recent Categories Recent Searches ... Facial Differences : Parry-Rombergs Syndrome Top Web Sites: Parry Romberg Syndrome - Stories from people affected by Parry Romberg syndrome, support and information.
Parry Romberg Syndrome Information Page
- Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations.
The Romberg's Connection
- International support group for families whose lives are affected by Romberg's syndrome.
Romberg's Syndrome
- General information, contacts, online discussion groups and links.
Try other search sites: Parry-Rombergs Syndrome " search on: All the Web AltaVista Gigablast Google USENET ... Yahoo Help build the largest human-edited directory on the web. Submit a Site Open Directory Project Become an Editor Powered by ODP++

92. Support Groups: Conditions And Diseases: Facial Differences: Parry-Rombergs Synd
Support Groups Conditions and Diseases Facial Differences ParryRombergssyndrome. Parry Romberg syndrome - Stories from people
http://my.treasurecoasthealth.com/treasurecoasthealth.php/Health/Support_Groups/
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Support Groups: Conditions and Diseases: Facial Differences: Parry-Rombergs Syndrome
Canadian Drugs
  • Parry Romberg Syndrome - Stories from people affected by Parry Romberg syndrome, support and information.
  • Parry Romberg Syndrome Information Page - Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations.
  • The Romberg's Connection - International support group for families whose lives are affected by Romberg's syndrome.
  • Romberg's Syndrome - General information, contacts, on-line discussion groups and links.
Sponsors:

93. Health- Support Groups- Conditions And Diseases- Facial Differences- Parry-Rombe
Differences, ParryRombergs syndrome. Health, Support Groups, Conditionsand Diseases, Facial Differences, ParryRombergs syndrome.
http://iasweb.com/ODP/Health/Support_Groups/Conditions_and_Diseases/Facial_Diffe
    This category features links for Health, Support Groups, Conditions and Diseases, Facial Differences, ParryRombergs Syndrome
Health, Support Groups, Conditions and Diseases, Facial Differences, ParryRombergs Syndrome
Top Health Parry-Rombergs_Syndrome
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94. Gimenei >> Health >> Support_Groups >> Conditions_and_Diseases >> Facial_Differe
Gimenei.com, Search for Scope All Words, Results per page 10.Request Timeout 2,
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Health Support Groups Conditions and Diseases ... Facial Differences Parry Rombergs Syndrome Electronics: Motorola T5720 GMRS/FRS 2-Way Radio (Pair, AA Batteries) - It is not as good as i hoped. Bottom line, too much batteries, (batteries are expensive) and it goes through them like a fat woman through chocolate.I will write a review on batteries as soon as i find them and boy will they get theirs.Motorola is not the best walkie talkie company. Its range is only 5 miles that five miles can make the difference between life and death when you are lost in a vietnamese jungle during the rainy season.And it is too quiet and their are not enough channels. And when you are playing mission impossible in the heating vents the range is reduced to like, 30 feet more or less. And shortly after mission impossible it ran out of batteries.
Electronics: Motorola T5950 Rechargeable GMRS 2-Way Radios (Pair) - These are terrific little units with awesome range. I keep a pair in every car I have for trips to Costco, the Mall, Seaworld or wherever. My only complaint if the NiCAD batteries. They do get a memory if you don't use them a lot. NiMHD would have been a better choice considering the way you'll likely use them. The batteries will lose their charge whe sitting unused so they are less available for last minute emergency use.

95. Support Groups: Conditions And Diseases: Facial Differences: Parry-Rombergs Synd
Support Groups Conditions and Diseases Facial Differences ParryRombergsSyndrome. http//ephys.com What are you waiting for?
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Support Groups: Conditions and Diseases: Facial Differences: Parry-Rombergs Syndrome
  • Parry Romberg Syndrome - Stories from people affected by Parry Romberg syndrome, support and information.
  • Parry Romberg Syndrome Information Page - Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations.
  • The Romberg's Connection - International support group for families whose lives are affected by Romberg's syndrome.
  • Romberg's Syndrome - General information, contacts, on-line discussion groups and links.
Sponsors:

96. PhatNav Directory - Health/Conditions_and_Diseases/P
Health/Support Groups/Conditions and Diseases/Facial Differences/ParryRombergsSyndrome. Health/Mental Health/Disorders/Anxiety/Post Traumatic Stress.
http://www.phatnav.com/directory/Health/Conditions_and_Diseases/P.cat
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97. SearchBug Directory: Health: Support_Groups: Conditions_and_Diseases: Facial_Dif
Search the Web Web. Open Directory. Search ParryRombergsSyndrome,
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Support Groups Conditions and Diseases Facial Differences ... Go to Directory Home Web Pages
- ranked by popularity Parry Romberg Syndrome Information Page http://www.ninds.nih.gov/health_and_medical/disorders/parry_romberg.htm Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations. The Romberg's Connection http://www.geocities.com/HotSprings/1018/ International support group for families whose lives are affected by Romberg's syndrome. Romberg's Syndrome http://www.familyvillage.wisc.edu/lib_rombs.html General information, contacts, on-line discussion groups and links. Parry Romberg Syndrome http://www.cannylink.com/diseaseparryromberg.htm Stories from people affected by Parry Romberg syndrome, support and information.
Help build the largest human-edited directory on the web.

98. P From Linkspider UK Health Directory
Parasitic Infections; Paresthesia; Parkinson s Disease; ParryRombergsSyndrome; Passive-Aggressive Personality Disorder; Patellofemoral
http://linkspider.co.uk/Health/ConditionsandDiseases/P/
Match » -All words -Any word -Exact text Search » The Web Jobs / Vacancy Images / Photos FTP / Downloads United Kingdom United States of America Argentina Austria Australia Bangladesh Belgium Bolivia Brazil Bulgaria Canada Chile China Cuba Cyprus Czech Republic Czechoslovakia Denmark Dominican Republic Ecuador Egypt Estonia Finland France Germany Ghana Greece Hong Kong Hungary Iceland India Indonesia Ireland Israel Italy Japan Jordan Kenya Kuwait Latvia Lithuania Luxembourg Malaysia Malta Mexico Moldavia Monaco Morocco Mozambique Nepal Netherlands New Zealand Nicaragua Nigeria North Korea Norway Pakistan Panama Paraguay Peru Philippines Poland Portugal Qatar Romania Russian Federation Saudi Arabia Singapore South Africa South Korea Spain Sri Lanka Sweden Switzerland Taiwan Tanzania Thailand Tunisia Turkey Ukraine United Arab Emirates Uruguay Venezuela Yemen Yugoslavia Zambia Zimbabwe Ranking » On (no duplicate) Off (allow duplicate) Add my Site Toolbar Affiliates
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99. Untitled Document

http://www.martis.freeserve.co.uk/Parry/

100. Wuup.de - /Health/Conditions_and_Diseases/P
Parasitic Infections@; Paresthesia@; Parkinson s Disease@; ParryRombergsSyndrome@; Passive-Aggressive Personality Disorder@; Patellofemoral
http://wuup.de/index.php/Health/Conditions_and_Diseases/P

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