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  1. The Official Patient's Sourcebook on Parry-Romberg Syndrome: A Revised and Updated Directory for the Internet Age by Icon Health Publications, 2002-10
  2. Beneficial effect of immunosuppressive drugs on Parry-Romberg syndrome: a case report and review of the literature.(Case Report): An article from: Southern Medical Journal by Cengiz Korkmaz, Baki Adapinar, et all 2005-09-01

61. P In Health > Conditions And Diseases
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62. Parry-Rombergs Syndrome
parryrombergs syndrome Directory Guide to Parry-RombergsSyndrome sites on the internet. parry-rombergs syndrome.
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Health Support Groups Conditions and Diseases Facial Differences ... Parry-Rombergs Syndrome Websites The Romberg's Connection http://www.geocities.com/hotsprings/1018/
International support group for families whose lives are affected by Romberg's syndrome.
Romberg's Syndrome
http://www.familyvillage.wisc.edu/lib_rombs.html
General information, contacts, on-line discussion groups and links.
Parry Romberg Syndrome
http://www.cannylink.com/diseaseparryromberg.htm
Stories from people affected by Parry Romberg syndrome, support and information.
Parry Romberg Syndrome Information Page
http://www.ninds.nih.gov/health_and_medical/disorders/parry_romberg.htm
Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations.
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63. Parry-Rombergs Syndrome Search, Parry-Rombergs Syndrome Sites At B2bYellowpages.
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64. Health Support Groups Conditions And Diseases Facial Differences
Apert Syndrome 9 Cleft Lip and Palate 38 Craniosynostosis 2 LangerGiedionSyndrome 2, parry-rombergs syndrome 4 Smith-Magenis Syndrome@ 4
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- From the UKbased group, giving information about birthmarks, the process of getting help, treatment centres, newsletters, diaries of events and links to other associated support groups.
Cancer Of The Eye Linkline (CELL)
- UKbased helpline for people whose lives are affected by loss of an eye through cancer or trauma. Support, information and links.
Changing Faces
- UKbased charity giving support and information to people with facial disfigurement and other facial differences and their families, and the professionals who work with them.

65. Parry-Rombergs Syndrome Information
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    The Romberg's Connection - International support group for families whose lives are affected by Romberg's syndrome. Romberg's Syndrome - General information, contacts, on-line discussion groups and links. Parry Romberg Syndrome - Stories from people affected by Parry Romberg syndrome, support and information. Parry Romberg Syndrome Information Page - Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations.

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66. Webeverything.co.uk Top > Health > Support Groups > Conditions And Diseases > Fa
Differences parryrombergs syndrome Top Health Support Groups Conditionsand Diseases Facial Differences parry-rombergs syndrome.
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Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations.
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67. Apymem: Health / Support Groups / Conditions And Diseases / Facial Differences /
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68. Categorized Web Directory. International Internet Portal, Website Listings, List
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  • 69. Verzeichnis - Language: Englisch - Health - Support Groups - Conditions And Dise
    parryrombergs syndrome WEBSITES, 1. Parry Romberg Syndrome - http//www.cannylink.com/diseaseparryromberg.htmStories from people
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    Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations. Romberg's Syndrome - http://www.familyvillage.wisc.edu/lib_rombs.html
    General information, contacts, on-line discussion groups and links. The Romberg's Connection - http://www.geocities.com/HotSprings/1018/
    International support group for families whose lives are affected by Romberg's syndrome.
    This site is based on the Open Directory Project (ODP) Last update: 23. May. 2001, 13:37:35 o'clock This categorie needs an Editor.

    70. Parry Rombergs Syndrome Facial Differences Conditions And Diseases Support Group
    Support Groups. Most comprehensive resource on Support Groups ConditionsAnd Diseases Facial Differences Parry Rombergs syndrome.
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    Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations.

    71. AllRefer Health Health Links Directory Support Groups
    Sites. Parry Romberg syndrome Stories from people affected by ParryRomberg syndrome, support and information. Parry Romberg syndrome
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    72. Facial Differences Conditions And Diseases Support Groups Health Support Groups
    5. Moebius syndrome Moebius syndrome support, information and resourcesite. www.moebius1.org Rate Moebius syndrome 5.
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    Featured Results (opens in a new window) AboutFace
    International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements.

    73. Romberg Syndrome / Family Village Library
    Romberg syndrome. Synonyms ParryRomberg's syndrome, Progressive Facial Hemiatrophy for people with Rombergs syndrome. Learn More About It. Parry-Romberg syndrome Information Page
    http://www.familyvillage.wisc.edu/lib_rombs.html
    Romberg Syndrome
    Synonyms: Parry-Romberg's Syndrome, Progressive Facial Hemiatrophy
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    Last Updated 2/3/2004 by familyvillage@waisman.wisc.edu Document Source: http://www.familyvillage.wisc.edu/lib_rombs.html

    74. Omniseek: /Health /Diseases And Conditions /All Diseases And Conditions /Parry R
    available Health/Diseases_and_ailments/Parry_ Romberg_syndrome) Drug Therapies Parry Romberg syndrome...... ncbi.nlm.nih.gov/htbinpost/Omim/dispmim? 141300) Rombergs syndrome. No
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    Health /Diseases and Conditions /All Diseases and Conditions /Parry Romberg Syndrome Judy's Parry-Romberg Story
    No Description available
    (http://www.geocities.com/HotSprings/Spa/4818/Page.htm) Marie's History With Romberg's Deformity No Description available (http://www.geocities.com/HotSprings/1018/marie.htm) NORD - Parry Romberg Syndrome No Description available (http://www.stepstn.com/nord/rdb_sum/489.htm) Progressive Hemifacial Atrophy No Description available (http://www3.ncbi.nlm.nih.gov/htbin-post/Omim/dispmim?141300) Rombergs Syndrome No Description available (http://www.familyvillage.wisc.edu/lib_rombs.html) Canadian Museum of Civilization National museum of human history in Hull, Quebec includes exhibitions on Canadian First Peoples. (http://www.cmcc.muse.digital.ca/cmc/cmceng/welcmeng.html)

    75. The DRM WebWatcher: Parry Romberg Syndrome
    This section of The DRM WebWatcher describes the best online resources about Parry Romberg syndrome Parry Romberg syndrome (also known as progressive hemifacial atrophy or HFA) is a rare disorder
    http://www.disabilityresources.org/PARRY.html
    Home Subjects States Librarians ... Contact Us The DRM WebWatcher Parry Romberg Syndrome Updated 3/2003 A B C D ... About/Hint/Link
    Parry Romberg syndrome (also known as progressive hemifacial atrophy or HFA) is a rare disorder characterized primarily by the wasting away of the tissue on one side of the face.
    Beyond the Mirror
    This well-written article from the Rocky Mountain News describes the impact of Parry Romberg syndrome on a 10-year-old girl and her family.

    Hemifacial Atrophy, Progressive
    A technical overview and references from the Online Mendelian Inheritance in Man (OMIM) database.
    NINDS Parry Romberg Syndrome Information Page
    A brief overview of Parry Romberg syndrome from The National Institute of Neurological Disorders and Stroke.
    The Romberg's Connection
    This personal website represents "an international support group made up of over 200 individuals and families whose lives are affected by Rombergs Syndrome [and who have] come together to offer our strength, courage, support and friendship to one another." Its contents include a message board relating to surgery, frequently asked questions, a short online newsletter, family photos and stories, and some links.
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    76. Rombergs Disorder
    1/28/98) 243 PM. Rombergs syndrome (1/26/98) 156 PM Drug Therapies Parry Romberg syndrome (10/24/97) 939 AM. Rombergs syndrome (10/23/97
    http://neuro-www.mgh.harvard.edu/forum/RombergsDisorderMenu.html
    Rombergs Disorder Menu
    This is a webforum to discuss and comment on Rombergs Disorder. Click here to Enter a new Neurology WebForum article...
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    77. Conditions And Diseases
    Alexander Foundation Alexander Foundation is a nonprofit charitable institutionthat supports the funding and research of Cloverleaf syndrome.
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    78. Health, Support Groups, Conditions And Diseases, Facial Differences: Parry-Rombe
    Parry Romberg syndrome Information Page Information compiled by theNational Institute of Neurological Disorders and Stroke (NINDS).
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    Top Health Support Groups Conditions and Diseases ...
    • Parry Romberg Syndrome Information Page - Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations. Parry Romberg Syndrome - Stories from people affected by Parry Romberg syndrome, support and information. Romberg's Syndrome - General information, contacts, on-line discussion groups and links. The Romberg's Connection - International support group for families whose lives are affected by Romberg's syndrome.
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    79. Allzone: Health/Consumer Support Groups/Facial Differences/Parry-Rombergs Syndro
    Parry Romberg syndrome Stories from people affected by Parry Romberg syndrome,support and information. Parry Romberg syndrome Information
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      General information, contacts, on-line discussion groups and links.
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      International support group for families whose lives are affected by Romberg's syndrome.

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    80. Lukol Directory - Health Support Groups Conditions And Diseases Facial Differenc
    Crouzon Support Network A network designed to offer support to individuals andfamilies dealing with Crouzon s syndrome and other craniofacial anomalies.
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    Lukol Directory -
    Health Support Groups Conditions and Diseases ... Changing Faces
    UK-based charity giving support and information to people with facial disfigurement and other facial differences and their families, and the professionals who work with them.
    http://www.changingfaces.co.uk
    Let's Face It USA

    A nonprofit network for people with facial difference, their families, friends and professionals. Links professionals, patients, parents and communities to each other and to networks, books and articles.
    http://www.faceit.org/
    XP Support Group

    UK-based organisation giving support, help and information to those affected by xeroderma pigmentosum and other photosensitive conditions.
    http://xpsupportgroup.org.uk
    Children's Craniofacial Association
    Dedicated to improving the quality of life for facially disfigured children and their families; addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions. http://www.ccakids.com Foundation for Faces of Children Expert information for families and health care professionals about craniofacial conditions. http://www.facesofchildren.org

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