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         Parry-rombergs Syndrome:     more detail
  1. The Official Patient's Sourcebook on Parry-Romberg Syndrome: A Revised and Updated Directory for the Internet Age by Icon Health Publications, 2002-10
  2. Beneficial effect of immunosuppressive drugs on Parry-Romberg syndrome: a case report and review of the literature.(Case Report): An article from: Southern Medical Journal by Cengiz Korkmaz, Baki Adapinar, et all 2005-09-01

21. :: Ez2Find :: Facial Differences
Apert Syndrome (9) Cleft Lip and Palate (38) Craniosynostosis (2), LangerGiedionSyndrome (2) parry-rombergs syndrome (4) Smith-Magenis Syndrome (4), Stickler s
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22. DISEASE: Parry-Rombergs Syndrome
DISEASE Featured Web Pages. ParryRomberg Syndrome Sourcebook - www.icongrouponline.com The Official Patient s Sourcebook on Parry-Romberg Syndrome.
http://disease.bigtome.com/big/page/Parry-Rombergs_Syndrome
DISEASE:
Featured Web Pages
  • Parry-Romberg Syndrome Sourcebook - www.icongrouponline.com
    "The Official Patient's Sourcebook" on Parry-Romberg Syndrome. A comprehensive manual for anyone interested in self-directed research on Parry-Romberg Syndrome.
    Categories (1-1 of 1) Health: Support_Groups: Conditions_and_Diseases: Facial_Differences: Parry-Rombergs_Syndrome
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  • 23. BigTome.com
    Hydranecephaly Tricuspid Valve Disease Mad Cow Disease Hay Fever Hematuria MyositisMultiple Sclerosis Eosinophilia parryrombergs syndrome Hearing Disorders
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    24. ScienceDaily -- Browse Topics: Health/Support_Groups/Conditions_and_Diseases/Fac
    Click Here. Top Health Support Groups Conditions and Diseases Facial Differencesparryrombergs syndrome (4 links). News about parry-rombergs syndrome
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    Real Estate Lookup Front Page Today's Digest Week in Review Email Updates ... Facial Differences Parry-Rombergs Syndrome (4 links) News about Parry-Rombergs Syndrome New Cardiac Arrhythmia Syndrome Identified (June 1, 2004) full story Silence Of The Genes: Researchers Provide Unique View Of Inherited Disorders And Cancer (June 1, 2004) full story UW-Madison Scientists Find A Key To Cell Division (May 28, 2004) full story Vaccines Against Foodborne Disease On Horizon (May 25, 2004) full story Discovery Of Gene For Cornelia De Lange Syndrome Discovery May Lead To Prenatal Test For Debilitating Disorder (May 20, 2004) full story [ More news about Parry-Rombergs Syndrome Books about Parry-Rombergs Syndrome [ More books about Parry-Rombergs Syndrome Links about Parry-Rombergs Syndrome

    25. ScienceDaily -- Browse Topics: Health/Conditions_and_Diseases/P
    Paresthesia@ (2); Parkinson s Disease@ (84); parryrombergs syndrome@(4); Passive-Aggressive Personality Disorder@ (5); Patellofemoral
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    Real Estate Lookup Front Page Today's Digest Week in Review Email Updates ... Conditions and Diseases P (0 links) News about P [ More news about P Books about P List Price: Amazon.com's Price: You Save: Prices subject to change. The Etiquette of Illness : What to Say When You Can't Find the Words by: Susan P. Halpern 17 April, 2004 Amazon.com's Price: Prices subject to change. Introduction to the Practice of Statistics (INTRODUCTION TO THE PRACTICE OF STATISTICS) by: David S. Moore George P. McCabe August, 2002 List Price: Amazon.com's Price:

    26. PillSupplier.com - Support Groups/Conditions And Diseases/Facial Differences/Par
    Category parryrombergs syndrome. HOME Login . Support Groups/Conditionsand Diseases/Facial Differences/parry-rombergs syndrome. Links
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    27. Electricbrain Home: Index: Health: Consumer Support Groups: Facial Differences:
    Health Consumer Support Groups Facial Differences parryrombergs syndrome News at 0007 on May 19, 2004 Random quote
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    28. Your Search: Parry-Rombergs Syndrome
    .. parryrombergs syndrome Information parryrombergs syndrome Listed beloware a few links to clinic descriptionsof Rombergs Syndrome.
    http://www.i-une.com/cgi-bin/meta/search.cgi?lang=en&keywords=Parry-Rombergs Syn

    29. Support Groups: Conditions And Diseases: Facial Differences: Parry-Rombergs Synd
    Health and Home. parryrombergs syndrome. http//www.geocities.com/HotSprings/1018/.parry-rombergs syndrome. Last Update Mon May 10 2004.
    http://www.health-home.net/Support_Groups/Conditions_and_Diseases/Facial_Differe
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    Parry-Rombergs Syndrome
    HOME LOGIN ADD A LINK MODIFY A LINK ... PARTNER
    Looking for something in particular? the entire directory only this category Home Support Groups Conditions and Diseases Facial Differences : Parry-Rombergs Syndrome LINKS:
    • Parry Romberg Syndrome
      Stories from people affected by Parry Romberg syndrome, support and information.
      http://www.cannylink.com/diseaseparryromberg.htm
    • Parry Romberg Syndrome Information Page
      Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations.
      http://www.ninds.nih.gov/health_and_medical/disorders/parry_romberg.htm
    • Romberg's Syndrome
      General information, contacts, on-line discussion groups and links.
      http://www.familyvillage.wisc.edu/lib_rombs.html
    • The Romberg's Connection International support group for families whose lives are affected by Romberg's syndrome. http://www.geocities.com/HotSprings/1018/
    Parry-Rombergs Syndrome
    Last Update: Mon May 10 2004

    30. The Personal Side Of Craniofacial Differences
    CranioSynostosis; Crouzon Syndrome; Goodman Syndrome. Page 2 Jackson-Weiss; Langer-Geidon;parry-rombergs syndrome; Pfeiffer Syndrome; Pierre-Robin Syndrome/Sequence;
    http://members.tripod.com/~Craniofacial/
    var cm_role = "live" var cm_host = "tripod.lycos.com" var cm_taxid = "/memberembedded"
    To the Personal Side of Craniofacial Differences
    This page is dedicated to all of the people whose lives are affected by Craniofacial Disorders. If you are one of these people - this page is for you. Please look upon this page as "yours." I will need assistance from everyone to help locate as many personal pages on these disorders as we can find. We are starting out with just 15 disorders, so please feel free to e-mail me with any craniofacial disorders that are not listed here. Thanks to all who have sent me links already. Page 1
    • Antley-Bixler Syndrome
    • Apert Syndrome
    • Arhinia
    • Baller-Gerold Syndrome
    • Carpenter Syndrome
    • Cranio-Synostosis
    • Crouzon Syndrome
    • Goodman Syndrome
    Page 2
    • Jackson-Weiss
    • Langer-Geidon
    • Parry-Rombergs Syndrome
    • Pfeiffer Syndrome
    • Pierre-Robin Syndrome/Sequence
    • Saethre-Chotzen Syndrome
    • Sagittal Synostosis
    • Shprintzen-Goldberg
    • Stickler Syndrome
    • Treacher-Collins
    * Website updated March 18, 2002 *

    31. PhatNav Directory - Health/Conditions_and_Diseases/R
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    32. HighIndex - Health: Support Groups: Conditions And Diseases: Facial Differences:
    Category Search Engine Directory / Health / Support Groups / Conditions and Diseases/ Facial Differences / parryrombergs syndrome. Directory Listings
    http://www.highindex.com/Health/Support_Groups/Conditions_and_Diseases/Facial_Di
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    • Parry Romberg Syndrome
      Stories from people affected by Parry Romberg syndrome, support and information.
      http://www.cannylink.com/diseaseparryromberg.htm Parry Romberg Syndrome Information Page
      Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations.
      http://www.ninds.nih.gov/health_and_medical/disorders/parry_romberg.htm Romberg's Syndrome
      General information, contacts, on-line discussion groups and links.
      http://www.familyvillage.wisc.edu/lib_rombs.html The Romberg's Connection
      International support group for families whose lives are affected by Romberg's syndrome.
      http://www.geocities.com/HotSprings/1018/
    • More Resources

    33. Lukol Directory - Health Conditions And Diseases P
    Papillotonic Psuedotabes (4), Paraphimosis (2), Parasitic Infections (138).Paresthesia (2), Parkinson s Disease (86), parryrombergs syndrome (4).
    http://www.lukol.com/Top/Health/Conditions_and_Diseases/P/

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    34. SLCentral Directory - Health - Conditions And Diseases - P
    301); Paresthesia@ (2); Parkinson s Disease@ (84); parryrombergs syndrome@(4); Passive-Aggressive Personality Disorder@ (5); Patellofemoral
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  • 35. Any Search Info - Directory: Health Support Groups Conditions And Diseases Facia
    Categories Apert Syndrome 9 Cleft Lip and Palate 38 Craniosynostosis 2 LangerGiedionSyndrome 2, parry-rombergs syndrome 4 Smith-Magenis Syndrome@ 4
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    Top Health Support Groups Conditions and Diseases : Facial Differences [90] Directory Results: Categories: Apert Syndrome
    Cleft Lip and Palate

    Craniosynostosis

    Langer-Giedion Syndrome
    ...
    Treacher Collins Syndrome

    Web Site Matches: AboutFace
    International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements.
    url: www.Aboutfaceinternational.org Acne Support Group
    Information and support on acne, including top ten tips, beauty tips and problems.
    url: www.stopspots.org/ Beneath the Surface
    Offers support and understanding to individuals of facial difference. url: beneaththesurfaceweb.com Birthmark Support Group From the UKbased group, giving information about birthmarks, the process of getting help, treatment centres, newsletters, diaries of events and links to other associated support groups. url: www.birthmarksupportgroup.org.uk/ Cancer Of The Eye Linkline (CELL) UKbased helpline for people whose lives are affected by loss of an eye through cancer or trauma. Support, information and links. url: pages.zoom.co.uk/cell/index.htm

    36. SearchBug Directory: Health: Conditions_and_Diseases: P
    Panic (34) Papillotonic Psuedotabes (4) Paraphimosis (2) Parasitic Infections (327)Paresthesia (2) Parkinson s Disease (86) parryrombergs syndrome (4) Passive
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    37. What Is Localized (Morphea And Linear) Scleroderma?  By  Surviving Scleroderma
    parryrombergs syndrome, The Romberg s Connection; Photo of en coup de sabre ,Dermatlas; Scleroderma en coup de sabre and progressive facial hemiatrophy.
    http://www.sclerodermasupport.com/medical/facts/localized.htm
    Site Search
    SD Facts

    Educate yourself on scleroderma
    About SD

    Types of SD

    Cause of SD

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    SD Treatment SD Studies ... Men get it too! Emotional Info: Anger Anxiety Depression Fatigue ... Sadness Coping Issues Coping Daily Handicap Parking Sexual Issues Sleep Difficulties Communication: Our Doctors Our Families Finding... Our Inner self Our Strengths Activities: Gift making ideas Journal Writing Our Store Books, Gift ideas and more About Us: Site C opyright Site Affiliation Finance Issues ... Privacy Issues Additional Info: Acknowledgement Be a Volunteer Contact Info by Sherry Messick Read Site Go To Top Return Home Scleroderma Facts What is Localized Scleroderma? There are two main types of the localized form of scleroderma. These are Linear and Morphea. These forms of scleroderma happen most often to children however some cases are reported in young and older adults. Below is an alphabetical listing of information resources I hope will be of value to you. Adopt-A-Page Care Bear For The Scleroderma Fact Pages Sandra Lehman is your Adopt-a-page care bear for the Scleroderma Fact Pages. Sandra volunteers to ensure the links here are current and researches online for related information.

    38. Wauu.DE: Health: Support Groups: Conditions And Diseases: Facial Differences
    Cleft Lip and Palate (36). Craniosynostosis (4). LangerGiedion Syndrome (2).parry-rombergs syndrome (4). Sagittal Synostosis (3). Stickler s Syndrome (3).
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    Apert Syndrome Cleft Lip and Palate Craniosynostosis Langer-Giedion Syndrome ... Treacher Collins Syndrome
    Links:
    • AboutFace
      International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements.
      http://www.Aboutfaceinternational.org
    • Acne Support Group
      Information and support on acne, including top ten tips, beauty tips and problems.
      http://www.stopspots.org/
    • Beneath the Surface
      Created for all individuals of facial difference who are looking for support, resources, and a forum to share their stories and read about others.
      http://beneaththesurfaceweb.com
    • Birthmark Support Group From the UK-based group, giving information about birthmarks, the process of getting help, treatment centres, newsletters, diaries of events and links to other associated support groups. http://www.birthmarksupportgroup.org.uk/
    • Cancer Of The Eye Linkline (CELL) UK-based helpline for people whose lives are affected by loss of an eye through cancer or trauma. Support, information and links.

    39. Friendly Faces -- External Links
    Incorporated (NFI) NEVUS Nevus Outreach ORAL FACIAL DIGITAL SYNDROME NORD Entryfor Oral Facial Digital Syndrome parryrombergs syndrome The Romberg s
    http://www.friendlyfaces.org/links/
    These links are continuously updated. If you wish to have your site linked here, please contact us
    The American Cleft Palate-Craniofacial Association

    Cleft Palate Foundation

    AboutFace International
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    The Florida Cleft Palate-Craniofacial Association

    APERT SYNDROME
    apert.org (Teeter's page)

    ATRESIA/MICROTIA
    Reconstructive Ear Surgery for Microtia

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    The Microtia And Aural Atresia Division
    BECKWITH-WIEDEMANN SYNDROME The Beckwith-Wiedemann Support Network Beckwith-Wiedemann Syndrome Website NORD Entry for Beckwith-Wiedemann Syndrome BELL'S PALSY National Institute of Neurological Disorders and Stroke (NINDS) Entry Trigeminal Neuralgia Association BURNS The Phoenix Society for Burn Survivors Inc. CANCER National Cancer Institute Cancer Resources Guide The Oral Cancer Information Center Support for People with Oral and Head and Neck Cancer ... National Coalition for Cancer Survivorship (NCCS) CHARGE SYNDROME/ASSOCIATION CHARGE Syndrome Foundation NORD Entry for CHARGE Syndrome The American Cleft Palate-Craniofacial Association Cleft Palate Foundation ... Cleft Notes CRANIOSYNOSTOSIS Craniosynostosis and Parents Support, Inc.

    40. MizMoz Directory - Support Groups Parry-Rombergs Syndrome
    SUPPORT GROUPS parryrombergs syndrome. Band Name The Revenants. GenrePunk. About Band Punk band set up by the rejects of pop punk
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      Parry Romberg Syndrome
      - Stories from people affected by Parry Romberg syndrome, support and information.
      Parry Romberg Syndrome Information Page
      - Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations.
      The Romberg's Connection
      - International support group for families whose lives are affected by Romberg's syndrome.
      Romberg's Syndrome
      - General information, contacts, on-line discussion groups and links.
    SUPPORT GROUPS PARRY-ROMBERGS SYNDROME Band Name: Stolen Youth Genre: PUNK About Band: type text here 4 piece hardcore punk band from Lowestoft!! Looking for gigs and oppourtunities around suffolk and norfolk. 1st CD 'State The Obvious' out soon. www.stolenyouth.co.uk... Influences: Funeral For A Friend and Blink 182!

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