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The Romberg's Connection is an international support group made up of over individuals and families whose lives are affected by Rombergs Syndrome. We have come together to offer our strength, courage, support and friendship to one another. A Romberg's Connection Meeting Notice Where: Dillon, Colorado When: June 18 - 19, 2004 Location Details: The Dillon Inn The Historic Mint The Dillon, Frisco and Silverthorne area Please contact Donna for more information. Parry-Rombergs Syndrome Information National Organization of Rare Disorders Medical Searches Romberg's Connection News ... Frequently Asked Questions about the Romberg's Connection Photo Album Our Stories Our Kelley's story appeared in the Rocky Mountain News recently. We are so proud of her for letting us all into her life. Read it here A follow-up to Kelley's story can be read here Parent's Page Share your experiences (New Story Added May 31, 2004) Romberg's Connection Meetings Where our members are located (Updated January 18, 2004) Our Own Romberg's Survey Results Our Romberg's 2000 Survey Results Our Romberg's 2003 Survey Results Parry-Rombergs: A Clinical Survey Surgery Soundboard ... Read Our Guestbook Guestbook Archives We've had visitors since January 1, 2004.

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Parry-Rombergs Syndrome Listed below are links to clinic descriptions of Rombergs Syndrome. Rombergs Syndrome is also known as Progressive Facial Hemiatrophy (PFH). National Organization of Rare Disorders Online Mendelian IM entry National Institute of Neurological Disorders and Strokes Opinion on Parry Rombergs Syndrome From Two Doctors (Added May 8, 2003) Please understand that Rombergs affects everyone differently. No two cases are alike. Do not substitute these descriptions for a professional diagnosis from your doctor. Back to Main Page Last Updated May 8, 2003

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Search Meddie: the entire directory only this category More search options Home Consumer Support Groups Facial Differences : Parry-Rombergs Syndrome ITEMS: LINKS: Parry Romberg Syndrome Stories from people affected by Parry Romberg syndrome, support and information. (Rating: 0.00 Votes: 0) Rate It Parry Romberg Syndrome Information Page Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations. (Rating: 0.00 Votes: 0) Rate It Romberg's Syndrome General information, contacts, on-line discussion groups and links. (Rating: 0.00 Votes: 0) Rate It The Romberg's Connection International support group for families whose lives are affected by Romberg's syndrome. (Rating: 0.00 Votes: 0) Rate It HOME ADD A LINK MODIFY A LINK ... Design © ISC Enterprises Inc.

16. Facial Differences : Meddie Health Search Cleft Lip and Palate (14). Craniosynostosis (4). LangerGiedion Syndrome (2).parry-rombergs syndrome (4). Sagittal Synostosis (2). Stickler s Syndrome (4). http://www.meddie.com/Consumer_Support_Groups/Facial_Differences/

Search Meddie: the entire directory only this category More search options Home Consumer Support Groups : Facial Differences CATEGORIES: Apert Syndrome Cleft Lip and Palate Craniosynostosis Langer-Giedion Syndrome ... Treacher Collins Syndrome ITEMS: LINKS: AboutFace International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements. (Rating: 10.00 Votes: 1) Rate It Acne Support Group Information and support on acne, including top ten tips, beauty tips and problems. (Rating: 0.00 Votes: 0) Rate It Birthmark Support Group From the UK-based group, giving information about birthmarks, the process of getting help, treatment centres, newsletters, diaries of events and links to other associated support groups. (Rating: 0.00 Votes: 0) Rate It Cancer Of The Eye Linkline (CELL) UK-based helpline for people whose lives are affected by loss of an eye through cancer or trauma. Support, information and links. (Rating: 0.00 Votes: 0) Rate It Changing Faces UK-based charity giving support and information to people with facial disfigurement and other facial differences and their families, and the professionals who work with them. (Rating: 0.00 Votes: 0)

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18. Localized Scleroderma: Linear, By The International Scleroderma Network (ISN) parryrombergs syndrome. parry-rombergs syndrome, is also known as ProgressiveHemifacial Atrophy or HFA. parry-rombergs syndrome Includes patient stories. http://www.sclero.org/medical/about-sd/types/linear.html

ISN's Voices of Scleroderma Vol. 1 book is available through Booksurge (GU Books)! About the ISN Languages Medical Experts Newsroom Message Board Support Personal Stories SWA Sites to Surf! Support Groups Email ISN Corporate Donors Hope on the Horizon ISN Cafe Shops ... ISN Online Cafe Shop Help raise awareness with our scleroderma calendar, t-shirts, mugs, tote bags, cozy sweatshirts, and dozens of other gift items! We subscribe to the HONcode principles of the Health on the Net Foundation. Verify here. The International Scleroderma Network is a nonprofit agency. We welcome members and supporters from all countries! We will help you find the comfort and/or information you need for dealing with scleroderma or related illnesses. Please feel free to email the ISN for information or support. Warm Hugs, Shelley Ensz ISN President This site is updated daily.

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ISN's Voices of Scleroderma Vol. 1 book is available through Booksurge (GU Books)! About the ISN Languages Medical Experts Newsroom Message Board Support Personal Stories SWA Sites to Surf! Support Groups Email ISN Corporate Donors Hope on the Horizon ISN Cafe Shops ... ISN Online Cafe Shop Help raise awareness with our scleroderma calendar, t-shirts, mugs, tote bags, cozy sweatshirts, and dozens of other gift items! We subscribe to the HONcode principles of the Health on the Net Foundation. Verify here. The International Scleroderma Network is a nonprofit agency. We welcome members and supporters from all countries! We will help you find the comfort and/or information you need for dealing with scleroderma or related illnesses. Please feel free to email the ISN for information or support. Warm Hugs, Shelley Ensz ISN President This site is updated daily.

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Guide : Parry-Rombergs Syndrome Global Metasearch Any Language English Afrikaans Arabic Bahasa Melayu Belarusian Bulgarian Catala Chinese Simplified Chinese Traditional Cymraeg Czech Dansk Deutsch Eesti Espanol Euskara Faroese Francais Frysk Galego Greek Hebrew Hrvatski Indonesia Islenska Italiano Japanese Korean Latvian Lietuviu Lingua Latina Magyar Netherlands Norsk Polska Portugues Romana Russian Shqip Slovensko Slovensky Srpski Suomi Svenska Thai Turkce Ukrainian Vietnamese Mode All Words Any Word Phrase Results Timeout Depth Adult Filter Add to Favorites Other Search Web News Newsgroups Images Guides Parry-Rombergs Syndrome ez2Find Home Directory Health Support Groups ... Facial Differences : Parry-Rombergs Syndrome Web Sites Parry Romberg Syndrome [Site Info] [Translate] [Open New Window] Stories from people affected by Parry Romberg syndrome, support and information. URL: http://www.cannylink.com/diseaseparryromberg.htm Parry Romberg Syndrome Information Page [Site Info] [Translate] [Open New Window] Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations. URL: http://www.ninds.nih.gov/health_and_medical/disorders/parry_romberg.htm

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