21. What Is NF? Types Of neurofibromatosis. neurofibromatosis (NF) has been classified into two distinct types NF1 and NF2. neurofibromatosis 1 http://www.nf.org/what_is_nf/

The neurofibromatoses (NF) are a set of genetic disorders which cause tumors to grow along various types of nerves and, in addition, can affect the development of non-nervous tissues such as bones and skin. NF causes tumors to grow anywhere on or in the body. It also leads to developmental abnormalities. For example, individuals with NF have a higher incidence of learning disabilities. A variety of terms are used to refer to NF In 1882, NF was first delineated in the medical literature by Dr. Friedrich von Recklinghausen and was so known as Von Recklinghausen's Disease for many years. Phakomatosis , from the Greek word "phakos" (meaning birthmark), refers to several disorders, including NF, characterized by birthmarks. Neurocutaneous Disorder refers to any one of several disorders, of which NF is the most common, which affect the skin and the nervous system. Types Of Neurofibromatosis Neurofibromatosis (NF) has been classified into two distinct types: and Neurofibromatosis 1 (NF1), also known as von Recklinghausen NF or Peripheral NF, occurring in 1:4,000 births, is characterized by multiple cafe-au-lait spots and neurofibromas on or under the skin. Enlargement and deformation of bones and curvature of the spine (scoliosis) may also occur. Occasionally, tumors may develop in the brain, on cranial nerves, or on the spinal cord. About 50% of people with NF also have learning disabilities.

22. WebRing: Hub Promotes education, enlightenment, and encouragement. Open to organizations, medical sites, and personal homepages. Sites pertaining to all aspects of the disorder are welcome, including associated conditions. http://r.webring.com/hub?ring=neurofibroma&list

23. Neurofibromatosis, Inc. Homepage - What Is NF neurofibromatosis, pronounced Neurofi-bro-ma-to-sis, (NF for short Disclaimer Privacy Policy Copyrights neurofibromatosis, Inc.® All Rights Reserved, 2002. http://www.nfinc.org/whatisnf.html

Go To Current Events What Is NF Effects Of NF References Misconception Transcripts Chapters NF Ink Bulletin Board Contact Us Site Info Main Page Site Map What Is NF Effects Of NF References Misconception ... Transcripts Neurofibromatosis, pronounced Neuro-fi-bro-ma-to-sis (NF for short), is a genetic disorder of the nervous system that causes tumors to form on the nerves anywhere in the body at any time. This progressive disorder affects all races, all ethnic groups and both sexes equally. NF is one of the most common genetic disorders in the United States, (one in every 3,000 to 4,000 births), even though not many people are familiar with it. For More Infomation Effects Misconception References Transcripts ... Research More links... General Support Groups Clinics There are two genetically distinct forms of NF, NF-1 and NF-2. The effects of NF are unpredictable and have varying manifestations and degrees of severity. There is no known cure for either form of NF, even though the gene for both

24. Powered By: Doteasy - Bannerless Free Web Hosting And Email For Small Business A Information on event in Pittsburgh, Pennsylvania. http://trfn.clpgh.org/nfca/golf.html

The page you requested is unavailable The page you are looking for might have been removed, had its name changed, or is temporarily unavailable. This Website Is Powered by Doteasy.com $0 Web Hosting $0 /month (No Setup Fee) 1000 MB Web Storage No Banners or Pop-up Ads 20 GB Data Transfer www.yourdomain.com Hosting 100 POP Email Accounts 20 MB Web Storage 10 MB Email Storage Per Account 1000 MB Monthly Transfer CGI / Perl / SSI Domain Forwarding PHP / MySQL 10 POP/Web Email Accounts FrontPage Extensions Webmail Access E-commerce Ready Email Forwarding, Autoresponder Email Forwarding, Autoresponders Plug-in Tools : Hitcounter, Email-Form... Sub-domains , Website Statistics... Free Tech Support Only $7.95/month* reg $9.95/mo 24/7 Network Monitoring See Demo Plan Details » New Domain. Search: www. .com .net .org .us .ca .tv .biz .info .co.uk .org.uk Other Extensions Purchase a Gift Domain I already own a registered domain (Transfer Hosting) Search the Web Hobbies Fitness Sports Cooking Gardening ... Home Decorating Entertainment Music Games Movies Jokes ... Arts Finance Investing Stocks Credit Cards Real Estate ... Loan Health Weight Loss Nutrition Fitness Women's Health ... Life Insurance Shopping Cars Auction Toys Books ... Electronics Home Home Loan Home Buying Home Improvement Furniture ... Interior Design Gifts Jewelry Flowers Gift Baskets Wine ... Greeting Card Travel Airline Tickets Vacations Hotels Cruises ... Adventure Travel Internet Computers Computer Hardware Software Computer Games ... Uniform Domain-Name Dispute-Resolution Policy

25. Neurofibromatosis Webring Home Page neurofibromatosis Webring Home Page. Welcome to the neurofibromatosis Webring home page! TOP Submit a site to neurofibromatosis Webring. http://neurosurgery.mgh.harvard.edu/NFR/webring.htm

Join Edit Neurofibromatosis Webring Home Page Welcome to the Neurofibromatosis Webring home page! This ring promotes Neurofibromatosis education, enlightenment, and encouragement. It is open to NF organizations, medical sites, and personal homepages. Sites pertaining to all aspects of NF 1 and 2 are welcome, including associated conditions such as learning disabilities, scoliosis, epilepsy, acoustic neuroma, cancer, deafness, blindness, etc. NF information is too scarce, and public awareness is practically non-existent. Let's get together and make ourselves known! TOP Submit a site to Neurofibromatosis Webring Site Title: Site URL: Site Owner: EMail Address: Password: Keywords: Enter up to 20 keywords to describe your site. Be sure to include any diseases or conditions discussed in your site or on your page. Site Description: Enter a short description of your site, including which conditions or diseases are discussed within your site or page. If you are selling a product or service on your site, your site description must begin with the words

26. Daniels Neurofibromatosis Page A child living with neurofibromatosis and optic glioma with links. http://www.ilynn6.freeserve.co.uk

27. The Elephant Man's Mistaken Identity Article showing that Merrick, diagnosed during his life as suffering from neurofibromatosis, actually suffered from Proteus Syndrome. http://www.noveltynet.org/content/paranormal/www.parascope.com/articles/0397/ele

28. GeneReviews: Neurofibromatosis 1 Your browser does not support HTML frames so you must view neurofibromatosis 1 in a slightly less readable form. Please follow this link to do so. http://www.geneclinics.org/profiles/nf1/

Your browser does not support HTML frames so you must view Neurofibromatosis 1 in a slightly less readable form. Please follow this link to do so.

29. Neurofibromatosis(Von Recklinghausen's Disease) IMAGES IN NEUROLOGY-MEDSTUDENTS Images in Neurology. neurofibromatosis(Von Recklinghausen s Disease). If you have suggestions or comments send an email to images@medstudents.com.br. http://www.medstudents.com.br/image/neuro/imagenu1.htm

Images in Neurology Neurofibromatosis(Von Recklinghausen's Disease) If you have suggestions or comments send an e-mail to images@medstudents.com.br Go back to Interesting Images Go back to MEDSTUDENTS' HOMEPAGE

30. Neurofibromatosis Resources - Photographs Photos of cafe au lait spots and external neurofibroma tumors. http://neurosurgery.mgh.harvard.edu/NFR/photos.htm

Photographs Photos which demonstrate different visible aspects of Neurofibromatosis, Type 1 Note: The photos on this page are amateur photos, taken by me. They are intended solely to give the average person an idea of what some of these aspects of the disease look like, and should not be used as references for making a diagnosis of NF-1. Cafe au Lait Spots This image shows a rather large cafe au lait (CAL) spot which extends nearly to the first knuckles on the back of the hand, and about 2 inches above the wrist. Click on picture for a larger image. Here is the same CAL, from the palm side of the hand and arm. Many CALs resemble large freckles, and aren't as extensive as this one. Click on picture for a larger image. Neurofibroma Tumors This photo shows a moderate number of small to medium neurofibroma tumors. Another condition sometimes associated with NF-1 is pectus excavatum , or sunken chest, which is a congenital deformity of the ribcage. For more information on pectus excavatum, visit this very informative site.

31. Neurofibromatosis Association UK The neurofibromatosis Association UK is a registered charity that works to provide help, support, information, funding, and encourage awareness of http://www.nfauk.org/

home publications Nf specialist advisors volunteers ... guest book WELCOME TO THE NEUROFIBROMATOSIS ASSOCIATION UK The Neurofibromatosis Association became a registered charity in May 1982. The charity works to: provide help, support and advice to those affected by either form of Neurofibromatosis, their families and the professionals working with them. To do this we employ a team of hospital based professional Neurofibromatosis Specialist Advisors around the UK. provide relevant, up-to-date information on both forms of Neurofibromatosis for professionals, families and individuals. fund research into both types of Neurofibromatosis. provide activity holidays and breaks for children and adults with either form of Neurofibromatosis. encourage the establishment of local groups and volunteers throughout the UK. raise awareness of the Neurofibromatoses amongst the general public through fundraising activities. CONTACT US The Neurofibromatosis Association Quayside House 38 High Street Kingston on Thames Surrey KT1 1HL Registered charity No 1078790 tel: 020 8439 1234 fax: 020 8439 1200 minicom: 020 8481 0492 email: info@nfauk.org

32. Biblioteca De Salud: Neurofibromatosis Translate this page neurofibromatosis Las neurofibromatosis (NF) son trastornos genéticos del sistema nervioso que causan el crecimiento de tumores no cancerosos a lo largo de http://www.nacersano.org/centro/9388_9979.asp

2 de junio de 2004 Antes de Quedar Embarazada Durante su Embarazo Complicaciones El Parto ... Las Familias en la NICU Biblioteca de Salud Neurofibromatosis Antecedentes familiares de NF1 en un padre, hermano o hijo. The National Neurofibromatosis Foundation, Inc. 95 Pine St., 16th Floor New York, NY 10005 (212) 344-NNFF o (800)323-7938 Neurofibromatosis, Inc. 8855 Annapolis Rd., Suite 110 Lanham, MD 20706-2924 (301) 461-5213 (TDD) Referencias National Neurofibromatosis Foundation. What is NF? New York, N.Y., National Neurofibromatosis Foundation, 2000. Biblioteca de Salud Embarazo Ácido Fólico El Bajo Peso al Nacer El Embarazo Después de los 35 Años El Embarazo en las Adolescentes ... Un Buen Estado Físico para los Dos Infecciones/Enfermedades Durante el Embarazo Anormalidades del Líquido Amniótico Condiciones de la Placenta El VIH y el SIDA en el Embarazo Herpes Genital ... Toxoplasmosis Pruebas Diagnósticas Amniocentesis Análisis de la Sangre Materna Muestra del Villus Coriónico (CVS) Ultrasonido Alcohol, Drogas y Medicamentos Durante el Embarazo Accutane El Consumo de Alcohol Durante el Embarazo El Fumar Durante el Embarazo El Uso de la Cocaína Durante el Embarazo ... Talidomida Pérdida del Embarazo Aborto Espontáneo Embarazos Ectópicos y Molares Muerte del Feto Muerte del Neonato Defectos de Nacimiento y Condiciones Genéticas Acondroplasia Anemia Falciforme Anomalías Cromosómicas Defectos Cardíacos Congénitos ... Talasemia Para Recién Nacidos Diagnóstico Temprano para Recién Nacidos La Ictericia Neonatal La Lactancia Polio Polio Síndrome de Post-polio Escriba un e-mail si tiene preguntas sobre el embarazo.

33. NF2Crew Website Is Not Here Online discussion group for people with neurofibromatosis 2. http://www.webcrossings.com/nf2crew/

The NF2Crew Website has moved! The NF2Crew Website is now located at http://www.nf2crew.org . Please update your bookmarks and links. (The NF2 Crew is an online social and support group for patients and families with Neurofibromatosis Type 2.)

34. Neurofibromatosis NETWORK, Von Recklinghausen, NF, NF1, NF2 EUROPEAN neurofibromatosis ASSOCIATIONS. NF NET ORK. http://www.neurofibromatosis-network.org/

EUROP E AN NEUROFIBR OM ATOSIS ASSOC I ATIONS NF NET ORK Contact us P artners Together we can: T rust, O vercome, G row, E ncourage, T eam up, H ope, E stablish, R eassure Homepage European Ass Ass Européennes ... Page d'accueil No request for medical help will be posted on this site and the webmanager is not responsible for anyone linked to this site who does offer such help. This site is maintained and designed by Ms L. Clare Savoca, president of the 'Groupe d'entraide romand - NF', a Swiss Romande association for the French speaking part of Switzerland. Although it is maintained by this association it is in no way subject to it nor is it dependent on any other association. C reat ion in Last modified N umber of visitors -

35. NFAA Inc. - Neurofibromatosis Type 1 neurofibromatosis Type 1 (NF1). The commonest form of NF is NF1 which affects about 1 in 3,500 people. Back to Resources Index neurofibromatosis Type 2 http://www.nfaa.org.au/resources/nf1.html

[Skip Menu] Home Page About Us News ... What's New? Neurofibromatosis Type 1 (NF1) The commonest form of NF is NF1 which affects about 1 in 3,500 people. The gene affected in NF1 is located on chromosome 17. What are the common features of NF1? multiple cafe-au-lait (milk coffee coloured) skin spots - people with NF1 usually have at least 6 or more. They can occur anywhere on the skin, are harmless and never cause any medical problems. freckling in unusual sites such as the armpits or groin. neurofibromas - small, benign lumps which grow around small nerves. They develop in or under skin, and may, gradually increase in number throughout life. Some people have only a few, others many more. Lisch nodules - tiny lumps which develop in the coloured part of the eye (iris), and can usually only be seen with a special microscope (slit lamp). They do not affect vision and do not cause any other problems, but they are a useful clue to doctors that a person has NF1. Complications of NF1 Each person with NF1, even within the same family can be affected to a different extent. Many people only develop skin changes and Lisch nodules, which are harmless. 20-40% of people will develop a medical problem related to NF1 which may require treatment. The commonest important complications are: plexiform neurofibromas: larger lumps involving a group of nerves. They can occur in or under the skin or internally. Large plexiform neurofibromas are difficult to completely remove surgically. Occasionally, plexiform neurofibromas can become cancerous.

36. The Texas Neurofibromatosis Foundation Texas neurofibromatosis Foundation supports individuals and families in Dallas, Houston, Austin, and San Antonio. THE TEXAS neurofibromatosis FOUNDATION. http://www.texasnf.org/

37. EMedicine - Neurofibromatosis : Article By Jennifer R Kam, MD neurofibromatosis neurofibromatosis is an autosomal dominant disorder that affects the bone, the nervous system, soft tissue, and the skin. neurofibromatosis. http://www.emedicine.com/derm/topic287.htm

(advertisement) Home Specialties Resource Centers CME ... Patient Education Articles Images CME Patient Education Advanced Search Consumer Health Link to this site Back to: eMedicine Specialties Dermatology Pediatric Diseases Neurofibromatosis Last Updated: January 2, 2003 Rate this Article Email to a Colleague Synonyms and related keywords: von Recklinghausen's disease, von Recklinghausen disease, neurofibromatosis type 1, peripheral NF, neurofibromatosis type 2, central NF, NF-1, NF-2, segmental NF, café au lait macules, Lisch nodules AUTHOR INFORMATION Section 1 of 9 Author Information Introduction Clinical Differentials ... Bibliography Author: Jennifer R Kam, MD , Staff Physician, Department of Radiology, Rochester General Hospital Coauthor(s): Thomas N Helm, MD , Director of Buffalo Medical Group Dermatopathology Laboratory, Clinical Associate Professor, Departments of Dermatology and Pathology, State University of New York at Buffalo Editor(s): Ponciano D Cruz Jr, MD

38. EMedicine - Neurofibromatosis : Article By Alvin Crawford, MD neurofibromatosis Type 1 neurofibromatosis is a multisystemic disease. neurofibromatosis type 1 (NF1), also called von Recklinghausen http://www.emedicine.com/orthoped/topic525.htm

(advertisement) Home Specialties CME PDA ... Patient Education Articles Images CME Patient Education Advanced Search Link to this site Back to: eMedicine Specialties Orthopedic Surgery Pediatrics Neurofibromatosis Last Updated: December 1, 2002 Rate this Article Email to a Colleague Synonyms and related keywords: von Recklinghausen's disease, von Recklinghausen disease, neurofibromatosis type 1, NF1, peripheral neurofibromatosis, neurofibromatosis type 2, NF2, central neurofibromatosis AUTHOR INFORMATION Section 1 of 10 Author Information Introduction Indications Relevant Anatomy And Contraindications ... Bibliography Author: Alvin Crawford, MD , Director, Division of Pediatric Orthopedic Surgery, Children's Hospital Medical Center; Professor, Department of Orthopedic Surgery, Division of Pediatric Orthopedics, University of Cincinnati College of Medicine Alvin Crawford, MD, is a member of the following medical societies: American Academy of Orthopaedic Surgeons American Academy of Pediatrics American College of Surgeons American Medical Association ... National Medical Association , and Ohio State Medical Association Editor(s): Charles T Mehlman, DO, MPH

39. Web De La Asociación Española De La Neurofibromatosis - Página       � Translate this page neurofibromatosis. http://www.aeenf.com/

Neurofibromatosis

40. WebRing: Hub This ring promotes neurofibromatosis education, enlightenment, and encouragement. neurofibromatosis in Russia All about neurofibromatosis, NF1, NF-2. http://r.webring.com/hub?ring=neurofibroma&list

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