1. Narcolepsy.com Home Page Online version of patient, researcher and physician newsletter. http://www.narcolepsy.com/

Free online news about narcolepsy for patients, physicians, and researchers You'll need the Adobe Acrobat Reader to view items marked with a red star . Get the Reader here . (free) Drug List Substances used for treating narcolepsy Humor and occasionally wicked satire Cartoons by Dr. Kraski Narcolepsy On-line Discussion exchange email with patients, family members, etc. Newsletter article reprints Free on-line access to key newsletter articles. GHB Being investigated as a new treatment - especially for cataplexy Clinical Trial Sites updated 6/2/01 Clinical trial description added 6/3/01 Books and Reviews Multi Purpose Link to [Get email notices when we add new articles or take positions on public policy issues (including Legislative threats to treatment)]. Please take a look at this as a means to advance our mutual interests. Link to Sleep Home Page Extensive coverage of sleep and sleep disorders including links to sleep related resources. Please report site technical difficulties to Web Mistress.

2. NINDS Narcolepsy Information Page narcolepsy information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS). What is narcolepsy? Is there any treatment What is narcolepsy? narcolepsy is a disabling neurological disorder of sleep regulation that affects the control of http://www.ninds.nih.gov/health_and_medical/disorders/narcolep_doc.htm

National Institute of Neurological Disorders and Stroke Accessible version Science for the Brain The nation's leading supporter of biomedical research on disorders of the brain and nervous system Browse all disorders Browse all health organizations More about Narcolepsy Studies with patients Research literature Press releases Search NINDS... (help) Contact us My privacy NINDS is part of the National Institutes of Health NINDS Narcolepsy Information Page Reviewed 07-01-2001 Get Web page suited for printing Email this to a friend or colleague Table of Contents (click to jump to sections) What is Narcolepsy? Is there any treatment? What is the prognosis? What research is being done? ... Related NINDS Publications and Information What is Narcolepsy? Is there any treatment? There is no cure for narcolepsy; however, the symptoms can be controlled with behavioral and medical therapy. The excessive daytime sleepiness may be treated with stimulant drugs or with the drug modafinil (Provigil), which was approved by the FDA for this use in 1999. Cataplexy and other REM-sleep symptoms may be treated with antidepressant medications. At best, medications will reduce the symptoms, but will not alleviate them entirely. Also, many currently available medications have side effects. Basic lifestyle adjustments such as regulating sleep schedules, scheduled daytime naps and avoiding "over-stimulating" situations may also help to reduce the intrusion of symptoms into daytime activities. What is the prognosis?

3. Narcolepsy Nnetwork narcolepsy Network. You will now be redireted to http//www.narcolepsynetwork.org http://www.websciences.org/narnet

Narcolepsy Network You will now be redireted to http://www.narcolepsynetwork.org

4. CENTER FOR NARCOLEPSY narcolepsy is a serious medical disorder and a key to understanding other sleep disorders. It is the world leader in narcolepsy research. http://www-med.stanford.edu/school/Psychiatry/narcolepsy/

Narcolepsy is a serious medical disorder and a key to understanding other sleep disorders Narcolepsy is a disabling illness affecting more than 1 in 2,000 Americans. Most individuals with the disorder are not diagnosed and are thus not treated. The disease is principally characterized by a permanent and overwhelming feeling of sleepiness and fatigue. Other symptoms involve abnormalities of dreaming sleep, such as dream-like hallucinations and finding oneself physically weak or paralyzed for a few seconds (see Symptoms). The Stanford University Sleep Clinic was the first medical clinic ever established to specialize in sleep disorders. It was founded in the early 1970s by Dr. William Dement to diagnose and treat narcoleptic patients. The Stanford Center for Narcolepsy was established in the 1980s and is now directed by Drs. Emmanuel Mignot and Seiji Nishino. The Center for Narcolepsy is part of the Department of Psychiatry and Behavioral Sciences and has published more than 100 articles on narcolepsy. It is the world leader in narcolepsy research. Several hundred patients with the disorder are currently treated at the Center or participate in various research protocols. Other research protocols are conducted in animals models of narcolespy. The Stanford Center for narcolepsy was the first to report that narcolepsy-cataplexy is caused by hypocretin (orexin) abnormalities in both animal models and humans (see Research). We are always looking for volunteers in our narcolepsy research studies.

5. Living With Narcolepsy A site dedicated to narcolepsy and the people who live with it, including a description of symptoms, tips for coping with the disorder, treatment options, sources of help, and links to research and sleep disorder sites. http://expage.com/page/livingwithnarcolepsy

Living With Narcolepsy Going through life in a purple haze I sleep – for a while – two or three hours – then a dream – no – a nightmare seizes me in its grip, I know full well that I am lying down and that I am asleep... I sense it and I know it... and I am also aware that somebody is coming up to me, looking at me, running his fingers over me, climbing on to my bed, kneeling on my chest, taking me by the throat and squeezing... squeezing... with all its might, trying to strangle me. I struggle, but I am tied down by that dreadful feeling of helplessness which paralyzes us in our dreams. I want to cry out – but I can’t. I want to move – I can’t do it. I try, making terrible, strenuous efforts, gasping for breath, to turn on my side, to throw off this creature who is crushing me and choking me – but I can’t! Then, suddenly, I wake up, panic-stricken, covered in sweat. I light a candle. I am alone. Guy de Maupassant from his novel "Le Horla" Hello! Welcome to my place. Well having a web page is new to me, but I thought this one was well worth the effort. Now, lets get a few things straight. I am Not a health professional, but Narcolepsy and I are old friends, well, ok, maybe not Friends, but we have lived together for more than 20 years, 22 to be exact. A lot of you who visit this page may have had it alot longer, or maybe you have just started experiencing the symptoms of this disorder. Whatever the case, I am glad that you are here and I hope that this page will contain some helpful insights and information to help you deal with your disorder.

6. Center For Narcolepsy Research Homepage Tapes of Experts speaking on topics of interest to persons with narcolepsyStipends offered to qualified research participantsEmail us narcolepsy and Partners Schedule of Events. Map and directions to http://www.uic.edu/depts/cnr

7. Narcolepsy Association UK (UKAN) narcolepsy Association UK (UKAN). UKAN Home Who Are We? Application forms Request Topics Experiences, narcolepsy Association UK (UKAN). This http://www.narcolepsy.org.uk/

Narcolepsy Association UK (UKAN) UKAN Home Who Are We? Application forms Request Info ... AGM/Conference 2004 Narcolepsy Syndrome What is it? Diagnosis Age of Onset EDS ... Good Sleep Habits Other Topics Experiences Narcolepsy Association UK (UKAN) This site is run by UKAN as a service to people interested in or suffering from narcolepsy as well as members of the Association. Send feedback to

8. [Narcolepsy Internet] Online support and education for people with narcolepsy, their family and partners, and care providers. My talk at narcolepsy Network s 1997 Conference http://www.narcolepsy.org/

[N] Welcome Narcolepsy InterNet's Acceptable Use Policy (AUP) and Charter. [N] JumpStation An annotated list of WWW links that have been mentioned on the Narcolepsy InterNet's list. This is a one-stop roadmap to information that PWN, their partners and family will find interesting. [N] TLA FAQ Frequent Asked Questions: Three Letter Acronyms, Emoticons, Smilies [N] Subscription Questionaire All members of the [N] must answer these questions before they are subscribed. NarNet 97 My talk at Narcolepsy Network's 1997 Conference What's New? News from around the [N] world.

9. Narcolepsy - Overview- Sleepchannel narcolepsy is primarily characterized by intermittent, uncontrollable episodes of falling asleep during the daytime. Three additional symptoms are typically associated with narcolepsy cataplexy ( http://www.sleepdisorderchannel.com/narcolepsy

Home Search SiteMap Ask the Dr. ... Medical Store advertisement advertisement NARCOLEPSY Overview Causes Symptoms Diagnosis ... Treatment CONDITIONS Bruxism Delayed Sleep Phase Syndrome Insomnia Jet Lag Narcolepsy Obstructive Sleep Apnea Periodic Limb Movement Disorder REM Behavior Disorder (RBD) Restless Leg Syndrome Shift Work Sleep Stages Sleepwalking RESOURCES Links Clinical Trials Videos ABOUT US Healthcommunities.com Pressroom Testimonials Narcolepsy affects an estimated 25 in every 100,000 people in the United States. This sleep disorder is primarily characterized by intermittent, uncontrollable episodes of falling asleep during the daytime. Three additional symptoms are typically associated with narcolepsy: cataplexy (short-lived intermittent muscle weakness), hypnogogic and hypnopompic hallucinations (hallucinations while falling asleep or waking), and sleep paralysis (paralysis while falling asleep or waking). Narcolepsy usually begins when a person is in their teens or early twenties. Stimulants and antidepressants are used to treat narcolepsy and subsequent cataplexy. Although it has been linked with blood pressure management and depression, the genesis of narcolepsy is unknown. However, recent advances in narcolepsy study suggest the possibility of a cure. Incidence Narcolepsy usually begins in the teens or early twenties (10 to 20 years old), but this varies; both young children and the elderly experience sleep attacks as well. Approximately 125,000 people in the United States alone suffer from this disorder, with an equal incidence among both women and men. Excessive daytime sleepiness and sudden sleep onset are the hallmarks of narcolepsy. Whether narcolepsy is a life-long disorder or not is controversial. Some evidence suggests that it is, while other studies have shown that symptoms fade in older age.

10. Narcolepsy VER. 6.0 A large B/S and B/other archive. Also includes fanart and challenges. http://www.my-brain-hurts.org/narcolepsy/

[ the sections ] Home buffy/spike archive buffy/other archive searchers ... subscribe to Narcolepsy_updates [ the board ] leave me a message *coming back soon* Email me for story submission or any other info about this site phlem183@hotmail.com I make no claims to any of the stories that are not written by me, or any of the characters, they all belong to their respective creators (the BtVS ones being Joss and the rest of 'em) I do however own the artworks (not the original photographs) so please do not steal, it doesn't take much to send me an email ...so go do that. narcolepsy ver. 6.0 best viewed 800 x 600 19.feb.03 Sorry for the lack of site again, no idea why the q-board site was coming up thanks to those who informed me. Again no REAL update, *sigh* I really got discouraged by the quality of fics I was finding, but I've recently found a hum dinger and hopefully that'll propel me back into the world of fanfic. 03.jan.03

11. Narcolepsy Information on the difficulties associated with diagnosis and treatment. http://users.pullman.com/beaumont/Narcolepsy.htm

Narcolepsy: What is it really like? from: "Symptom Description and Management in Narcolepsy" The Results of University of Illinois at Chicago Center for Narcolepsy Study In association with the American Sleep Disorders Association in a random sample of 1500 narcoleptics from the American Narcolepsy Association by Cohen FL, Nehring WM, Cloninger l Holistic Nursing Practice 1996;10(4):44-53 No one drug successfully treats all the manifestations of narcolepsy. The excessive daytime sleepiness/sleep attacks are often treated with stimulant medications.... Despite the array of drugs that have been used in the treatment of narcolepsy, success in symptom control is limited, and side effects may be prevalent. Patients often do not perceive a major relief of symptoms. In the present study, symptom prevalence was reported to continue in the majority of individuals despite their medications. [Because they insist on treating you like it is your fault (psychiatric), and giving drugs like Ritalin that do not function effectively even when they know good DAMN WELL what drugs are effective] Therapy is long term and usually lifelong, so that narcolepsy is categorized as a chronic illness. Because narcolepsy is an incurable illness with variable treatment results and symptoms that interfere with daily functioning, its impact on quality of life is significant.

12. Welcome To SNaG Translate this page Information on the activities of the association. http://www.narcolepsy.ch/

13. Narcolepsy Center Stanford Univ Center for narcolepsy Department of Psychiatry Stanford University Medical School 1201 Welch Road Room P-112 Stanford, CA 94305-5485 Phone 650-725-5612 Fax http://www-med.stanford.edu/school/Psychiatry/narcolepsy/intro.html

Narcolepsy is a serious medical disorder and a key to understanding other sleep disorders Narcolepsy is a disabling illness affecting 1 in 2,000 Americans. Most individuals with the disorder are not diagnosed and are thus not treated. The disease is principally characterized by a permanent and overwhelming feeling of sleepiness and fatigue. Other symptoms involve abnormalities of dreaming sleep, such as dream-like hallucinations, and finding oneself physically weak or paralyzed for a few seconds. Narcolepsy has been studied at Stanford University for many years under the direction of Drs. Emmanuel Mignot, Seiji Nishino and William C. Dement. The Stanford Center for Narcolepsy is the world leader in the search for the cause of Narcolepsy. The Center is part of the Department of Psychiatry and Behavioral Sciences and has published more than 100 publications on narcolepsy. A colony of Dobermans affected with the disorder is also bred and maintained to search for the canine narcolepsy gene. We are always looking for volunteers in our narcolepsy research studies. We are presently recruiting narcoleptic patients with cataplexy. If you are interested in participating in this study, you can contact us either on our site's message page or telephoning Ms. Michele Okun, Research Coordinator at (650) 725-6512.

14. Narcolepsy Research Project - University Of Pennsylvania Flyer for research project looking for narcoleptic volunteers. http://www.nursing.upenn.edu/Narcolepsy/

Narcolepsy "Imagine falling asleep while at the wheel waiting for a green light, or at work, as happened to my patients. Excessive daytime sleepiness is often the most disabling symptom of narcolepsy and the most difficult to treat. The goal of my research is to find better ways to control this symptom.." Ann E. Rogers PhD, RN Associate Professor, School of Nursing University of Pennsylvania Narcolepsy is a chronic neurological disorder characterized by excessive daytime sleepiness and sleep attacks. Other symptoms include brief episodes of muscle weakness or paralysis, dream-like images when falling asleep and disturbed sleep at night. Narcolepsy effects equal numbers of men and women and occurs in all racial groups. This sleep disorder usually develops during the late teens or early twenties and continues throughout the individual's life. Early diagnosis and appropriate medical care are critical for reducing the adverse effects of this disorder. With adequate medication and support from their teachers, employers and families, most patients can enjoy a near-normal lifestyle. Unfortunately, many patients remain undiagnosed and undertreated. The Narcolepsy Research Project consists of a group of clinicians and investigators dedicated to improving the care of narcoleptic patients. We are particularly interested in learning more about the treatment of excessive daytime sleepiness; what treatments are effective and what treatments are not effective for controlling this symptom.

15. Sleep Information For Patients And The Public, NHLBI Covers sleepiness,insomnia, sleep apnea, and narcolepsy. http://www.nhlbi.nih.gov/health/public/sleep/index.htm

HOME SITE INDEX CONTACT US TIPS ... Information for Patients and the Public Sleep Disorders Information Topics from the Diseases and Conditions A-Z Index (DCI) are also listed below and identified by this image: Web Sites and Interactive Web Applications: Garfield Star Sleeper Campaign The National Center on Sleep Disorders Research (NCSDR) Sleep Apnea Video PSA [QuickTime Format 2179 Kb] To view the video, you will need the QuickTime viewer. If you do not have QuickTime, you may download a free copy from Apple Publications / Fact Sheets: Sleep Apnea Sleep Apnea Facts About Sleep Apnea Other Sleep Diseases Facts About Restless Legs Syndrome (RLS) Facts About Problem Sleepiness Facts About Narcolepsy Facts About Insomnia ... Back to Top On this page: Web Sites and Web Applications Publications and Factsheets See also: Sleep Information for Health Care Professionals List of Publications Information Center National Center on Sleep Disorders Research Web Site ... CONTACT US Department of Health and Human Services National Institutes of Health National Heart, Lung, and Blood Institute

16. Narcolepsy Fact Sheet An information booklet on narcolepsy compiled by the National Institute of Neurological Disorders and Stroke (NINDS). What is narcolepsy? http://www.ninds.nih.gov/health_and_medical/pubs/narcolepsy.htm

National Institute of Neurological Disorders and Stroke Accessible version Science for the Brain The nation's leading supporter of biomedical research on disorders of the brain and nervous system Browse all disorders Browse all health organizations More about a disorder Studies with patients Research literature Press releases Search NINDS... (help) Contact us My privacy NINDS is part of the National Institutes of Health Narcolepsy Fact Sheet Get Web page suited for printing Email this to a friend or colleague Request free mailed brochure Table of Contents What is Narcolepsy? Who Gets Narcolepsy? What are the Symptoms? When Do Symptoms Appear? ... Information Update What is Narcolepsy? Narcolepsy is a chronic neurological disorder caused by the brain's inability to regulate sleep-wake cycles normally. At various times throughout the day, people with narcolepsy experience fleeting urges to sleep. If the urge becomes overwhelming, patients fall asleep for periods lasting from a few seconds to several minutes. In rare cases, some people may remain asleep for an hour or longer. Narcoleptic sleep episodes can occur at any time, and thus frequently prove profoundly disabling. People may involuntarily fall asleep while at work or at school, when having a conversation, playing a game, eating a meal, or, most dangerously, when driving an automobile or operating other types of potentially hazardous machinery. In addition to daytime sleepiness, three other major symptoms frequently characterize narcolepsy:

17. Narcolepsy Message Board And Help Forum A place for narcoleptics to get it off their chest or to ask/answer questions or to just commiserate. http://www.network54.com/Hide/Forum/171382

Check out the Narcolepsy Chats at: TalkAboutSleep.com (check schedule for any changes) Narcolepsy Message Board and Help Forum Message board for narcoleptics, friends and family. Ask/answer questions...or just get it off your chest. Post now! View all messages Search Go back ... Red Eye Warning Sign Poll all people with IH, N. and N and C Please Respond Sleeping Lizard on May 29, 2004, 8:15 PM Anyone with United HealthCare? Krista on May 28, 2004, 7:10 AM re: united healthcare vickie on Jun 1, 2004, 8:11 PM aniexty p.james on May 27, 2004, 5:27 PM Please fill out my questionnaire! Lauren on May 26, 2004, 12:26 PM Questionnaire Anthony Raymond on May 26, 2004, 5:55 PM Your Questions/my answers Carrie on May 27, 2004, 1:50 PM Symptoms Cathy on May 27, 2004, 5:31 PM answers Kari Merriman on May 28, 2004, 1:58 PM The Questionnaire Kari Jane on May 28, 2004, 1:47 PM are they waiting for me to kill someone? vickie on May 24, 2004, 8:33 PM Re: are they waiting for me to kill someone? Sleeping Lizard on May 25, 2004, 5:32 AM response to questions vickie on May 25, 2004, 7:47 PM

18. Narcolepsy: A Dave McKean Retrospective Official site of the first exhibition of McKean on the European continent. Extensive listings of his work comic books, illustrations, CDcovers, movies, paintings. Some works for sale. http://mckean.beeldbeeld.be/uk/index.htm

A few years ago, the opening line in a catalogue of a small McKean-exhibition in Barcelona block lettered: " Dave McKean es un volca " - " Dave McKean, a volcano ". His production is indeed so powerful and unique, relating to volume, but also with regard to quality and diversity. McKean never stops, evolves continuously, renews and surprises always, pushing back the borders with light-years in every field he explores. Whereas he functioned as the guru of the Photoshop-generation for the graphic arts during the 90ties, he accomplishes this role in the universe of digital animation today. Accordingly, he works now on 4 movie projects, including a movie adaptation of " Signal To Noise ", and " Mirror mask ", a movie for the Jim Henson Company . Meanwhile, one seems to forget that he still remains 1 of the top draftsmen of his generation; as well as a gifted narrator, who wrote with " Cages " 1 of the most ambitious and complete novels in the comic book history.

19. [Narcolepsy Internet] Online support and education for people with narcolepsy, their family and partners, and care providers. narcolepsy Internet joins Amazon Associates program. narcolepsy.Org and Naroclepsy.Net become new N home of WWW links that have been mentioned on the narcolepsy InterNet's list http://www.narcolepsy.net/

[N] Welcome Narcolepsy InterNet's Acceptable Use Policy (AUP) and Charter. [N] JumpStation An annotated list of WWW links that have been mentioned on the Narcolepsy InterNet's list. This is a one-stop roadmap to information that PWN, their partners and family will find interesting. [N] TLA FAQ Frequent Asked Questions: Three Letter Acronyms, Emoticons, Smilies [N] Subscription Questionaire All members of the [N] must answer these questions before they are subscribed. NarNet 97 My talk at Narcolepsy Network's 1997 Conference What's New? News from around the [N] world.

20. Narcolepsynetwork.org narcolepsynetwork.org http://www.narcolepsynetwork.org/

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