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  1. No More Teams!: Mastering the Dynamics of Creative Collaboration by Michael Schrage, 1995-04-01

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46. Mrkhwomen: MRKH: Part Of Who I Am, But Does Not Define Me...
Current mood accomplished. mrkh part of who I am, but does not define me Mymrkh diagnosis came as close to breaking me as anything could.
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E ( elance ) wrote in mrkhwomen
Current mood:
accomplished MRKH: part of who I am, but does not define me...
I'm E, and this is my story.
When I think of all the time that's passed since I was diagnosed with MRKH, I'm a little bit stunned at first in some ways it still feels like just yesterday I was lying on a table in an exam room, watching them search for my uterus, and not finding it.
I remember the lab technician turning to me and saying something about going and getting someone else to see, because she wasn't finding my uterus. She left the room. I turned to my mother, who is a doctor, and I could already see what she was thinking.
"I'm not going to be able to have children, am I?" I asked, looking at her.
She just shook her head.
That was April 17th, 1996, and I have grown so much since then.
My MRKH diagnosis came as close to breaking me as anything could. A fit and athletic teenager beforehand, I gained over one hundred pounds in the next year, desperately covering up my pain with food. That's weight I still haven't lost although I'm working on it, and have redefined my body image to be just who I am and to be beautiful just the way I am and basically shut myself off from the world, plastering a smile on my face and pretending everything was okay when it wasn't.
I absolutely refused counseling of any kind. The thought of telling a stranger about my 'problem' was just too much to bear. After a few appointments with gynecologists, some of whom treated me like an especially pretty specimen, I began to refuse to have much to do with doctors either. I still have a dislike for doctors, and I don't like telling medical people about the fact that I have MRKH they get far too interested in a creepy sort of way.

47. Mrkhwomen - Community Info
Community Info. Community Information. Below is information about the Womenwith mrkh Syndrome community on LiveJournal. Name Women with mrkh Syndrome.
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49. Rokitanski Sindrom
mrkh sindrom, kod nas jos popularniji samo kao Rokitanski sindrom. FAQ Najcescepostavljana pitanja (ukratko sve sto biste voleli da znate o mrkh sindromu.
http://www.geocities.com/mrkhsindrom/
Mayer - Rokitansky - Kuster - Hauser Syndrome Ovo je sajt posvecen devojkama, devojcicama, zenama koje imaju tzv. MRKH sindrom,
kod nas jos popularniji samo kao Rokitanski sindrom.
Ovo je vrlo osetljiva tematika i neke slike i teme Vam mozda nece prijati. MRKH je skracenica za Mayer-Rokitansky-Kuster-Hauser Sindrom,
nazvan po imenima cetiri coveka koji su izucavali urodjene anomalije. Ovo je prvi sajt posvecen Rokitanski sindromu na ovim podrucjima(ex YU).
S obzirom da ima dosta zenskih osoba sa ovim sindromom, a nisu u mogucnosti da upoznaju se vise sa celom tematikom, iz bilo kog razloga. Takodje i zbog vela tajne koji se natkrio nadasvime. I sa ciljem da se onim zenskim osobama koje imaju isti sindrom pruzi potrebna podrska u zivotu, kako u informisanju tako i o adekvatnom nacinu lecenja.
Da znaju da nas ima dosta i da nisu same!!!! MRKH sindrom podrazumeva urodjen nedovoljan razvitak vagine, grlica materice, materice i falopijanovih tuba kod zena koje imaju zenski genetski kod (46xx)
Uzrok nastajanja je nepoznat.
To je dakle, anomalija kada je zena rodjena bez materice, cerviksa(grlica materice) i u mnogim slucajevima vagine i zato ne mogu ostati u drugom stanju. Neke zene imaju rudimentarne ostatke materice, ili tuba. Spoljasnji izgled genitalija je potpuno normalan.

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53. MAGIC FOUNDATION
Mayer Rokitansky-Kuster-Hauser (mrkh) syndrome is an uncommon variationin the prenatal development of the female genital tract.
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General Information

PDF Brochure

General Information
What is Mayer-Rokitansky-Kuster-Hauser syndrome?

Mayer- Rokitansky-Kuster-Hauser (MRKH) syndrome is an uncommon variation in the prenatal development of the female genital tract. Its features include an absent or very short vagina and a uterus that can be absent or immaturely formed. Females with MRKH syndrome have functioning ovaries, normal external genitalia and the typical, 46, XX, female chromosome pattern. Breast development and growth of pubic hair are also normal. Associated renal and/or skeletal abnormalities are common. MRKH syndrome is also known as Mullerian (female internal sex organs) Agenesis (no growth) syndrome (a group of related medical findings). How often does MRKH syndrome occur?
The incidence of MRKH syndrome is approximately 1 in 4,000 - 5,000 female births. Although it has been determined that the absence of a vagina and uterus is a result of the Mullerian ducts failing to form properly early in embryonic development, its underlying cause is unknown. When is a diagnosis of MRKH syndrome made?

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Short medical article about the creation of a neovagina using Vecchietti's Technique.
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Jeanne's Scoliosis Page

Discusses Jeanne's scoliosis. Mentions the Syndrome. http://www.execpc.com/~jseidler/scoli.htm MRKH Madness by Niki Taylor A personal article about the effects of the Syndrome on the self-esteem of women. http://www.obgyn.net/women/articles/comfort/comfort008.htm

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Translate this page mrkh Swiss Gästebuch. Info 38 Einträge auf 4 Seite(n) · Aktuelle Seite 3.
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58. Links To Other Sites
Note Vaginal agenesis/hypoplasia is a feature shared by AIS (andsome other XY conditions) and some XX conditions such as mrkh.
http://www.medhelp.org/www/ais/61_LINKS.HTM
Androgen Insensitivity Syndrome Support Group Website
(If you came to this page directly, please go to our entry page by clicking here.)
Links to Other Web Sites
[last updated 15 May 2004] This section provides direct links to other web sites that may be of interest. Please notify us at AISSG UK of any missing/broken links (supplying a working link wherever possible). Thank you.
A Note about PDFs
Some of the sites listed here may provide access to documents in PDF (Portable Document Format) that you can view/print and/or download to your computer. To do this you'll need Adobe's Acrobat Reader program on your computer. This is available as a free download from http://www.adobe.com/products/acrobat/readstep2.html (you'll need to specify which PC platform you are using, e.g. Win 95, Win 98). O nce you have Acrobat Reader installed, you are ready to access PDF files via web pages, as follows:
  • Click on the web page link that provides access to the PDF file.
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