1. MRKH Listserv And Online Support Group Homepage Welcome to the MayerRokitansky-Kustur-Hauser Syndrome Listserv and. Online Support Group. Debbie. Send Comments and Suggestions to mrkh-L. Info@surrogacy.org. Copyright 1997. TASC The American Surrogacy Center, Inc., Marietta, GA This Month at mrkh-L Members' Photo Album http://www.surrogacy.com/online_support/mrkh

Welcome to the Mayer-Rokitansky-Kustur-Hauser Syndrome Listserv and Online Support Group This Month at MRKH-L: Members' Photo Album Post an Email Message on the MRKH-Listserv TASC's MRKH Listserv Co-moderators are: Debbie Send Comments and Suggestions to: MRKH-L Info@surrogacy.org The information contained in the website may not be published, broadcast, rewritten or otherwise distributed without the prior written authority of The American Surrogacy Center, Inc. If you would like to include this information on your website, you may link to the page directly on our site. Guest commentary and representations by others do not necessarily reflect the opinions of the principals of TASC, and should furthermore be independently verified. Welcome to the Mayer-Rokitansky-Kustur-Hauser Syndrome Listserv Online Support Center, a forum open only to women with this syndrome. Because this is a closed area, members can communicate freely and openly with each other without the worry of unwanted visitors. We hope that you will enjoy your visit and make the most of this opportunity express your concerns, offer your support, or share your knowledge and experiences with other members. To Join MRKH-L or to learn more about it, click

2. MRKH.ORG Results of a survey of women, as well an article about the emotional effects of the Syndrome on women. http://www.mrkh.org/

3. Women's Health: The Comfort Zone - March 11, 1998 A personal article about the effects of the Syndrome on the selfesteem of women. http://www.obgyn.net/women/articles/comfort/comfort008.htm

The Comfort Zone - April 15, 1998 MRKH Madness, by Niki Taylor Mayer-Rokitansky-Kuster-Hauser (MRKH) syndrome is a fairly rare syndrome that affects about 1 in 10,000 women. This syndrome can cause a variety of medical problems including reproductive, skeletal, and renal (kidney) problems. The reproductive problems may include a short or absent vagina, a partial or absent uterus, and infertility. The patient with MRKH has amenorrhea or absence of periods. Even if a patient has a partial uterus, it is usually removed due to stomach pains and the inability of menstruation to leave the body. Normally, the ovaries are fine. Keep in mind that the patient is genetically a female with breasts and feminine body hair. As for the skeletal problems, vertebrae malformations may be present. Other bone malformations may be in the limbs. Renal (kidney) problems are very common. A kidney may be missing or in the wrong place. Another problem MRKH women may experience is hearing loss. Except for the reproductive problems, MRKH women may have all, some or none of these symptoms. Treatments are possible for the reproductive problems. Doctors can form a new vagina through surgery. Another way to create a longer vagina is the use of dilators. These are phallus-shaped instruments that the patient inserts into the vaginal area over periods of time. These procedures take a great deal of patience, but according to many patients, they're worth it. Many patients report satisfactory sexual intercourse after these treatments.

4. MRKH - Mayer-Rokitansky-Küster-Hauser Syndrome Information om vaginal och livmoderagenesi, ett syndrom som ¥terfinns hos 1 av 5000 kvinnor och som inneb¤r att man saknar livmoder och vagina. http://biphome.spray.se/torahr/

Välkommen till min sida som handlar om ett intersexsyndrom som förtjänar lite mer uppmärksamhet Presentation Beskrivning Historia Behandling ... Länkar Mayer-Rokitansky-Küster-Hauser Syndrome Kallas även för Müllersk agenesis, vaginal- och livmoderagenesis /-aplasi H är har jag samlat lite information om ett intersexsyndrom som inte är särskilt känt. MRKH är relativt ovanligt och återfinns hos ca 1 av 5 000 kvinnor. Syndromet innebär att man saknar livmoder och vagina. Presentation Beskrivning Identitet Historia ... Texter M R K H Syndrome Maila Till Mig

5. International MRKH Syndrome Meetup Day mrkh Syndrome. International mrkh Syndrome Meetup Day mrkh Syndrome Meetups can happen in up to 634 cities worldwide on the same day http://mrkh.meetup.com/

@import url("http://www.meetup.com/style/common.css"); @import url("http://www.meetup.com/style/topic.css"); @import url("http://www.meetup.com/style/hide-from-ie-mac.css"); @import url("http://www.meetup.com/style/images.css"); Your Meetup now has its own Message Boards! Join the conversation! Meetup Home Discuss Meetup.com Sign In ... MRKH Syndrome International MRKH Syndrome Meetup Day in 6 Days WHAT Meetup with other local women dealing with Mayer-Rokitansky-Kuster-Hauser Syndrome. WHEN Wednesday, June 9 @ 6:00PM (2nd Wednesday of every month.) WHO Women with MRKH Syndrome Worldwide (and friends.) So far, have signed up. AGENDA T.B.D. More info. Next Meetup Members ... Links Join other Women with MRKH Syndrome near you! MRKH Syndrome Meetups can happen in up to 646 cities worldwide on the same day. Enter your location to find the one near you: writeForm("horiz") US Residents, enter your 5-digit Zip Code: Non-US Residents, select your city: Select Your City Antarctica: South Pole, Antarctica Argentina: Buenos Aires, Argentina

6. Homepage, Webseite, Internetseite, Webdokument Beschreibung der angeborenen Fehlbildung durch eine Betroffene, die auf diesem Wege –ffentlichkeit f¼r die seltene Krankheit herstellen will. Mit Links und Forum. http://www.mrkh.ch/

Mayer-Rokitansky-Küster-Hauser-Syndrom Switzerland Chat Forum Gästebuch Mitteilungen Rubrik Syndrom Diagnose Fehlbildung Aplasie Missbildung ... Vecchietti Rubrik Vagina Rubrik Diverses MRKH Switzerland Ihr könnt hier anonym bleiben ohne euren Namen zu schreiben ein Syndrom das nur Mädchen und Frauen betrifft ! So lassen Sie mich ein wenig über diesen merkwürdigen und schmerzlichen Zustand erzählen der glücklicherweise sehr selten ist ! Ich bin auch betroffen von diesem Syndrom deshalb suchte ich Infos und klammerte mich an alles was mit dem Syndrom zu hat. Die folgenden Informationen sind über Geburtsdefekte, die einige Frauen beeinflussen, wenn Sie es nicht lesen möchten, gehen Sie zurück jetzt ! Wenn Sie mehr über das Syndrom Mayer-Rokitansky-Küster-Hauser erlernen möchten, fahren Sie bitte fort. Dieses ist ein intimes Syndrom das viele Frauen beeinflußt, aber es wird im Allgemeinen nicht in der Öffentlichkeit darüber gesprochen. Ich hoffe, daß Sie dieses bewußt lesen und empfindlicher sind für dieses Syndrom und die Frauen die es beeinflußt. Dieser scheint nicht, ein genetischer Defekt, aber eher ein Unfall der Entwicklung zu sein betrifft Mädchen 1: 4000 to 1: 20,000

7. Mrkhorg mrkh.org, inc. PO Box 1494, Jamaica Plain, MA 02130. info@mrkh.org. A resource forwomen with. Please contact Info@mrkh.org to copy information from this web site. http://www.mrkh.org/URLforwardtop.asp

The Self I will Never Know. Recently published in The New Internationalist: Jan/ Feb 2004 PERFORM THE MISSING VAGINA MONOLOGUE FOR VDAY 2004 Here is a 3-5 minute version THE MISSING VAGINA MONOLOGUE Please contact Info@mrkh.org to copy information from this web site. This information was collected from a variety of resources who need to be contacted for permission. THANKS. MRKH.org, inc P.O Box 1494, Jamaica Plain, MA 02130 info@mrkh.org A resource for women with M ayer R okitansky K uster H auser Syndrome Also known as Mullerian Agenesis, Vaginal Agenesis, Congenital Absence of Vagina Please contact Info@mrkh.org to copy information from this web site. This information was collected from a variety of resources who need to be contacted for permission. THANKS. last updated on: 5/25/04 Women's Health Edition-Sojourner, March 2001 THE MISSING VAGINA MONOLOGUE PERFORM THE MISSING VAGINA MONOLOGUE FOR VDAY 2004 Here is a 3-5 minute version The Self I will Never Know. Recently published in The New Internationalist: Jan/ Feb 2004

8. Surrogacy mrkh stands for MayerRokitansky-Kuster-Hauser Syndrome, named after four men who studied this birth defect How many women have mrkh? No exact figures are known, as the http://www.surrogatealternatives.net/mrkh.htm

Need a Surrogate Mother? Intended Parents Home Need an Egg Donor? Click Here Index Pages Surrogate Information Anticipated Fees Our Staff F.A.Q's ... Egg Donor Application Fertility Stores and Products Pharmacies Contact US Web Site Development Fertility Stores ... Uterine Fibroids Infertility Causes Miscarriage News Letters Hysterectomy PregnancyBaby Supplies ... e-mail Webmaster MRKH stands for Mayer-Rokitansky-Kuster-Hauser Syndrome, named after four men who studied this birth defect. It is a defect wherein a woman is born without a uterus, cervix, and, in many cases, a vagina, and therefore cannot reproduce. The woman is also likely to be missing one kidney. How do you "get" MRKH? How do you know you have it? MRKH is usually diagnosed when the girl reaches sixteen or thereabouts and never gets her period. How many women have MRKH? Surrogacy You don't "get" it. You just have it. There is no evidence that it isinherited, nor any evidence linking to anything that the mother did while the MRKH baby was in utero. Basically, it's like lightning striking it just happens, and there really isn't much to do to prevent it.

9. MRKH Listserv And Online Support Group Homepage TASC s mrkh Listserv Comoderators are Debbie and Melissa Send Comments and Suggestionsto mrkh-L-team @surrogacy.org Return to surrogacy.com Copyright 1997. http://www.surrogacy.com/online_support/mrkh/mrkhlrn.html

Learn More About the Mayer-Rokitanksy-Kustur-Hauser Syndrome Listserv and Online Support Group Join our Online Discussion Group! TASC's MRKH Listserv Co-moderators are: Debbie and Melissa Send Comments and Suggestions to: MRKH-L-team @surrogacy.org The information contained in the website may not be published, broadcast, rewritten or otherwise distributed without the prior written authority of The American Surrogacy Center, Inc. If you would like to include this information on your website, you may link to the page directly on our site. Guest commentary and representations by others do not necessarily reflect the opinions of the principals of TASC, and should furthermore be independently verified. This Email Discussion and Online Support Group has been established to foster support, information sharing and discussion among among those women who were born without a uterus (Mayer-Rokitanksy-Kustur-Hauser Syndrome). TASC is honored to host this listserv as a service to these women. We hope it will help build a cyber-community of friends and acquaintances who are living with this same situation. Members of the list can lend support and guidance and share their knowledge relating to this syndrome. Discussion topics of this listserv include health and emotional issues, personal experiences, and others relating to not having a uterus.

10. Mrkhorg This Web site was created at www.mrkh.org Please contact Info@mrkh.org to copy information from this web site Please contact Info@mrkh.org to copy information from this web site http://mrkhorg.homestead.com/

The Self I will Never Know. Recently published in The New Internationalist: Jan/ Feb 2004 PERFORM THE MISSING VAGINA MONOLOGUE FOR VDAY 2004 Here is a 3-5 minute version THE MISSING VAGINA MONOLOGUE Please contact Info@mrkh.org to copy information from this web site. This information was collected from a variety of resources who need to be contacted for permission. THANKS. MRKH.org, inc P.O Box 1494, Jamaica Plain, MA 02130 info@mrkh.org A resource for women with M ayer R okitansky K uster H auser Syndrome Also known as Mullerian Agenesis, Vaginal Agenesis, Congenital Absence of Vagina Please contact Info@mrkh.org to copy information from this web site. This information was collected from a variety of resources who need to be contacted for permission. THANKS. last updated on: 5/25/04 Women's Health Edition-Sojourner, March 2001 THE MISSING VAGINA MONOLOGUE PERFORM THE MISSING VAGINA MONOLOGUE FOR VDAY 2004 Here is a 3-5 minute version The Self I will Never Know. Recently published in The New Internationalist: Jan/ Feb 2004

11. OBGYN.net - Women's Health: The Comfort Zone - March 11, 1998 mrkh Madness, by Niki Taylor. MayerRokitansky-Kuster-Hauser (mrkh) syndromeis a fairly rare syndrome that affects about 1 in 10,000 women. http://www.obgyn.net/displayarticle.asp?page=/women/articles/comfort/comfort008

12. NeoVagina.de: Startseite > Willkommen Das Informationsportal der Universit¤tsfrauenklinik T¼bingen dient Betroffenen und „rzten als wegweisender Gesundheitsratgeber zu mrkh Syndrom und Scheidenaplasie. Aktuellste Forschungsergebnisse, modernste Diagnose und Therapiekonzepte werden vermittelt. http://www.neovagina.de

Home Impressum info@neovagina.de Sie sind hier: Startseite > Willkommen bildung der Scheide, als Folge verschiedener Syn- Swyer- oder dem Turner-Syndrom. Betroffene junge Frauen wie Du werden mit der unvoll- ohnehin schwierigen Phase der Entdeckung und Weg zum "ganz Frau sein" beraten und begleiten wir Dich. Hier kannst Du Dich mit anderen austauschen und Rat finden. 19.02.2004 Selbsthilfegruppe Neovagina Schon bald nimmt die Selbsthilfegruppe Neovagina in Tübingen ihre Arbeit auf. Interessierte können sich schon jetzt bei Dr. S. Brucker melden. 19.02.2004 Der Neovagina Ratgeber ist online Der online Ratgegber rund um Scheidenaplasie und MRKH bietet betroffenen Frauen eine Anlaufstelle für offene Fragen. Alle Highlights > Seite empfehlen >> Seite drucken >> Seite bewerten >> ... Webmaster

13. LDS Rock Music For Mormon Youth - Singer/songwriter/producer Mark Hansen Powerful and uplifting music for LDS (mormon) youth. Free songs for download. Firesides and other live performances. Make Money. sharing songs! mrkh Mark Hansen. LDS rock music http://www.markhansenmusic.com/

LDS Rock Music: Singer/songwriter/producer Mark Hansen MRKH MUSIC FANS SHOWS Free! NEW SINGLE Free! Free songs at weeddex.com Make Money sharing songs! MRKH - Mark Hansen LDS rock music Listening to this music doesn’t require parental approval. It’s a bit of clean rebellion. It keeps your outlook up and your hope alive. It’s got strong drums and screaming guitars. It pumps you up and drives your life. It’s a hunger for exploration. It chooses the right and returns with honor. It’s music you don’t have to confess to your bishop. It’s not your parents’ "Saturday’s Warrior". It’s "A Joyful Noise" This is where to come if you want to find good music. Music that rocks without being foul, drives without being sleazy. LDS music that deals with living the gospel in a troubled world, without preaching or condescending. Come on in! Find out how to get free mp3s and a free CD! Find out where you can hear Mark perform live, and how to bring him to your ward or stake activity.

14. Amenorrhea - MRKH home women s health menstruation amenorrhea mrkh mrkh. mrkhGRRLS A support group and community for women with mrkh. http://www.healthcyclopedia.com/women's-health/menstruation/amenorrhea/mrkh.html

Home Health cyclopedia All Topics by Category The Good Health Search Engine Health Conditions A-Z Gurus ... amenorrhea > mrkh Amenorrhea - MRKH Health Information External links (marked with an arrow ) open in a new window. This site is a web directory and does not offer medical advice. We cannot take responsibility for information found on listed sites. This Page Related Topics Message Boards Health News Web Directory: Related Topics: Open Directory: Childfree Open Directory: Transgendered Message Boards: Google Groups: alt.adoption Google Groups: alt.infertility Google Groups: alt.infertility.parenting Google Groups: alt.infertility.primary ... Google Groups: misc.health.infertility Health News: Search millions of published articles for news on Amenorrhea - MRKH Modern Medicine Aging The Ardell Wellness Report HealthFacts Medical Post Medical Update Men's Health and the National Women's Health Report Note: Subscription required to access the full text of articles. Web Directory: MRKH.ORG Results of a survey of women, as well an article about the emotional effects of the Syndrome on women. Cytologic Findings in a Neovagina Short medical article about the creation of a neovagina using Vecchietti's Technique.

15. MRKH Syndrome mrkh syndrome. Understanding partners and these methods usually allow mrkh womento have satisfying sex lives. Another question is what about children? http://ncnc.essortment.com/mayerrokitansky_rknh.htm

MRKH syndrome Mayer Rokitansky Kuster Hauser Syndrome is a condition that affects approximately 1 in 5000 women. Learn more about it by reading this article. We've heard of heart malformations and limb deformities but genital malformations? This is part of Mayer Rokitanksy Kuster Hauser Syndrome(MRKH) which includes a short or nonexistent vagina, no cervix, and a partial or absent uterus. The causes are unknown. bodyOffer(31711) Most women find about this when they are teenagers. Some girls may find out at a young age when they have surgeries for some other problems such as hernias. Yet the majority find out when their periods won't come. They despair because sisters got their periods at earlier ages. They think they're "late bloomers". A visit to the obstetrician-gynecologist will be futile when the doctors are unable to do pelvic exams on them because of their short or nonexistent vaginas. Instead doctors use laparoscopic surgery where they insert a light through the navel or they use ultrasound to make a diagnosis. This way, the doctors are able to ascertain the condition of the reproductive organs. Doctors should find normal ovaries and fallopian tubes. However, they should find no uterus or an incomplete one. An incomplete one is usually removed because it may cause cramps. Once the doctors find these problems, the question changes from why haven't I gotten a period to how can a doctor "cure" it? A doctor can't cure the 'no periods' part because the women don't have uteruses.

16. Index Of /~mrkh3 would like to learn more about MayerRotitansky-Kuster-Hauser Syndrome (mrkh), please continue to read on my personal experiences with mrkh and researching mrkh. I suggest you see http://home.earthlink.net/~mrkh3

Index of /~mrkh3 Parent Directory id3.html.orig index.html.eln.bak sitebuildercontent

17. Groups mrkhGRRLS Group for mrkh women and / or mothersmrkh-SINDROM - support group for mrkh women/girls http://mrkhorg.homestead.com/Groups.html

Sign up for MRKH Meet Up and meet MRKH women in your area For Young Women, Who have MRKH. Need to talk to others, who are close to the same age (15-30). Bodies Like Ours: Support Groups, Forums, news and bulletin boards Email info@mrkh.org Women Encouraged P.O. Box 1564 Clovis, New Mexico, 88101-1564 Email- ssesack@pdrpip.com Young Women's Health (Boston Children's Hospital) MRKH-GRRLS Group for MRKH women and / or mothers MRKH-SINDROM - support group for mrkh women/girls/mams in serbian;all ex yugo languages(grupa za podrsku za sve mkrh zene/devojke/mame na srpskom jeziku) Rosa MRKHorg Rosa Support Group for MRKH women in England MRKH-GRRLS Group for MRKH women and / or mothers MRKH-SINDROM - support group for mrkh women/girls/mams in serbian;all ex yugo languages(grupa za podrsku za sve mkrh zene/devojke/mame na srpskom jeziku) Young Women's Health (Boston Children's Hospital) Women Encouraged P.O. Box 1564 Clovis, New Mexico, 88101-1564 Email- ssesack@pdrpip.com Email info@mrkh.org last updated on: July 1, 2003 Bodies Like Ours: Support Groups, Forums, news and bulletin boards

18. International MRKH Syndrome Meetup Day -- Join Other Women With MRKH Syndrome Ne International mrkh Syndrome Meetup Day. in 25 Days. WHAT. Meetup Join otherWomen with mrkh Syndrome near Marshalltown, IA Other cities. The http://mrkh.meetup.com/283

@import url("http://www.meetup.com/style/common.css"); @import url("http://www.meetup.com/style/topic.css"); @import url("http://www.meetup.com/style/hide-from-ie-mac.css"); @import url("http://www.meetup.com/style/images.css"); Your Meetup now has its own Message Boards! Join the conversation! Meetup Home Marshalltown, IA Meetups Discuss Meetup.com ... Marshalltown, IA International MRKH Syndrome Meetup Day in 6 Days WHAT Meetup with other local women dealing with Mayer-Rokitansky-Kuster-Hauser Syndrome. WHEN Wednesday, June 9 @ 6:00PM (2nd Wednesday of every month.) WHO Women with MRKH Syndrome Worldwide (and friends.) So far, have signed up. WHERE Marshalltown, IA and up to 646 other cities AGENDA T.B.D. More info. Next Meetup Members ... Links Join other Women with MRKH Syndrome near Marshalltown, IA Other cities We are tabulating the votes for the Meetup spot. If you join by clicking the link below, we will notify you of voting results via email. Sign up! Already a member? Sign in here Frequently-asked Questions Is this affiliated with any topic-related organization?

19. Index Of /~mrkh3 A quick summary of what mrkh is. http://www.home.earthlink.net/~mrkh3

Index of /~mrkh3 Parent Directory id3.html.orig index.html.eln.bak sitebuildercontent

20. Neue Seite 1 Translate this page Das Syndrom Mayer-Rokitanski-Küster-Hauser (mrkh), gekennzeichnet durch das kongenitaleFehlen der Gebärmutter und der Vagina, ist eine seltene Störung. http://www.mrkh.ch/diagnose.htm

http://www.sin-italia.org Ausdrucken langer Bericht Diese Infos habe ich im Netz gefunden ! Das Syndrom Mayer-Rokitanski-Küster-Hauser (MRKH), gekennzeichnet durch das kongenitale Fehlen der Gebärmutter und der Vagina, ist eine seltene Störung. Das Vorherrschen ist als eins in 4000 weiblichen Geburten des ­ 5000 (1-3) berichtet worden. In der typischen Form des Syndroms, haben Patienten weder Vagina noch die Gebärmutter. Nur symmetrische uterine Reste (die muskulösen Knospen), normale fallopian Schläuche und normale Eierstöcke sind Geschenk (1, 4). Ovarian Funktion ist Normal (5). Patienten mit MRKH-Syndrom haben ein karyotype 46.XX und normale Sekundärgeschlechteigenschaften. Die externen Genitalien sehen normal aus, aber nur ein flacher vaginaler Puderbeutel ist anwesend. Schließlich sind verschiedene Frequenzen für Abweichungen der urinausscheidenden Fläche, des besonders Agenesis oder des ectopia der Nieren, in der allgemeinen Bevölkerung berichtet worden. Fore et al. (15) mit Autopsiereports, berichteten über eine Frequenz von 1 in 920 bis 1 1850 (0,1-0,5 %), das in Übereinstimmung mit andere Reports ist, die von Felding (14) zusammengefaßt werden. Als schlußfolgerung werden dazugehörige kongenitale Abweichungen der oberen urinausscheidenden Fläche berichtet, um in 30-40 % aller Fälle vom MRKH-Syndrom aufzutreten. Dieser Report soll die medizinische Gemeinschaft an das Bestehen der kongenitalen Nierenabweichungen erinnern, die mit gynäkologischen Abweichungen dazugehörig sind, ein Feld der Nephrologie normalerweise unterschätzt oder sogar vernachlässigt.

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