1. Billies' Help Page For Pain Understanding 3/22/2004 957 AM. mcardles disease Information. 1 3/22/2004 507 AM. mcardles disease. 1 http://groups.msn.com/Billieshelppageforpainunderstanding/rarediseases.msnw

var nEditorialCatId = 102; MSN Home My MSN Hotmail Shopping ... Money Web Search: document.write(''); Groups Groups Home My Groups Language ... Help Billies' help page for pain understanding Billieshelppageforpainunderstanding@groups.msn.com What's New Join Now Welcome to BHP Site Map ... Choose another message board View: Discussions Only Prev 50 Next 50 New Discussion Send to my Inbox Subject Messages Started By Last Reply 5/30/2004 9:25 AM Creutzfeldt-Jakob disease 5/30/2004 9:09 AM Carcinoid syndrome 5/10/2004 9:04 AM Hepatitis A 5/5/2004 3:34 AM Living with celiac disease 5/3/2004 10:07 AM 4/27/2004 10:38 AM 4/27/2004 10:37 AM Research on Crohnes disease 4/27/2004 10:36 AM 4/27/2004 10:35 AM 4/23/2004 7:46 AM 3/22/2004 8:57 AM McArdles Disease Information 3/22/2004 4:07 AM McArdles Disease 3/22/2004 4:02 AM 3/19/2004 11:31 PM 3/19/2004 11:14 PM 3/19/2004 11:08 PM 3/19/2004 10:52 PM Addisons Disease 1/12/2004 10:21 AM PPSI Home Page 1/4/2004 7:42 PM The ACPA American chronic pain assoc.. 12/30/2003 5:42 PM ON Hepatitis lots of types 12/21/2003 4:24 PM Conditions A-Z 12/20/2003 11:33 AM Another good site on alot of conditions and diseases 12/15/2003 11:01 AM Lots of info here on alot of conditions 12/13/2003 12:07 PM Covers just about everything 12/13/2003 11:58 AM Chronic Pancreatitis 12/11/2003 3:34 PM Info on alot of conditions 11/23/2003 2:12 PM Rosacea 10/15/2003 9:43 AM Neuro-fibromatosis 10/11/2003 8:56 AM Severe acute pancreatitis due to .....

2. Adult Outpatient Programs And Services Muscular Dystrophy Association Clinic atrophy (Charcot Marie Tooth Disease) Frederick's Ataxia disease. Metabolic Diseases of the Muscle. Phosphorylase deficiency(mcardles disease) Acid Maltase Deficiency (Pompe's disease http://www.njrehab.org/MDA.htm

Adult Outpatient Programs and Services Muscular Dystrophy Association Clinic The JFK Johnson Rehabilitation Institute's Muscular Dystrophy Association (MDA) Clinic provides a multidisciplinary approach to the diagnosis and treatment of over 40 muscular dystrophies. Adult and pediatric clinics are held once a month throughout the year. Services consist of examination, testing and counseling performed by a physiatrist, physical, occupational and speech therapist. A social worker and registered nurse also assist in assessing the patient's/family's needs. After establishing the diagnosis and treatment plan, the patient is monitored two to three times a year through follow-up clinic visits. The clinic, partially supported by the Muscular Dystrophy Association through a grant, is one of 230 hospital-based clinics affiliated with the MDA. If you suspect that you or your child may have the diagnosis of muscular dystrophy, you may call for a clinic appointment. Appointments for the adult clinic can be made by calling (732) 321-7733 and the pediatric clinic can be reached at (732) 548-7610. Diseases treated through the MDA clinic include: Muscular dystrophies Myotonic Dystrophies Duchenne's Becker's Limb-Girdle Facioscapularhumeral Congenital Distal Emery-Dreifus Motor neuron diseases Amyotrophic lateral sclerosis(ALS) Infantile progressive spinal muscular atrophy (Type 1 Werdnig Hoffman disease) Intermediate Spinal Muscular Atrophy (Type 2)

3. McArdles Disease : On Medical Dictionary Online mcardles disease defined on the Free Online Medical Dictionary. McArdlesDisease. Glycogenosis due to muscle phosphorylase deficiency. http://www.online-medical-dictionary.org/?q=McArdles Disease

4. Mioti: Diseases + Conditions Diseases + Conditions mcardles disease. Search Mioti MEDLINEplusMcArdle Syndrome. MEDLINEplus, a goldmine of good health information http://www.mioti.com/cat/condition/condition.asp?Cat=McArdlesDisease

5. Billies' Help Page For Pain Understanding 3/22/2004 857 AM. mcardles disease Information. 1 3/22/2004 407 AM. mcardles disease. 1 http://www.msnusers.com/billieshelppageforpainunderstanding/rarediseases.msnw

var nEditorialCatId = 102; MSN Home My MSN Hotmail Shopping ... Money Web Search: document.write(''); Groups Groups Home My Groups Help Billies' help page for pain understanding billieshelppageforpainunderstanding@www.msnusers.com What's New Join Now Welcome to BHP Site Map ... Choose another message board View: Discussions Only Prev 50 Next 50 New Discussion Send to my Inbox Subject Messages Started By Last Reply 5/30/2004 9:25 AM Creutzfeldt-Jakob disease 5/30/2004 9:09 AM Carcinoid syndrome 5/10/2004 9:04 AM Hepatitis A 5/5/2004 3:34 AM Living with celiac disease 5/3/2004 10:07 AM 4/27/2004 10:38 AM 4/27/2004 10:37 AM Research on Crohnes disease 4/27/2004 10:36 AM 4/27/2004 10:35 AM 4/23/2004 7:46 AM 3/22/2004 8:57 AM McArdles Disease Information 3/22/2004 4:07 AM McArdles Disease 3/22/2004 4:02 AM 3/19/2004 11:31 PM 3/19/2004 11:14 PM 3/19/2004 11:08 PM 3/19/2004 10:52 PM Addisons Disease 1/12/2004 10:21 AM PPSI Home Page 1/4/2004 7:42 PM The ACPA American chronic pain assoc.. 12/30/2003 5:42 PM ON Hepatitis lots of types 12/21/2003 4:24 PM Conditions A-Z 12/20/2003 11:33 AM Another good site on alot of conditions and diseases 12/15/2003 11:01 AM Lots of info here on alot of conditions 12/13/2003 12:07 PM Covers just about everything 12/13/2003 11:58 AM Chronic Pancreatitis 12/11/2003 3:34 PM Info on alot of conditions 11/23/2003 2:12 PM Rosacea 10/15/2003 9:43 AM Neuro-fibromatosis 10/11/2003 8:56 AM Severe acute pancreatitis due to .....

6. Mioti: Diseases + Conditions Maxillofacial Dysostosis, • Maxillofacial Surgery. • May Hegglin Anomaly,• mcardles disease. • McCune Albright Syndrome, • McKusick Syndrome. http://www.mioti.com/cat/condition/results.asp?Alpha=M

7. Billies' Help Page For Pain Understanding 3/22/2004 857 AM. mcardles disease Information. 1 3/22/2004 407 AM. mcardles disease. 1 http://www.msnusers.com/BilliesHelpPageforPainUnderstanding/rarediseases.msnw

var nEditorialCatId = 102; MSN Home My MSN Hotmail Shopping ... Money Web Search: document.write(''); Groups Groups Home My Groups Help Billies' help page for pain understanding BilliesHelpPageforPainUnderstanding@www.msnusers.com What's New Join Now Welcome to BHP Site Map ... Choose another message board View: Discussions Only Prev 50 Next 50 New Discussion Send to my Inbox Subject Messages Started By Last Reply 5/30/2004 9:25 AM Creutzfeldt-Jakob disease 5/30/2004 9:09 AM Carcinoid syndrome 5/10/2004 9:04 AM Hepatitis A 5/5/2004 3:34 AM Living with celiac disease 5/3/2004 10:07 AM 4/27/2004 10:38 AM 4/27/2004 10:37 AM Research on Crohnes disease 4/27/2004 10:36 AM 4/27/2004 10:35 AM 4/23/2004 7:46 AM 3/22/2004 8:57 AM McArdles Disease Information 3/22/2004 4:07 AM McArdles Disease 3/22/2004 4:02 AM 3/19/2004 11:31 PM 3/19/2004 11:14 PM 3/19/2004 11:08 PM 3/19/2004 10:52 PM Addisons Disease 1/12/2004 10:21 AM PPSI Home Page 1/4/2004 7:42 PM The ACPA American chronic pain assoc.. 12/30/2003 5:42 PM ON Hepatitis lots of types 12/21/2003 4:24 PM Conditions A-Z 12/20/2003 11:33 AM Another good site on alot of conditions and diseases 12/15/2003 11:01 AM Lots of info here on alot of conditions 12/13/2003 12:07 PM Covers just about everything 12/13/2003 11:58 AM Chronic Pancreatitis 12/11/2003 3:34 PM Info on alot of conditions 11/23/2003 2:12 PM Rosacea 10/15/2003 9:43 AM Neuro-fibromatosis 10/11/2003 8:56 AM Severe acute pancreatitis due to .....

8. Page 17 Neuromuscular Disorders, Dystrophic Cardiomyopathy, mcardles disease, General Paediatricsand Paediatric Neurology General Paediatrics Muscular Dyshophy and http://www.rjah.nhs.uk/Consultants_Services/consultants__services17.htm

QUINLIVAN Dr Rosaline BSc. (Hons), MB, BS, DCH, MRCP, FRCP Consultant Paediatrician with an Interest in Paediatric Neurology Secretary: Outpatient Clinics: Clinical Interests: Publications In the Following Topics: Qualification: Consultant Appointments: Sarah Evans 01691 404376 Friday all day Neuromuscular Disorders, Dystrophic Cardiomyopathy, McArdles Disease, General Paediatrics and Paediatric Neurology General Paediatrics Muscular Dyshophy and Congenital Neuropathies PET Scanning in Paediatric Cardiology Peripheral Neuropathies Congenital and Acquired McArdles disease Hereditary and congenital peripheral neuropathy, muscular dystrophy and dystrophic cardiomyopathy. Invited reviews on Becker cardiomyopathy and cardiac PET scanning in Paediatrics 1985 UCH, London 1995 Oswestry and Shrewsbury RAY Dr Sumeeta FRCA Consultant Anaesthetist Secretary: Clinical Interests: Publications: Qualification: Consultant Appointments: Mandie Owen 01691 404246 Cardio-pulmonary Resuscitation Management of Difficult Airways 1991 London 1995 Oswestry REDFORD Mr David MB FRCS FRCOG Consultant Gynaecologist Obstetrician Secretary: Outpatient Clinics: Clinical Interests: Publications: Qualification: Consultant Appointments: Jeanne McKay 01691 404302 Alternate Tuesday am Endoscopic vaginal surgery, medical complications of pregnancy

9. INHERITED METABOLIC DISORDERS M.D.qq Gaucher disease is a prototypical lysosomal storage disease cause this?mcardles disease (muscle phosphorylase deficiency) and Tauri disease (phosphofructokinase deficiency http://www.bmppearls.com/pdf/NEUROLOGY.pdf

10. Bodybuilding.com Presents: Anssi Manninen - Creatine Loading Strategies! What Wo of muscular, neurological and neuromuscular diseases (arthritis, congestive heartfailure, disuse atrophy, gyrate atrophy, mcardles disease, Huntington´s http://www.bodybuilding.com/fun/anssi1.htm

Advanced Search Articles Home Main Page Brand Listing ... Printable Page Did you know? Each body part you work needs at least 24-48 hours of adequate rest and sometimes up to 5-7 days. Main Articles Creatine Creatine Loading Strategies! With many types of creatine on the market, all claiming to be the best, how do you choose the best one for you? Here is the scientific truth! By: Anssi Manninen Reprinted with permission from Muscular Development C reatine is a nitrogenous amine. Normal daily dietary intake of creatine from an omnivorous diet approximates 1 g. Exogenous dietary sources of creatine include meat, fish, and other animal products, but it may also be formed endogenously in the liver, kidney, and pancreas from the amino acids glycine, arginine, and methionine. One-half kg of fresh, uncooked steak contains about 2 g creatine. Creatine has become a popular nutritional supplement among athletes. In 1998, about $US200 million was spent on creatine monohydrate. Of the approximately 300 studies that have evaluated the potential ergogenic value of creatine supplementation, about 70% of these studies report statistically significant results while remaining studies generally report non-significant gains in perfomance. However, studies that have reported no significant benefit of creatine supplementation often have low statistical power, have evaluated performance tests with large test-to-test variability, and/or have not incorporated appropriate experimental controls.

11. AGSD - UK Site - 2002 Workshop Report Glycogen Storage Disease Type V (mcardles disease) A Talk by Dr. Ros QuinlivanHype v. Hope Dr. Quinlivan is in charge of the McArdles Clinic at Oswestry (qv http://www.agsd.org.uk/home/wrf.asp?F=Nottingham_2002_Workshop_Report.shtm

12. McArdle´s, Morbus McArdle, Glykogenose Typ 5, Phosphorylase Kinase Defizienz, P Translate this page Info). mcardles disease, Private Seite eines McArdle Betroffenen inden USA (spezielle Info). Homepages Australien. Erläuterung. MDA http://www.morbus-pompe.de/glyko_typ5/mcardle_info.html

Muskelglykogenose Glykogenose Typ V (McArdle Krankheit, Myophosphorylase Defizienz) Inhalt Beschreibung der Erkrankung 1. McArdle- und andere Muskelspezialisten in Deutschland 2. Deutsche Selbsthilfegruppen und Hilfsorganisationen 3. Internationale Links von Selbsthilfegruppen ... 5. Englischsprachige Literatur Beschreibung der Erkrankung: McArdle, was ist das? Medizinischer Text (* = Quelle: Muskelerkrankungen, Felix Jerusalem und Stephan Zierz, Georg Thieme Verlag Stuttgart, 2. Auflage, 1991) Deutsch Englisch McArdle Krankheit McArdle Disease Glykogenspeicherkrankheit Typ V Glycogen Storage Disease Typ V Glykogenose Glycogenosis Myophosphorylase Mangel Myophosphorylase Deficiency Auf der DGM-Homepage: http://www.dgm.org/muskelk/letters/letter3/kilimann.html http://www.ruhr-uni-bochum.de/pressemitteilungen-1996/msg00135.html 1. McArdle- und andere Muskelspezialisten in Deutschland Homepage (deutschsprachig) Ansprechpartner, Adresse, E-Mail Muskelzentrum Ruhrgebiet spezielle Info Anschrift und Ansprechpartner: Herr Dr. Matthias Vorgerd Muskelzentrum Ruhrgebiet Kliniken Bergmannsheil D-44789 Bochum Tel.: 0234/302-6806

13. Time To Train All Doctors To Look After Seriously Ill Patients A feature of mcardles disease is that subjects suffer muscle crampand exhaustion on acute strenuous exercise. They then experience http://www.smj.org.uk/0403/mcardle.htm

Exercise to exhaustion in the second-wind phase of exercise in a case of McArdle’s disease with and without creatine supplementation SMJ Denis St.J O’Reilly , Roger Carter Ewan Bell John Hinnie Peter J Galloway Department of Clinical Biochemistry, Royal Infirmary, Glasgow G4 0SF Department of Respiratory Medicine, Royal Infirmary, Glasgow G4 0SF Department of Medicine, Royal Alexandra Hospital, Paisley PA2 9PN Department of Clinical Biochemistry, Royal Hospital for Sick Children, Yorkhill, Glasgow G3 8SJ Key Words: Anaerobic Threshold, Exhaustion, McArdle’s Disease, Creatine Correspondence to: Dr Denis St.J O’Reilly Department of Clinical Biochemistry Glasgow Royal Infirmary GLASGOW SUMMARY The cardio-pulmonary and biochemical changes observed in a case of McArdle’s disease, exercising with increasing work rates to exhaustion in the “second-wind” phase of exercise are reported for the first time. A work rate of 275-325 watts was achieved. Venous blood lactate remained unchanged throughout. The plasma ammonium level reached a plateau of approximately 400 m mol/l at 100 watts.

14. Count On 3 - WRCB Chattanooga DECADES LATER SHE LEARNED SHE HAD mcardles disease, A GENETIC MUSCULARDISORDER THAT PREVENTS THE BODY FROM PROPERLY PROCESSING ENERGY. http://www.wrcbtv.com/special_reports/health.cfm?DID=10495

15. NOT FIBROMIALGIA !(sp) Please (for your own sake) have yourself tested for mcardles disease. Please(for your own sake) have yourself tested for mcardles disease. http://www.rxlist.com/rxboard/effexor.pl?read=1534

16. Re: Susie - Fibromyalgia Need Big Time Help I was diagnosed with it 4 yrs ago and they were wrong! I have McArdlesDisease. Check it out. I have mcardles disease. Check it out. http://www.rxlist.com/rxboard/effexor.pl?read=1533

17. Online Pharmacy, Health, And Medical Information Center - MedExplorer mcardles disease. Popular Searches. 1. Bextra. Home mcardles disease. Rx.MedExplorer.com Adipex, Viagra, Phentermine, Soma, Zyban US Pharmacy - FDA Approved http://www.medexplorer.com/fwsearch.dbm?Term=McArdle's Disease

18. BrainTalk Communities - Neurology Support Groups Research Petition URL and letter to send, ces, 0, 0208-2001 1210 PM.mcardles disease 20 year old f help tinyteena, 0, 01-23-2001 1248AM. http://neuro-mancer.mgh.harvard.edu/cgi-bin/forumdisplay.cgi?action=topics&forum

19. Animal Health Newsletter Index : Department Of Agriculture Veterinary students at AHL Albany; New diagnostic tests; New staff appointments;Disease Roundup; In Focus – Mark O’Dea; mcardles disease in Charolais http://agspsrv34.agric.wa.gov.au/agency/pubns/ahnewsletter/

Department of Agriculture, Western Australia Animal Health Newsletters Animal Health is published quarterly by the Disease Surveillance program. The aim of the newsletter is to provide veterinary practitioners, agricultural consultants and others servicing the Agricultural Industries of WA with topical information and news relevance to disease surveillance and preparedness for exotic disease. Note: The table of contents in each issue is hyperlinked and will link you directly to the article concerned. Current issue March 2004 [155kb pdf file] Contents: Ovine Johne's disease – A brief review; Veterinary students at AHL - Albany; New diagnostic tests; New staff appointments; Disease Roundup; In Focus – Mark O’Dea; McArdles disease in Charolais cattle Previous issues December 2003 [154kb pdf file] September 2003 [104kb pdf file] June 2003 [109kb pdf file]

20. Creatine FAQ's Creatine has also been used successfully to improve patients with neuromusculardiseases such as mcardles disease, neuropathic disorders, inflammatory http://www.nutrasense.com/nutrasense/creatinefaqs.html

How Effective is creatine? Studies have shown that Creatine, when supplemented with proper diet, exercise and adequate hydration, can increase lean muscle mass and strength. It has also been shown to aid in recovery after workouts. How Safe is creatine? To date there have been well over 75 research articles published about creatine in various journals, as well as a number of papers presented at various meetings such as the National Strength and Conditioning Associations Symposium. These studies reported no negative side effects. The only consistent side effect has been an average water weight gain of 3-5 lbs. Simply put, with the exception of carbohydrates, creatine is the most extensively studied nutritional sports supplement available to today's athlete. Olympic Committee Supports Use of Creatine Who can benefit from creatine supplementation? Even though creatine supplementation is most common with athletes it has a multitude of uses ranging from infants to the elderly. Creatine has been used successfully to treat infants with extrapyramidal movement disorders and creatine deficiencies in the brain. Creatine has also been used successfully to improve patients with neuromuscular diseases such as McArdles disease, neuropathic disorders, inflammatory myopathies, diomyopathy, mitochondrial cytopathy, dystrophies/congenital myopathies, and ALS - Lou Gehrigs disease. Study Shows Creatine Strengthens Elderly and Patients with Neuromuscular Disease - USA Today Creatine has also been used successfully on reducing muscle fatigue in elderly men.

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