61. Strictly Fyi: Resources For Activists, Educators, School Nurses That includes mayerrokitansky-kuster-hauser syndrome, Turner syndrome, Cushingsyndrome, Complete Androgen Insensitivity syndrome, Congenital Adrenal http://www.safeschoolscoalition.org/listserve/resources-activists-educators-nurs

From: owner-news@safeschoolscoalition.org on behalf of Reis, Elizabeth [Elizabeth.Reis@METROKC.GOV] Sent: Friday, April 16, 2004 4:31 PM To: 'SAFE SCHOOLS: post to main list' Subject: strictly fyi: resources for activists, educators, school nurses Dear Safe Schools Coalition members and friends, "Action may not always bring happiness; but there is no happiness without action." Benjamin Disraeli (1) Gay Youth Activist's speech now online (2) The coolest poster about gender I've ever seen: CrimethInc. Gender Subversion Kit #69-B Same-Sex Marriage: A Selective Bibliography of the Legal Literature (4) Intersex web sites (1) Gay Youth Activist's speech now online Hello, I am pleased to announce the web release of British Columbia gay youth activist, Bruce Lyth's keynote address at the 3rd Agape: Sex-and-Gender Differences, Education, and Culture conference held on December 5-6, 2003 in Edmonton, Alberta, Canada. Bruce's speech addresses how his high school's Gay Straight Student Alliance (GSA) replaced barriers with bridges as they held what they describe as the first gay pride day in a Canadian high school. Bruce's powerful keynote address helped to inspire students in Edmonton, Alberta to form two GSAs in their local high schools. We hope that Bruce's story will continue to inspire and empower other youth, teachers, and allies who are striving to create safe, caring, and inclusive schools and communities for all students regardless of their sex-and-gender differences.

62. Androgen Insensitivity Syndrome Support Group Testicular Feminization; 5Alpha-Reductase Deficiency; XY Pure Gonadal Dysgenesis;Swyer syndrome; mayer-rokitansky-kuster-hauser syndrome; Vaginal Atresia http://www.geneticalliance.org/diseaseinfo/displayorganization.html?orgname=Andr

63. Mullerian Aplasia 1999;8200108. Strubbe EH, et al. Spinal abnormalities of the atypical form ofthe mayer-rokitansky-kuster-hauser syndrome. Skeletal Radiol. 1992;21459-62. http://www.bchealthguide.org/kbase/nord/nord1018.htm

document.write(''); var hwPrint=1; var hwDocHWID="nord1018"; var hwDocTitle="Mullerian Aplasia"; var hwRank="1"; var hwSectionHWID="nord1018"; var hwSectionTitle=""; var hwSource="cn6.0"; var hwProdCfgSerNo="wsh_html_031_s"; var hwDocType="NORD"; National Organization for Rare Disorders, Inc. Mullerian Aplasia Important It is possible that the main title of the report is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report. Synonyms Mullerian Duct Aplasia Mullerian Duct Failure Disorder Subdivisions None Related Disorders List Information on the following diseases can be found in the Related Disorders section of this report: Primary Amenorrhea Rokitansky-Kuster-Hauser Syndrome Vaginal Atresia MURCS Association Complete Androgen Insensitivity Syndrome (Testicular Feminization) Winter's Syndrome General Discussion Mullerian Aplasia is a rare disorder that affects only females. It is characterized by the absence of the uterus, the cervix, and the upper part of the vagina in a female who has normal ovarian function and normal external genitalia. Although females with this disorder develop normal secondary sexual characteristics during puberty (e.g., breast development and pubic hair), the failure of menstrual cycles to begin (primary amenorrhea) is usually the initial symptom. The exact cause of Mullerian Aplasia is not known. The unusual physical characteristics associated with this disorder seem to result from developmental abnormalities during embryonic or fetal growth.

64. Mermaids: Links And Search Engines dysgenesis (Swyer s syndrome) and 5 alpha reductase deficiency, and also XX femaleswith mayer rokitansky kuster hauser (MRKH syndrome, Mullerian dysgenesis http://www.mermaids.freeuk.com/links.html

Links and Search Engines Websites by young transgendered people Kenneth's website Alek's Site Claire's Site Vicky's Site Mailing Lists Mermaids Mailing List - Open to young transgendered people between ages 12 and 19. Mermaids-UK-Parents - MermaidsUK Parents is a UK-based support, information and friendship list for the parents or carers of 'gender variant' children and teenagers, up to and including the age of 18 years. These young people will all have some kind of gender identity issue - of which some may be transient, some permanent - either way, the situation can be a difficult one for all concerned TSTalk-UK - For Transsexual people only (and others invited by the moderators) Transsexual-UK Support Groups FTM Network (UK) Gender Trust - An organisation for Transsexual People and Transgenderists. Grampian Gender Group Antijen - The Antijen list is a place for young transsexual kids to talk and try to sort the whole mess out. We talk about parents, work, school, doctors, new experiences, ways to cope and grow. It's a place to find out information, meet a few people, and generally feel like you're a little less alone in all of this. It's scary sometimes, and it's always good to have a place to talk things through. Manchester Parents Group is a support and information network for parents, families, and friends of lesbians, bisexuals and gay men.

65. Survivor Project: Links MRKH.org is a nonprofit organization providing support and information forwomen with mayer-rokitansky-kuster-hauser syndrome. Trans Resources. http://www.survivorproject.org/links.html

Links to Other Web Sites Intersex Resources Trans Resources Other Related Resources Intersex Resources Intersex Initiative Portland is a network of intersex activists and allies working to end the medical abuse of intersex children. Intersex Initiative is affiliated with Survivor Project. Intersex Society of North America (ISNA) is dedicated to ending shame, secrecy and unwanted genital surgeries for children born with atypical sex anatomy. CAH Our Voices and Our Stories was created by people with congenital adrenal hyperplasia (CAH) to educate parents and medical professionals about what living with CAH is like. AIS Support Group is a support group providing information and support to young people and adults with complete and partial Androgen Insensitivity Syndrome, and to parents of AIS youngsters. MRKH.org is a non-profit organization providing support and information for women with Mayer-Rokitansky-Kuster-Hauser syndrome. Trans Resources Transgender Outreach Project is dedicated to spreading the word about the importance of safer sex within the trans community, distributing safer sex supplies and literature on how to use them. American Boyz is a support and social group for people who were born female but who feel that is not a complete or accurate assessment of who they are (FTMs) and their significant others, friends, families and allies (SOFFAs).

66. OncoLink | The Web's First Cancer Resource AU Tewari DS; McHale MT; Kuo JV; Monk BJ; Burger RA TI - Primary invasive vaginalcancer in the setting of the mayer-rokitansky-kuster-hauser syndrome. http://www.oncolink.org/types/article.cfm?c=6&s=21&ss=168&id=8075

67. Intersexuality Resources For The Gay, Lesbian, Bisexual, Transgender And Interse syndrome (XY gonadal dysgenesis), 5 alphareductase deficiency, leydig cell hypoplasia,mayer-rokitansky-kuster-hauser (MRKH) syndrome, Mullerian dysgenesis http://www.queertheory.com/identities/intersexuality/default.htm

Up Androgyny CAH Gender ... Homoeroticism Intersex Lesbian Personals Polyamory Queer ... Intersex in the Age of Ethics by Alice Domurat Dreger (Editor) Lessons from the Intersexed by Suzanne Kessler Intersexuality Online Resources CAH Resources Gender Resources Texts: Intersexuality ... Hermaphrodites and the Medical Invention of Sex by Alice Domurat Dreger Drawing on remarkable case studies, scholar Alice Dreger explores encounters between hermaphroditespeople born with "ambiguous" sexual anatomyand the medical profession of late 19th-century Britain and France. Comparing protocols applied today in similar situations, this meticulously researced book will compel the attention of anyone interested in the meanings and foundations of sexual identity. 24 photos. Punctuated with remarkable case studies, this book explores extraordinary encounters between hermaphroditespeople born with "ambiguous" sexual anatomyand the medical and scientific professionals who grappled with them. Alice Dreger focuses on events in France and Britain in the late nineteenth century, a moment of great tension for questions of sex roles. While feminists, homosexuals, and anthropological explorers openly questioned the natures and purposes of the two sexes, anatomical hermaphrodites suggested a deeper question: just how many human sexes are there? Ultimately hermaphrodites led doctors and scientists to another surprisingly difficult question: what is sex, really?

68. MedPix™ Radiology Teaching Files, Cases, And Medical Image Database - Single The mayerrokitansky-kuster-hauser syndrome is a constellation of the followingMullerian duct dysgenesis, vaginal and/or uterine agenesis, normal karyotype http://rad.usuhs.mil/medpix/medpix.html?mode=single&frames=no&pk=&recnum=3787&pt

69. Prescriber mayerrokitansky-kuster-hauser syndrome Approximately 1 in 5000 girls are bornwith a congenital absence of the uterus, and some or all of the vagina. http://www.escriber.com/Prescriber/Features.asp?Action=View&ID=751&GroupID=45&Pa

70. MUMS List Of Disorders - M www.mastokids.org; mayerrokitansky-kuster-hauser syndrome (absenceof uterus) (7); McArdle Disease (1) *; McCune-Albright syndrome http://www.netnet.net/mums/mum_m.htm

Return to MUMS Home Page MUMS: List of Disorders M Number in parentheses indicates number of matches. indicates there is a support group which covers that diagnosis. MELAS Mitochondrial Encephalopathy Lactic Acidosis Syndrome (7) * Macrocephaly (large head) (29) http://www.macrocephaly-cmtc.com/ Macrodactyly (Large toes or fingers) (2) Macroglossia (6) Macrosomia (abnormally large body) (2) Macular Degeneration (4) * Macular Degeneration (Infantile) * Male Pseudohermaphroditism (2) * Malignant Hyperthermia (12) * Malrotation of the Intestines (31) Mandibuloacral Dysplasia(Craniomandibular Dermatodysostis) (3) Manic Depression, Bipolar (64) * Manic Depressive Schizophrenia (19) * Mannosidosis (Glycogen Storage) (4)** Maple Syrup Urine Disease (7) * Marcus Gunn Phenomenon (Jaw Winking) (3) Marden-Walker Syndrome (7) Marfan Syndrome (12) * Marinesco-Sjogren Syndrome (1) www.marinesco-sjogren.org Marshall-Smith Syndrome (1) Mast Cell Disease (Urticaria Pigmentosa) (9) Mastocytosis (Urticaria Pigmentosa) (9) www.mastokids.org

71. Mayer-rokitansky Syndrome With Imperforate Anus-an Unique Association 2001 JanJun; 6(1 2) 31-33. ABSTRACT The association of imperforate anuswith mayer-rokitansky-kuster-hauser (MRKH) syndrome is extremely rare. http://medind.nic.in/imvw/imvw1789.html

Extracted from IndMED Sinha A; Sarin YK Department of Pediatric Surgery Maulana Azad Medical College, New Delhi-110002 Mayer-rokitansky syndrome with imperforate anus-an unique association ABSTRACT: The association of imperforate anus with Mayer-Rokitansky-Kuster-Hauser (MRKH) Syndrome is extremely rare. Clinically, this association may masquerade as a case of rectal agenesis with ano/recto vaginal fistual and the diagnosis is often missed. We describe a case of this unusual association and briefly describe the various surgical reconstructive options available. KEYWORDS: Vaginal Diseases/DI; Vaginal Diseases/CL; Mullerian Ducts; Anus, Imperforate/CO; Fistula/CO; Laparotomy; Sigmoid Diseases; Human; Child; Female; Case Report References: 13 Record Identifier: NI201411

72. MRKH List mayerrokitansky-kuster-hauser syndrome (AND RELATED ISSUES) Indexto Articles, Books, Etc. This is a list of articles from medical http://my.execpc.com/~in2bks/

MAYER-ROKITANSKY-KUSTER-HAUSER SYNDROME (AND RELATED ISSUES) Index to Articles, Books, Etc. This is a list of articles from medical journals and other sources on MRKH (congenital absence of the vagina with rudimentary uterus). PubMed is a government sponsored index to articles in medical journals. Many of the articles in this list were found using PubMed. If you are interested in finding citations to additional articles, please try this resource. If a PubMed number is listed with any of the following citations, you can read the abstract for the article by going to the PubMed page using the link at the beginning of this paragraph, searching for the PubMed number (use the number only) and clicking on the author of the article when the citation is found. For more information and support, try the MRKH Foundation at MRKH.net and MRKH.org, Inc. at MRKH.org MRKH "Abnormalities of Urinary Tract and Skeleton Associated with Congenital Absence of the Vagina" BRITISH MEDICAL JOURNAL, pp. 1398-1400, (June 4, 1966) [MURCS] No abstract available "Absent vagina and the Klippel-Feil anomaly" AMERICAN JOURNAL OF OBSTETRICS AND GYNECOLOGY, Vol. 188, No. 2, pp. 290-291 (January 15, 1974) [Atypical]

73. Arch Otolaryngol Head Neck Surg -- Abstracts: Cremers Et Al. 121 (7): 800 Cremers CW. • Willemsen WN. •, Contact me when this article is cited.Stapedial ankylosis in the mayerrokitansky-kuster-hauser syndrome. http://archotol.ama-assn.org/cgi/content/abstract/121/7/800

Select Journal or Resource JAMA Archives of Dermatology Facial Plastic Surgery Family Medicine (1992-2000) General Psychiatry Internal Medicine Neurology Ophthalmology Surgery Student JAMA For The Media Classified Ads Meetings Peer Review Congress Vol. 121 No. 7, July 1995 Featured Link E-mail Alerts ARTICLE Article Options Send to a Friend Similar articles in this journal Literature Track Add to File Drawer Download to Citation Manager PubMed citation Articles in PubMed by Cremers CW Willemsen WN Contact me when this article is cited Stapedial ankylosis in the Mayer-Rokitansky-Kuster-Hauser syndrome C. W. Cremers, E. H. Strubbe and W. N. Willemsen Department of Otolaryngology, University Hospital Nijmegen, The Netherlands. We describe a 21-year-old woman with congenital unilateral conductive hearing loss and an atypical form of the Mayer-Rokitansky-Kuster-Hauser syndrome. To our knowledge, this is the first reported case of this syndrome in which surgery for congenital stapedial ankylosis was successful. Besides aplasia of the vagina and uterus, the patient also had

74. Mayer-Rokitansky-Kustur-Hauser Syndrome Listserv And Online Support Group Applic It is needed to insure only individuals who have mayerrokitansky-Kustur-HauserSyndrome are admitted into this online support group. Thank-you. 1) Name. http://www.surrogacy.com/online_support/mrkh/mrkhap.html

Support Group Application Please complete the application below and hit the submit button. Your application will be reviewed and upon acceptance added to the listserv within 24 hours of receipt. The information given below is to qualify individuals for participation in the listserv. This information will never be released or sold to any individual or company. It is needed to insure only individuals who have Mayer-Rokitansky-Kustur-Hauser Syndrome are admitted into this online support group. Thank-you. 1) Name 2)Email address to be used for the listserv 3) Address 4) Age 4) At what age were you diagnosed with this syndrome? 5) Please discuss what types of problems you have experienced . 6) Would you want to participate in an "Mayer-Rokitansky-Kustur-Hauser Syndrome Dial Us " phone directory? Yes No If yes, please add your phone number 7.) Please let us know how the Listserv and On-Line Support Group can help you by telling us below: 8.)I have read the Rules of Conduct and agree to abide by them to retain my privilege to participate in this online support group. I understand if I violate any of these rules, I may be unsubscribed, without warning, to protect the best interest of the group. Yes No 9.)This email discussion list is currently averaging approximately 0-5 emails per day. You may choose how you would like to receive the messages:

75. Ingenta: Article Summary -- Pelvic Mass In A Woman With Mayer-Rokitansky-Kuster- Pelvic mass in a woman with mayerrokitansky-kuster-hauser syndromeFertility and Sterility January 2004, vol. 81, no. 1, pp. 203 http://www.ingenta.com/isis/searching/ExpandTOC/ingenta?issue=pubinfobike://els/

76. MRKH - Mayer-Rokitansky-Küster-Hauser Syndrome mayerrokitansky-Küster-hauser syndrome. Kallas även för Müllerskagenesis, vaginal- och livmoderagenesis /-aplasi. Här har jag http://biphome.spray.se/torahr/

Välkommen till min sida som handlar om ett intersexsyndrom som förtjänar lite mer uppmärksamhet Presentation Beskrivning Historia Behandling ... Länkar Mayer-Rokitansky-Küster-Hauser Syndrome Kallas även för Müllersk agenesis, vaginal- och livmoderagenesis /-aplasi H är har jag samlat lite information om ett intersexsyndrom som inte är särskilt känt. MRKH är relativt ovanligt och återfinns hos ca 1 av 5 000 kvinnor. Syndromet innebär att man saknar livmoder och vagina. Presentation Beskrivning Identitet Historia ... Texter M R K H Syndrome Maila Till Mig

77. ORPHANET - Maladies Rares - Médicaments Orphelins Translate this page Maladie(s) incluse(s) Absence de vagin Aplasie mullérienne Atrésie vaginaleMayer-rokitansky-kuster-hauser, syndrome de rokitansky, syndrome de, http://www.orpha.net/consor/cgi-bin/OC_Exp.php?Lng=FR&Expert=2578

78. Genetic And Rare Diseases Information Center - Office Of Rare Diseases Disease Vagina absence of. Synonyms Vaginal atresia. rokitanskykuster-Hausersyndrome ; RKH syndrome. MRK anomaly. Von mayer-rokitansky-kuster anomaly. http://ord.aspensys.com/asp/diseases/diseaseinfo.asp?ID=5445

79. NEOMEDIC -Casos Clínicos- mayer-rokitansky-kuster-hauser syndromeVecchietti’s personal series. Clin Exp Obstet Gynecol 1992;19 273-4. http://www.neomedic.com/bd/casos_fitxa.cfm?id_cas=71

80. Androgen Insensitivity Syndrome Support Group Australia Conditions Androgen Insensitivity syndrome; Gonadal Dysgenesis; mayerrokitansky-kuster-Hausersyndrome; 5-Alpha-Reductase Deficiency; 3-Beta-Hydroxysteroid http://www.geneticalliance.org/diseaseinfo/displayorganization.html?orgname=Andr

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