1. NLN: Home Page The National lymphedema Network (NLN) is an internationally recognized nonprofit organization founded in 1988 by Saskia RJ Thiadens, RN to provide education http://www.lymphnet.org/

Become an NLN Member What Is Lymphedema? Resource Guide Sponsorship Information ... Contact Us The National Lymphedema Network (NLN) is an internationally recognized non-profit organization founded in 1988 by Saskia R.J. Thiadens, R.N. to provide education and guidance to lymphedema patients, health care professionals and the general public by disseminating information on the prevention and management of primary and secondary lymphedema. The NLN is supported by tax-deductible donations and is a driving force behind the movement in the U.S. to standardize quality treatment for lymphedema patients nationwide. In addition, the NLN supports research into the causes and possible alternative treatments for this often incapacitating, long-neglected condition. The NLN provides: A toll-free recorded information line: 1-800-541-3259 Referrals to lymphedema treatment centers, health care professionals, training programs

2. Lymphedema What is lymphedema? lymphedema can be defined as an accumulation of excessive proteins, edema either primary or secondary lymphedema. Primary lymphedema is usually due to either http://www.warmsprings.org/ws/FS/oly.html

Lymphedema What is Lymphedema? Lymphedema can be defined as an accumulation of excessive proteins, edema, chronic inflammation, and fibrosis secondary to the impairment of the lymph vessels. The vessels transport molecules to the venous angle of the neck where the lymph system joins the venous system. Are there different kinds of Lymphedema? Yes. Lymphedema can be either primary or secondary lymphedema. Primary lymphedema is usually due to either a congenital absence of, or abnormalities in, lymphatic tissue. It can be hereditary (Milroy Disease), lymphedema praecox (onset during puberty), or lymphedema tarda (onset later in life). Primary lymphedema is more prevalent in females than males. Secondary lymphedema is generally caused by an obstruction or interruption of the lymphatic system, usually caused by malignancies, infection, trauma, excision, or post-radiation fibrosis. Incidence It is not known the true number of persons suffering from lymphedema. It is estimated that the incidences of lymphedema in the United States are as follows : -Primary Lymphedemia:1-2 million -Secondary Lymphedemia: 2-3 million Purpose The goal of Warm Springs Rehabilitation System Lymphedemia Management Program is to improve the overall quality of life for a lymphedema survivor.

3. Lymphedema Assocation Of Quebec A support group for people with lymphedema, a chronic swelling condition due to accumulations of lymphatic fluid, and encourages education and research into the disorder. http://www.infolympho.icomm.ca/

Self Management for Lymphedema (Conference in English with simultaneous interpretation in French) Montreal, May 20, 2004 le 20 mai 2004 LIGHT REFRESHMENTS WILL BE SERVED FROM 18:30 TO 19:00 Dorit Tidhar, Pht, CLT Dorit Tidhar Moderator, Animatrice : Dr. Anna Towers Director, Dept. of Palliative Care, McGill University Health Centre and Coordinator, Montreal Lymphedema Research Program Intended Audience: Health Professionals, lymphedema patients and those at risk, and the general public Omni Hotel Mont-Royal Salon Pierre de Coubertin, 1050 Sherbrooke Street West, Montreal, Quebec H3A 2R6 FREE ADMISSION (Donations will be gratefully accepted at the door) For reservations or information: All contents of these WWW pages are user ID is an iComm account.

4. Home A nonprofit corporation whose mission is to help identify, support and promote research into the causes, treatments, and potential cures for lymphedema and other angiodysplasia disorders. http://www.lymphaticresearch.org/

39 Pool Drive . Roslyn, NY 11576 . Ph: 516-625-9675 . Fax: 516-625-9410 . E-mail: lrf@lymphaticresearch.org Our Mission The Foundation is dedicated to promoting and supporting lymphatic research, and to foster an interdisciplinary field of lymphology that will provide health benefits to all individuals, and in particular lead to therapeutic advance and a cure for lymphatic disease, lymphedema, and related disorders. Contact Information Telephone FAX Postal address 39 Pool Drive, Roslyn, NY 11576 Electronic mail General Information: lrf@lymphaticresearch.org Gordon Research Conference Series Molecular Mechanisms in Lymphatic Function and Disease March 7-12, 2004 Send mail to webmaster@lymphaticresearch.org with questions or comments about this web site. Last modified: August 29, 2003 by Catherine Sansonetti

5. Circle Of Hope Lymphedema Foundation, Inc. Provides Resources, Information And S Circle of Hope lymphedema Foundation, Inc. See Our Advertisers. COHLF Jewelry. About Circle of Hope. Jeanne Tassis, Founder. What is lymphedema? http://www.lymphedemacircleofhope.org/

Advertising Information See Our Advertisers COHLF Jewelry About Circle of Hope ... Home Circle of Hope Lymphedema Circle of Hope Lymphedema Circle of Hope Lymphedema Circle of Hope Lymphedema Circle of Hope Lymphedema Circle of Hope Lymphedema Circle Of Hope Lymphedema Foundation, Inc., a non-profit corporation, was developed to promote and provide educational programs, public awareness, medical treatment, and continued research for the disease known as Lymphedema. For $10.00 you will receive this special Butterfly Pin, the sign of HOPE, in a soft Leatherette Pouch. Click Here To Read The Story About The Development Of The Lymphedema Pin. Click Here To Purchase one for yourself or buy them for gifts! "Lymphedema - The Flight Of Hope" Conference A Great Success! Click Here for Details Click Here To Order "The Flight Of Hope" Conference Video Click Here to Subscribe to the COH Newsletter ... Click Here to See Our Lymphedema Brochure Oprah Wants To Know! If the Circle Of Hope Lymphedema Foundation Inc. website has helped you or anyone with lymphedema, then

6. EMedicine - Lymphedema : Article By Don R Revis, Jr, MD lymphedema lymphedema is a notoriously debilitating progressive condition with no known cure. The unfortunate patient faces a lifelong struggle of medical, and sometimes surgical, treatment Primary lymphedema has been further subdivided into 3 forms, including congenital lymphedema, lymphedema praecox, and lymphedema tarda, depending on http://www.emedicine.com/med/topic2722.htm

(advertisement) Home Specialties CME PDA ... Patient Education Articles Images CME Patient Education Advanced Search Link to this site Back to: eMedicine Specialties Medicine, Ob/Gyn, Psychiatry, and Surgery General Surgery Lymphedema Last Updated: September 6, 2002 Rate this Article Email to a Colleague Synonyms and related keywords: lymphatic dysfunction, accumulation of interstitial fluid containing high molecular weight proteins, lymphatic system, breast cancer surgery, axillary lymphadenectomy, primary lymphedema, congenital lymphedema, lymphedema praecox, lymphedema tarda, Milroy disease, Milroy’s disease, Meige disease, Meige’s disease, secondary lymphedema, filariasis AUTHOR INFORMATION Section 1 of 11 Author Information Introduction Indications Relevant Anatomy And Contraindications ... Bibliography Author: Don R Revis, Jr, MD , Consulting Staff, Department of Surgery, Division of Plastic and Reconstructive Surgery, University of Florida College of Medicine Don R Revis, Jr, MD, is a member of the following medical societies: American College of Surgeons , and American Medical Association Editor(s): Danny Odell Jacobs, MD, MPH

7. Lymphedema Links lymphedema Information on all aspects of lymphedema affecting upper and lower body includes info on how to use a computer, treatment and resources for the condition known as lymphedema Bosom http://www.cancerlinks.com/lymphedema.html

Lymphedema Academy of Lymphatic Studies http://www.acols.com/ - Manual Lymph Drainage and Complete Decongestive Therapy is the treatment of choice for the condition known as Lymphedema... http://www.bosombuddies.org - Breast Cancer and Lymphedema should be matters of concern for all women and the men who love them. Helpful Tips for Lymphedema http://www.cancerlynx.com/lymphedema.html - Useful tips, recipes, suggestions and warnings to help with preventing or controlling lymphedema Introduction and Treatments for Lymphedema http://www.cancersupportivecare.com/lymph.html -A normal lymphatic system consists of blind-end vessels which collect the fluid that bathes and nourish the tissues. They help to destroy bacteria, cancerous cells or other wastes that make their way into this lymph fluid Lower Body Lymphedema http://www.cancersupportivecare.com/lowerlymph.html - lymphedema of the lower extremities can be a debilitating condition with several cancers. Prostate, lung, liver, lymphomas, and abdominal cancers can cause swelling of the legs. The swelling can come from any compression or surgical removal of the lymph nodes in the lower body. It can also come secondarily to production of fluid into the abdomen (ascites) which spreads into the leg Living with Lymphedema http://www.cancersupportivecare.com/lymphlive.html

8. Lymphedema lymphedema. National lymphedema Network. 2211 Post St., Suite 404. San Francisco, CA 94115. Phone (800) 5413259 or (415) 921-2911. Contact Saskia Thiadens, RN. Fax (415) 921-4284. To locate a genetic counselor or geneticist in your area http://www.kumc.edu/gec/support/lymphede.html

Lymphedema National Lymphedema Network 2211 Post St., Suite 404 San Francisco, CA 94115 Phone: (800) 541-3259 or (415) 921-2911 Contact: Saskia Thiadens, RN Fax: (415) 921-4284 To locate a genetic counselor or geneticist in your area: Professional Genetics Societies Genetic clinics, centers, departments Genetic Societies Clinical Resources ... Search Genetics Education Center Debra Collins, M.S. CGC , Genetic Counselor, dcollins@kumc.edu This site subscribes to the principles of the HONcode (Health on the Net, Code of Conduct for Medical and Health Web Sites) of the Health On the Net Foundation

9. PinkRibbon.com Lymphedema lymphedema. Have you noticed women with an oversized arm? Or perhaps you have noticed someone wearing what looks like an Ace bandage from their hand to their shoulder. That person is most likely http://www.pinkribbon.com/lymph.htm

LYMPHEDEMA Have you noticed women with an oversized arm? Or perhaps you have noticed someone wearing what looks like an Ace bandage from their hand to their shoulder. That person is most likely suffering from lymphedema, a severely underaddressed issue relevant to women's health. It is an "orphan disease" with no specialists. And the Ace bandage is not what it appears. An Ace bandage is very elastic, while the lymphedema bandaging has very little stretch in it, but acts like a cast. When the muscle pushes, the bandage holds the skin in place, so that the tissue is squeezed and wrung out, like a sponge. Lymphedema is a chronic swelling, due to inadequate lymph drainage. You are at risk for developing lymphedema if you have had lymph nodes removed and/or radiation treatment following breast cancer. Lymphedema is not just an issue for women who have had breast cancer surgery, it is also seen in all kinds of pelvic tumors in both men and women. The number of men who suffer with lymphedema in the legs is high. It is also becoming apparent that plastic surgery patients, who have had liposuction, are at risk from the disturbance in the lymph tissue following the intrusion of the cannula. Poor circulation of lymph and localized fluid retention may be caused by a sedentary lifestyle or activities which involve prolonged periods of standing, causing swelling in the feet and ankles. In North America, the most serious forms of lymphedema most often result from lymph node removal or damage to the channels from radiation during cancer treatment. Primary lymphedema can be caused by a congenital deficiency of the lymphatics. Filariasis, a parasitic disease, is a major cause of lymphedema world-wide, but is rarely seen in temperate climates.

10. Kessler Lerner Lymphedema Services & Products Kessler Lerner lymphedema Services offers a stateof-the-art, interdisciplinary approach for the treatment of lymphedema. ABOUT lymphedema. http://www.kessler-rehab.com/new/LernerServices.asp

About Lymphedema Lymphedema Treatment Lymphedema Products Lerner Lymphedema Academy ... Locations Kessler Lerner Lymphedema Services offers a state-of-the-art, interdisciplinary approach for the treatment of lymphedema. Internationally recognized as one of the most effective and comprehensive programs of its kind, Kessler offers new hope for individuals with this condition. ABOUT LYMPHEDEMA A chronic and progressive condition, lymphedema can cause Discomfort Cosmetic deformity Repeated episodes of infection, particularly cellulitis and lymphangitis Malignant degeneration Thickening of the skin and/or hardening of the limb Leakage of lymph and massive swelling (elephantiasis) Papillomatous growths For a complete clinical discussion of lymphedema, click here Top LYMPHEDEMA TREATMENT Kessler Lerner Lymphedema Services provides the safe, non-invasive treatment that has been successful in programs across the country and around the world. Known as Complete Decongestive Physiotherapy (CDP), this treatment was pioneered in the United States by Dr. Robert Lerner, a leading specialist in this field.

11. Lymphedema Bandages Plus Rehab Products Draper s Fitness provides lymphedema bandages and supplies plus rehab and exercise products to both clinics and individuals. for. lymphedema Sports Medicine. http://home.earthlink.net/~drapersfitns/

Compression Bandaging for Draper's Fitness provides lymphedema bandages plus fitness and rehab equipment and supplies to both clinics and individuals. We carry many popular bandages and products. Among them are: ROSIDAL, DURELAST, MOLLELAST, TRANSELAST, KOMPREX, TUBULAR BANDAGES, CELLONA, ARTIFLEX, ROSIDAL SOFT, BANDAGE ROLLER LYMPHEDEMA BANDAGES COMPANY INFO ORDERING HOME ... EMAIL Related Lymphedema Sites TREATMENT CENTERS ORGANIZATIONS SUPPORT GROUPS TRAINING COURSES Attention customers and Health Care Professionals: Please bookmark our site and visit it often as we are continually expanding our site to show new lines of lymphedema, fitness, and rehab products for your convenience. LE FastCounter

12. Trinity Lymphedema Centers - Lymphatic, Swelling, Oxygen, Vessels, Bacteria Trinity lymphedema Treatment Centers focus on reducing the pain and impairment associated with lymphedema. Through physiotherapy. http://www.trinitylc.com/

LYMPHEDEMA CAN HAPPEN TO ANYONE AT ANYTIME AT ANY AGE Trinity Lymphedema Centers focus on reducing the pain and impairment associated with lymphedema. Through Trinity's complete decongestive physiotherapy, swelling and infectious complications can be minimized. Lymphedema is an accumulation of lymphatic fluid in the interstitial tissue, most often in the arm(s) and leg(s). Left untreated, this stagnant, protein-rich fluid causes swelling, reduced oxygen flow, delayed wound healing and increased risk of infection. Lymphedema can develop when lymph nodes or vessels are missing or damaged due to surgery, radiation, or trauma. Using Manual Lymphatic Drainage (MLD), the therapists at Trinity are able to restore the oxygen transport system in the lymphatic vessels by re-directing the direction of the fluid and reduce the tissue swelling which results in pain and discomfort. Compression bandaging and custom-fitted compression garments help to prevent the limb from refilling with lymphatic fluid and thus maintain lymphedema reduction. We invite you to learn more about our personalized treatment programs. Trinity Lymphedema Centers offer an on-line chat forum that is monitored by a licensed registered nurse. One of our therapists will be glad to offer helpful suggestions and answer questions or concerns you may have about this condition.

13. "The Lymphedema Center, One Of The Largest Treatment Centers For Lymphedema In T Center based in Brookfields, Wisconsin. http://www.execpc.com/~hrrs

A division of HEALTH REACH REHABILITATION SERVICES, INC LOCATIONS OF OUR SITES HOW CAN WE HELP? TREATMENT WHAT IS LYMPHEDEMA? ABOUT THE LYMPHEDEMA CENTER The Lymphedema Center was established to provide effective and compassionate treatment for people affected by lymphedema and chronic edema. Our holistic approach focuses not only on reducing your pain and swelling but also on restoring function in your daily life. Ultimately, we teach you to independently manage your condition. We are one of the largest lymphedema treatment facilities in the United States, dedicated to the prevention, treatment and management of lymphedema. The size and focus of our organization allows us to provide specialized therapy and help you meet your scheduling needs. The Lymphedema Center has achieved an outstanding reputation and is continually raising the standard of exellence in this field. Where is this comprehensive treatment approach available?

14. NLN: Lymphedema: A Brief Overview The National lymphedema Network (NLN) is an internationally recognized nonprofit organization founded in 1988 by Saskia R.J. Thiadens, R.N. to provide education and guidance to lymphedema What http://www.lymphnet.org/whatis.html

Become an NLN Member What Is Lymphedema? Resource Guide Sponsorship Information ... Contact Us Lymphedema: A Brief Overview What Is Lymphedema? Lymphedema is an accumulation of lymphatic fluid in the interstitial tissue that causes swelling, most often in the arm(s) and/or leg(s), and occasionally in other parts of the body. Lymphedema can develop when lymphatic vessels are missing or impaired (primary), or when lymph vessels are damaged or lymph nodes removed (secondary). When the impairment becomes so great that the lymphatic fluid exceeds the lymphatic transport capacity, an abnormal amount of protein-rich fluid collects in the tissues of the affected area. Left untreated, this stagnant, protein-rich fluid not only causes tissue channels to increase in size and number, but also reduces oxygen availability in the transport system, interferes with wound healing, and provides a culture medium for bacteria that can result in lymphangitis (infection). Lymphedema should not be confused with edema resulting from venous insufficiency, which is not lymph-edema. However, untreated venous insufficiency can progress into a combined venous/lymphatic disorder which is treated in the same way as lymphedema. What Causes Lymphedema?

15. 18 STEPS TO PREVENTING LYMPHEDEMA - Circle Of Hope Lymphedema Foundation The National lymphedema Network s 18 Steps to Prevention for both upper and lower limbs has been widely disseminated in an attempt to inform those at risk and http://www.lymphedemacircleofhope.org/prevention.htm

COHLF Jewelry About Circle of Hope Jeanne Tassis, Founder What is Lymphedema? ... Home The National Lymphedema Network's 18 Steps to Prevention for both upper and lower limbs has been widely disseminated in an attempt to inform those at risk and their health care providers as to the activities or events which have been identified by experienced MD lymphologists as potential triggers for the onset or exacerbation of lymphedema. Observance of the 18 Steps is a matter for the at-risk patient to weigh seriously and to decide. Tragically, lymphedema is a serious quality-of-life issue for many thousands of people who were uninformed as to its prevention and treatment. The 18 Steps are positive steps for improvement in the life-styles of those afflicted with this disease. FOR LOWER EXTREMITIES WHO IS AT RISK? At risk is anyone who has had gynecological, melanoma, prostate or kidney cancer in combination with inguinal node dissection and, often, radiation therapy. Lymphedema can occur immediately postoperatively, within a few months, a couple of years, or 20 years or more after cancer therapy. With proper education and care, lymphedema can be avoided or, if it develops, kept under control. The following instructions should be reviewed carefully pre-operatively and discussed with your physician or therapist.

16. West Virginia Lymphedema Network The West Virginia lymphedema Network is a volunteer support group in West Virginia. The mission is educate and increase awareness of lymphedema treatment, discuss medical research, and insurance issues. http://www.wvlymph.org

@import "/css/main.css"; The West Virginia Lymphedema Network's web site design is only visible in browsers that support Web standards , but its content is accessible to any browser or Internet device. Upgrading to a browser that supports Web standards is quite easy and will make all your Web surfing more enjoyable. West Virginia Lymphedema Network The West Virginia Lymphedema Network WVLN ) is a volunteer organization based in Morgantown, WV. The support group meets quarterly on the first Thursday of February, May, August, and November. Lymphedema is a chronic condition where body tissue swells (usually an arm or leg), due to lymph node removal or damage. Left untreated, the area will swell, infection can occur and wounds may have difficulty healing. It is common among post-mastectomy patients and other cancer survivors who have had lymph nodes removed or radiation therapy. This includes persons previously treated for breast, gynecological, melanoma, prostate or kidney cancer. WVLN is the first and only volunteer lymphedema support group in West Virginia. The mission of the WVLN is to network, educate, and increase awareness of lymphedema treatment among patients and medical professionals in the state. Our vision is quality medical care for every West Virginia lymphedema patient. Together we can make a difference.

17. Peninsula Medical, Inc. - "The ReidSleeve People" Effective treatment for lymphedema with the ReidSleeve Precise TapeMeasure Information lymphedema Data. F.A.Q./Forum lymphedema is a condition that afflicts more than 250 000 people in the United States http://www.lymphedema.com/

QuickLink Menu Main Page -[Products] ReidSleeve Classic OptiFlow RM OptiFlow EC OptiFlow SC OptiFlow Packs The Contour The ContourPlus The Opera TheCinch Precise Gauge Indigo Precise Gauge LE Alertband VHS Video Precise TapeMeasure [Information] Lymphedema Data F.A.Q./Forum Need A Referral? Insurance Billing Fitting Clinics Alterations Professional Cleaning Resizing Links About Us Contact Us Have A Question? -[Clinical]- Dr. Reid's Corner Clinical/Case Studies Online Surveys [Community] eNews Online LE Chronicles LE Message Board -[Online Services]- Distributor's Corner EdemaCalc Click this banner to enter Peninsula Medical Supply!: Discounted Juzo products now available online! Welcome to Peninsula Medical, Inc. What is Lymphedema? more.. Lymphedema is a condition that afflicts more than 250,000 people in the United States. Breast cancer patients generally have either mastectomy or lumpectomy with radiation, and between 12 and 35% of patients develop clinically significant lymphedema. eNews: March 2004 more.. Products: OptiFlow RM more..

18. Canadian Lymphedema Foundation Home Charitable organization raising money for research and education into conditions affecting the lymphatic system. http://www.lymphedema.ca/

Home About News Links Welcome Registered Charity # Last Updated Click Here to see the latest news! Click Here to get information about the Foundation! Click Here to go to our links page 414 CLIFFE AVENUE S.W. CALGARY, AB CANADA ©2003 Canadian Lymphedema Foundation mailto:webmaster@www.lymphedema.ca"

19. Lymphedema Zone lymphedema Zone Information on lymphedema certification and supplies online. lymphedema Certificationlymphedema Courseslymphedema Managementlymphedema Supplieslymphedema Therapylymphedema Traininglymphedema Treatmentslymphedema http://www.lymphedemazone.com/

@import "style.css"; Wednesday, June 2nd, 2004 Bookmark This Page Email This Page Lymphedema Zone Vodder Certification ... Site Map Lymphedema Zone by Paige-Leigh Zazzali Click Here For Our Recommended Lymphedema Training Center and Supplies Lymphedema occurs when the lymph nodes are not working correctly, or are missing. Lymph nodes are responsible for ridding the body fluids of toxins and proteins. When the lymph nodes are missing, or not working correctly, lymph fluid builds up in an area of the body, blocking the normal blood flow. This causes swelling and discomfort in the patient. Lymphedema is a disease that affects 250 million people around the world, yet most people don't know what it is or how it develops. Lymphedema affects small children, adolescents and adults. Primary lymphedema develops with unknown causes. Secondary lymphedema develops after a patient has undergone surgery or radiation treatment, usually when the lymph nodes have been removed. There are many symptoms for lymphedema. Most noticeably is the swelling of one specific body part. Although lymphedema usually affects arms and legs, it is not uncommon for lymphedema to develop in the abdomen, torso, head or neck. Patients will notice clothes or jewelry fitting a little too tight in one area. The sooner you notice symptoms and go to the doctor, the better the prescribed treatment will work. The doctor will first prescribe antibiotics if you are in the early stages of lymphedema. If you are in advanced stages, the doctor will fit you for compression garments and most likely arrange manual lymph drainage as part of your therapy.

20. American Lymphedema Institute American lymphedema Institute. TwentyFour Ways to Protect Yourself. Please system. Copyright, 1997 by American lymphedema Institute. http://alumni.imsa.edu/~bug/alih.html

American Lymphedema Institute Twenty-Four Ways to Protect Yourself Please Note: These guidelines are provided for informational and educational purposes only. Please discuss all treatments with your doctor. Mission Statement The purpose of the American Lymphedema Institute is to promote public awareness of lymphedema and its treatment, and to foster education and research about lymphedema and the lymphatic system. Permission granted to share, copy and distribute these guidelines, free of charge, to all interested parties for informational and educational purposes. They are not for sale or resale. All other rights reserved. Page One Page Two Page Three Page Four Please direct webpage questions and comments to Bryan Gran / bryangran@hotmail.com We apologize, but we are unable to answer any medical questions by e-mail.

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