101. Julia's Journey With Spina Bifida Support and information for families who have children or loved ones with the disabling birth defect spina bifida and hydrocephalus. http://www.juliasjourney.com/

to Julia's Journey "The real voyage of discovery consists not in seeking new landscapes, but in having new eyes." M. Proust Throughout you will read stories and information that will hopefully help out and give you some expectations of what's ahead. It will also provide support for new, seasoned parents and loved ones. It will also touch briefly on the scientific aspects of Spina Bifida and Hydrocephalus. However, my main purpose is to share what my family and I felt when we first found out about our daughter and how we continue to feel. I hope you find it comforting, encouraging, informing and strengthing. Additionally and most importantly, I hope this site will make you feel like you're not alone. Remember nothing is written in stone here. Feel WHAT you WANT to feel WHEN you are ready and not a second sooner. If you are just finding out, it's a tough time right now, but in time, your child will show you that gorgeous rainbow of spectacular discoveries. Mine did and she still is. Finally, please

102. HealthlinkUSA Hydrocephalus Links Kanoodle.com. Try searching for hydrocephalus at ExactSeek.com. Click here for page 1 of hydrocephalus information from the HealthlinkUSA directory. http://www.healthlinkusa.com/Hydrocephalus.htm

103. Hydrocephalus; Treatment, Prevention, Cure hydrocephalusSearch information from many of the best hydrocephalus health sites. Quickly find information treatments, prevention, support and more. http://www.healthlinkusa.com/content/155.html

Latest Health News Find Drug Information Health Calculators All Words Any Words A B C D ... Z Sunday, January 4, 2004 Alternative therapy struggles to bridge East-West divide Click here to read more Doctors are not following guidelines recommending flu and pneumonia vaccinations for hospitalized adults, leaving millions of elderly patients vulnerable to potentially deadly ailment Click here to read more A helping hand for uninsured; Agencies find ways to provide health care for area children Click here to read more The government has approved the first generic version of the acne drug, Accutane Click here to read more Gates to give India $100m for AIDS; Microsoft CEO begins controversy-laced trip to fight virus Click here to read more Allergies and Asthma Alternative Medicine Arthritis and Your Health ... Women's Health Wednesday June 02, 2004 Spina Bifida: Spina Bifida is a rare birth disorder, affecting approximately 1 in 12-1400 live births. Click here to learn more Craniosynostosis: Sagittal Synostosis...males are affected about three times as often as females. Click here to learn more Spinal Cord Injury: Acts of violence have now overtaken falls as the second most common source of spinal cord injury.

104. Hydrocephalus - Wikipedia, The Free Encyclopedia Endoscopic Third Ventriculostomy for Obstructive hydrocephalusUniversity of Wisconsin Department of Neurological Surgery. Endoscopic Third Ventriculostomy for Obstructive hydrocephalus. What is Obstructive hydrocephalus? http://en.wikipedia.org/wiki/Hydrocephalus

Hydrocephalus From Wikipedia, the free encyclopedia. Hydrocephalus ('water on the brain', in Greek) is the abnormal accumulation of cerebrospinal fluid in the ventricles of the brain . This usually leads to raised intracranial pressure Table of contents 1 Causes 1.1 Communicating hydrocephalus 1.2 Non-communicating hydrocephalus 1.3 Congenital hydrocephalus ... edit Causes Hydrocephalus can be broadly classified as being caused by disturbance to normal production, flow or absorption of cerebrospinal fluid. The most common cause of hydrocephalus is disruption to cerebrospinal fluid circulation, which can be secondary to tumor hemorrhage infection or congenital malfomations. It can also be caused by overproduction of cerebrospinal fluid. Hydrocephalus exists in two forms: communicating non-communicating And can also be either: congenital acquired edit Communicating hydrocephalus Communicating hydrocephalus otherwise known as "non-obstructive hydrocephalus" is caused by inadequate absorption of cerebrospinal fluid when the ventrical pathways are not obstructed. edit Non-communicating hydrocephalus Non-communicating hydrocephalus, or "obstructive hydrocephalus", is caused by a blockage in the ventrical pathways through which the cerebrospinal fluid flows.

105. Hydrocephalus - Introduction To Hydrocephalus Presented By Insitute For Neurolog Information and advice about hydrocephalus, treatment and shunts. Includes a section about DandyWalker malformation. http://www.nyneurosurgery.org/hydrointro.htm

Prior to the advent of computerized axial tomography (CAT scans), the prognosis for children with hydrocephalus was generally poor. It was believed that an abbreviated life span would be plagued by numerous shunt revisions and associated complications. There was little optimism concerning physical and intellectual well-being over the course of a lifetime; patients, families and physicians were exasperated by the many problems associated with the equipment available to manage the condition. The CAT scan has changed this situation enormously. Most patients and families can now look forward to the likelihood of normal longevity with little or no intellectual or physical impairment. To assure this, however, the neurosurgeon must be highly experienced in treating hydrocephalus and must keep continually informed of advances in the understanding the condition and its treatment. The following discussion will center on innovations in the treatment of hydrocephalus, and the problems that must be considered by the treating physicians, families, and the community.

106. Hydrocephalus What is hydrocephalus? With hydrocephalus there is an abnormal build head) and toy breeds. How is hydrocephalus inherited? The mode of http://www.upei.ca/~cidd/Diseases/nervous system disorders/hydrocephalus.htm

What is hydrocephalus? With hydrocephalus there is an abnormal build-up of cerebrospinal fluid (CSF) in cavities ( the ventricles) in the brain. The resulting increased pressure on the brain causes the clinical signs that occur with this condition. Hydrocephalus can be primary (congenital ) - the animal is born with the condition, or secondary - the condition is acquired later in life due to some disease process that blocks normal drainage of the CSF. The primary form, discussed here, is seen most often in brachycephalic (dogs with a shortened head) and toy breeds. How is hydrocephalus inherited? The mode of inheritance is unknown, but there is a predisposition to this condition in the breeds listed below. What breeds are affected by hydrocephalus Toy breeds - Cairn terrier, chihuahua, Maltese, Manchester terrier, pomeranian, toy poodle, Yorkshire terrier - and brachycephalic breeds - Boston terrier, English bulldog, Lhasa apso, Pekingese, Shih tzu For many breeds and many disorders, the studies to determine the mode of inheritance or the frequency in the breed have not been carried out, or are inconclusive. We have listed breeds for which there is a consensus among those investigating in this field and among veterinary practitioners, that the condition is significant in this breed. What does hydrocephalus Puppies with severe hydrocephalus often die at a very early age due to pressure from the increased fluid in the brain. In other less severely affected pups, the signs gradually become apparent over the first few months of life, and in some mild cases the condition is only diagnosed later in life.

107. Maternal Hydrocephalus Page Maternal hydrocephalus information, support group and research program. http://members.aol.com/HydroWoman/index.html

Shunts and Pregnancy Nancy Bradley Hydrowoman@aol.com Please note that this study is for shunted mothers with hydrocephalus that have given birth, and not about mothers that have given birth to children with Hydrocephalus. Debbi Fields HydroBrat@earthlink.net or Nancy Bradley (see above) Who am I ? I am a thirty-six year old woman with hydrocephalus who has been shunted since birth. I am a graduate of the University of Southern California with a B.S. in education and the mother of two healthy children. In November of 1986, I became pregnant with my first child. The pregnancy was normal with no complications but the delivery turned out to be a very difficult vaginal delivery due to the size and position (posteriorhead down, face up) of the baby. Six weeks after his birth, I had a sudden onset of shunt malfunction symptoms that lead to an emergency revision. My husband and I were convinced that the difficult delivery and the shunt malfunction six weeks later were somehow related. Because I found very little information on pregnancy and maternal hydrocephalus in the years immediately following my son’s birth, I started the database in 1994 to see how other shunted mothers had fared during their pregnancies, deliveries, and postpartum periods. I have two healthy children, ages 11 and 3 and a rocket scientist husband.

108. Cerebrospinal Fluid (CSF) And Hydrocephalus III. CEREBROSPINAL FLUID (CSF) AND hydrocephalus (The ventricular system dilates when CSF flow is obstructed. B. NonCommunicating hydrocephalus. http://kobiljak.msu.edu/CAI/Pathology/Intra_F/Intra_3.html

III. CEREBROSPINAL FLUID (CSF) AND HYDROCEPHALUS (The ventricular system dilates when CSF flow is obstructed. Therapy, regardless of etiology and pathogenesis, involves shunting the CSF and re-establishing its flow.) This coronal section enlarged lateral ventricles in a case of hydrocephalus A. CSF Circulation Pathway: lateral ventricles, foramen of Monro, third ventricle, aqueduct of Sylvius, fourth ventricle, foramina of Magendie and Luschka; subarachnoid space over brain and spinal cord; reabsorption into venous sinus blood via arachnoid granulations. B. Non-Communicating Hydrocephalus Obstruction to CSF flow within ventricular system or at outlet foramina . Sites of narrowing are commonly obstructed, e.g. aqueductal stenosis. C. Communicating Hydrocephalus Obstruction to CSF flow in the subarachnoid space after exit from fourth ventricle. Causes include leptomeningitis (fibrosis seals subarachnoid space and obstructs CSF flow) and subarachnoid hemorrhage. Previous Section Course Index Section Index

109. AWMF Online - Leitlinie Neurochirurgie: Hydrocephalus-Nachsorge Translate this page Leitlinien der Dt. Ges. f. Neurochirurgie. AWMF-Leitlinien-Register, Nr. 008/003, Entwicklungsstufe 1, nicht aktualisiert. hydrocephalus-Nachsorge. http://www.uni-duesseldorf.de/WWW/AWMF/ll/nchir003.htm

AWMF online A rbeitsgemeinschaft der W issenschaftlichen M edizinischen F achgesellschaften Leitlinien der Dt. Ges. f. Neurochirurgie AWMF-Leitlinien-Register Nr. 008/003 Entwicklungsstufe: nicht aktualisiert Hydrocephalus-Nachsorge Index Leitlinien Neurochirurgie Liste der Leitlinien AWMF-Leitseite Stand der letzten Aktualisierung: Januar 1999 AWMF online HTML-Code optimiert:

110. The Role Of Neurotrophins.....in Infantile Hydrocephalus. Infantile hydrocephalus studies, theories and findings toward developing potential therapeutic strategies. http://www.ufbi.ufl.edu/~coleman/project.html

BACK TO CV Abstract The pathophysiology of infantile hydrocephalus is poorly understood and is complicated by underlying brain developmental processes. Early-onset hydrocephalus in the H-Tx rat provides an opportunity to investigate this. Neurotrophic factors play an important role in promotion of neuronal connectivity and survival and become upregulated in a variety of brain insults. Using the chick ganglion bioassay for protein levels and in situ hybridization for mRNA expression and localization, this project will study changes in forebrain neurotrophic factors at different stages of ventricular dilatation and the effect of shunt treatment on these changes. The results will enable potential therapeutic strategies to be designed for testing in animal models and eventually in humans. Hypothesis The long-term goal of this research project is to provide a scientific basis for potential therapeutic administration of appropriate neurotrophins to treat hydrocephalus. The hypotheses to be tested are that: 1. Neurotrophin levels and neurotrophin gene expression are altered by the trauma of infantile hydrocephalus. 2. Shunt treatment will affect these changes, depending on the age at the time of surgery. Through the identification and localization of specific neurotrophins affected by hydrocephalus and by shunt-treatment, a rationale will be formulated to test possible therapeutic strategies which will reduce the neurological consequences of hydrocephalus. Background and Significance

111. AWMF Online - Leitlinie Neurochirurgie: Hydrocephalus / Hydrozephalus Translate this page hydrocephalus / Hydrozephalus. Klinischer Algorithmus. Querverweise sind rot markiert und können hier aufgerufen werden hydrocephalus-Nachsorge. http://www.uni-duesseldorf.de/WWW/AWMF/ll/nchir002.htm

AWMF online A rbeitsgemeinschaft der W issenschaftlichen M edizinischen F achgesellschaften Leitlinien der Dt. Ges. f. Neurochirurgie AWMF-Leitlinien-Register Nr. 008/002 Entwicklungsstufe: nicht aktualisiert Hydrocephalus / Hydrozephalus Klinischer Algorithmus Querverweise sind rot Hydrocephalus-Nachsorge Index Leitlinien Neurochirurgie Liste der Leitlinien AWMF-Leitseite Stand der letzten Aktualisierung: Januar 1999 AWMF online HTML-Code optimiert:

112. Third Ventriculostomy Introduction and information on a intracranial CSF diversion procedure and the outlook of treating hydrocephalus without shunting. http://www.geocities.com/Heartland/Valley/1591/thirdven.html

113. InteliHealth: Hydrocephalus and crossreferenced in an AZ format. hydrocephalus. Health A to Z, Reviewed by the Faculty of Harvard Medical School hydrocephalus http://www.intelihealth.com/IH/ihtIH/WSIHW000/9339/9607.html

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114. Maternal Hydrocephalus Page For more general information on hydrocephalus check out these internet locations HA fact sheet hydrocephalus Association Homepage http//neurosurgery.mgh http://members.aol.com/Hydrowoman/

Shunts and Pregnancy Nancy Bradley Hydrowoman@aol.com Please note that this study is for shunted mothers with hydrocephalus that have given birth, and not about mothers that have given birth to children with Hydrocephalus. Debbi Fields HydroBrat@earthlink.net or Nancy Bradley (see above) Who am I ? I am a thirty-six year old woman with hydrocephalus who has been shunted since birth. I am a graduate of the University of Southern California with a B.S. in education and the mother of two healthy children. In November of 1986, I became pregnant with my first child. The pregnancy was normal with no complications but the delivery turned out to be a very difficult vaginal delivery due to the size and position (posteriorhead down, face up) of the baby. Six weeks after his birth, I had a sudden onset of shunt malfunction symptoms that lead to an emergency revision. My husband and I were convinced that the difficult delivery and the shunt malfunction six weeks later were somehow related. Because I found very little information on pregnancy and maternal hydrocephalus in the years immediately following my son’s birth, I started the database in 1994 to see how other shunted mothers had fared during their pregnancies, deliveries, and postpartum periods. I have two healthy children, ages 11 and 3 and a rocket scientist husband.

115. Adult Hydrocephalus Discussion Board Adult hydrocephalus Discussion Board. A place where adults suffering with hydrocephalus can discuss topics related to this condition. http://www.network54.com/Forum/goto?forumid=8255

116. Welcome To NHFonline NHF goals are to facilitate a network for those affected by hydrocephalus, increase public awareness, and give moral support. Along with advocating research for the cause and prevention of this disorder. http://nhfonline.org

UPDATE: The new guestbook has been completed. It is equipped with a page viewer and an auto-mailer that mails each entry to Debbi. We lost the actual content of the guestbook from the server switch, so we're going to have to start from scratch. =( Expect work on the website to steadily continue. Right now, we're waiting for the board to approve a lot of our content, but as soon as I get the complete set, I'll put it up. Thank you for your patience! Our new shunt survey is ready! You can print and take the survey by clicking here elcome to NHFonline. The website for the National Hydrocephalus Foundation. We have created this resource to help both visitors and members. Please feel free to explore our site. Email us with any questions you might have and don't forget to sign and view our guestbook. The guestbook is back up! Sign Book View Book Click here to view Guestbook Archive visitors to this site. To contact us: Phone: 562-402-3523 or Phone: 1-888-857-3434 Fax: 562-924-6666 Email: debbifields@nhfonline.org 12413 Centralia Lakewood, CA 90715-1623

117. CENTRAL NERVOUS SYSTEM ABNORMALITIES Sonographically, the hydrocephalus may be obscured on the side of the head closest to the ultrasound transducer and more obvious in the hemisphere distant from http://www.cpdx.com/cpdx/abcns.htm

Anormalidades del Sistema Nervioso Central La hidrocefalia se define normalmente como la presencia en exceso de líquido céfalo raquídeo (LCR) dentro del cráneo. Sin embargo, en ocasiones a esta situación se le da el nombre de ventrículos dilatados, y el empleo del término hidrocefalia se restringe para referise a cuando aumenta la presión intracraneal. La hidrocefalia congénita se produce en el rango de 0.3 a 0.8 por cada mil nacidos, y generalmente se debe a una obstrucción de la vía del LCR. Cuando se identifica la hidrocefalia fetal es conveniente examinar al niño en busca de otras malformaciones, puesto que aproximadamente del 70 al 85% de los fetos con hidrocefalia presentan alguna otra anormalidad. Entre el 50 al 60% de estos fetos presentan una anormalidad del SNC asociada. Mediante ultrasonido, Approximately 50 to 60 percent of these fetuses have an associated CNS abnormality, with myelomeningocele composing 30 percent of this group. Sonographically, the hydrocephalus may be obscured on the side of the head closest to the ultrasound transducer and more obvious in the hemisphere distant from the transducer. This is known as an artifact. The prognosis of a fetus with hydrocephaly depends primarily on the presence and severity of associated abnormalities. Morbidity increases with the presence of abnormalities outside the CNS, and neurological prognosis depends on the presence of associated CNS abnormalities. Extensive counseling and amniocentesis are recommended in all cases of fetal hydrocephaly.

118. HyFI - Madi's Fund For Hydrocephalus Reasearch Fund is used to promote hydrocephalus research and provide some assistance for families who have children hospitalized at Fletcher Allen Health Care. Rutland, VT http://www.hydrocephalus.org/madi.htm

The Hydrocephalus Foundation, Inc. 'Reaching Out, Reaching Up' Madi's Fund For Hydrocephalus Research In March 1998, Madi's Fund For Hydrocephalus Research was established by Debra and Jeff Jaurigue at Fletcher Allen Health Care (FAHC) in Burlington, Vermont. Mr. & Mrs. Jaurigue’s daughter, Madison Claire, was diagnosed "in-utero" with hydrocephalus. As a result of their battle with hydrocephalus, The remaining funds are contributed to the Patient Family Assistance Fund that is managed by the FAHC and distributed by Social Services to families in need of assistance. This money is earmarked for pediatric aid. Madi's Fund 3 Emeritus Street Rutland, Vermont 05701 The Madi Fund -email The Hydrocephalus Foundation, Inc.

119. Shunt, Hydrocephalus All Ages, Congenital Hydrocephalus shunt, hydrocephalus all ages The Cleveland Clinic is the leader in child hydrocephalus, congenital hydrocephalus, shunt and more. http://www.clevelandclinic.org/neuroscience/treat/pediatrics/hydrocephalus.htm

Contact Us Appointments What We Treat About Us ... Related Links Information for Health Care Professionals Continuing Medical Education Pathways Newsletter Neuro-Pediatrics and Congenital Disorders Hydrocephalus Click image to enlarge. Clinical research programs reinforce the clinical program in hydrocephalus and experimental laboratory based programs focussed on the pathophysology of hydrocephalus. Educational programs are aimed at public education, family support groups, and professionals such as neurosurgical colleagues learning endoscopic techniques or management using variable resistance of shunt systems, and regional pediatricians and neurologist in the treatment of pediatric and adult hydrocephalus. Cleveland Clinic Home Privacy Statement Site Map

120. Society For Research Into Hydrocephalus Society advancing education and research studies. Worldwide membership information, meeting schedule and highlights. Durham, England http://www.demon.co.uk/charities/srhsb/

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