1. ASBAH - Association For Spina Bifida And Hydrocephalus the ASBAH logo linking to the home page. Association for Spina Bifida and hydrocephalus. hydrocephalus Action Working in Partnership with Codman. Find out more. http://www.asbah.org/

Association for Spina Bifida and Hydrocephalus Hydrocephalus Action: Working in Partnership with Codman. Find out more PEOPLE - Proud of David Link magazine gave David Proud a video camera, this is his story of living with spina bifida. Find out more RESEARCH - Current thinking ASBAH funds specialised medical and educational research aimed at either improving the treatment of people with spina bifida and/or hydrocephalus or enhancing their quality of life. Find out more Danny Mills Golf Classic Danny Mills Golf Classic - took place on Sunday, 16th May 2004 with special celebrity guests Find out more IFHSB Conference The fifteenth international conference on Spina Bifida and Hydrocephalus will be held in Oslo, Norway 2nd-4th September 2004. Find out more Reg charity no 249338 About ASBAH Spina Bifida Hydrocephalus Fundraising Local Associations Library Information Sheets Link Magazine Useful Links ASBAH promotes services throughout England, Wales and Northern Ireland. We hope you find the information contained on this site of value to you. If you would like to make a donation ( click here Contact Us Site Map Site Search Site search Quick links Normal Pressure Hydrocephalus Independent Living Pack Education Health ... Transition Contact Details Association for Spina Bifida and Hydrocephalus 42 Park Road Peterborough England Tel: 01733 555988 9.00 am to 5.00 pm

2. Hydrocephalus Association The hydrocephalus Association was founded in 1983, incorporated as a nonprofit 501(c)(3) in 1986, is governed by a Board of Directors, and employs an Executive http://www.hydroassoc.org/

The Hydrocephalus Association The Hydrocephalus Association was founded in 1983, incorporated as a nonprofit 501(c)(3) in 1986, is governed by a Board of Directors, and employs an Executive Director, Assistant Director, Outreach Director, and Director of NPH and Older Adult Services. Twenty prominent medical professionals actively serve on our Medical Advisory Board Our mission is to provide support, education and advocacy for individuals, families and professionals. Our goal is to ensure that families and individuals dealing with the complex issues of hydrocephalus receive: Personal support Comprehensive educational materials Ongoing quality health care We provide a wealth of services and resources to our members and non-members alike. We hope you'll explore all the information our website has to offer. To receive a free packet of information about hydrocephalus, click here. For personal, one-to-one support, call our office directly: 415-732-7040 or toll-free 888-598-3789. Our mailing address is: 870 Market Street, Suite 705, San Francisco, CA 94102. 2004 Conference Program Available Now Click here to download or get more info.

3. HyFI Home Home Page for the hydrocephalus Foundation Welcome The hydrocephalus Foundation, Inc. ( HyFI) is a registered, 501(c)(3 opportunities to patients and families affected by hydrocephalus. The Foundation also promotes http://www.hydrocephalus.org/

Welcome... The Hydrocephalus Foundation, Inc. (HyFI) is a registered, 501(c)(3) nonprofit organization dedicated to providing support, educational resources and networking opportunities to patients and families affected by hydrocephalus. The Foundation also promotes related research and facilitates the training of healthcare professionals to improve patient outcome. What You'll Find Here About Us Learn more about our organization's history; who our founder is, and who's on our board of directors. Facts Want to know more about hydrocephalus and how it is treated, check out our facts page. News Find out what's happening with new shunt technologies and treatments, as well as news from local and national support groups. Events Interested in attending a support group meeting or conference, or taking part in a fund-raising event, go here for more information. Resources Request our informational brochure, and see what other resources are available on hydrocephalus. Links Go to our Links page to find more information about hydrocephalus. MEETING ANNOUNCEMENT Hydrocephalus Support Group Wednesday, May 7, 2003

4. Www.patientcenters.com -- Welcome To Patient-Centered Guides Hydrocephalus Cente Patient centered guide to hydrocephalus information, resources, and reading material. http://www.patientcenters.com/hydrocephalus/

Catalog Patient Centers Home This Center has been created especially for those with hydrocephalus and their families. This Month's Articles Archived Articles Treating Hydrocephalus: Part 1. This first of a two-part series looks at the primary means of treating hydrocephalus: the installation of shunt systems. There are articles on how they work where they can be placed in the body, and how shunts are designed and tested . There is also an article on non-surgical treatments of hydrocephalus. Coping with Hydrocephalus. This collection of articles looks at ways that families can cope with specific aspects of a diagnosis of hydrocephalus: Neurosurgery for infants and children Starting a local support group , and Insurance claims and denials Getting the Diagnosis: Part 3. The last of a three-part series focuses on the affect on families of a diagnosis of hydrocephalus. In particular, its effect on siblings and on marriage, and how to inform your child of the diagnosis. Getting the Diagnosis: Part 2. When the diagnosis is made, there is a wide array of possible responses: relief, shock, denial, sadness, anger, fear, and hope. This second of a three-part series focuses on emotional responses to the diagnosis. Getting the Diagnosis: Part 1.

5. MedlinePlus: Hydrocephalus hydrocephalus National Institutes of Health. hydrocephalus ( National Institute of Neurological Disorders and Also available in Spanish. hydrocephalus ( National Institute of Neurological Disorders http://www.nlm.nih.gov/medlineplus/hydrocephalus.html

@import url(http://www.nlm.nih.gov/medlineplus/images/advanced.css); Skip navigation Other health topics: A B C D ... List of All Topics Hydrocephalus Contents of this page: From the NIH General/Overviews Anatomy/Physiology Coping ... Children Search MEDLINE for recent research articles on Hydrocephalus You may also be interested in these MedlinePlus related pages: Head and Brain Malformations Brain and Nervous System Genetics/Birth Defects From the National Institutes of Health Hydrocephalus (National Institute of Neurological Disorders and Stroke) Also available in: Spanish Hydrocephalus (National Institute of Neurological Disorders and Stroke) - Short Summary General/Overviews Hydrocephalus (Mayo Foundation for Medical Education and Research) Anatomy/Physiology Ventricles of the Brain (Hydrocephalus Foundation, Inc.) Clinical Trials ClinicalTrials.gov: Hydrocephalus (National Institutes of Health) Coping Talking Hydrocephalus (Hydrocephalus Association) Diagnosis/Symptoms Computed Tomography (CT)-Head (American College of Radiology, Radiological Society of North America) MR Imaging (MRI)-Head (American College of Radiology, Radiological Society of North America)

6. Pediatric Neurosurgery - Hydrocephalus This site is dedicated to providing families with information regarding various aspects of the field of pediatric neurosurgery. For those that have tried to search for up to date information on http://cpmcnet.columbia.edu/dept/nsg/PNS/Hydrocephalus.html

Hydrocephalus Hydrocephalus is that state in which something has occurred to prevent this orderly procession of events. If this occurs, there is a relative build up of spinal fluid in the brain which can lead to injury or even death if not treated. It is very important to realize that hydrocephalus is the result of some event on the nervous system and that a child's prognosis is not so much based on the hydrocephalus as the cause of the hydrocephalus. While many cases have no clear cause, the following have been associated with the development of hydrocephalus; bleeding, infection, trauma, tumors, vascular problems, and structural problems. Some occur during pregnancy and others after birth. In addition, a small number can be transmitted genetically. It is important to realize that while hydrocephalus is very treatable, the underlying cause may not be or may have caused irreversible damage to the brain. It is important for the doctors taking care of a child with hydrocephalus to determine if the problem is ongoing or if it has resolved but left enlarged but stable ventricles. This can sometimes be difficult to tell and often the decision will be based on many factors including symptoms, eye exams, changes in level of activity or school performance. In addition to this often the child will have repeated (serial) radiographic exams to look for changes in the ventricles.

7. Steve's Hydrocephalus Page Steve's hydrocephalus Page. This page has been subject to neglect for several years. That period is at an end. Please be patient while I drag out my rusty html coding skills to revise and expand this http://web.syr.edu/~sndrake/hyd1.htm

8. NINDS Hydrocephalus Information Page hydrocephalus information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS). What is hydrocephalus? Is there any treatment What is hydrocephalus? hydrocephalus is a condition in which the primary characteristic is excessive accumulation of http://www.ninds.nih.gov/health_and_medical/disorders/hydrocephalus.htm

National Institute of Neurological Disorders and Stroke Accessible version Science for the Brain The nation's leading supporter of biomedical research on disorders of the brain and nervous system Browse all disorders Browse all health organizations More about Hydrocephalus Studies with patients Research literature Press releases Search NINDS... (help) Contact us My privacy NINDS is part of the National Institutes of Health NINDS Hydrocephalus Information Page Reviewed 07-01-2001 Get Web page suited for printing Email this to a friend or colleague Table of Contents (click to jump to sections) What is Hydrocephalus? Is there any treatment? What is the prognosis? What research is being done? ... Additional resources from MEDLINEplus What is Hydrocephalus? Is there any treatment? Hydrocephalus is most often treated with the surgical placement of a shunt system. This system diverts the flow of CSF from a site within the central nervous system to another area of the body where it can be absorbed as part of the circulatory process. A shunt is a flexible but study silastic tube. A limited number of patients can be treated with an alternative procedure called third ventriculostomy. In this procedure, a small hole is made in the floor of the third ventricle, allowing the CSF to bypass the obstruction and flow toward the site of resorption around the surface of the brain. What is the prognosis?

9. Hydrocephalus Fact Sheet hydrocephalus fact sheet produced by the National Institute of Neurological Disorders and Stroke (NINDS) The term hydrocephalus is derived from the Greek words "hydro" meaning water and "cephalus" meaning head of fluid in the brain. Although hydrocephalus was once known as "water on http://www.ninds.nih.gov/health_and_medical/pubs/hydrocephalus_fs.htm

National Institute of Neurological Disorders and Stroke Accessible version Science for the Brain The nation's leading supporter of biomedical research on disorders of the brain and nervous system Browse all disorders Browse all health organizations More about a disorder Studies with patients Research literature Press releases Search NINDS... (help) Contact us My privacy NINDS is part of the National Institutes of Health Hydrocephalus Fact Sheet Get Web page suited for printing Email this to a friend or colleague Request free mailed brochure Table of Contents What is hydrocephalus? What are the different types of hydrocephalus? Who gets this disorder? What causes hydrocephalus? ... Where can I find more information? What is hydrocephalus? The term hydrocephalus is derived from the Greek words "hydro" meaning water and "cephalus" meaning head. As its name implies, it is a condition in which the primary characteristic is excessive accumulation of fluid in the brain. Although hydrocephalus was once known as "water on the brain," the "water" is actually cerebrospinal fluid (CSF) - a clear fluid surrounding the brain and spinal cord. The excessive accumulation of CSF results in an abnormal dilation of the spaces in the brain called ventricles. This dilation causes potentially harmful pressure on the tissues of the brain. The ventricular system is made up of four ventricles connected by narrow pathways. Normally, CSF flows through the ventricles, exits into cisterns (closed spaces that serve as reservoirs) at the base of the brain, bathes the surfaces of the brain and spinal cord, and then is absorbed into the bloodstream.

10. International Federation For Hydrocephalus And Spina Bifida Its mission is to improve the quality of life of people with hydrocephalus and Spina Bifida throughout the world. To decrease the prevalence of hydrocephalus and/or Spina Bifida by primary prevention. http://www.ifglobal.org/

11. Arbeitsgemeinschaft Spina Bifida Und Hydrocephalus E.V. (ASbH) Verband der Behindertenselbsthilfe f¼r Betreuung, Beratung, Information, Erfahrungsaustausch, Kontakte, Tagungen, Seminare, Freizeitangebote f¼r Betroffene mit Spina bifida und/oder hydrocephalus und Angeh¶rige. http://www.asbh.de/

Arbeitsgemeinschaft Spina bifida und Hydrocephalus e.V. (ASbH) Start Impressum Termine Selbsthilfe ... Diskussion

12. Spina Bifida And Hydrocephalus Association Of Nova Scotia Offers information, lists of members only resources, special events, and links to related sites. http://www.chebucto.ns.ca/Health/SBANS/

13. Arbeitsgemeinschaft Spina Bifida Und Hydrocephalus E.V. (ASbH) Informationen ¼ber den Verein und seine Aktivit¤ten. Neben der Beschreibung der Krankheitsbilder finden sich wissenschaftliche Beitr¤ge, Antworten auf Sozialrechtsfragen, Hinweise auf die regionalen Selbsthilfegruppen und die M¶glichkeit zum Austausch im Forum und im Chat. http://www.paritaet.org/asbh/

Arbeitsgemeinschaft Spina bifida und Hydrocephalus e.V. (ASbH) Start Impressum Termine Selbsthilfe ... Diskussion

14. HYDROCEPHALUS hydrocephalus. hydrocephalus is excessive accumulation of cerebrospinal fluid within the cranium. If persistent and progressive ,it http://www.health.adelaide.edu.au/paed-neuro/hydro.html

HYDROCEPHALUS Hydrocephalus is excessive accumulation of cerebrospinal fluid within the cranium. If persistent and progressive ,it is treated by shunt insertion. Recently other methods of treatment were introduced and these will be discussed in the appropriate section. About 30 years ago before shunts were available children with hydrocephalus, either died or left with severe disability. With the introduction of shunts procedures, hydrocephalic child can lead a reasonable normal life and normal life expectancy. Hydrocephalus is described either as obstructive or noncommunicating and non-obstructive or communicating. This relates to the level of obstruction and whether CSF exits from the foramina in the roof of the 4th ventricle or is fully trapped within the ventricular system. Hydrocephalus is also classified as acquired when it is caused by acquired causes or congenital. In congenital hydrocephalus it is caused by either excessive production of CSF, blockage to the CSF drainage or reduced excretion into the venous channels. The CSF is clear colourless fluid which has minimal content of protein. It is contained in the ventricular system as well as the subarachnoid spaces surrounding the brain and the spinal cord. The CSF is in hydrostatic equilibrium with the interstitial tissue of the brain and can permeate across the brain tissue in both directions. It is expected that the brain tissue and the CSF would have the same hydrostatic pressure in any part of the brain. As much as the brain tissue is protected by a blood brain barrier from changes outside the central nervous system, the CSF has the same protection and does not change biochemically as a result of changes in the systemic circulation. These barriers are at the level of the endothelium of brain capillaries, at the level of the epithelium of the choroid plexuses and the outer layers of arachnoid matter. These barriers protect the brain and the subarachnoid spaces from damaging influences outside the brain.

15. SBHAO - The Spina Bifida Hydrocephalus Association Of Ontario Spina Bifida hydrocephalus Association of Ontario. To improve the quality of life of all individuals with spina bifida and/or hydrocephalus, through research http://www.sbhao.on.ca/

Home FAQs Contact Us "To improve the quality of life of all individuals with spina bifida and/or hydrocephalus, through research, awareness, care and advocacy." Home FAQs Contact Us Charitable Registration #10799 9310 RR0001

16. Treatment Of Hydrocephalus: Shunts Brain tumor treatment information new treatments, virtual brain tumor trial, brain tumor links, important papers Treatment of hydrocephalus Shunts. http://virtualtrials.com/shunts.cfm

Home Find A Treatment Learn About Brain Tumor Virtual Trial ... About Us Clinical Trials and Noteworthy Treatments for Brain Tumors: Treatment of Hydrocephalus: Shunts Sponsored By Please Click On The Above Banner For More Details [Click HERE to print this page!] Childhood Hydrocephalus: Clinical Features, Treatment, and the Slit-Ventricle Syndrome Arno H. Fried, M.D., Mel H. Epstein, M.D. Abstract The use of shunting for hydrocephalus has a long history of improvements made through basic science, as well as clinical innovations and biomedical products. Shunting has dramatically changed the outlook of children with hydrocephalus, with many of them having normal life expectancies and attaining normal intelligence. The use of shunts, however, has created many unique problems of shunt dependence with frequent shunt revisions being the rule for most hydrocephalic children. Shunt problems assume a major amount of all neurosurgeon’s efforts. In addition, the slit ventricle syndrome has posed many new questions regarding what the post-shunting ventricular size should be, and what problems are created by having a slit-like ventricular system. This article reviews current concepts of childhood hydrocephalus with respect to the various hydrocephalic syndromes, and provides detailed descriptions of problems unique to various shunting systems. In addition, the slit ventricle syndrome is distinguished from asymptomatic post shunted slit-ventricles. The various forms of the slit-ventricle syndrome are described , and proposed guidelines for classifying, working up, and treating the slit ventricle syndromes are provided.

17. Hydrocephalus Association What Is hydrocephalus? hydrocephalus comes from the Greek hydro means water, cephalus means head. hydrocephalus is an abnormal http://www.hydroassoc.org/information/information.htm

What Is Hydrocephalus? Hydrocephalus comes from the Greek: "hydro" means water, "cephalus" means head. Hydrocephalus is an abnormal accumulation of cerebrospinal fluid (CSF) within cavities called ventricles inside the brain. CSF is produced in the ventricles, circulates through the ventricular system and is absorbed into the bloodstream. CSF is in constant circulation and has many important functions. It surrounds the brain and spinal cord and acts as a protective cushion against injury. CSF contains nutrients and proteins necessary for the nourishment and normal function of the brain. It also carries waste products away from surrounding tissues. Hydrocephalus occurs when there is an imbalance between the amount of CSF that is produced and the rate at which it is absorbed. As the CSF builds up, it causes the ventricles to enlarge and the pressure inside the head to increase. Hydrocephalus that is congenital (present at birth) is thought to be caused by a complex interaction of environmental and perhaps genetic factors. Aqueductal stenosis and spina bifida are two examples. Acquired hydrocephalus may result from intraventricular hemorrhage, meningitis, head trauma, tumors and cysts. Hydrocephalus is believed to occur in about 2 out of 1,000 births. The incidences of adult-onset hydrocephalus and acquired hydrocephalus are not known. How Is Hydrocephalus Treated?

18. H-Tx Rat - Hydrocephalus Research University of Florida Brain Institute official page informs about hydrocephalus research, particularly that occurring in the fetus and at birth. Hazel C. Jones, Ph.D. http://www.ufbi.ufl.edu/~joneslab/

19. Julia's Journey With Spina Bifida Support and information written by a parent of a child with spina bifida and hydrocephalus, for other families who have children with these birth defects. http://www.geocities.com/Heartland/Fields/6980/

to Julia's Journey "The real voyage of discovery consists not in seeking new landscapes, but in having new eyes." M. Proust Throughout you will read stories and information that will hopefully help out and give you some expectations of what's ahead. It will also provide support for new, seasoned parents and loved ones. It will also touch briefly on the scientific aspects of Spina Bifida and Hydrocephalus. However, my main purpose is to share what my family and I felt when we first found out about our daughter and how we continue to feel. I hope you find it comforting, encouraging, informing and strengthing. Additionally and most importantly, I hope this site will make you feel like you're not alone. Remember nothing is written in stone here. Feel WHAT you WANT to feel WHEN you are ready and not a second sooner. If you are just finding out, it's a tough time right now, but in time, your child will show you that gorgeous rainbow of spectacular discoveries. Mine did and she still is. Finally, please

20. Facts About Hydrocephalus What is hydrocephalus? hydrocephalus is the abnormal buildup of cerebrospinal fluid in the ventricles of the brain. Types of hydrocephalus. http://www.hydrocephalus.org/facts/

What is Hydrocephalus? Hydrocephalus is the abnormal buildup of cerebrospinal fluid in the ventricles of the brain. In most instances, hydrocephalus is a lifelong condition in that the patient is treated rather than "cured." Presently, there is no known way to prevent or cure hydrocephalus and shunts are the primary method to treat hydrocephalus. The one-way calibrated shunt system was introduced in 1952. Treatment by shunting the cerebrospinal fluid (CSF) to another area of the body, generally allows patients to lead full and active lives. There are different kinds and models of shunting systems. Although, shunts were a major medical breakthrough, there are problems that still remain unsolved in the treatment of hydrocephalus, such as shunt obstruction and infection. An overwhelming majority of newborns with hydrocephalus will have a normal life span and normal or even superior intelligence. In addition, they will enjoy normal activities and be useful members of society. However, there are complications associated with hydrocephalus with learning disabilities being one of the most prevalent. In most cases, hydrocephalus is not hereditary.

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