1. Welcome To The Official Home Page Of The Hughes Syndrome Foundation Welcome to the official home page of the hughes syndrome Foundation.hughes syndrome (The Antiphospholipid Syndrome APS), A common http://www.hughes-syndrome.org/

Welcome to the official home page of the Hughes Syndrome Foundation. HUGHES SYNDROME (The Antiphospholipid Syndrome: APS A common disease Many clinical features Often undiagnosed Potentially treatable Dr Hughes receives top honour from Barcelona University. For further details click here HUGHES SYNDROME or by doctors as: The Antiphospholipid Syndrome Young Stroke... Miscarriage... Thrombosis e.g. DVT... Infertility... To learn more, please read our website. Thank you for visiting. stats top Designed by Cascade Creative

2. Young-Hughes Syndrome Information Diseases Database Younghughes syndrome, Disease Database Information Young-hughes syndrome Definition(s) via UMLS ..Code translations and terms via UMLS http://www.diseasesdatabase.com/ddb32456.htm

Diseases Database Index Sponsors Contact ... Previous Page Young-Hughes syndrome Information Search Young-Hughes syndrome may cause or feature (Follow link for list) belong(s) to the category of (Follow link for list) Young-Hughes syndrome: Definition(s) via UMLS Code translations and terms via UMLS Young-Hughes syndrome: specific sites Send Young-Hughes syndrome to medical search engines (JavaScript enabled browsers only) If your browser has no JavaScript you can still use these: Search using Internet medical databases Search using Internet search engines (non-specialist) We subscribe to the HONcode principles of the Health On the Net Foundation i-medicine.info - the evidence based medicine, informatics and audit portal Valid XHTML 1.0 Served 2004-06-02 22:30:54 Metadata Updated 2004-05-22

3. HUGHES SYNDROME: Contact A Family - For Families With Disabled Children: Informa hughes syndrome. home. more about us. in your area. conditions information. index of conditions. about the directory. internet medical info. useful addresses. patterns of inheritance. dictionaries http://www.cafamily.org.uk/Direct/h50.html

printer friendly HUGHES SYNDROME home more about us in your area conditions information ... how you can help search this site Did you find this page helpful? yes no Hughes syndrome: Antiphospholipid syndrome Antiphospholipid syndrome (APS), also known as Hughes syndrome, was first described by Dr Graham Hughes in 1983. The features of the clinical picture may include migraine, memory loss, vein and artery thrombosis, multiple sclerosis and recurrent miscarriage. Because one of the main features includes thrombosis (blood clotting), the name 'sticky blood syndrome' has often been used as a shorthand to describe this condition. APS affects individuals from all ethnic backgrounds. Although individuals of all ages may be affected, most show features of APS before 45 years. The increased tendency to form blood clots in individuals with APS may have a devastating effect on any part of the body including the legs, arms, chest, head and a number of 'internal' organs such as the kidney and liver. Commonly, blood clots develop in the veins of the legs (deep vein thrombosis) causing pain and swelling, usually starting in the calf. Clotting in the leg may happen once or several times. Clots may also occur in the lung (pulmonary embolus). Clotting in arteries can result in strokes or heart attacks.

4. Hughes Syndrome Foundation: Site Map fundraise. What is hughes syndrome? History Dr Hughes discovered HS in 1983,find out more History. conferences. Support hughes syndrome Foundation. http://www.hughes-syndrome.org/map.htm

HSF Site Map Home Page (or click on logo in top left hand corner) About Us Background - information about the charity Who we are - see our patrons and trustees What we do - our job is to research support educate and fundraise What is Hughes Syndrome? History - Dr Hughes discovered HS in 1983, find out more History Primary or Secondary HS? How common is the syndrome? What are the related diseases? ... Symptoms - what are the symptoms of Hughes Syndrome? Diagnosis - find out more about diagnosis Do you think you have Hughes Syndrome? Blood tests explained Treatment - is the disease treatable? Research - current research projects being undertaken by the Lupus unit Prognosis - what is the outlook for patients with Hughes Syndrome?

5. Lupus-support.org.uk Maintained by consultant rheumatologist and featuring information and support for patients and those with variant and other autoimmune connective tissues diseases, such as hughes syndrome. http://www.lupus-support.org.uk/

The website for lupus-support.org.uk can be found by clicking here . lupus-support.org.uk is registered through Easily.co.uk - get web site hosting or domain name registration here

6. Hughes Syndrome What is hughes syndrome? What causes hughes syndrome? hughes syndrome is caused bythe presence of antibodies in the blood, called antiphospholipid antibodies. http://www.homehealth-uk.com/medical/hughessyndrome.htm

Printing Help What is Hughes syndrome? Hughes syndrome, also known as antiphospholipid syndrome or 'sticky blood' is a disorder characterized by blood clotting, both in the arteries and veins. What causes Hughes Syndrome? Hughes syndrome is caused by the presence of antibodies in the blood, called antiphospholipid antibodies. These antibodies make the immune system work too hard, increasing blood clotting. Blood clotting can affect anyone of any age and can happen suddenly e.g. leg thrombosis or over a number of years. For more information on deep vein thrombosis (DVT) click here What are the symptoms of Hughes Syndrome? In some people the only symptom of Hughes syndrome is recurrent miscarriage (often late in pregnancy). This is due to small clots affecting the placenta , preventing vital nutrients getting to the growing baby. However, other symptoms could include any of the following: Headaches ( migraine type).

7. MSRC : Hughes Syndrome You are here Home About MS hughes syndrome. hughes syndrome, Print thispage. hughes syndrome, The blood disease that mimics MS hughes syndrome http://www.msrc.co.uk/index.cfm?fuseaction=show&pageid=828

8. Young-Hughes Syndrome Syndromes. View the Full Record. Syndrome, Younghughes syndrome. Synonym,mental retardation-short stature-obesity-hypogonadism syndrome. http://www.nlm.nih.gov/mesh/jablonski/syndromes/syndrome720.html

Multiple Congenital Anomaly/Mental Retardation (MCA/MR) Syndromes View the Full Record Syndrome Young-Hughes syndrome Synonym mental retardation-short stature-obesity-hypogonadism syndrome Summary Mental retardation with short stature, obesity, hypogonadism, and other disorders. Major Features Eyes: Nystagmus and strabismus. Skin: Ichthyosis, atopic dermatitis, photodermatitis. Nervous system: Convulsions. Urogenital system: Hypogonadism. Growth and development: Growth and mental retardation. Behavior and performance: Myopia. Happy disposition. Heredity: The syndrome is familial and is transmitted as an X-linked trait. Additional features: Obesity. View the Full Record U.S. National Library of Medicine , 8600 Rockville Pike, Bethesda, MD 20894 National Institutes of Health Privacy Accessibility Last updated: 27 October 1999

9. WWW: Hughes Syndrome All about hughes syndrome www from BigTome.com Featured Web Pages. Antiphospholipid Syndrome - www.heartcenteronline.com. American Heart community, animations and more. Hughes Electronic Stock Report - www.morningstar.com http://www.bigtome.com/big/page/Hughes_Syndrome

WWW: Featured Web Pages Hughes Syndrome Information - www.heartcenteronline.com Answers to your questions about Hughes syndrome and more. Information you can trust: patient guides, the latest news, tips, tools, animations and newsletters. Hughes Electronic Stock Report - www.morningstar.com Get quotes, ratings, analyst opinions, returns, performance charts, valuations, company financials, owners, news, and more. All from an independent resource you can trust - Morningstar. Hughes - $10.89 - www.overstock.com Make Overstock.com your one-stop-shop for all your media needs. Find the latest book, movie, music and gaming titles at deep discounts. Flat-rate shipping. Overstock - your online outlet. Categories (1-3 of 3) Health: Conditions_and_Diseases: Immune_Disorders: Auto-Immune: Antiphospholipid_Syndrome Reference: Education: K_through_12: Home_Schooling: Homeschool_Families Health: Conditions_and_Diseases: Musculoskeletal_Disorders: Connective_Tissue: Lupus: Personal_Pages Web Pages The Hughes Syndrome Foundation Information about antiphospholipid syndrome, the symptoms, diagnosing and treatment. Also information about the foundation itself. - http://www.hughes-syndrome.org/

10. Search Jablonski's Syndromes Database More results from www.nlm.nih.gov Living with hughes syndromeLiving with hughes syndrome. By Triona Holden a Sheldon Press book.Click here for price or to buy Living with hughes syndrome. http://www.nlm.nih.gov/cgi/jablonski/syndrome_cgi?term=Young-Hughes syndrome&fie

11. BBC - A-Z Illnesses And Conditions - Topics Listed Alphabetically A feature on hughes syndrome, causes, symptoms and treatment for thiscondition. similar brain symptoms. Features of hughes syndrome. http://www.bbc.co.uk/health/features/hugues.shtml

@import url('/includes/tbenh.css') ; Home TV Radio Talk ... A-Z Index WEDNESDAY 2nd June 2004 Text only BBC Homepage Health Home Lifestyle Home ... Conditions QUICK GUIDE A-Z Children's Ailments IN-DEPTH Addictions Allergies Arthritis Asthma ... Help Like this page? Send it to a friend! A-Z Illnesses and Conditions - listed alphabetically Scroll down to find the condition you're looking for. If you can't find it, try typing in your keyword in the Search box at the top right corner of this page. There is a separate A-Z listing for children's ailments. A - Z A B C D ... P Q R S T U ... Y Z A Accidents (children) Achondroplasia Acne Acne (children) ... P Q R S T U ... Y Z B Babies not thriving Back curves Back pain Bedwetting ... P Q R S T U ... Y Z C Calcium Cancer (children) Carbon monoxide poisoning Cardiac Syndrome X ... P Q R S T U ... Y Z D Deafness Dementia Dental Health Depression ... P Q R S T U ... Y Z E Ear problems Ear problems (children) Eating Disorders Ectropion ... P Q R S T U ... Y Z F Fabry's Disease Fainting (children) Febrile convulsions (children) Feeding (children) ... P Q R S T U ... Y Z G Gallstones Ganglion Gangrene Gastroenteritis (children) ... P Q R S T U ... Y Z H Haemochromatosis Haemophilia Haemorrhoids (Piles) Hair loss (in women) ... P Q R S T U ... Y Z I Irritable Bowel Syndrome Impetigo (children) Impotence Indigestion ... P Q R S T U ... Y Z J Jaundice (children) A B C ... P Q R S T U ... Y Z K Kabuki Syndrome Kawasaki Klinefelter Kugelberg-Welander Disease ... P Q R S T U ... Y Z L Legionnaires Leigh's Disease/Syndrome Leukaemia Lichen planus ... P Q R S T U ... Y Z M Malaria Mania Manic Depression Marfan Syndrome ... P Q R S T U ... Y Z N Nappy rash (children) Narcolepsy Nephritis Neurofibromatosis ... P Q

12. Hughes Syndrome And Chronic Fatigue Syndrome hughes syndrome and Chronic Fatigue Syndrome. ©. MMII, Ken Lassesen, M.S. In 1999, I had sudden onset CFS while I was employed by Microsoft. to be a variant of hughes syndrome (formerly called http://www.lassesen.com/cfids/familyhistory.htm

Hughes Syndrome and Chronic Fatigue Syndrome © MMII, Ken Lassesen, M.S. In 1999, I had sudden onset CFS while I was employed by Microsoft. Microsoft offers self-insured medical insurance that is extremely liberal for all practical purposes there was no deductible or restrictions on any tests that my MD wish to try – of course, living in the US meant a wealth of private facilities and laboratories. As a result of this blessing, not only did I go into full remission from CFS but my wife and two daughters had an accurate diagnosis of their odd symptoms and rational treatment started. Our class of CFS appears to be a variant of Hughes Syndrome (formerly called Antiphospholipid antibody syndrome (APS)). The first paper on this variant was published in 1999 by David Berg and others [i] . Add to this blessing, our existing family practice MD believed that CFS was very real and that she had no treatment for it – but she was willing to listen, learn and cooperate if I could present hard, peer-review research. I was her first CFS patient that she had seen 2 weeks before onset and 2 weeks after onset – very dramatically illustrating the changes. I was also her first patient to become symptom free. Hughes Syndrome Hughes syndrome is caused by antibodies that result in deficiency of certain enzymes, such as

13. Hughes Syndrome. Topics Health conditions Heart and circulation system Circulation problems hughes syndrome. Need help? Thursday May 13. hughes syndrome. http://www.betterhealth.vic.gov.au/bhcv2/bhcarticles.nsf/pages/Hughes_syndrome?o

14. The Hughes Syndrome Foundation - Patient UK The hughes syndrome Foundation Patient UK. A directory of UK thatprovide patient information. The hughes syndrome Foundation. http://www.patient.co.uk/showdoc.asp?doc=27000047

15. Hughes Syndrome - Patient UK hughes syndrome Patient UK. A directory of UK health, disease, illness and relatedmedical websites that provide patient information. hughes syndrome. http://www.patient.co.uk/hughes.htm

Hughes Syndrome UK sources of information and / or support Hughes Syndrome Foundation The Hughes' Syndrome Foundation is the charity that was set up with the following aims: to offer understanding and support to sufferers of Hughes Syndrome, to offer information and education on Hughes Syndrome and to support research into the condition. Related pages Leaflets Deep Vein Thrombosis (DVT) Headache - Medication Induced Headaches - A Summary Headaches - Tension Type Self help groups Hughes Syndrome Foundation Top of Page Home Information Leaflets ... Find me a... Find information about Phone a GP Your Surgery Medical Insurance Related: Leaflets Self help groups Glossaries Print this page Patient UK is a CHIQ partner How can I Judge the quality of health information? Feedback Add link Advertise About Us ... EMIS and Patient Information Publications 1997-2004

16. Hughes Syndrome And Chronic Fatigue Syndrome hughes syndrome and Chronic Fatigue Syndrome. © MMII, Ken Lassesen, MS. Iwas also her first patient to become symptom free. hughes syndrome. http://lassesen.com/cfids/familyhistory.htm

Hughes Syndrome and Chronic Fatigue Syndrome © MMII, Ken Lassesen, M.S. In 1999, I had sudden onset CFS while I was employed by Microsoft. Microsoft offers self-insured medical insurance that is extremely liberal for all practical purposes there was no deductible or restrictions on any tests that my MD wish to try – of course, living in the US meant a wealth of private facilities and laboratories. As a result of this blessing, not only did I go into full remission from CFS but my wife and two daughters had an accurate diagnosis of their odd symptoms and rational treatment started. Our class of CFS appears to be a variant of Hughes Syndrome (formerly called Antiphospholipid antibody syndrome (APS)). The first paper on this variant was published in 1999 by David Berg and others [i] . Add to this blessing, our existing family practice MD believed that CFS was very real and that she had no treatment for it – but she was willing to listen, learn and cooperate if I could present hard, peer-review research. I was her first CFS patient that she had seen 2 weeks before onset and 2 weeks after onset – very dramatically illustrating the changes. I was also her first patient to become symptom free. Hughes Syndrome Hughes syndrome is caused by antibodies that result in deficiency of certain enzymes, such as

17. Hughes Syndrome Testing hughes syndrome Testing Home Up hughes syndrome Testing Pathogens Other Tests. Alltests must be negative (there are many variants of hughes syndrome). http://lassesen.com/cfids/isac.htm

Hughes Syndrome Testing Home Up Hughes Syndrome Testing Pathogens Other Tests The following tests are used to exclude Hughes Syndrome (and variants) as being the cause of CFS. All tests must be negative (there are many variants of Hughes Syndrome). Immune System Activation of Coagulation Panel For detection of "sticky blood" there are several tests. The usual US-CFS test is the ISAC Panel from Hemex laboratories (http://www.hemex.com) Anticardiolipin Antibodies This is a cheap test, but it requires two positive tests 6 months apart for a positive result. . It is suggested as a possible pre-ISAC panel test to justify the ISAC expense. (Note: a negative results does not imply a negative ISAC panel) Lupus Anticoagulant The name does not imply Lupus rather an antibody that is also seen with Lupus. Moderate number of positive results. Wasserman Reaction This is a very old syphilis test, a positive test does not imply syphilis, rather one form of Hughes Syndrome. Least amount of positive results. Experience APS-Hughes Search this site Verify ... Comments?

18. Springer Medical Books/Hughes Syndrome hughes syndrome Edited by MA Khamashta hughes syndrome is at the root of diverseconditions such as stroke, leg vein thrombosis and recurrent abortion. http://www.infotech.demon.co.uk/Books2.htm

Hughes Syndrome Edited by M. A. Khamashta In1983 Dr Graham Hughes (one of the editors) described a syndrome in which the blood has a tendency to clot - now often called "sticky blood syndrome" or Hughes Syndrome. Hughes Syndrome addresses the complete range of conditions produced by this common disorder which is also known as antiphospholipid Syndrome. Hughes Syndrome is at the root of diverse conditions such as stroke, leg vein thrombosis and recurrent abortion. It is easily prevented and treated using commonly available drugs including low-dose aspirin. This book fulfils the need for a cross-disciplinary clinical textbook and contains contributions from the leading international authorities. £60.00 September 2000 352 pages ISBN 1-85233-232-8. Publishers: http://www.springer.co.uk/ BACK

19. World Refining Association Designed by enovations.co.uk. hughes syndrome Foundation Dear Executive, HughesSyndrome (APS) is sometimes called sticky blood syndrome . http://www.theenergyexchange.co.uk/hsfwra.asp

KREMLIN PUTS OIL INVESTORS ON EGGSHELLS ARAMCO VOWS TO PROTECT STAFF AND PLANTS REGULATOR THREATENS GIANT BP-TNK FIELD OMAN INSURER WINS $12M REFINERY DEAL ... ENERGY CONSUMPTION IN MOROCCO UP Dear Executive, As President of The World Refining Association (WRA) and The Energy Exchange Ltd In 2002 I was unfortunately diagnosed with a disease called Antiphospholipid Syndrome (APS) , which has become to be known as Hughes Syndrome after the doctor who first discovered its properties - Dr Graham Hughes. As many of you will know I have not been as visible as I would have liked to have been at our events over the past 2 years and this has been due to the disease I have which has restricted my movements. I am pleased to report that my condition is stabilising and I hope to meet many of you at the various conferences we will be organising this year. Hughes Syndrome (APS) is sometimes called 'sticky blood syndrome'. This is because people with it have an increased tendency to form clots in blood vessels (also known as thromboses). Any blood vessel can be affected including the veins and the arteries.

20. World Refining Association hughes syndrome Foundation, hughes syndrome Foundation In 2004 we willbe supporting a charity called The hughes syndrome Foundation. http://www.theenergyexchange.co.uk/bookeventdocwra.asp?eve_id=45

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