21. The Canadian Hemochromatosis Society THE CANADIAN hemochromatosis SOCIETY. May 25th31st is Awareness Week. The Canadian hemochromatosis Society 272-7000 Minoru Blvd. Richmond, BC Canada V6Y 3Z5 http://www.cdnhemochromatosis.ca/main.htm

THE CANADIAN HEMOCHROMATOSIS SOCIETY May 25th-31st is Awareness Week. Canadian Blood Service operates regular clinics in many locations and encourages healthy, eligible people with HH to donate blood at their clinics. Please call 1-888-2-DONATE (1-888-236-6283) for clinic information and to book an appointment to donate. NEW!!! Check out our new Constitution and By-Laws as approved at the April 24, 2004 Annual General meeting home guest book download table the bronze killer new ... Donations The Bronze Killer The other side of eden Ironic Health CHS Video Newsletter Spring 2004 HEMOCHROMATOSIS: Contents. WHAT IS HEMOCHROMATOSIS? HOW COMMON IS IT? WHAT HAPPENS IF PEOPLE ARE NOT TREATED? WHAT ARE THE SYMPTOMS? ... References Support Group Notices Canadian Contacts List These volunteers have some experience with HHC and are available to support you and direct you to local resources and information "Please Click here." Information for Doctors Here, further to aid physicians in treating and diagnosing Hemochromatosis, you will find a document prepared by the "Guidelines and Protocols Advisory Committee" entitled, "Investigation and Management of Iron Overload" . The publication has been approved by the British Columbia Medical Association and adopted by the Medical Services Commission. It's Official Here is the official press release

22. Iron Disorders Institute | Home | The Definitive Source For Information On Hemoc Provides information about disorders of iron such as hemochromatosis, acquired iron overload , juvenile hemochromatosis , African siderosis , thalassemia , porphyria cutanea tarda , sideroblastic anemia, irondeficiency anemia and anemia of chronic disease. http://www.irondisorders.org/index.html

Iron Disorders Institute is a non-profit National Voluntary Health Agency that provides information about disorders of iron such as hemochromatosis acquired iron overload sickle-cell anemia, juvenile hemochromatosis African siderosis thalassemia porphyria cutanea tarda ... iron-deficiency anemia and anemia of chronic disease Information appearing on this website is reviewed by the Institute's Scientific Advisory Board . Prior to publication of web site pages, Patient or Physician Information Series literature, magazines, or books, these experts are consulted. No information appearing in Iron Disorders Institute publications, including this website, is intended to replace but rather to augment the relationship between patients and their physicians. Advertisement: Books about Iron: "Cooking with Less Iron" Forward by Dr. Richard Passwater. Introduction by Dr. Mark Princell. "Cooking with Less Iron" provides easy to prepare, old fashioned recipes and menus with tips on how to absorb less iron from the diet. Charts, food values, shopping list, menu planner and more! Excellent companion book to

23. Predictive Genetics And DNA Diagnostics - Home Offers home collection kits for a range of tests including angiotensinogen, Factor V Leiden, hereditary hemochromatosis, periodontal disease and prothrombin. http://www.pgd2.com/

We provide genetic testing to promote a longer, healthier life. Genetic testing will allow those who are concerned about predisposition and family history to take preventative steps early. Testing is available nationwide. Our first priority is to our patients. In carrying out our day-to day business we: Treat our patients with respect and fairness. Provide quality testing with one of the fastest turn around times in the industry. Offer comprehensive follow-up to our patients and their families. Want to learn more about DNA? DNA Mutations Inheritance Why should I get tested? Home ... Contact Us

24. MedlinePlus Medical Encyclopedia: Hemochromatosis hemochromatosis. hemochromatosis is a disorder that interferes with iron metabolism and results in excess iron deposits throughout the body. http://www.nlm.nih.gov/medlineplus/ency/article/000327.htm

@import url(http://www.nlm.nih.gov/medlineplus/images/advanced.css); Skip navigation Medical Encyclopedia Other encyclopedia topics: A-Ag Ah-Ap Aq-Az B-Bk ... Z Hemochromatosis Contents of this page: Illustrations Definition Causes, incidence, and risk factors Symptoms ... Prevention Illustrations Hepatomegaly Definition Return to top Hemochromatosis is a disorder that interferes with iron metabolism and results in excess iron deposits throughout the body. Causes, incidence, and risk factors Return to top Primary hemochromatosis is the most common genetic disorder in the US, affecting an estimated 1 of every 200-300 Americans. Similar symptoms may occur from the secondary form of hemochromatosis, which can be caused by other diseases such as thalassemia or sideroblastic anemia. Hemochromatosis may also be caused by having a large number of blood transfusions, particularly in patients who get them for inherited or pre-malignant anemias. Occasionally, it may be seen with hemolytic anemia, porphyria cutanea tarda, excessive oral iron ingestion, and chronic alcoholism. First, excess iron accumulates in the liver and causes

25. HEMOCHROMATOSIS: Different Complaints / Symptoms Symptoms of hemochromatosis. Iron overlaod in PCT. Joints and hemochromatosis. * BMJ (13 feb 1999) Haemochromatosis and exercise related joint pains http://hemochromatose.tripod.com/acompl.html

var cm_role = "live" var cm_host = "tripod.lycos.com" var cm_taxid = "/memberembedded" HEMOCHROMATOSIS: different complaints / symptoms Add LINK or report a dead LINK Magazine Articles Scientific ... SUBJECT Free PDF Powerpoint reader Symptoms of hemochromatosis Liver damage (cirrhosis/cancer) Cancer (other forms of cancer) Liver transplantation ... Secundary Hemochromatosis Symptoms of hemochromatosis Jan 1997: The relationship between iron overload, clinical symptoms, and age in 410 patients with genetic hemochromatosis xxx Article in PDF "Symptoms of Hemochromatosis" by the American Hemochromatosis Society Liver damage (cirrhosis/cancer) Special Considerations in Interpreting Liver Function Tests Percutaneous Liver Biopsy: A Safe Outpatient Procedure? (mar 2001) Noninvasive prediction of fibrosis/cirrosis Cirrhosis of the Liver ... Livercancer arising in the absence of cirrhosis in genetic haemochromatosis: three case reports and review of literature. Cancer (other forms, for livercancer see above ) For Bowel/Coloncancer click here Haemochromatosis and breast cancer: a rare cause of a rare disease? Increased cancer risk in a cohort of 230 patients with HH (full text) Liver transplantation December 2000: Increased hepatic iron and cirrhosis: No evidence for an adverse effect on patient outcome following liver transplantation xxx Article in PDF December 2000: Liver transplantation in patients with hepatic iron overload: Favorable or unfavorable outcome?

26. Redirect Page - Forging Effective Strategies To Combat Iron Deficiency The US Centers for Disease Control and Prevention provide reviewed information on hemochromatosis, including screening, information for patients, FAQ and resources. http://www.cdc.gov/nccdphp/dnpa/hemochromatosis/index.htm

The pages for Hemochromatosis have been moved. Please click here.

27. Hemochromatosis Education & Research UW hemochromatosis education and research site for patients and providers about HHC or iron overload disease including screening tests, genetics and research. http://www.uwgi.org/hemochromatosis/flash/default.htm

28. Your Genes, Your Health Multimedia guide where you can learn what it is, what causes it, what it is like to have it, and how it is inherited, diagnosed, and treated. http://www.ygyh.org/ygyh/mason/ygyh.html?syndrome=hc&section=whatisit&vi

29. Redirect Page - Forging Effective Strategies To Combat Iron Deficiency The pages for hemochromatosis have been moved. Please click here. http://www.cdc.gov/node.do/id/0900f3ec800598b6

The pages for Hemochromatosis have been moved. Please click here.

30. HuGE Review - HFE Gene And Hereditary Hemochromatosis HFE Gene and Hereditary hemochromatosis print version. by E. H. Hanson 1 , G. Imperatore 2 , W. Burke 3. March 12, 2001 (Updated April 06, 2004). http://www.cdc.gov/genomics/hugenet/reviews/HFE.htm

Your browser does not support script HuGE Review Home About HuGE What's New? Pub Lit Database ... CDC Genomics HFE Gene and Hereditary Hemochromatosis print version by E. H. Hanson , G. Imperatore , W. Burke March 12, 2001 (Updated April 06, 2004 Authors’ affiliations: United States Air Force School of Aerospace Medicine, Brooks Air Force Base, San Antonio, Texas Division of Diabetes Translation, Centers for Disease Control and Prevention, Atlanta, Georgia Departments of Medical History and Ethics and Medicine, University of Washington, Seattle, Washington Abbreviations: AF, attributable fraction; CI, confidence interval; HLA, human leukocyte antigen; HHC, hereditary hemochromatosis; OR, odds ratio; PCR, polymerase chain reaction; PPV, positive predictive value; TS, transferrin saturation; SF, serum ferritin Key Words epidemiology, genetics, hereditary hemochromatosis, hereditary haemochromatosis, HLA-H gene, HFE gene, iron overload Acknowledgement The authors thank Linda Bradley, Leslie O’Leary, Shelley Reyes, and Marta Gwinn for their assistance in completing this review. Address correspondence to: Eric H. Hanson MD, MPH

31. Iron Disorders Institute | Disorders | Juvenile Hemochromatosis | Introduction Disorders Juvenile hemochromatosis Introduction. Juvenile hemochromatosis nonHFE related iron overload in youths. Juvenile hemochromatosis http://www.irondisorders.org/disorders/jvh/

Disorders: J uvenile Hemochromatosis: Introduction -HFE related iron overload in youths Juvenile Hemochromatosis / Iron Overload... Newborn, infant, child, juvenile and adolescent represent different age groups. In this section newborn is defined as birth to six months of age, infant as 7-12 months, child one to five years of age, juvenile as 6 to 12 years of age; adolescent as one 13 to 17; young adult as one 18 to 30 years of age. Definition: Hemochromatosis is a genetic metabolic disorder where a person absorbs too much iron and can result in dangerously high accumulation of iron in vital organs such as liver, heart, joints and brain which is a condition of iron overload. When iron overload presents in someone younger than the age of thirty, it is called Juvenile hemochromatosis (JH). At risk: The gene responsible for juvenile hemochromatosis is located on chromosome one, where the HFE gene, which is associated with adult iron overload is located on chromosome six.

32. Iron Overload, Public Health And Genetics A supplement to the Annals of Internal Medicine with articles about hemochromatosis. http://www.acponline.org/journals/annals/01dec98/supptoc.htm

33. Iron Disorders Institute | Home | The Definitive Source For Information On Hemoc Nonprofit National Voluntary Health Agency that provides information about disorders of iron such as hemochromatosis. http://www.irondisorders.org/

Iron Disorders Institute is a non-profit National Voluntary Health Agency that provides information about disorders of iron such as hemochromatosis acquired iron overload sickle-cell anemia, juvenile hemochromatosis African siderosis thalassemia porphyria cutanea tarda ... iron-deficiency anemia and anemia of chronic disease Information appearing on this website is reviewed by the Institute's Scientific Advisory Board . Prior to publication of web site pages, Patient or Physician Information Series literature, magazines, or books, these experts are consulted. No information appearing in Iron Disorders Institute publications, including this website, is intended to replace but rather to augment the relationship between patients and their physicians. Advertisement: Books about Iron: "Cooking with Less Iron" Forward by Dr. Richard Passwater. Introduction by Dr. Mark Princell. "Cooking with Less Iron" provides easy to prepare, old fashioned recipes and menus with tips on how to absorb less iron from the diet. Charts, food values, shopping list, menu planner and more! Excellent companion book to

34. Hemochromatosis And Blood Banking In The U.S. Iron Overload Diseases Assn. Blood Banking and hemochromatosis in the US IOD is proud The blood banks in Sweden are even screening for hemochromatosis. List of US http://www.ironoverload.org/bloodbanks.htm

Blood Banking and Hemochromatosis in the U.S. IOD is proud to say that after years of working on the problem we have finally made a difference. Since April 1999 the Committee on Blood Safety and Availability has removed the necessity to label hemochromatosis blood for donor use. Now blood banks may apply for a variance from the FDA to use this blood without labeling. For years this blood could be used as donor blood but it had to be labeled that it came from a hemochromatosis patient - Code of Federal Regulation Title 21, 640.3 (d). This is still in place for all blood banks. IOD thinks that the blood banks are the best setting for therapeutic phlebotomies. Because they have the latest equipment and staffs well trained in the process. If they are using this as donor blood then there is no charge to the patient or insurance company. To qualify, this blood will have to meet all other criteria for safety. Most blood banks are throwing away the phlebotomized blood, even while they complain of severe shortages. This blood is not iron rich as is supposed. This blood, which is given more frequently, has longer lived cells and is excellent transfusion blood for those severe anemia patients who need it. The transfusions are of course themselves iron loading and used only for the most severe cases of anemia. So there is a great benefit to reducing the frequency of the transfusions. IOD issued a challenge to American blood banking to measure donor's iron as is done in Sweden. This challenge was issued June 2001 at a workshop sponsored by the National Institutes of Health in Bethesda, Maryland. Sweden also has used phlebotomies as donor blood since 1984. The blood banks in Sweden are even screening for hemochromatosis.

35. Iron Overload Disorder Support Forums Online: News Support group for those affected by hemochromatosis http://www.iodforum.net

Main Menu FAQ Calendar Home Links ... Hemochromatosis Facts Site Updates And News Welcome Username: Password: Remember me Signup Forgot password? Chatbox You must be logged in to post comments on this site - please either log in or if you are not registered click here to signup 15 May : 22:31 It can take quite a while, I wouldn't be too concerned. If not within the next few weeks, you may want to check into it. :) I would say that 6 weeks max in my opinion. 15 May : 16:57 I have been waiting for 3 weeks now for my genetic test results, how long is normal IronGoddess 09 May : 18:08 Thanx for the response ...I'm a bit concerned that the waiting list for an ultrasound here (in good old Saskatchewn, Canada) is 3 months long. How much do ultrasounds cost elsewhere (does anybody know?)? Aside from the iron storage and the B12 excess, my blood chemistry is "normal" (no suspected diabetes -I've got several symptoms: thirst, frequent urination, ice cold fingers and toes). Thanx again for sharing your knowledge / experience. 08 May : 21:06 IronGoddess, your doctor may be sending you to have the ultrasound to be sure that your liver is not damaged. I would not be too concerned over this. As far as low blood pressure, this can be triggered by HH. Also, you may want to have your blood sugar checked. If you have excessive thirst, that is one sign of diabetes, HOWEVER, I am not saying this is what it is, but it is something to have checked to be on the safe side.

36. Hospital Practice Hemochromatosis hemochromatosis A Simple Genetic Trait RICHARD D. PRESS Oregon Health Sciences University. The emerging goal is hemochromatosis prevention. http://www.hosppract.com/genetics/9908mmc.htm

37. Hemochromatosis Hereditary hemochromatosis, a condition in which excess (and ultimately toxic) levels of iron slowly accumulate in various organs, is one of the most common http://healthlink.mcw.edu/article/974757337.html

Search Articles: search tips Please Take the HealthLink Survey Email this article Print this article Find related articles: By topic: Arthritis Diabetes Cardiac/Heart Liver By keywords: phlebotomy iron loading iron overload Receive Health Link via email! Subscribe now >> Hemochromatosis Hemochromatosis is a condition in which the body accumulates excess amounts of iron. Serious and sometimes fatal health problems may result from the excess iron that accumulates in the body as a result of this genetic disorder. The excess iron slowly builds to toxic levels in tissues of major organs such as the liver, heart, brain, pancreas, lungs, and synovium (joints). These overburdened organs cease to function properly and eventually become diseased. Hereditary hemochromatosis (HHC) is one of the most common genetic diseases in humans, but it can be undiagnosed or misdiagnosed. Undiagnosed and untreated HHC can develop into diseases such as diabetes, heart trouble, arthritis, cirrhosis of the liver, neurological problems, depression, impotence, infertility, and liver cancer. Iron build up in those with HHC is slow, usually taking years to build to destructive levels. HHC/Iron overload generally manifests in a male's early thirties and is diagnosed in a male's mid to late fifties. For this reason HHC has acquired the mistaken identity of an older male's disease. HHC can be present in females, adolescents and possibly in children.

38. Iron Overload And Hemochromatosis Hereditary hemochromatosis is one of the most common genetic diseases in humans, but many people have never heard of it. Iron Overload and hemochromatosis. http://healthlink.mcw.edu/article/1025279068.html

Search Articles: search tips Please Take the HealthLink Survey Email this article Print this article Find related articles: By topic: Genetics Public Health By keywords: hemochromatosis Receive Health Link via email! Subscribe now >> Iron Overload and Hemochromatosis July 2002 is Hemochromatosis Screening Awareness Month. So what exactly does that mean? Hereditary hemochromatosis is one of the most common genetic diseases in humans, but many people have never heard of it. In the United States, as many as one million people have evidence of the disorder, and up to one in every ten people may carry the gene for it. In people who have hemochromatosis, the body accumulates excess amounts of iron. This can result in serious and sometimes fatal health problems. Some diseases associated with hemochromatosis are arthritis, cirrhosis of the liver, diabetes, heart failure and liver cancer. Signs and Symptoms Early symptoms of hemochromatosis are nonspecific and might include fatigue, heart palpitations, joint pain, non-specific stomach pain, impotence and loss of menstrual periods. Even without other symptoms, people with hemochromatosis may have abnormal liver function test results. Symptoms – which reflect the tissue and organ damage that result from the disease – usually appear in middle age, although some people may develop problems earlier. Later disease symptoms include gray or bronze coloration to the skin, liver cirrhosis, liver cancer, diabetes, hypopituitarism, decreased pituitary or gonadal function, heart disease or heart failure, joint disease, chronic abdominal pain, severe fatigue and certain infections.

39. THE MERCK MANUAL, Sec. 11, Ch. 128, Iron Overload BR Hematology And Oncology hyperlink to list of chapters in current section. Chapter 128. Iron Overload (Hemosiderosis; hemochromatosis). Topics. General. http://www.merck.com/mrkshared/mmanual/section11/chapter128/128a.jsp

40. Hemochromatosis: Online Reference For Health Concerns hemochromatosis Updated 06/05/2003. hemochromatosis is a genetic disease of abnormal iron metabolism. A person who has hemochromatosis http://www.lef.org/protocols/prtcl-056.shtml

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