1. Hemochromatosis Education & Research UW hemochromatosis education and research site for patients and providers about HHC iron overload disease including screening tests, genetics and research. http://www.uwgi.org/hemochromatosis/

2. American Hemochromatosis Society hometown newspaper and urge them to feature a story on hemochromatosis and you during the month of May! You can help spread the word about hereditary hemochromatosis and save lives http://www.americanhs.org/

Click here to Sign our Guest Book We subscribe to the HONcode principles of the Health On the Net Foundation The AHS is now registered with several United Way chapters. If you donate to the United Way, please make AHS your charity of choice. Read past issues of the "BloodLetter", the official online newsletter of the American Hemochromatosis Society here The DNA "Genetic Test Kit" (shown above) uses a small mascara-type wand to swab the patient's cheek. Results are ready in just a few days. You do not need a doctor's order to receive this test kit or to perform the test. May 2004 is the AHS "National Hereditary Hemochromatosis Genetic Screening and Awareness Month” Give this press release to your own hometown newspaper and urge them to feature a story on hemochromatosis and you during the month of May! You can help spread the word about hereditary hemochromatosis and save lives!

3. Hemochromatosis Information on the causes, risk factors, symptoms, diagnosis, treatment, diagnostic tests for, and current research on hemochromatosis. hemochromatosis. http://www.niddk.nih.gov/health/digest/pubs/hemochrom/hemochromatosis.htm

Email To A Friend Home Digestive Diseases A-Z List of Topics and Titles : Hemochromatosis Hemochromatosis On this page: Causes Risk Factors Symptoms Diagnosis ... For More Information Excess iron is stored in body tissues, especially the liver, heart, and pancreas. Hemochromatosis, the most common form of iron overload disease, is an inherited disorder that causes the body to absorb and store too much iron. The extra iron builds up in organs and damages them. Without treatment, the disease can cause these organs to fail. Iron is an essential nutrient found in many foods. The greatest amount is found in red meat and iron-fortified bread and cereal. In the body, iron becomes part of hemoglobin, a molecule in the blood that transports oxygen from the lungs to all body tissues. Healthy people usually absorb about 10 percent of the iron contained in the food they eat to meet the body needs. People with hemochromatosis absorb more than the body needs. The body has no natural way to rid itself of excess iron, so extra iron is stored in body tissues, especially the liver, heart, and pancreas. Top Causes Genetic or hereditary hemochromatosis is mainly associated with a defect in a gene called HFE , which helps regulate the amount of iron absorbed from food. There are two known important mutations in

4. Links On Hemochromatosis, Hemochromatosis, Haemochromatosis, Iron Overload, Heam A collection of links to sites, including scientific articles, related to the genetic iron overload disease. http://hemochromatose.tripod.com

var cm_role = "live" var cm_host = "tripod.lycos.com" var cm_taxid = "/memberembedded" LINKS ON HEMOCHROMATOSIS Last update: April 15, 2004 Add LINK or report a dead LINK Information sorted by COMPLAINTS Information sorted by ... on hemochromatosis Click here for: Special bloodbags for phlebotomy on hemochromatosis patients * THE BEST PROTOCOL ON DIAGNOSIS AND TREATMENT British Protocol Newsgroups (talk to doctors and patients) on hemochromatosis! Book on hemochromatosis ($15.95, 352 p.)!!! Pictures and videos on hemochromatosis ... IRON DISORDERS INSTITUTE (their magazine is highly recommended!) The Haemochromatosis Society UK (England, Scotland, Wales and Northern Ireland AMERICAN HEMOCHROMATOSIS SOCIETY CANADIAN Hemochromatosis Society ... BELGIUM homepage Belgen kunnen ook lid worden van de Nederlandse Hemochromatose Vereniging Deutsche/English/Francais information(en) uber/about/par Haemochromatose BERN * SOUTH AFRICA Haemochromatosis Society of South Africa PO Box 1931 Kelvin Johannesburg e-mail: hmchrosa@yahoo.co.uk

5. [THE CANADIAN HAEMOCHROMATOSIS SOCIETY...... Parent Frame.] Volunteer based organization which provides information to patients and physicians about hemochromatosis. http://www.cdnhemochromatosis.ca/

Weclome to The Canadian Hemochormatosis Society If you have received this message then your browser can not process frames. Please upgrade your browser by clicking on on of the links below. Microsoft Explorer

6. MedlinePlus: Hemochromatosis hemochromatosis General/Overviews. hemochromatosis ( Mayo Foundation for Medical Education and Research) Iron Overload and hemochromatosis Frequently Asked Questions ( National Center for Chronic http://www.nlm.nih.gov/medlineplus/hemochromatosis.html

@import url(http://www.nlm.nih.gov/medlineplus/images/advanced.css); Skip navigation Other health topics: A B C D ... List of All Topics Hemochromatosis Contents of this page: From the NIH General/Overviews Diagnosis/Symptoms Prevention/Screening ... Children Search MEDLINE for recent research articles on Hemochromatosis You may also be interested in these MedlinePlus related pages: Blood/Lymphatic System Digestive System Genetics/Birth Defects From the National Institutes of Health Hemochromatosis (National Digestive Diseases Information Clearinghouse) Learning about Hereditary Hemochromatosis (National Human Genome Research Institute) General/Overviews Hemochromatosis (Mayo Foundation for Medical Education and Research) Iron Overload and Hemochromatosis: Frequently Asked Questions (National Center for Chronic Disease Prevention and Health Promotion) Overview on Iron Overload and Hemochromatosis (National Center for Chronic Disease Prevention and Health Promotion) Clinical Trials ClinicalTrials.gov: Hemochromatosis (National Institutes of Health) Diagnosis/Symptoms Detection: Iron Panel Tests (Iron Disorders Institute) Ferritin Test (American Association for Clinical Chemistry) Serum Iron Test (American Association for Clinical Chemistry) (American Association for Clinical Chemistry) Disease Management Iron Overload and Hemochromatosis: Information for Patients and Their Families (National Center for Chronic Disease Prevention and Health Promotion) Prevention/Screening Screening for Iron Overload Due to Hereditary Hemochromatosis (National Center for Chronic Disease Prevention and Health Promotion)

7. The Hemochromatosis Foundation, Inc. The hemochromatosis Foundation, Inc. THE hemochromatosis FOUNDATION IS NOT ASSOCIATED OR AFFILIATED WITH ANY OTHER ORGANIZATION. http://www.hemochromatosis.org/

The Hemochromatosis Foundation, Inc. P.O. Box 8569, Albany, NY 12208-0569 ph: 518-489-0972 fax: 518-489-0227 4/13/01 - Until our web-site is updated (May 1st) WEB MD has a recorded message about HH, which we know is accurate as of about a year ago. When updated, recent and new information presented at our 7th BIOIRON Conference in Italy last August will be included. Margit A. Krikker, MD.FAAFP It has come to our attention today that a commercial supplement organization, Life Extension Foundation, is mis-representing The Hemochromatosis Foundation as being associated or affiliated with it. THE HEMOCHROMATOSIS FOUNDATION IS NOT ASSOCIATED OR AFFILIATED WITH ANY OTHER ORGANIZATION. The commercial organization is, unfortunately, innaccurately suggesting that our organization approves the alternative treatments to bleedings, such as chelation or taking supplements of vitamins, minerals, herbs, anoxidants, etc. Such alternative treatments, WHICH ARE NOT RECOMMENDED BY THE HEMOCHROMATOSIS FOUNDATION'S SCIENTIFIC ADVISORY BOARD FOR THE HEREDITARY FORM OF HEMOCHROMATOSIS, WILL INTERFERE WITH THE RAPID ELIMINATIONS OF EXCESS BODY IRON AND MAY, IN FACT, ACTUALLY HASTEN THE ONSET OF SERIOUS INJURY ESPECIALLY TO THE LIVER. THE HEMOCHROMATOSIS FOUNDATION WILL APPRECIATE BEING INFORMED IF ANY ORGANIZATION FALSELY MISREPRESENTS THE HEMOCHROMATOSIS FOUNDATION AS BEING ASSOCIATED OR AFFILATED WITH IT.

8. Redirect Detailed upto-date scientific information on hemochromatosis. http://www.ncbi.nlm.nih.gov/htbin-post/Omim/dispmim?235200

9. Hemochromatosis Many expert reviewed articles on hemochromatosis. An excellent starting point to learn more about the causes of hemochromatosis, and what you can do if you are at risk or have this iron overload http://www.genetichealth.com/Hemochromatosis_Home.shtml

Conditions Alzheimer's Breast Cancer Colon Cancer Diabetes ... Ovarian Cancer Tools Medical Glossary Genetics 101 Overview of Genetics Inheritance Patterns DNA Mutations Changing Your Risk ... Inherited/Sporadic Cancer Genetic Testing The Testing Process Where Is Testing Done? Who Orders Genetic Tests? Costs of Genetic Testing Ethical Issues Genetic Information Genetic Discrimination Health Insurance Research Participation Types of Clinical Trials What Should I Know? From Gene To Cure List of Clinical Trials Resources Genetic Counseling Find a Genetic Counselor Find a Support Group Getting Medical Records ... Help for Birth Parents Managing Your Risk Screening Directory General Cancer Prevention Awards "G enetic Health does more than hit just a home run — it's a grand slam in the bottom of the ninth to win the game ... one of the very best health-related sites we have ever had the pleasure to view." — Wally Gross, Surfers Choice Review Team

10. Iron Disorders Institute | Disorders | Hemochromatosis | Introduction Disorders hemochromatosis. Introduction. hemochromatosis (HHC) is a genetic disorder of metabolism. Individuals with hemochromatosis absorb too much iron. http://www.irondisorders.org/disorders/hem

Disorders: Hemochromatosis Introduction Hemochromatosis (HHC) is a genetic disorder of metabolism. Individuals with hemochromatosis absorb too much iron. Iron cannot be excreted therefore the excess builds to toxic levels in tissues of major organs such as the liver, heart, pituitary, thyroid, pancreas, lungs, and synovium (joints). These overburdened organs cease to function properly and eventually become diseased. Therefore, undiagnosed and untreated HHC can develop into diseases such as diabetes, heart trouble, arthritis, liver disease, neurological problems, depression, impotence, infertility, and cancer. Iron build up in those with classical ( HFE related) hereditary hemochromatosis is slow, usually taking years to build to destructive levels. HHC/Iron overload generally manifests in a male's early thirties and is diagnosed in a male's mid to late fifties. For this reason HHC has acquired the mistaken identity of an older male's disease. HHC can be present in females, adolescents and possibly children. Dr. John Feder

11. Hemochromatosis Upto-date hemochromatosis information hemochromatosis. hemochromatosis is a hereditary disease and is sometimes called hereditary hemochromatosis, or HHC. Primary hemochromatosis is an http://www.genomelink.org/hemochromatosis

Hemochromatosis Hemochromatosis is a hereditary disease and is sometimes called hereditary hemochromatosis, or HHC. Primary hemochromatosis is an autosomal disorder characterized by an accumulation of iron in parenchymal tissues including the liver. This increase is a consequence of increased absorption of iron that exceeds the body needs. Secondary hemochromotosis is also characeterized by an accumulation of iron. Clinical expression of the disease is twice as frequent in males as in females. 70% of patients develop symptoms between ages 40 and 60. Acne Allergy Antibiotics Antioxidants ... Wedding Overviews - Informational Links Hemochromatosis - full coverage. Hemochromatosis Facts - from CDC. Effects of Hemochromatosis - a brief overview of the causes and consequences of iron overload. Genetic Killer - Hemochromatosis - this article appeared in “The National Hibernian Digest”, November-December 2000. Hemochromatosis: A"Simple" Genetic Trait - by Richard D. Press, Oregon Health Sciences University. Hemochromatosis - FAQ's about Hemochromatosis.

12. University Of Pennsylvania Health System: News And Periodicals: World's First H Article on hemochromatosis from the Medical Genetics Division, Department of Medicine, Hospital of the University of Pennsylvania. http://www.uphs.upenn.edu/news/News_Releases/july96/iron.html

Contact: Rebecca Harmon Internet: harmonf@mail.med.upenn.edu Monday, July 29, 1996 World's First Hemochromatosis Clinic Opened At The University Of Pennsylvania Medical Center 21st-Century Genetics Works With 17th-Century Treatment Genetic specialists at the University of Pennsylvania Medical Center have established the world's first clinic dedicated to diagnosing and treating hemochromatosis a genetic disorder causing excessive iron build-up in the body. Although the majority of these cases are highly curable, early detection is critical in preventing long-term disease complications from excessive iron that may accumulate in organs of the body, including the heart, pancreas, pituitary gland, liver, muscular joints and under the skin. These complications may include congestive heart failure, diabetes, impotence and early menopause, liver cirrhosis or liver cancer, arthritis, or bronzed skin. According to the national Iron Overload Disease Association, hemochromatosis is the most common of all genetic diseases affecting over one million American adults and children. "Once detected, simple and preventive treatment is available for patients," says Christopher Friedrich, MD, PhD, assistant professor of medicine in the Division of Medical Genetics of the Department of Medicine. "Patients may lead normal, active lives once properly treated," he adds.

13. HEREDITARY HEMOCHROMATOSIS The website of a family whose members have hemochromatosis, with a description of how they are affected, and links to hemochromatosis sites. http://munstermom.tripod.com/hemo.html

var cm_role = "live" var cm_host = "tripod.lycos.com" var cm_taxid = "/memberembedded" HEREDITARY HEMOCHROMATOSIS Hereditary Hemochromatosis, [HH] is a genetic condition of iron overload affecting approximately 1 out of 200-300 people, with 1 in 8-10 people being carriers. It is fatal Cindy Munn RN In this table you will find many of the organs/systems that may be affected by Hereditary Hemochromatosis, as well as the symptoms or problems that may be associated with HH. These are resources, urls, articles, etc. which I have located in my research on HH. I have attempted to somewhat "categorize" them & place them under their corresponding symptoms/problems in this table. If you click on these sections, [they should be highlighted in orange] it will take you to resources that I have found which are related to that particular topic. If anyone finds any missing links, or knows of a resource which I might want to add to my list, please let me know! HEART C hest pain, shortness of breath, fatigue,

14. Hemochromatosis: Diagnosis - Treatment - Maintenance And Diet Information on hemochromatosis. Covered are the accepted protocols for diagnosis, treatment, maintenance and diet. http://www.ironoverload.org

Hemochromatosis - Diagnosis, Treatment, Maintenance and Diet Table of Contents is Below Site Preface In your search for health information regarding hemochromatosis or excess iron you will encounter other groups with web sites of varying degrees of expertise. Be careful of health information from hobbyist. How are we different than those other groups: We have been doing this for over 20 years. When IOD first began its work in 1980 no one else was handling the problems of hemochromatosis, not the medical community, not the insurance industry, not the blood banks and not the government. Early on physicians looked us in the eye and said "....never heard of it." The NIH in Bethesda, Maryland asked " How do you spell it." Through IOD's unremitting efforts that has all been changed. Now more recently, when the topic of excess iron began to heat up, people flocked to us offering help. When the scale of the problem became apparent hemochromatosis became a hot subject. A few of these helpers decided to form their own fringe or splinter groups. IOD does not pay high salaries but instead puts its money into 10 major programs and a number of sub programs. Some differences from some of the other sites are that are that we do not recommend either genetic testing or liver biopsy as necessary for diagnosis or to begin treatment for hemochromatosis.

15. Hemochromatosis Information Society Offers information about the symptoms and treatment of hereditary hemochromatosis. http://www.hemoinfo.org

"Information you can't live without" Home What is HH? Treatment Your Health ... Phlebotomize Welcome Visit the Centers for Disease Control web site for valuable information concerning hemochromatosis. The goal of the Hemochromatosis Information Society web site is to provide valuable information for people with hereditary hemochromatosis. We want to be THE online resource for hemochromatosis information. Latest News HIS Recognized as 501 (c) (3) Organization Web Site Redesigned! United to Serve: Unity in the Community Biometals 2004 ... 27th Annual Medicine for the Public Lecture Series Click on the image below to bid on restaurant and movie gift certificates! Proceeds benefit HIS! Publications Download our brochure and share the information with your loved ones. Brochure This website is intended for informational purposes only. Although every reasonable effort is made to ensure the accuracy of the information presented, the content of this site is in no way guaranteed. The information provided on this website should not be construed as medical advice. Always consult your physician before making any medical or health-related decisions. Any links to any external web sites are provided as a courtesy and should not be construed as an endorsement of the content or views of linked materials. Information on this web site is subject to change without prior notice. Some information contained on this website has been obtained from the Centers for Disease Control web site at

16. Haemochromatosis Is My Silent Illness A laymans nontechnical account of living with hemochromatosis by Alan Mannering. http://www.alan.mannering.btinternet.co.uk

Hemochromatosis ( Haemochromatosis - British spelling ) my personal experience, by Alan Mannering. This website contains facts, information and personal experiences of haemochromatosis. Hi, my name is Alan Mannering, I come from Birmingham in the UK, and I have haemochromatosis. Haemochromatosis is my silent illness. You haven't heard of it? Well not many people have. I was diagnosed quite accidentally when I was 55. This is the most common of all the genetic conditions; it is even more common than cystic fibrosis or muscular dystrophy. The incidence is now reckoned to be between 1 in 200 to 300 with 1 person in 10 being carriers of the mutant gene. It is a condition in which the body does not metabolise iron, which then accumulates over the years in various organs. Notably, it is in the liver and pancreas etc. My own stored iron level was about 2000% too high; this excess having accumulated over 55 years. I was diagnosed purely by chance after a cardiac check at my local hospital. The heart specialist noticed a bronze colouring on my body, which alerted him to the possibility of me having the condition........this is sometimes called bronze diabetes. What are the symptoms?

17. THE MERCK MANUAL, Sec. 11, Ch. 128, Iron Overload Merck Manual looks at this disorder, its signs and symptoms, diagnosis and treatment. http://www.merck.com/pubs/mmanual/section11/chapter128/128a.htm

Hemosiderosis; Hemochromatosis) This Publication Is Searchable The Merck Manual of Diagnosis and Therapy Section 11. Hematology And Oncology Chapter 128. Iron Overload (Hemosiderosis; Hemochromatosis) Topics [General] [General] (For acute iron poisoning, see Table 307-3 Chronic iron (Fe) overload is characterized by increased focal or generalized deposition within the tissues. On tissue examination, this has been commonly termed hemosiderosis. hemochromatosis has been applied (see Table 128-1 ). Hemochromatosis, an HLA-linked genetic Fe overload disorder, must be differentiated from other inherited disorders accompanied by increased Fe stores (eg, aceruloplasminemia, hypotransferrinemia/atransferrinemia) and from nongenetic Fe overload and Fe overload of undetermined etiology. Hemochromatosis in its primary form is a genetic disorder with a homozygous frequency of 1:200 and a heterozygous frequency of 1:8. The hemochromatosis gene ( HLA-H ) was recently identified on the short arm of chromosome 6 as a single point mutation in which the amino acid cysteine at position 282 changes to a tyrosine (nt 845 A, 845A; Cys 282 Tyr). Of patients with clinical hemochromatosis, 83% are homozygous for this mutation, which encodes for an HLA-A-like molecule. A mutation at nt 187C

18. Hemochromatosis hemochromatosis is a disorder in which the body absorbs too much iron from food. Normally, any iron that the body doesn t need is excreted. http://www.niddk.nih.gov/health/hematol/pubs/hemoch/hemoc.htm

Hemochromatosis is a disorder in which the body absorbs too much iron from food. Normally, any iron that the body doesn't need is excreted. But in hemochromatosis, the excess iron is stored throughout the body, including in the pancreas, liver, and skin. The iron deposits damage these organs and tissues. Hemochromatosis is a hereditary disease and is sometimes called hereditary hemochromatosis, or HHC. Symptoms include fatigue, abdominal pain, jaundice (yellowing of skin and eyes), and a change in skin color to bronze or gray. Over time, hemochromatosis can cause liver disease, liver failure, liver cancer, heart disease, and diabetes. Hemochromatosis is diagnosed through blood tests that measure iron levels. Sometimes a liver biopsy is done to check for the amount of iron in the liver and for liver damage. Hemochromatosis is treated by drawing blood to remove excess iron from the body and keep it from building up in organs. For the first 18 months, blood is drawn once or twice a week. After that, blood is drawn once every 2 to 6 months for the rest of the person's life. Information is also available from: American Liver Foundation, 1425 Pompton Avenue, Cedar Grove, NJ 07009; tel: (800) 223-0179 or (201) 256-2550.

19. CNN - Hemochromatosis: If You Don't Know What It Is, You Should - July 26, 1999 CNN http://www.cnn.com/HEALTH/9907/26/hemochromatosis/index.html

[an error occurred while processing this directive] MAIN PAGE WORLD U.S. LOCAL ... daily almanac MULTIMEDIA: video video archive audio multimedia showcase ... more services E-MAIL: Subscribe to one of our news e-mail lists. Enter your address: document.write(' '); Or: Get a free e-mail account E-MAIL DISCUSSION: message boards chat feedback CNN WEB SITES: AsiaNow Svenska Norge Danmark ... Italian FASTER ACCESS: europe japan TIME INC. SITES: Go To ... Time.com People Money Fortune EW CNN NETWORKS: more networks transcripts SITE INFO: help contents search ad info ... jobs WEB SERVICES: health > story page Hemochromatosis: If you don't know what it is, you should July 26, 1999 Web posted at: 5:59 PM EDT (2159 GMT) In this story: What is hemochromatosis? Early detection is key Treatment Pitfalls ... RELATEDS By Kiki Alderon SYMPTOMS AND COMPLICATIONS If you have any of the following conditions, you should be screened for hemochromatosis: an enlarged liver, cirrhosis or cancer of the liver, arthritis, diabetes or heart irregularities. Other symptoms include: weakness and/or fatigue abdominal pain bronzed skin that is not the result of sun exposure decreased libido impotence loss of bone density (WebMD) If, say, 300 Americans had to name the most common genetic disorder in the United States, most of them probably wouldn't guess the correct answer.

20. Hemochromatosis Diagnosis - Treatment - Maintenance And Diet hemochromatosis health information including diagnosis, treatment, maintenance diet. Visit Iron Overload Diseases Assn online for the most current information on hemochromatosis diagnosis In http://rdre1.inktomi.com/click?u=http://www.ironoverload.org/&y=02A347518C23

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