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         Floating-harbor Syndrome:     more detail

81. Healthwise
Health Information, Topic Floating Harbor syndrome, Back to previouspage. Synonyms Disorder Subdivisions General Discussion Resources
http://www.suttercoast.org/health/healthinfo/index.cfm?section=healthinfo&page=a

82. Mioti: Diseases + Conditions
Diseases + Conditions Floating Harbor syndrome. Search Mioti
http://www.mioti.com/cat/condition/condition.asp?Cat=FloatingHarbor

83. Health Library
Floating Harbor syndrome. Floating Harbor syndrome Support GroupFloatingHarbor syndrome. FOD Family Support Group-Fatty Oxidation Disorder.
http://library.ecommunity.com/library/healthguide/selfhelp/_SearchResults.asp?le

84. Wauu.DE: Health: Conditions And Diseases: Genetic Disorders: Floating-Harbor Syn
Links URL hinzufügen. Floating Harbor syndrome Support Group Provides a description,including a list of symptoms, things to do and links to other resources.
http://www.wauu.de/Health/Conditions_and_Diseases/Genetic_Disorders/Floating-Har
Home Health Conditions and Diseases Genetic Disorders : Floating-Harbor Syndrome Search DMOZ-Verzeichnis:
All Categories Categories Onlye
Links:
  • Floating Harbor Syndrome Support Group
    Provides a description, including a list of symptoms, things to do and links to other resources. Also contact detail.
    http://hometown.aol.com/jdswanson
  • National Library of Medicine: FHS
    Floating-harbor syndrome, the synonyms, a summary and a list of major features.
    http://www.nlm.nih.gov/mesh/jablonski/syndromes/syndrome300.html
  • Readers Digest Health
    A general discussion about floating harbor syndrome and some resources for further information.
    http://www.rd.com/common/nav/index.jhtml?articleId=8612919
  • The CaF Directory A brief discussion about floating harbor syndrome, with some history and information about a support group located in Essex, United Kingdom. http://www.cafamily.org.uk/Direct/f30.html
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85. The Diagnosis Trail
visit, he suggested that we see a geneticist and on the 17 th November Mitchellwas diagnosed with a very rare disorder called Floating Harbor syndrome.
http://www.autismtas.org.au/mitchell.htm
Hi my name is Lyn Leedham and I live in Tasmania. I am married to Brian and we have Nicholas who is 16 and in his first year of college and is a typical teenager, then we had Michael who was still born and if he was alive he would be 11 years. Then we have Mitchell who has turned 9 of June this year. Mitchell was a hard baby and I knew that something was not right with this child as beautiful as he is, I just knew. I was for ever at the doctor's and as usual nothing wrong, or he might have a virus. This went on for 41/2 years until a new doctor came to our clinic. It just all went into place. He suggested that we see a paediatrician and that Mitchell could have a congenital abnormality. Gee, was we scared. After the paediatrician's visit, he suggested that we see a geneticist and on the 17 th November Mitchell was diagnosed with a very rare disorder called Floating Harbor Syndrome. Our lives would never be the same, but we went on living until Mitchell’s prep teacher asked if a child can have 2 syndromes. I asked what she meant and she thought that Mitchell might have Asperger's and it would be a good idea to have him assessed for it. I left the classroom to go and see the principal and well he suggested the same thing, so I got on the phone and so our journey began. I rang the Guidance officer and gee, what a shock. She said that she couldn’t assess him and with her own admission she knew nothing about Autism. She suggested this other person which I contacted and she performed a CARS on Mitchell and he scored 34 but she wouldn’t give him a proper diagnosis because he had Floating Harbor Syndrome.

86. FLOATING-HARBOR - SHORT STATURE; DELAYED BONE AGE; BROAD NOSE
Features Listed For floatingharbor - SHORT STATURE; DELAYED BONE AGE;BROAD NOSE. McKusick 136140. Bipartite clavicle/pseudoarthrosis;
http://www.hgmp.mrc.ac.uk/dhmhd-bin/hum-look-up?595

87. Health Library -
groups. Floating Harbor syndrome. This information Floating Harbor syndromeSupport Group. National network. Founded 1999. Provides mutual support
http://myhealth.barnesjewish.org/library/healthguide/selfhelp/topic.asp?hwid=shc

88. Yonsei Medical Journal
Yonsei Med J 2004 April 45(2)334336. Title, First Turkish Patient with FloatingHarbor syndrome with Additional Findings Cryptorchidim and Microcephaly.
http://www.eymj.org/abstracts/viewArticle.asp?year=2004&month=4 &page=334

89. Metropolitan Society For Crippled Children & Adults
Floating Harbor syndrome Support Group 160 Guild NE Grand Rapids, MI 49505 Phone(616) 4479175 Fax (616) 447-9175 Website http//www.hometown.aol.com
http://www.wheeler.org/pages/national_directory/natl_dir_f.html
click above to return to the home page)
Directory for the Disabled: National Edition Michigan Edition Other Resources: Medical Economics Newsletter Archive Directory for the Disabled - National Edition A A A B ... E F G H I J ... P Q R S T U ... W X Y Z Families of Spinal Muscular Atrophy
P.O. Box 196
Libertyville, IL 60048
Phone: (847) 367-7620
Toll Free: (800) 886-1762
Fax: (847) 367-7623
Website: http://www.fsma.org
Families of SMA is dedicated to promoting and supporting research, helping families cope with SMA through informational programs and support and educating the public and professional communnity about SMA.
Federation for Children with Special Needs
1135 Tremont Street Suite 420 Boston, MA 02120 Phone: (617) 482-2915 Toll Free: (800) 331-0688 TTY: (617) 236-7210 Fax: (617) 572-2094 Website: http://www.fcsn.org The federation is a center for parents and parent organizations to work together on behalf of children with special needs and their families. The federation operates a Parent Center which offers a variety of services to parents, parent groups, and others who are concerned with children with special needs. 52 Association for the Handicapped, Inc.

90. Diet, Health, Diseases, Vitamins Iwant2bhealthy.com
FLOATING HARBOR syndrome. FLOATING HARBOR syndrome CONTACT GROUP – SueSinclair, 27 Hatfield Road, Dagenham, Essex, RM9 6JR. Tel 020 8517 6842.
http://www.iwant2bhealthy.com/supportgroups/index_f.shtml
location: support groups healthy iwant2b.com
Support groups
Family
Fat women

Fibromyalgia

Fostering
Support groups quick finder Aids / HIV Anorexia Arthritis Asthma ... P Q R S T U ... X Y Z Information supplied by g-text
FREEPOST NWW6775, BLACKPOOL. FY4 3GA. FABRY’S DISEASE FABRY’S DISEASE SUPPORT GROUP – Suzanne Hill, 10 Broadmeadow Rd, Wyke Regis, Weymouth, DT4 9BS.  Tel 01305 774 443.  Information/Contact. FACIAL DISFIGUREMENT see under Disfigurement FACIOAURICULOVERTEBRAL SYNDROME see under Goldenhar Syndrome FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY contact FSH Muscular Dystrophy Support Group under Muscular Dystrophy FAMILIAL ATHEROSCLEROSIS contact Family Heart Association under Heart FAMILIAL GOUT/FAMILIAL JUVENILE GOUT (Lesch-Nyhan Syndrome) contact PUMPA under Metabolic Diseases FAMILIAL HAEMORRHAGIC TELANG-IECTASIA contact Telangiectasia Group FAMILIAL HYPERCHOLESTEROLAE-MIA contact Family Heart Association under Heart FAMILIAL HYPERLIPIDAEMIA contact Family Heart Association under Heart FAMILIAL SPASTIC PARAPLEGIA also known as Strumpell-Lorrain FSP SELF HELP GROUP – Mrs Sally Langton, 116 Queens Road, Leicester, LE2 3FL.  Tel 0116 270 0450.  Collecting details on how the disease affects different families, ie age of onset, degree of disability and passes this information to research organisations.

91. MUMS List Of Disorders - F - G
syndrome) (5)*; Flavoprotein Dehydrogenase Deficiency (subcategory of MADD)(1); Floating Harbor syndrome (3)*; Focal Segmential Glomerulosclerosis
http://www.netnet.net/mums/mum_f-g.htm
Return to MUMS Home Page
MUMS:
List of Disorders
F - G
Number in parentheses indicates number of matches.
indicates there is a support group which covers that diagnosis.
  • FG Syndrome (17) * FG Syndrome Home Page
  • Fabry Disease (3) *
  • Facial Cleft (4)
  • Facio-Auriculo-Vertebral Spectrum (Goldenhar Syndrome) (43) **
  • Facio-Scapulo-Humeral Dystrophy, Infantile (FSH) (3) *
  • Facioscapuloperoneal Dystrophy, Infantile (1)
  • Factor IV Deficiency (1)
  • Factor V Deficiency (2)
  • Factor XI Deficiency (1)
  • Factor XIII Deficiency (1)
  • Fahr's Disease (1)
  • Failure To Thrive (212)
  • Fainting Spells, Undiagnosed (3)
  • Familial Adenomatous Polyposis (Gardner Syndrome) (3)
  • Familial Dysautonomia (Riley-Day Syndrome) (8)** www.fdvillage.org/
  • Familial Erythrophagocytic Lymphohistiocytosis (1) *
  • Familial Exuderitive Vitrio (1)
  • Familial Mediteranean Fever (3)
  • Familial Spastic Diplegia (Paraparesis or Paraplegia) (7)
  • Fecal Retention Syndrome (following imperforate anus surgery) (3)
  • Feet not growing (1)
  • Feingold Syndrome (Oculo-Digit-Esophageal-Duodenum (ODED) (1)
  • Femoral Antiversion (1)
  • Femoral Focal Deficiency, Proximal (PFFD) (10)*

92. Diseases
Ectodermal Dysplasia. Familial Hypercholesterolemia. Fatty Oxidation. FloatingHarborsyndrome. Fragile X syndrome. Glutaricaciduria. Hailey-Hailey Disease.
http://diseases.health.designerz.com/diseases-directory.php
Map.Designerz.com
Diseases News
Diseases Chat Diseases Site Map ... Mexico Web Intelligence about Diseases
Designerz, L.L.C

93. A Listing Of Disorders
Filippi syndrome. Fitz Hugh Curtis syndrome. Floating Harbor syndrome. FocalDermal Hypoplasia. Forbes Albright syndrome. Forbes Disease. Forestier s Disease.
http://medschool.umaryland.edu/BTBank/Family/Disorders_F.htm
Brain and Tissue Bank
University of Maryland, Baltimore F Fabry Disease Facioscapulomueral Muscular Dystrophy Factor IX Deficiency Factor XIII Deficiency Fahr's Disease Fairbank Disease Farber's Disease Fascioliasis Felty Syndrome Femoral Facial Syndrome Fetal Alcohol Syndrome FG Syndrome Fiber Type Disproportion, Congenital Fibrodysplasia Ossificans Progressiva (FOP) Fibromatosis, Congenital Generalized Filippi Syndrome Fitz Hugh Curtis Syndrome Floating Harbor Syndrome Focal Dermal Hypoplasia Forbes Albright Syndrome Forbes Disease Forestier's Disease Fountain Syndrome Fox Fordyce Disease Fragile X Syndrome Fraser Syndrome Freeman Sheldon Syndrome Frey's Syndrome Froelich's Syndrome Frontofacionasal Dysplasia Frontonasal Dysplasia Fructose Intolerance, Hereditary Fructosuria Fryns Syndrome Fucosidosis

94. Health Library
FleshEating Bacteria-Necrotizing Fasciitis (Flesh-Eating Bacteria). Floating HarborSyndrome. Flu (Influenza)-Influenza. Fluoroquinolones for acute bronchitis.
http://health_info.nmh.org/Library/HealthGuide/IllnessConditions/_SearchResults.

95. Gimenei >> Health >> Conditions_and_Diseases >> Genetic_Disorders >> Floating-Ha
Gimenei.com, Search for Scope All Words, Results per page 10.Request Timeout 2,
http://www.gimenei.com/directory/top/Health/Conditions_and_Diseases/Genetic_Diso
Search for: Scope: All Words Any Word Phrase Results per page: Request Timeout: Search Depth:
Gimenei
Health Conditions and Diseases Genetic Disorders Floating Harbor Syndrome Software: Pearl Harbor: Defend the Fleet
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96. TMJ
Popa, D. Metea, M. Puiu, D. Stoicanescu, C. Gug, E. Lazar). THE FLOATINGHARBORSYNDROME WITH HYPOTHYROIDISM AND A DELETION OF 8q24.
http://www.tmj.ro/dump_rezumat.html?id_numar=1&id_articol=15

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