1. Ehlers Danlos National Foundation July 15 18 With over 30 speakers, 20 of which are physicians with experience of working with ehlers-danlos syndrome (EDS), this year s conference promises to http://www.ednf.org/

Join EDNF Member Login Username Password Find Your Local Group State Zip City Choose Visitor since June 26 2002 May 12, 2004 The Ehlers-Danlos National Foundation Children's Educational Conference Fund Applications for this year's fund are now being accepted. Please go to the following page to download the application form The EDNF Children's Educational Conference Fund was established in 2001 to benefit the children and youth who are affected by EDS. The purpose of the fund is: * To provide scholarships for our young members to attend our learning conferences. * To provide money for the development and implementation of materials and supplies that will ensure quality educational opportunities, presentations, activities and support for the children who are in attendance at Conference. read more March 26, 2004 Ehlers-Danlos National Foundation Announces 2004 Learning Conference - Buffalo, NY. July 15 - 18 With over 30 speakers, 20 of which are physicians with experience of working with Ehlers-Danlos Syndrome (EDS), this year's conference promises to offer attendees a wide variety of opportunities. To find out more, follow the link to download the Loose Connections Conference Special.

2. Ehlers-danlos This site offers extensive information for patients and doctors, plus links. http://www.ehlers-danlos.org

Ehlers-Danlos Support Group Support for the New Millennium EDS Search Page Welcome to the Ehlers-Danlos Syndrome UK Support Group You are Visitor No. Ehlers-Danlos Syndrome (EDS) is the name given to a group of heritable connective tissue disorders. EDS can affect the skin, ligaments, and internal organs. 2004 Conference Fully Booked - Sorry PLEASE READ THIS Latest News - NEW FRAGILE LINKS Information Sheets ... View our message board Web address: www.ehlers-danlos.org Designed with Contact Information Telephone UK 01252 690 940 (please leave a message if asked - we will try to get back to you as soon as we can!) World +44 1252 690 940 (UK Office Hours ONLY please! Postal address: The Director Ehlers-Danlos Support Group. P. O. Box 335 FARNHAM Surrey. GU10 1XJ England Electronic mail General Information: info@ehlers-danlos.org Message Board View our message board MEDICAL ADVISORY PANEL Dr. F. M. Pope, Honorary Professor and Consultant in Medical Genetics, MD. FRCP. Mr. A. P. Barabas, MD. FRCS. Mr A. I. Attwood MBBS FRCS (Ed), D. Merrild. MD. MPH. Mr N. Burrows, MD MRCP

3. Ehlers-Danlos Syndrome - About Ehlers-Danlos Syndrome A brief description of EDS and how it is inherited. Edited by Frederick Matsen III MD Chairman, Department of Orthopaedics, University of Washington, Seattle, USA. http://www.orthop.washington.edu/arthritis/types/ehlersdanlos/01

Home About Us Clinics Physicians ... Contact Us A program of Table of contents About Ehlers-Danlos syndrome What is it? Incidence and risk factors Causes ... View article with questions External links Ehlers-Danlos National Foundation March of Dimes [Top] Ehlers-Danlos Syndrome Edited by Frederick A. Matsen III, M.D. and Gregory C. Gardner, M.D. Last updated August 31, 2001 About Ehlers-Danlos syndrome What is it? Ehlers-Danlos syndrome (EDS) is a group of hereditary disorders that affects mainly the skin and joints, but other organs as well. EDS results in weakness and/or excessive flexibility of the connective tissues of the body. People with EDS are born without the ability to make certain components of the normal connective tissue of the body. Incidence and risk factors EDS is a relatively rare disorder, occurring in fewer than 1 in 20,000 people. The various forms of EDS are characterized by abnormalities in the chemical structure of the body's connective tissues (for example, skin, muscles, tendons and ligaments). As a result, skin may become fragile and joints unstable. This article is rated out of 5 stars (2745 ratings).

4. Ehlers-Danlos Syndrome a CHORUS notecard document about ehlersdanlos syndrome Disclaimer. Feedback. Search. ehlers-danlos syndrome. autosomal dominant. connective-tissue disorder http://chorus.rad.mcw.edu/doc/00134.html

CHORUS Collaborative Hypertext of Radiology Musculoskeletal system Feedback Search Ehlers-Danlos syndrome autosomal dominant connective-tissue disorder: hyperelasticity of skin, poor wound healing hyperextensibility of joints soft-tissue calcifications (spheroids) vascular lesions: aortic dissection aneurysms rarely: tortuous arch, ectatic pulmonary aa. tissue fragility ==> hematomas, aortic rupture after angio clinical types: gravis, mitis, benign hypermobile, ecchymotic, X-linked a/w ** medullary sponge kidney Charles E. Kahn, Jr., MD - 2 February 1995 Last updated 26 May 2004 Medical College of Wisconsin

5. Ehlers Danlos Syndrome Ehlers Danlos Syndrome. ehlersdanlos syndrome Information. Survey for Connective Tissue Disorders. Ehlers-Danlos National Foundation. Ehler Danlos Syndrome MEDSTUDENTS-METABOLIC http://www.bdid.com/ehlers.htm

HOME Ehlers Danlos Syndrome Ehlers-Danlos Syndrome Information Survey for Connective Tissue Disorders Ehlers-Danlos National Foundation Ehler Danlos Syndrome MEDSTUDENTS-METABOLIC DISORDERS ... Support Group Arterial Type See Ecchymotic Type Arthrochalasia Type (Type VII/VIIA/VIIB) Ehlers-Danlos Syndrome Ehlers-Danlos syndrome, arthrochalasic type Autosomal Dominant EHLERS-DANLOS SYNDROME, TYPE VII, AUTOSOMAL DOMINANT Autosomal Recessive EHLERS-DANLOS SYNDROME, TYPE VII, AUTOSOMAL RECESSIVE Autosomal Dominant See Ecchymotic Type Unspecified Type EHLERS-DANLOS SYNDROME, AUTOSOMAL DOMINANT, TYPE UNSPECIFIED Autosomal Recessive Unspecified Type EHLERS-DANLOS SYNDROME, AUTOSOMAL RECESSIVE, TYPE UNSPECIFIED Classic Type (Mitis Type, Type II) Ehlers-Danlos Syndrome EHLERS-DANLOS SYNDROME, TYPE II Ehlers-Danlos syndrome, classic type Severe (Type I, Gravis Type) Ehlers-Danlos Syndrome EHLERS-DANLOS SYNDROME, TYPE I Dermatosparaxis Type (Type VIIC) Ehlers-Danlos Syndrome Ehlers-Danlos syndrome, dermatosparaxis type Dysfibronectinemic Type (Type X) EHLERS-DANLOS SYNDROME WITH PLATELET DYSFUNCTION FROM FIBRONECTIN ABNORMALITY Ecchymotic Type (Type IV, Autosomal Dominant, Arterial Type, Ecchymotic Type, Sack-Barabas Type, Vascular Type)

6. NORD - National Organization For Rare Disorders, Inc. EDS disease information from the National Organization for Rare Disorders. http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Ehlers Danlos

7. Ehlers-Danlos Syndrome Ehlers Danlos information, national and international support groups, clinics with genetic counselors and geneticists ehlersdanlos syndrome. Ehlers-Danlos National Foundation (EDNF New Zealand ehlers-danlos syndrome Support Group. Maraetuna Farm http://www.kumc.edu/gec/support/ehlers.html

Ehlers-Danlos syndrome Ehlers-Danlos National Foundation (EDNF) 6399 Wilshire Boulevard, Suite 510 Los Angeles, CA 90048 Fax: (213) 651-1366 E-mail: loosejoint@aol.com Web site: http://www.ednf.org/ Regional Support Groups Canadian Ehlers-Danlos Association (CEDA) 183 Charlton Avenue Thornhill, Ontario L4J 6E9 Canada Phone: (905) 761-7552 Fax: (905) 761-7567 E-mail: ceda@home.com or pghand@shaw.wave.ca Web site: http://www.tor.shaw.wave.ca/~ceda/ Ehlers-Danlos Support Group , United Kingdom and Irish Republic Support Group P. O. Box 335 Farnham, England GU10 1XJ Phone UK: 01252 690 940 or World +44 1252 690 940 (UK Office Hours ONLY) Fax: 01252 404573 E-mail: director@ehlers-danlos.org Includes photos Australian EDS Support Group PO Box 106 Marulan NSW 2579 Phone / Fax 0011 61-2-4841 1111 E-mail: prairie@goulburn.net.au or EDSAussie@altavista.net Danish Ehlers-Danlos Society Eskildsvej 12 2990 Nivaa, Denmark Phone / Fax: 45 49 14 9632 E-mail: betina.boserup@image.dk

8. Ehlers-Danlos Syndrome ehlersdanlos syndrome. DESCRIPTION A group of inherited disorders of the connective tissue occurring in many types based on clinical, genetic and biochemical evidence, varying in severity from mild http://www.5mcc.com/Assets/SUMMARY/TP0293.html

Ehlers-Danlos syndrome DESCRIPTION: A group of inherited disorders of the connective tissue occurring in many types based on clinical, genetic and biochemical evidence, varying in severity from mild to lethal. Transmitted as autosomal recessive, autosomal dominant, or X-linked recessive traits. The major manifestations include hyperextensibility of skin and joints, easy bruising, friability of tissues with bleeding and poor wound healing, calcified subcutaneous spheroids and pseudotumors, and cardiovascular, gastrointestinal, orthopedic, and ocular defects. Usual course: chronic; progressive. CAUSES: probable defective cross-linkage of collagen ICD-9-CM: 756.83 Ehlers-Danlos syndrome Author(s): Mark R. Dambro, MD Illustrations: Ehlers-Danlos Ehlers-Danlos Ehlers-Danlos

9. Ehlers Danlos National Foundation Member Login, Username, Password, Find Your Local Group. State =. Visitor 288235 since June 26 2002. What is ehlersdanlos syndrome? http://www.ednf.org/whatiseds.html

Join EDNF Member Login Username Password Find Your Local Group State Zip City Choose Visitor since June 26 2002 What is Ehlers-Danlos Syndrome? Individuals with EDS have a defect in their connective tissue, the tissue which provides support to many body parts such as the skin, muscles and ligaments. The fragile skin and unstable joints found in EDS are the result of faulty collagen. Collagen is a protein which acts as a "glue" in the body, adding strength and elasticity to connective tissue. Ehlers–Danlos syndrome (EDS) is a heterogeneous group of heritable connective tissue disorders, characterized by articular(joint) hypermobility, skin extensibility and tissue fragility.There are six major types of EDS. The different types of EDS are classified according to their manifestations of signs and symptoms.Each type of EDS is a distinct disorder that "runs true"in a family. This means that an individual with Vascular Type EDS will not have a child with Classical Type EDS. Symptoms Clinical manifestations of EDS are most often joint and skin related and may include: Joints : joint hypermobility; loose/unstable joints which are prone to frequent dislocations and/or subluxations; joint pain; hyperextensible joints (they move beyond the joint's normal range); early onset of osteoarthritis.

10. Booklets2000 Please help us by taking these surveys and explain your experiences with Connective Tissue Disorders like ehlersdanlos syndrome, Marfan's Syndrome, Stickler Involved Syndrome, and Fibromyalgia. http://www.angelfire.com/il2/booklets2000/index.html

var cm_role = "live" var cm_host = "angelfire.lycos.com" var cm_taxid = "/memberembedded" WHO HAS IT? Connective Tissue Disorders do not appear to favor one set of genes over another. People from every age, gender, race, religion, and hemisphere are candidates. DOES IT EFFECT YOUR LIFE? Can people with C.T.D. still contribute? You bet they can! with Connective Tissue Disorder. LIFE DOES GO ON . . . Focusing on the pace – not on the hurdles – makes life more worthwhile. There are ways to improve your condition: "Quality of Life" can always be improved! Medical breakthroughs, personal support systems, new medications and treatments, – appear on the scene every day. Review advice from others who share your symptoms. Share your thoughts and experiences. Find a good doctor in your area. Take Survey

11. Info - EDS Syndrome ehlersdanlos syndrome. INTRODUCTION. ehlers-danlos syndrome (EDS) is a heterogeneous group of heritable disorders of connective tissue http://www.ehlers-danlos.org/Info Sheets/infoEDS.htm

Ehlers-Danlos Support Group Support for the New Millennium EDS Search Page EHLERS-DANLOS SYNDROME INTRODUCTION Ehlers-Danlos Syndrome (EDS) is a heterogeneous group of heritable disorders of connective tissue, characterised by skin extensibility, joint hypermobility and tissue fragility. There are different types of EDS and these were reclassified in 1997 into six major types, they are classified according to their symptoms and signs with each type running true in a family thus an individual with one type will not have a child with a different type. EDS is caused by a defect in the collagen (connective tissue), which is the main building block in the body. Collagen provides strength for the different parts of the body. Some types are firm to give support, others are elastic to allow movement and strength, and still others resemble glue binding protein together. Consequently, if it is defective, it can produce many problems. PREVALENCE. EDS is known to affect both males and females of all races and ethnic backgrounds. DIAGNOSIS.

12. MedlinePlus: Ehlers-Danlos Syndrome ehlersdanlos syndrome. Printer-friendly version, E-mail this page to a friend. Search MEDLINE for recent research articles on • ehlers-danlos syndrome. http://www.nlm.nih.gov/medlineplus/ehlersdanlossyndrome.html

@import url(http://www.nlm.nih.gov/medlineplus/images/advanced.css); Skip navigation Other health topics: A B C D ... List of All Topics Ehlers-Danlos Syndrome Contents of this page: From the NIH General/Overviews Diagnosis/Symptoms Treatment ... Information from the Medical Encyclopedia Search MEDLINE for recent research articles on Ehlers-Danlos Syndrome You may also be interested in these MedlinePlus related pages: Connective Tissue Disorders Skin Diseases Bones, Joints and Muscles Genetics/Birth Defects From the National Institutes of Health Questions and Answers about Heritable Disorders of Connective Tissue (National Institute of Arthritis and Musculoskeletal and Skin Diseases) General/Overviews Ehlers-Danlos Syndrome (EDS) (Arthritis Foundation) What Is Ehlers-Danlos Syndrome? (Ehlers-Danlos National Foundation) Diagnosis/Symptoms Ehlers-Danlos Syndrome: Symptoms and Diagnosis (University of Washington, Dept. of Orthopaedics and Sports Medicine) Disease Management Coping with EDS (University of Washington, Dept. of Orthopaedics and Sports Medicine) Treatment Ehlers-Danlos Syndrome: Management and Treatment (University of Washington, Dept. of Orthopaedics and Sports Medicine)

13. Michiana Branch Of The Ehlers Danlos National Foundation Support group for individuals and families from Michigan and Indiana who have ehlersdanlos syndrome (EDS), a genetic connective-tissue disorder. Meetings are held in South Bend, Indiana. http://michianaednf.org

http://smackdabdesign.com/michianaednf http://smackdabdesign.com/michianaednf

14. Ehlers-Danlos Syndrome - Learn More From MedlinePlus Find the latest news stories, overviews, research and more on ehlersdanlos syndrome from MedlinePlus, the National Library of Medicine's consumer health site. Medicine's consumer health site. ehlers-danlos syndrome, Hypermobility Syndrome, Abnormalities, Genetic Diseases, Inborn http://rdre1.inktomi.com/click?u=http://www.nlm.nih.gov/medlineplus/ehlersdanlos

15. MedlinePlus Medical Encyclopedia: Ehlers-Danlos Syndrome ehlersdanlos syndrome. There is no specific cure for ehlers-danlos syndrome, so individual problems and symptoms must be evaluated and cared for appropriately. http://www.nlm.nih.gov/medlineplus/ency/article/001468.htm

@import url(http://www.nlm.nih.gov/medlineplus/images/advanced.css); Skip navigation Medical Encyclopedia Other encyclopedia topics: A-Ag Ah-Ap Aq-Az B-Bk ... Z Ehlers-Danlos syndrome Contents of this page: Definition Causes, incidence, and risk factors Symptoms Signs and tests ... Prevention Definition Ehlers-Danos syndrome is a group of inherited disorders characterized by excessive looseness (laxity) of the joints, hyperelastic skin that is fragile and bruises easily, and/or easily damaged blood vessels. The syndrome sometimes involves rupture of internal organs. Causes, incidence, and risk factors Ehlers-Danlos syndrome (EDS) can occur in different forms involving vessels, skin, and/or joints with a variety of different genetic defects as their cause. Different forms of EDS have different modes of inheritance. Family history is a risk factor in some cases. Symptoms Joint dislocation or subluxation Joint pain Increased joint mobility, joints popping, early arthritis Double-jointedness, flat feet Easily damaged, bruised, and stretchy skin Very soft and velvety skin Easy scarring and poor wound healing Premature rupture of membranes at birth Visual difficulties Signs and tests Examination by the health care provider may show: Excess joint laxity and joint hypermobility Soft, thin, or hyperextensible skin

16. Ehlers-Danlos Syndrome - Arthritis: Health And Medical Information About Arthrit MedicineNet Home Diseases Conditions AZ List Arthritis Home ehlersdanlos syndrome. Advanced Search. ehlers-danlos syndrome. http://www.medicinenet.com/Ehlers-Danlos_Syndrome/article.htm

MedicineNet Home Arthritis Home > Ehlers-Danlos Syndrome Advanced Search Printer-Friendly Format Add to Favorites Email to a Friend ... Next page Ehlers-Danlos Syndrome What is Ehlers-Danlos syndrome? What are the types of Ehlers-Danlos syndromes ? How are the Ehlers-Danlos syndromes treated? What is Ehlers-Danlos syndrome? Ehlers-Danlos syndromes is a group of disorders which share common features including easy bruising, joint hypermobility (loose joints), skin that stretches easily (skin hyperelasticity or laxity), and weakness of tissues. The Ehlers-Danlos syndromes are inherited in the genes that are passed from parents to offspring. They are categorized according to the form of genetic transmission into different types with many features differing between patients in any given type. The fragile skin and loose joints is often a result of abnormal genes that produce abnormal proteins that form an inherited frailty of collagen (the normal protein "glue" of our tissues). In 2001, researchers discovered a new form of Ehlers-Danlos syndrome that is caused by an inherited abnormality in a protein other than collagen that also normally plays a role in binding together the cells of our tissues (including the skin, tendons, muscle, and blood vessels). Abnormalities in this protein, called tenascin, also lead to a form of Ehlers-Danlos syndrome. Researchers suspect that tenascin could play a role in regulating the normal distribution of collagen in the connective tissues of the body. The diagnosis of Ehlers-Danlos syndromes is based upon the clinical findings of the patient and the family history. For some types of Ehlers-Danlos syndrome a skin biopsy to determine the chemical makeup of the connective tissue can help to suggest the diagnosis.

17. Hypermobility & Fibromyalgia Support Site Information about joint hypermobility (ehlersdanlos syndrome), fibromyalgia and chronic fatigue syndrome. http://anaiis.tripod.com/hmedfm/index.html

var cm_role = "live" var cm_host = "tripod.lycos.com" var cm_taxid = "/memberembedded" About This Site Hypermobility Syndrome Info Fibromyalgia Syndrome Info Ehlers-Danlos Syndrome Info ... Search this Site Welcome! This site is dedicated to providing information and support for people with both joint hypermobility (including Ehlers-Danlos and Benign Joint Hypermobility Syndromes, or any form of Hypermobility Syndrome) and Fibromyalgia or Chronic Fatigue Syndrome (aka Chronic Fatigue Immune Dysfunction Syndrome, or Myalgic Encephalopathy in the U.K. and Australia). It is the first of its kind and provides information on these conditions, and also links to many sites with much more detailed information. It's important to note that this is an amateur site, not an official local, national or international support or information group. Hopefully, however, small individual endeavours like this will pave the way for such official groups to emerge. In addition, the Hypermobility & Fibromyalgia Group (hm-ed-fm) is the only discussion/support group online for people with both of these conditions. All are welcome! Click on the "Support: Talk to Others" link in the navigation bar on the left to learn more about the mailing list, as well as the vibrant Webforum and Chat Room. Join The List!

18. EMedicine - Ehlers-Danlos Syndrome : Article By G Bradley Schaefer, MD ehlersdanlos syndrome. Last Updated March 13, 2002, Table 1. Clinical Forms of ehlers-danlos syndrome. Type, Form. Distinguishing Features. http://www.emedicine.com/ped/topic654.htm

(advertisement) Home Specialties CME PDA ... Patient Education Articles Images CME Patient Education Advanced Search Link to this site Back to: eMedicine Specialties Pediatrics Genetics And Metabolic Disease Ehlers-Danlos Syndrome Last Updated: March 13, 2002 Rate this Article Email to a Colleague Synonyms and related keywords: EDS, connective tissue disorders, joint laxity, articular hypermobility, skin laxity, hyperextensible skin, abnormal wound healing, hypermobility syndrome, collagen abnormalities, lysyl hydroxylase deficiency, periodontitis, fibronectin, platelet aggregation defect, acrogeria, tissue fragility, vascular rupture, colonic perforation, excessive bruising, easy bruising, prominent venous plexus, petechiae, retinal detachment, dystrophic scarring AUTHOR INFORMATION Section 1 of 10 Author Information Introduction Clinical Differentials ... Bibliography Author: G Bradley Schaefer, MD , Director of Hattie B Munroe Center for Human Genetics, Professor, Department of Pediatrics, University of Nebraska Medical Center G Bradley Schaefer, MD, is a member of the following medical societies:

19. Arlenebrandeis.com An expression of the loss of family members to genetic anomalies including ehlersdanlos syndrome, Acute Intermittent Porphyria, and Hypolipoproteinemia. Information provided about each. http://www.arlenebrandeis.com

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20. EMedicine - Ehlers-Danlos Syndrome : Article By Enrico Ceccolini, MD ehlersdanlos syndrome. Last Updated April 9, 2002, Caption Picture 1. Patient with ehlers-danlos syndrome. Note the abnormal ability to elevate the right toe. http://www.emedicine.com/derm/topic696.htm

(advertisement) Home Specialties CME PDA ... Patient Education Articles Images CME Patient Education Advanced Search Link to this site Back to: eMedicine Specialties Dermatology Pediatric Diseases Ehlers-Danlos Syndrome Last Updated: April 9, 2002 Rate this Article Email to a Colleague Synonyms and related keywords: EDS, tenascin-X deficiency syndrome, lysyl hydroxylase deficiency syndrome, inherited connective tissue disorders AUTHOR INFORMATION Section 1 of 11 Author Information Introduction Clinical Differentials ... Bibliography Author: Enrico Ceccolini, MD , Consulting Staff, Department of Dermatology, University of Bologna, Italy Coauthor(s): Robert A Schwartz, MD, MPH , Professor and Head, Dermatology, Professor of Pathology, Pediatrics, Medicine, and Preventive Medicine and Community Health, UMDNJ-New Jersey Medical School Enrico Ceccolini, MD, is a member of the following medical societies: American Academy of Dermatology Editor(s): Takuo Tsuji, MD , Chairman, Professor, Department of Dermatology, Nagoya City University, Japan; David F Butler, MD

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