21. PrimordialDwarfism.com Information and support for parents and families of children with Primordial dwarfism. Primordial dwarfism is a category of disorders with many subtypes. http://www.primordialdwarfism.com/

PrimordialDwarfism.com Welcome to PrimordialDwarfism.com , a site dedicated to educating and supporting families affected by Primordial Dwarfism. First, a definition... Primordial Dwarfism is a category of disorders with many subtypes. Its definition is vague but basically means that these children are profoundly growth delayed for their gestational age before birth and at birth .There may be several links to why this occurs. Some of these subtypes are: Osteodysplastic 1, 2a, 3 Seckel Russell-Silver Meyer-Gorlin other The picture above was taken at the 2000 Annual Convention of Little People of America (LPA) in Minneapolis, MN. Dr. Charles Scott (seated, center) of the DuPont Hospital for Children, chaired a group session that represents possibly the largest gathering in history of people diagnosed with a rare form of Primordial Dwarfism. The picture below was taken at a gathering of families of Primordial Dwarfism children in Wisconsin in 2002.

22. Greenberg Center The Greenberg Center is dedicated to physicians, patients, families and others with an interest in dwarfism and skeletal dysplasias. http://www.med.jhu.edu/Greenberg.Center/Greenbrg.htm

23. Medical Information 3rd percentile on standardized growth charts. There are six major syndromes included within the category of primordial dwarfism http://www.primordialdwarfism.com/medmain.htm

Medical Information Primordial Dwarfism Where We Were: A Little Bit of History Where Are We Now Medical Personnel - Dr. Judith Hall ... Questionnaire Primordial Dwarfism Estimates of the number of individuals with dwarfism in the United States range from 100,000 to 500,000. Most cases of short stature are caused by skeletal or endocrine disorders. Including all known types, there are currently over 200 types of dwarfism, primordial dwarfism included. PRIMORDIAL DWARFISM (PD) IS A DIAGNOSTIC CATEGORY INCLUDING VARIOUS SPECIFIC TYPES OF SEVERE PROPORTIONATE DWARFISM IN WHICH INDIVIDUALS ARE SMALL FOR THEIR CHRONOLOGICAL AGE FROM THE VERY BEGINNINGS OF LIFE. Individuals with primordial dwarfism usually come to attention even before they are born. Most are diagnosed by ultrasound as small for gestational age (SGA) or as having intra uterine growth retardation (IUGR). Consequently, they are born at extremely low birth weights (less than 4 pounds). After birth, growth occurs at an extremely slow rate leaving affected individuals years behind their peers in size. Individuals with primordial dwarfism measure well below the 3rd percentile on standardized growth charts.

24. News & Features | Little Chance EMail This Article to a Friend. Little chance The Station Agent and its star, Peter Dinklage, cast dwarfism in a new, well-rounded light BY DAN KENNEDY. http://www.bostonphoenix.com/boston/news_features/dont_quote_me/documents/032371

Wednesday, June 02, 2004 Clubs Tonight Hot Tix Band Guide Spring Arts Guide ... E-Mail This Article to a Friend Little chance The Station Agent and its star, Peter Dinklage, cast dwarfism in a new, well-rounded light BY DAN KENNEDY NEAR THE BEGINNING of The Station Agent , a film that makes its Boston debut on Friday, there is a moment that says much about what it’s like to be different — and about how easy it is for someone to fall into the trap of imbuing his particular difference with more meaning than it warrants. Fin, played by the dwarf actor Peter Dinklage, is walking along the side of the road when an SUV driven by Olivia (Patricia Clarkson) careens out of control and forces him to dive into the brush. Later in the day, it happens again. Their first encounters — she all nervous, twitching apologies, he just trying to get away — are revealing. Fin obviously believes Olivia swerved off the road because she freaked out at seeing a dwarf. But she — and we — know that she is merely a terrible driver. It’s that kind of subtlety — acknowledging Fin’s difference, yet resolutely refusing to give it more weight than it deserves — that makes Dinklage’s Finbar McBride perhaps the most important film role a dwarf has ever played.

25. Little People's Research Fund, Inc. Little People's Research Fund is the only health organization in the world supporting research for the special medical needs of Little People people affected with dwarfism. http://www.lprf.org/

CLICK HERE FOR EULOGY CFC #2541 LPRF is a registered charitable organization and relies on the generosity of thousands of people whose donations fund our research and programs. 410-747-1100 phone 410-747-1374 fax 800-232-LPRF toll free

26. Short Persons Support: Health : Dwarfism dwarfism is a medical condition that results in the underdevelopment of the body. There are more than 320 medical conditions known as dwarfism. http://www.shortsupport.org/Health/Dwarfism.html

Header(1, "H2", "Dwarfism") Achondroplasia, by far the most common form of dwarfism, occurs in one in every 20,000 births in the United States. It is a developmental anomaly that affects the growth of the bones. The patient's trunk is usually normal, but the head is unusually large and the arms and legs unusually small. Those who reach adulthood do not suffer any lessening of their mental or sexual abilities, and may have unusual muscular strength. Achondroplasia does not significantly shorten life span. There are more than 320 medical conditions known as dwarfism. A detailed study of dwarfism is outside the scope of this Web site. There are several good sites that address this medical condition. The Billy Barty Foundation Billy Barty, who also founded Little People of America, passed away in December 2000. The Billy Barty Foundation was founded in 1975. Its mission is to guarantee an acceptable and improved quality of life for Little People through education, employment, accessibility and athletic programs. The primary objectives are to eliminate attitudinal barriers, myths and false negative stereotypes of Little People by providing society examples of achievement and inspiration, and to disseminate information to the general public at large as well as to Little People and their families. The Foundation strives to assist people of short stature to live more independently and productively, and is committed to develop unique and necessary accommodations and services.

27. Dwarfism - Short Stature dwarfism and short stature information, links to national and international support groups, lay advocacy organizations, clinics, genetic counselors and http://www.kumc.edu/gec/support/dwarfism.html

Dwarfism / Short Stature (Skeletal Dysplasias, Achondroplasia, Jeune Syndrome constitutional delay , other conditions) Organizations Clinics International Specific Syndromes ... Little People of America (LPA) , Inc. P.O. Box 745, Lubbock, TX 79408 E-mail: LPADataBase@juno.com Web Site: www.lpaonline.org Little People of America Teen Page, Books Organization Links Types of Dwarfism and Definitions LPA Parents' Forum (not currently active, web only), Mayeux family, jmayeux@gte.net LPA Parents' Committee - Rob and Betty Jacobsen, 3010 Olympia Way, Longview, WA 98632, Voice: 360.636.0276, BBS/fax: 360.578.1948, E-mail: jacobsen@aone.com Frequently Asked Questions Languages: English, Spanish dwarfism.org Billy Barty Foundation, Inc. 929 W Olive Avenue, Suite C, Burbank, CA 91506 Phone: (818) 953-5410 Fax: (818) 953-7129 Web site: www.rth.org/bbf/ Educational and lobbying for individuals with dwarfism Human Growth Foundation 7777 Leesburg Pike (P.O. Box 309), Falls Church, VA 22043 Phone: (800) 451-6434 or (703) 883-1773 Fax: (703) 883-1776 Supports basic clinical research pertaining to growth disorders. Disseminates information. Encourages development of local parent support groups. Oversees a grant research program

28. Esmerel's Dwarfism Resources dwarfism Resources. (Courtesy of Esmerel Disability Resources. This page is for disability resources that are dedicated to dwarfism. If http://www.esmerel.org/specific/dwarfism.htm

Dwarfism Resources (Courtesy of Esmerel: Home of Unicorn Quest : The Kids' Typing Tutor Game for One or Two Hands ) Welcome to another part of Esmerel's Collection of Disability Resources. This page is for disability resources that are dedicated to dwarfism. If you know of any other resources or have suggestions, please email Heather. Dan Kennedy's Dwarfism Resources Dwarfism FAQ An information sheet on issues related to dwarfism, on-line resources and Little People of America. Dwarfism Home Page This site serves as a resource for those afflicted with dwarfism and their families. Little People of America Medical Information on Dwarfism Not Alone Anymore Back to the Main Menu This page is maintained by Heather Last updated: November 25, 1998

29. EMedicine - Child Abuse & Neglect: Psychosocial Dwarfism : Article By Andrew P S Child Abuse Neglect Psychosocial dwarfism Psychosocial short stature (PSS) is a disorder of short stature or growth failure and/or delayed puberty of http://www.emedicine.com/ped/topic566.htm

(advertisement) Home Specialties CME PDA ... Patient Education Articles Images CME Patient Education Advanced Search Link to this site Back to: eMedicine Specialties Pediatrics Last Updated: November 2, 2003 Rate this Article Email to a Colleague Synonyms and related keywords: psychosocial short stature, PSS, abuse dwarfism, emotional deprivation dwarfism, reversible hyposomatotropism with dwarfism, functional hypopituitarism, psychosocial growth failure, garbage can syndrome AUTHOR INFORMATION Section 1 of 11 Author Information Introduction Clinical Differentials ... Bibliography Author: Andrew P Sirotnak, MD , Director, Kempe Child Protection Team, Chair, Department of Child Abuse and Neglect, Division of Pediatric Medicine, Children's Hospital of Denver; Associate Professor, Department of Pediatrics, University of Colorado Health Science Center Andrew P Sirotnak, MD, is a member of the following medical societies: American Academy of Pediatrics Editor(s): Chet Johnson, MD , Medical Director, Child Development Unit, Professor, Department of Pediatrics, University of Kansas Medical Center; Robert Konop, PharmD

30. Achondroplasia:Help And Information From The UK One of the most common forms of short limb dwarfism. Indepth information, pictures of people with the condition, and an open forum. http://www.achondroplasia.co.uk/

31. Pituitary Dwarfism Pituitary dwarfism. Definition. dwarfism is a condition in which the growth of the individual is very slow or delayed. There are many forms of dwarfism. http://www.healthatoz.com/healthatoz/Atoz/ency/pituitary_dwarfism.html

Encyclopedia Index P Home Encyclopedia Encyclopedia Index P Pituitary dwarfism Definition Dwarfism is a condition in which the growth of the individual is very slow or delayed. There are many forms of dwarfism. The word pituitary is in reference to the pituitary gland in the body. This gland regulates certain chemicals (hormones) in the body. Therefore, pituitary dwarfism is decreased bodily growth due to hormonal problems. The end result is a proportionate little person, because the height as well as the growth of all other structures of the individual are decreased. Description Pituitary dwarfism is caused by problems arising in the pituitary gland. The pituitary gland is also called the hypophysis. The pituitary gland is divided into two halves: the anterior (front) and posterior (back) halves. The anterior half produces six hormones: growth hormone, adrenocorticotropin (corticotropin), thyroid stimulating homone (thyrotropin), prolactin, follicle stimulating hormone, and lutenizing hormone. The posterior pituitary gland only produces two hormones. It produces antidiuretic hormone (vasopressin) and oxytocin. Most forms of dwarfism are a result of decreased production of hormones from the anterior half of the pituitary gland. The most common form is due to decreases of growth hormone which will be discussed here. These decreases during childhood cause the individual's arms, legs, and other structures to develop normal proportions for their bodies, but at a decreased rate.

32. Irish Association For Restricted Growth Nonprofit organization providing support and information to people of short stature and their families. Articles about people with dwarfism and related conditions; information about assistance resources in Ireland and IAFRG activities. http://www.iafrg.com

Irish Association for Restricted Growth home x x x x The Irish Association for Restricted Growth was founded to promote awareness and understanding of the various conditions which lead to restricted growth and to support and assist individuals of restricted growth and their families. Irish Association for Restricted Growth, P.O. Box 6239, Dublin 11, Ireland. Tel.: +353 872600179 Fax : +353 902 78083 Web : www.iafrg.com e-mail : iafrg@iol.ie latest 10/5/2004 : Updates of committee details on the Contacts page. Also some updates on upcoming events on the News page. 9/2/2004 : A belated Happy New Year to all. Sorry for the delay in updating the site but time has been short lately. Anyhow, there are some details concerning several upcoming events (RGE Convention in Belfast, DAA Games Birmingham and the IAFRG Family Day) on the News page. The Dublin International Film festival (Feb 12th to 22nd) will be showing 'The Station Agent'. One of the principal characters has achondroplastia. More details can be found under News Consider this .....

33. ACC: Dogs Needed For Dwarfism Study Dogs Needed For dwarfism Study. The study was begun after a litter of seven puppies was whelped; five of which showed some form of dwarfism. http://www.amchessieclub.org/dwarfism.html

Select a Location About ACC ACC Bylaws Code of Ethics Membership Application ACC Supplies Events Calendar Working Dog Certification ACC Listserv Pups for Sale Dogs at Stud Older Dogs for Sale Breeder's List Breed Standard Breed Colors Discussion on Color Chesapeake Firsts Health Issues ACC Rescue Network Available for Adoption Recommended Books Links to Sites of Interest International News Dogs Needed For Dwarfism Study A study into chondrodysplasia (dwarfism) in Chesapeake Bay Retrievers is getting underway at the University of California at Davis Veterinary Medical Teaching Hospital. The study was begun after a litter of seven puppies was whelped; five of which showed some form of dwarfism. A search has begun to locate other dogs medically diagnosed with dwarfism. Pedigree analysis of the known affected dogs shows some common ancestry among them. However, most of the general population of Chesapeakes also shares common ancestry with these affected dogs; therefore pedigree analysis alone is not sufficient to eliminate the gene from the population. It is hoped that a genetic marker or mutation test can be developed to detect carriers. This study is privately funded, so no ACC funds are needed; however, the researchers are looking for affected dogs in order to help with development of a gene test. Anyone with an affected dog can contact Dr. Switzer, who is coordinating the effort to obtain dogs for this research. A blood sample and copy of pedigree from affected dogs are what is needed right now.

34. IRSC - Musculoskeletal Disorders, Dwarfism Musculoskeletal Disorders dwarfism. dwarfism.org http//www.dwarfism.org/ dwarfism is a genetic abnormality resulting in short stature. http://www.irsc.org:8080/irsc/irscmain.nsf/sub?readform&cat=Musculoskeletal Diso

35. Dwarfism - Information / Diagnosis / Treatment / Prevention home musculoskeletal disorders congenital anomalies dwarfism dwarfism. Achondroplasia One of the most common forms of short limb dwarfism. http://www.healthcyclopedia.com/musculoskeletal-disorders/congenital-anomalies/d

Home Health cyclopedia All Topics by Category The Good Health Search Engine Health Conditions A-Z Gurus ... congenital anomalies > dwarfism Dwarfism Information / Diagnosis / Treatment / Prevention External links (marked with an arrow ) open in a new window. This site is a web directory and does not offer medical advice. We cannot take responsibility for information found on listed sites. This Page Related Topics Medical Definition Health News Web Directory: Related Topics: Osteogenesis Imperfecta Chronic Illness Endocrine Disorders Rare Disorders Medical Definition: University of Newcastle-upon-Tyne Medical Dictionary: "dwarfism" Health News: Search millions of published articles for news on Dwarfism Modern Medicine Aging The Ardell Wellness Report HealthFacts Medical Post Medical Update Men's Health and the National Women's Health Report Note: Subscription required to access the full text of articles. Web Directory: Achondroplasia One of the most common forms of short limb dwarfism. In-depth information, pictures of people with the condition, and an open forum. Dwarfism.org

36. Feral Children - Psychosocial Dwarfism (growth Retardation) The Kaspar Hauser syndrome of Psychosocial dwarfism. A common theme current. The cause of reversible hyposomatotropic dwarfism. Of specific http://www.feralchildren.com/en/dwarfism.php

@import "http://www.feralchildren.com/feralchildren.css"; FeralChildren.com isolated, confined, wolf and wild children contact FAQ forum link to here ... what's on Development > Physical Psychosocial dwarfism The Kaspar Hauser syndrome of Psychosocial Dwarfism A common theme in reports of feral children is that they are small for their physical age. Although 13 at the time of her discovery, Genie looked more like a seven-year-old. Kaspar Hauser syndrome of psychosocial dwarfism failure to thrive . Feral children, even if they outwardly appear to be receiving adequate nutrition, do not grow and develop normally. The field of growth disorders caused by psychosocial stress is complicated. The terminology is changing, and new classifications and diagnostic criteria are being identified. You will see different terms used to describe variants of these disorders, such as reversible hyposomatotropinism, reversible hyposomatotropic dwarfism, psychosocial short stature and hyperphagic short stature. Psychosocial dwarfism, a rather general term for this class of disorders, is no longer current. The cause of reversible hyposomatotropic dwarfism Of specific relevance to feral children is reversible hyposomatotropic dwarfism. In this syndrome, the failure to grow is caused because production of growth hormone in these children is suppressed owing to excessively high levels of psychosocial stress. Once they are removed to a normal (nurturing) environment, there is usually rapid catch-up growth.

37. Introduction: Dwarfism - WrongDiagnosis.com Introduction to dwarfism as a medical condition including symptoms, diagnosis, misdiagnosis, treatment, prevention, and prognosis. Introduction dwarfism. http://www.wrongdiagnosis.com/d/dwarfism/intro.htm

Diseases IMPORTANT! Use of this site is subject to our and Home Symptoms Diseases Risks Search: We show you all these ads in order to provide this free site; give your feedback WrongDiagnosis TM Premium Report: Diabetes Diagnosis and Misdiagnosis Available Now! Condition Lists By Organ By Symptom By Class By Prevalence ... List A-Z Current chapter: Dwarfism Next sections Basic Summary for Dwarfism Prognosis of Dwarfism Types of Dwarfism Causes of Dwarfism ... Symptoms of Dwarfism Next chapters: Achondroplasia Primary Immune Deficiency Selective IgA Deficiency Common Variable Immunodeficiency ... Feedback Introduction: Dwarfism Dwarfism: Small stature with short bones Contents for Dwarfism: Basic Summary for Dwarfism Prognosis of Dwarfism Types of Dwarfism Causes of Dwarfism ... Misdiagnosis of Underlying Causes of Dwarfism Last revision: May 27, 2003 Diseases Did we miss something? Please tell your story or provide feedback or suggestions By using this site you agree to our and . Information provided on this site is for informational purposes only; it is not intended as a substitute for advice from your own medical team. The information on this site is not to be used for diagnosing or treating any health concerns you may have - please contact your physician or health care professional for all your medical needs. Please see our and Book Lists WrongDiagnosis.com

38. Diastrophic Help Diastrophic dwarfism Tips for children with diastrophic dysplasia to solve some questions about selfcare and adjustments to home and school. DIASTROPHIC HELP. http://www.pixelscapes.com/ddhelp/

DIASTROPHIC HELP The purpose of this web site is to help the parents of children with diastrophic dysplasia (DDs for short) solve the very early questions of self-care and adjustments to the home and school environments. Diastrophic hands and the more limited range of motion pose special self-care challenges. These children learn to do everything well, but the early days can be confusing for parents, with each family trying to "reinvent the wheel". We hope to avoid some of that with the resources on this web site. We have attempted to put the hints in categories as much as possible, but there will be some overlap. The ideas here are NOT the last word, just a starting point. Although DD children are alike in many ways, they are also very different in their abilities at various ages. Size, limb proportion, and range of motion make it impossible to have just one formula that works for everyone. It is our hope that some of the hints listed here will work perfectly the first time and, barring that, that the child will figure out his/her own ways of improving on and adapting these hints. We have assumed the premise of using as few special gadgets as possible, and where gadgets are inevitable, an attempt has been made to have them be cheap, easily-made, and/or readily accessible for a lifetime. Some of the gadgets are shown here, while others can be found in medical supply catalogs.

39. Dwarfism. dwarfism generally refers to a group of genetic disorders characterised by shorter than normal skeletal growth. Achondroplasia dwarfism. dwarfism http://www.betterhealth.vic.gov.au/bhcv2/bhcarticles.nsf/pages/Dwarfism?open

40. Gale Encyclopedia Of Medicine Pituitary Dwarfism Pituitary dwarfism. Definition. Pituitary dwarfism is a condition of growth retardation in which patients are very short, but have normal body proportions. http://www.findarticles.com/cf_0/g2601/0010/2601001064/p1/article.jhtml

@import url(/css/us/style.css); @import url(/css/us/searchResult1.css); @import url(/css/us/articles.css); Advanced Search Home Help IN all publications this publication Automotive Business Computing Entertainment Health News Reference Sports YOU ARE HERE Articles Content provided in partnership with Print friendly Tell a friend Find subscription deals Pituitary dwarfism by Tish Davidson Definition Pituitary dwarfism is a condition of growth retardation in which patients are very short, but have normal body proportions. Some children who have this condition go through delayed, but normal puberty and have normal reproductive capabilities. Others never become sexually mature. Description Pituitary dwarfism is caused by a dysfunction of the pituitary gland. The pituitary gland is a pea-sized mass of tissue at the base of the brain. Functionally, it is divided into two parts, the anterior pituitary and the posterior pituitary. The anterior pituitary secretes growth hormone (GH), thyroid-stimulating hormone (TSH), follicle-stimulating hormone (FSH), luteinizing hormone (LH), adrenocorticotropic hormone (ACTH), and prolactin. The posterior pituitary releases antidiuretic hormone (ADH) and oxytocin. There are two types of pituitary dwarfism: Panhypopituitarism due to a deficit of all of the anterior pituitary hormones. There is proportionate, generalized slow growth and patients do not go through puberty. This accounts for about 2/3 of pituitary dwarfism cases.

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