1. NINDS Dermatomyositis Information Page dermatomyositis information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS). What is dermatomyositis? Is there any treatment What is dermatomyositis? dermatomyositis is one of a group of acquired muscle diseases called inflammatory myopathies http://www.ninds.nih.gov/health_and_medical/disorders/dermato_doc.htm

National Institute of Neurological Disorders and Stroke Accessible version Science for the Brain The nation's leading supporter of biomedical research on disorders of the brain and nervous system Browse all disorders Browse all health organizations More about Dermatomyositis Studies with patients Research literature Press releases Search NINDS... (help) Contact us My privacy NINDS is part of the National Institutes of Health NINDS Dermatomyositis Information Page Reviewed 11-01-2003 Get Web page suited for printing Email this to a friend or colleague Table of Contents (click to jump to sections) What is Dermatomyositis? Is there any treatment? What is the prognosis? What research is being done? ... Additional resources from MEDLINEplus What is Dermatomyositis? Is there any treatment? Prescribing a steroid drug, such as prednisone, is usually the first line of treatment. Immunosuppressants, such as azathioprine and methotrexate, may help those for whom prednisone is ineffective. Further treatment with intravenous immunoglobulin was shown to be effective and safe. Physical therapy is usually recommended to preserve muscle function and prevent muscle wasting. What is the prognosis?

2. Dermatomyositis (PM/DM) | MDA dermatomyositis (DM) Click for Materials En Español and MDAchats. Receive email news, tips and updates from MDA or ask us a quick question. Quick Definition Onset ·. Childhood to late adulthood. Symptoms ·. Weakness of neck and limb muscles. New Drugs in Pipeline for dermatomyositis and IBM 10/01 http://www.mdausa.org/disease/pmdm-d.html

Dermatomyositis (DM) Click for and MDAchats Receive e-mail news, tips and updates from MDA or ask us a quick question. Quick Definition: Childhood to late adulthood. Weakness of neck and limb muscles. Muscle pain and swelling common. Skin rash typically affecting cheeks, eyelids, neck, chest and limbs. Disease progression and severity vary among individuals. Often responds to drug therapy. Find Your Local MDA Do you need to find MDA in your city? Enter your Zip code here for where to turn for clinics and medical services; support groups; summer camp; local events and volunteer and fund-raising opportunities close to home. For more articles and references, please use the search feature Basic References FAQ's and Simply Stated Articles Quest Research-Medical Related ... News Releases Basic References Facts About PM/DM "Ask the Experts" Responses about PM/DM "Ask the Experts" Responses to General Neuromuscular Questions Genetics and Neuromuscular Diseases ... General Interest Publications FAQ's and Simply Stated... Articles FAQ: About Creatine Creatine Update: MDA Experts Say, 'Take Supplements Only Under Doctor's Care'

3. NINDS Dermatomyositis Information Page dermatomyositis information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS). More about dermatomyositis, http://www.ninds.nih.gov/health_and_medical/disorders/dermato_doc.htm&e=42

4. Jordan's Juvenile Dermatomyositis Diary The diary of a 10 year old girl diagnosed with this rare disease including her treatment and progress. http://www.geocities.com/EnchantedForest/Meadow/6709/

Hello. My name is Sherrell and I am the mother of three loving children. My youngest child is a beautiful little girl named Jordan. She was only 10 years old, in 1998, when diagnosed with a rare disease called Juvenile Dermatomyositis. (JDMS) It is so rare, information is hard to come by. I thought I would put her diary on the Internet in hopes of getting more information and also, to let other parents, facing this same nightmare, know that they are not alone. The first months of the diary may be hard to read. It brings tears to my eyes and I wrote it and lived it. But, trust me, there are joyful tears in the months to come. We have been blessed, for God is taking care of our baby. We hope that the information is helpful to each of you. The diary is our personal experience and doesn't necessarily apply to everyone. However, if you share the diary with someone else that has been diagnosed with JDMS or is the parent of a child with JDMS, please encourage them to read the whole diary or at least through December 1998. I just recently found a forum that can connect us and may help answer many questions. You may want to check it out.

5. Dermatomyositis (PM/DM) MDA dermatomyositis (DM) Click for Materials En Español and MDAchats. Receive email news, tips and updates from MDA or ask us a quick question. Quick Definition http://www.mdausa.org/disease/pmdm-d.html&e=42

6. Dermatomyositis Kurze œbersicht ¼ber die dermatomyositis und ihre Behandlung mit einer Liste von Kontaktpersonen f¼r diese seltene Erkrankung. http://www.dermatomyositis.de/

7. Derm Information for families and physicians caring for children with dermatomyositis muscle weakness and other rheumatic diseases or failure to thrive. What is dermatomyositis? dermatomyositis is an http://www.goldscout.com/derm.html

id=13897 DERMATOMYOSITIS This page is provided by Thomas J. A. Lehman MD Delivering the best care - with great care Dr. Lehman is the author of many textbook chapters and articles on the care of children and young adults with dermatomyositis and related conditions. He practices in New York City Click here for more information about Dr. Lehman or the Hospital for Special Surgery. If you want a more detailed discussion of childhood dermatomyositis click here for information regarding a book I have written What is dermatomyositis? Dermatomyositis is an acute inflammatory condition of skin and muscle. There are several distinct types of dermatomyositis which may ultimately prove to be different diseases. Most often dermatomyositis presents with increasing fatigue and loss of proximal (thighs and shoulders) muscle strength accompanied by a heliotrope rash. The characteristic clinical history is simply of a child who is not able to 'keep up', or who is asking to be carried more and more often. Difficulty going up and down stairs is often the manifestation which prompts the family to seek medical attention. These findings may occur with other illnesses, but a careful pediatric rheumatologist can often make the diagnosis on the initial examination. This is because many children have vasculitic lesions of the nail beds (' nailfold capillary dilatation) and lesions of the skin overlying the proximal interphalangeal joints ( Gottren's papules). These findings almost invariably signal dermatomyositis or a similar rheumatic disease (scleroderma or progressive systemic sclerosis). Less frequently the onset of dermatomyositis can be rapid with fever, widespread vasculitic rash and profound weakness. Both rapid and gradual

8. Facts About Polymyositis And Dermatomyositis MDA Publications Facts About Polymyositis and dermatomyositis (PM/DM) Muscular Dystrophy Association. http://www.mdausa.org/publications/fa-myosi.html&e=42

9. Juvenile Rheumatic Disease Group Website Online support for parents of children with a JRD, including juvenile rheumatoid arthritis, juvenile scleroderma, juvenile dermatomyositis, juvenile systemic lupus, and other rheumatic disorders. Includes resources. http://www.geocities.com/beegal68/JRD-Website.html

Welcome to the Juvenile Rheumatic Disease (JRD) Website ~Click the picture above to enter~ Graphic's provided by www.graphicgarden.com You are visitor number since October 2001 A Free Online Support Group Script's provided by Dynamic Drive This page was created with the help of the Meta Tag Analyzer Please, help save a child's life and read the above "Amber Alert". If you would like an Amber Alert ticker for your website, please, click the ticker! © 2004 JRD

10. Dermatomositis Information on dermatomyositis is available to veterinarians and the lay public in a variety of veterinary publications. The newest and most widely available is in Muller and Kirk's Small Animal Dermatology 5th ed. Philadelphia W.B. I also found a homepage for a sheltie with dermatomyositis. dermatomyositis http://www.dogpatch.org/sheltie/dermo.html

Information on dermatomyositis is available to veterinarians and the lay public in a variety of veterinary publications. The newest and most widely available is in Muller and Kirk's: Small Animal Dermatology - 5th ed. Philadelphia: W.B. Saunders, 1995, pages 759-764. If the information below is published, please put that reference as the source so your readers and their veterinarians will know where to go to get more complete details. There is also some more information here at the Dogpatch, courtesy of Kim Schive, and a site dedicated to DM research with info on the disease and affected dogs. I also found a homepage for a sheltie with dermatomyositis. DERMATOMYOSITIS Recognized in many different breeds but especially common in Collies and Shelties. Both the skin and muscle can be involved. It is very unusual to have muscle signs without skin disease. In most cases, only dogs with moderate to severe skin lesions have clinically significant muscle disease. The skin disease may or may not be active when the muscle disease is recognized. Although there appears to be a rare adult-onset variant, most affected dogs develop skin lesions early in life. Typically, skin lesions are first seen in dogs 12 to 24 weeks of age. The lesions may be short-lived or persist and worsen over the next several months.

11. Derm Information for families and physicians caring for children with dermatomyositis muscle weakness and other rheumatic diseases or failure to thrive. http://www.goldscout.com/derm.html&e=42

12. Chronische Inflammatoire Bindweefselziekten: Lupus Erythematosus, Sclerodermie, Lupus erythematosus, sclerodermie, polymyositis, dermatomyositis, Sjogrensyndroom, vasculitis, MCTD. http://www.CIBliga.com/

Lupus Sclerodermie Poly-en Dermatomyositis Vasculitis ... in New York [CIB] [CIB-Liga] [Contact] Chronische Inflammatoire Bindweefselziekten-liga vzw Bijendries 20, 3530 Houthalen Tel/fax (011) 72 79 52 Zoek op deze site! Wat is er nieuw op de site? Laatste update: 19/05/04 Bekijk de statistieken van deze site! Webdesign door Twixel Starter Wat zijn chronische inflammatoire bindweefselziekten? Hier vind je een korte, duidelijke uitleg Aanrader Ga direct naar de databank met medische en andere artikels over chronische inflammatoire bindweefselziekten. Forum Op zoek naar lotgenoten? Heb je een prangende vraag? Bezoek ons Forum! Boekentips "Huilende wolven" van Nele Caeyers "In gevecht met mezelf" van Frieda Ruitenberg

13. EMedicine - Dermatomyositis Article By Jeffrey P Callen, MD dermatomyositis dermatomyositis (DM) is an idiopathic inflammatory myopathy (IIM) with characteristic cutaneous findings. dermatomyositis. http://www.emedicine.com/derm/topic98.htm&e=42

14. RalphB.net - Ralph Becker And His Stuff On The Web Offers information on Ralph's life, ISDN tutorial, FAQ for Toyota RAV4, description of Volkswagen Passat, and Juvenile dermatomyositis (JDMS) information. http://www.ralphb.net/

Julia's JDMS Diary ISDN Tutorial IP Subnetting Tutorial Toyota RAV4 FAQ ... ICQ / AIM: RalphB39, RalphB40 / EMail: or Feedback Form / WWW Service by WestHost accesses since July 7, 1999.

15. Dermatomyositis - November 1, 2001 - American Family Physician dermatomyositis. RIC ANTHONY KOLER, MAJ, MC, USA, Fox Army Health Center, Redstone Arsenal, Alabama. ANDREW MONTEMARANO, MAJ, MC, USA, Walter Reed Army Medical Center, Washington, D.C. dermatomyositis is an idiopathic inflammatory myopathy with characteristic skin manifestations Sontheimer RD. Amyopathic dermatomyositis (dermatomyositis sine myositis). J Am Acad http://www.aafp.org/afp/20011101/1565.html

Advanced Search Dermatomyositis RIC ANTHONY KOLER, MAJ, MC, USA, Fox Army Health Center, Redstone Arsenal, Alabama ANDREW MONTEMARANO, MAJ, MC, USA, Walter Reed Army Medical Center, Washington, D.C. Dermatomyositis is an idiopathic inflammatory myopathy with characteristic skin manifestations. Although the disorder is rare, with a prevalence of one to 10 cases per million in adults and one to 3.2 cases per million in children, early recognition and treatment are important ways to decrease the morbidity of systemic complications. An association with other connective tissue disorders (overlap syndrome) and malignancy make this diagnosis particularly important to primary care physicians. Patient management includes careful evaluation for underlying malignancy and liberal use of physical therapy, antihistamines, sunscreen and oral corticosteroids. Poor prognostic indicators include poorly responsive disease, delay in diagnosis and the presence of malignancy. The therapeutic goal is to maintain function and prevent or minimize sequelae. (Am Fam Physician 2001;64:1565-72.) A patient information handout on dermatomyositis and polymyositis, written by the authors of this article, is provided on the

16. EMedicine - Dermatomyositis/Polymyositis Article By Aamir dermatomyositis/Polymyositis In 1863, Wagner first recognized dermatomyositis/polymyositis. In 1891, Unverricht provided the first http://www.emedicine.com/NEURO/topic85.htm&e=42

17. The Myositis Support Group UK Information for sufferers and carers about dermatomyositis and Polymyositis related illnesses which affect the muscles and connective tissues of the body. http://dspace.dial.pipex.com/town/avenue/ye72/

Home Books Buddies Factsheets ... Contact Us Updated 20th April 2004 Myositis Support Group Chat on our Bulletin Board ..........Find out if there are others in your area with Myositis (see Buddies)....................... London Marathon 18th April 2004 We are pleased to tell you that David Littler completed the London Marathon in 3 hours 25 minutes. A huge thanks goes to all who sponsored him. As soon as we know how much he raised, we'll post it here. Click here for photo. NEW The December 2003 Newsletter is now on line. This contains summaries of the 2003 Birmingham conference, trials updates, fundraising etc. Click here for more details. A new book on myositis. 300 pages of your stories, professional articles, information and help for myositis patients. For more details visit http://www.livingwithmyositis.com or email jen.fenton@ntlworld.com for an order form. Can be shipped to any part of the world. IMPORTANT CLINICAL TRIAL INFORMATION The SELAM trial is still recruiting patients with myositis. For new information on this trial, please click

18. Dermatomyositis a CHORUS notecard document about dermatomyositis Disclaimer. Feedback. Search. dermatomyositis. sheets of calcification in soft tissues http://chorus.rad.mcw.edu/doc/00617.html

CHORUS Collaborative Hypertext of Radiology Musculoskeletal system Feedback Search dermatomyositis sheets of calcification in soft tissues tumors in 15%: stomach, breast, lung, ovary Charles E. Kahn, Jr., MD - 2 February 1995 Last updated 26 May 2004 Medical College of Wisconsin

19. Dermatlas: Online Dermatology Image Library Dermatology Image,dermatomyositis,te Dermatlas Dermatology Images telangiectasia,poikiloderma,heliotrope,dermatomyositis,dermatology image images. Match ALL words Match ANY word. http://dermatlas.med.jhmi.edu/derm/result.cfm?Diagnosis=1462366188&e=42

20. Juvenile Dermatomyositis - Julia's JDMS Diary Page How one family is dealing with this rare autoimmune disease that affects the muscles and skin. http://www.ralphb.net/JDMS/

About Julia FAQ JDMS Links Prayers ... Dec juvenile dermatomyositis, JDMS, pediatric, Julia, diary, myositis, skin rash, muscle weakness, muscle inflammation, prednisone, methotrexate, ivig, solu-medrol Juvenile Dermatomyositis (JDMS) is a rare childhood auto-immune disease. My daughter, Julia, was diagnosed with JDMS in March of 1998. This web site is here for two primary reasons. First, to chronicle the events surrounding Julia's diagnosis and treatment of Juvenile Dermatomyositis, thereby helping me cope with it. Second, to give other children and their parents in the same situation some much-needed information and support. Juvenile Dermatomyositis is a very rare disease; I have scoured the internet, bookstores, and libraries and there is precious little on JDMS to be found, and much of that is out of date. I hope that this site will be valuable to you as you learn to cope with it. I'm not a medical professional, so nothing you find here should be considered medical advice. If you have any questions, please start by visiting the

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