61. Dercum's Disease Privat side af Dorrit Hvam med beskrivelse af sygdommen, og links. http://www.algon.dk/dercum/

Dorrit Hvams hjemmeside om DERCUM'S DISEASE - alias Lipomatosis Dolorosa - alias Adiposis Dolorosa - alias Morbus Dercum English version Uddybende forklaring Links til andre Dercum-sider I WHO's diagnosesystem ICD-10 rubriceres sygdommen under E 88-2. Dorrit Hvam DK-8620 Kjellerup E-mail: dercum@algon.dk Opdateret d. 18.2.2004

62. Dercum's Disease (Adiposis Dolorosa) Questionnaire This site discusses the symptoms, personal stories and research that has been done in the study of dercum's disease (Adiposis Dolorosa). This page is a Sufferer Questionnaire. Tell me when this http://dercums_data.tripod.com/questions.html

var cm_role = "live" var cm_host = "tripod.lycos.com" var cm_taxid = "/memberembedded" Check out the NEW Hotbot Tell me when this page is updated Dercum's disease (Adiposis Dolorosa) Questionnaire Please fill out this questionnaire if you are so inclined. I am doing my own research as I do not see any doctors doing it. Thanks. NOTE: Make sure that the URL for this page DOES NOT have a squiggle in it, (i.e., it does not look like: /~Dercums_Data). If it does, go to this page (same questionnaire) before you start filling in the blanks. Thanks! One recent oddity has been seen if, after filling out and submitting the questionnaire, you get an error that says: FrontPage Error. User: please report details to this site's webmaster. Webmaster: please see the server's system log for more details. Don't get upset. Your answers did get registered, and I can get access the answers . If you want confirmation, send me an e-mail. If it does something else, tell me what it did ;-) I'm sorry for all this hassle, but the problem seems to be that I have an old copy of Microsoft FrontPage (web publisher). First Name: Last Name: e-mail address: (don't forget the "@")

63. Francis Xavier Dercum (www.whonamedit.com) Associated with dercum s disease or syndrome. Who named it? Home. FB Wagner JrFrancis X dercum, MD, professor of nervous and mental diseases (19001925). http://www.whonamedit.com/doctor.cfm/1425.html

Home List categories Eponyms A-Z Biographies by country ... Contact Whonamedit.com does not give medical advice. This survey of medical eponyms and the persons behind them is meant as a general interest site only. No information found here must under any circumstances be used for medical purposes, diagnostically, therapeutically or otherwise. If you, or anybody close to you, is affected, or believe to be affected, by any condition mentioned here: see a doctor. Francis Xavier Dercum American neurologist, born August 10, 1856, Philadelphia; died April 24, 1931. Associated eponyms: Dercum's disease or syndrome Rare condition characterized by scattered areas of painful cutaneous nodules or fat accumulations. Development of the nodular, tender lipomas is gradual with localization largely to forearms and thighs. Biography: Francis Xavier Dercum, whose family originally came from England, was born in a period of intense political conflicts which culminated with the Civil War. His father, Ernest Dercum, was a successful bookseller and grain wholesaler, which made it possible to finance the son’s studies. In 1884 Dercum succeeded Charles Karsner Mills (1845-1931) as head of the neurological clinic at the University of Pennsylvania. Already at this time he was fully active as a general practitioner and an accomplished diagnostician.

64. Dercum's Disease Dorrit Hvams hjemmeside om, dercum S disease, Skriv i min gæstebog. alias Lipomatosis Dolorosa - alias Adiposis Dolorosa - alias http://www.algon.dk/dercum/index.php

Dorrit Hvams hjemmeside om DERCUM'S DISEASE - alias Lipomatosis Dolorosa - alias Adiposis Dolorosa - alias Morbus Dercum English version Uddybende forklaring Links til andre Dercum-sider I WHO's diagnosesystem ICD-10 rubriceres sygdommen under E 88-2. Dorrit Hvam DK-8620 Kjellerup E-mail: dercum@algon.dk Opdateret d. 18.2.2004

65. Informationsseite Lipomatosis Dolorosa - Morbus Dercum - Universitaetsklinik Mag A German website on dercum's disease, created by a Doctor who is planning on doing research into the disease Dr Johann Steiner http://www.dercum.net/

Informationssite Lipomatosis dolorosa / M. Dercum Universit¤tsklinik Magdeburg Projektgruppe Dr. med. Steiner und Dr. med. Schiltz Kliniken f¼r Psychiatrie und Neurologie II Leipziger Strasse 44, D-39120 Magdeburg Telefon: 0391 / 67-15230 bzw. -15020 e-mail: dr.steiner@dercum.net Bitte w¤hlen Sie Ihre Sprache Please choose your language Besucherzahl seit 04/2003: letztes Update: 18.07.2003

66. Emerging Worlds Chronic Illness And Viral Infections who goes beyond the mundane and researches the literature (or recalls a previouspatient with a similar problem) and the diagnosis of dercum s disease is made. http://www.emergingworlds.com/ch_article.cfm?link=Dercums_Disease.htm

67. Englisch This page is the English translation of a German journal article on dercum's disease. Other information, in German, is available on the website. http://dercum.net/Einleitung/Englisch/englisch.html

68. Dercum's Syndrome, Lipomatosis Dolorosa-Adiposis Dolorosa And Morbus Dercum, Generally describes the disease. The author thinks that it may respond to special diet. http://www.dstressdoc.com/dercum's.htm

69. CANCER: CAUSES AND EFFECTS Chapter from Dr. Ed Friedlander's online textbook. Adiposis Dolorosa (dercum's disease) is mentioned (search for adiposis ). Even though the lipomas (tumors) are benign, they can cause problems just by being, and he lists a number of examples. http://www.pathguy.com/lectures/neo-2-3.htm

CANCER: CAUSES AND EFFECTS Ed Friedlander, M.D., Pathologist scalpel_blade@yahoo.com Cyberfriends: The help you're looking for is probably here. Welcome to Ed's Pathology Notes, placed here originally for the convenience of medical students at my school. You need to check the accuracy of any information, from any source, against other credible sources. I cannot diagnose or treat over the web, I cannot comment on the health care you have already received, and these notes cannot substitute for your own doctor's care. I am good at helping people find resources and answers. If you need me, send me an E-mail at scalpel_blade@yahoo.com Your confidentiality is completely respected. Allan N. Spreen MD also handles internet questions at no charge, with a primary focus on nutrition. Dr. Spreen is also my former student and my close friend. DoctorGeorge.com is a larger, full-time service. There is also a fee site at myphysicians.com , and another at www.afraidtoask.com Translate this page automatically With one of four large boxes of "Pathguy" replies. I'm still doing my best to answer everybody. Sometimes I get backlogged, sometimes my E-mail crashes, and sometimes my literature search software crashes. If you've not heard from me in a week, post me again. I send my most challenging questions to the medical student pathology interest group, minus the name, but with your E-mail where you can receive a reply.

70. LIPOMAS, LIPOMATOSIS, AND CERTAIN CLINICAL TYPES OF ABNORMAL FAT DEPOSIT This is an older article (1974) that has a section describing the Adiposis Dolorosa (dercum's disease or dercum Syndrome), as well as other diseases affecting the fatty deposits. http://www.jeghers.com/annts/lipomas.htm

LIPOMAS, LIPOMATOSIS, AND CERTAIN CLINICAL TYPES OF ABNORMAL FAT DEPOSIT (Annotations and Bibliographies of Selected References) Prepared for: Medical Grand Rounds St. Vincent Hospital Worcester, Mass. Date: June 14, 1974 Prepared by: Harold J. Jeghers, M.D. and Solomon O. Oyesola, M.S.L.S., A.L.A. (On study leave from Medical Library, College of Medicine, University of Lagos, Nigeria. Presently at Case Western Reserve University, School of Library Science) Does not include data on ordinary obesity, obesity related to endocrine disorders, atrophy or necrosis of subcutaneous fat tissue, etc. **Read First *Read Next ADIPOSE TISSUE (General Information) There is an enormous literature on the type of obesity related to imbalance of caloric intake and energy output and abnormalities of body fat distribution related to certain endocrine disorders. It is well known that the amount and distribution of body fat varies with age, sex and race. By contrast, less attention has been paid to certain disorders characterized by abnormal localized forms of excess adipose tissue. Reading a few selected articles related to basic science concepts and general orientation to the subject of adipose tissue will be helpful. **Wells: Adipose tissue, a neglected subject. JAMA 114: 2177-2183; 2284-2289, 1940 (a scholarly and classic paper; literature; several helpful illustrations)

71. BONES AND SOFT TISSUES Section of an online medical/pathology text book by Dr. Ed Friedlander. Buried in here are some comments on dercum's disease (search for dercum to find them). http://www.pathguy.com/lectures/bones.htm

BONES AND SOFT TISSUES Ed Friedlander, M.D., Pathologist scalpel_blade@yahoo.com Cyberfriends: The help you're looking for is probably here. Welcome to Ed's Pathology Notes, placed here originally for the convenience of medical students at my school. You need to check the accuracy of any information, from any source, against other credible sources. I cannot diagnose or treat over the web, I cannot comment on the health care you have already received, and these notes cannot substitute for your own doctor's care. I am good at helping people find resources and answers. If you need me, send me an E-mail at scalpel_blade@yahoo.com Your confidentiality is completely respected. Allan N. Spreen MD also handles internet questions at no charge, with a primary focus on nutrition. Dr. Spreen is also my former student and my close friend. DoctorGeorge.com is a larger, full-time service. There is also a fee site at myphysicians.com , and another at www.afraidtoask.com Translate this page automatically With one of four large boxes of "Pathguy" replies. I'm still doing my best to answer everybody. Sometimes I get backlogged, sometimes my E-mail crashes, and sometimes my literature search software crashes. If you've not heard from me in a week, post me again. I send my most challenging questions to the medical student pathology interest group, minus the name, but with your E-mail where you can receive a reply.

72. Lipomas, Lipomatosis, Dercums Disease, Health Discussion : Physiotherapy For Der Physiotherapy for dercum s disease Goto page 1, 2 Next. PostPosted Fri May 30, 2003224 pm Post subject Physiotherapy for dercum s disease, Reply with quote. http://www.lipomaforum.com/viewtopic.php?t=245

73. Brenner & Politi, Dermatologic Diseases And Problems Of Women Throughout The Lif Article by Brenner and Politi on women's dermatological problems from the International Journal of Dermatology. There is a section on dercum's disease toward the end of the article. http://www.vulvarpain.icomm.ca/brenner.html

Brenner, Sarah, and Yael Politi. "Dermatologic Diseases and Problems of Women Throughout the Life Cycle," International Journal of Dermatology 34, no. 6 (June 1995): 369-379. The last century has brought dramatic changes in the lives of Western women. To the normal physiologic developments that take place in menarche, pregnancy, and menopause are added the stresses of combined family life and career. These in turn are exacerbated by longevity and the cultural norms against aging, which have given rise to esthetic interventions that offer options as well as pose new threats. This review surveys dermatologic diseases of women throughout the life cycle, from infancy and childhood through the childbearing years to menopause and old age. The size of the subject precludes complete coverage of all diseases and problems; rather, topics were selected in an attempt to cover a variety of dermatologic issues in women's lives. INFANCY TO ADOLESCENCE Genodermatoses A small number of genodermatoses are highly predominant in or exclusive to the female gender. They usually present at birth or soon after. X-Linked Dominant Diseases.

74. Dercum's Hope - What Is Dercum's Disease? dercum s Hope What is dercum s disease? dercum’s disease is a progressivedisorder that causes the growth of painful adipose (fat) tissue. http://www.dercumshope.org/whatisit.php

Dercum's Hope - What is Dercum's Disease? Sections Search Articles Main What is it? Resources Survey ... Log In This article is about to undergo a major expansion, thanks to the ideas from Dorrit, Ann, and Fran. There will be more on obesity (or lack thereof), the severity of the disability Dercum's can cause, a better explanation of the depression and confusion (brainfog), and since I found a reference in the primary literature about peripheral insulin resistance I'll include that too. If anyone has other comments to make before I write the next version, please e-mail me at denise@dercumshope.org Article by Denise Loving, MS Diagnosis Diagnosis requires a history of at least three months of chronic pain in fatty tissue , either constant or recurring. Some articles add (1) generalized obesity, which is not always present asthenia (loss of strength) and excessive fatigue and (3) mental disturbances, including depression familial multiple lipomatosis , which is an inherited condition of usually non-painful lipomas, lipodystrophy , and Painful fat can occur anywhere on the body, including the head and neck. Some people have tender or painful fat deposits literally from the top of their head to the soles of their feet. They are almost always in the subcutaneous fat layer, although it seems that at times they can invade other tissues. It appears that not a lot is known about how often that happens.

75. Dercum's Disease (Adiposis Dolorosa) - PubMed MedLine References This is a listing of the references to dercum's disease culled from Medline, the National Library of Medicine data base.  (aka dercum Syndrome, Adiposis Dolorosa) http://Dercums_Data.tripod.com/ref-list.html

var cm_role = "live" var cm_host = "tripod.lycos.com" var cm_taxid = "/memberembedded" Check out the NEW Hotbot Tell me when this page is updated Dercum's Disease PubMed MedLine References This is a listing of the all the references I've found (so far) that discuss Dercum's disease or Adiposis Dolorosa or some aspect that might be of interest. Sometimes there is only the title (typically of foreign language articles) because no abstract is available. The Pub Med document number is included for reference. Web author comments are in blue (like this statement). A few of the articles have links that allow you access the actual article. Dr. Dercum's article (#64) and some other older ones have been recently added and can be found at the bottom of the list. Humangenetik 1973 Mar 23;18(1):89-91 Autosomal dominant inheritance in adiposis dolorosa (Dercum's disease). Cantu JM, Ruiz-Barquin E, Jimenez M, Castillo L, Macotela-Ruiz E PMID: 4721343, UI: 73226373 Am Fam Physician 1981 Nov;24(5):155-7 Dercum's disease: adiposis dolorosa.

76. DermIS / Main Menu / DOIA The DOIA, or Dermatological Online Image Atlas, is a listing of images relating to skin diseases. They do not have any pictures of dercum's disease, but they do ask for sufferers to fill out a questionnaire at the bottom of this page (the form doesn't always work properly, so save your answers elsewhere). http://www.dermis.net/doia/diagnose.asp?zugr=d&lang=e&diagnr=214003&

77. Lipoma This site references some articles dealing with dercum's disease, and provides synopses of them. http://www.thedoctorsdoctor.com/diseases/lipoma.htm

Background This is the most common benign soft tissue tumor of adults. They are sometimes multiple and usually painless and asymptomatic. Malignant transformation is virtually never seen. Angiolipoma is a common variant which has a proliferation of small vessels scattered throughout the fat. Unlike common lipomas, these tumors are usually painful. OUTLINE Epidemiology Disease Associations Pathogenesis Laboratory/Radiologic/Other Diagnostic Testing ... Internet Links EPIDEMIOLOGY CHARACTERIZATION INCIDENCE Most common benign soft tissue tumor in adults 1/1000 of general population AGE RANGE-MEDIAN 40-60 years SEX (M:F) Slightly greater in M DISEASE ASSOCIATIONS CHARACTERIZATION DFSP Multiple spindle cell lipomas and dermatofibrosarcoma protuberans within a single patient: Evidence for a common neoplastic process of interstitial dendritic cells? Harvell JD. Department of Pathology, Stanford University Medical Center. J Am Acad Dermatol 2003 Jan;48(1):82-5 Abstract quote This case report describes a 48-year-old man with multiple spindle cell lipomas of the neck and a dermatofibrosarcoma protuberans (DFSP) with fibrosarcomatous transformation of the chest. The presence of familial and nonfamilial multiple spindle cell lipomas within a single patient is a rare event, with only two reports in the current literature.

78. Dercum's Disease / Adiposis Dolorosa dercum s disease. dercum s disease / Adiposis Dolorosa dercum s diseaseOnline. Founded 1998. Support for persons with dercum s disease http://my.webmd.com/hw/health_guide_atoz/shc29der.asp

var guid_source = ""; var guid_source_id = ""; //unused var encodedurl = ""; WebMD Today Home WebMD News Center Member Services WebMD University My WebMD Find a Physician Medical Info Check Symptoms Medical Library Quizzes, Calculators Clinical Trials ... Women, Men, Lifestyle Who We Are About WebMD Site Map You are in Medical Library Choose a Topic Our Content Sources Ask A Question Clinical Trials Health Guide A-Z Health Topics Symptoms Medical Tests Medications ... Dercum's Disease Dercum's Disease / Adiposis Dolorosa Dercum's Disease Online. Founded 1998. Support for persons with Dercum's disease (aka adiposis dolorosa), characterized by fatty lipomas under the skin that cause pain. Aim is to eradicate the pain and suffering of Dercum's Disease through finding the cause and cure. Forum for personal stories, links to support groups, and medical articles. E-MAIL: dercumdata@aol.com WEBSITE: http://Dercums_Data.tripod.com http://www.dercum.org VERIFIED: 5/1/2003 The above information is based upon information available through the "verified" date at the end of each listing. Since American Self-Help Group Clearinghouse's resources are limited; it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information. For additional information and assistance about self-help groups, please contact the American Self-Help Group Clearinghouse in Cedar Knolls, New Jersey, by email at: info@selfhelpgroups.org

79. Article: Corticosteroid-Induced Juxta-articular Adiposis Dolorosa (Dercum's Dise This article discusses a case of dercum's disease in the knee that was apparently caused by corticosteroid usage. http://dercums_data.tripod.com/greenbaum.html

var cm_role = "live" var cm_host = "tripod.lycos.com" var cm_taxid = "/memberembedded" Check out the NEW Hotbot Tell me when this page is updated Corticosteroid-Induced Juxta-articular Adiposis Dolorosa By Steven S. Greenbaum, MD, John Varga, MD From the Departments of Dermatology (Dr Greenbaum) and Medicine (Dr Varga), Jefferson Medical College, Philadelphia, Pa. Reprinted from the Archives of Dermatology February 1991, Volume 127, pages 231-233 Long-term treatment with high doses of corticosteroids leads to the development of truncal obesity and focal fatty deposition. These deposits characteristically are located on the face, the nuchal and truncal areas, and episternally, as well as in the mediastinum and epicardium. We studied a patient with juxta-articular adiposis dolorosa who had L-tryptophan-associated eosinophilia-myalgia syndrome and was treated with high doses of prednisone. This is the first reported case of adiposis dolorosa occurring as a complication of corticosteroid treatment. Alterations of fat metabolism induced by corticosteroid excess may have played a role in the development of this unusual painful syndrome. Adiposis dolorosa is an uncommon disorder of subcutaneous tissue that was first described by Dercum in 1892 at Jefferson Medical College, Philadelphia, Pa. The understanding of this disease has not progressed very much in the past 98 years. It remains better understood as a clinical entity than as a physiologic or metabolic process.

80. Nunnies Story A description of one individual's long struggle to identify the disease, in the form of painful fatty tumors, that was wracking her body dercum's disease. http://dercums_data.tripod.com/nunnie1.html

var cm_role = "live" var cm_host = "tripod.lycos.com" var cm_taxid = "/memberembedded" Check out the NEW Hotbot Tell me when this page is updated Nunnie's Story (Part 1) [Note: This exchange of e-mails was originally on www.mywebman.com , put there by Doug Large, who is the author referred to below. I have republished them with his permission, as he was no longer going to host these pages on his site. This story relates one of the realities of Dercum's Disease!] Authors Notes:What follows is a record of email messages between myself and a lady named Pam..aka..Nunnie. I present it here to show and to tell her story..a story of her strength and her hell on earth. The first excerpt is from my guestbook. After reading the complete presentation I hope that you will gather strength from her courage and that I have helped in someway to lessen any pain or suffering you may be going through..We are not alone after all. Name: Pam Website : Nunnie's Spot on the Web From : Beautiful Green Oregon Time : 1998-01-25 17:10:38 Comments : Hi

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