21. BUBL LINK / 5:15 Internet Resources: Deafblindness Also provides information about Braille, Moon, Cochlear Implants, the Retinal ImplantProject, the causes of deafblindness, and articles about deafness and http://bubl.ac.uk/link/d/deafblindness.htm

BUBL LINK / 5:15 Catalogue of Internet Resources Home Search Subject Menus A-Z ... About Deafblindness A-Z Index Titles Descriptions Blindness Resource Centre British Organizations for Deafblind People Deafblind Link Deafblind Scotland ... Scottish Sensory Centre Page last updated: 17 March 2003 Comments: bubl@bubl.ac.uk Blindness Resource Centre Documents and links to Internet blindness resources. Headings include Braille history, literacy, translators and advocacy, deaf-blind, other disabilities, eye conditions, organisations and research news. Author: New York Institute for Special Education Subjects: blindness, deafblindness DeweyClass: ResourceType: documents, index Location: usa Last checked: British Organizations for Deafblind People Includes contact details for centres, schools, associations, and family support groups. Author: James Gallagher Subjects: deafblindness DeweyClass: ResourceType: document Location: uk Last checked: Deafblind Link Facilities to learn the Deafblind Manual Alphabet and the Two-Handed Manual Alphabet used by sighted deaf people. Also provides information about Braille, Moon, Cochlear Implants, the Retinal Implant Project, the causes of deafblindness, and articles about deafness and deafblindness. Author: James Gallagher Subjects: deafblindness, deafness, sign language

22. Deafblindness - Information / Diagnosis / Treatment / Prevention home communication disorders deafblindness deafblindness. Information• Diagnosis • Treatment • Prevention. External links http://www.healthcyclopedia.com/communication-disorders/deafblindness.html

Home Health cyclopedia All Topics by Category The Good Health Search Engine Health Conditions A-Z Gurus ... communication disorders > deafblindness Deafblindness Information / Diagnosis / Treatment / Prevention External links (marked with an arrow ) open in a new window. This site is a web directory and does not offer medical advice. We cannot take responsibility for information found on listed sites. This Page Related Topics Health News Web Directory: Related Topics: Chronic Illness Communication Disorders/Hearing/Deafness Eye Disorders/Blindness Medicine/Medical Specialties/Ophthalmology ... Open Directory: Society/Issues/Disabilities/Etiquette Health News: Search millions of published articles for news on Deafblindness Modern Medicine Aging The Ardell Wellness Report HealthFacts Medical Post Medical Update Men's Health and the National Women's Health Report Note: Subscription required to access the full text of articles. Web Directory: A-Z to Deafblindness Understand more about deafblindness, and the people who live with it, including information about how to communicate with a deafblind person. Australian DeafBlind Council (ADBC) Information on Usher's syndrome. Membership includes people with deafblindness, family, carers, support workers, professionals and service organisations.

23. Publications, Advice And Services - UK Deafblind Charity - Sense Factsheet one. WHAT IS deafblindness? deafblindness is a unique disability.It is Congenital and acquired deafblindness. A person http://www.sense.org.uk/word_documents/fact1.html

Back to previous page Publications Sense homepage Factsheet one WHAT IS DEAFBLINDNESS? Deafblindness is a unique disability. It is sometimes known as dual sensory impairment or multi-sensory impairment and is more than a combination of visual and hearing impairments. It is important to stress that many deafblind people may not be totally deaf and totally blind. Many of the UK's 23,000 deafblind people have some remaining hearing and vision. Some, though, have nearly complete loss of both senses. Someone is called deafblind when neither their sight nor hearing can compensate for the impairment of the other sense - in other words, they cannot function as a deaf person or a blind person. 95% of what we learn about ourselves and the world comes through sight and hearing. And because deafblind people lack these two 'distance senses', they find that their mobility, communication and access to information are greatly affected. Congenital and acquired deafblindness A person can be born deafblind (called congenital deafblindness) or acquire deafblindness later in life , and the needs and problems of these two groups are very different. It is important to emphasise however deafblind people are

24. Sensory Impairment Information - UK Deafblind Charity - Sense Causes of deafblindness. deafblindness has many causes and the challenge it bringsare often more than just a combination of visual and hearing impairments. http://www.sense.org.uk/sensory_impairment/causes.cfm

Causes of deafblindness Deafblindness has many causes and the challenge it brings are often more than just a combination of visual and hearing impairments. Acquired or congenital When someone is born with combined sight and hearing difficulties this is called congenital deafblindness. Examples of this includes conditions such as Rubella or CHARGE If they develop these problems later in life, this is called acquired deafblindness. This may be due to a genetic condition such as Usher syndrome or as a result of aging in later life Read Factsheet 15: The Changing Deafblind Population For more information Get Adobe Acrobat here Registered Charity No: 289868 Registered Company No: 1825301

25. DBI - Elderley Deafblindness What is DbI? What is deafblindness? ELDERLY deafblindness. To view these documentsyou will need Adobe Acrobat Reader 4.0 installed on your computer. http://www.deafblindinternational.org/papers/elder.htm

DbI Homepage Site Map What's New? What is DbI? ... President's Letter ELDERLY DEAFBLINDNESS To view these documents you will need Adobe Acrobat Reader 4.0 installed on your computer. If you do not have a copy you can download one for free from Adobe. Proceedings from Expert meeting on older people with vsion and hearing loss, Copenhagen, Denmark 18 - 24 March 1998 Document Cover Main Document DbI Homepage Site Map ... President's Letter

26. DBI - What Is Deafblindness? What is deafblindness? The term deafblindness describes a conditon thatcombines in varying degrees both hearing and visual impairment. http://www.deafblindinternational.org/whatisdb/whatisdb.htm

DbI Homepage Site Map What's New? What is DbI? ... President's Letter What is deafblindness? The term deafblindness describes a conditon that combines in varying degrees both hearing and visual impairment. Two sensory impairments multiply and intensify the impact of each other creating a severe disability which is different and unique. All deafblind people experience problems with communication, access to information and mobility. However, their specific needs vary enormously according to age, onset and type of deafblindness. Deafblind people are unable to use one sense to fully compensate for the impairment of the other. Thus they will require services which are different from those designed exclusively for either blind people or deaf people. DbI Homepage Site Map What's New? What is DbI? ... President's Letter

27. Videnscentret For Døvblindblevne Welcome to the web site of the Information Center for Acquired deafblindness.Your browser does not support frames Click here for text only version. http://www.dbcent.dk/uk/default_uk.htm

Velkommen til Videnscentret for Døvblindblevnes hjemmeside Din browser understøtter ikke frames... Klik her for ren tekst version Welcome to the web site of the Information Center for Acquired Deafblindness Your browser does not support frames... Click here for text only version

28. VidensCentret For DøvBlindBlevne - Facts - Aquired Deafblindness Information center for aquired deafblindness. Acquired deafblindness. Thereare an estimated 1,100 people in Denmark with acquired deafblindness. http://www.dbcent.dk/dbbweb/homepage.nsf/hdocsuk/0301

Information center for aquired deafblindness Home Contact Materials Facts Other resources On aquired deafblindness On the information centre Dansk udgave Acquired deafblindness There are an estimated 1,100 people in Denmark with acquired deafblindness. By far the greatest number of these are elderly people who have become deafblind as a result of age-related impairments. According to the Nordic definition "a person is deafblind when he/she has a severe degree of combined visual and auditory impairment". Some deafblind people are totally deaf and blind, while the majority retain some sight and/or hearing. A distinction is made between congenital and acquired deafblindness. People with acquired deafblindness have lost their sight and hearing in the course of their childhood, adolescence or adulthood i.e. after having developed an auditive and/or visual frame of reference and acquiring a language, whether oral or sign language. The combination of the two disabilities makes it difficult for people who are deafblind to utilize any residual sight or hearing which they may retain. A person who is, for example, "only" hard of hearing can to some extent compensate by lip-reading, while for those with acquired deafblindness, this possibility is severely curtailed. Deafblindness is thus a specific and unique disability, requiring specialized medical aids and assistance. This is particularly true as regards the need of the deafblind person to communicate, gain access to information and news, and to be able to move around independently in their environment.

29. Esmerel's Deafblindness Resources deafblindness Resources. (Courtesy of Esmerel Disability Resources. This pageis for disability resources that are dedicated to deafblindness. If http://www.esmerel.org/deaf/deafblnd.htm

Deafblindness Resources (Courtesy of Esmerel: Home of Unicorn Quest : The Kids' Typing Tutor Game for One or Two Hands ) Welcome to another part of Esmerel's Collection of Disability Resources. This page is for disability resources that are dedicated to deafblindness. If you know of any other resources or have suggestions, please email Heather. Arizona Deafblind Project A federally funded free resource for Arizonans, including professionals working with, families of, and for individuals with deafblindness. Australian Deafblind Council The purpose is to be a national council representing people who are deafblind, their support networks and organizations working in the field. DBI: Deafblind International "Is the world association promoting services for deafblind people." DeafandBlind.com DBSM: Deafblind Services Minnesota Deafblind Association Deafblind Children Home Page This page is being set up as a resource for parents of deafblind children. We face many challenges in our everyday lives looking after and communicating with our deafblind children. Deafblind Education Links Deafblind Info Deafblind Link Deafblind Perspectives Newsletter ... Sense Scotland Quality services for deafblind people.

30. Iowa's System Change Project For Deafblindness Watch for updated information regarding changes to Iowa s SystemsChange Project for deafblindness. Iowa s Systems Change Project http://www.iadeafblind.k12.ia.us/

About Deafblindness State Resources Materials Upcoming Events The next RFP for the federal deafblind grant has been received. Watch for updated information regarding changes to Iowa's Systems Change Project for Deafblindness. Iowa's Systems Change Project for Deafblindness is made possible through a federal grant and collaboration between state and local agencies. The Project is mandated to provide technical assistance, consultation, and staff development opportunities to pare nts, professionals, and other state and local agencies. Currently, there are approximately 76 individuals with deafblindness who are registered with the state deafblind registry. Parents, professionals, and other caregivers are welcome to call to request assistance and/or additional information regarding services for children. However, in order to receive consultative services or technical assistance, the child must be registered with the state deaf-blind registry. More information about the registry. Individuals with deafblindness are a heterogeneous group - no two persons are alike. Please browse our page and find links which will assist you in locating information, specific to the special needs of your child. Updated Events Calendar Previous Updates

31. Iowa's System Change Project For Deafblindness Iowa s System Change Project fo deafblindness. ABOUT deafblindness I.WHAT IS deafblindness? deafblindness is a combination of hearing http://www.iadeafblind.k12.ia.us/about.html

About Deafblindness State Resources Materials Upcoming Events ABOUT DEAFBLINDNESS: I. What is Deafblindness? II. Who is eligible for the Deafblind Registry? III. Frequently Asked Questions I. WHAT IS DEAFBLINDNESS? Deafblindness is a combination of hearing and vision loss which affects an individual in their overall development and interaction with their environment. You may also have heard deafblindness referred to as "dual sensory impairments." The educational field began providing specialized services to individuals with deafblindness after the Rubella (German Measles) epidemic in the mid to late 1960s. These "Rubella babies," as they were called, were unique individuals, with a variety of special needs. The professional field has continued to grow and expand its knowledge of the many types of needs which children and adults with deafblindness display. Some syndromes which may indicate both hearing and visual impairment include: Batten Disease CHARGE Association Down syndrome Goldenhar syndrome Hunter syndrome Hurler syndrome Leber's congenital amaurosis Marfan syndrome Prader-Willi Refsum syndrome Stickler syndrome Teacher Collins syndrome Turner syndrome Usher I, II, III

32. Deafblindness Charlie Badenhop; YearBy-Year Chronology Of The Secretarial Profession- Marjorie Gottlieb deafblindness. What is deafblindness? http://www.crazycolour.com/os/deaf_05.shtml

Search: Tell a friend Disability Handbook General Information Green Office Handbook ... Efficiency Crazy Colour Cards These laminated cards are useful Quick Reference guides for using software and business tools more effectively. Order now Discounts for 10+ cards. Also purchase from: www.amazon.co.uk www.amazon.com More information. Order now Discounts for 10+ cards. Also purchase from: www.amazon.co.uk www.amazon.com More information. Order now Discounts for 10+ cards. Also purchase from: www.amazon.co.uk www.amazon.com More information. Order now Discounts for 10+ cards. Also purchase from: www.amazon.co.uk www.amazon.com More information. Office Survival Recent additions: Creating A Great Print Newsletter Colin Ong TS Melting The Thinking Mind - Is your self confidence based on what you accomplished in the past? Charlie Badenhop Year-By-Year Chronology Of The Secretarial Profession Marjorie Gottlieb Deafblindness What is Deafblindness? 'Persons are regarded as deafblind if they have a severe degree of combined visual and auditory impairment resulting in problems of communication, information and mobility. The group includes persons who have had severe vision and hearing impairment since birth or early childhood, and those who develop the dual impairment in adult life' Breaking Through -Deafblind Services Liaison Group, 1988. It is estimated that there are over 23,000 deafblind people in the United Kingdom today.

33. GLARCDBE - DeafBlindness Links k12.wy.us/speced/index.html vision Other deafblindness Resourceson the Web. NTAC The National Technical Assistance Consortium http://www.ssco.esu.k12.oh.us/deafblind/dblinks.html

C Welcome From GLARCDBE to the World... Newsletters Ohio SERRCs State Projects Miscellaneous ... Home Newsletters DeafBlind Perspectives - Be sure to read the cover poem, "He Didn't Listen" which was written by Jack Kemper, father of Alexa young man on the Wisconsin DeafBlind census. The poem was written as an activity at the August, 2001 Wisconsin Family Weekend Ohio SERRCs Hopewell SERRC - Located in Highland county, the Hopewell SERRC is an Early Intervention Coordinating Site with EI and Deaf/Hard-of-Hearing programs. Southeast Ohio SERRC - Located in Athens county, Southeast Ohio SERRC offers an Early Intervention program. Central Ohio SERRC - Located in Franklin county Lincoln Way SERRC - Located in Stark county Northeast Ohio SERRC - Located in Trumbull county State Deafblind Projects Alabama http://www.pathfindersofal.org Alaska http://www.sesa.org/sesa/agency/programs/dsi.html Arizona http://www.azdb.org Arkansas California http://www.sfsu.edu/~cadbs/ Colorado Connecticut Delaware Florida http://www.deafblind.ufl.edu Georgia http://education.gsu.edu/georgiadeafblindproj/

34. Internet Courses On Deafblindness Internet Courses on deafblindness. Lyn Ayer, Ph.D. COURSE DESCRIPTIONS. Understandingdeafblindness Overview (DB501) presents an overview of deafblindness. http://www.ssco.esu.k12.oh.us/courses/dbcourses.html

I nternet C ourses on D eafblindness Offered by GLARCDBE, the School Study Council of Ohio and the University of Dayton The goal of this series of courses is to provide parents, service providers, and others with an introduction to the essential information for maximizing the potential of people who are deafblind. Participants should have some contact or knowledge of people who are deafblind before enrolling for the courses. Students are exposed to an overview of the heterogeneity of the population of individuals who are deafblind and the potential implications for intervention based on etiology. Age of onset of visual and hearing impairments, and other disabilities combined with vision/hearing impairments; an introduction to communication and mobility; and classroom strategies will be addressed in this series. While taking part in the courses, class members will be asked to subscribe to the philosophy that all people can learn and communicate in some form. Winter term classes begin February 7 and end April 14, 2000. INSTRUCTOR Lyn Ayer, Ph.D.

35. Deafblindness - Causes Etiologies azdb.net. Textonly version of this web site. Causes Etiologies. References forthis document. Manifestations. Etiology, Cause/Incidence, Vision. Hearing. Other. http://www.azdb.net/causes.htm

Text-only version of this web site Causes Etiologies References for this document Manifestations Etiology Cause/Incidence Vision Hearing Other Congenital Rubella Mothers infected in first 6 weeks of pregnancy have babies with 2 or 3 of the following characteristics: cataracts, deafness, severe to clinically unapparent heart disease Congenital cataracts are common, occur in 20-70% infants; pigmentary retinopathy; strabismus; glaucoma Mild to profound sensorineural loss, unilateral or bilateral; audiograms "belly- like" curves with greatest loss at 1,000 hz Cardiac defects; microcephaly; meningo- encephalitis Cytomegalo-virus, (CMV) Asymptomatic infection Blindness at birth, or progressive inflammation of eyes which can lead to blindness Deafness Microencephaly; seizures; mental retardation Syphilis Intrauterine infection or acquired during birth with contact of lesions in birth canal Blindness at birth, or progressive inflammation of eyes which can lead to blindness Deafness Anemia; bone inflammation; mental retardation; skeletal anomalies; dental abnormalities

36. What Is Deafblindness? Arizona Deafblind Project, FREE Resource For Professional Textonly version of this web site. What is deafblindness? The term deafblind refersto a combined vision and hearing loss. Back to Top. Types of deafblindness. http://www.azdb.net/whatsdb1.htm

Text-only version of this web site What is Deafblindness? The term deafblind refers to a combined vision and hearing loss. It is also known as dual sensory impairment. Very few children identified as deafblind are totally deaf and totally blind, although some are. Most of the children who qualify as deafblind have some useful vision and/or hearing, which is very important to their daily functioning. There is a wide range of cognitive and developmental ability among deafblind children, from gifted to profound multiple impairments. As many as 80% of the children identified as deafblind are reported to have additional disabling conditions. These include mental retardation, physical handicaps, social/emotional issues, and communication delays. Because deafblindness is a combination of vision and hearing losses, there are as many possible combinations as there are individuals. For this reason, no two children with deafblindness are alike. Communication and mobility are often the most affected areas of life for a person with deaf-blindness causing feelings of isolation and loneliness. Development of compensatory skills can help bridge this gap. Trainings and instructional strategies are available to parents and educators relative to communication and mobility. Upon request Arizona Deafblind Project provides assistance to families and schools to address individual needs.

37. What Causes Deafblindness What causes deafblindness? If a person develops vision and hearing loss later inlife this is called acquired deafblindness. Causes of deafblindness include http://www.dba.asn.au/aware/causes.htm

What causes deafblindness? There are many causes of deafblindness, which come under two categories: congenital deafblindness and acquired deafblindness. Congenital deafblindness is when someone is born with combined vision and hearing impairment. If a person develops vision and hearing loss later in life this is called acquired deafblindness. Causes of deafblindness include: Usher syndrome: A genetic condition in which a deaf or hearing impaired person gradually develops Retinitis Pigmentosa Maternal Rubella Cytomegalovirus – CMV Toxoplasmosis CHARGE syndrome Pre and postnatal trauma such as asphyxia, prematurity or cerebral palsy Maternal alcohol and drug addiction Illness such as meningitis Disease Infections such as encephalitis Brain tumour Head injury Ageing Disease For specific information about the causes of deafblindness, please contact The Deafblind Association. Go to Deafblind Awareness Menu DBA Home Page

38. What Is Deafblindness What is deafblindness? deafblindness (also called dual sensory loss)is the combination of both hearing and vision impairment. People http://www.dba.asn.au/aware/whatisdb.htm

What is deafblindness? Deafblindness (also called dual sensory loss) is the combination of both hearing and vision impairment. People with deafblindness have varying degrees of combined hearing and vision impairment. Eg: A person may be hard of hearing and totally blind, or profoundly deaf and partially sighted, or have nearly complete loss of both senses. The support required for each person is highly individualised, depending on the degree of hearing and sight loss. Approximately 90% of the information we receive about the world comes through our vision and hearing. A person with deafblindness experiences the world through using residual vision and hearing, and by using touch, smell and taste to make sense of the world. A person with deafblindness may experience difficulty accessing the community (mobility) and communicating with others. Professional staff from The Deafbind Association provide specialised support to people to enhance participation in and access to the community. Additional support and assistance is provided by people in the community who interact with people who are deafblind For further information about dual-sensory loss, please contact

39. Etiologies Of Deafblindness ETIOLOGIES OF deafblindness AND IMPLICATIONS FOR COMMUNICATION. (from a paperpresented at the 1998 Renwick College Winter School on deafblindness). http://home.connexus.net.au/~dba/etiol.htm

ETIOLOGIES OF DEAFBLINDNESS AND IMPLICATIONS FOR COMMUNICATION by Kirralee Lewis , The Deaf-Blind Association (from a paper presented at the 1998 Renwick College Winter School on Deafblindness) Understanding etiologies can provide vital information to families and services providers that: ·assists in explaining characteristics and behaviours; ·indicates whether the condition is degenerative or stable; ·indicates medical needs; ·guides decisions for educational instruction, adaptation, orientation and mobility, and communication methods. Diagnosis Diagnosis may be difficult for a number of reasons: ·Genetic evaluations and studies of environmental factors do not always display clear results; ·Many hearing and vision evaluations may be inconclusive; ·Individuals with deafblindness may have additional disabilities; ·Definite diagnosis may be insufficient due to medical knowledge and technology. A diagnosis acts as a guideline for information. It should not be used as a limiting factor of all the things a person can and cannot do. It does not totally predict an individuals academic, vocational or independent living success.

40. Australian National Deafblindness Conference 2000 Papers Australian National deafblindness Conference Fremantle, Western Australia, April2000. PAPERS. Meredith Prain, Assisting Adults with Acquired deafblindness to http://home.connexus.net.au/~dba/papers.htm

Australian National Deafblindness Conference Fremantle, Western Australia, April 2000 PAPERS The following papers were presented at the Australian National Deafblindness Conference and can be downloaded here. The papers have also been zipped into one file for easy downloading - the size of the zip file with the Word format papers is 135 kb and the text format zip file is 76 kb. If you have problems, e-mail ADBC Graham Hicks KEYNOTE ADDRESS Keeping in Touch Beyond 2000 Download Word version Download text only version Jacqueline Hicks Deafblind UK Download text only version Carolyn Palmer Children with Cortical Vision Impairment - Implications for Education Download Word version Download text only version Meryle Trentini and Michelle Stevens The Link - Breaking through the Isolation of Deafblindness Download Word version Download text only version Kirralee Lewis Developing Employment Opportunities for People who are Deafblind in Victoria Download Word version Download text only version Tony Cavedon Developing a new Client-Centred Assertive Support Model with Deafblind People Download Word version Download text only version Dr Michael Steer (paper read at conference by Dr Rod Beattie) Magill Action Plans: Getting your Act together for Students who are Deafblind Download Word version Download text only version Dr George Williams Do we Need to Change our Conduct and Language in Developmental Disability?

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