81. Www2.dal.ca/distsite/frank/cf.html cystic fibrosiscystic fibrosis Therapeutic Options For Comanagement. Patrick L. Bufi, ND. Abstract. References. 1. Fitzsimmons S. The changing epidemiology of cystic fibrosis. http://www2.dal.ca/distsite/frank/cf.html

82. Neptune Pictures Film and video company dedicated to the art of storytelling. Projects include Thunderpoint, The Seventh Day and the cystic fibrosis film SWAY. http://neptunepictures.com/

83. GeneReviews: Cystic Fibrosis Your browser does not support HTML frames so you must view cystic fibrosis in a slightly less readable form. Please follow this link to do so. http://www.geneclinics.org/profiles/cf/

Your browser does not support HTML frames so you must view Cystic Fibrosis in a slightly less readable form. Please follow this link to do so.

84. Cystic Fibrosis cystic fibrosis national and international groups, clinics with genetic counselors and geneticists. Image cystic fibrosis. Cystic http://www.kumc.edu/gec/support/cystic_f.html

Cystic Fibrosis Cystic Fibrosis Foundation 6931 Arlington Road Bethesda, MD 20814 Phone: (800) 344-4823 [FIGHT-CF] or (301) 951-4422 Fax: (301) 951-6378 E-mail: info@cff.org Web site: www.cff.org/ Chapters and Care Centers Teachers Guide to Cystic Fibrosis Legislataive Action ... What is CF International Sites: Association Quebecoise de Fibrose Kystique , Canada, french Belgian Cystic Fibrosis Association , flemish, french Cystic Fibrosis Foundation Canada, research, chapters, clinics, therapy english, french Cystic Fibrosis Worldwide merge of International Cystic Fibrosis Adults (IACFA) and International Cystic Fibrosis (Mucoviscidosis) Association ICF(M)A or (ICFMA) CF - Selbsthilfe Bundesverband e.V , german la Fibrosis Quistica (FQ), JM Pulido, Spain Fibrosis Quistica , AE González Menéndez, Spain Landsforeningen til Bekæmpelse af Cystisk Fibrose Danish CF Association Mukoviszidose e.V. (German CF Association) Nederlandse Cystic Fibrosis Stichting (Dutch CF Association, The Netherlands, English section) S.O.S. Mucoviscidose

85. Cystic Fibrosis - Information And Support Resources Page with basic information on cystic fibrosis symptoms, incidence in people of Jewish descent (Ashkenazi Jews), diagnosis, treatment, and screening. http://www.mazornet.com/genetics/cystic_fibrosis.asp

Jewish Genetic Diseases A Mazornet Guide VISIT MazorNet's other Jewish Guides The MazorNet-Jewish Celebrations Kosher Restaurant Guide The MazorNet- Jewish Celebrations Vendor Directory ( ... Photographers, Kosher Caterers, Bridal Gowns, and Much More) Important Information Home Page Genetic Counseling and Screening Genetic Screening Laboratories - A Directory A Brief Key to Basic Genetic ... s Select Disorder Bloom's Syndrome Breast and Ovarian Cancers Breast Cancers - Prevention and Resources Canavan Disease ... Ulcerative Colitis Recommended Reeading Genetic Diversity Among Jews - Diseases and Markers at the DNA Level Provides an authoritative, up-to-date account of the impact of molecular genetics on our understanding of genetic diseases prevalent among Jews. Jewish Genetic Disorders : A Layman's Guide Guide to genetic disorders that tend to affect the Jewish population more than the non-Jewish, including a short history of the Jews and basic facts concerning genetics and genetic disorders. Interactive Jewish Genetic Diseases Boards Cystic Fibrosis Symptoms Incidence in People of Jewish Descent Diagnosis Treatment ... Resources and More Cystic Fibrosis is an inherited disorder that causes problems with breathing and digestion. The majority of people stricken with Cystic Fibrosis are diagnosed in childhood.

86. Informationdocuments From the European Thematic Network for cystic fibrosis. In depth information in PDF. http://www.med.kuleuven.ac.be/cme/cf/Informationdocuments.htm

European Thematic Network for Cystic Fibrosis Information documents A manual for Cystic Fibrosis patients and their families A manual for the CF patients and their families has been designed to provide cystic fibrosis-patients and their families a better understanding of the disease. This leaflet is part of a European initiative undertaken by the European Concerted Action for Cystic Fibrosis. The text is based on the manual of the World Health Organisation (WHO) and the International Cystic Fibrosis (Mucoviscidosis) Association (ICF(M)A). The manual includes the following topics: what is cystic fibrosis what happens in the lungs what happens in the pancreas when to suspect cystic fibrosis how is cystic fibrosis inherited from the parents treatment of cystic fibrosis hospital relatives and friends you are not alone These leaflets are presently available in sixteen languages: English French German Spanish ... Polish and Macedonian version We would like to thank the translators (translation bureau of AstraZeneca Diagnostics, Milan Macek Jr., Katarina Stepankova, Adriana Zigova, Antonija Redovnikovic, Branko Simat, Jadranka Sertic, Zita Krumina, Dragica Radojkovic, Tatyana K. Kascheeva, Ludmila A. Livshits, Natalia V. Gryschenko, Krisztina Nemeth, Gyorgy Fekete, V. Kucinskas, A. Utkus, J. Kasnauskiene, K. Konciute, Michal Witt, Lucyna Majka, Svetlana Koceva) for all their efforts and cooperation, Orchid, Innogenetics and Nanogen for printing these manuals!

87. Cystic Fibrosis: What Is It? Your Genes, Your Health, DNA Learning Center s multimedia guide to genetic, inherited disorders cystic fibrosis, autosomal recessive, mutation, genetic http://www.ygyh.org/cf/whatisit.htm

Concept 1 : Children resemble their parents. Learn how Mendel worked out inheritance in pea plants. Concept 10 : Chromosomes carry genes. Find out how genes are arranged on chromosomes. Concept 27 : Mutations are changes in genetic information. Find out how mutations affect gene expression.

88. Cystic Fibrosis Article detailing therapeutic options for comanagement. http://www.thorne.com/altmedrev/fulltext/cystic.html

Cystic Fibrosis: Therapeutic Options For Co-management. Patrick L. Bufi, N.D. Abstract Introduction Cystic fibrosis (CF) is the most common lethal autosomal recessive disease found in the Caucasian population, with a frequency of approximately one in 2,500 births. There are at least 500 different genetic mutations associated with the disease, thus making homozygous and heterozygous screening procedures difficult. However, approximately 70% of the mutations are found to be delta F508, making it the most common CF mutation. Delta F508 mutation is consistently associated with a single haplotype "B" which seems to support a "selective advantage" hypothesis. The possible selective advantage for the carriers of CF mutations (heterozygote advantage) could be a defense against the profuse diarrhea and fluid loss seen in cholera. Other selective advantage ideas exist as well. The hypothesis of increased resistance to human strain Mycobacterium tuberculosis, increased resistance to influenza, and protection against bronchial asthma in childhood and early adult life all present interesting possibilities. The primary CF defect is expressed as altered ion transport via the cystic fibrosis transmembrane conductance regulator (CFTR), which is the protein regulating cyclic-AMP-mediated chloride conductance at the apical membranes of secretory epithelia.

89. The Boomer Esiason Foundation - Fighting Cystic Fibrosis BEF, Donate, About Us, cystic fibrosis, News, BEF Store, Events. May is CF Awareness Month CF Awareness Month Poster CF Awareness Month http://esiason.org/

AC_VHost_Embed_9808(188,250,'FFFFFF',1,1,134729,0,0,0,'85f12d7de130ee79a59f119fbc25081f',6); Call To Action: S.1053 Genetic Information Nondiscrimination Act Last October the Senate in a bipartisan vote unanimously passed S.1053 Genetic Information Nondiscrimination Act of 2003. Since then no action has been taken by our representatives in Congress. We need your help in getting this important legislation passed into law, write your U.S. representative and ask them to take action and pass S.1053. Contact Your Elected Officia ls Sample Letter (MS WORD .DOC) S.1053 Genetic Information Nondiscrimination Act of 2003 Samsung's Four Season's of Hope Charity Webcast- June 7, 2004 at 8:30 pm (EDT). Click here for webcast

90. 112 Voor Cystic Fibrosis [Spreek Je Moerstaal.nl] Actiedag van hulpverleners voor cystic fibrosis. http://www.112actie.zaandamnet.nl/

112 voor Cystic Fibrosis Actiedag van hulpverleners voor CF patienten Deze pagina vereist frames en javascript....

91. Cystic Fibrosis Carrier Testing: The Decision Is Yours This booklet was prepared to give you information about cystic fibrosis (CF) and CF carrier testing. Carrier What is cystic fibrosis? Cystic http://www.acog.org/from_home/wellness/cf001.htm

T his booklet was prepared to give you information about cystic fibrosis (CF) and CF carrier testing. Carrier testing is being made available to you on a voluntary basis. Testing can be right for some people and not right for others based on many factors. These include your level of risk, your family situation, plans and needs, and your religious and spiritual beliefs. Whether or not you are tested is a personal decision that belongs to you and your baby's father. Before deciding, you should read this booklet so you understand what CF is and what carrier testing is about. On page 9 of this booklet, there is space for you to write down any questions you may have. Whether or not you are tested is a personal decision that belongs to you and your baby's father. If, after reading the booklet, you want to be tested, or simply want to know more about the test, you should tell your health care provider that you are interested in learning more about CF carrier testing. You may also want to check to make certain that the cost of CF testing is covered by your insurance company. What is cystic fibrosis?

92. Connecticut Children's Medical Center: Pulmonary Medicine Provides services for children of all ages with asthma, apparent life threatening events, and bronchopulmonary dysplasia, as well as children and adults with cystic fibrosis. http://www.ccmckids.org/departments/pulm.htm

Staff Office Locations The Pulmonary Division provides services for children of all ages with asthma , apparent life threatening events, and bronchopulmonary dysplasia, (the Chronic Infant Lung Disease (ChILD) Program). The Division also provides care for children and adults with cystic fibrosis as well as for children with all types of acute and chronic respiratory disease. Fiberoptic bronchoscopy, pulmonary function testing for infants and older children including exercise testing and bronchial challenge testing can be performed by members of the division. Sweat tests may be ordered by contacting the Division. Office Locations Location: 2B Telephone: 860.545.9440 After hours: 860.545.9440 Pulmonary Function Lab: 860.545.9447 Fax: 860.545.9445 Home About Us Children Departments ... Website Information

93. MayoClinic.com - Cystic Fibrosis It used to be that most people with cystic fibrosis didn t live beyond their teens. May 20, 2004. More Information. cystic fibrosis By Mayo Clinic staff Overview http://www.mayoclinic.com/invoke.cfm?id=DS00287

94. ClinicalTrials.gov - Information On Clinical Trials And Human Research Studies: 1. Recruiting, Safety and Efficacy of Recombinant AdenoAssociated Virus containing CFTR in the treatment of cystic fibrosis Condition cystic fibrosis. http://www.clinicaltrials.gov/search/term=cystic fibrosis

Home Search Browse Resources ... About Search results for cystic fibrosis [ALL-FIELDS] are shown below. Include trials that are no longer recruiting patients. 19 studies were found. Recruiting Tissue Collection from People with Cystic Fibrosis Condition: Cystic Fibrosis Recruiting Studying Patients with Cystic Fibrosis and Other Pulmonary and Pancreatic Disorders Conditions: Bronchiectasis; Cystic Fibrosis; Pancreatic Insufficiency Recruiting Safety and Efficacy of Recombinant Adeno-Associated Virus containing CFTR in the treatment of Cystic Fibrosis Condition: Cystic Fibrosis Recruiting Safety and Efficacy Study of Nutropin AQ to Treat Growth Restriction in Children with Cystic Fibrosis Condition: Cystic Fibrosis Recruiting Study of Tauroursodeoxycholic Acid for Hepatobiliary Disease in Cystic Fibrosis Condition: Cystic Fibrosis Recruiting Study of Hepatic Glucose Production and De novo Lipogenesis in Patients With Cystic Fibrosis Condition: Cystic Fibrosis Recruiting Phase II Study of Growth Hormone in Children With Cystic Fibrosis Condition: Cystic Fibrosis Recruiting Study of Total Energy Expenditure in Infants and Children With Moderate to Severe Cystic Fibrosis Condition: Cystic Fibrosis Recruiting A Pilot Trial of Phenylbutyrate/Genistein Duotherapy (for Cystic Fibrosis) Condition: Cystic Fibrosis Recruiting Randomized Study of Alendronate in Adult Patients With Cystic Fibrosis Related Osteoporosis Conditions: Osteoporosis; Cystic Fibrosis

95. Connecticut Children's Medical Center: Otolaryngology Special programs include a pediatric cochlear implant program, endoscopic sinus surgery for children with cystic fibrosis, and a program for management of the pediatric artificial airway. http://www.ccmckids.org/departments/otol.htm

Staff Office Locations Links The Department of Otolaryngology maintains a full service pediatric program. In addition, special programs include a pediatric cochlear implant program, endoscopic sinus surgery for children with cystic fibrosis, and a program for management of the pediatric artificial airway. The service coordinates its activities as part of the craniofacial team to serve these children with special needs. OFFICE LOCATIONS CCMC: 2K Telephone: 860.545.9650 Fax: 860.545.9214 Satellite Offices: All appointments are made by calling the Hartford office, 860.545.9650. Glastonbury Hartford Hospital Healthcare Center, Suite 204 704 Hebron Avenue I-84 East or West Take Exit 55 (Rte 2E) Follow Rte. 2E to Exit 8 (CT-94/Hebron Ave) At end of ramp, turn Left onto Hebron Ave At 3rd light, turn right onto Oakwood Drive The Hartford Hospital Healthcare Center Building is on your immediate left- Turn Left into parking lot From Eastern CT Take Rte 2W towards Hartford Follow Rte. 2W to Exit 8 (CT-94/Hebron Ave)

96. Cystic Fibrosis Research Directions Every year, 1,000 children with cystic fibrosis (CF) are born in the United States. One in 3,000 Caucasian babies have the disorder http://www.niddk.nih.gov/health/endo/pubs/cystic/cystic.htm

Symptoms of CF New Approaches to CF Treatment The Molecular Basis of CF Gene TherapyA Look Into the Future Every year, 1,000 children with cystic fibrosis (CF) are born in the United States. One in 3,000 Caucasian babies have the disorder, making CF one of the most common lethal genetic diseases in Caucasians. Overall, there are 30,000 Americans with CF, and an estimated 8 million people carry one copy of the defective gene that causes the disease. These carriers do not have symptoms of CF, because a person must inherit two defective gene copies-one from each parent-to develop the disease. However, each child of two CF carriers has a one in four chance of being born with CF. Genetic testing is now available to identify couples at risk for having children with CF. Improved therapy has transformed CF from a disease characterized by death in early childhood to a chronic illness, with most patients living to adulthood. But despite this progress, there still is no cure for the disease and most patients eventually succumb to infections of the airways and lung failure. Since the 1989 identification of the gene which is altered in CF, the pace of basic research has increased rapidly, and scientists hope to translate new knowledge about the molecular basis of the disease to new therapies to improve the lives of patients with this genetic disease. The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), in partnership with other components of the National Institutes of Health and the Cystic Fibrosis Foundation, continues to foster research on the molecular processes contributing to CF, exploration of gene therapy to cure the disease, and efforts to develop other new and effective treatments.

97. Medical References: Cystic Fibrosis cystic fibrosis is an inherited disease that most commonly affects breathing and digestion. There is them. What Is cystic fibrosis? CF http://www.marchofdimes.com/professionals/681_1213.asp

View All Chapters Find Your Local Chapter June 2, 2004 Select one Folic Acid Pregnancy Prenatal Screening Infections/Diseases Loss Concerns Newborn Information Birth Defects Polio Genetics Research Funding Perinatal Statistics Medical References Continuing Education ... Prematurity Quick Reference and Fact Sheets Cystic Fibrosis Cystic fibrosis (CF) is an inherited disease that most commonly affects breathing and digestion. Advances in medical treatment continue to improve the outlook for affected children and adults. However, there is no cure. Most affected individuals survive to about age 30, though some die in childhood and others live to age 40 or beyond. The abnormal gene that causes CF was discovered in 1989. This discovery led to the development of tests that can help determine whether or not couples carry an abnormal gene that can cause CF in their children. Testing usually is offered to couples with a family history of this disease, though now health care providers also are offering this test to couples without a family history of CF who are planning pregnancy or who are already pregnant. Couples will be better able to decide whether they want to have the carrier test if they understand the medical problems that CF can cause and what the tests can and cannot tell them. What Is Cystic Fibrosis?

98. Cystic Fibrosis Foundation ... Adding Tomorrows Every Day Works to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. Features news, volunteer opportunities and events. http://www.cff.org/chapters_and_care_centers/chapter_detail.cfm?chapterID=18&

99. National Human Genome Research Institute - Learning About Cystic Fibrosis Answers to frequently asked questions about cystic fibrosis, published by the National Human Genome Research Institute. Learning About cystic fibrosis. http://www.genome.gov/10001213

Talking Glossary of Genetic Terms Frequently Asked Questions about Genetics Clinical Research Online Health Resources ... Specific Genetic Disorders Learning About Cystic Fibrosis Learning About Cystic Fibrosis What do we know about heredity and cystic fibrosis? Is there a test for the cystic fibrosis gene? NHGRI Clinical Research on Cystic Fibrosis Additional Resources for Cystic Fibrosis Information What do we know about heredity and cystic fibrosis? Cystic fibrosis (CF) is the most common, fatal genetic disease in the United States. About 30,000 people in the United States have the disease. CF causes the body to produce thick, sticky mucus that clogs the lungs, leads to infection, and blocks the pancreas, which stops digestive enzymes from reaching the intestine where they are required in order to digest food. Cystic Fibrosis: A Single Gene Disease Mutations in a single gene - the Cystic Fibrosis Transmembrane Regulator (CFTR) gene - causes CF. The gene was discovered in 1989. Since then, more than 900 mutations of this single gene have been identified. In normal cells, the CFTR protein acts as a channel that allows cells to release chloride and other ions. But in people with CF, this protein is defective and the cells do not release the chloride. The result is an improper salt balance in the cells and thick, sticky mucus. Researchers are focusing on ways to cure CF by correcting the defective gene, or correcting the defective protein.

100. Welcome To Cystic Fibrosis Western Australia Includes a calendar of events, information for people with CF who travel to Australia from other countries (what their healthcare entitlements are), pointers for teachers of children with CF, and a list of services and support. http://www.cysticfibrosiswa.org

Cystic Fibrosis WA website is sponsored in memory of David Goldberg Welcome to Cystic Fibrosis Western Australia COMING EVENTS CFWA Raffle Member seminar 15th May Country Mums' Weekend 28th-30th May Siblings workshop 8th June SEE COMING EVENTS PAGE FOR INFO The Niche 11 Aberdare Rd (Cnr Hospital Ave), Nedlands WA 6009 PO Box 959, Nedlands WA 6909 Ph: (08) 9346 7333 Fax: 9346 7344 Freecall: 1800 678 766 Last Update: Friday, April 16, 2004 L.J. Hooker Supporting Cystic Fibrosis Australia All queries to info@cysticfibrosiswa.org Download our

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