61. Medical Library: JAMA Patient Page cystic fibrosis. cystic fibrosis is an inherited disease that affects tissues that produce mucus secretions. What Is cystic fibrosis? http://www.medem.com/medlb/article_detaillb.cfm?article_ID=ZZZIX1MDUEC&sub_cat=5

62. Fish Oils And Emphysema/cystic Fibrosis Summaries of the latest research concerning fish oils and emphysema and cystic fibrosis. http://www.oilofpisces.com/emphysema.html

Fish Oils and Emphysema/Cystic Fibrosis Summaries of the latest research concerning fish oils and emphysema/cystic fibrosis Lung disease and fish oils - A review of the evidence BOSTON, MASSACHUSETTS. The idea that fish and fish oils may protect against lung disease developed from early studies of the dietary habits of Greenland Eskimos. Dr. D.F. Horrobin hypothesized that the high content of omega-3 fatty acids in the Eskimo diet is at least partially responsible for the low prevalence of lung disease in this population group. This makes biological sense inasmuch as omega-3 fatty acids (notably from fish and fish oils) are known to inhibit the synthesis of the inflammatory eicosanoids involved in lung diseases. Dr. Schwartz concludes that there is a good case for fish and fish oils being protective against the development of chronic lung diseases, but that more research is needed to establish conclusive proof of benefits. Schwartz, Joel. Role of polyunsaturated fatty acids in lung disease. American Journal of Clinical Nutrition, Vol. 71 (suppl), January 2000, pp. 393S-96S Intravenous fish oil infusion safe for CF patients NEW YORK, NY. Seriously ill cystic fibrosis (CF) patients cannot absorb fats and other nutrients properly and therefore often need infusions of essential fatty acids. These infusions are most often based on linoleic acid as many CF patients have been found to have a deficiency of this omega-6 fatty acid. There is now substantial evidence that long-chain omega-3 fatty acids found in fish oils can suppress inflammatory processes such as those involved in CF.

63. The Cystic Fibrosis (CF) Center At Stanford cystic fibrosis Center at Stanford research and clinical trials, Pediatric and Adult CF Programs, CF sweat chloride tests, education regarding pulmonary issues http://cfcenter.stanford.edu/

Banner Navigatiion Guide Main Page Thank you for visiting The CF Center at Stanford, a site dedicated to Cystic Fibrosis. Since your browser doesn't support frames, you will need to go directly to the main page

64. Canadian Cystic Fibrosis Foundation Support and resources. Located in Toronto, Ontario. http://www.cysticfibrosis.ca/

65. Cystic Fibrosis Victoria Latest information on cystic fibrosis, cystic fibrosis Victoria the organisation, online chat room, message board, 65 Roses Magazine , Secure Donations http://www.cysticfibrosisvic.org.au/

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66. Cystic Fibrosis Marathon Team Het CF marathon team dat in 2000 in New York mee deed. http://www.nikhef.nl/~jank/NY2000/

CYSTIC FIBROSIS MARATHON TEAM NEW YORK 2000 Maarten Koeman English Soms is een chronische ziekte geen belemmering om een fantastisch sportief doel voor ogen te houden. Na een jaar voorbeidingen zou Maarten Koeman ondanks zijn aandoening cystic fibrosis (CF) , in november 2000 voor de 5e maal de marathon van New York gaan lopen. Samen met een groep van 10 mede-lopers zou de 33-jarige hardloper in november 2000 in New York laten zien waar een enorme dosis doorzettingsvermogen toe kan leiden. Maar het liep allemaal een beetje anders....... Een week voor vertrek naar New York werd Maarten Koeman voor het eerst in 17 jaar opgenomen in het ziekenhuis en kon zelfs niet mee als supporter. Toch is op zijn verzoek het Cystic Fibrosis Marathon Team naar New York vertrokken met het oorspronkelijke doel: Cystic Fibrosis in de publiciteit brengen. En dat is zeker gelukt! In het weekend van 5 november is er veel aandacht geweest in de media. Verschillende TV programma's en kranten hebben meegewerkt aan deze actie. Na deze ziekenhuisopname is Maarten weer begonnen met hardlopen voor zijn gezondheid.

67. Cystic Fibrosis cystic fibrosis Links and Information http://www.goodgulf.com/cystic.html

Cystic Fibrosis Our fifteen year old son, James, has Cystic Fibrosis - CF This page is devoted to the understanding and cure of this debilitating disease. Cystic Fibrosis Foundation Canadian CF Foundation Cystic Fibrosis Victoria - Australia Cystic Fibrosis Resource Centre ... sci.med.diseases.cysticfibrosis newsgroup - not very active, how about some action here? Return to Home Page Questions, suggestions, links ? e-mail us Dudley Leaphart Billings, MT

68. Genentech Uses human genetic information to develop and manufacture pharmaceuticals such as growth hormones, tissueplasminogen activators to dissolve blood clots, and cystic fibrosis therapeutics. http://www.genentech.com/gene/index.jsp

69. Telegraph | News 'Pop singer dies after valiant battle with cystic fibrosis'. Includes details of her daily routine of oxygen, chest physiotherapy, intravenous antibiotics and taking 40 pills a day. http://www.telegraph.co.uk/news/main.jhtml?xml=/news/2003/03/08/nalice08.xml

70. NHLBI, Facts About Cystic Fibrosis Facts About cystic fibrosis. Table of Contents. What Is cystic fibrosis? How Common Is CF? For More Information. WHAT IS cystic fibrosis? http://www.nhlbi.nih.gov/health/public/lung/other/cf.htm

HOME SITE INDEX CONTACT US TIPS ... Publications Facts About Cystic Fibrosis Table of Contents What Is Cystic Fibrosis? How Common Is CF? What Are the Signs and Symptoms of CF? When Should You Suspect That a Child May Have CF? ... For More Information WHAT IS CYSTIC FIBROSIS? Cystic fibrosis (CF) is a chronic, progressive, and frequently fatal genetic (inherited) disease of the body's mucus glands. CF primarily affects the respiratory and digestive systems in children and young adults. The sweat glands and the reproductive system are also usually involved. On the average, individuals with CF have a lifespan of approximately 30 years. CF-like disease has been known for over two centuries. The name, cystic fibrosis of the pancreas, was first applied to the disease in 1938. Back to Table of Contents HOW COMMON IS CF? According to the data collected by the Cystic Fibrosis Foundation, there are about 30,000 Americans, 3,000 Canadians, and 20,000 Europeans with CF. The disease occurs mostly in whites whose ancestors came from northern Europe, although it affects all races and ethnic groups. Accordingly, it is less common in African Americans, Native Americans, and Asian Americans. Approximately 2,500 babies are born with CF each year in the United States. Also, about 1 in every 20 Americans is an unaffected carrier of an abnormal "CF gene." These 12 million people are usually unaware that they are carriers.

71. Cystic Fibrosis cystic fibrosis is a disease which affects the body s exocrine glands, including the pancreas, sweat glands, and the lungs. It is http://www.aarc.org/patient_education/tips/cystfibr.html

Cystic Fibrosis is a disease which affects the body's exocrine glands, including the pancreas, sweat glands, and the lungs. It is a hereditary disease most common in white children, occuring in about one in every 2000 births. It is less common among African-American children. (about one in 17,000 births), and even more rare among Orientals (one in 100,000 births ) The mode of inheritance is autosomal which means that it does not involve the x or y chromosomes, which determine sex. It is also recessive, which means that the disease is inherited from both parents. About five percent caucasian Americans are believed to carry the gene. The number of CF carriers is likely to increase in the future. Formerly CF patients rarely lived to adulthood, but improvements in treatment allow many to survive into their thirties or forties and have children of their own. The disease varies considerably in severity. Some cases are vary mild, and may not be diagnosed until adulthood. The probabilities of producing offspring who either have the disease or are carriers of the genetic defect are listed in figure 1. Figure 1. Probability of Having a Child With Cystic Fibrosis

72. On The Edge - May 30, 1999 A tribute to Nikki, who died as a result of cystic fibrosis on May 25, 1999. http://www.chron.com/content/interactive/voyager/edge/99/05/30/

David Galloway Previously on the Edge 5/23: Nice new toy 5/16: Bad day in ComputerLand 5/9: A great use of the Internet 5/2: A new way to browse ... On the Edge archive Lessons from an angel H eaven is an even better place this week than it was last week, with the addition of a special new angel. Marisa Nicole "Nikki" Turrentine-Hejl, my beloved stepdaughter, ended her fight with cystic fibrosis early Tuesday morning. Her mother and I and other family members were at her bedside as she took her final breath. Nikki was special to her family, and she was special to the Virtual Voyager family. She was one of our earliest voyagers when she and her mother, my dear wife Melissa, took us along with them to Australia in A Voyage Through Life . She also joined us a couple of years ago when Virtual Voyager went to Mardi Gras in New Orleans. All her family and friends, quite naturally, are sad beyond words. But in the midst of our despair, Nikki gave us many gifts, and I'd like to share a few of those with you. F irst, Nikki never lost her sense of humor. She fought this horrible disease for 22 years, and she knew the score. She didn't want to die, but by Monday morning, she knew the end was near. Carolyn, a friend and nurse who had taken care of Nikki since she was diagnosed at 5 months old, came to the room at Texas Children's Hospital and stood beside Nikki's bed for a long time as Nikki drifted in and out of consciousness. Many doctors and nurses were there with the friends and family. During one of her lucid periods, she looked up at Carolyn and said, "Fix it." Carolyn assured her everyone was doing all they knew how to do. Nikki looked up at her again and said, "Fix it, or I'm taking you with me." And this room full of people who had been so grim broke into laughter.

73. Cystic Fibrosis Ibuprofen Laboratory The cystic fibrosis Ibuprofen Laboratory (located at Case Western Reserve University in Cleveland, Ohio) provides ibuprofen analyses and therapeutic http://www.cwru.edu/affil/CFIBUPLAB/cfibuplab.htm

Cystic Fibrosis Ibuprofen Laboratory Welcome to the Cystic Fibrosis Ibuprofen Laboratory !!! ATTENTION The old URL for the Cystic Fibrosis Ibuprofen Laboratory (http://www.cwru.edu/orgs/CFIBUPLAB/cfibuplab.htm) will soon be changing. The new URL will be http://www.cwru.edu/affil/CFIBUPLAB/cfibuplab.htm. You might have been automatically redirected from the old URL to this new URL - however, this redirection will not last indefinitely, so please change your links! Thank you for your patience! The Cystic Fibrosis Ibuprofen Laboratory provides ibuprofen analyses and therapeutic recommendations to physicians treating cystic fibrosis patients with ibuprofen. WWW (greater than 2.0) browser. General Information about our Lab How we got started and what we do. For patients General Information for Patients and Families affected by CF. For Physicians and Healthcare Professionals Information for physicians and/or healthcare professionals treating patients afflicted with CF. Brief Method Description How we determine the ibuprofen levels in the patient specimens. Request Test Kit How to request a test kit.

74. Cystic Fibrosis Gene Therapy: Oxford Gene Medicine Focused on the development gene therapies for diseases of the airway, such as asthma, lung cancer and in particular, cystic fibrosis (CF). Work includes formulation development, reagent production, preclinical testing, and human clinical trials. http://users.ox.ac.uk/~genemed/default.htm

Click to enter Cystic Fibrosis is one of the most common genetic diseases. Research is directed towards developing a treatment for the pulmonary symptoms of cystic fibrosis using, primarily, non-viral (plasmid/liposome) delivery systems for gene transfer. Laboratory studies focus on understanding the factors which limit gene transfer and developing improved gene transfer reagents and delivery methods. These reagents are tested in transgenic mouse models prior to entering optimal formulations into an ongoing clinical trials programme

75. HHCS - Your One Stop Pharmacy Center Provides services needed by person with cystic fibrosis, including medicines, equipment, information newsletter and links. Delivered to homes anywhere in world. Enroll form for completion. http://hhcs.com

HHCS Health Group Your One Stop Pharmacy Center HHCS Health Group provides medications, equipment, supplies and services with a commitment to caring, quality, and cost-effectiveness. HHCS Health Group, established in 1984, is an inter-related group of health care companies involved in the care and treatment of patients. Our continuum of care is a non-fragmented holistic approach to patient care resulting in better outcomes and increased patient satisfaction. It is HHCS's commitment to offer high-quality products and medical services, affordably priced, and having a genuine concern about the patient's well-being. CORPORATE OFFICE 633 East Colonial Drive Orlando, Florida 32803 Fax (407) 897-2108 E-mail: hhcs@hhcs.com

76. Cochrane Cystic Fibrosis & Genetic Disorders Review GroupMain Page cystic fibrosis Genetic Disorders Group. cystic fibrosis . Phenylketonuria . Sickle Cell . Haemophilia . Other Genetic Disorders. http://www.liv.ac.uk/cfgd/

Cystic Fibrosis . Phenylketonuria . Sickle Cell . Haemophilia . Other Genetic Disorders About the Review Group About the Cochrane Collaboration What's New Reviewer Resources ... Contact the Group Feedback: cfgd@liv.ac.uk An international network of health care professionals, researchers and consumers preparing, maintaining, and disseminating systematic reviews of randomised control trials in the treatment of cystic fibrosis and other genetic disorders. Welcome : Click on the Cochrane Collaboration logo to enter our site Last reviewed 17 June 2002.

77. Cystic Fibrosis Information cystic fibrosis Information site containing information about CF, it s symptoms, diagnosis, treatment, coping, helpful links to other sites and hope! http://pw2.netcom.com/~yourman/webdoc1.htm

Cystic Fibrosis (CF) is the most common recessive genetic disease. CF affects approximately 30,000 children and young adults. It occurs in approximately one of every 3,300 live births. The median age of survival is 31 years. The most common symptoms of CF are salty-tasting skin; persistent coughing, wheezing or pneumonia; excessive appetite but poor weight gain; and bulky, foul-smelling stools. CF causes the body to produce an abnormally thick, sticky mucus. This abnormal mucus clogs the lungs and leads to lung infections. The thick CF mucus also obstructs the pancreas, preventing enzymes from reaching the intestines to digest food. A child must inherit a defective copy of the CF gene (one from each parent) to have cystic fibrosis. Each time two carriers conceive a child, there is a 25 percent chance that the child will have CF; a 50 percent chance that the child will be a carrier; and a 25 percent chance that the child will be a non-carrier. Cystic Fibrosis is not contagious, and therefore cannot be transmitted from person to person. The treatment of CF can include postural drainage (also called chest physical therapy [CPT]), requires vigorous percussion (by using cupped hands) on the back and chest to dislodge the thick mucus from the lungs. Antibiotics are also used to treat lung infections. CF also can affect the digestive system, the body does not absorb enough nutrients, therefore the need to eat an enriched diet and take both replacement vitamins and pancreatic enzymes.

78. OEF Stichting Ouderen En Cystic Fibrosis Voor volwassen CFpati«nten, hun partners, broers en zussen, met als doel onderling ervaringen uit te wisselen via een mailinglist. http://www.oef.nl/

79. Surviving Cystic Fibrosis 1. Don t read any newspaper or book printed prior to 1992. cystic fibrosis information changes very rapidly. Surviving cystic fibrosis In Other States. http://pw2.netcom.com/~yourman/cystic_a.htm

First things first..... 1. Don't read any newspaper or book printed prior to 1992. Cystic Fibrosis information changes very rapidly. There has been a tremendous amount of research in the last few years to give you an even brighter outlook toward the future. 2. Talk with your pediatrician. Chances are he/she may not be aware of the recent strides made with CF and paint the picture of gloom. That's not the way anymore! 3. Gather as much information about the illness and become knowledgeable about it. Ask questions.....Tell family and friends and mostly talk to other people in the same situation. You are not the only one! Many publications can be found on the internet. One good source is Amazon Books . Use their search function using cystic fibrosis. 4. Talk to other people with either CF or parents of children with CF. There are many exciting tips that you can learn from each other. 6. Contact Special Child Health Services Case Management Unit within your county. Every "special child" with either a birth defector serious illness must be registered with SCHS. The main resource number is in Trenton at 609-292-5676. They can refer you to the office in your county.

80. Copernicus Therapeutics, Inc. Developing human gene therapy products for cystic fibrosis and hemophilia B and DNA vaccinations. The company creates proprietary PLASmin Complexes which are efficient nonviral vectors and REPLIsome vectors which allow replication of non-viral vectors. http://www.cgsys.com/

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