21. Cystic Fibrosis In Beweging: Welkom! Wil de bekendheid van de ziekte cystic fibrosis onder het Nederlandse publiek te vergroten en financi«le middelen verwerven voor medisch wetenschappelijk onderzoek en projecten van de NCFS. http://www.cfib.nl/

KIES HIER WAAR U HEEN WILT! Home Cystic Fibrosis Cystic Fibrosis in Beweging Geld waarvoor? Evenementen CFiB in de media Ontmoeting met Donateur? Contact met CFiB Actie resultaten Bankrekeningnummer Cystic Fibrosis is de meest voorkomende erfelijke aandoening in Nederland met een potentieel dodelijke afloop op jonge leeftijd. In Nederland lijden 1000 tot 1200 mensen aan de ziekte. Ondanks de sterke vooruitgang in de zorg overlijdt ruim de helft van de patiënten vóór het dertigste levensjaar. De Stichting Cystic Fibrosis in Beweging (CFiB) is opgericht om de bekendheid van de ziekte Cystic Fibrosis onder het Nederlandse publiek te vergroten en financiële middelen te verwerven voor medisch wetenschappelijk onderzoek en projecten van de Nederlandse Cystic Fibrosis Stichting (NCFS) ten behoeve van de kwaliteit van leven van patiënten met Cystic Fibrosis. Op deze website vindt U meer informatie over Cystic Fibrosis, de stichting CFiB en de NCFS, over de projecten die met de opbrengsten van de CFiB gefinancierd zullen kunnen gaan worden. CFiB

22. Cystic Fibrosis cystic fibrosis. ©. SCIENTIFIC AMERICAN, December, 1995 In any case, the cystic fibrosis article cited above will not be available from the Human Biology web site http://www.people.virginia.edu/~rjh9u/cfsciam.html

Cystic Fibrosis December, 1995 The genetic defects underlying this lethal disease have now been shown to eliminate or hobble a critical channel through which a constituent of salt enters and leaves cells by Michael J. Welsh and Alan E. Smith Notice: Scientific American According to Linda Hertz , permissions and rights manager at Scientific American , the magazine cannot grant electronic rights for copies of their articles. However, it is possible to subscribe to the digital version of Scientific American which has monthly issues from 1993 forward. It is not clear if all articles in each issue are available in digital form. And, there is a subscription cost. In any case, the Cystic Fibrosis article cited above will not be available from the Human Biology web site. Maintained by Robert J. Huskey last updated February 12, 2003.

23. MedlinePlus Medical Encyclopedia: Cystic Fibrosis cystic fibrosis. cystic fibrosis is an inherited disease that affects sodium channels in the body and causes respiratory and digestive problems. http://www.nlm.nih.gov/medlineplus/ency/article/000107.htm

@import url(http://www.nlm.nih.gov/medlineplus/images/advanced.css); Skip navigation Medical Encyclopedia Other encyclopedia topics: A-Ag Ah-Ap Aq-Az B-Bk ... Z Cystic fibrosis Contents of this page: Illustrations Definition Causes, incidence, and risk factors Symptoms ... Prevention Illustrations Clubbing Postural drainage Clubbed fingers Cystic fibrosis Definition Return to top Cystic fibrosis is an inherited disease that affects sodium channels in the body and causes respiratory and digestive problems. Causes, incidence, and risk factors Return to top Cystic fibrosis affects the mucus and sweat glands of the body and is caused by a defective gene. Thick mucus is formed in the breathing passages of the lungs and this predisposes the person to chronic lung infections. Many pancreatic enzymes involved in the breakdown and absorption of fats in the intestine are absent, causing malabsorption (inadequate absorption of nutrients from the intestinal tract) and malnutrition. Most males with cystic fibrosis are infertile. About one in 2500 Caucasians is affected, and 2-5% of Caucasians carry the cystic fibrosis gene. It is the most common fatal hereditary disorder affecting Caucasians in the United States. It is most common among Caucasians of Northern or Central European descent and is much less common in other ethnic groups. Risk factors include a family history of cystic fibrosis or unexplained infant death.

24. HHMI: In The Lab HHMI investigators have been involved in many important recent advances, from the discovery of genes related to cystic fibrosis, obesity, and other diseases, to new insights about how human cells develop or communicate. http://www.hhmi.org/home/research/index.html

IN THE LAB HHMI INVESTIGATORS HHMI INVESTIGATOR ALUMNI HHMI PROFESSORS INTERNATIONAL RESEARCH SCHOLARS ... HHMI HOME There currently are about 330 Howard Hughes Medical Institute investigators. Widely recognized for their creativity and productivity, they include several Nobel Prize winners and more than 70 members of the National Academy of Sciences. HHMI investigators have been involved in many important recent advances, from the discovery of genes related to cystic fibrosis, obesity, and other diseases, to new insights about how human cells develop or communicate. The scientists are employed by HHMI and conduct their work at HHMI facilities at leading research institutions nationwide under collaborative relationships with those institutions. Top of Page Howard Hughes Medical Institute 4000 Jones Bridge Road Chevy Chase, MD 20815-6789 E-mail: webmaster@hhmi.org

25. Alice Martineau Official site. Photos, forum, her music, and information about cystic fibrosis, from which she died. http://www.alicemartineau.com/

26. Cystic Fibrosis Mutation Database Database of cystic fibrosis mutations plus other relevant information on these mutations. http://www.genet.sickkids.on.ca/cftr/

27. PUSH4Johnny.com Pictures and articles about his life and his battle with cystic fibrosis. Includes poetry, a video tribute and information about the Bowl for Breath fundraising drive. http://push4johnny.com/

Welcome to: PUSH4Johnny.com P ray U ntil S omething H appens For the Cure for C.F. Urgent Request! A Young Man With Cystic Fibrosis Michael Livingston Please Help us raise money to get Michael a new set of lungs He has Cystic Fibrosis and is on the list for a double lung transplant. The family is raising money for his transplant. Here is the information, to send donations. Lungs for Michael Or Click on Donations / Michael I remember, I remember and how sweet the memory Of that precious, magic moment when first you smiled at me I remember, I remember the day you learned to walk, And the sweet amazing things you said while learning how to talk. I remember, I remember that handsome little boy, Pretending he was Superman, and playing with his toys. I remember, I remember the stories you would tell, That made us laugh, You loved to laugh, and you made us laugh so well. I remember, I remember all the courage you always showed. Even though the burden of C.F was such a heavy load.

28. Transgene Gene therapy company based in France is developing products for cancer and cystic fibrosis. Vector platforms include adenovirus, retrovirus, vaccinia virus, cellular and synthetic vectors. http://www.transgene.fr

Immunotherapy to fight cancer Home page Site Map Contact Us Search Corporate Overview History Products Locations ... News Company Profile Product Pipeline Cancer vaccines MVA-MUC1-IL2 : Phase II MVA-HPV-IL2 : Phase II Immune enhancement Ad-IL2 : Phase I/II Phase I/II Other programs Preclinical Production Since 1995, Transgene operates its own multi-use, multi-product manufacturing News Press Releases May 12, 2004 Transgene to present data at 2004 ASCO annual meeting ... May 5, 2004 Transgene announces First Quarter 2004 Financial Results ... Next Conferences May 12 to 14, 2004 Healthcare Conference ... Stock Quotes Date : 06.02.2004 (delayed) Last : Volume : Change : Nasdaq Last : $ 3.53(c) Volume : Change : Shareholder's Meeting on june 9, 2004 (Paris) Clinical Trials Job Opportunities French version Webm@ster

29. -+=CFRI=+- Cystic Fibrosis Research, Inc. http://www.cfri.org/home.htm

30. Canadian Cystic Fibrosis Foundation http://www.ccff.ca/

31. World Cup 2002 Pool Prizes for predicting the top four teams. Payto-play. Percentage goes to the Canadian cystic fibrosis Foundation. http://www.geocities.com/worldcup2002pool/

This site is a member of WebRing. To browse visit WORLD CUP 2002 POOL Welcome to the World Cup 2002 Pool. Simply predict the top 4 performing teams in the 2002 FIFA World Cup This Pool is now closed for entries Click here for the Standings Cash Prizes! There will be 2 winners to this Pool - the Pool Entry finishing in 1st Place and the CCFF - as each will receive 28% of the total Entry Fees received ($5 / Entry). We received 71 Entries. The Prize Money is as follows: CCFF : $118.18 1st Place : $118.18 2nd Place : $24.85 3rd Place : $6.21 4th Place : $1.55 5th - 71st Place : $0.70 Actually, our software was able to handle over 65,000 entries. So if you didn't enter then come back in 2006 and let's make this a little bigger! Enter Here Standings Prize Money FIFA ... A little more background... var site="s10worldcup2002pool" In off the Post - click here Japan-South Korea-2002-Japan-South Korea-2002-Japan-South Korea-2002-Japan-South Korea-2002-Japan-South Korea-2002

32. Genetic Disorders: The Links To Diet Explores the role of diet in birth defects and genetic disorders. Includes nutritional links to disorders such as Down syndrome, cerebral palsy, homocystinuria, and cystic fibrosis. http://www.ctds.info/genetic_disorders.html

Con nective Tissue Disorder Home Search Site Map ... Links Genetic Disorders The Links to Diet Read my Contents: Overview Genetic Disorders and Birth Defects Treatable Through Diet Prenatal Nutrition and Birth Defects Genetic Disorders, Birth Defects and Logic ... General Information on Genes, Nutrition and Disease Overview Many researchers and support groups state that birth defects and genetic disorders, especially connective tissue disorders such as Marfan syndrome osteogenesis imperfecta and Ehlers-Danlos syndrome , can't possibly be cured through diet because they are inherited genetic disorders. This conclusion is invalid simply because many birth defects and inherited genetic disorders have been found to be improved, or even cured, through diet. The old school of thinking that a birth defect or inherited disorder had to be caused by a single gene is no longer widely held in medical circles. The breakthrough concept in research is that many birth defects and inherited disorders are influenced by both genes and environmental factors, especially nutrition. Genes may make people susceptible to certain defects and disorders, but they are often only a part of the picture. Some interesting examples and articles on the subject are listed below.

33. ScienceDirect - Journal Of Cystic Fibrosis - List Of Issues cystic fibrosiscystic fibrosis. And, there is a subscription cost. In any case, the cystic fibrosis article cited above will not be available from the Human Biology web site. http://www.sciencedirect.com/science/journal/15691993

This Feature requires JavaScript Register or Login: Password: Athens Login Journal of Cystic Fibrosis Bookmark this page as: http://www.sciencedirect.com/science/journal/15691993 Volume 3 Volume 3, Issue 1 , Pages 1-62 (March 2004) Volume 2 Volume 1 Alert me when new Journal Issues are available Add this journal to My Favorite Journals Sample Issue Online More Publication Info Information for Authors The Journal of Cystic Fibrosis is the official Journal of the European Cystic Fibrosis Society ... Elsevier B.V.

34. A-Z Medical Directory & Electronic Journal For AIDS, Cancer, Cystic Fibrosis And AZ listings for over 4,000 treatment centers, research institutes, charities and hospitals in the areas of AIDS/HIV, Diabetes, cystic fibrosis and cancer. http://www.cellscience.com

directory for health care, charity and research Cancer Cystic Fibrosis Diabetes Journal ... submit site

35. Cystic Fibrosis Links cystic fibrosis Web Links. Body areas affected in CF; cystic fibrosis (as described in Scientific American, 1995); Possible Relation http://www.people.virginia.edu/~rjh9u/cflinks.html

Cystic Fibrosis Web Links Body areas affected in CF Cystic Fibrosis (as described in Scientific American Possible Relation Between Cystic Fibrosis and Cholera Regulation of Adenyl Cyclase Cholera and Viral Infection of a Bacterium Cystic Fibrosis and Typhoid Fever ... Cystic Fibrosis (maintained by a woman with CF) PNAS Article on CFTR Function EMBO Journal Article on Human CFTR Mutant Gene in a Mouse Canadian Data Base on CF Canadian CF Foundation ... CF Links (Stanford) Emerging Infections Information (Yale) Monitoring Cholera from the Sky Cholera on the Oregon Trail Love in the Time of Cholera Cholera in Victorian England ... Cholera in Kansas (avian) Cholera (The World Traveler) CF Web Project This document maintained by Robert J. Huskey Last updated on July 7, 2000.

36. Howard Hughes Medical Institute | Biomedical Research & Science Education (HHMI) Biomedical research, grants. HHMI investigators contributed to the discovery of genes related to diseases such as cystic fibrosis and obesity, and to basic understanding of cell development and communication. Scientists are employed by HHMI and conduct their work at HHMI facilities at leading research institutions nationwide. Web site has extensive news and information on recent research findings. http://www.hhmi.org/

Noticias del HHMI Info for Journalists Get HHMI News via E-mail Research News Archive ... "Noisy" Genes Can Have Big Impact Can randomness in gene expression lead to differences in cells that are genetically identical? posted 05/27/04 Researchers Identify Avian Counterpart to Mammalian Antibody Receptor HHMI researchers isolate a receptor in chickens that transfers antibodies from mother to offspring. posted 05/24/04 Genetic Comparison of Purebred Dogs Yields Surprises The first detailed genetic comparison of purebred domestic dogs promises to rewrite the textbooks. posted 05/21/04 Photo courtesy of Harvey Mudd College. The Spring 2004 Bulletin is online Genes and Longevity.....Helen Hobbs....Brett Finlay....Science in Chile...and more. Maryland high school student Nancy Kim spends her afternoons doing research at the National Institutes of Health, as an HHMI-NIH intern. Predoctoral research fellow Ninet Sinaii, at left, helps mentor her. Seeking Scientists HHMI to add as many as 50 new scientists in the field of biomedical research through a national competition. The $50 Million Solution HHMI awards undergraduate science grants to 42 colleges in 17 states and Puerto Rico.

37. Research Interests Studies of cystic fibrosis gene therapy. From the University of Edinburgh in Scotland. http://www.ed.ac.uk/~pthorpe/research.htm

Research Interests Gene Correction of Cystic Fibrosis mutations (1999-) Cystic Fibrosis Gene Therapy Assays (1997-1999) Type I Restriction and Modification Systems (1990-1996) Cystic Fibrosis and Gene Therapy Cystic Fibrosis (CF) and our Gene Therapy research (including lab. Publications) are briefly summarised as part of the Medical Genetics Cystic Fibrosis group within the Medical Genetics Section . Note this site is still under development. Correction of Cystic Fibrosis Mutations 1999- Click here - our current research is detailed on a separate page Cystic Fibrosis Gene Therapy Assays 1997-1999 At the MRC Human Genetics Unit Edinburgh. My research was involved with developing and utilising a variety of assays to study the efficacy of gene delivery and expression of our Gene Therapy reagents. We used quantitative PCR in situ hybridisation to study gene delivery to the lungs; and epitope tagged versions of CFTR to study protein synthesis and localisation. The aim is to have available an array of assays which enable a thorough analysis of the efficiency of gene therapy reagents in all experimental systems, including potential clinical trials. References;

38. Nederlandse Cystic Fibrosis Stichting English part of the website of the Nederlandse cystic fibrosis Stichting (NCFS) with information about cystic fibrosis and the activities of the NCFS. http://www.ncfs.nl/english/

39. Index Works to try and prevent cystic fibrosis and improve the quality of life for sufferers. Overview, past and present projects, events and information about cystic fibrosis. http://www.geocities.com/cfgeorgia/

var PUpage="76001073"; var PUprop="geocities"; English Charity Foundation  "Georgian Cystic Fibrosis Center" Georgian About us Current Projects Executed Projects About CF ... Links BUILDING CF CLINIC IN TBILISI, GEORGIA GOAL: Provide CF diseased children and adults currently living in the Republic of Georgia, and those who will be born in the future, access to appropriate clinical care, diagnostics, education, necessary medication and supplements in the treatment of CF. METHODOLOGY: The proposed project will be implemented through a series of five phases. Each phase will be subject to an evaluation with documented successful outcome prior to advancement to the next phase. RESOURCES: Fundraising for each phase will be done through a series of partnering programs, grant opportunities, corporate sponsors, major events and in kind donations. Click here to read full story of all 5 phases. Georgian version) CFW GOLF TOURNAMENT The golf tournament was in memory of Rick Weggen Click here to read the full story.

40. Cystic-L - Cystic Fibrosis Info & Support CYSTICL is a free email service dedicated to the exchange of information and support specific to cystic fibrosis. Members include http://cystic-l.org/

What's New The CF Shop by Thunder-Bay Productions

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