1. UK Creutzfeldt-Jakob Disease Surveillance Unit Summarizes the research in progress at the CJD unit and also provides background information about CJD and other human spongiform encephalopathies. http://www.cjd.ed.ac.uk/

The National Creutzfeldt-Jakob Disease Surveillance Unit The incidence of Creutzfeldt-Jakob disease (CJD) is monitored in the UK by the National CJD surveillance unit based at the Western General Hospital in Edinburgh, Scotland. The unit brings together a team of clinical neurologists, neuropathologists and scientists specialising in the investigation of this disease. This document is intended to summarise the research in progress at the CJD unit and also provide some background information about CJD and other human spongiform encephalopathies. We have also provided some links to other resources and contrary points of view available on the Web. Creutzfeldt-Jakob Disease Surveillance. Figures for the number of confirmed cases of the new variant of CJD and referrals of suspected cases of CJD to the surveillance unit over the last thirteen years. NCJDSU protocol for CJD surveillance across the UK. Text and figures of the latest annual report of the CJD unit (published 16th July 2003). Reporting CJD cases to public health departments - guidance document . - updated November 2003 Potential treatments for Creutzfeldt-Jakob disease (updated May 2004).

2. Bovine Spongiform Encephalopathy: Main Index, CDC or "mad cow disease"), and a disease in humans, called variant CreutzfeldtJakob disease (vCJD). Both disorders are a likely case of variant creutzfeldt jakob disease in a U.K http://www.cdc.gov/ncidod/diseases/cjd/cjd.htm

Site Contents BSE and CJD CJD: Infection Control Practices vCJD Fact Sheet BSE and CJD Home BSE and CJD Information and Resources News and Highlights: Creutzfeldt-Jakob Disease Not Related to a Common Venue - New Jersey, 1995 - 2004 NEW! (Morbidity and Mortality Weekly Report, May 7, 2004) Chronic Wasting Disease and Potential Transmission to Humans NEW! (Emerging Infectious Diseases June 2004) Bovine Spongiform Encephalopathy in a Dairy Cow - Washington State, 2003 (Jan. 12, 2004) Includes information about the BSE, classic vs variant CJD, and CDC surveillance for prion diseases Preliminary Investigation Suggests BSE-Infected Cow in Washington State Was Likely Imported from Canada (Dec. 29, 2003) UPDATED! (Dec. 29, 2003)

3. NINDS Creutzfeldt-Jakob Disease Information Page CJD information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/health_and_medical/disorders/cjd.htm

National Institute of Neurological Disorders and Stroke Accessible version Science for the Brain The nation's leading supporter of biomedical research on disorders of the brain and nervous system Browse all disorders Browse all health organizations More about Creutzfeldt-Jakob Disease Studies with patients Research literature Press releases Search NINDS... (help) Contact us My privacy NINDS is part of the National Institutes of Health NINDS Creutzfeldt-Jakob Disease Information Page Reviewed 07-01-2001 Get Web page suited for printing Email this to a friend or colleague Table of Contents (click to jump to sections) What is Creutzfeldt-Jakob Disease? Is there any treatment? What is the prognosis? What research is being done? ... Additional resources from MEDLINEplus What is Creutzfeldt-Jakob Disease? Creutzfeldt-Jakob disease (CJD) is a rare, degenerative, invariably fatal brain disorder. Typically, onset of symptoms occurs at about age 60.. There are three major categories of CJD: sporadic CJD, hereditary CJD, and acquired CJD. There is currently no single diagnostic test for CJD. The first concern is to rule out treatable forms of dementia such as encephalitis or chronic meningitis. The only way to confirm a diagnosis of CJD is by brain biopsy or autopsy. In a brain biopsy, a neurosurgeon removes a small piece of tissue from the patient's brain so that is can be examined by a neurologist. Because a correct diagnosis of CJD does not help the patient, a brain biopsy is discouraged unless it is need to rule out a treatable disorder. While CJD can be transmitted to other people, the risk of this happening is extremely small.

4. Blood Recall/Withdrawal - Creutzfeldt-Jakob Disease (CJD) Details of the BloodCJD international e-mail support group for blood product withdrawal notification recipients due to the theoretical risk of CJD. http://members.aol.com/debbieoney/blood.htm

Never doubt That a small group Of dedicated people Can change the world. Indeed, It is the only thing That ever has. Margaret Mead Welcome to the Blood Recall/Withdrawal - Creutzfeldt-Jakob Disease (CJD) website. This website is the home of the Blood-CJD support/discussion group. It was created to fill the needs of people who have received notices that the blood products that they, or their children, received, or that were used in the In Vitro Fertilization (IVF) cultures that produced their children, were recalled/withdrawn from the market because a member of the donor pool was diagnosed with Creutzfeldt-Jakob Disease (CJD) or was at risk for the disease. CJD is an infectious rapidly progressive fatal brain-deteriorating disease. It is a member of the class of diseases called Transmissible Spongiform Encephalopathies (TSEs). Another TSE is Bovine Spongiform Encephalopathy (i.e. Mad Cow Disease). Note: We try to present different views on issues when possible. Therefore, the views represented by the authors of the linked web pages do not necessarily represent the views of Blood Recall/Withdrawal - Creutzfeldt-Jakob Disease (CJD).

5. The Many Faces Of CJD Factsheet, latest news and families'/CJD victims' personal stories and tributes. http://www.fortunecity.com/healthclub/cpr/798/cjd.htm

web hosting domain names email addresses The Many Faces of Creutzfeldt-Jakob Disease (CJD) Creutzfeldt-Jakob Disease (CJD) is a horrendous infectious rapidly progressive fatal brain-deteriorating disease for which there is no treatment or cure. One strain, nvCJD, is linked to bovine spongiform encephalopathy (i.e. Mad Cow Disease) in Great Britain. CJD often escapes detection. A common misdiagnosis is Alzheimer's Disease. The personal stories on this website put a face on CJD. The stories are written by teenagers and adults. Most of the stories tell of people who have died of CJD or currently have CJD. These stories describe the symptoms and progression of the disease as well as the problems in getting it correctly diagnosed. Other stories tell what it is like to receive a notice that the blood products your child received as a baby have been recalled from the market due to the theoretical risk of Creutzfeldt-Jakob Disease. While the risk may be theoretical, the anxiety that results from receiving such a notice is very real and changes one's life forever. Another story that deals with the theoretical risk of blood transmission of CJD is by a USAF Retired serviceman and former blood donor.

6. CREUTZFELDT JAKOB DISEASE FACT SHEET 1/1998 of CJD, who gets it, symptoms, CJD and the internet, plus a resource list....... http://www.kansas.net/~cbaslock/cjd1.html

CREUTZFELDT-JAKOB DISEASE FACT SHEET 1/1998 BY DEBORAH ONEY, MASTER OF SOCIAL WORK CO-FOUNDER, BLOOD RECALL/WITHDRAWAL - CJD Creutzfeldt-Jakob Disease (CJD) is an infectious rapidly progressive fatal brain-deteriorating disease for which there is no treatment or cure. Most scientists believe CJD is caused by a prion, which is a protein. People in the United States and throughout the world get CJD. One strain nvCJD is thought to be related to bovine spongiform encephalopathy (i.e. Mad Cow Disease) in the United Kingdom. To date no nvCJD cases have been observed in the United States. Normal sterilization procedures do not inactivate the CJD infectious agent. The incubation period varies greatly with symptoms emerging in known cases in 15 months to 30 years after exposure. There is no preclinical test to determine if infection took place after a possible exposure. WHO GETS CJD AND HOW? CJD most frequently appears in people ages 50-75. However, there are victims in their 40s, 30s and even 20s. The officially stated mortality rate of about one person per million per year appears to be an under statement since CJD often escapes detection. In a Yale University study 13% of clinically-diagnosed Alzheimer patients were found on autopsy to have CJD. There are three forms of CJD: familial (about 5-10% of cases), sporadic (cause unknown, about 90-95%) and iatrogenic (caused by a medical procedure such as contaminated cadaver-derived growth hormones, dura mater implants, and cornea transplants, less than 1%). Athletes who use cadaver-derived growth hormones are at risk for CJD.

7. Creutzfeldt-Jakob Disease / Family Village Library Contacts, links and information about CJD from Family Village. http://www.familyvillage.wisc.edu/lib_cjd.htm

Creutzfeldt-Jakob Disease Who to Contact Where to Go to Chat with Others Learn More About It Web Sites ... Search Google for "Creutzfeldt-Jakob Disease" Who to Contact Creutzfeldt-Jakob Disease Foundation, Inc. P.O. Box 5312 Akron, Ohio 44334 800-659-1991 (toll-free) 330-665-5590 (phone) 330-668-2474 (fax) Email: crjakob@aol.com Website: http://cjdfoundation.org/ This foundation was created on April 7, 1993, by two families who had each lost a relative to CJD, and the neurologist who treated the CJD patients. It seeks to promote the research, education and awareness of CJD, as well as to reach out to people who have lost loved ones to this illness. Where to Go to Chat with Others CJD Voice This is a support and discussion group dealing with the topic of Creutzfeldt Jakob Disease. We help families cope with the daily care of a CJD patient as well as discuss issues surrounding this disease. CJD News News and medical journal articles and critical information published about Creutzfeldt Jakob Disease. Learn More About It An overview of Creutzfeldt-Jakob Disease From the Creutzfeldt-Jakob Disease Foundation CJD Defined From the CJD Voice web site Creutzfeldt-Jakob Disease From the Centers for Disease Control and Prevention Web Sites CJD Voice A grass roots organization of individuals formed to support families during and after a CJD crisis.

8. Tufts Neurology: Creutzfeldt-Jakob Disease And Other Prion Diseases Image of brain biopsy specimen of patient with CJD, and links to relevant articles. http://tuftsneurology.org/webres/prion.htm

Creutzfeldt-Jakob Disease Plastic-embedded section of a brain-biopsy specimen from a patient with sporadic Creutzfeldt-Jakob disease, showing intracytoplasmic vacuoles containing fragments and loops of membranes (arrow). (Cresyl violet, x300) N Engl Med 1998 Dec 31;339(27):1994-2004 MEDLINE Medical Progress: Creutzfeldt-Jakob Disease and Related Transmissible Spongiform Encephalopathies .N Engl J Med 1998 Dec 31;339(27):1994-2004.Johnson RT, Gibbs CJJ Jr. Dr. Johnson at Meyer 6-181, Johns Hopkins Hospital, Baltimore, MD 21287. The 14-3-3 brain protein in cerebrospinal fluid as a marker for transmissible spongiform encephalopathies . N Engl J Med 1996 Sep 26;335(13):924-30 Hsich G, Kenney K, Gibbs CJ, Lee KH, Harrington MG. Laboratory of Central Nervous System Studies, National Institutes of Health, Bethesda, MD 20892-4122, USA. Loss of cerebellar Purkinje cells in aged mice homozygous for a disrupted PrP gene . Nature 1996 Apr 11;380(6574):528-31. Sakaguchi S, Katamine S, Nishida N, Moriuchi R, Shigematsu K, Sugimoto T, Nakatani A, Kataoka Y, Houtani T, Shirabe S, Okada H, Hasegawa S, Miyamoto T, Noda T. Department of Bacteriology, Nagasaki University School of Medicine, Nagasaki, Japan. Altered circadian activity rhythms and sleep in mice devoid of prion protein.

9. Infectious Disease News: Spiroplasma May Cause Creutzfeldt-Jakob Disease Interview with Frank O. Bastian MD. http://www.slackinc.com/general/idn/199606/cjd.htm

a SLACK Incorporated newspaper Infectious Disease News Homepage] [Current Issue] [Back Issues] ... [Search] Ask the Expert Spiroplasma may cause Creutzfeldt-Jakob Disease An interview with a leading expert in infectious diseases Frank O. Bastian, MD, is professor of pathology and director of neuropathology at the University of South Alabama, Mobile. He has published numerous research articles relating to the etiology of Creutzfeldt-Jakob Disease. In 1991, Bastian edited a book entitled Creutzfeldt-Jakob Disease and Other Transmissible Spongiform Encephalopathies (Mosby-Year Book). In 1992, Bastian arranged an international symposium on bovine spongiform encephalopathy (BSE), popularly referred to as mad-cow disease. [What is Creutzfeldt-Jakob Disease (CJD?)] [How do these British cases compare with classic CJD?] [Spiroplasmas] [How did you connect spiroplasmas with CJD?] ... [Your turn] June 1996 What is Creutzfeldt-Jakob Disease (CJD?) Electron microscopic study of brain biopsy from a patient with CJD showed coiled membranous structure in neuronal process. This structure closely resembles spiroplasma morphology. CJD is a transmissible disease characterized by spongy degeneration of the brain. It strikes about one in 1 million people annually. About 5% of CJD cases occur in families or among certain ethnic groups. The disease has been transmitted inadvertently during medical treatment and surgical procedures. CJD has been transmitted by administration of growth hormone derived from the pituitary glands of people who died from CJD. The disease also has been transmitted by transplantation of corneas and dura tissue obtained from people who died from CJD. CJD has been transmitted experimentally to monkeys by oral feeding of contaminated tissue and to lab animals by infusion of white cells.

10. Please Help Fight Creutzfeldt-Jakob Disease Personal stories of CJD and virtual memorials. Links to information and research related to CJD. http://www.angelfire.com/nc/NATURAL1/PAGE2.html

var cm_role = "live" var cm_host = "angelfire.lycos.com" var cm_taxid = "/memberembedded" Sonny's Personal Home Page ~ Page 2 PLEASE HELP FIGHT CREUTZFELDT-JAKOB DISEASE "Links" To Information And Research About CJD ~ What Is It? National Institute of Neurological Disorders and Stroke The Creutzfeldt-Jakob Disease Foundation CJD Is NOT "Mad Cow Disease" Spiroplasma May Cause Creutzfeldt-Jakob Disease ... The "CJD VOICE" Shirley's Memorial and "Reflections" Page at Virtual Memorials This page also has been set up so that the Sponsor's Sites listed below generate income. It is my intention to donate any funds from these to THE CJD FOUNDATION, Inc. and to the "TRIANGLE HOSPICE" in Hillsboro, North Carolina My desire in creating this Web Site is not for "commercial enterprise", but instead it is to raise public awareness, to promote understanding and to raise funds to combat a truly awful human illness, Creutzfeldt-Jakob Disease And I wanted to honor the One Very Special Person in my life, my wife and love Shirley, who was afflicted by CJD. Since it was always Quality and not Quantity that counted to her (and to me, too)

11. CJDVoice.org    Support  - Education - News Updates - Chat find help, support, understanding and information concerning creutzfeldt jakob disease, CJD. http://members.aol.com/larmstr853/cjdvoice/cjdvoice.htm

Enter Here Enter Here

12. Creutzfeldt Jakob Disease (WHO) World Health Organization factsheet on CJD. Includes brief history, different forms of the disease, clinical features, diagnosis, epidemiology, CJD/BSE link and WHO involvement. http://www.who.int/inf-fs/en/fact180.html

13. Dementia In Creutzfeldt Jakob Disease Article on CJD. Clinical description and diagnostic guidelines; diagnostic criteria for research. http://www.informatik.fh-luebeck.de/icd/icdchVF-F02.1.html

14. Document Redirect Link Article and links about Japanese research findings. http://aepo-xdv-www.epo.cdc.gov/wonder/PrevGuid/m0049829/m0049829.htm

The document you requested entire.htm is now m0049829.asp If this page does not automatically take you to that page click the link to go there now.

15. Monthly Creutzfeldt Jakob Disease Statistics Monthly creutzfeldt jakob disease statistics. Published Tuesday 4 May 2004. Reference number 2004/0164. The Department of Health http://www.dh.gov.uk/PublicationsAndStatistics/PressReleases/PressReleasesNotice

16. Creutzfeldt Jakob Disease - Information / Diagnosis / Treatment / Prevention home neurological disorders infections creutzfeldt jakob disease creutzfeldt jakob disease. Subtopics creutzfeldt jakob disease Support Groups, http://www.healthcyclopedia.com/neurological-disorders/infections/creutzfeldt-ja

Home Health cyclopedia All Topics by Category The Good Health Search Engine Health Conditions A-Z Gurus ... infections > creutzfeldt jakob disease Creutzfeldt Jakob Disease Information / Diagnosis / Treatment / Prevention External links (marked with an arrow ) open in a new window. This site is a web directory and does not offer medical advice. We cannot take responsibility for information found on listed sites. This Page Subtopics Related Topics Medical Definition Health News ... Web Directory: Subtopics: Creutzfeldt Jakob Disease > Support Groups Related Topics: Food and Water Borne Infectious Diseases/Prion Infectious Diseases/Zoonoses Open Directory: Science/Technology/Food Science/Consumer Concerns/BSE - Bovine Spongiform Encephalopathy Medical Definition: University of Newcastle-upon-Tyne Medical Dictionary: "creutzfeldt-jakob syndrome" Health News: Search millions of published articles for news on Creutzfeldt Jakob Disease Modern Medicine Aging The Ardell Wellness Report HealthFacts Medical Post Medical Update Men's Health and the National Women's Health Report Note: Subscription required to access the full text of articles.

17. Creutzfeldt Jakob Disease Links to resources relating to creutzfeldt jakob disease (CJD), variant CJD (vCJD), the human form of Mad Cow Disease , BSE or bovine spongiform encephalitis. http://www.healthinsite.gov.au/topics/Creutzfeldt_Jakob_Disease

Creutzfeldt Jakob Disease HI Topics Map Nervous System Diseases Follow the links below to information on Creutzfeldt Jakob Disease (CJD) and variant CJD (vCJD). 24 Resources Found Pituitary hormones initiatives Australian Government Department of Health and Ageing The Australian Human Pituitary Hormone Program; Creutzfeldt-Jakob Disease; Transmission and precautions; Further information; Counselling services; Support Group Network; Research; National Pituitary Hormones Advisory Council; and, the Government's Response to the Report of the Inquiry into the Use of Pituitary Derived Hormones in Australia and Creutzfeldt-Jakob Disease. Nov 2003 Creutzfeldt-Jakob disease Better Health Channel Creutzfeldt-Jakob disease (CJD) is a rapidly progressive disease which causes deterioration of the brain. It is one of a group of rare diseases that affects humans and animals. There is no cure and death usually results within two years of the symptoms first appearing. Oct 2003 Dementia explained Better Health Channel Dementia is part of a group of illnesses that cause a progressive decline in a person's mental functioning. The term is used to describe a broad range of symptoms, such as loss of memory, intellect, rationality, social skills and normal emotional reactions.

18. Texas Department Of Health, IDEAS > Creutzfeldt Jakob Disease Your Location IDEAS Home » CreutzfeldtJakob Disease (CJD). Creutzfeldt-Jakob Disease. (CJD) ICD-9 046.1, ICD-10 A81.0. http://www.tdh.state.tx.us/ideas/creutzfeldt-jakob/faqs/

Click Here For Requested Information Diseases: A-C Amebiasis Anthrax Arboviral Encephalitides ... Sitemap/Alphabetical Listing of Diseases and Topics Your Location: IDEAS Home Creutzfeldt-Jakob Disease (CJD) Creutzfeldt-Jakob Disease (CJD) ICD-9 046.1, ICD-10 A81.0 FAQs Data Reporting Other Sites What is CJD? What Are CJD's Signs And Symptoms? What Causes CJD? How Do You Get CJD? The first likely case of vCJD was identified in the United States in Florida in April 2002. This person is a 22-year-old United Kingdom (UK) citizen residing in the United States. Investigators concluded that the disease was contracted in the UK (Centers for Disease Control and Prevention, Morbidity and Mortality Weekly Report, October 18, 2002). The first case of BSE in the United States was identified in an adult Holstein cow from Washington state on December 23, 2003. Preliminary reports suggest that the BSE-infected cow was imported into the United States from Canada in August 2001. The investigation of this case is in progress (Centers for Disease Control and Prevention, Division of Viral and Rickettsial Diseases). Last Updated: Tuesday, January 13, 2004

19. Bovine Spongiform Encephalopathy (BSE) And Variant Creutzfeldt-Jakob Disease cats. TSE s found in humans include creutzfeldt jakob disease (CJD) and variantcreutzfeldt jakob disease (vCJD). What causes BSE? http://www.eufic.org/gb/safe/safe05.htm

Homepage Who are we? Archive Links ... Homepage > Newsletter FoodToday Search: Advanced search Glossary FoodToday Articles Reviews and brochures ... Miniguide Bovine Spongiform Encephalopathy (BSE) and variant Creutzfeldt-Jakob disease What is BSE? What causes BSE? How is BSE diagnosed? How is BSE transmitted? ... APPENDIX - EU Country categorisation What is BSE? Bovine Spongiform Encephalopathy (BSE), commonly known as "mad cow disease", is a fatal brain disease that affects cattle. The disease is named after the characteristic sponge-like changes to the brain that it causes. BSE usually has an incubation period of 4-5 years from the time that the animal is exposed. The condition is fatal within weeks or months of its onset. The first signs are weight loss and nervousness. BSE is one type of a group of prion diseases referred to as Transmissible Spongiform Encephalopathies (TSEs). TSEs are fatal diseases that cause spongy degeneration of the brain and severe neurological symptoms. Another example of a TSE is scrapie, a disease found in sheep and goats. TSEs have also been found in other animals including mink, North American mule deer, elk and cats. TSE's found in humans include Creutzfeldt Jakob Disease (CJD) and variant-Creutzfeldt Jakob Disease (vCJD). What causes BSE?

20. NORD - National Organization For Rare Disorders, Inc. creutzfeldt jakob disease. Full report version is displayed. A variant form of CreutzfeldtJakob Disease (V-CJD) has been reported in the medical literature. http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Creutzfeldt J

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