21. Children's Health System: Superior Pediatrics And A Leading Children's Hospital Pediatric specialists specialize in congenital heart disease, pediatric heart, lung and bone marrow transplantation, pain management, and other pediatric diagnoses and treatment. http://www.chw.org

With premier programs for congenital heart defects and heart disease in children, pediatric bone marrow transplantation, pain management in children from infants to adolescents, and other standard-setting specialties, the primary care pediatricians, pediatric specialist and subspecialist physicians and care teams at Children's Hospital and Health System and Children's Hospital of Wisconsin deliver the best pediatric care to children in Milwaukee, the Great Lakes region and across the nation. Information about our top programs Miracle Marathon raises record-breaking $1.4 million to benefit Children's Hospital Practice safe yard care to prevent devastating lawn mower injuries Children's Hospital of Wisconsin launches innovative advertising campaign that targets five most critical medical issues ... More News...

22. In Loving Memory Of Taylor Alyssa She was born on January 23, 1996 with congenital heart disease and passed away shortly after. http://www.ordonezonline.com/Taylor/

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23. Congenital Heart Disease: Ebstein's Anomaly - Texas Heart Institute Heart Inform Your doctor can help you decide what type of surgery is best for your child. See also on this site congenital heart disease. See on other sites http://www.tmc.edu/thi/ebstein.html

//var DOCUMENTGROUP=''; //var DOCUMENTNAME=''; //var ACTION=''; Heart Information Center Click here for Heart Owner's ... Update This publication contains information to help you understand and live a heart-healthy lifestyle. Published for friends of the Texas Heart Institute. Ebstein's Anomaly Ebstein's anomaly is a defect that mainly affects the tricuspid valve. The tricuspid valve is the valve that controls blood flow between the heart's upper-right chamber (the right atrium) and lower-right chamber (the right ventricle). In Ebstein's anomaly, the tricuspid valve is located lower than normal, so the upper part of the right ventricle is part of the right atrium. This means that the right ventricle is too small and the right atrium is too large. Besides being too low, the tricuspid valve may not be formed correctly. Heart valves are made up of flaps called leaflets. When the leaflets are normal, they act like doors, which control blood flow by opening and closing. But in Ebstein's anomaly, abnormal leaflets may let blood leak back into the atrium after it has flowed into the ventricle. This backward flow of blood makes the atrium even larger and the ventricle even smaller. People born with Ebstein's anomaly often have other heart problems, including

24. Guidant - Heart Disease And Cardiovascular Disease Therapies Develops therapies for cardiovascular and congenital heart disease. Details of products, news, investor information, and patient educational material. (NYSE GDT) http://www.guidant.com/

document.write(imageTag1); Choose a country Belgium France Germany Italy Japan Netherlands Spain document.write(imageTag2); Learn about Guidant. More Corporate Overview Careers at Guidant Investor Resources ... Compass Group Guidant to Distribute New Technology to Make Heart Bypass Surgery Easier to Perform Newsroom Investor Webcasts Features Heart and Blood Vessel Basics Condition Compass News for Heart Attack Survivors Women's Heart Health ... Patient Newsletter Guidant Patients document.write(imageTag3); Defibrillator (ICD) Patients Heart Failure Patients Pacemaker Patients ... Stent Patients Specialties Cardiac Surgery Electrophysiology Heart Failure Interventional Cardiology ... All Specialties Resources Products Product IFUs Reimbursement Education and Training ... Resources for medical professionals View and print The New England Journal of Medicine article document.write(imageTag4); Terms and Conditions

25. CHD Online Handbook Welcome to the congenital heart disease Online Handbook. I have written this page to be a resource for anyone associated with congenital heart disease. http://my.execpc.com/~markc/congenit.html

Welcome to the Congenital Heart Disease Online Handbook This web page contains a list of Congenital Heart Diseases. Each CHD has the medically accepted abbreviation as well as a short description and a link to detailed definitions of the disease. Some of the CHD's listed have a link to a diagram that graphically shows the disease or defect. There is also a section on surgeries used to correct some of the CHD's listed at this web site, and a section on medications used to treat CHD's. I have written this page to be a resource for anyone associated with congenital heart disease. I am not a doctor, and I am not in a medical profession. This page should in no way be a substitute for professional medical care or attention by a qualified practitioner, nor should it be inferred as such. ALWAYS check with your doctor if you have any questions or concerns about a condition. Please E-mail any questions or comments Back Do you want to Join the Congenital Heart Defects Web Ring? Next Page in Ring Skip Next Page in Ring Previous Page in Ring List Next 5 Pages in Ring ... Random Page Next

26. PediHeart Website Advanced, updated information on congenital heart disease. General considerations. The list is moderated by specialists in congenital heart disease. http://www.pediheart.org/

Welcome to PediHeart Pediatric News The Kidzone A place for kids with heart disease. Learn about the heart. Meet other kids. Show us your stuff. Parent's Place . A place for parents. Learn about the heart. Meet other parents. Join a discussion. Ask us your questions. Advanced Information and Practitioner Area . Advanced, updated information on congenital heart disease. General considerations. Specific lesions. Membership Required Watch pediatric health videos We welcome your feedback and input Join our mailing list: The Pediheart Organization Mailing List is open to parents, patients, and practitioners. The list is moderated by specialists in congenital heart disease. Subscribe or Unsubscribe We subscribe to the HONcode principles of the Health On the Net Foundation Content written and site maintained by HA Hennein, MD Nov-01 No part of this website may be reproduced without the consent of PediHeart Organization Last revised: November 25, 2001

27. NORTHEAST PEDIATRIC CARDIOLOGY NURSES ASSOCIATION An organization promoting the health and welfare of infants and young adults with acquired or congenital heart disease by enhancing the art and science of pediatric cardiovascular nursing. http://npcna.org/

NORTHEAST PEDIATRIC CARDIOLOGY NURSES ASSOCIATION Welcome to the Northeast Pediatric Cardiology Nurses Association! NPCNA was founded in 1983 to promote the health and welfare of infants, children, and young adults with acquired or congenital heart disease by enhancing the art and science of pediatric cardiovascular nursing. NPCNA is a nationally recognized provider of educational programs in pediatric cardiovascular nursing.

28. Congenital Heart Disease congenital heart disease. Although congenital heart disease killed about 5,000 Americans in 1995, that marked a 24 percent drop in the death rate since 1985. http://www.acc.org/media/patient/chd/chd.htm

var showMenu="ExpandMain:media;HighlightSub:patient;"; // document.modified = "Tuesday March 12, 2002"; document.modified = "03/12/2002"; Congenital Heart Disease Types of Congenital Heart Diagnosing Heart Defects Terri and her husband, Mike, cooed at their newborn daughter, Sasha, born on a sunny Tuesday in Baltimore in 1949. When Terri’s obstetrician, Dr. Libby, came in, they assumed it was to congratulate them, until they saw his face. Dr. Thomas’s diagnosis was tetralogy of Fallot, a type of congenital heart disease or heart defect that occurs as a fetus is developing. "Tetralogy of Fallot," Dr. Thomas explained, "means that the artery from Sasha’s heart to her lungs is narrowed. The wall separating the lower left and right chambers of her heart has a hole in it. These abnormalities prevent oxygen-rich blood from circulating to the rest of her body and cause her blue coloring. We call it cyanosis or Œblue-baby’ disease." Tetralogy of Fallot, he told them, could cost Sasha her life.

29. 32nd BETHESDA CONFERENCE - Table Of Contents 32nd Bethesda Conference Care of the Adult With congenital heart disease*. Task Force 1 The Changing Profile of congenital heart disease in Adult Life http://www.acc.org/clinical/bethesda/beth32/dirindex.htm

var showMenu="ExpandMain:clinical;"; // document.modified = "Tuesday March 12, 2002"; document.modified = "03/12/2002"; Contents Print a PDF Task 1 Task 2 Task 3 ... Tables and Figures References PROCEEDINGS OF THE 32ND BETHESDA CONFERENCE CARE OF THE ADULT WITH CONGENITAL HEART DISEASE JACC Vol. 37, 2001: 1161-98 32nd Bethesda Conference: Care of the Adult With Congenital Heart Disease Contents Introduction Summary of Recommendations Task Force 1: The Changing Profile of Congenital Heart Disease in Adult Life Task Force 2: Special Health Care Needs of Adults with Congenital Heart Disease ... Participants, Conference Steering Committee, and Staff * The recommendations set forth in this report are those of the Conference participants and do not necessarily reflect the official position of the American College of Cardiology. When citing this document, the

30. Understanding Pediatric Heart Sounds Book on pediatric heart sounds, auscultation, congenital heart disease, physical diagnosis. http://stevenlehrer.com/heart.htm

Understanding Pediatric Heart Sounds 2nd edition Steven Lehrer, MD Teaches how to examine the heart of a child, with a booklet and audio CD that reproduces heart sounds. Reviews the anatomy and physiology of a child's heart as well as principles of sound, hearing, and the proper use of the stethoscope. Details methods for history taking, performing a physical examination, and auscultating the heart. “The author's clear style makes the book, and at least a good portion of the audiotape, eminently suitable for students, house staff, and practitioners who wish to enhance their listening skills for pediatric cardiovascular examination.” New England Journal of Medicine Understanding Pediatric Heart Sounds By Steven Lehrer, MD; Associate Professor, Mount Sinai School of Medicine, New York W.B. Saunders ISBN 0-7216-2387-5

31. 3-D Visualization Of Congenital Heart Disease 3D Visualization of. congenital heart disease. congenital heart disease Overview. Patient Scan Protocol. Case Studies. Examples in the Literature. http://dpi.radiology.uiowa.edu/nlm/app/cnjheart/cnjheart.html

3-D Visualization of Congenital Heart Disease by Susanne Shamsolkottabi, Janice Cook-Granroth, William Stanford, M.D., Simon Kao, M.D., Kevin Baskin, M.D., and Eric Hoffman, Ph.D. at the University of Iowa Congenital Heart Disease Overview Patient Scan Protocol Case Studies Examples in the Literature Other Relate Web Sites Submitting Protocols of Your Own Division of Physiologic Imaging, Dept. of Radiology, Univ. of Iowa Tutorials DPI Homepage VIDA NLM ... Search Last modified: Wed Jun 2 11:01:49 CDT

32. Congenital Cardiovascular Defects birth. Among the terms you may hear are congenital heart defect, congenital heart disease and congenital cardiovascular disease. A http://www.americanheart.org/presenter.jhtml?identifier=4565

33. Congenital Heart Disease Provides an overview of the facility. The major topics in adult congenital heart disease are discussed for the patient and the cardiologist. http://hora.cpmc.columbia.edu/dept/congenitalheart/index.html

Successful cardiac surgery in infants and children during the 1960s and 1970s has resulted in a rapidly growing population of adults with congenital heart disease. Some of these patients have cardiac problems which are not typically seen by adult cardiologists. The Joan And Michael Schneeweiss Center for Adult Congenital Heart Disease at New York Presbyterian Hospital was developed to serve the unique needs of this population. Highly specialized care is provided by a team of physicians specifically interested in the problems of adults with congenital heart disease. The Adult Congenital Heart Disease Program is directed by Dr. Marlon S. Rosenbaum, a cardiologist trained in both adult and pediatric heart disease. The Program is a vital resource for patients with both newly diagnosed congenital heart disease and those who had cardiac surgery earlier in life. Diagnostic studies such as echocardiography, cardiac MRI, and cardiac catheterization are performed by physicians knowledgeable about adult congenital heart disease. Our cardiac MRI facility has state of the art software which permits rapid acquisition of images and provides highly detailed anatomic information. Cardiopulmonary stress testing is performed by an exercise physiologist with extensive experience in exercise and congenital heart disease. The cardiac surgical program at the Adult Congenital Heart Disease Center is led by Dr. Jan Quaegebeur and Dr. Ralph Mosca. Our surgeons have had extensive experience in the repair of many different forms of congenital heart disease, including D-transposition of the great arteries, single ventricle, Ebstein's anomaly and aortic valve disease using the Ross procedure.

34. About Us Pediatric cardiology group. Includes information for referring physicians and patients and links to more information about congenital heart disease. Locations in Dallas, Carrollton, Longview, Lufkin, McKinney, Palestine, Plano, and Tyler. http://www.pediatricheartspecialists.com/

At Pediatric Heart Specialists we understand that when parents have a child with a cardiac problem, it produces anxiety, concern and uncertainty. That’s why we see referred patients promptly, and keep primary care physicians informed and involved. Our team of professionals work together to provide the highest quality of care, delivered in a sensitive and caring manner, in the most efficient, prudent way. We listen carefully to information our young patients and their parents share with us. And, we make every effort to enable and encourage parents to help their child live as normally and healthfully as is possible. Our logo ~ a physician with a stethoscope ~ expresses our belief that even with today’s high technology capabilities, our most important tool is still our proficiency with the stethoscope. This website is designed to acquaint you with our practice, our philosophy of care, and our diagnostic / monitoring capabilities. Pediatric Heart Specialists is a practice devoted to providing pediatric cardiac care from the prenatal stage though young adulthood. The physicians in our practice are highly skilled specialists in fetal and pediatric cardiology who share a common philosophy of medical care.

35. Caring For Infants With Congenital Heart Disease And Their Families - April 1, 1 April 1, 1999 AFP. Caring for Infants with congenital heart disease and Their Families. CHD=congenital heart disease. Common Congenital Heart Defects. http://www.aafp.org/afp/990401ap/1857.html

Advanced Search Caring for Infants with Congenital Heart Disease and Their Families REBECCA B. SAENZ, M.D., DIANE K. BEEBE, M.D., and LARAMIE C. TRIPLETT, M.D. University of Mississippi Medical Center Jackson, Mississippi A patient information handout on congenital heart disease, written by the authors of this article, is provided on page 1867. T he reported incidence of congenital heart disease (CHD) is eight cases per 1,000 live births. Family physicians must know how to screen for cardiac defects in infants, how to stabilize infants with these problems and how to manage their problems in teamwork with a pediatric cardiologist and a cardiac surgeon. As patient advocates, we also must be prepared to help the parents and other family members cope with the psychosocial aspects of chronic disease in a child. Diagnosis Studies suggest that 30 to 60 percent of congenital heart defects can be detected prenatally by four-chamber screening. High-resolution four-chamber transvaginal echocardiography can provide detailed imaging of the cardiac anatomy in the fetus and can detect major abnormalities, although routine prenatal screening for CHD remains controversial. In one large study

36. Little Hearts Provides support and information to families of children with congenital heart disease. Offers useful links, parent matching, email groups and activities. http://www.littlehearts.net/

Awareness Window Decals and Magnets now available! See Products for more details . Little Hearts 8th Annual Picnic Sunday June 6, 2004 See News/Event for more information . Little Hearts is a non-profit organization founded in January 1998 by Lenore Cameron ( see her son's story ). We provide support, resources, networking, and hope to families affected by congenital heart defects (CHD). Membership consists of families who have, had, or are expecting a child with a congenital heart defect from every state in the United States. Our mission is to offer support and hope to families affected by congenital heart defects through our support services and to promote public awareness for this #1 birth defect. Membership to Little Hearts is free. If you would like to receive any of the support services we offer or be of support to another family, please send in a membership form. If you would like to help us in our mission, please feel free to make a tax deductible donation to the address listed below or online with a credit card. Thank you for your support and for enabling us to continue to provide hope.

37. Discovery Health Congenital Heart Disease congenital heart disease, also known as CHD, is any birth defect which affects the heart or the large blood vessels. Congenital birth. http://health.discovery.com/diseasesandcond/encyclopedia/19.html

38. Hershey Hearts A support group for families of children with congenital heart disease. Information about the group and meeting schedules. http://www.hersheyhearts.org

PO Box 163 Hershey, Pennsylvania 17033-0163 1-800-864-2349, mailbox #3388 HOME NEWSLETTER EVENTS CONTACT US ... LINKS Email - info@hersheyhearts.org A support group for families of children with congenital heart disease Formed in 1996 in association with the Milton S. Hershey Medical Center, Hershey Hearts is a support group for parents, siblings, and other family members of children who have been touched by congenital heart disease. Our group presently meets three times a year to provide support, advice and instruction for these families. The group's strength is drawn from the experiences of its members as well as the involvement of the physicians, nurses, technicians and social workers who provide the care at the Hershey Medical Center. Mission Statement We are committed to supporting, helping, and educating families with children with congenital heart disease. This is achieved through meetings, newsletters, and a visitation program. Our aim is to strengthen families during their long journey from despair to hope. Hershey Hearts Newsletter The Hershey Hearts Newsletter is published quarterly by Hershey Hearts volunteers in the months of February, May, August, and November. Each issue contains a variety of news, articles, interviews, and member contributions.

39. The Grown Up Congenital Heart Patients Association - GUCH Grown Up Congenital Heart Patients Association Supporting Young People and Adults with congenital heart disease. http://www.guch.demon.co.uk/

Text Only Study into why GUCH patients have joined GUCH - Can you help? We subscribe to the HONcode principles of the Health On the Net Foundation Welcome to GUCH What's New - Updated 18 April 2004 Congenital Heart Disease - a congenital heart defect is an abnormality of the heart that has been present from birth. Children born with heart disease, who once would not have survived, now reach adolescence and adulthood as a result of advances in cardiac surgery and medicine. The Grown Up Congenital Heart Patients Association (GUCH) is a UK charity, founded in 1993 to provide information and support for young people and adults who were born with a heart condition, and their families. The Association is supported by the British Heart Foundation GUCH Offers:- Freephone Helpline - (UK Only) Information Sheets Quarterly Magazine Workshops and Conferences Local Contacts Contacting GUCH GUCH Patients Association 75 Tuddenham Avenue Ipswich Suffolk Tel: Helpline: 0800 854759 (answerphone only at weekends) For general enquiries contact: John Richardson (National Director) Paula Banda (Northern Region Co-ordinator) For website related enquiries contact: Antony Horner (Webmaster) For GUCH News related enquiries contact: Jamie Boyes (Editor) Website Designed and Maintained by Antony Horner Registered Charity No 104866 We welcome feedback about our site, please send your comments to

40. The GUCH Patients' Association - Congenital Heart Disease Grown Up Congenital Heart Patients Association Supporting Young People and Adults with congenital heart disease. congenital heart disease. http://www.guch.demon.co.uk/chd.htm

Home Congenital Heart Disease Congenital Heart Disease What is a congenital heart defect? Congenital means 'from birth'. A congenital heart defect is an abnormality of the heart that has been present from birth. How common are these defects? At least 8 out of every 1000 babies born each year have a heart defect. About half of these babies have a minor defect and will not need any treatment but the rest will need medical treatment or surgery. What caused the defect? In most cases the cause is unknown, although some defects are found to be genetic. Some abnormalities are as a result of the mother's health during pregnancy, ie diabetes or systemic lupus erythematosus (SLE), an auto immune disease. Drugs taken in pregnancy - such as some of those prescribed for epilepsy and also illegal drugs or alcohol - are known to cause certain heart defects. Smoking is also thought to be a factor. This does not mean that those suffering from diabetes or epilepsy cannot have healthy children, they just need careful attention during their pregnancies. How is a congenital heart defect discovered?

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