1. Congenital Heart Information Network Interactive forums, Internet links, and peerreviewed informational materials for families, adults with CHD, and health professionals. http://www.tchin.org

Welcome to our site! C.H.I.N. is an international organization that provides reliable information, support services and resources to families of children with congenital heart defects and acquired heart disease, adults with congenital heart defects, and the professionals who work with them. Spencer's Fund C.H.I.N. is pleased to announce the creation of Spencer’s Fund, a financial assistance program for families in need. Spencer’s Fund will provide groceries, meals, travel subsidies, lodging assistance, and utility payments to families during extended or far from home appointments and hospital stays. read more Please join our thriving organization! Become a part of our dynamic international community of health professionals, families, and individuals affected by Congenital Heart Defects and Childhood Onset Heart Disease. Your tax-deductible donation will help support our web site, online support groups and discussion forums, CHD Awareness Day efforts, Newsletter, and services to organizations and support groups throughout the world. read more...

2. MedlinePlus: Congenital Heart Disease N O P Q R S T U V W XYZ List of All Topics. congenital heart disease Also available in Spanish. congenital heart disease ( American College of Cardiology) http://www.nlm.nih.gov/medlineplus/congenitalheartdisease.html

@import url(http://www.nlm.nih.gov/medlineplus/images/advanced.css); Skip navigation Other health topics: A B C D ... List of All Topics Congenital Heart Disease Contents of this page: News General/Overviews Coping Diagnosis/Symptoms ... Women Search MEDLINE for recent research articles on Congenital Heart Disease You may also be interested in these MedlinePlus related pages: Birth Defects Cardiomyopathy Heart Diseases Genetics/Birth Defects ... Heart and Circulation Latest News Heart Surgery in Kids Linked to Stress Disorder (05/10/2004, Reuters Health) General/Overviews Congenital Cardiovascular Disease (American Heart Association) Congenital Heart Defects (March of Dimes Birth Defects Foundation) Also available in: Spanish Congenital Heart Disease (American College of Cardiology) Clinical Trials ClinicalTrials.gov: Heart Defects, Congenital (National Institutes of Health) Coping Congenital Heart Disease and Your Baby: How to Care for Your Baby (American Academy of Family Physicians) If Your Child Has a Heart Defect (Nemours Foundation) Physical Activity and Exercise (American Heart Association) Diagnosis/Symptoms Cardiac Magnetic Resonance Imaging Examination (American Heart Association) Cardiac Ultrasound and Doppler Echocardiography (American Heart Association) Chest X-Rays: Helping Detect Heart and Lung Conditions (Mayo Foundation for Medical Education and Research) Echocardiogram (Mayo Foundation for Medical Education and Research) - RealPlayer plug-in is required to view video files Electrocardiogram (EKG or ECG) (American Heart Association)

3. Children: Heart Disease & Health The normal heart, defects, heart murmurs, kawasaki disease, treatment, school programs and feeding an infant with congenital heart disease. Information provided by the American Heart Association. http://www.americanheart.org/children/

The two types of heart disease in children are "congenital" and "acquired." Congenital heart disease (also known as a congenital heart defect) is present at birth. Some defects in this category are patent ductus arteriosis, atrial septal defects and ventricular septal defects. Acquired heart disease, which develops sometime during childhood, includes diseases such as Kawasaki disease, rheumatic fever and infective endocarditis. Common diagnostic tests for these diseases are explained here. About 40,000 children are born with a heart defect each year. Most of these children can benefit from surgery even if the defect is severe. When surgery is necessary, many medical treatments are available to help the heart work properly. There is nothing that parents could have done to prevent these defects. Learn about conditions that can interfere with the work of the heart and treatment options in this section. Kawasaki disease is an example of acquired heart disease that occurs primarily in children who are 5 years old or younger. Although medical knowledge of the disease is still developing, there are steps you can take to recognize the symptoms and deal with the disease's effects. At least 8 of every 1,000 infants born each year have a heart defect. About 1 million Americans with cardiovascular defects are alive today. Though research is ongoing, at least 35 defects have now been identified.

4. HeartPoint: Congenital Heart Disease congenital heart disease. HeartPoint is primarily designed for people interested in heart disease in adults. a great deal of interest in congenital heart disease, disorders that generally affect http://www.heartpoint.com/congheartdx.html

CONGENITAL HEART DISEASE The causes are difficult to determine and probably different in each case. There is further evidence of a genetic contribution in that parents who have had one child with a congenital heart abnormality have an increased risk of their next children having some sort of congenital heart abnormality as well. The risk is increased from the 1 in a thousand range to 1 in twenty. (Remember, that means a 19 in 20 chance of having a child without the abnormality). The risk may be higher in occasional families with certain forms of congenital disease which are passed down frequently to children. Infections in the mother, particularly early in pregnancy, such as rubella ("German measles") are associated with congenital heart abnormalities in those children. The therapy of these disorders is sometimes quite complex, and should be discussed with your physician. The following is a brief atlas of some of the more common congenital heart conditions. The normal flow in the heart can be reviewed from the HeartPoint Gallery page regarding "The Heart"

5. Congenital Heart Disease Return to RCHC Home Page. Pediatric Cardiology for the Medical Professionals. Acyanotic congenital heart disease. Cyanotic congenital heart disease. Atrial Septal Defect. Tetralogy of Fallot. Ventricular Septal Defect http://www.rchc.rush.edu/rmawebfiles/chdcontent.htm

Congenital Heart Disease Return to: RCHC Home Page Pediatric Cardiology for the Medical Professionals Acyanotic Congenital Heart Disease Cyanotic Congenital Heart Disease Atrial Septal Defect Tetralogy of Fallot Ventricular Septal Defect Pulmonary Atresia with VSD ... Hypoplastic Left Heart

6. Congenital Heart Disease - Texas Heart Institute Heart Information Center Click here for. Heart Owner's. Update. This publication contains information to help you understand and live a hearthealthy lifestyle. Published for friends of the Texas Heart Institute. Congenital http://www.tmc.edu/thi/congenit.html

//var DOCUMENTGROUP=''; //var DOCUMENTNAME=''; //var ACTION=''; Heart Information Center Click here for Heart Owner's ... Update This publication contains information to help you understand and live a heart-healthy lifestyle. Published for friends of the Texas Heart Institute. Congenital Heart Disease Congenital heart defects are heart problems present at birth. They happen when the heart does not develop normally before birth. About 8 out of every 1,000 infants are born with one or more heart or circulatory problems. Doctors usually do not know the cause of congenital heart defects, but they do know of some conditions that increase a child's risk of being born with a heart defect. They include Congenital heart disease in the baby's mother or father. Congenital heart disease in the baby's brother or sister. Diabetes in the mother. German measles, toxoplasmosis (an infection that is passed through contact with cat feces), or HIV infection in the mother. The mother's use of alcohol during pregnancy.

7. Congenital Heart Disease Resource Page Book List. Search the Site. Support Groups. Syndromes Disorders. What's New. Main. The congenital heart disease Resource Page. Special Note I am unable to continue updating this site. http://www.csun.edu/~hcmth011/heart

The Congenital Heart Disease Resource Page

8. Yale: Congenital Heart Disease Comprehensive overview of cardiothoracic imaging and major diseases, including over 700 diagnostic images, 100 original medical illustrations, and many animations and audiovisuals. Designed http://info.med.yale.edu/intmed/cardio/chd

February 22, 2001 (PL)

9. Congenital Heart Disease Successful cardiac surgery in infants and children during the 1960s and 1970s has resulted in a rapidly growing population of adults with congenital heart disease. Schneeweiss Center for Adult congenital heart disease at New York Presbyterian Hospital http://congenitalheart.hs.columbia.edu/

Successful cardiac surgery in infants and children during the 1960s and 1970s has resulted in a rapidly growing population of adults with congenital heart disease. Some of these patients have cardiac problems which are not typically seen by adult cardiologists. The Joan And Michael Schneeweiss Center for Adult Congenital Heart Disease at New York Presbyterian Hospital was developed to serve the unique needs of this population. Highly specialized care is provided by a team of physicians specifically interested in the problems of adults with congenital heart disease. The Adult Congenital Heart Disease Program is directed by Dr. Marlon S. Rosenbaum, a cardiologist trained in both adult and pediatric heart disease. The Program is a vital resource for patients with both newly diagnosed congenital heart disease and those who had cardiac surgery earlier in life. Diagnostic studies such as echocardiography, cardiac MRI, and cardiac catheterization are performed by physicians knowledgeable about adult congenital heart disease. Our cardiac MRI facility has state of the art software which permits rapid acquisition of images and provides highly detailed anatomic information. Cardiopulmonary stress testing is performed by an exercise physiologist with extensive experience in exercise and congenital heart disease. The cardiac surgical program at the Adult Congenital Heart Disease Center is led by Dr. Jan Quaegebeur and Dr. Ralph Mosca. Our surgeons have had extensive experience in the repair of many different forms of congenital heart disease, including D-transposition of the great arteries, single ventricle, Ebstein's anomaly and aortic valve disease using the Ross procedure.

10. Coping With Congenital Heart Disease In Your Baby - April 1, 1999 - American Aca Coping with congenital heart disease in Your Baby. What is congenital heart disease? A congenital heart disease is one that a baby is born with. http://www.aafp.org/afp/990401ap/990401d.html

Advanced Search Please note: This information was as current as we could make it on the date given above. But medical information is always changing, and some information given here may be out of date. For regularly updated information on a variety of health topics, please visit familydoctor.org , the AAFP patient education Web site. An article on this topic is available in this issue of AFP Coping with Congenital Heart Disease in Your Baby What is congenital heart disease? A congenital heart disease is one that a baby is born with. Did I do something during pregnancy that made my baby have this problem? Probably not. Some things that happen in pregnancy can lead to a congenital heart problem in a baby, but often the reason for the heart disease is not known. Talk with your family doctor if you're worried that you caused your baby's heart problem, but don't blame yourself. I felt depressed when I found out my baby has a heart problem. Is that normal? Yes. Feeling angry, guilty or depressed is normal. Knowing that your baby has a heart problem is stressful. When you first found out about your baby's problem, you may have been in shock.

11. Children: Heart Disease & Health The two types of heart disease in children are congenital and acquired. congenital heart disease (also known as a congenital heart defect) is present at http://www.americanheart.org/presenter.jhtml?identifier=1477

12. CHIN: Online Support More results from www.tchin.org congenital heart disease Resource PageThe congenital heart disease Resource Page. In order to view the congenital heart disease resource page, you need a frames capable http://www.tchin.org/pdheart.htm

PDHeart About Us Our History List Policies PDHeart , founded in 1995, is a very active online support group and discussion forum for parents, family members and adults with congenital heart defects. If you have a child with CHD, if you have CHD yourself, or if you are a concerned individual, please join us! Our online support groups are one of the benefits of membership in The Congenital Heart Information Network. If you are not yet a member, click here for more information. You can subscribe, unsubscribe, suspend, or change your subscription between feed and digest mode by using this form. A message containing confirmation instructions will be sent to your email addressyou must respond to that message before the request can be processed. What would you like to do? Subscribe in Feed mode to receive messages as they are contributed Subscribe in Digest mode to receive messages several times a day Temporarily suspend my subscription Please unsubscribe me What is your email address?

13. Adult Congenital Heart Association Information, resources and support for adults with congenital heart disease. http://www.achaheart.org/

Adult Congenital Heart Association ACHA Home About Us Contact Us Join ACHA! ... Help ACHA! Welcome to the ACHA web site! The Adult Congenital Heart Association (ACHA) is a nonprofit organization which seeks to improve the quality of life and extend the lives of adults with congenital heart defects. Through education, outreach, advocacy and promotion of research, ACHA serves and supports the more than one million adults with congenital heart defects, their families and the medical community. What's New? Something the Lord Made On Sunday, May 30, HBO will be premiering a movie entitled "Something the Lord Made" that tells the story of Dr. Alfred Blalock and Vivien Thomas, who along with Dr. Helen Taussig, developed the Blalock-Taussig shunt. From HBO's site at http://www.hbo.com/films/stlm/synopsis/ HBO is also interested in medical and other stories from the 40's and 50's that may be told on their website. They may be interested in the stories of our members who had the B-T shunt, which may submitted at http://www.hbo.com/apps/submitinfo/lordmade/submission.jsp

14. CHASER - Congenital Heart Anomalies, Support, Education, Resources The organization maintains the national heart parent/child database of families with congenital heart disease. By using information http://www.csun.edu/~hfmth006/chaser/

CHASER specializes in children born with congenital heart defects (CHD), "in utero to adult", and also acquired heart disease in infants and children. The primary purpose of the organization is to offer parents, professionals and patients, resources that may help these individuals in their dealings with financial, educational, medical, emotional and other issues that may concern them. CHASER is in essence working to fill a void which exists for many. CHASER collects information nationwide from a variety of clearinghouses, organizations, professionals, and the family. CHASER itself can be a clearinghouse of information for all. From heart defects to syndromes accompanied by heart disorders - from feeding to surgery and beyond - CHASER strives toward finding and linking the family to the "help". The organization maintains the national 'heart' parent/child database of families with congenital heart disease. By using information furnished by families and professional in various fields, they in turn are able to provide parents the opportunity to connect with others who truly understand their concerns and fears - CHASER's Parent to Parent Networking. They employ some of the most precise "matching" capabilities for CHD families found anywhere. Close similarities in condition and experience are considered a prerequisite to "understanding". While at the same time, "new" parents can find not only understanding, but resources and coping skills as well. Isolation and loneliness can be lessened or alleviated by CHASER's networking. They primarily work on a "One-to-One" basis when locating helpful information or contacts, with each case looked upon as being unique.

15. Oliver W. Caminos, M.D. A most complete manual, text and graphics by Oliver W. Caminos M.D. (1999) http://www.redtail.net/owc

Enter The Book CARDIOLOGY CONGENITAL HEART DISEASES THEIR STUDY AND TREATMENT by Oliver W. Caminos, M.D. Graphics and text by Oliver W. Caminos M.D. owcc@aol.com MCI Publications Enter The Book

16. MedlinePlus Medical Encyclopedia: Congenital Heart Disease congenital heart disease. congenital heart disease (CHD) is a broad term that can describe a number of different abnormalities affecting the heart. http://www.nlm.nih.gov/medlineplus/ency/article/001114.htm

@import url(http://www.nlm.nih.gov/medlineplus/images/advanced.css); Skip navigation Medical Encyclopedia Other encyclopedia topics: A-Ag Ah-Ap Aq-Az B-Bk ... Z Congenital heart disease Contents of this page: Illustrations Definition Causes, incidence, and risk factors Symptoms ... Prevention Illustrations Heart, section through the middle Cardiac catheterization Heart, front view Ultrasound, normal fetus - heartbeat ... Patent ductus arteriosis (PDA) - series Definition Return to top Congenital heart diseases are abnormalities of the heart's structure and function caused by abnormal or disordered heart development before birth. Causes, incidence, and risk factors Return to top Congenital heart disease (CHD) is a broad term that can describe a number of different abnormalities affecting the heart. Congenital heart disease is, by definition, present at birth although its effects may not be obvious immediately. In some cases, such as coarctation of the aorta , it may not present itself for many years and a few lesions such as a small ventricular septal defect VSD ) may never cause any problems and are compatible with normal physical activity and a normal life span.

17. Congenital Heart Disease On The Web congenital heart disease. A multimedia review of the radiologic characteristics for radiology residents. http://www.med.umn.edu/radiology/cvrad/chd/chd.html

Congenital Heart Disease A multimedia review of the radiologic characteristics for radiology residents. Increased Pulmonary Vascularity Without Cyanosis Ventricular Septal Defect Patent Ductus Arteriosus Atrial Septal Defect Partial Anomalous Pulmonary Venous Return ... Left Ventricle to Right Atrium Increased Pulmonary Vascularity With Cyanosis D- T ransposition of the Great Vessels T ... ricuspid Atresia without Pulmonary Stenosis Normal Pulmonary Vascularity Coarctation of Aorta Aortic Stenosis Decreased Pulmonary Vascularity Tetralogy of Fallot Ebstein's Malformation of the Tricuspid Valve Tricuspid Atresia with Pulmonary Stenosis Pulmonary Stenosis or Atresia Increased Pulmonary Venous Vascularity Scimitar and Stenosis of Individual Pulmonary Veins Total Anomalous Pulmonary Venous Return (with Obstruction) Hypoplastic Left Heart Miscellaneous Lesions L-Transposition of the Great Vessels (From Cardiovascular Radiology , 1985, Gedgaudas, Moller, Casteneda-Zuniga, Amplatz)

18. Cardiac Surgery For Children Why undergo surgery using methods decades old! View/ read the newest and most innovative techniques including robotics and fetal surgery to deal with complex anatomical heart problems. http://www.cardiacsurgery4kids.com

Introduction and Benefits of Minimally Invasive Techniques upcoming technologies (fetal surgery) Congenital Defects (Adult and Pediatric) Patient referrals/contact numbers ... Why should you be operated upon with techniques of the past! Cardiac surgeon Michael Black is the Surgical Director of the Pediatric and Adult Congenital Cardiac Surgical Program at California Pacific Medical Center. Dr. Black was previously Chief of Pediatric Heart Surgery at Stanford University School of Medicine. Dr. Black remains a pioneer at using small incisions on very small patients. Dr. Michael Black was the principal investigator (PI) for the use of Zeus robot in pediatric cardiac surgery in North America. Most recently, Dr. Black has focused his repair of congenital heart lesions utilizing the da Vinci telemanipulating system. Dr. Black remains active in the development and modification of robotic equipment for congenital heart lesions. His unique program attracts both local and out-of-state patients. Out-of-state patients can be assisted with their accomodations and needs .

19. 3-D Visualization Of Congenital Heart Disease congenital heart disease. by Susanne Shamsolkottabi, Janice CookGranroth, William Stanford, M.D at the University of Iowa. congenital heart disease Overview http://everest.radiology.uiowa.edu/nlm/app/cnjheart/cnjheart.html

3-D Visualization of Congenital Heart Disease by Susanne Shamsolkottabi, Janice Cook-Granroth, William Stanford, M.D., Simon Kao, M.D., Kevin Baskin, M.D., and Eric Hoffman, Ph.D. at the University of Iowa Congenital Heart Disease Overview Patient Scan Protocol Case Studies Examples in the Literature Other Relate Web Sites Submitting Protocols of Your Own Division of Physiologic Imaging, Dept. of Radiology, Univ. of Iowa Tutorials DPI Homepage VIDA NLM ... Search Last modified: Wed Jun 2 11:01:49 CDT

20. Welcome To Congenital Heart Disease On The Web congenital heart disease ON THE WORLD WIDE WEB. William J. Weadock, MD Haraldur Bjarnason, MD Stephen H. Hite, MD. David W. Hunter, MD Kurt Amplatz, MD. http://www.med.umn.edu/radiology/cvrad/chd/

CONGENITAL HEART DISEASE ON THE WORLD WIDE WEB William J. Weadock, M.D. Haraldur Bjarnason, M.D. Stephen H. Hite, M.D. David W. Hunter, M.D. Kurt Amplatz, M.D. Most radiographic graphics/cases from the collection of Kurt Amplatz, M.D. Adapted for the World Wide Web by CHD WebMaster

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