Sleepnet.com's Homepage Sleep Disorders Sleep Links Search RLS in a 4y/o with Charcot Marie Tooth Disease Follow Ups Post Followup Diagnostic Dilemmas Forum2 FAQ Posted by kathleen pfeffer on March 05, 2002 at 09:11:36: I have been trying to treat a 4 y/o with Charcot Marie Tooth Disease who has a clinical history c/w with RLS. His PSG showed limb movements associated 2/hr with awakenings (some arousals), but without PLM's. Interestingly, father has the same history, but because "noone knew what to do for him" he has never been tried on medication. He also has not seen an adult sleep specialist, despite my recommendations. On the boy, I originally tried .25 - .5 mg clonipin, w/o success, then I tried codeine 60 mg, w/o success,then I tried clonidine 0.05 - 0.1 mg with transient improvement, but then a relapse. I recently (1 month ago) started mirapex 0.125 which mom says is causing him to shake and jitter (akathesia?). Dad tried his son's clonipin and it significantly helped him! Should I try other dopamine agonists and at what doses in a patient this age, weighing 15.4 kg. He had no
SDB, evidence of seizure activity on the PSG. Please respond with any reference re: CMT DISEASE and RLS or on personal experiences. I find it very unnerving to try some of these dopamine agonists on kids with the known side effects. Please help with any specific ref's re: CMT and RLS or personal successful experiences with this problem in children. Thanksk. | |
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