41. Conditions And Diseases - Barth Syndrome Top Links barth syndrome Web Site Links. barth syndrome Family Network Offers details about the disease, message board, research sites, events and private chats. http://www.disease-resources.com/Top_Health_Conditions_and_Diseases_Rare_Disorde

Sub Categories Related Healthcare Subjects Disabilities Environmental Health Fitness Health Insurance ... Men's Health Barth Syndrome Web Site Links Barth Syndrome Family Network Offers details about the disease, message board, research sites, events and private chats. Numerous links to other resources. Barth Syndrome Foundation Promotes knowledge about this disease among families, physicians and scientists, serving as a focal point for data and research for scientists. The group offers support to families learning to cope with the disorder. Clinical Mass Spectrometry Laboratory An article about Barth Syndrome with a description, clinical manifestations, etiology, epidemiology, diagnosis, prognosis and management. Other Useful Health Web Links National Institutes of Health (NIH) US Government department in charge of medical research. AHRQ: Clinical Information Clinical information on evidence-based practice, clinical guidelines, medical effectiveness, pharmaceutical therapy, new technology, screening and preventive services, outcomes research, and the National Guideline Clearinghouse. The UK Health Technology Assessment Programme Site contains details of program's many projects and publications; an NHS national research and development initiative.

42. Health, Conditions And Diseases, Rare Disorders: Barth Syndrome barth syndrome is a rare but serious genetic disorder that affects males. Help build the largest humanedited directory on the web. http://www.combose.com/Health/Conditions_and_Diseases/Rare_Disorders/Barth_Syndr

Top Health Conditions and Diseases Rare Disorders ... Barth Syndrome Related links of interest: Health:Conditions and Diseases:Cardiovascular Disorders:Heart Disease:Cardiomyopathy Health:Conditions and Diseases:Genetic Disorders Barth Syndrome Foundation - Promotes knowledge about this disease among families, physicians and scientists, serving as a focal point for data and research for scientists. The group offers support to families learning to cope with the disorder. Clinical Mass Spectrometry Laboratory - An article about Barth Syndrome with a description, clinical manifestations, etiology, epidemiology, diagnosis, prognosis and management. NINDS - Barth Syndrome Information - Information sheet compiled by the National Institute of Neurological Disorders and Stroke. The Complete Barth Syndrome Homepage - List of clinical symptoms, history of the condition, current news, and links to support groups. Barth Syndrome is a rare but serious genetic disorder that affects males. Help build the largest human-edited directory on the web. Submit a Site Open Directory Project Become an Editor The combose.com directory is based on the

43. Rare Disorders: Barth Syndrome Rare Disorders barth syndrome. barth syndrome Foundation. Promotes knowledge about this disease among families, physicians and scientists http://www.puredirectory.com/Health/Conditions-and-Diseases/Rare-Disorders/Barth

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44. :: Ez2Find :: Barth Syndrome Guide barth syndrome, Global Metasearch Any Language Guides, barth syndrome. ez2Find Home Directory Health http://ez2find.com/cgi-bin/directory/meta/search.pl/Health/Conditions_and_Diseas

Guide : Barth Syndrome Global Metasearch Any Language English Afrikaans Arabic Bahasa Melayu Belarusian Bulgarian Catala Chinese Simplified Chinese Traditional Cymraeg Czech Dansk Deutsch Eesti Espanol Euskara Faroese Francais Frysk Galego Greek Hebrew Hrvatski Indonesia Islenska Italiano Japanese Korean Latvian Lietuviu Lingua Latina Magyar Netherlands Norsk Polska Portugues Romana Russian Shqip Slovensko Slovensky Srpski Suomi Svenska Thai Turkce Ukrainian Vietnamese Mode All Words Any Word Phrase Results Timeout Depth Adult Filter Add to Favorites Other Search Web News Newsgroups Images Guides Barth Syndrome ez2Find Home Directory Health Conditions and Diseases ... Rare Disorders : Barth Syndrome Related Categories Health: Conditions and Diseases: Cardiovascular Disorders: Heart Disease: Cardiomyopathy Health: Conditions and Diseases: Genetic Disorders Web Sites Barth Syndrome Foundation [Site Info] [Translate] [Open New Window] Promotes knowledge about this disease among families, physicians and scientists, serving as a focal point for data and research for scientists. The group offers support to families learning to cope with the disorder. URL: http://www.barthsyndrome.org

45. Barth Syndrome The New Health Directory, Directory, Home Health Conditions and Diseases Rare Disorders barth syndrome (3) See Also http://www.thenewhealthfind.com/Health/ConditionsandDiseases/RareDisorders/Barth

Directory Home Health Conditions and Diseases Rare Disorders : Barth Syndrome (3) See Also: Health: Conditions and Diseases: Cardiovascular Disorders: Heart Disease: Cardiomyopathy Health: Conditions and Diseases: Genetic Disorders Barth Syndrome Family Network - Offers details about the disease, message board, research sites, events and private chats. Numerous links to other resources. Barth Syndrome Foundation - Promotes knowledge about this disease among families, physicians and scientists, serving as a focal point for data and research for scientists. The group offers support to families learning to cope with the disorder. Clinical Mass Spectrometry Laboratory - An article about Barth Syndrome with a description, clinical manifestations, etiology, epidemiology, diagnosis, prognosis and management. Help build the largest human-edited directory on the web. Submit a Site Open Directory Project Become an Editor Quick Links protein rich foods men's health fitness Graves disease acne skin care ... prenatal vitamins The New Health Directory Site Map Privacy Contact Advertise ... Health Directory

46. Barth Syndrome HOME. barth syndrome (Cardiomyopathy, X Linked, Fatal Infantile; Cardioskeletal MyopathyNeutropenia). The barth syndrome Foundation, Inc. http://www.bdid.com/barth.htm

HOME Barth Syndrome (Cardiomyopathy, X Linked, Fatal Infantile; Cardioskeletal Myopathy-Neutropenia) The Barth Syndrome Foundation, Inc. The Complete Barth Syndrome Homepage Heart Transplantation for Barth Syndrome Barth Syndrome ... HOME

47. Health Info Topic barth syndrome, Back to previous page. None. General Discussion. barth syndrome is a genetic disorder that appears to occur exclusively in males. http://www.pamf.org/health/healthinfo/index.cfm?page=article&sgml_id=nord1116

48. Barth Syndrome : Meddie Health Search barth syndrome Foundation Promotes knowledge about this disease among families, physicians and scientists, serving as a focal point for data and research for http://www.meddie.com/Conditions_and_Diseases/Rare_Disorders/Barth_Syndrome/

Search Meddie: the entire directory only this category More search options Home Conditions and Diseases Rare Disorders : Barth Syndrome ITEMS: LINKS: Barth Syndrome Foundation Promotes knowledge about this disease among families, physicians and scientists, serving as a focal point for data and research for scientists. The group offers support to families learning to cope with the disorder. (Rating: 10.00 Votes: 4) Rate It Clinical Mass Spectrometry Laboratory An article about Barth Syndrome with a description, clinical manifestations, etiology, epidemiology, diagnosis, prognosis and management. (Rating: 0.00 Votes: 0) Rate It HOME ADD A LINK MODIFY A LINK ... Design © ISC Enterprises Inc.

49. Barth Syndrome barth syndrome BSF. The barth syndrome Foundation requests applications for funding for research on the natural history, biochemical http://vpr2.admin.arizona.edu/rso/02051509.htm

BARTH SYNDROME - BSF The Barth Syndrome Foundation requests applications for funding for research on the natural history, biochemical basis, and treatment of Barth syndrome, an X-linked recessive, cardioskeletal myopathy associated with neutropenia, growth delay, and diverse biochemical abnormalities. Grants may be used as seed money for the testing of initial hypotheses and collection of preliminary data. Awards provide $10,000 to $40,000 for 1 or 2 years. Contact: Kate McCurdy, BSF, P.O. Box 618, Larchmont, NY 10538. E-mail: kmccurdy@barthsyndrome.org Web: http://www.barthsyndrome.org/links_research.htm Deadline: 30 June 2002 for letters of intent; 1 November 2002 for invited full applications. RSO Reference No.:

50. 2004 Barth Syndrome International Family And Scientific Conference 2004 barth syndrome International Family and Scientific Conference, barth syndrome. Organized by The barth syndrome Foundation, Inc. http://www.conferencealerts.com/seeconf.mv?q=ca1hhiha

51. Barth Syndrome Foundation, Inc. Return to Search Page barth syndrome Foundation, Inc. Email sbowen@barthsyndrome.org. Conditions barth syndrome. Hours Answered 8am - 9pm, EST Voicemail yes. http://www.geneticalliance.org/diseaseinfo/displayorganization.html?orgname=Bart

52. Health - Conditions And Diseases - Rare Disorders - Barth Syndrome Top Health Conditions and Diseases Rare Disorders barth syndrome See also Health Conditions and Diseases Cardiovascular http://www.sedirectory.net/Health/Conditions_and_Diseases/Rare_Disorders/Barth_S

Web Hosting Dir Web Design Dir Search Engine Dir Hardware Info ... Resources Search: Top Health Conditions and Diseases Rare Disorders ... Barth Syndrome See also: Health: Conditions and Diseases: Cardiovascular Disorders: Heart Disease: Cardiomyopathy Health: Conditions and Diseases: Genetic Disorders Barth Syndrome Foundation - Promotes knowledge about this disease among families, physicians and scientists, serving as a focal point for data and research for scientists. The group offers support to families learning to cope with the disorder. Clinical Mass Spectrometry Laboratory - An article about Barth Syndrome with a description, clinical manifestations, etiology, epidemiology, diagnosis, prognosis and management. The Complete Barth Syndrome Homepage - List of clinical symptoms, history of the condition, current news, and links to support groups. NINDS - Barth Syndrome Information - Information sheet compiled by the National Institute of Neurological Disorders and Stroke.

53. Project: Barth Syndrome: Study Of The Role Of G4.5 Gene Products In Cell Metabol from Project barth syndrome . entire NIWI site (en), Help. Project barth syndrome study of the role of G4.5 gene products in cell metabolism. switch to nl. http://www.niwi.knaw.nl/en/oi/nod/onderzoek/OND1295719/toon

Login NIWI (en) Research Information NOD - Dutch Research Database ... Powered by from "Project: Barth syndrome:..." entire NIWI site (en) Project: Barth syndrome: study of the role of G4.5 gene products in cell metabolism Titel Barth syndroom: bestudering van de rol van G4.5 gen producten in de celstofwisseling Abstract Aims: 1. To assess the precise function of the G4.5 gene. 2. To study in detail the effects of the defect in the cardiolipine and fosfatidylglycerol "remodeling" on mitochondrial function. 3. To study the localization of the G4.5 enzyme in the cell. 4. To examine whether it is possible to influence the fatty acid composition of cardiolipine in cells of patients by changing the composition of the culture medium. 5. To examine, by means of the already developed and partly available techniques, in a population of patients with unexplained defects in the mitochondrial function if the lipid metabolism is disturbed. Period Related organisations Financier: Princes Beatrix Fund Secretariat: Department of Pediatrics (UvA) Related persons Project leader: Prof.dr. R.J.A. Wanders

54. Category: BARTH SYNDROME » Medical Related Associations University, Medical Related Associations » barth syndrome. Total 1 1 1 « 1 ». barth syndrome Foundation. Total 1 1 - 1 « 1 ». COPYRIGHT http://www.medfamily.org/gov/gov-terms-BARTH_SYNDROME-page0.chtml

Main Menu Med Family Home Medical Dictionary Medical Diagnosis ... WALDENSTRÖM`S MACROGLOBULINEMIA General MedAbbreviations MedGlossay Affiliates Pediatric Department of Tehran University Total : Barth Syndrome Foundation Total : Joint Partnership with Care Earth SGU Community Solo Futbol TUMS-Ped ... Cheap Store We're still here, you rockin' with the best! var site="sm4dicmedfamily"

55. Alexa Web Search - Subjects > Health > Conditions And Diseases > Rare Disorders barth syndrome Subjects Health Conditions and Diseases Rare Disorders barth syndrome. Sort by Most Popular. http://www.alexa.com/browse/general?catid=524632&mode=general

56. 2004 Barth Syndrome International Family And Scientific Conference Congress, Title 2004 barth syndrome International Family and Scientific Conference. Date July 08, 2004 July 12, 2004. City Lake Buena Vista. http://www.docguide.com/crc.nsf/congresses/E2F906520B40B74A85256E2100512FCC

City Guide Weather Flying Getting Around Dining ... E-Mail this resource to a colleague Congress Title: 2004 Barth Syndrome International Family and Scientific Conference Date: July 08, 2004 - July 12, 2004 City: Lake Buena Vista State/Province: FL Country: United States Contact: Conference Secretariat E-Mail: adunn@barthsyndrome.org North American Travel Links Weather CNN Weather forecast USA Today weather Weather underground Flying One Travel Travelocity Getting Around Mapquest All car rentals worldwide Getting around Canada Getting around Bermuda Dining Canadian restaurant guide US Restaurants by state Local diner's club Restaurants in the US Shopping Online Shopping USA Tourist - shopping guide Night Life USA - Nightclubs Events Canada USA Bermuda Points of Interest Canada - Attractions Canada - off the beaten track USA - best beaches USA - tourist attractions ... Bermuda - off the beaten track Recreation Canada - destination guides USA - destination guides Other Information Foreign languages for travelers Global Phone Nowfone Currency Converter Universal currency converter International currency converter ATM Locator Visa Mastercard

57. RDInfo- Research And Development Information Charity Details barth syndrome Foundation Details (Hits 545 ). Contact Address PO Box 974 Pery, FL 32348 USA. Phone 001 850 223 1128 Email http://www.rdinfo.co.uk/Queries/ListCharityDetails.asp?CharityID=1551

58. NINDS Barth Syndrome Information Page barth syndrome information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS). NINDS barth syndrome Information Page. http://accessible.ninds.nih.gov/health_and_medical/disorders/barth.htm

Disorders - National Institute of Neurological Disorders and Stroke (NINDS) Skip menus Main sections of the NINDS web site Home About NINDS Disorders-you are in this section ... Find People Disorders section pages and search Image Description Science For the Brain The nation's leading supporter of biomedical research on disorders of the brain and nervous system. Select Topic Disorder Quick Links Alzheimer's Autism Cerebral Palsy Chronic Pain Epilepsy Headache Multiple Sclerosis Parkinson's Stroke Traumatic Brain Injury More about NINDS Barth Syndrome Information Page Studies with patients Research literature Press release NINDS Search (search help) Contact us My privacy NINDS is part of the National Institutes of Health Contact us Content for this page NINDS Barth Syndrome Information Page Reviewed 03-26-2003 Get Web page suited for printing Email this to a friend or colleague Table of Contents (click to jump to sections) What is Barth Syndrome? Is there any treatment? What is the prognosis? What research is being done? ... Organizations What is Barth Syndrome? Barth syndrome is a rare congenital metabolic and neuromuscular disorder that affects boys. It is passed from mother to son through the sex-linked, or X, chromosome. Symptoms affect multiple systems of the body and may include changes to metabolism, motor delays, hypotonia (reduced muscle tone), delayed growth, cardiomyopathy (leading to a poorly functioning heart), weakened immune system, chronic fatigue, lack of stamina, hypoglycemia (low blood sugar), mouth ulcers, diarrhea, and varying degrees of physical and learning disability. Boys with the disorder also have fewer white blood cells (a condition called neutropenia), which may lead to an increased risk for serious bacterial infections. Barth syndrome affects at least 50 families worldwide, but there is evidence that it is underdiagnosed. On average 50 percent of children born to a carrier mother will inherit the defective gene, but only boys will have symptoms. All daughters born to an affected male will be carriers.

59. ScienceDaily -- Browse Topics: Health/Conditions_and_Diseases/Rare_Disorders/Bar Click Here. Top Health Conditions and Diseases Rare Disorders barth syndrome (2 links). See News about barth syndrome Discovery http://www.sciencedaily.com/directory/Health/Conditions_and_Diseases/Rare_Disord

Match: sort by: relevance date Free Services Subscribe by email RSS newsfeeds PDA-friendly format loc="/images/" A A A Find Jobs In: Healthcare Engineering Accounting College Contract / Freelance Customer Service Diversity Engineering Executive Healthcare Hospitality Human Resources Information Tech International Manufacturing Nonprofit Retail All Jobs by Job Type All Jobs by Industry Relocating? Visit: Moving Resources Moving Companies Mortgage Information Mortgage Calculator Real Estate Lookup Front Page Today's Digest Week in Review Email Updates ... Rare Disorders Barth Syndrome (2 links) See Also: Health: Conditions and Diseases: Cardiovascular Disorders: Heart Disease: Cardiomyopathy Health: Conditions and Diseases: Genetic Disorders News about Barth Syndrome New Cardiac Arrhythmia Syndrome Identified (June 1, 2004) full story Silence Of The Genes: Researchers Provide Unique View Of Inherited Disorders And Cancer (June 1, 2004) full story UW-Madison Scientists Find A Key To Cell Division (May 28, 2004) full story Vaccines Against Foodborne Disease On Horizon (May 25, 2004) full story Discovery Of Gene For Cornelia De Lange Syndrome Discovery May Lead To Prenatal Test For Debilitating Disorder (May 20, 2004)

60. ScienceDaily -- Browse Topics: Health/ConditionsandDiseases/RareDisorders/BarthS Click Here. Top Health Conditions and Diseases Rare Disorders barth syndrome (2 links). See Also News about barth syndrome From Algae http://www.sciencedaily.com/directory/Health/ConditionsandDiseases/RareDisorders

Match: sort by: relevance date Free Services Subscribe by email RSS newsfeeds PDA-friendly format loc="/images/" A A A Find Jobs In: Healthcare Engineering Accounting College Contract / Freelance Customer Service Diversity Engineering Executive Healthcare Hospitality Human Resources Information Tech International Manufacturing Nonprofit Retail All Jobs by Job Type All Jobs by Industry Relocating? Visit: Moving Resources Moving Companies Mortgage Information Mortgage Calculator Real Estate Lookup Front Page Today's Digest Week in Review Email Updates ... Rare Disorders Barth Syndrome (2 links) See Also: Health: Conditions and Diseases: Cardiovascular Disorders: Heart Disease: Cardiomyopathy Health: Conditions and Diseases: Genetic Disorders News about Barth Syndrome New Cardiac Arrhythmia Syndrome Identified (June 1, 2004) full story Silence Of The Genes: Researchers Provide Unique View Of Inherited Disorders And Cancer (June 1, 2004) full story UW-Madison Scientists Find A Key To Cell Division (May 28, 2004) full story Vaccines Against Foodborne Disease On Horizon (May 25, 2004) full story Discovery Of Gene For Cornelia De Lange Syndrome Discovery May Lead To Prenatal Test For Debilitating Disorder (May 20, 2004)

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