61. Anencephaly anencephaly Support Foundation. anencephaly anencephaly Support Foundation International network. Founded 1992. Phone support. WRITE anencephaly Support Fdn. http://my.webmd.com/hw/raising_a_family/shc29ane.asp

var guid_source = ""; var guid_source_id = ""; //unused var encodedurl = ""; WebMD Today Home WebMD News Center Member Services WebMD University My WebMD Find a Physician Medical Info Check Symptoms Medical Library Quizzes, Calculators Clinical Trials ... Women, Men, Lifestyle Who We Are About WebMD Site Map Health Topics Symptoms ... Anencephaly Support Foundation Anencephaly Anencephaly Support Foundation International network. Founded 1992. Provides support for parents who are continuing a pregnancy after being diagnosed with an anencephalic infant. Information and resources for parents and professionals. Phone support. WRITE: Anencephaly Support Fdn. 20311 Siena Pines Court Spring, TX 77379 E-MAIL: asf@asfhelp.com WEBSITE: http://www.asfhelp.com VERIFIED: 8/10/2003 The above information is based upon information available through the "verified" date at the end of each listing. Since American Self-Help Group Clearinghouse's resources are limited; it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information. For additional information and assistance about self-help groups, please contact the American Self-Help Group Clearinghouse in Cedar Knolls, New Jersey, by email at: info@selfhelpgroups.org

62. Anencephaly Find it Here. anencephaly. anencephaly Net anencephaly Net. anencephaly n a defect in brain development resulting in small or missing brain hemispheres. http://www.health-nexus.com/anencephaly.htm

Health-Nexus.Net Health-Nexus.Org The #1 Health information site Home ... Up Search Health-Nexus for: Match ALL words Match ANY word Email this page to a friend ! Post a question or comment on our Message Board Home Page Health Specialties Health News ... Alternative Health Options Substance Abuse Animal Health Search: Books Magazines Video Keywords: Find it Here Anencephaly Anencephaly Support Foundation Nonprofit group offers information, personal stories and medical articles regarding this neural tube defect, plus links to support resources. Anencephaly Net Anencephaly Net. anencephaly n: a defect in brain development resulting in small or missing brain hemispheres. ... Anencephaly Support and Information. ... Anencephaly Anencephaly Anencephaly is a neural tube defect (a disorder involving & the brain and spinal cord of the embryo. Anencephaly occurs when the "cephalic" or head end .... anencephaly ... anencephaly arises from an embryonic defect occurring prior to day 26 which prevents the closure of the anterior ... 1Up Health - Anencephaly (Aprosencephaly with Open Cranium) Study this fatal neural tube defect, aka anencephalus, in which babies are born without a skull or cerebral portion. Uncover symptoms, causes, tests, and prevention.

63. LookSmart - Directory - Anencephaly anencephaly Learn about this congenital abnormality, in which all or part of the brain and skull is missing at birth. Directory http://search.looksmart.com/p/browse/us1/us317837/us317919/us4072325/us70128/us2

@import url(/css/us/style.css); @import url(/css/us/searchResult1.css); Home IN the directory this category YOU ARE HERE Home Personal Family Pregnancy Conditions Anencephaly - Learn about this congenital abnormality, in which all or part of the brain and skull is missing at birth. Directory Listings About Anencephaly Support Foundation Nonprofit group offers information, personal stories and medical articles regarding this neural tube defect, plus links to support resources. allRefer Health - Anencephaly (Aprosencephaly with Open Cranium) Study this fatal neural tube defect, aka anencephalus, in which babies are born without a skull or cerebral portion. Uncover symptoms, causes, tests, and prevention. Anencephaly Information Provides information about the birth defect anencephaly for parents and care givers Healthtouch - Anencephaly National Institute of Neurological Disorders and Stroke provides an overview of the disease covering prevention, prognosis and other topics. NINDS Anencephaly Information Page National Institute of Neurological Disorders and Stroke fact sheet describes the neural tube defect. Link to literature and organizations. We're always looking for ways to improve your search experience.

64. A Site For Anencephaly And Anencephalic Angels -- The Ten Perfect Fingers Web Si anencephaly . But for the parents of these doomed babies, it is much more than just a medical term. anencephaly is a shocking, 100% fatal reality. http://home.earthlink.net/~mbwinner/tpf.html

"Anencephaly" It's one of those sterile, detached words doctors use to lend distance to nature's more gruesome unpleasantries – unpleasantries like a fetus whose neural tube fails to grow into a brain. But for the parents of these doomed babies, it is much more than just a medical term. Anencephaly is a shocking, 100% fatal reality. It is a reality so shocking that almost everyone's first reaction is not to deal with it at all. Politicians, religious leaders, and even doctors have little to offer the parents of brain-absent anencephalics. "Put it all behind you" seems to echo from every corner. Forget those who might be spared your agony. Forget that two babies must die when one might live. Remain silent. You can try for another baby. Why fight the system for the chance to save the life of someone else's baby? Meet Mike and Brenda Winner. In the fifth month of her first pregnancy, Brenda discovered that she was carrying an anencephalic infant after having a routine ultrasound examination. For weeks she desperately searched for someone who would accept the organs of her unborn baby for transplantation after it was born. But because of technicalities in the laws regarding organ donation and the definition of brain death, her efforts almost came up empty. But in her heart she knew she was doing the right thing, and there had to be someone out there in the medical community who agreed with her. Most of all she knew that she could not simply give up, turn her back, and walk away.

65. A Site For Anencephaly And Anencephalic Angels -- The Ten Perfect Fingers Web Si Links to other sites on anencephaly. Click here for other books on anencephaly and anencephalic organ donors. The anencephaly Support Foundation (Nonprofit). http://home.earthlink.net/~mbwinner/tpf_home.html

Welcome to the Ten Perfect Fingers Website! Click here for a copy of Ten Perfect Fingers Click here to read Brenda's farewell letter to her anencephalic daughter, Jarren Click here for a synopsis of Ten Perfect Fingers Click here for biographical information on Brenda Winner ... Click here to preview Ten Perfect Fingers Click on the bookcover below to preview Ten Perfect Fingers Links to other sites on anencephaly Click here for other books on anencephaly and anencephalic organ donors Info on the March of Dimes' Folic Acid Campaign to reduce the risk of Neural Tube Defects (NTDs) The Anencephaly Support Foundation (Non-profit) The Loma Linda University Medical Center protocol for using anencephalic newborns as organ donors ... Report of the Canadian Pediatric Society on Transplantation of Organs from Newborns with Anencephaly

66. OBGYN.net - Ultrasound Section Featured Article: Exencephaly-Anencephaly Sequenc Exencephaly – anencephaly Sequence and its Sonographic Features by Martin Necas RDMS, RVT, Terry DuBose, MS, RDMS and Vicki Taylor, LM, CPM June 2000. http://www.obgyn.net/us/cotm/0006/Exencephaly-Anencephaly.htm

FEATURED ARTICLE OF THE MONTH Exencephaly – Anencephaly Sequence and its Sonographic Features by Martin Necas RDMS, RVT Terry DuBose, MS, RDMS and Vicki Taylor , LM, CPM June 2000 Citation: NecasM, DuBoseT, TaylorV: "Exencephaly -Anencephaly Sequence and its Sonographic Features". June 2000; http://www.obgyn.net/us/cotm/0006/exencephaly-anencephaly.htm Introduction Anencephaly represents the most common neural tube defect. It’s incidence is approximately 1:1000 with female predominance (4:1) and geographical variability. , as well as observations on ultrasonography combined with amniotic fluid cytology. Ultrasound Findings Reliable sonographic diagnosis of anencephaly is usually possible in early second trimester (10-14wks GA) . Conventional 2D ultrasound is accurate in diagnosing anencephaly and the sensitivity is virtually 100% after 14wks GA . 3D sonography has been shown to be equally effective in detecting anencephaly. On ultrasound, the cranial vault (bony calvarium) is symmetrically absent. Rudimentary brain tissue (area cerebrovasculosa) is covered by a membrane, but not bone (Figure 1,2). This be seen protruding from the base of the skull in the early second trimester, and gradually degenerates until the appearance of the head is completely flattened behind the facial structures. Facial views reveal frog-like appearance with prominent bulging eyeballs (Figure 3,4). Associated polyhydramnios usually develops in the second trimester and is likely due to absent or ineffective fetal swallowing (Figure 3). High degree of fetal activity is often observed.

67. Disease Directory : Neurological Disorders : Congenital Anomalies : Anencephaly A Site for anencephaly and Anencephalic Angels The Ten Perfect Links to other sites on anencephaly. The anencephaly Support Foundation (Non-profit). http://www.diseasedirectory.net/Neurological_Disorders/Congenital_Anomalies/Anen

Wednesday, June 02, 2004 Neurological Disorders Congenital Anomalies Anencephaly Chiari Malformations ... Congenital Anomalies : Anencephaly A Site for Anencephaly and Anencephalic Angels The Ten Perfect ... - Links to other sites on anencephaly. Click here for other books on anencephaly and anencephalic organ donors. The Anencephaly Support Foundation (Non-profit). AllRefer Health - Anencephaly (Aprosencephaly with Open Cranium) - Anencephaly (Aprosencephaly with Open Cranium) information center covers causes, prevention, symptoms, diagnosis, treatment, incidence, risk factors, signs Anencephaly - Anencephaly. Definition anencephalia; congenital defective development basal ganglia. partial anencephaly. Radiographic Appearance Usually Anencephaly - ANENCEPHALY. Fighters for Encephaly Support Group,. 332 Brereton Street. Pittsburgh, PA 15219. (412) 687-6437. (412) 331-4365. Anencephaly - Anencephaly. Anencephaly—Birth defect characterized by failure of the brain and skull to form properly. Parts of the brain and the skull may be missing. Anencephaly - Anencephaly. What is anencephaly? Anencephaly is a surround the head. Anencephaly results in only minimal development of the brain.

68. Anencephaly anencephaly. What is anencephaly? anencephaly is a surround the head. anencephaly results in only minimal development of the brain. http://www.chw.org/display/PPF/DocID/5833/router.asp

Brain Tumors Anencephaly Chiari Malformation Craniosynostosis ... Diagnoses : Anencephaly E-mail this page Print this page Anencephaly What is anencephaly? Anencephaly is a condition present at birth that affects the formation of the brain and the skull bones that surround the head. Anencephaly results in only minimal development of the brain. Often, the brain lacks part or all of the cerebrum (the area of the brain that is responsible for thinking, vision, hearing, touch, and movement). There is no bony covering over the back of the head and there may also be missing bones around the front and sides of the head. What causes anencephaly? Anencephaly is a type of neural tube defect. Neural tube defects, spina bifida (open spine) and anencephaly (open skull) are seen in one to two per 1,000 live births. During pregnancy, the human brain and spine begin as a flat plate of cells, which rolls into a tube, called the neural tube. If all or part of the neural tube fails to close, leaving an opening, this is known as an open neural tube defect, or ONTD. This opening may be left exposed (80 percent of the time), or covered with bone or skin (20 percent of the time). Anencephaly and spina bifida are the most common ONTDs, while encephaloceles (where there is a protrusion of the brain or its coverings through the skull) are much rarer. Anencephaly occurs when the neural tube fails to close at the base of the skull, while spina bifida occurs when the neural tube fails to close somewhere along the spine.

69. YOU ARE NOW CONNECTED TO THE TOXLINE (1981 FORWARD, NON-ROYALTY) anencephaly 1 AUTHOR Oakley GP Jr AUTHOR Adams MJ AUTHOR Dickinson CM TITLE More folic acid for everyone, now. SOURCE J Nutr http://www.webshells.com/medsrch/anenceph.txt

YOU ARE NOW CONNECTED TO THE TOXLINE (1981 FORWARD, NON-ROYALTY) FILE. ==ANENCEPHALY== 1 AUTHOR Oakley GP Jr AUTHOR Adams MJ AUTHOR Dickinson CM TITLE More folic acid for everyone, now. SOURCE J Nutr 1996 Mar;126(3):751S-755S ABSTRACT Research during the last 5 years has made it clear that people who do not take folic acid supplements are at increased risk for functional folate deficiency, which has been proven to cause spina bifida and anencephaly and also has been associated with an increased risk for occlusive cardiovascular disease. The overriding folate policy issue is how to increase dramatically the folate consumption of 75% of the population who are now consuming 0.4 mg of folic acid in a supplement. The most expeditious way to increase consumption is through fortification of a food staple. Public health programs are also needed to educate people about the vital importance of increased consumption of folic acid vitamin supplements and of food rich in natural folates. It is urgent that fortification of cereal-grain products be implemented now. The level proposes by FDA would accomplish some prevention, but much more prevention would occur if the fortification were 2.5 times that level. Fortification at the higher level would prevent about 1000 spina bifida and anencephaly birth defects each year and perhaps as many as 50,000 premature deaths each year from coronary disease. Available data have not demonstrated that increasing consumption of folic acid by 0.1 to 0.25 mg of folic acid a day is harmful. If a policy needs to be established on the assumption that people who take vitamin supplements could be harmed, a good policy option ia available; require that all folic acid vitamin supplements also contain 0.4 mg of vitamin B-12. 4 AUTHOR Oakley GP Jr AUTHOR Erickson JD AUTHOR James LM AUTHOR Mulinare J AUTHOR Cordero JF TITLE Prevention of folic acid-preventable spina bifida and anencephaly. SOURCE Ciba Found Symp; VOL 181, 1994, P212-23; discussion 223-31 (REF: 20) ABSTRACT The results of the British Medical Research Council's randomized controlled trial proved that folic acid can prevent spina bifida and anencephaly. The trial provided critical scientific data upon which to base public health policy for preventing folic acid-preventable spina bifida and anencephaly. Within weeks of publication of the results, the Centers for Disease Control and Prevention in the US developed and issued guidelines for women who had had a pregnancy affected by spina bifida or anencephaly. A year later, the US Public Health Service issued the recommendation that all women of child-bearing age who are capable of becoming pregnant should consume 0.4 mg of folic acid per day. The Public Health Service needed a year to make inferential judgements about dose, target groups, safety, timing of ingestion, and existing and proposed vitamin and drug policies and regulations. Current policy discussions concern whether to permit manufacturers of vitamins or food products to claim that folic acid will prevent folic acid-preventable spina bifida and anencephaly and whether to allow a food staple to be fortified with folic acid. 10 AUTHOR Lemire RJ AUTHOR Siebert JR TITLE Anencephaly: its spectrum and relationship to neural tube defects. SOURCE J Craniofac Genet Dev Biol 1990;10(2):163-74 ABSTRACT Anencephaly patients are of renewed interest because they are regarded as a potential source of organ donation. While there has been a longstanding scientific curiosity on this subject, studies have frequently included such cases as part of the larger spectrum of neural tube defects (NTDs). This paper will discuss some unusual features of anencephaly. Following a review of classification and pathogenesis, associated malformations, growth parameters (organ size and anthropometric measurements), and associations with other entities are discussed. Finally, the relationship of anencephaly to NTDs is presented. 14 AUTHOR Borman GB AUTHOR Smith AH AUTHOR Howard JK TITLE Risk factors in the prevalence of anencephalus and spina bifida in New Zealand. SOURCE Teratology; VOL 33, ISS 2, 1986, P221-30 (REF: 74) ABSTRACT This paper presents results from an epidemiological study on the 51 anencephalus and 53 spina bifida cases in the 1978 New Zealand birth cohort. Multiple sources were used in the ascertainment, and the prevalence rates were 0.98 and 1.02 per 1,000 total births, respectively. No association was found with the traditional indicators of the effect of environmental factors: maternal age, social class, nuptiality, month of birth, or estimated month of conception. Males comprised 41% of anencephalus and 36% of spina bifida cases; the prevalence was higher in the non-Maori than in the Maori population. New Zealand-born mothers appear to have a much lower risk of spina bifida, but not anencephaly, than those born in England/Scotland. The rate for the latter population was within the range of a number of UK-based studies. As the bloodstock of New Zealand whites has been predominantly derived from the UK population, and as New Zealand is a low prevalence area, this suggests that the higher risk for these women is likely to be attributable to factors present in their birthplace but absent in New Zealand. These findings provide further evidence that the epidemiologic patterns of anencephalus and spina bifida in low-prevalence areas are at variance with those in high-prevalence areas, such as the United Kingdom. They also support the hypothesis that the contrast in rates between high- and low-prevalence areas is a reflection of the impact of environmental factors in high-prevalence areas on the "background" or baseline frequency of anencephalus and spina bifida found in low-prevalence areas.

70. Dr. Nathan Pregnancy Glossary Of Terms anencephaly. anencephaly occurs when the upper end of the neural tube (the rostral neuropore) fails to close in the embryo s fourth week of life. http://www.babyzone.com/drnathan/A/anencephaly.html

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71. Anencephaly anencephaly,. Print this article, neural tube defect gestational week. Three phases of development of anencephaly are described dysraphia http://www.amershamhealth.com/medcyclopaedia/medical/Volume VII/ANENCEPHALY.ASP

Amershamhealth.com Search for: Type a word or a phrase. All forms of the word are searchable. Browse entry words starting with: A B C D ... Other characters Anencephaly, neural tube defect where there is complete or partial absence of the fetal cranium. This is a lethal condition seen in 1 in 1000 births, commonly affecting female fetuses. The defect may occur as early as 18 to 20 postovulatory days and not later than the fourth gestational week. Three phases of development of anencephaly are described: dysraphia, the failure of closure of the rostral end of the neural groove; exencephaly, the exposure of the developed brain outside of the skull vault to amniotic fluid; and anencephaly, the disintegration of the exposed brain during fetal life. 75% of fetuses are stillborn. The majority of the remaining infants die within the first week of life. The diagnosis is made by fetal sonography. Alphafetoprotein levels in amniotic fluid are raised. See cranioschisis EP The Encyclopaedia of Medical Imaging Volume VII Contacts GE Healthcare Making Waves

72. ScienceDaily -- Browse Topics: Health/Conditions_and_Diseases/Neurological_Disor News about anencephaly full story. More news about anencephaly . Books about anencephaly More books about anencephaly . Links about anencephaly http://www.sciencedaily.com/directory/Health/Conditions_and_Diseases/Neurologica

Match: sort by: relevance date Free Services Subscribe by email RSS newsfeeds PDA-friendly format loc="/images/" A A A Find Jobs In: Healthcare Engineering Accounting College Contract / Freelance Customer Service Diversity Engineering Executive Healthcare Hospitality Human Resources Information Tech International Manufacturing Nonprofit Retail All Jobs by Job Type All Jobs by Industry Relocating? Visit: Moving Resources Moving Companies Mortgage Information Mortgage Calculator Real Estate Lookup Front Page Today's Digest Week in Review Email Updates ... Congenital Anomalies Anencephaly (15 links) See Also: Health: Mental Health: Grief, Loss and Bereavement: Support Groups Health: Reproductive Health: Pregnancy and Birth: Complications News about Anencephaly Scientists Discover Why Not Enough Choline Results In Fewer Brain Cells, Poorer Memory (March 18, 2004) full story Folate Deficiency Associated With Higher Early Miscarriage Risk (October 18, 2002) full story Study: Birth Defects Decrease Survival, Childbirth, Boost Risk Of Similar Defects (April 9, 1999) full story [ More news about Anencephaly Books about Anencephaly [ More books about Anencephaly Links about Anencephaly Anencephaly Support Foundation - Non-profit support organization with information, personal stories, and resources for families, parents, and medical professionals.

73. Anencephaly anencephaly. anencephaly is a condition in which a child is born with only a partially formed brain and spinal cord. A child with http://www.meritcare.com/hwdb/_followLink.asp?sgml_id=sta123265

74. NTDs NTDs are comprised mainly of anencephaly (including craniorachischisis), spina bifida (including meningomyelocele, meningocele, and myelocele), and http://www.tdh.state.tx.us/tbdmd/risk/risk7-NTDS.htm

Information for families who have had a pregnancy affected by a neural tube defect. Risk Factor Home Get an Adobe Acrobat version of this document. Important information about this document. BIRTH DEFECT RISK FACTOR SERIES: Neural Tube Defects DEFINITION Neural tube defects (NTDs) are a group of birth defects presumed to have a common origin in failure of the neural tube to develop properly during the embryonic stage. NTDs are comprised mainly of anencephaly (including craniorachischisis), spina bifida (including meningomyelocele, meningocele, and myelocele), and encephalocele. Anencephaly involves absence of the skull, with the cerebral hemispheres completely missing or reduced to small masses attached to the base of the skull. Spina bifida (which includes myelomeningocele and meningomyelocele) is defective closure of the bony encasement of the spinal cord, through which the cord and meninges may or may not protrude. Encephalocele is protrusion of some or all of the brain through a defect in the skull. Approximately 10% or less of NTDs are associated with chromosomal abnormalities (O'Reilly and Shields, 2000). The most common types of chromosomal abnormalities include trisomy 18, trisomy 13, trisomy 21, triploidy, and Turner syndrome.

75. Anencephaly - Encyclopedia Article About Anencephaly. Free Access, No Registrati encyclopedia article about anencephaly. anencephaly in Free online English dictionary, thesaurus and encyclopedia. Provides anencephaly. Word http://encyclopedia.thefreedictionary.com/Anencephaly

Dictionaries: General Computing Medical Legal Encyclopedia Anencephaly Word: Word Starts with Ends with Definition Cephalic disorders are congenital conditions that stem from damage to, or abnormal development of, the budding nervous system The nervous system of an animal coordinates the activity of the muscles, monitors the organs, constructs and processes input from the senses and initiates actions. In animals with brains, the nervous system also generates and conducts thoughts and emotions. Thus it is the system that animates "animals" (sponges are an exception). Chemicals that target the activity of nerves generally are the most rapidly acting toxins, typically causing paralysis and/or death. Click the link for more information. . Cephalic is a term that means " head The head of an animal is the anterior part that bears the mouth, the brain and various sensory organs (e.g. organs of sight, hearing, smell and taste). The very simplest animals do not have a head, but most bilaterally symmetric forms do. In vertebrates the contents of the head are protected by an enclosure of bone called the skull, which is attached to the spine. Head is often a part of a title of office, meaning "the highest". A "head of department" is thus the person with the highest standing in said department. This use might stem from the fact that the head is the highest placed part of the human body, or from the fact that the brain and therefore cognitive functions and decision making is located in the head.

76. Anencephaly Articles, Support Groups, And Resources anencephaly articles, support groups, and resources for patients from Med Help International (www.medhelp.org). Health anencephaly. Medical http://www.medhelp.org/HealthTopics/Anencephaly.html

[Health Topics A-Z] A B C D ... Z Anencephaly Medical Glossary: ANENCEPHALY Support Groups: Anencephaly Support Foundation [Med Help Home] [Library Search] [Medical Forums] ... [Patient Network] Revised: 5/30/2004

77. Health Library - anencephaly. Disorder Subdivisions. None. General Discussion. anencephaly is a disorder involving the incomplete development of major parts or all of the brain. http://yalenewhavenhealth.org/library/healthguide/IllnessConditions/topic.asp?hw

78. Health Library - Anencephaly results mean. anencephaly. anencephaly is a condition in which a child is born with only a partially formed brain and spinal cord. A http://yalenewhavenhealth.org/Library/HealthGuide/MedicalTests/topic.asp?hwid=st

79. Cephalic Disorders More Common Cephalic Disorders. anencephaly. Infants born with anencephaly are usually blind, deaf, unconscious, and unable to feel pain. http://www.fact-index.com/c/ce/cephalic_disorders.html

Main Page See live article Alphabetical index Cephalic disorders Cephalic disorders are congenital conditions that stem from damage to, or abnormal development of, the budding nervous system . Cephalic is a term that means " head " or "head end of the body." Congenital means the disorder is present at, and usually before, birth Cephalic disorders are not necessarily caused by a single factor, but may be influenced by hereditary or genetic conditions, or by environmental exposures during pregnancy , such as medication taken by the mother, maternal infection, or exposure to radiation . Some cephalic disorders occur when the cranial sutures (the fibrous joints that connect the bones of the skull ) join prematurely. Most cephalic disorders are caused by a disturbance that occurs very early in the development of the fetal nervous system. The human nervous system develops from a small, specialized plate of cells on the surface of the embryo . Early in development, this plate of cells forms the neural tube, a narrow sheath that closes between the third and fourth weeks of pregnancy to form the brain and spinal cord of the embryo. Four main processes are responsible for the development of the nervous system: cell proliferation, the process in which

80. TheFetus.net - Anencephaly -Luís F. Gonçalves, MD - Maria Verônica Muñoz Roj anencephaly. Definition anencephaly is a neural tube defect characterized by absence of the cranial vault and cerebral hemispheres Incidence 0.1/10,000. http://www.thefetus.net/page.php?id=84

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