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         Anencephaly:     more books (32)
  1. Cephalic disorders (SuDoc HE 20.3520:C 33) by U.S. Dept of Health and Human Services, 1998
  2. Anencephalic infants as potential organ sources: Ethical and legal issues (Scope note) by Sue A Meinke, 1989
  3. Neural tube defects in North Carolina: Epidemiological characteristics and trends among live-born and still-born infants by Robert E Meyer, 1997

41. EMedicine - Anencephaly : Article Excerpt By: Robert G Best, PhD
anencephaly anencephaly is a neural tube defect (NTD) in which the brain and cranial vault are grossly malformed. (advertisement). Excerpt from anencephaly.
http://www.emedicine.com/neuro/byname/anencephaly.htm
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Excerpt from Anencephaly
Please click here to view the full topic text: Anencephaly
Background: Anencephaly is a neural tube defect (NTD) in which the brain and cranial vault are grossly malformed. The cerebrum and cerebellum are reduced or absent, but the hindbrain is present. This defect results when the neural tube fails to close during the third to fourth weeks of development, leading to fetal loss, stillbirth, or neonatal death. Anencephaly, like other forms of NTDs, generally follows a multifactorial pattern of transmission, with interaction of multiple genes as well as environmental factors. Anencephaly can be detected prenatally through maternal serum alpha-fetoprotein screening or ultrasound imaging. Folic acid has been shown to be an efficacious preventive agent that reduces the potential risk of anencephaly and other NTDs by approximately two thirds. Pathophysiology: In the normal human embryo, the neural plate arises approximately 18 days after fertilization. During the fourth week of development, the neural plate invaginates along the embryonic midline to form the neural groove. The neural tube is formed as closure of the neural groove proceeds from the middle of the groove and progresses toward the ends in both directions, with completion between day 24 for the cranial end and day 26 for the caudal end. Disruptions of the normal closure process give rise to NTDs. Anencephaly results from failure of neural tube closure at the cranial end of the developing embryo. Absence of the brain and calvaria may be partial or complete.

42. Mourning Mommies
A support group for women who have lost babies to anencephaly.
http://www.geocities.com/mourningmommies/

43. Spina Bifida And Anencephaly - Healthy Kids And Pediatrics - Health And Medical
MedicineNet Home Diseases Conditions AZ List Healthy Kids Home Spina Bifida and anencephaly. Advanced Search. Spina Bifida anencephaly At A Glance.
http://www.medicinenet.com/Spina_Bifida_and_Anencephaly/article.htm
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Spina Bifida and Anencephaly
(Neural Tube Defects)
What are spina bifida and anencephaly?
Spina bifida and anencephaly are neural tube defects (NTDs), which are common birth defects that affect thousands of babies each year in the United States. The neural tube is an early stage of the developing nervous system in the embryo. How does spina bifida occur?
Spina bifida results from the failure of the spinal column to close, usually near the bottom of the spinal cord. What problems does spina bifida cause?
Persons with spina bifida usually have serious disabilities. Legs and feet are often paralyzed, and there are problems with bowel and bladder control. Learning disabilities are common and mental retardation sometimes occurs. How does anencephaly occur?

44. For Hope. . .Index
Memorial to this daughter who died four hours after birth due to anencephaly. Hope's story, photos, and poems.
http://www.angelfire.com/in2/forhope6396/
var cm_role = "live" var cm_host = "angelfire.lycos.com" var cm_taxid = "/memberembedded"
I cannot say, and I will not say
That she is dead-she is just away!
With a cheery smile, and the wave of a hand,
She has wandered into an unknown land,
And left us dreaming how very fair
It needs must be, since she lingers there;
So think of her faring on, as dear
In the love of there as the love of here;
Think of her the same, I say:
She is not dead-she is just away!
~ James Whitcomb Riley ~ In a baby castle just beyond my eye, My baby plays with angel toys that money cannot buy. Who am I to wish her back into this world of strife? No, play on my baby, you have eternal life. At night when all is silent and sleep forsakes my eyes, I'll hear her tiny footsteps come running to my side. Her little hands caress me so tenderly and sweet, I'll breathe a prayer and close my eyes, and embrace her in my sleep. Now I have a treasure that I rate above all other. I have known true glory; I am STILL her mother. ~ Author Unknown ~ This is the story of our beloved daughter, Hope Christine. Her time here on earth lasted a painfully short time, but her time in our hearts will last an eternity. May her story touch your lives and hearts in the same manner as she has forever changed ours.

45. Anencephaly
anencephaly. Definition anencephaly is the absence of a large part of the brain and the skull. Alternative Names Aprosencephaly with open cranium.
http://www.healthscout.com/ency/article/001580.htm
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Anencephaly
Definition: Anencephaly is the absence of a large part of the brain and the skull.
Alternative Names: Aprosencephaly with open cranium
Causes, incidence, and risk factors: Anencephaly is a neural tube defect that occurs early in the development of an unborn baby. Neural tube defects involve the tissue that grows into the brain and spinal cord. Anencephaly results when the upper portion of the neural tube fails to close. Why this happens is not known. Possible causes include environmental toxins and low intake of folic acid during pregnancy. Anencephaly occurs in about 4 out of 10,000 births. The exact number is unknown, because many of these pregnancies spontaneously abort. Having one anencephalic infant increases the risk of having another child with neural tube defects. Low intake of folic acid during pregnancy can also contribute to neural tube defects such as anencephaly.

46. Margo's Faith
Faith was diagnosed with anencephaly while still in the womb. Her mother, Margo, chose to carry her to term. Faith was born in March of 2001, and lived until October, 2003.
http://faithaminah.tripod.com/
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Faith Aminah Shabazz
March 26, 2001 - October 4, 2003
Our Story
At 20 weeks inside the womb, Faith Aminah Shabazz was diagnosed as having anencephaly. Anencephaly is a neural tube defect where a major portion of the brain and skull is not developed. Rahim comforted me as I cried and cried and prayed to God not to let this happen to us. The maternal fetal medicine specialist said that most people terminate their pregnancy. We both said that terminating the pregnancy was out of the question. The doctor then said that Faith Aminah would either be stillborn, or die within a few hours, which is typical for anencephalic babies. We kept right on praying to God for the healing of our baby. Visit after visit we kept praying for a change on the ultrasound. The result appeared to always be consistent. We told our family and friends what we were told by the doctor. Their hearts and prayers went out to us. During this time my cousin Armi was reading a Jet magazine. She called me up to share a story about having hope and faith, and believing that what God had done for Olympia McGill and her baby, Felici, he could do the same for me. After reading Olympia's story, I called information for her phone number. I left several messages for her. I was anxious to share my story after hearing how God had healed her baby. She said the doctors had also told her that her baby had no chance of survival. As months passed, Olympia and I became great friends. She was here for the birth of Faith Aminah, along with my mom. Rahim and Olympia were at my side in the delivery room.

47. Xray2000
anencephaly. Definition anencephalia; congenital defective development basal ganglia. partial anencephaly. Radiographic Appearance Usually
http://www.xray2000.f9.co.uk/radpath/a/anencephaly.htm
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48. Loren
Memorial to this son lost September 20, 1999, to anencephaly. Loren's story, photo, and poems.
http://www.geocities.com/simonmanz/friend.html
The story of Loren Joseph
My pregnancy was uneventful from the start...no morning sickness, felt great the whole time, and we were so thrilled to be welcoming another new life.
On Friday 9/17 at the 34 week midwife appointment, all was well except for the first time I had too much amniotic fluid (polyhydramnios) and thus it was tough to palpate the baby. Midwife Carol made some dietary recommendations and we planned to meet again in one week.
We arrived at Swedish after getting priority loading on the ferry, and after meeting perinatologist Dr. Chuck Petty, I received a dose of terbutaline to try and stop contractions - unsuccessful.
I was so thankful for Carol's presence! I was moved to antepartum, where the nurse tried several times with difficulty to get Loren's heartbeat to pick up on the fetal monitor. Dr. Petty planned an ultrasound AND an amniocentesis as he said many times pre-term labor is caused by intra-uterine infections, which the amnio would pick up. I was very hesitant about having one done, but he advised me it would be best, so I agreed.
The ultrasound tech had lovely long hair and a grumpy attitude. She scanned my belly then told me we were having a boy! What pleasure I felt...I had been correct all along in my intuition! She left the room soon after beginning the scan, which I didn't even notice as I was still excited about the gender. The radiologist came in and he started scanning, asking me to turn way over on my left side as he "could not get a

49. Anencephaly - Lucile Packard Children's Hospital
Neurological Disorders. anencephaly What is anencephaly? anencephaly What causes anencephaly? anencephaly is a type of neural tube defect. Neural
http://www.lpch.org/diseaseHealthInfo/HealthLibrary/neuro/anenceph.html
Electroencephalography (EEG) Laboratory
Motion and Gait Analysis Laboratory

Movement Disorders

Neurology
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Expanded Imaging Facility At Packard Designed With Children In Mind
Neurological Disorders
Anencephaly
What is anencephaly?
Anencephaly is a condition present at birth that affects the formation of the brain and the skull bones that surround the head. Anencephaly results in only minimal development of the brain. Often, the brain lacks part or all of the cerebrum (the area of the brain that is responsible for thinking, vision, hearing, touch, and movement). There is no bony covering over the back of the head and there may also be missing bones around the front and sides of the head. What causes anencephaly? Anencephaly is a type of neural tube defect. Neural tube defects, spina bifida (open spine) and anencephaly (open skull) are seen in one to two per 1,000 live births. During pregnancy, the human brain and spine begin as a flat plate of cells, which rolls into a tube, called the neural tube. If all or part of the neural tube fails to close, leaving an opening, this is known as an open neural tube defect, or ONTD. This opening may be left exposed (80 percent of the time), or covered with bone or skin (20 percent of the time). Anencephaly and spina bifida are the most common ONTDs, while encephaloceles (where there is a protrusion of the brain or its coverings through the skull) are much rarer. Anencephaly occurs when the neural tube fails to close at the base of the skull, while spina bifida occurs when the neural tube fails to close somewhere along the spine.

50. Memorial To Mary Elizabeth Karg
A site dedicated to the memory of an anencephalic infant.
http://www.anencephaly.net/mary.html
In Loving Memory of
Mary Elizabeth Karg
September 3, 1998 - September 4, 1998
Our Story
We were excited when we found out about Patricia being pregnant again - we had had a miscarriage during a prior pregnancy. We were also in the midst of raising Joshua, a strong willed two year old. Since Joshua was taken via c-section at 37 weeks due to Patricia's toxemia and also because of the miscarriage, Patricia was watched by her doctor very carefully. We were able to agree on names for the baby early - Christopher Thomas or Mary Elizabeth. The baby was due on September 9, 1998. About 18 weeks into the pregnancy, the doctor did an AFP test, and the result came back abnormal. The doctor explained that there are two reasons for this. Either the due date is miscalculated or the baby could have a neural tube defect. She sent us to have an ultrasound to verify the due date. The ultrasound took place on April 15, 1998. I went with Patricia and Joshua, and we looked forward to early glimpses of our baby. Patricia wanted to know the babies sex, but I did not. However, we were not expecting the doctor to inform us that the baby had anencephaly. It was quite a shock. We asked the doctor what to do next. He said that most people terminate the pregnancy, because they consider the baby to be non-viable. However, we knew that there was a life in there, and knew that we should give her every chance to live. When we discussed this with our doctor, she agreed and also arranged for a second ultrasound.

51. Anencephaly
anencephaly. Fighters for Encephaly Support Group,. 332 Brereton Street. Pittsburgh, PA 15219. (412) 6876437. (412) 331-4365.
http://www.childhealthinfo.com/anencephaly.htm
ANENCEPHALY Fighters for Encephaly Support Group, 332 Brereton Street Pittsburgh, PA 15219 [Home] [Printed Guide] [Child Care for the '90's] [Links] ... MoreInfo@ChildHealthInfo.com

52. Anencephaly Of The Brain
anencephaly of the Brain From the Virtual Pathology Museum, Department of Pathology, University of Connecticut Health Center. anencephaly, Brain. anencephaly.
http://radiology.uchc.edu/Code/1558.htm
Anencephaly, Brain Anencephaly •Looking at the back of an anencephalic head showing the cerebral vasculosa, a mixture of blood vessel, glial tissue, rudimentary leptomeninges etc which takes the place of the cerebral hemispheres. •A rudimentary brainstem and part of a cerebellum may be present. Image Contrib. by: Hartford Hospital Description by: Margaret Grunnet, M.D. ( 442-6170) More Information

53. Anencephaly
anencephaly. Spina Bifida Association of America folic acid information. A short document about prevention of spina bifida and anencephaly, aimed at women.
http://omni.ac.uk/browse/mesh/C0002902L0002902.html
low graphics
Anencephaly
broader: Neural Tube Defects other: Arnold-Chiari Malformation Spinal Dysraphism Spina Bifida Association of America : folic acid information A short document about prevention of spina bifida and anencephaly, aimed at women. Basic information about spina bifida and anencephaly is given and the US Public Health Service recommendations on folic acid stated. The document also explains what folic acid is and where in the diet it occurs. This information is published by the Spina Bifida Association of America (SBAA). Spinal Dysraphism Patient Education Handout [Publication Type] Folic Acid Anencephaly ... NINDS : anencephaly information page This Web resource on anencephaly (a neural tube defect) is produced by the National Institute of Neurological Disorders and Stroke (NINDS). A description of anencephaly is provided, and available treatments, prognosis, and current research activities are all discussed. Links to related organisations are provided. This resource has a US focus. Patient Education Handout [Publication Type] Infant, Newborn, Diseases

54. AllRefer Health - Anencephaly (Aprosencephaly With Open Cranium)
anencephaly (Aprosencephaly with Open Cranium) information center covers causes, prevention, symptoms, diagnosis, treatment, incidence, risk factors, signs
http://health.allrefer.com/health/anencephaly-info.html
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Alternate Names : Aprosencephaly with Open Cranium Definition Anencephaly is the absence of a large part of the brain and the skull.
Ultrasound, Normal Fetus - Ventricles of Brain Anencephaly is a neural tube defect that occurs early in the development of an unborn baby. Neural tube defects involve the tissue that grows into the brain and spinal cord. Anencephaly results when the upper portion of the neural tube fails to close. Why this happens is not known. Possible causes include environmental toxins and low intake of folic acid during pregnancy.

55. Medical Library: Anencephaly Information Page
anencephaly Information Page. What is anencephaly? anencephaly is a neural may occur. The cause of anencephaly is unknown. Although it
http://www.medem.com/MedLB/article_detaillb.cfm?article_ID=ZZZ1HMYTUHC&sub_cat=3

56. ► Anencephaly
anencephaly. When the upper portion of the neural tube fails to close, anencephaly results, however, the specific cause is unknown.
http://www.umm.edu/ency/article/001580.htm
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Anencephaly
Overview Symptoms Treatment Prevention Definition:
The absence of both the skull and cerebral portions of the brain.
Alternative Names: Aprosencephaly with open cranium
Causes, incidence, and risk factors: Anencephaly is a "neural tube defect" (a defect occurring early in fetal development that damages the primitive tissue which will become the brain and spinal cord). When the upper portion of the neural tube fails to close, anencephaly results, however, the specific cause is unknown. Findings suggest that it may be related to environmental toxins ; however, no absolute connections have been made. Also, low plasma levels of folic acid have been implicated in contributing to neural tube defects. The incidence may reach 3.6 to 4.6 out of 10,000 births. The exact incidence is unknown, as most of these infants probably spontaneously abort. Risk factors include having a previous pregnancy with anencephaly. Nutrition is thought to play an important part in the development of neural tube defects of which anencephaly is only one. The specific nutrition risk factor is thought to be low serum levels of folic acid.

57. Anencephaly - Information / Diagnosis / Treatment / Prevention
home neurological disorders congenital anomalies anencephaly anencephaly. anencephaly Net An internet hub providing facts about anencephaly.
http://www.healthcyclopedia.com/neurological-disorders/congenital-anomalies/anen

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Related Topics: Health Issues/Transplantation Mental Health/Grief, Loss and Bereavement/Support Groups Reproductive Health/Pregnancy and Birth/Complications Open Directory: Society/Death/In Memoriam/Infants/Neural Cord Defects Medical Definition: University of Newcastle-upon-Tyne Medical Dictionary: "anencephaly" Health News: Search millions of published articles for news on Anencephaly Modern Medicine Aging The Ardell Wellness Report HealthFacts Medical Post Medical Update Men's Health and the National Women's Health Report Note: Subscription required to access the full text of articles. Web Directory: Anencephaly Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.

58. Introduction Anencephaly - WrongDiagnosis.com
Introduction to anencephaly as a medical condition including symptoms, diagnosis, misdiagnosis, treatment, prevention, and prognosis. Introduction anencephaly.
http://www.wrongdiagnosis.com/a/anencephaly/intro.htm

59. ANENCEPHALY: Contact A Family - For Families With Disabled Children: Information
printer friendly, anencephaly, anencephaly is a maldevelopment of the brain and skull which occurs in the first weeks of pregnancy.
http://www.cafamily.org.uk/Direct/a51.html
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yes no Anencephaly is a maldevelopment of the brain and skull which occurs in the first weeks of pregnancy. The upper part of the brain and the overlying skull cap are absent although the lower part of the brain and the base of the skull do develop to some extent. Female babies are more commonly affected than males. This abnormality occurs in about 1:1,000 pregnancies. Its incidence is highest in those areas where spina bifida and hydrocephalus are common and, in fact, anencephaly and spina bifida can be present in the same infant. If the pregnancy does go to full term the baby is either still born or dies shortly after birth. Understandably most parents opt for termination of pregnancy once the diagnosis has been made. During subsequent pregnancies scanning is carried out to make sure the abnormality has not reoccurred. Inheritance patterns
The risk of anencephaly and spina bifida occurring is 1:50 if there has been one previously affected pregnancy but the risk increases to 1:5 if there have been two previously affected pregnancies. It is therefore essential that the mother takes a folic acid supplement before conception and for the first twelve weeks of any subsequent pregnancy.

60. Anencephaly
anencephaly Important It is possible that the main title of the report anencephaly is not the name you expected. Please check the
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You are in Medical Library Choose a Topic Our Content Sources Ask A Question Clinical Trials Health Guide A-Z Health Topics Symptoms Medical Tests Medications ... For a Complete Report Anencephaly Important It is possible that the main title of the report Anencephaly is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report. Synonyms
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Disorder Subdivisions
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General Discussion Anencephaly is a disorder involving the incomplete development of major parts or all of the brain. Anencephaly is classified as a neural tube defect (NTD), and that term refers to the incomplete development of the brain, spinal cord, and/or their protective coverings. The neural tube is a narrow sheath that is supposed to fold and to close in the third or fourth weeks of pregnancy, in order to form the brain and spinal cord of the embryo. Anencephaly occurs when the anterior or cephalic head-end of this neural tube fails to close, resulting in the failure of major portions of brain, skull and scalp to form. Infants with anencephaly are born without both a forebrain (the front part of the brain) and a cerebrum (the thinking and coordinating part of the brain). Often the remaining brain tissue may be exposed, or without protective covering, either bone or skin.

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