1. Alternating Hemiplegia Of Childhood / Family Village Library Who to Contact. Where to Go to Chat with Others. Learn More About It. Web Sites. Search Google for "alternating hemiplegia of Childhood" Who to Contact. alternating hemiplegia of Childhood Foundation. Lynn Egan. 239 Nevada Street http://www.familyvillage.wisc.edu/lib_alth.htm

Alternating Hemiplegia of Childhood Who to Contact Where to Go to Chat with Others Learn More About It Web Sites ... Search Google for "Alternating Hemiplegia of Childhood" Who to Contact Alternating Hemiplegia of Childhood Foundation Lynn Egan 239 Nevada Street Redwood City, CA 94062 650-365-5798 (phone/fax) 888-225-3353 (toll-free) E-mail: LAEgan6@sbcglobal.net Web: http://www.ahckids.org/ Our mission is to find the cause(s) of AHC and effective treatments or cures while providing support to the families and children with AHC. What are the goals of the AHCF? The goals of the AHCF are to: promote research into the cause(s) of AHC; fund research into new treatments of, and ultimately a cure for, AHC; promote proper diagnosis; educate health care professionals, the public, and related organizations support the membership of the AHCF; provide support to families and children with AHC; develop an international support organization consisting of people and organizations who care about children with AHC; encourage the exchange of information worldwide; raise funds in support of these goals. Where to Go to Chat with Others AFHA List This is the Alternating Hemiplegia of Childhood Mailing list for all families affected by this disorder.

2. NINDS Alternating Hemiplegia Information Page alternating hemiplegia of Childhood information sheet compiled by theNational Institute of Neurological Disorders and Stroke (NINDS). http://www.ninds.nih.gov/health_and_medical/disorders/alternatinghemiplegia.htm

National Institute of Neurological Disorders and Stroke Accessible version Science for the Brain The nation's leading supporter of biomedical research on disorders of the brain and nervous system Browse all disorders Browse all health organizations More about Alternating Hemiplegia Studies with patients Research literature Press releases Search NINDS... (help) Contact us My privacy NINDS is part of the National Institutes of Health NINDS Alternating Hemiplegia Information Page Synonym(s): Hemiplegia Alterans Reviewed 1-17-2002 Get Web page suited for printing Email this to a friend or colleague Table of Contents (click to jump to sections) What is Alternating Hemiplegia? Is there any treatment? What is the prognosis? What research is being done? ... Organizations What is Alternating Hemiplegia? Alternating hemiplegia is a rare neurological disorder that develops in childhood, usually before the first 4 years. The disorder is characterized by recurrent but temporary episodes of paralysis on one side of the body. The paralysis can affect eye movements, limbs, or facial muscles. One form of the disorder, identified very recently, has a favorable outlook. It occurs primarily at night, when a child awakens, and is apparently related to migraine. These children have no other mental or neurological impairments. In more serious cases symptoms may include mental impairment, balance and gait difficulties, excessive sweating, and changes in body temperature. Seizures can occur. Sleep helps in the recovery from the periods of paralysis but the paralysis can recur upon waking. The cause of the disorder is unknown.

3. Alternating Hemiplegia Of Childhood No Meeting this year .. alternating hemiplegia. of. Childhood Foundation http://www.ahckids.org/

NEW! Newsletters Available Updated Families Worldwide No Meeting this year..... Alternating Hemiplegia of Childhood Foundation (AHCF) NEW! Condo Raffle Fundraiser AHCF VISION "Our vision is to find the cause(s) and a cure for AHC while providing support to the children with AHC and the parents who care for t hem." Updated February 22, 2004 The AHCF does not provide medical advice. The material contained in this web site is provided for informational purposes only. It should not be used for diagnostic or treatment purposes. Please consult your physician before acting on this or any other medical information. Return to Main Page About AHCF Research Medical Advisory Board ... Family Worldwide The page's WebCounter say that you are visitor number

4. NORD - National Organization For Rare Disorders, Inc. Offers alternative names, a general discussion and further resources. http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Alternating H

5. NINDS - News And Events Sorry! There are no press releases for alternating hemiplegia. Useyour browser s Back button to return to your previous activity. http://www.ninds.nih.gov/health_and_medical/news.htm?url=/health_and_medical/dis

6. Medical Articles The alternating hemiplegia of Childhood Foundation is a nonprofit, volunteerorganization dedicated to seeking the cause(s) and cure for AHC. http://www.ahckids.org/AHCFmedicalarticles.htm

Medical Articles on Alternating Hemiplegia of Childhood The following articles are available through most medical libraries, or through public libraries via InterLibrary Loan. However, if you are unable to find a particular journal, copies may be available for a requested contribution of $5 to defray costs of copying and mailing. Not all articles may be available through the Foundation. Additional contributions are always gladly accepted. Balestri P, Grosso S, Garibaldi G Alternating hemiplegia of childhood or Hashimoto's encephalopathy? J Neurol Neurosurg Psychiatry 1999 Apr;66(4):548-9 (PMID: 10201439, UI: 99215622) * Saito Y, Sakuragawa N, Sasaki M, Sugai K, Hashimoto T A case of alternating hemiplegia of childhood with cerebellar atrophy. Pediatr Neurol 1998 Jul;19(1):65-8 (PMID: 9682890, UI: 98346420) Kalra V; Rathi S. Alternating Hemiplegia of childhood. Indian Pediatrics, 1996 Mar, 33(3):233-6. (UI: 96368839) Kemp GJ; Taylor DJ; Barnes PR; Wilson J; Radda GK. Sketetal muscle mitocondrial dysfunction in alternating hemiplegia of childhood. Annals of Neurology, 1995 Oct, 38(4):681-4.

7. Alternating Hemiplegia alternating hemiplegia. This article submitted by Greg Wisyanski on 7/12/96 know as the International Foundation for alternating hemiplegia of Childhood (IFAHC). We are looking for http://neuro-www.mgh.harvard.edu/neurowebforum/ChildNeurologyArticles/Alternatin

Alternating Hemiplegia This article submitted by Greg Wisyanski on 7/12/96. Author's Email: My child has a disease know as Alterniating Hemiplegia of Childhood. I am a member of an organization know as the International Foundation for Alternating Hemiplegia of Childhood (IFAHC). We are looking for all forms of information on the disease. We are especially interested in doctors who would want to research the disease. We also provide the information that we have to families and the medical community and act as a support group for parents. For research or information please contact me at: IFAHC c/o Greg Wisyanski 409 Buckingham Avenue Milford, CT 06460 call (daytime) 203-338-4006 Next Article Previous Article Return to Topic Menu Here is a list of responses that have been posted to this article... AHC (2/7/97) 9:11 PM 30 yr. old daughter with AHC (1/23/97) 7:33 AM Abigail's Mom (1/1/97) 9:21 PM Alternating hemiplegia APEHA (12/26/96) 6:24 AM ... My child has it too!! (8/9/96) 11:13 PM You now have TWO OPTIONS: Post a new Article or post a Response to this Article Click here to post a new Article!

8. NORD - National Organization For Rare Disorders, Inc. alternating hemiplegia of Childhood Foundation (AHC) a/k/a AHCF Address 11700Merriman Road Livonia, MI 48150 USA Phone 650365-5798 Fax 650-365-5798 800 http://www.rarediseases.org/search/orgdetail_full.html?org_name=Alternating Hemi

9. Title Page NEXT. CASE. Familial alternating hemiplegia. HISTORY. IMAGES http://brighamrad.harvard.edu/education/online/BrainSPECT/FAH/FAH.html

PREV CASE Atlas of Brain Perfusion SPECT B. Leonard Holman Puneet K. Chandak Basem M. Garada NEXT ... CASE Familial Alternating Hemiplegia HISTORY IMAGES FINDINGS TUTORIAL SLIDE SHOW RANDOM CASE FEEDBACK CONTENTS Comments and errors to Radweb@dsg.harvard.edu Additional information through chandak@dsg.harvard.edu Last updated: Aug 23, 1995 Redesigned June 1998

10. NINDS Alternating Hemiplegia Information Page http://www.ninds.nih.gov/health_and_medical/disorders/alternatinghemiplegia.htm?

11. Introduction Alternating Hemiplegia - WrongDiagnosis.com Introduction to alternating hemiplegia as a medical condition including symptoms,diagnosis, misdiagnosis, treatment, prevention, and prognosis. http://www.wrongdiagnosis.com/a/alternating_hemiplegia/intro.htm

12. Frequently Asked Questions The alternating hemiplegia of Childhood Foundation is a nonprofit, volunteer organization dedicated to seeking the cause(s) and cure for AHC. Contact the AHCF. What is alternating hemiplegia of http://www.ahckids.org/AHCFfrequentlyaskedquestions.htm

AHCF Alternating Hemiplegia of Childhood Foundation Return to Main Page About AHCF Frequently Asked Questions Contacts ... Families Worldwide Frequently Asked Questions What is Alternating Hemiplegia of Childhood (AHC)? AHC is a rare neurological disorder in which repeated, transient attacks of hemiplegia occur, affecting one side of the body or the other, or both sides of the body. The hemiplegia (paralysis of a portion of the body) ranges from simple numbness in an extremity to full loss of feeling and movement. The attacks may last for minutes, hours or even days and are normally relieved by sleep. The attacks of hemiplegia may alternate from one side of the body to another. What other symptoms are associated with AHC? Children with AHC have exhibited a wide range of symptoms in addition to AHC. These include tonic attacks (lack of muscle tone), dystonic posturing (stiffening of extremities), nystagmus and other oculomotor abnormalities (eye disorders), developmental delays, mental retardation and seizures. Not all children suffer from all of these associated symptoms and there is no current evidence to prove that these symptoms are associated with, or caused by, AHC. What causes a hemiplegic episode?

13. Types Of Alternating Hemiplegia - WrongDiagnosis.com Types of alternating hemiplegia including symptoms and diagnosis ofthe correct subtype. Types of alternating hemiplegia. Types list http://www.wrongdiagnosis.com/a/alternating_hemiplegia/subtypes.htm

14. DOE Document - Sup 123 I-iodoamphetamine SPECT Brain Imaging In alternating hemiplegia of childhood is an unusual disorder characterized by early onset (occurring before 18 months of age); repeated attacks of hemiplegia involving both sides of the body; other http://rdre1.inktomi.com/click?u=http://www.osti.gov/energycitations/product.bib

15. Alternating Hemiplegia - Information / Diagnosis / Treatment / Prevention home neurological disorders alternating hemiplegia alternating hemiplegia.Information • Diagnosis • Treatment • Prevention. http://www.healthcyclopedia.com/neurological-disorders/alternating-hemiplegia.ht

Home Health cyclopedia All Topics by Category The Good Health Search Engine Health Conditions A-Z Gurus ... neurological disorders > alternating hemiplegia Alternating Hemiplegia Information / Diagnosis / Treatment / Prevention External links (marked with an arrow ) open in a new window. This site is a web directory and does not offer medical advice. We cannot take responsibility for information found on listed sites. This Page Related Topics Health News Web Directory: Related Topics: Rare Disorders Health News: Search millions of published articles for news on Alternating Hemiplegia Modern Medicine Aging The Ardell Wellness Report HealthFacts Medical Post Medical Update Men's Health and the National Women's Health Report Note: Subscription required to access the full text of articles. Web Directory: Alternating Hemiplegia AHC information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Family Village Links to information about Alternating Hemiplegia of Childhood. Includes data about a discussion group. NORD: Alternating Hemiplegia of Childhood Offers alternative names, a general discussion and further resources.

16. Disease Directory : Neurological Disorders : Alternating Hemiplegia Diseases Neurological Disorders alternating hemiplegia. 24Dr.com Reference alternating hemiplegia SUPPORT GROUP. The alternating hemiplegia http://www.diseasedirectory.net/Neurological_Disorders/Alternating_Hemiplegia/de

Wednesday, June 02, 2004 Neurological Disorders Alternating Hemiplegia Alzheimer's Amyotrophic Lateral Sclerosis ... Neurological Disorders : Alternating Hemiplegia 24Dr.com Reference Library - Patient Groups - Alternating ... - ALTERNATING HEMIPLEGIA SUPPORT GROUP. The Alternating Hemiplegia Support Group offers telephone support to anyone suffering from this condition. Alternating Hemiplegia - AHC information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Alternating Hemiplegia - ahc. alternating hemiplegia. ahc inc. ahc ppo. 48th ahc. 116th ahc. Alternating Hemiplegia signs. constipation Alternating Hemiplegia. piles Alternating Hemiplegia. Alternating Hemiplegia - Sourcebook covering Alternating Hemiplegia. http://www.icongrouponline.com/Health/Alternating_Hemiplegia.html. Books from Amazon.Com : Alternating Hemiplegia. Alternating hemiplegia in 26 year old lady - Alternating hemiplegia in 26 year old lady. by. Dr. R. Murali. This 26 year old lady teacher presented a month ago with sudden onset Alternating Hemiplegia of Childhood - HOME. Alternating Hemiplegia of Childhood (Alternating Hemiplegia Syndrome). Alternating hemiplegia; Association Fran§aise de l'H©mipl©gie

17. Disease Directory : Alternating Hemiplegia Diseases Neurological Disorders alternating hemiplegia AlternatingHemiplegia. Directory Listing. Title alternating hemiplegia http://www.diseasedirectory.net/detailed/4421.aspx

Wednesday, June 02, 2004 Neurological Disorders Alternating Hemiplegia Alzheimer's Amyotrophic Lateral Sclerosis ... Alternating Hemiplegia : Alternating Hemiplegia Directory Listing Title: Alternating Hemiplegia Description: AHC information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Date Added: 2/4/2004 1:24:01 PM URL: http://www.ninds.nih.gov/health_and_medical/disorders/alternatinghemiplegia.htm

18. Alternating Hemiplegia Support Group - Patient UK alternating hemiplegia Support Group Patient UK. A directory of providepatient information. alternating hemiplegia Support Group. http://www.patient.co.uk/showdoc.asp?doc=26739352

19. Alternating Hemiplegia Of Childhood Articles, Support Groups, And Resources alternating hemiplegia of Childhood articles, support groups, and resourcesfor patients from Med Help International (www.medhelp.org). http://www.medhelp.org/HealthTopics/Alternating_Hemiplegia_of_Childhood.html

[Health Topics A-Z] A B C D ... Z Alternating Hemiplegia of Childhood Ask The Doctor Forums Alternating hemiplegia of childhood (Neurology and Neurosurgery Forum) [Med Help Home] [Library Search] [Medical Forums] ... [Patient Network] Revised: 5/30/2004

20. Alternating Hemiplegia Of Childhood Subject alternating hemiplegia of childhood Topic Area Neurology General ForumThe Neurology and Neurosurgery Forum Question Posted By Becky on Sunday http://www.medhelp.org/forums/neuro/archive/2151.html

Questions in The Neurology Forum are being answered by doctors from The Cleveland Clinic , consistently ranked one of the best hospitals in America. Subject: Alternating hemiplegia of childhood Topic Area: Neurology - General Forum: The Neurology and Neurosurgery Forum Question Posted By: Becky on Sunday, October 05, 1997 Posted by CCF MD on November 05, 1997 at 16:43:20: In Reply to: Alternating hemiplegia of childhood posted by Becky on October 05, 1997 at 01:16:31: : My son, now 6 years old, was diagnosed with partial seizures at age 14 months. He did pretty well the next two years while on phenobarbital. Since that time, he has had increasing "seizure" activity which was treated with tegretol and depakote. His seizure activity continued. EEGs have never shown epileptic waveforms. In July, he had an EEG and developed nystagmus and mouth sucking during photic stimulation but no epileptic waveforms were noted. The next day he had a video EEG with him having 3 episodes that we had been calling seizures. Again the EEG did not show epileptic waveforms. After his seizures, my son would often experience weakness on one side of his body. These episodes have escalated to sometimes as many as 10+ a day, although on a rare day, he will have none. He was then diagnosed with alternating hemiplegia of childhood. He pediatric neurologist would like a second opinion from someone who has treated a child with this disorder. We were originally going to take him to Detroit Childrens Hospital but feel that the six hour drive would be too much for him. Since Cleveland is much closer to us, we are wondering if any of your staff have cared for a child with this disorder. He also is developmentally delayed. Thank you.

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