21. Alstrom Syndrome International Mutual support and networking for families affected by Alstrom s syndrome. Supports......Title alstrom syndrome International. http://www.medhelp.org/amshc/amshc244.htm

Title: Alstrom Syndrome International Description: Mutual support and networking for families affected by Alstrom's syndrome. Supports medical research intiatives to more fully understand the syndrome's complexities and develop better therapies. Provides information resources to families and physicians. Scope: International network Number Groups: 2 affiliated groups Founded: Address: 14 Whitney Farm Rd. Mount Desert, Maine, 04660 United States Telephone: 1-800-371-3628 or (207)288-6385 Email: jdm@jax.org Web Address: http://www.jax.org/alstrom This information has been generously provided by The American Self Help Clearinghouse and hosted by Med Help International . Please send corrections/updates to admin@selfhelpgroups.org Updated: 05/2004

22. Alstrom's Syndrome Founded 1995. Provides supports and networking for families affected by alstrom syndrome. Alstrom s Syndrome. alstrom syndrome International. http://www.bchealthguide.org/kbase/shc/shc29als.htm

document.write(''); var hwPrint=1; var hwDocHWID="shc29als"; var hwDocTitle="Alstrom's Syndrome"; var hwRank="1"; var hwSectionHWID="shc29als"; var hwSectionTitle=""; var hwSource="cn6.0"; var hwProdCfgSerNo="wsh_html_031_s"; var hwDocType="SHC"; Self Help Clearinghouse Alstrom's Syndrome Alstrom Syndrome International International Network. 2 affiliated groups (Canada and UK). Founded 1995. Provides supports and networking for families affected by Alstrom syndrome. Supports medical research initiatives to more fully understand the complexities of Alstrom syndrome and develop better therapies for Alstrom patients. Publishes a quarterly newsletter. Provides information resources to families and physicians. WRITE: Alstrom's Syndrome International 14 Whitney Farm Rd. Mount Desert, ME 04660 CALL: 1-800-371-3628 FAX: 207-244-7678 E-MAIL: jdm@jax.org WEBSITE: http://www.jax.org/alstrom VERIFIED: 5/29/2003 The above information is based upon information available through the "verified" date at the end of each listing. Since American Self-Help Group Clearinghouse's resources are limited; it is not possible to keep every entry in the American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information. For additional information and assistance about self-help groups, please contact the American Self-Help Group Clearinghouse in Cedar Knolls, New Jersey, by email at: info@selfhelpgroups.org

23. Laurence Moon Syndrome alstrom syndrome is a rare inherited disorder characterized by progressive loss of vision (retinitis pigmentosa) and childhood obesity. http://www.bchealthguide.org/kbase/nord/nord104.htm

document.write(''); var hwPrint=1; var hwDocHWID="nord104"; var hwDocTitle="Laurence Moon Syndrome"; var hwRank="1"; var hwSectionHWID="nord104"; var hwSectionTitle=""; var hwSource="cn6.0"; var hwProdCfgSerNo="wsh_html_031_s"; var hwDocType="NORD"; National Organization for Rare Disorders, Inc. Laurence Moon Syndrome Important It is possible that the main title of the report is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report. Synonyms Adipogenital-Retinitis Pigmentosa Syndrome Laurence Syndrome LM Syndrome Disorder Subdivisions None Related Disorders List Information on the following diseases can be found in the Related Disorders section of this report: Bardet-Biedl Syndrome Prader-Willi Syndrome Borjeson Syndrome Hypogonadotrophic Hypogonadism Alstrom Syndrome Weiss Syndrome Biemond II General Discussion Laurence-Moon Syndrome is a rare inherited disorder characterized by diminished hormone production by the testes or ovaries (hypogonadism), progressive loss of vision (retinitis pigmentosa), mental retardation, and paralysis of the legs and lower part of the body accompanied by involuntary muscle contractions (spastic paraplegia). Confusion exists in the medical literature regarding the difference between Laurence-Moon Syndrome and Bardet-Biedl Syndrome. Some researchers believe that Bardet-Biedl Syndrome is a subdivision of Laurence-Moon Syndrome which they term "Laurence-Moon-Biedl Syndrome."

24. ► Alstrom Syndrome Home Medical Reference Encyclopedia (English) Toggle English / Spanish alstrom syndrome. AlstromHallgren syndrome; Alstroem s retino-otodiabetic syndrome. http://www.umm.edu/ency/article/001665.htm

Disease Nutrition Surgery Symptoms Injury ... Z Maryland Medical Center Programs Joslin Diabetes Center Home Medical Reference Encyclopedia (English) Toggle English Spanish Alstrom syndrome Overview Symptoms Treatment Prevention Definition: an inherited disease characterized by progressive blindness juvenile onset diabetes mellitus, obesity deafness , and normal mental capacity. Alternative Names: Alstrom-Hallgren syndrome; Alstroem's retino-otodiabetic syndrome Causes, incidence, and risk factors: This is an autosomal recessive , inherited disorder. It is extremely rare. The syndrome has a higher incidence in Holland and Sweden. Review Date: 6/16/2001 Reviewed By: Elizabeth Hait, M.D., Department of Pediatrics, Rainbow Babies and Children’s Hospital, Case Western Reserve University, Cleveland, OH. Review provided by VeriMed Healthcare Network. Home Health Info Our Physicians Our Services ... Contact Us UNIVERSITY OF MARYLAND MEDICINE © 2001 UNIVERSITY OF MARYLAND MEDICAL SYSTEM This site developed and maintained by Public Affairs.

25. Disease Directory : Rare Disorders : Alstrom Syndrome Diseases Rare Disorders alstrom syndrome. AllRefer Health alstrom syndrome Support Groups - alstrom syndrome. alstrom syndrome Support Groups. http://www.diseasedirectory.net/Rare_Disorders/Alstrom_Syndrome/default.aspx

Wednesday, June 02, 2004 Rare Disorders Agnosia Aicardi Syndrome Alstrom Syndrome ... Rare Disorders : Alstrom Syndrome Aicardi Syndrome Foundation - Information about the disease, a medical survey, where to get help, publications and a chat room for support. AllRefer Health - Alstrom Syndrome Support Groups - Alstrom Syndrome. Alstrom Syndrome Support Groups. Alstrm Syndrome International 14 Whitney Farm Road Mount Desert, Maine 04660. Main Page of Alstrom Syndrome. Alstrom Syndrome - More Alstrom Syndrome Categories: » Submit Your Site to the Alstrom Syndrome category. Submit Your Site to the Alstrom Syndrome category. Featured Partner. Alstrom syndrome - Alstrom syndrome. Definition: Alternative Names: Alstrom-Hallgren syndrome; Alstroem's retino-otodiabetic syndrome. Causes, incidence, and risk factors: Alstrom Syndrome - Clinical features, literature and research. Includes guidelines for health care professionals. Alstrom Syndrome - last update: 27/03/2003. Disease Names/Indications, Locus/Gene(s), OMIM(s), Contact. ALSTROM SYNDROME ALMS. 2p13 ALMS1. 203800. 606844. Kim Flintoff. Brief Description. Alstrom Syndrome - 10/11/2003: Delivery of a genetic diagnosis service for Alstrom syndrome Alstrom Syndrome articles, support groups, and resources

26. Disease Directory : Alstrom Syndrome Diseases Rare Disorders alstrom syndrome alstrom syndrome. Directory Listing. Submit Your Site to the alstrom syndrome category. Featured Partner. http://www.diseasedirectory.net/detailed/27413.aspx

Wednesday, June 02, 2004 Rare Disorders Agnosia Aicardi Syndrome Alstrom Syndrome ... Alstrom Syndrome : Alstrom Syndrome Directory Listing Title: Alstrom Syndrome Description: Date Added: 2/17/2004 4:05:30 PM URL: http://www.iseekhealth.com/alstrom_syndrome-2194.php

27. Alstrom Syndrome UK Support Group - News Archive Information centre and discussion forum for anyone with an interest in alstrom syndrome. Return to Home Page. Copyright © alstrom syndrome UK 2000, 2001, 2002. http://www.btinternet.com/~eyeconditions/alstrom/news.htm

Newsletter Archive Newsletter No. 11 - Summer 2002 Newsletter No. 10 - March 2002 Newsletter No. 9 - October 2001 Newsletter No. 7 - September 2000 ... Return to Home Page

28. Alstrom Syndrome UK Support Group - Newsletter 6 Information centre and discussion forum for anyone with an interest in alstrom syndrome. Return to Top ^. Report 1st alstrom syndrome Clinic (1 Nov 1999). http://www.btinternet.com/~eyeconditions/alstrom/news6.htm

Newsletter No. 6 In this edition: Editorial Carl-Henry Alstrom Biog Alstrom Clinic Alstrom Conference ... Fundraising Editorial So I thought I would begin this New Year edition with the biography of Carl-Henry Alstrom, this first appeared in the SASF International newsletter so some of you may already have read it. Return to Top ^ BIOGRAPHY: CARL-HENRY ALSTROM Carl-Henry Alstrom was born in Vasteras, Sweden on 3 May 1907. He studied in Stockholm and received his doctorate in psychiatry in 1935 at the Karolinska Institute of Medicine. He began his career as a research scientist in 1938 when he published his landmark observations on the connection between schizophrenia and tuberculosis. From 1940-42 he was Deputy Director of the Institute for Human Genetics at Uppsala, where he conducted genetic research. In 1945 he was made 2n d Assistant Physician at the Neurological Clinic in the famous Serafimerlasarettet Hospital Stockholm. He was Director of the Experimental Psychiatry Clinical Laboratory from 1948-1960, with an interest in the clinical,social and genetic aspects of epilepsy. A study published by Alstrom in1950 is still considered a landmark on the subject of epileptics in society. He subsequently became Head of the Department of Psychiatry, Karolinska Institute at St Gorans Hospital, Stockholm and served with distinction from 1961 until his retirement in 1973. The new syndrome was known for a short time as the Alstrom-Hallgren syndrome, but later was designated simply Alstrom Syndrome. Although they searched throughout Sweden, Alstrom and his colleagues found no other cases of Alstrom Syndrome. There are several Alstrom Syndrome patients now living in Sweden, but as yet scientists have not been able to determine if they are related to the first patients of Carl-Henry Alstrom.

29. Rare Disorders, Alstrom Syndrome Submit Your Site to the alstrom syndrome category. Sponsored alstrom syndrome Sites. Submit Your Site to the alstrom syndrome category. Health Spotlight. http://www.iseekhealth.com/alstrom_syndrome-2194.php

Home About Us Contact Submit Your Site Search : Home Health Conditions and Diseases Rare Disorders ... Alstrom Syndrome More Alstrom Syndrome Categories: Submit Your Site to the Alstrom Syndrome category Sponsored Alstrom Syndrome Sites Promising Cancer Treatment The health benefits from cancer studies by doctors at the National Cancer Institute and John Hopkins School of Medicine are combined in a treatment called Controlled Amino Acid Therapy. CAAT has been proven to work with chemotherapy or alone. Promising Disease Treatment The health benefits from cancer studies by doctors at the National Cancer Institute and John Hopkins School of Medicine are combined in a treatment called Controlled Amino Acid Therapy. CAAT has been proven to work with chemotherapy or alone. WellnessBooks.com - Books For Getting Well Comprehensive resource to books on diseases, disorders and chronic illness. Includes community boards and chat and online ordering. MagnetTherapy.com Discover the healing power of magnets. Jewelry, mattresses, body wraps, insoles for shoes and much more. This ancient form of magnetic pain relief has proven to be effective for many users including many of todays professional atheletes. MagnetTherapy.com Alstrom Syndrome - Clinical features, literature and research. Includes guidelines for health care professionals.

30. University Of Miami School Of Medicine - Glossary - Alstrom Syndrome Medical Dictionary. alstrom syndrome. The visual defect involves cone–rod retinal dystrophy. alstrom syndrome is an autosomal recessive condition. http://www.med.miami.edu/patients/glossary/art.asp?articlekey=20241

31. Alstrom Syndrome UK (Specific Eye Conditions Web Site) alstrom syndrome UK. alstrom syndrome UK, 49 Southfield Avenue, Paignton, Devon, TQ3 1LH. Tel +44 (0)1803 524238 EMail info@alstrom.org.uk. http://www.eyeconditions.org.uk/alstrom.htm

SP ecific E ye C ondition S www.eyeconditions.org.uk Alstrom Syndrome UK Alstrom Syndrome UK, 49 Southfield Avenue, Paignton, Devon, TQ3 1LH Tel: +44 (0)1803 524238 E-Mail: info@alstrom.org.uk Website: www.alstrom.org.uk What is Alström Syndrome? Alström Syndrome is a very rare, hereditary genetic disorder comprised of many component conditions, first described by C.H. Alström in Sweden in 1959. The symptoms of the components of the condition arise at different stages making diagnosis difficult. The features of this very complex disorder are childhood blindness, early hearing loss, diabetes, kidney failure and cardiomyopathy, a heart condition which if left untreated can lead to heart failure. Cardiomyopathy may be the first symptom to present with Alström Syndrome, in many of the children with Alström Syndrome cardiomyopathy has presented during the first 6 months of life. What does Alström Syndrome UK do? Alström Syndrome UK has 3 key aims: to alleviate the suffering of those with Alström Syndrome to provide support for them, their carers and the professionals who are working with them

32. Alstrom Syndrome,Alstroem's Syndrome,Alstroem,Alstrom Syndrome,Alstroem's Syndro alstrom syndrome,Alstroem s Syndrome,alstrom syndrome,Alstroem s Syndrome,Alstroem,alstrom syndrome,Alstroem s Syndrome,Alstroem. http://www.icomm.ca/geneinfo/alstrom.htm

Alstrom Syndrome,Alstroem's Syndrome,alstrom syndrome,alstroem's syndrome,Alstrom Syndrome,Alstroem's Syndrome,Alstroem,Alstrom Syndrome,Alstroem's Syndrome,Alstroem For Information on Workshops and Seminars for Special Needs Children click here The GAPS INDEX to Information on the Internet about Genetic Disorders and Birth Defects Genetic Information and Patient Services, Inc. (GAPS) HOME DISORDERS GLOSSARY Alstrom Syndrome (Includes Alstrom-Hallgren) also known as: Alstroem's Syndrome (as defined by the National Organization for Rare Disorders Alstrom Syndrome is a rare disorder inherited as an autosomal recessive genetic trait. Characteristic features of this disorder include progressive loss of vision and hearing beginning in early childhood, diabetes mellitus, and obesity. Degeneration of the retina of the eye (retinitis pigmentosa) may be apparent in the first year of life. Other symptoms may include progressive kidney disease (chronic nephropathy), which may lead to serious complications. Intelligence is not affected. (as defined at http://www.jax.org/alstrom/

33. ASI 2004, Alstrom Syndrome International 4th Annual Family And Medical Conferenc ASI 2004, alstrom syndrome International 4th Annual Family and Medical Conference. MediConf ®. World Calendar of Medical Events. Title http://www.mediconf.com/recm/22023803.HTM

MediConf World Calendar of Medical Events Title ASI 2004, Alstrom Syndrome International 4th Annual Family and Medical Conference Organizer The Jackson Laboratory Courses and Conferences Office 600 Main Street, Box 65 Bar Harbor, ME 04609-1500 USA Countryphone: +1 Tel: (207) 288-6000 Fax: (207) 288-6051 E-mail: jbm@jax.org http:// www.jax.org/alstrom/documents/2004_conference.html Date from Friday, May 28, 2004 to Monday, May 31, 2004 Country United States Location Bar Harbor, Maine - Atlantic Oakes by-the-Sea Subjects human genetics, pediatrics, genetic disorders, inherited diseases, Alstrom syndrome, obesity, blindness, hearing impairment, diabetes, heart failure, liver disease, urological dysfunction, pulmonary fibrosis, renal failure Notes Annual Type of Event Conference Tel: +49-511-443330, Fax: +49-511-442770, E-mail: mediconf@aol.com

34. Rare Disorders: Alstrom Syndrome Rare Disorders alstrom syndrome. alstrom syndrome. Clinical features, literature and research. Includes alstrom syndrome of Canada. Includes http://www.puredirectory.com/Health/Conditions-and-Diseases/Rare-Disorders/Alstr

Rare Disorders: Alstrom Syndrome Home Health Conditions and Diseases Rare Disorders : Alstrom Syndrome google_ad_client = 'pub-3272565765518472';google_ad_width = 336;google_ad_height = 280;google_ad_format = '336x280_as';google_color_border = 'FFFFFF';google_color_bg = 'FFFFFF';google_ad_channel ='7485447737';google_alternate_color = 'FFFFFF';google_color_link = '0000FF';google_color_url = '008000';google_color_text = '000000'; Standard Listings Alstrom Syndrome Clinical features, literature and research. Includes guidelines for health care professionals. Alstrom Syndrome of Canada Includes information about the condition, and the organisation. Alstrom Syndrome UK Support Group Information centre and discussion forum for anyone with an interest in this disorder. NORD - Alstrom Syndrome Sample report, plus links to organisations. [Fee required for full report] Smart Groups: Alstrm Families Mailing list, pictures, links and files. Help build the largest human-edited directory on the web. Submit a Site Open Directory Project Become an Editor PureDirectory.com uses a modified version of the Open Directory.

35. Health, Conditions And Diseases, Rare Disorders: Alstrom Syndrome alstrom syndrome UK Support Group Information centre and discussion forum for anyone with an interest in this disorder. Alstrom http://www.combose.com/Health/Conditions_and_Diseases/Rare_Disorders/Alstrom_Syn

Top Health Conditions and Diseases Rare Disorders ... Alstrom Syndrome Related links of interest: Health:Conditions and Diseases:Genetic Disorders Alstrom Syndrome UK Support Group - Information centre and discussion forum for anyone with an interest in this disorder. Alstrom Syndrome of Canada - Includes information about the condition, and the organisation. Alstrom Syndrome - Clinical features, literature and research. Includes guidelines for health care professionals. NORD - Alstrom Syndrome - Sample report, plus links to organisations. [Fee required for full report] Smart Groups: Alstr¶m Families - Mailing list, pictures, links and files. A rare disorder inherited as an autosomal recessive genetic trait. Characteristic features of this disorder include progressive loss of vision and hearing beginning in early childhood, diabetes mellitus, and obesity. Help build the largest human-edited directory on the web. Submit a Site Open Directory Project Become an Editor The combose.com directory is based on the Open Directory and has been modified and enhanced using our own technology.

36. :: Ez2Find :: Alstrom Syndrome Guide alstrom syndrome, Global Metasearch Any Language Guides, alstrom syndrome. ez2Find Home Directory Health http://ez2find.com/cgi-bin/directory/meta/search.pl/Health/Conditions_and_Diseas

Guide : Alstrom Syndrome Global Metasearch Any Language English Afrikaans Arabic Bahasa Melayu Belarusian Bulgarian Catala Chinese Simplified Chinese Traditional Cymraeg Czech Dansk Deutsch Eesti Espanol Euskara Faroese Francais Frysk Galego Greek Hebrew Hrvatski Indonesia Islenska Italiano Japanese Korean Latvian Lietuviu Lingua Latina Magyar Netherlands Norsk Polska Portugues Romana Russian Shqip Slovensko Slovensky Srpski Suomi Svenska Thai Turkce Ukrainian Vietnamese Mode All Words Any Word Phrase Results Timeout Depth Adult Filter Add to Favorites Other Search Web News Newsgroups Images Guides Alstrom Syndrome ez2Find Home Directory Health Conditions and Diseases ... Rare Disorders : Alstrom Syndrome Related Categories Health: Conditions and Diseases: Genetic Disorders Web Sites Alstrom Syndrome [Site Info] [Translate] [Open New Window] Clinical features, literature and research. Includes guidelines for health care professionals. URL: http://www.jax.org/alstrom Alstrom Syndrome of Canada [Site Info] [Translate] [Open New Window] Includes information about the condition, and the organisation. URL: http://alstromsyndrome.ca

37. Alstrom Syndrome Home Health Conditions and Diseases Rare Disorders alstrom syndrome (6) NORD alstrom syndrome - A general discussion with resources for further reading. http://www.thenewhealthfind.com/Health/ConditionsandDiseases/RareDisorders/Alstr

Directory Home Health Conditions and Diseases Rare Disorders : Alstrom Syndrome (6) See Also: Health: Conditions and Diseases: Genetic Disorders Alstrom Syndrome - Contains information about this syndrome, medical references, International Society for Alstrom Syndrome Families (SASF), and other resources. Alstrom Syndrome UK Support Group - Information centre and discussion forum for anyone with an interest in this disorder. Alstr¶m Families at SmartGroups - Mailing list and usegroup for people interested in Alstr¶m Syndrome. Provides links, newsletters, message archive and contact to professionals involved with this rare disorder. NORD - Alstrom Syndrome - A general discussion with resources for further reading. Drkoop.com: Medical Encyclopedia: - Information about alstrom syndrome, the causes, risk factors, symptoms, signs and tests, treatment and prognosis. Alstrom Syndrome of Canada - Information and assistance for concerned parents of children with this rare genetic disorder. Information on workshops, conferences, and medical research. Help build the largest human-edited directory on the web.

38. Alstrom Syndrome : Meddie Health Search alstrom syndrome Contains information about this syndrome, medical references, International Society for alstrom syndrome Families (SASF), and other resources. http://www.meddie.com/Conditions_and_Diseases/Rare_Disorders/Alstrom_Syndrome/

Search Meddie: the entire directory only this category More search options Home Conditions and Diseases Rare Disorders : Alstrom Syndrome ITEMS: LINKS: Alstrom Syndrome Contains information about this syndrome, medical references, International Society for Alstrom Syndrome Families (SASF), and other resources. (Rating: 0.00 Votes: 0) Rate It Alstrom Syndrome UK Support Group Information centre and discussion forum for anyone with an interest in this disorder. (Rating: 0.00 Votes: 0) Rate It HOME ADD A LINK MODIFY A LINK ... Design © ISC Enterprises Inc.

39. Health Library - Alstrom s Syndrome. Self Help Clearinghouse. alstrom syndrome International. International Network. 2 affiliated groups (Canada and UK). http://12.42.224.152/Library/HealthGuide/SelfHelp/topic.asp?hwid=shc29als

40. Fund-raiser To Assist Youngster Afflicted With Extremely Rare Fundraiser to assist youngster afflicted with extremely rare alstrom syndrome. (Doctors) recently discovered the gene for alstrom syndrome, said Bates. http://www.westernwheel.com/010711/news-alstrom.html

No-Cache return to current issue Wednesday, July 11, 2001 Fund-raiser to assist youngster afflicted with extremely rare Alstrom Syndrome By Gillian Beckett Staff Reporter Notification Would you like to be notified when the Western Wheel is updated each week? first last email On a warm, sunny afternoon, three-year-old Kiefer Bates is enjoying a popsicle on the deck of his house in Turner Valley. Kiefer has Alstrom Syndrome and is the first child in Alberta diagnosed with the disease and the second child in western Canada who is afflicted. Currently, there are only 138 individuals in the world who have the disease. Alstrom Syndrome is a life-threatening, genetic disease which usually strikes in early childhood. The disease is accompanied by retinal degeneration which can lead to blindness, hearing loss, obesity, rapid-eye shifting, photophobia (hyper-sensitivity to light) and Type II Diabetes mellitus. Alstrom Syndrome can also lead to hypothyroidism, liver dysfunction, scoliosis, heart disease and heart failure in infancy or early childhood. 'I started searching for answers when he was two months old,' said Bates. 'We took him to specialists and hospitals in Edmonton, Red Deer and Calgary.'

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