21. Albinism In Film FILM. Many characters intended to be people with albinism have madeappearances on TV and in the movies. Unfortunately, the depictions http://www.lunaeterna.net/popcult/film.htm

F I L M Many characters intended to be people with albinism have made appearances on TV and in the movies. Unfortunately, the depictions have been overwhelmingly negative, revealing a great deal of insensitivity and ignorance on the part of the writers and directors. Below is a chronology of movies and television shows featuring depictions of albinism, beginning with the most recent. COLD MOUNTAIN: Directed by Anthony Minghella, 2003. Adapted from Charles Frazier's novel of the same name, this Civil War epic features a violence-loving evildoer with albinism named Bosie. He is a member of the Home Guard, a group of men deemed unfit for combat (Bosie's albinism and frequent nosebleeds put him in this category) who were responsible for watching over the families of Confederate soldiers. Many of these men became merciless assassins as the group's activities shifted to the execution of war deserters. Bosie relishes his acts of cruelty, which include noosing the neck of an innocent woman with so much force as to render her permanently mute, and thrives on killing. He himself dies in a gruesome manner by the film's conclusion, but not before murdering one of the protagonists. Film Threat interview with Hunnam (12/17/03), albinism was a component added to Bosie's character by the director specifically for the movie (in the novel, he is merely slight, fair-haired, and sickly). In the interview, Hunnam states, "One day, Anthony asked me, 'What if [Bosie] was an albino?' He told me to go away and read as much as I could about albinism...I read that the condition was often a product of incest...Also, I read that albinos generally have about 60/20 vision and are susceptible to nosebleeds."

22. Albinism albinism. Signs and Symptoms albinism oculocutaneous or ocular types). The literaturereports as many as 20 variants of oculocutaneous albinism alone. http://www.revoptom.com/handbook/SECT58a.HTM

Albinism Signs and Symptoms Albinism affects approximately 1 in 20,000 individuals, producing pigmentary deficiency, abnormal crossings of the temporal fibers in the optic chiasm, nystagmus, photophobia, variable visual acuity and, frequently, strabismus. The main subdivisions of albinism include oculocutaneous, ocular, and albinoidism (absence of pigment in localized areas; the pigment in the skin, hair and eyes is less than normal but does not affect the individual as severely as the oculocutaneous or ocular types). The literature reports as many as 20 variants of oculocutaneous albinism alone. Oculocutaneous as well as ocular albinos exhibit similar ocular and visual dysfunction. The oculocutaneous albino patient manifests reduced acuity, photophobia, strabismus, significant refractive error with astigmatism, transillumination of the iris and globe, nystagmus, blonde fundus with visible choroidal vasculature, and macular hypoplasia. A super-normal EOG and ERG is also present. Transillumination of the iris and globe results from insufficient uveal pigmentation and poor development of the retinal pigment epithelium. This leads to a funduscopic picture of a blond fundus with extensive areas of hypopigmentation and clearly visible underlying choroidal vasculature. The pigment of the RPE acts as a sink for incoming light. When the RPE is underdeveloped, light scatters within the eye, producing the subjective complaint of photophobia.

23. Nineteenth Century Images Of Albinism NINETEENTH CENTURY IMAGES OF albinism h. People born with the geneticcondition albinism ie a deficiency of the skin, hair and eye http://members.optusnet.com.au/~msafier/albinism/c19albinos.html

NINETEENTH CENTURY IMAGES OF ALBINISM h People born with the genetic condition albinism i.e. a deficiency of the skin, hair and eye pigment melanin, have been the subjects of public curiosity over the centuries. They have been purported to have all sorts of supernatural powers such as mind reading and they were at times even suspected of witchcraft. Entrapeneurs such as Phineas Barnum employed "albinos" to appear in his American Museum and as part of his travelling sideshow, such as the Lucasie family from Holland and the Martin sisters Gallery: The Lucasie Family The Martin Sisters Millie La Mar (mind reader) Emma Morris (White Moon) ... J. Unzie Links: NOAH - The National Organisation for Albinism and Hypopigmentation POSITIVE EXPOSURE - Utilizing photography and interviews to investigate the social and psychological experience of having albinism internationally Marcel Safier's Home Page Australian and New Zealand Photographic History Webring This site is maintained by Marcel Safier, Brisbane , Australia msafier@ozemail.com.au

24. The Hermansky-Pudlak Syndrome Network Inc Information and resources about the syndrome and albinism. http://www.medhelp.org/web/hpsn.htm

The Hermansky-Pudlak Syndrome Network Inc. Index About Hermansky-Pudlak Syndrome How it is Diagnosed Standard of Care How to Contact the Network ... e-mail connect: appell@worldnet.att.net About Hermansky-Pudlak Syndrome Hermansky-Pudlak Syndrome (HPS) is a genetic metabolic disorder which causes albinism, visual impairment, a platelet dysfunction with prolonged bleeding, and progressive symptoms including pulmonary fibrosis, inflammatory bowel disease and kidney disease. The severity of HPS ranges from very mild with few symptoms to severe and disabling. Since HPS is an autosomal recessive disorder, both parents are expected to be carriers of the abnormal gene. ALBINISM The type of albinism in HPS is a tyrosinase-positive form, which means that individuals may present with varied amounts of pigmentation. Some persons may have very light hair and fair features, while others may have dark hair and appear to have ocular albinism. The visual impairment inherent in HPS persons is a result of the lack of pigment during eye development. This results in decreased acuity and frequently to legal blindness, photophobia (light sensitivity), strabismus (crossed eyes), and nystagmus (involuntary movement of the eyes). PLATELET DYSFUNCTION Platelets are a part of blood which helps clotting. In HPS, the platelets do not function properly. For platelets to work, they must have dense bodies on them, much like chips on a chocolate chip cookie. These chips are filled with chemicals, which when released, cause the platelets to clump and stick together. The platelets of individuals with HPS do not have these dense bodies. Without them, HPS platelets do not work, causing poor clotting or a bleeding tendency.

25. Nineteenth Century Images Of Albinism - Lucasie Family NINETEENTH CENTURY IMAGES OF albinism h. Rudolph Lucasie and family(carte de visite photo by Matthew Brady). bbbbb Rudolph Lucasie http://members.optusnet.com.au/~msafier/albinism/albino1.html

NINETEENTH CENTURY IMAGES OF ALBINISM h Rudolph Lucasie and family (carte de visite photo by Matthew Brady) bbbbb Rudolph Lucasie and family (carte de visite photos by Chas. Eisenmann) The albino family, the Lucasies were obtained in Holland by Phineas Barnum during a visit to Amsterdam in 1857. He brought them back to America where they became one of his most popular exhibits. Barnum billed them as being of black Madagascan lineage and that their pink eyes stayed wide open while they slept! The Lucasies were managed by long time Barnum employee Dr. Oscar Kohn. Along with other "living curiosites" in Barnum's employ they appeared in his American Museum on Broadway and offered life story pamphlets for sale along with their 15 cent carte de visite photographs such as those above. Other albinos in the employ of Barnum included the teenage "Amos", Charles Gorhen and during the 1880's his sideshow acts included the Martin sisters Return to main page Next This site is maintained by Marcel Safier, Brisbane , Australia msafier@ozemail.com.au

26. Home Experiences of living with albinism. http://princesspale.20megsfree.com/

Free Web space and hosting - 20megsfree.com Choose an ISP NetZero High Speed Internet Dial up $14.95 or NetZero Internet Service $9.95 Welcome To My World Home Page About Page Photo Page Favorite Links ... Whats New Page About Me, My thoughts and My Dreams I invite you on a journey through my life so far. It is a very personal and honest account of growing up in a world where "difference" is not looked upon in the kindest way at times. It's a short memoir of my early years as a child, ignorant of what the world later held in store for me. My highschool days of torment, shame and self hatered. Right up until three years ago when I met a person who will always be special to me, who was to have the biggest influence on my life so far and who helped me challenge the feelings of hate I had for myself . I hope that what you are about to read will be of help to someone and a source of hope to others. Sit back while you enter the journey of My World. Kristina Venning September 2002 Please feel free to email me and let me know what you thought about my site, however, if it is to do with spelling and grammar, keep your opinions to yourself!! kristinavenning@aol.com

27. Albinism Did you know that albinism is the result of a change in the genetic codethat can be passed on only under certain conditions? What s albinism? http://kidshealth.org/kid/health_problems/skin/albinism.html

KidsHealth Kids Kids' Health Problems Skin A long time ago, there was a buffalo unlike any other the Lakota Indians ever had seen. This buffalo was a marvel because she was colorless. Her pale hair and hide made her shine. In awe of her rare and special beauty, the Lakota Indians called her the White Buffalo. Just like this buffalo, there are other animals who are born with little or none of the pigment melanin (say: meh -la-nen) - that's the dark brown stuff usually found in skin, eyes, and hair. Squirrels, birds, deer, snakes, kangaroos, primates, and humans may also have little or no pigment. In fact, one in 17,000 people born in the United States have this condition, called albinism (say: al -beh-ni-zem). What's Albinism? When a body doesn't produce this dark brown melanin, that person's skin eyes , and hair will be pale in color. People with albinism may have hair that's light brown, pale yellow, or white, while their eyes are light blue, brown, or even pink. Their skin can be totally pale or might have differently shaped white patches in places. Printer -friendly version Email this article to a friend Send email to us Jump to another section of this article Albinism What Causes It? and Kinds of Albinism

28. -- Albinism - Craig's Personal Story -- Information about albinism from a person who has it. Frequently asked questions, links, music and pictures. http://www.geocities.com/cfontheweb/

Hello, and welcome to my site. This page is mostly dedicated to Albinism. I have also posted some of my music, personal photos, links and more. I do change things from time to time so feel free to stop by once in a while. Thanks!... Craig This site was updated on May 14, 2004 04:42 PM albinism@idirect.ca Sign My Guestbook View My Guestbook Made in Ontario, Canada. My site is best viewed with

29. Albinism Did you know that albinism is the result of a change in the genetic code that canbe passed on only under certain conditions? Also, there is ocular albinism. http://kidshealth.org/kid/health_problems/skin/albinism_p2.html

KidsHealth Kids Kids' Health Problems Skin What Causes It? Albinism isn't something you can catch, like a cold or the flu . It results from a change in the genetic code that can be passed on only under certain conditions. For most forms of albinism, that means two albinism genes have to meet - one from each parent. Now here's where it gets tricky: each parent can pass on an albinism gene even if they both have regular pigmentation. How? Because everybody has two sets of genes. A mom and dad could each have one regular pigment gene and one special albinism gene. Because one albinism gene isn't enough to meet the "special chemistry" requirements, the mom and dad ended up with regular pigmentation. But under special circumstances, their child may have albinism. When each parent by chance gives the albinism gene, the child will show albinism. There is a 25% chance (1 out of 4 chance) that this will occur each time that these parents have a child. Kinds of Albinism Scientists have identified at least seven kinds of albinism - each created by a different gene or set of genes. Each is unique. Below are four of the most commonly known: The first is called type 1 . People with type 1 albinism have almost no pigment, which means that their hair, skin, and eyes are extremely fair and light in color. Often these are the kids with pink eyes. They might have damaged or

30. Albinism Sunburn Patients with albinism are at risk for severe sunburn. Children mustbe taught to protect their skin. Support and Information About albinism. http://www.eyeassociates.com/images/albinismconsiderations.htm

31. NORD - National Organization For Rare Disorders, Inc. albinism. To purchase fulltext report ($7.50) Copyright 1985, 1989, 1992,1994, 1999 Synonyms of albinism albinismus; BADS; Congenital Achromia; http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Albinism

32. DIRC Fact Sheet - Albinism albinism. Fact Sheet. albinism Fellowship Support Group Inc (Aust) PO Box 717 MODBURYSA 5092. Ph 8261 2922 Email Sullivan@senet.com.au. What is albinism. http://www.dircsa.org.au/pub/docs/albinism.htm

ALBINISM Fact Sheet PO Box 717 MODBURY SA 5092 Ph: 8261 2922 Email: Sullivan@senet.com.au What is Albinism Albinism is an inherited disorder where there is either total absence or decreased production of the usual normal pigmentation. The pigment concerned is called melanin and only occurs in certain areas of the body. If there is pigment deficiency, it will not have any adverse effects on other body functions such as intelligence, heart, kidney, lungs, liver or general well being. For melanin to be produced, the enzyme Tyrosinase, is a necessary part of the chemical process. In albinism this enzyme is either absent completely, or is present in a reduced amount and does not produce the normal amount of pigment. Hair roots can be chemically tested in a laboratory to determine the presence of Tyrosinase and any resultant pigment. Another effect of albinism is on the pathways of the optic fibres. This does not affect intelligence (see below), but can be tested and can be useful in confirming the diagnosis of albinism. Albinism is also a very varied condition, some people have no skin pigmentation, others have normal skin pigmentation, but reduced pigment in the eye. (see "Types of Albinism"-page 3).

33. Albinism - Wikipedia, The Free Encyclopedia albinism. From Wikipedia, the free encyclopedia. Visual Problems Associatedwith albinism. People with albinism generally suffer impaired vision. http://en.wikipedia.org/wiki/Albinism

Albinism From Wikipedia, the free encyclopedia. Albinism is a genetic condition resulting in a lack of pigmentation in the eyes, skin and hair. It is an inherited condition arising from the combination of recessive genes passed from both parents of an individual. A variety of problems with photosensitivity in eyesight and skin usually result from the condition. This entry is intended to cover mainly human albinism, although many of the features mentioned would probably also apply to albinism in animals. Table of contents 1 Lack of Pigmentation 2 Classification 3 Visual Problems Associated with Albinism 4 Genetics ... edit Lack of Pigmentation The gene which results in albinism prevents the body from making the usual amounts of a pigment called melanin There are many genes which are now scientifically proven to be associated with albinism (or better: alterations of the genes). All alterations, however, lead to an alteration of the melanin (pigment / colouring) production in the body and the eyes. Melanin helps protect the skin from ultraviolet light coming from the Sun (see human skin color for more information). People with albinism lack this protective pigment in their skin, and can burn easily from exposure to the sun as a result. Lack of melanin in the eye often results in problems with vision, as the eye will not develop properly without the pigment.

34. Albinism - Wikipedia, The Free Encyclopedia albinism. (Redirected from Albino). OCA is more common than OA. Visual Problems Associatedwith albinism. People with albinism generally suffer impaired vision. http://en.wikipedia.org/wiki/Albino

Albinism From Wikipedia, the free encyclopedia. (Redirected from Albino Albinism is a genetic condition resulting in a lack of pigmentation in the eyes, skin and hair. It is an inherited condition arising from the combination of recessive genes passed from both parents of an individual. A variety of problems with photosensitivity in eyesight and skin usually result from the condition. This entry is intended to cover mainly human albinism, although many of the features mentioned would probably also apply to albinism in animals. Table of contents 1 Lack of Pigmentation 2 Classification 3 Visual Problems Associated with Albinism 4 Genetics ... edit Lack of Pigmentation The gene which results in albinism prevents the body from making the usual amounts of a pigment called melanin There are many genes which are now scientifically proven to be associated with albinism (or better: alterations of the genes). All alterations, however, lead to an alteration of the melanin (pigment / colouring) production in the body and the eyes. Melanin helps protect the skin from ultraviolet light coming from the Sun (see human skin color for more information). People with albinism lack this protective pigment in their skin, and can burn easily from exposure to the sun as a result. Lack of melanin in the eye often results in problems with vision, as the eye will not develop properly without the pigment.

35. Albinism albinism. DESCRIPTION A hereditary deficiency of pigmentation, whichmay involve the entire body (complete albinism) or a part of http://www.spedex.com/resource/documents/veb/albinism.htm

ALBINISM TREATMENT: Optical correction of refractive errors; tinted or pinhole contact lenses; absorptive lenses; optical aids, lowered illumination if needed; genetic counseling recommended. IMPLICATIONS: Adjust illumination to conditions and individual (i.e., control glare via seating and/or tinted lenses; use sunglasses and/or hat with visor outdoors). Classroom seating should be appropriate to the corrected refractive error and photophobia. Should be evaluated for low vision aids. Genetic implications should be noted. Back to Contents or Back to SpEdEx Home

36. Albinism (Bianca Knowlton) Bianca s homepage on albinism, looking through the eyes of Bianca and from differentfamily viewpoints, Q A, Photo album and much more .. http://www.knowlton.clara.net/family/Albinism/bianca.htm

mAd Bianca has been featured in an article written by Rose George on Albinism called 'Beyond The Pale' for the Sunday Telegraph magazine on 5th October, 2003 to read this article Click here to read the article Hi, W e have tried to put together an insight to Albinism in a light way, hopefully making it easier to understand. Though there are serious issues to address and comment on as well, this will be covered in the same way, but not to detract from the importance of that particular issue. The following pages is information to help people understand and to also help perhaps, if you have an albino child or, you are an albino and would like to email, talk, ask questions...... to get in contact with me or any of my family that you may wish to relate to. Each member has their own perspective on Albinism and how it has effected them personally, or, just read about the family and my experiences, privately. The pages will be added to, so check out the site from time to time for the new pages & updates. If you wish to get in contact with me or any of the family, then do not hesitate to click the contact button on each of the pages........... also, if you have any photo's that you would like to have published on the site in "

37. Dermatlas: Online Dermatology Image Library Dermatology Image,albinism,blonde Ha depigmentation,hypopigmentation/depigmentation,hyperpigmentation,hyperpigmentation,dermatologyimage,blonde hair,albinism, congenital, congenital, congenital http://dermatlas.med.jhmi.edu/derm/result.cfm?Diagnosis=-1406605093

38. Albinism. DermNet NZ albinism information for patients. NZ DermNet is an online dermatology resourcefor patients, GPs and dermatologists. albinism. What is albinism? http://www.dermnetnz.org/dna.albinism/albinism.html

@import url("/common/screen.css"); DermNet NZ Ad: Authoritative facts about the skin from the New Zealand Dermatological Society Home For patients For doctors ... Site map Search: Home Colour Albinism What is albinism? Albinism is a condition in which people have little or no melanin pigment (compound that creates colour) in their eyes, skin or hair. Because of this people with albinism look a little different from other members of their family without albinism. They have very fair skin which is prone to sunburn, their hair is white or a very light colour, and they may squint a lot as their eyes are sensitive to sunlight. Classification of albinism There are two main categories of albinism: oculocutaneous involves dilution of the colour of the hair, skin and eyes most common form of albinism ocular melanin pigment mainly missing from the eyes while the skin and hair appear normal or only slightly lighter accounts for 10-15% of all albinism cases Oculocutaneous albinism (OCA) make up a group of different types of albinism based on the specific albinism gene involved. Oculocutaneous albinism type 1 and type 2 are the most common types of oculocutaneous albinism. Types of oculocutaneous albinism Type 1 (tyrosinase-related albinism) Sub-groups include OCA1, OCA1A and OCA1B

39. DermIS / Main Menu / DOIA / Albinism / Images DermIS / main menu / DOIA / albinism / images, deutsch español portugues français. /images for the diagnosis albinism . Click to enlarge. Click to enlarge. http://www.dermis.net/doia/diagnose.asp?zugr=d&lang=e&diagnr=9175&topic=t

40. DermIS / Main Menu / DOIA / Alphabetically / Diagnosenames Containing 'albinism' DermIS / main menu / DOIA / alphabetically / diagnosenames containing albinism ,deutsch español portugues français. // 1 1 of 1 items list all albinism, 3. http://www.dermis.net/doia/abrowser.asp?zugr=d&lang=e&beginswith=albinism&type=s

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