1. NOAH - The National Organization For Albinism And Hypopigmentation Join NOAH s Directors and many other people with albinism and their familiesfor the NOAH Atlanta Dinner Saturday April 17th at 700pm. http://www.albinism.org/

Albinism On Line Community (Formerly The Webboards) Join NOAH! Albinism Information About NOAH NOAH Events ... THANKS! Information for people who have: NOAH News 1st Annual Michigan Family Picnic Maybury State Park Sunday June 6th Bring the whole family for what is sure to be a fun-filled day for everyone! Midwest Meeting in Chicago Saturday June 5, 2004 Meet at Bennigan's From 12 to 6 PM (Central time) 225 N Michigan Ave RSVP by May 22, 2004 Downtown Chicago http://www.bennigans.com Special Information on Room Reservations for the NOAH 2004 Conference The response to NOAH's biennial conference this summer has been fantastic! We're receiving more registrations than even we imagined! You'll meet plenty of new best friends in Atlanta this summer. There's a slight possibility, however, that we will sell out our reserved block of rooms at the conference hotel. If that happens, the hotel may tell you that they are sold out when you call to reserve your room. Have no fear!!! We have a system in place to ensure you get a hotel room for the guaranteed conference room rate. More details on making sure you have a room NOAH The National Organization for Albinism and Hypopigmentation PO Box 959, East Hampstead, NH 03826-0959

2. International Albinism Center At the University of Minnesota a team of dedicated research professionals interested in understanding the basis of albinism in humans. Facts about this disorder as well as glossary of terms provided. http://www.cbc.umn.edu/iac/

Welcome to the homepage of the International Albinism Center at the University of Minnesota. The International Albinism Center is a team of dedicated research professionals interested in understanding the basis of albinism in humans. We are a multi-disciplinary group of researchers that include interests in clinical genetics, molecular biology, ophthalmology, dermatology, and biochemistry, all with a central theme of understanding the cause and effect of albinism and other forms of pigment loss in humans. We have published several papers on different aspects of albinism as a result of this collaborative effort. Facts About Albinism - Revised This is an electronic copy of the publication Facts About Albinism written by Drs. Richard A. King, C. Gail Summers, James W. Haefemeyer and Bonnie LeRoy. This is a good source of basic information about albinism. This also contains a list of Definitions of Words at the end of the book. This is a link to a review paper on the different types of albinism and the affect of albinism on the eye. Are you doing a report on albinism?

3. MedlinePlus Medical Encyclopedia: Albinism by the body to the pigment melanin. albinism results when the body is unable to produce or distribute it into melanin, can cause albinism. albinism appears in different forms http://www.nlm.nih.gov/medlineplus/ency/article/001479.htm

@import url(http://www.nlm.nih.gov/medlineplus/images/advanced.css); Skip navigation Medical Encyclopedia Other encyclopedia topics: A-Ag Ah-Ap Aq-Az B-Bk ... Z Albinism Contents of this page: Illustrations Alternative names Definition Causes, incidence, and risk factors ... Prevention Illustrations Nevus, halo Alternative names Return to top Hypopigmentation; Oculocutaneous albinism; Ocular albinism Definition Return to top Albinism refers to a group of related conditions. These conditions are the result of altered genes that cause a defect of melanin production. This defect results in the partial or full absence of pigment from the skin, hair, and eyes. Causes, incidence, and risk factors Return to top Albinism results when the body is unable to produce or distribute pigment, called melanin, because of one of several possible genetic defects. In Type 1 albinism defects in the metabolism of tyrosine lead to failure in converting this amino acid to melanin. This is due to a genetic defect in tyrosinase the enzyme responsible for metabolizing tyrosine. Type 2 albinism is due to a defect in the "P" gene. Those with this type have slight pigmentation at birth.

4. Albinism About one in every 17 000 people have albinism. These individuals fail to produce melanin, a photoprotective pigment. http://www.lowvision.org/albinism.htm

5. Albinism Fellowship UK - Welcome The albinism Fellowship, a group that provides information, advvice and supportfor people with albinism. Registered Charity in Scotland No. SC009443 http://www.albinism.org.uk/

Registered Charity in Scotland No. SC009443 Enter Standard Text Site Enter Large Text Site This site is best viewed in 800x600 or 1024x768 with Internet Explorer 4.0+ or equivalent Unauthorised reproduction of any part this site is prohibited. Website Designed, Built and Maintened by Daniel Hill: webmaster@albinism.org.uk All general enquiries should be e-mailed to info@albinism.org.uk If a photograph of you or a member of your family appears on this website it has been placed here in good faith, should you not wish any photo/s connected with you to be used on the site, please e-mail us and we will remove it as soon as we can.

6. Albinism albinism information and links to national and international support groups, clinics with genetic counselors and geneticists albinism. National Organization for albinism and Hypopigmentation( NOAH) PO Box 959, East Hampstead, NH 038260959 Web site http//www.albinism.org/ albinism World Alliance http://www.kumc.edu/gec/support/albinism.html

Albinism National Organization for Albinism and Hypopigmentation (NOAH) PO Box 959, East Hampstead, NH 03826-0959 Phone: 800 473-2310, Phone and Fax: 603 887-2310 Web site: http://www.albinism.org/ Albinism World Alliance (AWA) , network of albinism support groups in various countries, founded in 1992, representatives from Australia, Canada, Tanzania, the United Kingdom, the United States of America, Germany, Mali, Malawi, the Netherlands, Puerto Rico, Norway, South Africa,and others International Albinism Center , University of Minnesota Vision of Children Foundation , San Diego, hereditary childhood blindness, x-linked ocular albinism, other blindness Albinism , Netherlands, includes drawings of effects on eye Albinism , Denmark Assosiation For Albinism (NFFA), Norway Hermansky Pudlak Syndrome Network Also See: National organizations information on genetic conditions or birth defects Information for Siblings and Family Members Health Resource Directory National Health Information Center Online Mendelian Inheritance in Man (OMIM), albinism Redefining Beauty , Life Magazine, http://www.rickguidotti.com/

7. Albinism In Popular Culture Explore the mythology of albinism. http://www.lunaeterna.net/popcult/

A L B I N I S M I N P O P U L A R C U L T U R E I N T R O D U C T I O N A R T L I T E R A T U R E F I L M ... O T H E R back to the NOAH Home Page Have you come across something I may have missed? Do you have any comments? Please e-mail me and let me know LUNAETERNA ["at" sign] MINDSPRING.COM Created on July 18, 1997 by LunaEterna (Last updated January 2004)

8. Albinism Understanding albinism. Introduction to albinism. albinism Low Vision Considerations. Richard L. Windsor, O.D. and Laura K. Windsor O.D. Vision Enhancement Magazine. Other Resources on albinism http://www.eyeassociates.com/images/albinism.htm

9. Eye Conditions > Albinism -- EyeMDLink.com An article about albinism as well as ocular albinism, related conditions, testing and who treats this. http://www.eyemdlink.com/Condition.asp?ConditionID=59

10. Derm/cinema Evil List: Albinism List of dermatologic findings used to convey evil. albinism. List Lobby. Next List. albinism as. manifestation. of. evil. Actor, character. Film. year. finding. Mel Smith as the Albino. Princess Bride. 1987. albinism. Vincent Price as Roderick Usher Princess Bride. 1987. albinism. Sara Shearer as the Old Woman of the Deadites Fall of the House of Usher. 1960. albinism. Christopher Walken as Zorin http://itsb.ucsf.edu/~vcr/AlbinList.html

List of dermatologic findings used to convey evil Albinism If you know of examples of skin lesions in films that are not listed, send them via e-mail: vcr@skinema.com Previous list List Lobby Next List Albinism as manifestation of evil Actor, character Film year finding Tobin Bell as The Nordic Man The Firm Albinism-like pale skin and white hair William Frankfather as Whitey Jackson Foul Play Albinism Mel Smith as the Albino Princess Bride Albinism Sara Shearer as the Old Woman of the Deadites Army of Darkness Albinism Vincent Price as Roderick Usher Fall of the House of Usher Albinism Christopher Walken as Zorin A View to a Kill Albinism Bad Guy Dick Tracy Albinism Sean Patrick Flanery as Powder Powder Albinism, no hair (albinopecia) A Pale Rider The Four Horsemen of the Apocalypse Albinism with alopecia (albinopecia) The Strangers Dark City Albinism with alopecia (albinopecia) Max Shreck as Nosferatu Nosferatu Albinism with alopecia (albinopecia) Klaus Kinski as Nosferatu Nosferatu, Phantom der Nacht Albinism with alopecia (albinopecia) Willem Dafoe as Max Shreck Shadow of the Vampire Albinism with alopecia (albinopecia) Vampire Salem's Lot (TV) Albinism with alopecia (albinopecia) Bengt Ekerot as Death The Seventh Seal Albinism with alopecia (albinopecia) Sandi Findlay as Sly Moore Star Wars, Episode II: Attack of the Clones

11. NOAH — What Is Albinism? NOAH The National Organization for albinism and Hypopigmentation logoWhat is albinism? Download the pdf version. Types of albinism. http://www.albinism.org/publications/what_is_albinism.html

What is Albinism? Download the pdf version. Requires Adobe Acrobat Reader The word "albinism" refers to a group of inherited conditions. People with albinism have little or no pigment in their eyes, skin, or hair. They have inherited genes that do not make the usual amounts of a pigment called melanin. One person in 17,000 in the U.S.A. has some type of albinism. Albinism affects people from all races. Most children with albinism are born to parents who have normal hair and eye color for their ethnic backgrounds. Often people do not recognize that they have albinism. A common myth is that by definition people with albinism have red eyes. In fact there are different types of albinism, and the amount of pigment in the eyes varies. Although some individuals with albinism have reddish or violet eyes, most have blue eyes. Some have hazel or brown eyes. Vision Problems People with albinism always have problems with vision, and many have low vision. Many are "legally blind," but most use their vision for reading, and do not use braille. Some have vision good enough to drive a car. Vision problems in albinism result from abnormal development of the retina and abnormal patterns of nerve connections between the eye and the brain. It is the presence of these eye problems that defines the diagnosis of albinism. Therefore the main test for albinism is simply an eye exam.

12. Facts About Albinism Common Questions About albinism. Can people with albinism have children? Do peoplewith albinism have a normal life span? Questions Answers What is albinism? http://www.cbc.umn.edu/iac/facts.htm

Index Questions and Answers: What is Albinism? What is melanin pigment? How does melanin form? What Are the Problems with Albinism? ... Autosomal Recessive Ocular Albinism (AROA) Common Questions About Albinism Can people with albinism have children? Do people with albinism have a normal life span? Do people with albinism have normal intelligence? Where can I get more information about albinism? ... What Causes Albinism? Why are children born with it? Understanding Genetics Understanding Genetics Autosomal Recessive Inheritance X-Linked Inheritance Miscellaneous Other Reading: Definitions of Words About the Authors What is Albinism? The word " albinism " refers to a group of inherited conditions. People with albinism have little or no pigment in the eyes, skin, and hair (or in some cases in the eyes alone). They have inherited from their parents an altered copy of a genes that does not work correctly. The altered gene does not allow the body to make the usual amounts of a pigment called melanin Approximately one in 17,000 people have one of the types of albinism. About 18,000 people in the United States are affected. Albinism affects people from all races. The parents of most children with albinism have normal hair and eye color for their ethnic background, and do not have a family history of albinism. What is melanin pigment?

13. Low Vision Associates Helping patients with the latest on low vision, whether from injury, aging, glaucoma, macular degeneration, albinism, retinitus pigmentosa, diabetes or other, specialty lenses or contacts may help. http://lowvisionassociates.com

What is Low Vision? Low Vision is a condition in which a person has some vision but it is limited.   This condition may interfere with daily pastimes such as reading and watching television.  People with low vision generally have some remaining vision with reduced sharpness, narrowed vision, haziness or blind areas. Who has Low Vision? About one out of every 6 Americans has low vision.  It can affect people of all ages. What causes Low Vision? Low vision is often the result of an injury, birth defect, the aging process, disease or condition such as ocular albinism, retinitis pigmentosa, or stargardts macular dystrophy.  If the condition develops later in life, it is usually caused by glaucoma, cataracts, macular degeneration or diabetes. Can people with Low Vision be helped? Yes!  Today many new optical devices and systems can help Low Vision patients see better.  However the patient must be motivated to see better and show a willingness to work toward that goal. Company Profile Low Vision Associates was founded in 1986 to help people with vision problems.  In that time, we have assisted thousands of patients.  Even many patients who were told by other doctors that "they could do nothing more to help them" have been helped here. Low Vision Associates specializes in fitting the latest eyeglass and contact lenses including telescopic and microscopic lenses, filtered lenses, high powered and prismatic lenses which may be helpful for many conditions.

14. Albinogene Article discussing the interactions of the incompletely dominant albinism alleles of Siamese and Burmese. http://homepages.tig.com.au/~coslinka/albinogene.html

The first of the colour-conformation genes affect coat pattern is the albinism gene. This gene controls the amount of body colour and comes in five alleles: full colour, "C", Burmese, "cb", Siamese , "cs", blue- eyed albino, "ca", and albino, "c". The full colour allele, "C" is wild, is dominant, and produces a full expression of the coat colours. This is sometimes called the non- albino allele. The Burmese allele, "cb", is mutant, is recessive to the full colour allele, codominant with the Siamese allele, and dominant to the blue- eyed albino and albino alleles, and produces a slight albinism, reduc- ing black to a very dark brown, called sable in the Burmese breed, and producing green or green-gold eyes. The Siamese allele, "cs", is mutant, is recessive to the full colour allele, codominant with the Siamese allele, and dominant to the blue- eyed albino and albino alleles, and produces an intermediate albinism, reducing the basic coat colour from black/brown to a light beige with dark brown "points" in the classic Siamese pattern and producing bright blue eyes.

15. Vision Of Children - Childhood Blindness And Vision Impairment Groups aims include the eradication of hereditary childhood blindness, ocular albinism and other blindness. http://www.visionofchildren.org

Vision of Children - Dedicated to curing childhood hereditary blindness, including Ocular Albinism and other related genetic vision disorders. HOME PAGE DIRECTORY: Update! Make a Difference Our Mission Life Stories ... Click here to see your pictures from the event Bocelli Performance a Stunning Success Raising almost $700,000 to benefit the Vision of Children Foundation ...continued VOC Holds Third World Symposium on Ocular Albinism November 9-11, 2003, the Vision of Children Foundation held the Third World Symposium on Ocular Albinism in San Diego, CA. Over 25 scientists attended, including Peter Dudley, M.D. from the National Eye Institute. Topics included the OA1 protein's role in the melanin synthesis pathway and optic nerve development, gene therapy, and surgical manipulation of the retinal pigment epithelium. The Symposium also coincided with the fundraising gala An Evening with Andrea Bocelli Mr. Bocelli, who himself is blind due to the genetic condition congenital glaucoma, was able to interact with the scientists the evening before the event. Truly an evening to remember, the event raised over $700,000 towards genetic eye research.

16. Heliophobe Worldwide Index A notso-sexual fetish magazine exclusively devoted to pale-skinned women. Each issue contains how-to advice on avoiding sunlight, beauty tips on accentuating paleness, and notices honoring albinism. Also, we print fiction, comics, and the photos of readers. http://www.hotweird.com/heliophobe/

Welcome to Heliophobe Worldwide, the Internet tentacle of Heliophobe magazine News Flash : Heliophobe #2 is now out of print, so please order #3 for $3.00, #1 for $2.00, or both for $5.00. If you feel kind and would like to help this virtuous cause, please send me even more money! I'll be sure to send you an extra gift. If you send a check, please make it out to: Forrest Jackson, PO BOX 600318, Dallas, TX, 75360 What's new? Heliophobe #3 now available! see ordering information below Heliophobe is a not-so-sexual fetish magazine exclusively devoted to pale -skinned women. Each issue contains how-to advice on avoiding sunlight, beauty tips on accentuating paleness , and notices honoring albinism . Also, we print fiction, comics, and the photos of readers. Heliophobe is certainly of interest to all Gothic girls and Death-Rock chicks (and the men who love them!). If you are a pale -skinned woman, you need this zine in order to survive the ozoneless nightmare of the future! A sample issue costs $3.00 US and you can get H#1 included for just $5.00. Heliophobe does not make money by selling ad space (like so many other zines out there) so if you feel particularly generous, please send as much as $10.00 and I'll send you something extra.

17. NOAH — Publications The National Organization for albinism and Hypopigmentation. PO Box 959, East Hampstead, NH 038260959 http//www.albinism.org. If you have any questions or comments, please e-mail us http://www.albinism.org/publications

Publications Download the pdf version. Requires Adobe Acrobat Reader You are encouraged to download these Information Bulletins as text or print from pdf format and distribute them to family, friends and appropriate professionals as long as the documents are not altered in any way. If you have any questions regarding these Information Bulletins, don't hesitate to contact NOAH for more information. English What is Albinism Que es el Albinismo? African Americans with Albinism Albinismo y Afro-Americanos ... What Do You See? La venida Pronto (coming soon) Social Aspect of Albinism Aspectos Sociales y Emocionales del Albinismo Sun Protection ... Recursos para Personas con Abinismo Funding for the development and original printing of these Information Bulletins was provided by the Innovating Worthy Projects Foundation of Somers Point, New Jersey. NOAH gratefully acknowledges their assistance. Top of Page NOAH The National Organization for Albinism and Hypopigmentation PO Box 959, East Hampstead, NH 03826-0959

18. Knowlton Family Homepage Mike, Carin, Bianca and Tanya. Contains albinism, history, sports, and photos. http://www.knowlton.clara.net/family/

.....MENU..... Watson The Web This family is crazier than a coconut!!......... Genealogy Our little corner of the world. A look see at where we are in the world. Mad Sports Scrapbook The Reading Rock Festival, UK and much more....... History Covering the current History from when, as DJ Mike Ocean, I met a girl, Carin in 77 on a Middle Eastern Island called Bahrain........ Albinism This is an insight to what it is like being an Albino in today's society, told in basic simple terms, by Bianca as seen through her eyes and with other family members experiences as well. There is some technical stuff for those that are interested along with photo's, a montage from friends around the world and some of our furry and feathered friends..... For cheap low cost international calls links history albinism genealogy ... photo album Michael Gordon Knowlton Contact:- webmaster@seal-management-group.co.uk

19. Albinism Database The albinism Database is produced by the International albinism Center at the University of Minnesota. This database includes mutations associated with all major known forms of oculocutaneous and ocular albinism. http://www.cbc.umn.edu/tad

The Albinism Database Web page has moved to a new location at: http://albinismdb.med.umn.edu You can click on this link, or you will be automatically taken there in 10 seconds. Please change your bookmark for the Albinism Database Web page Last changed April 6, 2004

20. Albinism Fellowship UK The albinism Fellowship, a group that provides information, advvice and support forpeople with albinism. Sorry. This website requires a frame capable browser. http://www.albinism.org.uk/frameset.html

Sorry. This website requires a frame capable browser.

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