21. OMIM - ADIPOSIS DOLOROSA http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=103200

22. ILDS - Homepage This site contains a list of Dermatology disease codes that include Dercum's. adiposis dolorosa is at the top of list E88.210 (use to be E88200). http://www.ilds.org/icd10_list.php?VIEW=1&START_CODE=E88.2&START_EXT=10

23. Entrez PubMed adiposis dolorosa associated with defects of lipid metabolism. Activation Analysis; Adipose Tissue/metabolism; Adipose Tissue/pathology; adiposis dolorosa/blood; http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Abstra

24. Adiposis Dolorosa AKA Dercum's Disease I have an extremely rare incurable disease called adiposis dolorosa. It is also known as Dercum s Disease . So far I have only http://www.nunnie.com/dercums.html

I have an extremely rare incurable disease called: Adiposis Dolorosa. It is also known as "Dercum's Disease". So far I have only found about 20 people that have this disease. There is NO cure. There is NO treatment. There is only supportive medications which are mainly pain pills. When this all first started, back on September 23, 1997, it started out as pain in my hands and arms. There was a lot of weakness and my hands and arms were going to sleep. In addition there was a huge lump inside the crook of my elbow on my left arm. It was about the size of a walnut. To just touch it sent me into tears as it was so painful. They thought it was Carpal Tunel, but ruled that out. Then they said it was Over-Use. I hadn't been typing much since September when it hit, and yet I was not getting any better. I had been begging my doctor, Doctor Fillingame, since September to do a biopsy on the first lump and he never would. Then I started asking him to refer me to a specialist and he wouldn't do that either. Since September I developed tumors on both my arms. The one huge lump at the crook of my elbow on my left arm turned into more lumps up the inside of my arm. In addition I developed another huge lump in the crook of the elbow in my right arm. At that point I started getting tumors, multiple tumors daily. They would grow very rapidly. What would start out the size of a pin head would become the size of a peach pit by the end of the day. Each visit I begged and pleaded with my doctor to please do a biopsy or send me to a specialist and he wouldn't

25. Dercum Disease adiposis dolorosa (DERCUM’S DISEASE) 10YEAR FOLLOW-UP. S. Brodovsky et al.; Ann Plast Surg (Dec 1994; 33(6)). Pp. DERCUM’S DISEASE (adiposis dolorosa). http://www.bchealthguide.org/kbase/nord/nord490.htm

document.write(''); var hwPrint=1; var hwDocHWID="nord490"; var hwDocTitle="Dercum Disease"; var hwRank="1"; var hwSectionHWID="nord490"; var hwSectionTitle=""; var hwSource="cn6.0"; var hwProdCfgSerNo="wsh_html_031_s"; var hwDocType="NORD"; National Organization for Rare Disorders, Inc. Dercum Disease Important It is possible that the main title of the report is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report. Synonyms Adiposis Dolorosa Juxta-Articular Adiposis Dolorosa Disorder Subdivisions None Related Disorders List Information on the following diseases can be found in the Related Disorders section of this report: Arthritis General Discussion Dercum Disease is a rare disorder characterized by pressure of fatty deposits on nerves, resulting in weakness and pain. This disorder usually occurs in obese females between the ages of 45 and 60. Various areas of the body may swell for no apparent reason. The swelling may disappear without treatment, leaving hardened tissue or pendulous skin folds. In some cases, affected individuals may also experience depression, lethargy, and/or confusion. Dercum Disease is thought to be inherited as an autosomal dominant genetic trait. Symptoms Dercum Disease is characterized by pain and weakness caused by pressure on nerves by abnormal fatty deposits near joints. Swellings consisting of irregularly shaped soft fatty tissue deposits may occur in many areas of the body. The knees, trunk, forearms and thighs are most commonly affected. These deposits may spontaneously resolve, leaving hardened tissue or pendulous folds of skin. Some affected individuals may experience depression, lethargy, and/or confusion.

26. Dercum's Disease / Adiposis Dolorosa Online. Founded 1998. Support for persons with Dercum s disease (aka adiposis dolorosa), characterized by fatty lipomas under the skin that cause pain. http://www.bchealthguide.org/kbase/shc/shc29der.htm

document.write(''); var hwPrint=1; var hwDocHWID="shc29der"; var hwDocTitle="Dercum's Disease / Adiposis Dolorosa"; var hwRank="1"; var hwSectionHWID="shc29der"; var hwSectionTitle=""; var hwSource="cn6.0"; var hwProdCfgSerNo="wsh_html_031_s"; var hwDocType="SHC"; Self Help Clearinghouse Dercum's Disease / Adiposis Dolorosa Dercum's Disease Online. Founded 1998. Support for persons with Dercum's disease (aka adiposis dolorosa), characterized by fatty lipomas under the skin that cause pain. Aim is to eradicate the pain and suffering of Dercum's Disease through finding the cause and cure. Forum for personal stories, links to support groups, and medical articles. E-MAIL: dercumdata@aol.com WEBSITE: http://Dercums_Data.tripod.com http://www.dercum.org VERIFIED: 5/1/2003 The above information is based upon information available through the "verified" date at the end of each listing. Since American Self-Help Group Clearinghouse's resources are limited; it is not possible to keep every entry in the American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information. For additional information and assistance about self-help groups, please contact the American Self-Help Group Clearinghouse in Cedar Knolls, New Jersey, by email at: info@selfhelpgroups.org

27. Adiposa Dolorosa,Dercum Disease,Juxta-Articular Adiposis Dolorosa,Adiposa Doloro Adiposa Dolorosa,Dercum Disease,JuxtaArticular adiposis dolorosa,Adiposa Dolorosa,Dercum Disease,Juxta-Articular adiposis dolorosa. http://www.icomm.ca/geneinfo/adiposa.htm

Adiposa Dolorosa,Dercum Disease,Juxta-Articular Adiposis Dolorosa,Adiposa Dolorosa,Dercum Disease,Juxta-Articular Adiposis Dolorosa For Information on Workshops and Seminars for Special Needs Children click here The GAPS INDEX to Information on the Internet about Genetic Disorders and Birth Defects Genetic Information and Patient Services, Inc. (GAPS) HOME DISORDERS GLOSSARY Adiposa Dolorosa also known as: Dercum Disease Juxta-Articular Adiposis Dolorosa (as defined by the National Organization for Rare Disorders Dercum Disease is a rare disorder characterized by pressure of fatty deposits on nerves, resulting in weakness and pain. This disorder usually occurs in obese females between the ages of 45 and 60. Various areas of the body may swell for no apparent reason. The swelling may disappear without treatment, leaving hardened tissue or pendulous skin folds. In some cases, affected individuals may also experience depression, lethargy, and/or confusion. Dercum Disease is thought to be inherited as an autosomal dominant genetic trait. (as defined at http://www.emedicine.com/derm/topic839.htm

28. Dercum Disease,Adiposis Dolorosa,Juxta-Articular Adiposis Dolorosa,Dercum Diseas Dercum Disease,adiposis dolorosa,JuxtaArticular adiposis dolorosa,Dercum Disease,adiposis dolorosa,Juxta-Articular adiposis dolorosa. http://www.icomm.ca/geneinfo/dercum.htm

Dercum Disease,Adiposis Dolorosa,Juxta-Articular Adiposis Dolorosa,Dercum Disease,Adiposis Dolorosa,Juxta-Articular Adiposis Dolorosa For Information on Workshops and Seminars for Special Needs Children click here The GAPS INDEX to Information on the Internet about Genetic Disorders and Birth Defects Genetic Information and Patient Services, Inc. (GAPS) HOME DISORDERS GLOSSARY Dercum Disease (as defined by the National Organization for Rare Disorders also known as: Decum's Disease Adiposis Dolorosa Juxta-Articular Adiposis Dolorosa Dercum Disease is a rare disorder characterized by pressure of fatty deposits on nerves, resulting in weakness and pain. This disorder usually occurs in obese females between the ages of 45 and 60. Various areas of the body may swell for no apparent reason. The swelling may disappear without treatment, leaving hardened tissue or pendulous skin folds. In some cases, affected individuals may also experience depression, lethargy, and/or confusion. Dercum Disease is thought to be inherited as an autosomal dominant genetic trait.

29. Adiposis Dolorosa Of Dercum - General Practice Notebook adiposis dolorosa of Dercum. Dercum s disease is the formation of multiple fatty deposits in various sites. This is a rare disease http://www.gpnotebook.co.uk/cache/-1288372178.htm

adiposis dolorosa of Dercum Dercum's disease is the formation of multiple fatty deposits in various sites. This is a rare disease that predominantly affects women over men in a ratio of 30:1. It is rare for this condition to affect women before the menopause. This condition may be familial but the majority of cases are sporadic. It is characterized by the formation of circumscribed painful adipose tissue deposits in the subcutaneous tissues of the extremities and other parts of the body. The most common site for the deposits is the knees. The size of lesions varies from 0.5 to 5 cm. Patients are often obese. The disease may be associated with emotional instability, fatigue, weakness and, very occasionally, dementia. Histological examination reveals no abnormalities of the adipose tissue. There is no fat necrosis as seen in panniculitis. Giant cell formations may be seen. There is no satisfactory treatment. It has been reported that intravenous lidocaine brought relief in two cases. Click here for more information...

30. Adiposis Dolorosa - General Practice Notebook adiposis dolorosa. Dercum s disease is the formation of multiple fatty deposits in various sites. This is a rare disease that predominantly http://www.gpnotebook.co.uk/cache/490012694.htm

adiposis dolorosa Dercum's disease is the formation of multiple fatty deposits in various sites. This is a rare disease that predominantly affects women over men in a ratio of 30:1. It is rare for this condition to affect women before the menopause. This condition may be familial but the majority of cases are sporadic. It is characterized by the formation of circumscribed painful adipose tissue deposits in the subcutaneous tissues of the extremities and other parts of the body. The most common site for the deposits is the knees. The size of lesions varies from 0.5 to 5 cm. Patients are often obese. The disease may be associated with emotional instability, fatigue, weakness and, very occasionally, dementia. Histological examination reveals no abnormalities of the adipose tissue. There is no fat necrosis as seen in panniculitis. Giant cell formations may be seen. There is no satisfactory treatment. It has been reported that intravenous lidocaine brought relief in two cases. Click here for more information...

31. Article: Corticosteroid-Induced Juxta-articular Adiposis Dolorosa (Dercum's Dise This site discusses the symptoms, personal stories and research that has been done in the study of Dercum s Disease (adiposis dolorosa). http://members.tripod.com/Dercums_Data/greenbaum.html

var cm_role = "live" var cm_host = "tripod.lycos.com" var cm_taxid = "/memberembedded" Check out the NEW Hotbot Tell me when this page is updated Corticosteroid-Induced Juxta-articular Adiposis Dolorosa By Steven S. Greenbaum, MD, John Varga, MD From the Departments of Dermatology (Dr Greenbaum) and Medicine (Dr Varga), Jefferson Medical College, Philadelphia, Pa. Reprinted from the Archives of Dermatology February 1991, Volume 127, pages 231-233 Long-term treatment with high doses of corticosteroids leads to the development of truncal obesity and focal fatty deposition. These deposits characteristically are located on the face, the nuchal and truncal areas, and episternally, as well as in the mediastinum and epicardium. We studied a patient with juxta-articular adiposis dolorosa who had L-tryptophan-associated eosinophilia-myalgia syndrome and was treated with high doses of prednisone. This is the first reported case of adiposis dolorosa occurring as a complication of corticosteroid treatment. Alterations of fat metabolism induced by corticosteroid excess may have played a role in the development of this unusual painful syndrome. Adiposis dolorosa is an uncommon disorder of subcutaneous tissue that was first described by Dercum in 1892 at Jefferson Medical College, Philadelphia, Pa. The understanding of this disease has not progressed very much in the past 98 years. It remains better understood as a clinical entity than as a physiologic or metabolic process.

32. Dorlands Medical Dictionary adiposis tubero¢sa sim¢plex, a disorder resembling adiposis dolorosa, marked by development in the subcutaneous tissue of fatty masses which are sometimes http://www.mercksource.com/pp/us/cns/cns_hl_dorlands.jspzQzpgzEzzSzppdocszSzuszS

33. Dercum's Disease / Adiposis Dolorosa Dercum s Disease / adiposis dolorosa. Self Help Clearinghouse. Dercum s Disease. Online. Founded 1998.Support for persons with Dercum s http://www.meritcare.com/hwdb/showTopic.asp?pd_hwid=shc29der

34. Dercum Disease - Quest Diagnostics Patient Health Library this report. Synonyms. adiposis dolorosa; JuxtaArticular adiposis dolorosa. Disorder Subdivisions. None. General Discussion. Dercum Disease http://www.questdiagnostics.com/kbase/nord/nord490.htm

document.write(''); var hwPrint=1; var hwDocHWID="nord490"; var hwDocTitle="Dercum Disease"; var hwRank="1"; var hwSectionHWID="nord490"; var hwSectionTitle=""; var hwSource="us6.0"; var hwProdCfgSerNo="wsh_html_059_c"; var hwDocType="NORD"; National Organization for Rare Disorders, Inc. Dercum Disease Important It is possible that the main title of the report is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report. Synonyms Adiposis Dolorosa Juxta-Articular Adiposis Dolorosa Disorder Subdivisions None General Discussion Dercum Disease is a rare disorder characterized by pressure of fatty deposits on nerves, resulting in weakness and pain. This disorder usually occurs in obese females between the ages of 45 and 60. Various areas of the body may swell for no apparent reason. The swelling may disappear without treatment, leaving hardened tissue or pendulous skin folds. In some cases, affected individuals may also experience depression, lethargy, and/or confusion. Dercum Disease is thought to be inherited as an autosomal dominant genetic trait. Resources American Chronic Pain Association P.O. Box 850

35. PharmGKB: Adiposis Dolorosa adiposis dolorosa. Alternate Names Dercum Disease; Dercum s Disease; Dercums Disease; Disease, Dercum; Disease, Dercum s. PharmGKB Primary Data. http://www.pharmgkb.org/do/serve?objId=PA443277&objCls=Disease

36. ORPHANET® Adiposis Dolorosa adiposis dolorosa. Direct access to data Summary adiposis dolorosa is a disease characterized by painful, subcutaneous fatty tumors. http://www.orpha.net/static/GB/adiposisdolorosa.html

37. ORPHANET - Rare Diseases - Orphan Drugs DISEASE adiposis dolorosa, Synonym(s) Dercum s disease Neurolipomatosis, adiposis dolorosa is a disease characterized by painful, subcutaneous fatty tumors. http://www.orpha.net/consor/cgi-bin/OC_Exp.php?Lng=GB&Expert=36397

38. Disease Directory : Dercum Disease,Adiposis Dolorosa,Juxta-Articular Adiposis Do Diseases Skin Disorders Dercum Disease Dercum Disease,adiposis dolorosa,JuxtaArticular adiposis dolorosa Directory Listing. http://www.diseasedirectory.net/detailed/24841.aspx

Wednesday, June 02, 2004 Skin Disorders Albinism Birthmarks Dercum Disease ... Dercum Disease : Dercum Disease,Adiposis Dolorosa,Juxta-Articular Adiposis Dolorosa ... Directory Listing Title: Dercum Disease,Adiposis Dolorosa,Juxta-Articular Adiposis Dolorosa ... Description: Dercum Disease,Adiposis Dolorosa,Juxta-Articular Adiposis Dolorosa,Dercum Disease,Adiposis Dolorosa,Juxta-Articular Adiposis Dolorosa. Dercum Disease Date Added: 2/16/2004 2:06:11 PM URL: http://www.icomm.ca/geneinfo/dercum.htm

39. Disease Directory : Dercum's Disease / Adiposis Dolorosa Diseases Skin Disorders Dercum Disease Dercum s Disease / adiposis dolorosa. Directory Listing. Title Dercum s Disease / Adiposis http://www.diseasedirectory.net/detailed/24837.aspx

Wednesday, June 02, 2004 Skin Disorders Albinism Birthmarks Dercum Disease ... Dercum Disease : Dercum's Disease / Adiposis Dolorosa Directory Listing Title: Dercum's Disease / Adiposis Dolorosa Description: Support for persons with Dercum's disease (aka adiposis dolorosa), characterized by fatty lipomas under the skin that cause pain. Dercum's Disease. Online. Date Added: 2/16/2004 2:06:11 PM URL: http://www.bchealthguide.org/kbase/shc/shc29der.htm

40. SIERE (Sistema De Información Sobre Enfermedades Raras En Español) Translate this page Sinónimos adiposis dolorosa Yuxta Articular. Código CIE-9-MC 272.8. Vínculos a catálogo McKusick 103200 Prestaciones y aspectos sociales. http://cisat.isciii.es/er/prg/er_bus2.asp?cod_enf=749

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