1. Ask NOAH About Spina Bifida And Hydrocephalus genetics genetics and Prevention QAPSBH Genetic Counselling - Association forSpina bifida and hydrocephalus (UK) (PDF File of 3 Pages) Neural Tube Defects http://www.noah-health.org/english/illness/neuro/spinabif.html

Ask NOAH About: Spina Bifida and Hydrocephalus What are Spina Bifida and Hydrocephalus? Care and Treatment The Basics Diagnosis ... Return to Genetic Disorders What is Spina Bifida? The Basics Facts About Spina Bifida and Hydrocephalus - Spina Bifida Association of America Spina Bifida and Hydrocephalus Frequently Asked Questions - Spina Bifida and Hydrocephalus Association of Canada Spina Bifida Ante-Natal Screening - Association for Spinal Bifida and Hydrocephalus, UK Facts About Spina Bifida - Spina Bifida Association of America Facts about Spina Bifida - Spina Bifida Association of America Spina Bifida - Columbia Presbyterian Medical Center ... Spina Bifida - March of Dimes (NOAH Provider) (also in Spanish Spina Bifida - Beth Israel Medical Center Spina Bifida - JAMA ... Spina Bifida - National Information Center for Children and Youth with Disabilities (also in Spanish PDF File of 2 Pages) Spina Bifida: A Neural Tube Defect - QAPSBH What Is Spina Bifida? - Association for Spina Bifida and Hydrocephalus What is Spina Bifida (Myelomeningocele)? - University of Wisconsin Spina Bifida Occulta Spina Bifida Occulta - Association for Spina Bifida and Hydrocephalus Spina Bifida Occulta - Spina Bifida Association of America Spina Bifida Occulta - Royal Children’s Hospital, Australia

2. Spina Bifida Image that s a link to genetics Education Center Support Page et d hydrocéphaliedu Canada) Association for spina bifida and hydrocephalus ASBAH House, 42 http://www.kumc.edu/gec/support/spinabif.html

Spina Bifida (lipomeningocele, meningocele, myelomeningocele, anencephaly, neural tube defects) Spina Bifida Association of America 4590 MacArthur Blvd., NW, Suite 250, Washington, DC 20007-4226 Phone: 800.621.3141or 202.944.3285 - Fax: 202.944.3295 E-mail: sbaa@sbaa.org SBAA Chapters Real Stories Section Spina Bifida Association of Canada (L'Association de spina-bifida et d'hydrocéphalie du Canada) Association for Spina Bifida and Hydrocephalus ASBAH House, 42 Park Road, Peterborough, PE1 2UQ England Web site: http://www.asbah.org/ Links to world-wide resources and support groups International Federation for Hydrocephalus and Spina Bifida ("if") Cellebroerstraat 16, B-1000 Brussels, Belgium Tel: +32 (0)2 502 0413 - Fax: +32 (0)2 502 1129 E-mail: if@wanadoo.be Queensland Association for People with Spina Bifida or Hydrocephalus 21 Tillot St., Dutton Park, QLD 4102 Australia Spina Bifida Association of Western Australia Arbeitsgemeinschaft Spina bifida und Hydrocephalus (ASbH e.V.) Bundesverband Münsterstr.13, D-44145 Dortmund, Germany

3. Hydrocephalus Image that s a link to genetics Education Center Support Page hydrocephalus.Also, spina bifida, neural tube defects, hydranencephaly resources. http://www.kumc.edu/gec/support/hydrocep.html

Hydrocephalus Also, spina bifida , neural tube defects, hydranencephaly resources Hydrocephalus Association 870 Market Street, Suite 705, San Francisco, CA 94102 Phone: 415.732.7040 - Fax: 415.732.7044 E-mail: hydroassoc@aol.com Web site: http://www.hydroassoc.org/ National Hydrocephalus Foundation 12313 Centralia Road, Lakewood, CA 9015-1623 Spina Bifida and Hydrocephalus Association of Canada L'Association spina-bifida et de l'hydrocéphalie du Canada] Includes What is Hydrocephalus? Hydrocephalus Support Group, Inc. P.O. Box 4236, Chesterfield, , MO 63006-4236 Phone: (314) 532-8228 Guardians of Hydrocephalus Research Foundation 2618 Avenue Z, Brooklyn, , NY 11235-2023 Phone: 800.458.8655 or 718.743.4476 - Fax: 718.743.1171 Association for Spina Bifida and Hydrocephalus ASBAH House, 42 Park Road Peterborough, PE1 2UQ ENGLAND Web site: http://www.asbah.org/ Links to world-wide resources and support groups International Federation for Hydrocephalus and Spina Bifida ("if") Cellebroerstraat 16, B-1000 Brussels

4. Children With Spina Bifida: A Resource Page For Parents & Professionals bifida Online Discussion Groups ~ ~ hydrocephalus Resources ~ Chiari Malformation ~ ~ spina bifida Education Issues Prenatal Diagnosis ~ genetics ~ Fetal Surgery ~ http://www.waisman.wisc.edu/~rowley/sb-kids/index.htmlx

Spina Bifida Organizations Spina Bifida Online Discussion Groups Hydrocephalus Resources Chiari Malformation ... Prenatal Diagnosis ~ Genetics ~ Fetal Surgery Folic Acid Information Hot Lines Yellow Ribbon for Spina Bifida Awareness ... The Spina Bifida Survey! The Children with Spina Bifida Web Site has been visited 273,264 times since March 6, 1996. This page is a compilation of information and resources intended to be a service to parents of children who have spina bifida. Inclusion of any resource or web site does not imply endorsement. Any medical or health care reference is intended for informational purposes only. If you have any questions relating to your child's condition please consult your child's doctor. Last updated 2/11/2004 by Linda Rowley . E-mail: rowley@waisman.wisc.edu Document Source: http://www.waisman.wisc.edu/~rowley/sb-kids/

5. Children With Spina Bifida: A Resource Page For Parents & Professionals bifida Online Discussion Groups ~ ~ hydrocephalus Resources ~ Chiari Malformation ~ ~ spina bifida Education Issues Prenatal Diagnosis ~ genetics ~ Fetal Surgery ~ http://www.waisman.wisc.edu/~rowley/sb-kids

Spina Bifida Organizations Spina Bifida Online Discussion Groups Hydrocephalus Resources Chiari Malformation ... Prenatal Diagnosis ~ Genetics ~ Fetal Surgery Folic Acid Information Hot Lines Yellow Ribbon for Spina Bifida Awareness ... The Spina Bifida Survey! The Children with Spina Bifida Web Site has been visited 273,265 times since March 6, 1996. This page is a compilation of information and resources intended to be a service to parents of children who have spina bifida. Inclusion of any resource or web site does not imply endorsement. Any medical or health care reference is intended for informational purposes only. If you have any questions relating to your child's condition please consult your child's doctor. Last updated 2/11/2004 by Linda Rowley . E-mail: rowley@waisman.wisc.edu Document Source: http://www.waisman.wisc.edu/~rowley/sb-kids/

6. Spina Bifida Association Of Greater St. Louis spina bifida Association of Greater St. Louis, Inc pathology, genetics and dentistry. click here. The International Federation for hydrocephalus and spina bifida (ifHSB) is http://www.geocities.com/sbagstl2000

Spina Bifida Association of Greater St. Louis, Inc. 5609 Hampton Ave., St. Louis, MO 63109 Telephone (314) 353-7079 or 1-800-784-0983, FAX (314) 353-1446 http://www.geocities.com/SBAGSTL2000 Welcome to the Spina Bifida Association of Greater St. Louis (SBAGSL) website! Please take a moment to read the following information. The following information is provided solely for informational purposes. The information is not intended to be, nor is it, medical advice on the management or care of a person with spina bifida. Although every effort is made to assure that information is accurate and current, knowledge in the field of spina bifida is growing rapidly and all data is subject to change without notice. Neither SBAGSL nor any parties who supply information to this system make any warranty concerning the accuracy of any information found on or exchanged through this system. No endorsements of any products which appear on this web site are given or implied by SBAGSL. SBAGSL does not endorse any specific medical regime. You should not change your medical schedules or activities based on the information provided at this site. Always consult with a doctor/healthcare provider/medical professional before making any medical decisions. Please note: SBAGSL does not employ medical personnel in their office.

7. Spina Bifida Association Of America - Online Documents This is the home page of the spina bifida Association of America needed and social/emotional adjustment. genetics The exact cause of spina bifida is unknown Children who have spina bifida with hydrocephalusespecially girls-are more likely http://www.sbaa.org/html/sbaa_docs.html

SBAAWeb Resources Home Donate Online Parent's Tributes Facts About Spina Bifida ... Search SBAAWeb OnLine Documents *Please note* Viewing these .PDF documents requires the FREE Adobe Acrobat Reader . This one-time download will permit you to view, print, and save many documents on the internet. Audit (March 31, 2003) SBAA 2001-2002 Annual Report The 2001-2002 Annual Report may take a very long time to open. If you wish to download a zipped up version and continue to browse our site, CLICK HERE SBAA 2000 Annual Report Insights Insights is the SBAA bi-monthly publication distributed to the association's members spina bifida clinics SBAA Group Members , professional organizations, and others with an interest in spina bifida. Insights provides information on recent medical, educational, and psychological advances. Adolescence The passage from childhood to young adulthood can be a time of internal turmoil for any teen. It may be even more stressful for the teen with spina bifida. Agent Orange Benefits Act This law established a benefits package for Vietnam veterans' children who where born with spina bifida. Depression When depression begins interfering with your life, and it doesn't go away on its own, you probably need medical treatment. This article discusses how to distinguish the sadness or nervousness that's simply an occasional, inevitable part of the human condition from depression or anxiety that requires intervention and treatment.

8. Spina Bifida Parenting Special needs. Pediatric birth defects. spina bifida is a neuro tubal injury present at birth. It can range from mild to severe with side effects such as hydrocephaly. FAS/FAE. Financial Needs. genetics/Syndromes. Hearing Impairment. Juvenile Diabetes our unborn daughter was diagnosed with spina bifida/hydrocephalus." A mother's love is apparent in http://specialchildren.about.com/cs/spinabifida

zJs=10 zJs=11 zJs=12 zJs=13 zc(5,'jsc',zJs,9999999,'') About Parenting Special Needs Home Essentials ... Start a Support Group zau(256,152,145,'gob','http://z.about.com/5/ad/go.htm?gs='+gs,''); Autism Behaviors Advocacy Development ... Help zau(256,138,125,'el','http://z.about.com/0/ip/417/0.htm','');w(xb+xb); Stay Current Subscribe to the About Parenting Special Needs newsletter. Search Parenting Special Needs Spina Bifida Guide picks Spina bifida is a neuro tubal injury present at birth. It can range from mild to severe with side effects such as hydrocephalus. Spina Bifida Disability Awareness Month Spina Bifida is featured this week on Parenting Special Needs. Arizona Spina Bifida Association An outstanding association that has created an extensive site that offers in-depth support and information. A bilingual site from Arizona Spina Bifida Association. Association for Spina Bifida and Hydrocephalus "The Association for Spina Bifida and Hydrocephalus beneficial area is England, Wales and Northern Ireland." An excellent resource for our international families. "Cassidy's Story" "An incredible journey began when our unborn daughter was diagnosed with spina bifida/hydrocephalus." A mother's love is apparent in this touching site.

9. Entrez PubMed 7)6326. X-linked hydrocephalus masquerading as spina bifida and destructive Departmentof Clinical genetics, Western General Hospital, Edinburgh http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=8

10. Entrez PubMed Department of Pediatrics, Division of Medical genetics, University of Texas oftenseen in children with spina bifida include hydrocephalus and the http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=1

11. ASBAH - Association For Spina Bifida And Hydrocephalus - Genetic Counselling logo linking to the home page. Association for spina bifida and hydrocephalus. interms of obtaining factual information about genetics, particularly the http://www.asbah.org/Info Sheets/Genetic Counselling.html

Association for Spina Bifida and Hydrocephalus Genetic Counselling Introduction The term 'genetic counselling' means different things to different people. Some place emphasis on the counselling and supportive aspects and see it as an opportunity to talk over problems connected with having healthy children or passing on hereditary conditions. Others see it more in terms of obtaining factual information about genetics, particularly the risks involved and tests available. Perhaps the best approach is a combination of both these aspects, when not only is information exchanged but support and help can be offered in making what can often be difficult decisions. People who have had a pregnancy terminated or have had a baby with an abnormality should have the opportunity of genetic counselling. Questions such as 'why me?', 'is the problem genetic?', 'could it happen again?', and 'are there any tests available during a future pregnancy?' are all points which can be discussed with a genetic counsellor. The aim of genetic counselling The aim of genetic counselling is not to make decisions for people but to enable them to have the necessary understanding of the situation so that they can decide for themselves.

12. Spina Bifida And Hydrocephalus 2. Continence in spina bifida. Click Here To Find Out More. 3. hydrocephalus.Click Here To Find Out More. 4. Neural tube defects genetics and prevention. http://www.mydr.com.au/default.asp?article=3571

13. NEURAL TUBE DEFECTS: GENETICS AND PREVENTION QUEENSLAND CLINICAL genetics SERVICE Royal Children’s Hospital, Herston myDr ArticlesAZ of myDr articles about spina bifida and hydrocephalus. myDr Health http://www.mydr.com.au/default.asp?article=3184

14. Spina Bifida uncertainty about how genetics and environmental factors work together in causing spina bifida deficits in children with spina bifida and hydrocephalus. The project's principal http://www.shrinershq.org/patientedu/spinabifida.html

Home Shrine Shriners Hospitals Hospital Directory ... Next Spina Bifida: General Information This information was provided by the Houston Shriners Hospital 6977 Main St. Houston, TX 77030-3701 Telephone 713-797-1616 Fax 713-797-1029 By Cathy Moniaci, R.N., M.S. Director of Patient Care Contents Introduction Terminology New day, new hope for children with spina bifida Common problems in spina bifida ... A chance for a better life Introduction Each year in this country, 4,000 children, or an average of 11 children a day, are born with neural tube defects (NTDs) that occur when the spinal column fails to develop and close properly during the first month of pregnancy. The neural tube in a developing fetus later becomes the spinal cord, the backbone that protects the spinal cord, and all the nerves in the body, and any defect in the neural tube can lead to serious health consequences. Spina bifida accounts for half of all neural tube defects, and occurs when part of the spinal cord protrudes through the backbone and fails to develop normally. Thanks to improved medical and surgical care, most children born with spina bifida survive, although they may experience varying degrees of paralysis, loss of sensation in the lower limbs, difficulties with bowel and bladder management, hydrocephalus, learning disabilities, and latex allergies. Anencephaly, which accounts for the remaining 50 percent of neural tube defects, results from the failure of the neural tube to close properly at the upper end, causing a fatal condition in which most of the brain is absent. Infants born with anencephaly usually die at birth or within the first days after birth.

15. UAB Health System | Spina Bifida the American College of Medical genetics (ACMG) and have other problems related tospina bifida that include hydrocephalus (increased fluid and pressure in the http://www.health.uab.edu/show.asp?durki=67126

16. Reproductive Genetics-Neural Tube Defects Almost all children with spina bifida will develop extra spinal fluid in the brain.This process is labeled as hydrocephalus. spina bifida hydrocephalus. http://medlib.med.utah.edu/reprogen/family/neural.html

NEURAL TUBE DEFECTS TYPES Spina Bifida Hydrocephalus SPINA BIFIDA The brain and the spinal tube develop very early in pregnancy from the neural tube. Spina Bifida comes from development of the neural tube. Spina Bifida is a fault in the spinal cord that causes an opening in the backbone. Almost all children with spina bifida will develop extra spinal fluid in the brain. This process is labeled as hydrocephalus. HYDROCEPHALUS Hydrocephalus occurs when a watery fluid, or cerebro-spinal fluid, is not absorbed into the bloodstream but produced inside the ventricles of the brain. If the fluid accumulates within the brain and the ventricles begin to swell, the head will eventually enlarge, resulting in compression of surrounding tissue. SIGNS AND SYMPTOMS Spina Bifida Failure of neural tube to develop properly. This can be either genetic, environmental, or both. Hydrocephalus Inability of cerebro-spinal fluid to drain into the bloodstream TREATMENTS Recent research has shown that with a regular intake of vitamins and a healthy diet, the risk of developing neural tube defects has decreased. Women who are pregnant are encouraged to eat vegetables and other foods that contain folic acid. This folic acid, or vitamin B9, reduces the risk of recurrence in a second pregnancy. If you feel you are not getting enough of this vitamin in your diet, a daily folic acid supplement may also be taken. Always check with your physician first.

17. EMedical - Health Information genetics, Handwriting, hydrocephalus, Latex Allergy, Learning disabilities, Mobility,Prevention, Skin sensation, Social Skills, spina bifida , spina bifida http://www.emedical.com.au/default.asp?pageID=5&TopicID=112

18. Spina Bifida And Hydrocephalus Association Of Canada -= Research History =- Molecular genetics Basis for and Burden of Mothers of Children with spina bifida. ofDeveloping Neural Plate · Glucose Utilization in Neonatal hydrocephalus. http://www.sbhac.ca/index.php?page=researchHistory

19. Chapter 24: Links | Course Companion For Children With Disabilities, Fifth Editi SANDI) Project, with information on spina bifida, hydrocephalus, Chiari malformation,genetics, life with spina bifida, coping, and other resources. http://textbooks.brookespublishing.com/batshaw/chapters/24/links.htm

1: Chromosomes and Heredity 2: Birth Defects 3: Growth Before Birth 4: Having a Baby 5: The First Weeks of Life 6: Premature and Small-for-Dates Infants 7: Substance Abuse 8: HIV Infection in Children 9: Nutrition 10: Vision 11: Hearing 12: Communication 13: The Brain and Nervous System 14: Muscles, Bones, and Nerves 15: Mental Retardation 16: Down Syndrome 17: Fragile X Syndrome 18: PKU 19: Dual Diagnosis 20: Pervasive Developmental Disorders 21: Attention Deficits and Hyperactivity 22: Specific Learning Disabilities 23: Cerebral Palsy 24: Neural Tube Defects 25: Epilepsy 26: Traumatic Brain Injury 27: Feeding 28: Dental Care 29: Early Intervention 30: Special Education Services 31: Promoting Adaptive Behavior 32: Technological Assistance 33: Rehabilitation 34: Exercise, Sports, and Recreation 35: Ethical Dilemmas 36: Providing Family-Centered Services 37: Future Expectations 38: Health Care and Finance 24: Cerebral Palsy Links Position statement from the American Academy of Pediatrics on folic acid for the prevention of neural tube defects (NTDs). A prevention model and resource guide with information about NTDs, folic acid, community involvement, program development, examples of program development, a glossary, and more. Spina bifida fact sheet from National Information Center for Children and Youth with Disabilities (NICHCY).

20. Irish Association For Spina Bifida & Hydrocephalus Irish Association for spina bifida hydrocephalus. affected pregnancy or those whohave spina bifida themselves National Centre for Medical genetics is based http://www.iasbah.ie/spinab/prncauses.htm

Causes and Incidence of Spina Bifida Causes and Incidence of Spina Bifida Spina Bifida is one of a group of birth defects called neural tube defects (NTDs). NTDs are major congenital malformations of the central nervous system. Spina Bifida accounts for half of all NTD's. NTDs are relatively common conditions, affecting about one in every 1000 births in Ireland. Causes NTDs are caused by a combination of genetic and non-genetic or environmental factors. Environmental Low levels of folate or folic acid have been identified as an environmental factor. It has been discovered that when taken before and during early pregnancy folic acid prevents about 50-70% of NTDs in babies. Genetic Research carried out in Ireland with the help of members of IASBAH has recently identified the first genetic risk factor for Spina Bifida. A common variant in the gene which determines the folate-related enzyme, methylenetetrahydrofolate reductase, is more common in Irish people with Spina Bifida than in the general population. This important research breakthrough gives added impetus to the search for other genetically determined risk factors for NTDs. Recommendations for Prevention of NTDs To help prevent occurrence of NTDs Women of childbearing age should take a daily supplement (tablet) containing 400 micrograms of folic acid , from at least four weeks before conception until the end of the 12th week of pregnancy.

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