21. Juvenile Rheumatic Disease Group Website Online support for parents of children with a JRD, including juvenile rheumatoid arthritis, juvenile scleroderma, juvenile dermatomyositis, juvenile systemic lupus, and other rheumatic disorders. Includes resources. http://www.geocities.com/beegal68/JRD-Website.html

Welcome to the Juvenile Rheumatic Disease (JRD) Website ~Click the picture above to enter~ Graphic's provided by www.graphicgarden.com You are visitor number since October 2001 A Free Online Support Group Script's provided by Dynamic Drive This page was created with the help of the Meta Tag Analyzer Please, help save a child's life and read the above "Amber Alert". If you would like an Amber Alert ticker for your website, please, click the ticker! © 2004 JRD

22. The Scleroderma Society Offers support and information. Includes an introduction, news and a message board. http://www.sclerodermasociety.co.uk

The Scleroderma Society The Scleroderma Society

23. Surviving Scleroderma - The Scleroderma And Autoimmune Digest Email Support Grou scleroderma Support. The scleroderma and Autoimmune Digest Email Support Group. Chris Whiting, is our Honorary Care bear for the scleroderma Autoimmune Digest. http://www.sclerodermasupport.com/support/digest/

Site Search SD Facts Educate yourself on scleroderma About SD Types of SD Cause of SD SD Diagnosis ... SD FAQ SD Info Related Helpful Resources SD Symptoms SD Involvement SD Treatment SD Studies ... Men get it too! Emotional Info: Anger Anxiety Depression Fatigue ... Sadness Coping Issues Coping Daily Handicap Parking Sexual Issues Sleep Difficulties Communication: Our Doctors Our Families Finding... Our Inner self Our Strengths Activities: Gift making ideas Journal Writing Our Store Books, Gift ideas and more About Us: Site C opyright Site Affiliation Finance Issues ... Privacy Issues Additional Info: Acknowledgement Be a Volunteer Contact Info by Sherry Messick Read Site Go To Top Return Home Scleroderma Support The Scleroderma and Autoimmune Digest Email Support Group Click Here To Subscribe We are all very different individuals that have become connected through cyber space. We have become like family, a strong family of support for one another. The purpose of this list is for people with Scleroderma, Lupus, Fibromyalgia and associated disorders to feel safe among others who truly understand... to obtain information and support, as well as cope with emotions without fear of judgment. Please come and join our family! You will find a supportive and inspirational haven within to share comments or ask questions. We all understand and are here for you.

24. Scleroderma Foundation Chicago, Illinois Chapter - Home Page Supports patients and families of this chronic, autoimmune disease of the connective tissue. Includes overview of programs and events, donations, links, and contacts. http://www.scleroderma.org/chapter/illinois/

SF Home Page Sign Up for SF's Free Email Newsletter! Get Connected! Post Items to the SF Message Board. What is scleroderma? Welcome to the Scleroderma Foundation, Greater Chicago Chapter , based in Chicago, Illinois. We are here to serve you, so please feel free to contact us. News Tidbits November 13, More Calling All Artists! We are once again looking for artists to submit works for consideration to be featured at the 2004 National Gala being held in Chicago this November. More “Strike out Scleroderma” Bowl-A-Thon a Success! More "Stepping Out to Cure Scleroderma" Walk, June 20, 2004. More Support Groups Central Illinois Support Group Kankakee, Illinois Northern Indiana Support Group Goshen, Indiana Iowa Support Group Oskaloosa, Iowa

25. Girls With Scleroderma Look To Each Other CNN http://cnn.com/2002/HEALTH/conditions/07/22/life.with.scleroderma.ap/index.html

26. MedlinePlus Medical Encyclopedia: Systemic Sclerosis (scleroderma) Systemic sclerosis (scleroderma). Alternative names Return to top. CREST syndrome; Progressive systemic sclerosis; scleroderma Definition Return to top. http://www.nlm.nih.gov/medlineplus/ency/article/000429.htm

@import url(http://www.nlm.nih.gov/medlineplus/images/advanced.css); Skip navigation Medical Encyclopedia Other encyclopedia topics: A-Ag Ah-Ap Aq-Az B-Bk ... Z Systemic sclerosis (scleroderma) Contents of this page: Illustrations Alternative names Definition Causes, incidence, and risk factors ... Prevention Illustrations Raynaud's phenomenon CREST syndrome Sclerodactyly Telangiectasia Alternative names Return to top CREST syndrome; Progressive systemic sclerosis; Scleroderma Definition Return to top Scleroderma is a diffuse connective tissue disease characterized by changes in the skin, blood vessels, skeletal muscles, and internal organs. Causes, incidence, and risk factors Return to top The cause of scleroderma is unknown. The disease may produce local or systemic symptoms. The course and severity of the disease varies widely in those affected. Excess collagen deposits in the skin and other organs produce the symptoms. Damage to small blood vessels within the skin and affected organs also occurs. In the skin, ulceration, calcification, and changes in pigmentation may occur. Systemic features may include fibrosis and degeneration of the heart, lungs, kidneys and gastrointestinal tract.

27. Brooklyn NY Scleroderma Page Profile, mission statement, medical background, contact information. http://members.aol.com/BklynScler/

The Brooklyn Area Scleroderma Support Group Scleroderma Foundation Mission Statement It's hard enough to face the debilitating physical and emotional effects of Scleroderma, but facing them alone can be devastating. The mission of the Scleroderma Foundation is to provide educational and emotional support for Scleroderma patients and their families. SF is committed to increasing awareness of this devastating disease and raising essential research dollars to determine its cause, enhance treatment and find a cure. What is Scleroderma? Scleroderma is a disease of the vascular and immune systems, as well as a severe connective tissue disorder. This disease can effect the skin, joints, blood vessels as well as other parts of the body. Scleroderma is a chronic disease. It can last for months, years or a lifetime. as of yet, there is no cure, but it can be treated. With early detection and proper management, many people with scleroderma can lead full, productive lives. This disease is not contagious, and it is rare for direct family members to also contract the disease. Scleroderma is a highly individualized disease that affects people in different ways. The following descriptions are intended to help you gain some knowledge about this disease.

28. Mixed Connective Tissue Disorder An autoimmune process with symptoms of scleroderma, Systemic Lupus Erythematosus , Rheumatoid Arthritis and/or other autoimmune diseases. This page describes symptoms and treatments and has lists of useful links. http://hometown.aol.com/lindartc/index.htm

Main htmlAdWH('7002568', '234', '60'); NEW! Click here to join a group for spouses of people with Autoimmune Disease (Spousal Autoimmune Support Group). What is Mixed Connective Tissue Disorder? How do you know if you have Mixed Connective Tissue Disorder? What causes Mixed Connective Tissue Disorder? ... VIVIENDO CON EMTC What is Mixed Connective Tissue Disorder? Mixed Connective Tissue Disorder is an autoimmune process with symptoms of Scleroderma, Myositis, Systemic Lupus Erythematosus , Rheumatoid Arthritis and/or other autoimmune diseases. It is a description of a group of symptoms occurring together. This is different from a diagnosis that describes the underlying process. It is a disorder of the immune system, which normally functions to protect the body against invading infections and cancers, and toxins. In Mixed Connective Tissue Disorder, as in other autoimmune diseases parts of the complex immune system is over-active and produces increased amounts of abnormal antibodies that attack the patient's own organs. Sometimes MCTD is called Overlap Syndrome or Undifferentiated Mix Connective Tissue Disorder. Some writers discriminate between them claiming that each of these are different. Some argue MCTD is not a distinct entity at all, and is just one of the forms of Lupus or Scleroderma.

29. Scleroderma scleroderma. The word scleroderma comes from two Greek words sclero meaning hard and derma meaning skin. scleroderma Types of scleroderma. Diffuse http://www.raynauds.demon.co.uk/scleroderma.html

Scleroderma The word Scleroderma comes from two Greek words sclero meaning hard and derma meaning skin. Scleroderma is a disease of the immune system, the blood vessels, and connective tissue. In this condition the skin, usually on the hands and feet, becomes stiff, tight, and shiny. This is because of swelling and then thickening of the connective tissue which becomes fibrotic or scarred. Internal organs can also be affected in a similar way. Types of Scleroderma Diffuse Cutaneous Systemic Sclerosis (dcSSc) Sclerodactyly - this photograph shows the hands of a typical scleroderma patient, where the skin of the digits has become thin, shiny and leathery looking. The fingers and toes may become flexed and stiff and thickened skin can reduce flexibility of the joints. Shortly after the onset of Raynaud's, the patient presents with skin changes (puffy or hidebound), has truncal skin involvement and "creaking" tendons at joints, e.g. wrists and elbows. Early lung disease, kidney, gastro-intestinal and heart involvement becomes evident in some patients. There are changes in the nailfold capillary and certain antibodies may be present in the blood. A specific marker of scleroderma, usually the diffuse form, is Scl-70 which is present in 30% of patients. Anyone with diffuse SSC needs to be checked frequently (at least every 6-12 months) in the first 5 years.

30. Fibro@BBF Information on research into the causes and treatment of fibrosis and scleroderma. http://fibro.biobitfield.com/

F i b ro@ B io B it F ield fibroblast biology, role in fibrosis, wound healing, reparation, cytokine regulation, interaction with inflammatory and immune cells, researchers Bioinformatics in fibroblast research FCP: Fibroblast-related Cytokines on PubMed - a bioibformatic tool to aid MedLine searches CLF: Cells of Lung Fibrosis - another bioibformatic tool to aid MedLine searches SLD: Scleroderma Lung Disease - cytokines and cells of lung fibrosis in scleroderma ALF: Assorted Links on Fibroblast Biology - various searches and links on fibroblasts Selected researchers in fibroblast biology - search for articles published by these researchers Notice: NCBI changes the rules for accessing the Entrez Databases and search field tags without warning. We are working hard to ensure that all links in the scripts above function properly. If you encounter a problem accessing a link, please report to the webmaster Organizations supporting research in tissue fibrosis Pulmonary Fibrosis Foundation Scleroderma Foundation Scleroderma Research Foundation Arthritis Foundation Companies developing treatments for tissue fibrosis BIOGEN FibroGen Scios Meetings 13th International Colloquium on Lung Fibrosis The 8th International Workshop on Scleroderma Research American College of Rheumatology holds meeting related to fibrosis Links to useful websites ACR Medicine List ATS American Autoimmune Suggest a researcher, foundation, company, or link to the

31. Scleroderma - Arthritis: Health And Medical Information About Arthritis And Othe What is scleroderma? scleroderma is an autoimmune disease of the connective tissue. scleroderma is also referred to as systemic sclerosis. http://www.medicinenet.com/Scleroderma/article.htm

MedicineNet Home Arthritis Home > Scleroderma Advanced Search Printer-Friendly Format Add to Favorites Email to a Friend ... Next page Scleroderma What is scleroderma? How is scleroderma classified? How is scleroderma diagnosed? How is scleroderma treated? ... Scleroderma At A Glance What is scleroderma? Scleroderma is an autoimmune disease of the connective tissue. Autoimmune diseases are illnesses which occur when the body's tissues are attacked by its own immune system. Scleroderma is characterized by the formation of scar tissue (fibrosis) in the skin and organs of the body. This leads to thickness and firmness of involved areas. Scleroderma is also referred to as systemic sclerosis. The cause of scleroderma is not known. Researchers have found some evidence that genes are important factors, but the environment seems to also play a role. This means that inheritance at least play a partial role. It is not unusual to find other autoimmune diseases in families of scleroderma patients. Some evidence for the role genes may play in leading to the development of scleroderma comes from the study of Choctaw Native Americans who are the group with the highest reported prevalence of the disease. The disease is more frequent in females than in males. How is scleroderma classified?

32. Home Specializing in family history videos, weddings, celebrations and legal videography. Packages and prices listed. Series on scleroderma available. http://www.starlight-productions.com

[ Home ] Contact Us email us No javascript support Wedding Video Scleroderma Dedicated to Preserving Life's Special Moments • Weddings • Bar / Bat Mitzvahs • Graduations • Family History Videos • Seminars and Conferences with distribution • Depositions Where to Start: Tell us about your event Graduation Videos Still Available Minisink Valley 2001, 2002, 2003 Warwick Valley 2002, 2003 call us for details starl@optonline.net Your event is something to cherish as it becomes a memory. Our task is to preserve your event into a living portrait that will stand the test of time. Whether you're walking down the aisle at your wedding or celebrating a 50th Anniversary we will work with you to provide a program to suit your specific needs and tastes.

33. Scleroderma Elbow Tip Pains - Arthritis: Health And Medical Information About Ar MedicineNet Home Doctor s Views AZ List Arthritis Home scleroderma Elbow Tip Pains. Advanced Search. scleroderma Elbow Tip Pains. http://www.medicinenet.com/script/main/art.asp?articlekey=13043

34. Scleroderma Video A collection of 11 video presentations made by some of the foremost scleroderma experts in the US. http://www.starlight-productions.com/scleroderma_video_series.htm

Home V i deo Titles ... About Scleroderma Scleroderma Video Series 11 Video Volumes available VHS Video Cassettes: $19.95 each The Scleroderma Video Series is a collection of presentations made by some of the foremost Scleroderma experts in the United States, including Rheumatologists, Cardiologists, Surgeons, Dieticians, Occupational Therapists, Dermatologists, Psychologists, Researchers and more. Topics have included: Overview and causes of Scleroderma Scleroderma Therapies Raynauds Phenomenon Genetics ... Drug Interactions much more Among the speakers that appear within the Scleroderma Video series are eminent experts in the field, including: Philip Clements, MD Daniel Furst, MD Sergio Jimenez, MD Maureen Mayes, MD James Seibold, MD Fredrick Wigley, MD For a complete listing of available titles, please click here Since 1994, Starlight Productions has produced over 30 videos directly related to Scleroderma. As we continue to videotape new presentations, we revise our offerings so that topic duplication is avoided, and outdated presentations are removed. Scleroderma Information - More than our business Our involvement with Scleroderma began as a commercial shoot in 1994. A previous client who had employed us for another type of service happened to be a Scleroderma patient, and a Chapter President within the former United Scleroderma Foundation. She requested our services for their annual chapter medical workshop, and, liking the results, recommended us the National Foundation for the 1995 USF National Conference.

35. SCLERODERMA FAQ The scleroderma FAQ is a comprehensive document about scleroderma and CREST targeted at patients,family members, and physicians. http://www.synnovation.com/sclerodermafaq.html

SCLERODERMA F.A.Q. Revised April 22, 1998 (Minor Revision: July 25, 2002 Please address all comments and suggestions to: Ed Harris eharris@synnovation.com General Description Scleroderma (means "hard skin") is a rare connective tissue disorder characterized by abnormal thickening of the skin. It is generally considered to be an autoimmune disorder. There are two major variants of the disease, as well as other less common forms. The more serious form is usually called "diffuse Scleroderma " and is characterized by rapid development of skin thickening beginning with the hands, and face and extending to the arms and trunk. People with diffuse Scleroderma are at greater risk for developing internal organ involvement early in the course of the disease. The other major form is often called limited Scleroderma or CREST Syndrome. The name CREST is an acronym for its characteristic symptoms: calcinosis Raynaud's phenomenon, esophageal involvement, sclerodactyly , and telangiectasia (these terms are discussed below). This form progresses more slowly and has a better prognosis.

36. HJD | Department Of Rheumatology The Department of Rheumatology at the Hospital for Joint Diseases is dedicated to the diagnosis and treatment of all patients with diseases of the joints such as Arthritis; bone diseases such as Osteoporosis; soft tissue diseases such as Tendonitis; and autoimmune diseases such Lupus and scleroderma. http://hjd-www.med.nyu.edu/Rheumatology/

The Department of Rheumatology at the Hospital for Joint Diseases is dedicated to the diagnosis and treatment of all patients with diseases of the joints such as Arthritis ; bone diseases such as Osteoporosis ; soft tissue diseases such as Tendonitis ; and autoimmune diseases such Lupus and Scleroderma This is accomplished through a balance of education, research, and clinical care of patients with various rheumatic disorders.

37. Sclero Information for families and physicians caring for children with the various forms of scleroderma in childhood. scleroderma and related conditions. http://www.goldscout.com/sclero.html

id=13897 Scleroderma and related conditions This page is provided by Thomas J. A. Lehman MD Delivering the best care - with great care Dr. Lehman is the author of many textbook chapters and articles on the care of children and young adults with scleroderma. He practices in New York City Click here for more information about Dr. Lehman or the Hospital for Special Surgery. This information is provided as a public service. No warranty is expressed or implied. If you want a more detailed discussion of scleroderma in childhood click here for information regarding a book I have written Being told that your child has scleroderma is a very scary experience The first thing you need to know is what type of scleroderma. Sometimes doctors use the word scleroderma when they are referring to localized lesions of morphea (see below). This isn’t pretty to look at, but it is rarely serious. Other times a child has linear scleroderma with an area of tight skin on an arm or leg. Again, this isn’t pretty, but it isn’t life threatening. Other children have progressive systemic sclerosis or CREST syndrome.

38. Website Disabled Basic information about this disease, stories from site visitors, pictures, voting booth and treatments. http://homestead.com/Scleroderma/Scleroderma.html

Sorry, the site you requested has been disabled For more information about Homestead services, use the links below. Homestead is your complete website building service. learn about Homestead websites how it works Homestead learning center customer websites PhotoSite is the easiest, fastest and most creative way to share digital photos. learn about PhotoSite

39. EMedicine - Scleroderma : Article By Andrew S Koenig, DO scleroderma scleroderma is derived from the Greek words skleros (hard or indurated) and derma (skin). scleroderma. Last Updated January 9, 2002, http://www.emedicine.com/med/topic2076.htm

(advertisement) Home Specialties CME PDA ... Patient Education Articles Images CME Patient Education Advanced Search Link to this site Back to: eMedicine Specialties Medicine, Ob/Gyn, Psychiatry, and Surgery Rheumatology Scleroderma Last Updated: January 9, 2002 Rate this Article Email to a Colleague Synonyms and related keywords: systemic sclerosis AUTHOR INFORMATION Section 1 of 11 Author Information Introduction Clinical Differentials ... Bibliography Author: Andrew S Koenig, DO , Rheumatology Attending, Department of Internal Medicine, Division of Rheumatology, Rancoccas Hospital Coauthor(s): Sergio Jimenez, MD , Vice-Chairman for Research, Director, Dorrance H Hamilton Professor Endowed Chair, Department of Medicine, Division of Rheumatology, University Hospital, Thomas Jefferson University Andrew S Koenig, DO, is a member of the following medical societies: American College of Physicians-American Society of Internal Medicine American College of Rheumatology , and American Osteopathic Association Editor(s): John Varga, MD

40. EMedicine - Scleroderma, Thoracic : Article By Tracy Elliot, MD scleroderma, Thoracic Systemic sclerosis is a multisystem disease of connective tissue that is accompanied by vasculopathy. scleroderma, Thoracic. http://www.emedicine.com/radio/topic780.htm

(advertisement) Home Specialties CME PDA ... Patient Education Articles Images CME Patient Education Advanced Search Link to this site Back to: eMedicine Specialties Radiology Chest Scleroderma, Thoracic Last Updated: June 21, 2002 Rate this Article Email to a Colleague Synonyms and related keywords: progressive systemic sclerosis, PSS, scleroderma, SSc AUTHOR INFORMATION Section 1 of 8 Author Information Introduction Differentials X-ray ... Bibliography Author: Tracy Elliot, MD , Associate With Medical Imaging Consultants, Department of Radiology, University of Alberta Health Sciences Center Tracy Elliot, MD, is a member of the following medical societies: Alberta Medical Association , and American Roentgen Ray Society Editor(s): Judith K Amorosa, MD, FACR , Clinical Professor and Program Director, Department of Radiology, University of Medicine and Dentistry of New Jersey, Robert Wood Johnson Medical School; Consulting Staff, Department of Radiology, Robert Wood Johnson University Hospital; Bernard D Coombs, MBChB, PhD

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