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1. Sarcoidoisis, A Medical Mystery
Sarcoidosis, A Medical Mystery by Becky Mitchell.
http://noairtogo.tripod.com/sarcoid.htm
Sarcoidosis, A Medical Mystery
by Becky Mitchell
(click for full pic)
What It Is Who Gets It ... Links What It Is, What It Isn't Sarcoidosis is a relatively rare autoimmune disease that can affect the skin, lungs, heart, brain and nervous system, eyes, and other organs. Although the disease was first recognized about 100 years ago, little is known about what causes it and there is no cure. As an autoimmune disease, sarcoidosis is similar to diseases like rheumatoid arthritis and lupus in how it behaves and how it is treated. Depending on the severity, treatment may be needed to control what sarcoidosis does. Sarcoidosis can go dormant on its own or with treatment, and its symptoms often do not recur after the initial onset. In a small percentage of cases, sarcoidosis is chronic, requiring on-going treatment, with possible occurrence in other organ systems. Chronic sarcoidosis is apparently cyclic in its activity level, with flares of symptoms and more dormant periods lasting weeks or months. No markers have been identified as indicating how sarcoidosis is going to behave in any individual or how an individual with sarcoidosis is going to respond to treatment, although a physician experienced with sarcoidosis may be able to make a "good guess" based on his or her experience. Whether he or she is willing to voice that guess is another story entirely! Despite a century of research, little is known about sarcoidosis. Research has discovered what it is not. Among other things, it is not a cancer or tuberculosis or AIDS-related. It is not caused by pine pollen or other identifiable agents like pollution, airborne or otherwise. It is not progressive or contagious. You did not get it from someone else and you cannot give it to another person. As far as we know, nothing you did specifically caused your sarcoidosis.

2. NHLBI-Related Public Interest Organizations
The Sarcoidosis Awareness Network, Sarcoidosis Online Sites. Sarcoidosis Support Group of Greater Washington, sarcoidoisis Research Institute. Top of Page.
http://www.nhlbi.nih.gov/public/grouplist.htm

NHLBI Home
Information for Patients and the Public Express Home Public Involvement
NHLBI-Related Public Interest Organizations This NHLBI site provides links to non-NHLBI Internet sites only for the convenience of World Wide Web users. The NHLBI is not responsible for the availability or content of these external sites, nor does the NHLBI endorse, warrant or guarantee the products, services or information described or offered at these other Internet sites. Focus of Organization: Cardiovascular Diseases Lung Diseases Blood Diseases and Resources Sleep Disorders ... Other Public Interest Organizations Organizations Focusing on Cardiovascular Diseases Adult Congenital Heart Association American Heart Association Cardiac Arrhythmias Research and Education Foundation, Inc. (CARE Foundation) Children's Cardiomyopathy Foundation The Children's Heart Foundation Congenital Heart Anomalies Support, Education, and Resources, Inc. The HELLP Syndrome Society ...
[Top of Page]
Organizations Focusing on Lung Diseases Allergy and Asthma Network - Mothers of Asthmatics, Inc.

3. Pacific Health, Breathing Problems, Memory Loss, High Cholesterol, Flu Symptoms
BPH (Benign Prostatic Hypertrophy) Rheumatoid Arthritis. sarcoidoisis. Sinusitis. Information and Conditions
http://www.pacifichealth.com/
ORDER ONLINE OR CALL
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4. Sarcoidosis Symptoms And Treatment Information
sarcoidoisis Symptoms. Home. I Need Immediate Information Sarcoidosis Management and Treatment . sarcoidoisis Symptoms. Features Free Newsletter Signup
http://www.sarcoidosisinformation.com/sarcoidosissymptoms.html
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Sarcoidoisis Symptoms
Home I Need Immediate Information Ask a Doctor Learn More
What is Sarcoidosis ?

Sarcoidosis Information

Sarcoidosis Management and Treatment

Sarcoidoisis Symptoms

Features:
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  • Site FAQ Related Links American Lung Association - Sarcoidosis Page Sarcoidosis Images Sarcoidosis Worldwide Support Group Sarcoidosis Worldwide Support Group Typical sarcoidosis symptoms include shortness of breath and coughing that won''t go away. But sarcoidosis symptoms can also show up suddenly with the appearance of skin rashes. Red bumps on the face, arms, or shins, and inflammation of the eyes are also common sarcoidosis symptoms. It is not unusual, however, for sarcoidosis symptoms to be more general. Weight loss, fatigue, night sweats, fever, or just an overall feeling of ill health can also be clues to the disease. I Need Immediate Info.
  • 5. Therapy For Sarcoidosis Of Lungs And Thoracic Lymphatic Nodes
    I am 38 years old and was diagnosed with sarcoidoisis in Dec, 1999. Anyway, I went for my operation and thank god it wasn t cancer but sarcoidoisis.
    http://infoventures.com/emf/currlit/bu11820n.html
    [ EMF-Link Home
    Hot Topics. Use of Electromagnetic Fields in Patient Treatment.
    Therapy for Sarcoidosis of Lungs and Thoracic Lymphatic Nodes.
    Reader Comments from July to September 1999
    Last modified on: Tuesday, February 11, 2003 17:29:30
    READER COMMENTS Back to Original Summary and Current Reader Comments Jan - Mar, 2002 Apr - Jun, 2002 Jul - Sep, 2002 ... Nov - Dec, 1997 September 24, 1999 - Tracy Sarcarddosis has affected my lungs. Can excersise help my lungs? September 22, 1999 - Deborra September 16, 1999 - Martha I'm a 40 yr old Hispanic female. I was diagnosed with Sarcoids in January, 1999. After extensive tests I was told I had the disease only in my lungs. The fact that I have this disease amazed my Doctors because according to studies this disease only affects Afro-Americans and Caucasion of European backgrounds especially Scandanavian. I would like to know more information on this disease; I have only been told it is rare. My physician just said that it is a type of lung infection that could go into remission just as it occured. From reading the comments that doesn't seem to be true. September 08, 1999 - Alka

    6. Therapy For Sarcoidosis Of Lungs And Thoracic Lymphatic Nodes; Reader Comments J
    Thank you so very much. Warmly, Judy. January 15, 1998 Gregory My 36 year-old sister was recently diagnosed with sarcoidoisis.
    http://infoventures.com/emf/currlit/bu11820h.html
    [ EMF-Link Home
    Hot Topics. Use of Electromagnetic Fields in Therapy for Sarcoidosis.
    Last modified on: Tuesday, February 11, 2003 17:31:30
    READER COMMENTS Back to Original Summary and Current Reader Comments Jan - Mar, 2002 Apr - Jun, 2002 Jul - Sep, 2002 ... Nov - Dec, 1997 February 24, 1998 - Christopher I have pulmonary sarcoidosis. The more I find out about this disease the more I become scared and anxious. My doctor wants me to start on steroids (prednisone) but I am scared of possible side affects. My questions are; are there support groups in the Buffalo NY area, what are the real side effects of prednisone, where can I get more information? Thank You. February 24, 1998 - Sherri I mainly have a question: My sarcoidosis is seemingly chronic, as I have been plagued now for at least 6 years with continual problems and symptoms without a break; although it does seem to move from organ to organ. Because I have hepatitis C, as well as Sarcoidosis, I can not do the therapies for either one as one therapy can exacerbate the other disease. So if anyone knows of a therapy to do for Sarcoidosis, that will NOT decrease my immune system, it would help me to know. Also - I have been diagnosed now, by a liver biopsy, with it in my liver along with the hepatitis C. I just had a tongue biopsy - as my tongue has had a lesion growing on it, that my dentist suspects sarcoid. I've never heard of that; has anyone else? February 24, 1998 - Ruth

    7. Facts About Folate
    as rheumatoid arthritis, lupus, psoriasis, asthma, sarcoidoisis, primary biliary cirrhosis, and inflammatory bowel
    http://www.cc.nih.gov/ccc/supplements/folate.html
    Folate Folate: What is it? What foods provide folate? What is the Recommended Dietary Allowance for folate for adults? When can folate deficiency occur? ... Printable PDF version Folate: What is it?
    What foods provide folate?
    What is the Recommended Dietary Allowance for folate for adults?
    The Recommended Dietary Allowance (RDA) is the average daily dietary intake level that is sufficient to meet the nutrient requirements of nearly all (97 to 98 percent) healthy individuals in each life-stage and gender group (10). The 1998 RDAs for folate are expressed in a term called the Dietary Folate Equivalent. The Dietary Folate Equivalent (DFE) was developed to help account for the differences in absorption of naturally occurring dietary folate and the more bioavailable synthetic folic acid (11). The 1998 RDAs for folate expressed in micrograms (mcg) of DFE for adults are (10): Life Stage Men Women Pregnancy Lactation Ages 19+ 400 mcg 400 mcg All ages 600 mcg 500 mcg I mcg of food folate = 0.6 mcg folic acid from supplements and fortified foods

    8. October 2003
    2003 Time 0527 AM. Comments. Hi there, My husband was diagnosed with sarcoidoisis about a year and a half ago. Turns out by the
    http://www.sarcoidosisonlinesites.com/archives/messages/october 2003.htm
    You are here
    A Lifeline of Hope, Health and Research Contact webmaster@sarcoidosisonlinesites.com Back to Message Forum Main Menu Archived Sarcoid Message Forum Entries for
    OCTOBER 2003
    ~Think positive!
    ~Take control of your healthcare!~
    ~Keep searching for answers!
    For more information about sarcoidosis visit

    Sarcoidosis Online Sites (S.O.S.)
    A Lifeline of Hope, Health and Research Sarcoidosis Internet Resources
    Sarcoidosis website links and reviews Sarcoidosis Community News
    An electronic - online newsletter
    about all things "Sarcoidosis" Doctor Database A Worldwide Database of Sarcoidosis Physicians The Sarcoidosis Classified Exchange Seek employment. Buy and sell goods or services with other "Sarcoidians" Support Group Database A Worldwide Database of Sarcoidosis Support Groups Sarcoidosis Golden Lifesaver Award Award winning websites promoting sarcoidosis awareness on the Internet Name: Dorothy From: WV quietone@pennswoods.net

    9. FDA's GRAS List,Generally Recognized As Safe
    Benign Prostatic Hypertrophy) Rheumatoid Arthritis. sarcoidoisis. Sinusitis. Information and Conditions Rheumatoid Arthritis. sarcoidoisis. Sinusitis. Information and Conditions
    http://www.pacifichealth.com/gras_list.htm
    GRAS LIST BELOW Natural solutions for... Airborne Allergies Arthritis Asthma Candida (Yeast Infection) CFS (Chronic Fatigue Syndrome) High Cholesterol Flus and Colds Cancer Depression Diabetes (High Blood Sugar) Diverticulosis Food Allergies Fibroids and Cysts Fibromyalgia Hay Fever (Airborne Allergies) HBP (High Blood Pressure) Hepatitis A and B Hepatitis C, D, and E Hepatitis C HIV AIDs Holiday Health Prevention HypoThyroid Hypo/Hyper Thyroid IBS (Irritable Bowel Syndrome) Liver Help Menopause MS (Multiple Sclerosis) Prostate function Osteoarthritis Osteoporosis PMS (Pre Menstrual Syndrome) BPH (Benign Prostatic Hypertrophy) Rheumatoid Arthritis Sarcoidoisis Sinusitis Information and Conditions Air Filtration Allergies (Airborne) Allergies (food) Arthritis Asthma Chiropractic Detoxification Enzymes Herbs Hepatitis A,B Hepatitis C,D,E Herbal Extracts High Blood Pressure Homeopathy Liver Minerals Osteoarthritis Osteoporosis Ozone Prostate Prostate (enlarged) Relaxation Rheumatoid Arthritis Vaccination Info Vitamins Keep Your Immune System On Alert with Immune Strengthening Products such as Beta 1,3/1,6 Glucan (Immunition); Instant Immune, Thymic Protein A, Thymus PMG, Thymex, Oregano Oil, Thyme Oil, Dioxychlor, Adrenal Cortex, First Defense, Colloidal Silver, Homeopathy, Nutrejuva, Wobenzyme N, Enada (NADH), Essential Aminos, Moducare, Bach flowers, Echinacea, Ginseng, GoldenSeal, St. John's Wort, Colostrum, DHEA, Pregnenalone and more.

    10. January 2002
    Prednisone should still be prescribed in symptomatic patients with sarcoidoisis because, there are no other drugs in the pipeline for this disease. .
    http://www.sarcoidosisonlinesites.com/archives/newsletters/january 2002.htm
    You are here
    A Lifeline of Hope, Health and Research Contact webmaster@sarcoidosisonlinesites.com January 15, 2002
    T A B L E O F C O N T E N T S
    Editor's Note

    Commentary from the editor
    1. Email bag-Announcements

    Share your opinions and critiques about past issues
    1a. Special Section

    The Sarcoidosis Golden Lifesaver Award
    2.*Stages of Sarcoidosis

    Describes the four stages/types of pulmonary sarcoidosis 3. Pharmaceutical Front Medications and their effects 4. The Healthy Human General tips for better health 5.*Sarcoidosis Awareness Tips on how to start and maintain a support group The NSRC is proud to offer its ribbon campaign to promote sarcoid awareness 6. Ask the Doctor Our online physician answers questions about sarcoidosis 7. What's Happening? Sarcoidosis related events from around the world 8.*Sarcoid: What is Known?

    11. Welcome
    retinitis). Non infectious causes like eye injury, sarcoidoisis sarcoidoisis Intraocular Inflammation / Uveitis / AidsAids
    http://www.consultdev.com/retina/uveitis-infectious-retinitis.html

    12. Endocrinology (Dec.1999)
    habitus; and 8) other disorders sarcoidoisis, ankylosing spondylitis, diabetes mellitus, myeloma, hyperthyroidism
    http://www.utmb.edu/otoref/Grnds/Endocrinology-991215/Endocrinology.htm
    • NOTE : The tables and other images that are too small to read in this material will be found in
    TITLE: Endocrinology
    SOURCE: Grand Rounds Presentation, UTMB, Dept. of Otolaryngology
    DATE: December 15, 1999
    RESIDENT PHYSICIAN: Edward D. Buckingham, M.D.
    FACULTY PHYSICIAN: Francis B. Quinn, M.D.
    SERIES EDITOR: Francis B. Quinn, Jr., M.D. Return to Grand Rounds Index "This material was prepared by resident physicians in partial fulfillment of educational requirements established for the Postgraduate Training Program of the UTMB Department of Otolaryngology/Head and Neck Surgery and was not intended for clinical use in its present form. It was prepared for the purpose of stimulating group discussion in a conference setting. No warranties, either express or implied, are made with respect to its accuracy, completeness, or timeliness. The material does not necessarily reflect the current or past opinions of members of the UTMB faculty and should not be used for purposes of diagnosis or treatment without consulting appropriate literature sources and informed professional opinion." Pituitary The pituitary gland consists of two embryologically distinct parts. The posterior pituitary or neurohypophysis is derived from the neural ectoderm of the floor of the midbrain near the 3

    13. CFS, Diagnosing CFS, Chronic Fatigue Syndrome
    Chronic inflammatory diseases, including Chrons disease, sarcoidoisis and Wegeners granulomatosis. Fungal/parasitic diseases. Chronic asthma/allergic illnesses.
    http://www.holistic-online.com/Remedies/CFS/cfs_diagnosis.htm
    Home Search Alternative Medicine Stress Management ... Media CFS Chronic Fatigue Syndrome Diagnosing Chronic Fatigue Syndrome Diagnosis of chronic fatigue syndrome is based on the presence of unexplained exhaustion that is not improved by sleep or rest, persists for three to six months, and causes an all-over weakness and lack of energy so severe that it interferes with normal living. The first step in diagnosing chronic fatigue syndrome is to rule out any underlying conditions, including psychological disorders, that may be contributing to the problem. Some of the other illnesses that can cause excessive fatigue are: hypothyroidism, anemia, Lyme disease, and chronic hepatitis. (See the differential diagnosis below.) 1994 Revised Case Definition Of Chronic Fatigue Syndrome (CFS)
    The Annals of Internal Medicine
    Major Criteria A case of chronic fatigue syndrome must include the presence of the following: 1. Clinically evaluated, unexplained, persistent, or relapsing chronic fatigue that is of new or definite onset (has not been lifelong); is not the result of ongoing exertion; is not substantially alleviated by rest; and results in substantial reduction in previous levels of occupational, educational, social, or personal activities.
    Minor Criteria Symptom Criteria The concurrent occurrence of four or more of the following symptoms, all of which must have persisted or recurred during 6 or more consecutive months of illness and must not have predated the fatigue:

    14. Folic Acid - Wikipedia, The Free Encyclopedia
    as rheumatoid arthritis, lupus, psoriasis, asthma, sarcoidoisis, primary biliary cirrhosis, and inflammatory bowel
    http://www.wikipedia.org/wiki/Folic_acid
    Folic acid
    From Wikipedia, the free encyclopedia.
    Folic acid (the anion form is called folate ) is a B-complex vitamin (once called vitamin M ) that is important in preventing neural tube defects (NTDs) in the developing human fetus. Table of contents 1 Folic acid and pregnancy
    2 Folic acid and ischaemic heart disease

    3 Biochemistry

    4 Folate in foods
    ...
    edit
    Folic acid and pregnancy
    Since the discovery of the link between insufficient folic acid and NTDs, governments and health organisations worldwide have made recommendations concerning folic acid supplementation for women intending to become pregnant. For example, the US Public Health service (see the URL given at page foot) recommends an extra 0.4mg/day, which can be taken as a pill. However, many researchers believe that supplementation in this way can never work effectively enough since not all pregnancies are planned and not all women will comply with the recommendation. This has led to the introduction in many countries of fortification , where folic acid is added to flour with the intention of everyone benefiting from the associated raise in blood folate levels. This is not uncontroversial, with issues having been raised concerning individual liberty, and the masking effect of folate fortification on B12 deficiency or pernicious anaemia . However, most North and South American countries now fortify their flour, along with a number of Middle Eastern countries and Indonesia. Mongolia and a number of ex-Soviet republics are amongst those having widespread voluntary fortification; about five more countries (including Morocco, the first African country) have agreed but not yet implemented fortification. The UK has recently decided not to fortify, mainly because of the B12 concern; indeed, no EU country has yet fortified.

    15. About My Mom
    that other bodies can fend off without a problem. My Mom also had compromised lungs resulting from sarcoidoisis and was on steroids for that for years.
    http://www.geocities.com/robindecato/mommy.html
    My Mom. Before we knew my mom had Hodgkin's, she would sweat at night, sometimes had a fever and was very tired. Doctor V later felt small bumps in her neck -behind her ear. She had the bumps looked at in August of 1998, and we then found out she had Hodgkin's Lymphoma. My mom had undergone several different chemo regimens since then. During July 1999 she had a stem-cell transplant to rid her body of Hodgkin's. Most people that are treated for Hodgkin's do not need to resort to a stem cell transplant. It is a very strong form of chemotherapy with a dose 5 times as strong as other treatments.
    Here is a picture of my Mom when she went to the hospital to have her stem cells collected. She was in the bone marrow unit of the hospital for all of July 1999. During this time she was in a special germ-free unit, had round the clock nurses, and was on a special low micro-organism diet. She had trouble swallowing, eating, and keeping food down during this time, but quickly regained her strength. The stem cell transplant went well and my mom was able to recover quite nicely. After being home for several months, she began radiation therapy. With radiation there was a whole new set of side-effects.

    16. This Article
    should still be prescribed in symptomatic patients with sarcoidoisis because there are no other drugs in the pipeline
    http://www.docguide.com/news/content.nsf/NewsPrint/8525697700573E1885256AFF006A0
    To print: Select File and then Print from your browser's menu
    Title: CHEST: Prednisone Improves Symptoms but not Lung Function in Sarcoidosis.
    "CHEST: Prednisone Improves Symptoms but not Lung Function in Sarcoidosis."
    Go back

    This site is maintained by webmaster@pslgroup.com
    Please contact us with any comments, problems or bugs.

    17. Laurie's Sarcoidosis Page Index2
    just yet. I m just looking for some help and answers. My daughter (age 32) was diagnosed with sarcoidoisis in May, 2000. We are
    http://www.geocities.com/Heartland/Flats/4877/geobook.html
    Welcome to my Guestbook! Please come back often! Lynda Appell
    My URL:
    http://usa.internations.net/health/redapple/index4.htm
    My Email: arnica@hotbot.com
    Favorite Sarcoid link: Yours
    Comments:
    Laurie: Warmest wishes to you, your family and your supportive, resourceful site.
    vicki minck
    My Email:
    Minck in LF
    Comments:
    Your story could have been written by me. I now also have kidney stones that need to be removed. I was never told ,sarcoid patients should watch their calcium intake. Thanks for sharing.
    Kendra My Email: VibrantK21@hotmail.com Comments: You are my ray of light right now. I am currently dealing with this illness. I found out that I had this illness after a severe car accident. I had to force the tears back reading your story. You give me strength. Micki Gibson My Email: MickiGibson@aol.com Comments: This is the first I have heard of your disease, however my 14 year old daughter was diagnosed with Type 1 Diabetes in Jan '00. Keep taking care of yourself, don't let the diabetes get you down. I know you have lots of other problems, but I believe there will be a cure for that one soon!! You will be in my prayers daily, you are truly an inspiration. Micki LaBretta My Email: PandaBearsDen@aol.com

    18. AllRefer Health - Folate - Dietary Supplements - Alternative Medicine
    methotrexate is used to treat a wide variety of noncancerous diseases such as rheumatoid arthritis, lupus, psoriasis, asthma, sarcoidoisis, primary biliary
    http://health.allrefer.com/alternative-medicine/folate-8.html
    AllRefer Channels :: Yellow Pages Reference Health Home ... Contact Us Quick Jump Alternative Medicine What is CAM Making Decisions Treatment by Therapy Acupuncture Antineoplastons Ayurvedic Interventions Cancell/Entelev Coenzyme Q10 Chelation Therapy Gerson Therapy Hydrazine Sulfate Immuno-augmentative Laetrile/Amygdalin Mind-Body Interventions St. John's Wort Treatment by Disease Cancer Cardiovascular Disease Coronary Artery Disease Depression Diabetes Gastrointestinal Disease Hepatitis C Liver Disease Menopause Pain Dietary Supplements Folate Iron Magnesium Selenium Vitamin A Vitamin B6 Vitamin B12 Vitamin D Vitamin E Zinc More... Alternative Medicine Health News Symptoms Guide Special Topics ... Medical Encyclopedia
    You are here : AllRefer.com Health Alternative Medicine Dietary Supplements ... Folate
    Facts about Folate
    What are some current issues and controversies about folate? Folic acid and heart disease
    A deficiency of folate, vitamin B12, or vitamin B6 may increase your level of homocysteine, an amino acid normally found in your blood. There is evidence that an elevated homocysteine level is an independent risk factor for heart disease and stroke (30 - 41). The evidence suggests that high levels of homocysteine may damage coronary arteries or make it easier for blood clotting cells called platelets to clump together and form a clot (36). However, there is currently no evidence available to suggest that lowering homocysteine with vitamins will reduce your risk of heart disease. Clinical intervention trials are needed to determine whether supplementation with folic acid, vitamin B12 or vitamin B6 can lower your risk of developing coronary heart disease.

    19. CUADERNOS DE NEUROLOGIA
    Translate this page histopatología era similar a la del sarcoma, de este término deriva la palabra sarcoidosis (3). El compromiso neurológico en la sarcoidoisis fue reportado
    http://escuela.med.puc.cl/publ/Cuadernos/2003/Neurosarcoidosis.html

    20. Documento Sin Título
    Translate this page Discussion Entre los diagnosticos diferenciales se deben tener en cuenta Tuberculosis, Sarcoidosis, Linfoma y Carcinomatosis meningea.La sarcoidoisis es una
    http://www.clinicadelvalle.com.ar/casos.htm

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