41. The Following Links Will Provide More Information About HD And ghtaylor/index.html ABOUT huntingtons disease GENERAL INFORMATION gov/health_and_medical/disorders/huntington.htmhttp driving, swallowing diet, living with http://www.ahda.com.au/Pages/links.html

The following links will provide more information about HD and access to overseas Huntington Disease organisations. For links to Australian organisations, please view the contact page. ASSOCIATIONS OUTSIDE AUSTRALIA International: http://www.huntington-assoc.com United States of America: http://www.hdsa.org United Kingdom: http://www.hda.org.uk New Zealand: http://homepages.ihug.co.nz/~ghtaylor/index.html ABOUT HUNTINGTONS DISEASE - GENERAL INFORMATION These links may be useful for those seeking more general information on HD: http://www.ninds.nih.gov/health_and_medical/disorders/huntington.htm http://www.noah-health.org/english/illness/neuro/hunting.html This HD information site is very clear and simple and linked to a companion site on genes and inheritance: FOR PEOPLE LIVING WITH HD http://www.ahda.asn.au/content/factsheet/index.asp http://homepages.ihug.co.nz/~ghtaylor/Behavior-Problems.htm http://homepages.ihug.co.nz/~ghtaylor/behavioural_disturba.htm http://www.kumc.edu/hospital/huntingtons/behavior.html About Tube feeding http://www.kumc.edu/hospital/huntingtons/tube.html

42. Tube.html that involve positioning issues, feeding techniques, diet consistency changes theKansas University Medical Center and by the Huntington s disease support groups http://www.kumc.edu/hospital/huntingtons/tube.html

Tube Feeding Betsy Gettig, MS, CGC Toni Finney, BS Department of Human Genetics University of Pittsburgh There are many interventions and strategies that can help to preserve swallowing and to lessen the risk of choking. If all attempts fail to improve swallowing, alternative methods of feeding such as tube feeding will be discussed with families. The task of deciding what is best can be difficult and emotional. This issue usually arises when a person with HD is in the end stages of the disease. However, this issue should be discussed well in advance by the person with HD, their family and the health care provider. By the late stages of HD, the person is often unable to meet nutritional needs, tends to become dehydrated, or aspirates all possible food consistencies, often reflected by frequent bouts of pneumonia. Because of the choking the eating process may have become unpleasant. Making the Decision: Frequently asked Questions: What is tube feeding and why is it used? Tube feeding is a method of providing nutrition to people who cannot sufficiently obtain calories by eating or to those who cannot eat because they have difficulty swallowing. Tubes which transport nutritional formulas can be inserted into the stomach (G-tubes), through the nose and into the stomach (NG-tubes), or through the nose and into the small intestine (NJ tubes). The NG and NJ tubes are considered to be temporary and the G tube is considered more permanent but it can be removed. With all tube feeding approaches, if a person is able, he/she may continue eating and drinking while the tube feeding provides the consistent caloric intake needed for weight maintenance or gain. Thus oral intake can be continued for more pleasurable sensations, such as small bites of a favorite food.

43. Adkins Diet - Over The Net Bars Health insurance acne solution Foot Care acne cream Adkins diet bodybuildingsupplements save more on supplements huntingtons disease carbohydrate list http://www.over-the-net.co.uk/search.php?str=adkins diet

44. Huntingtons Disease - News And Websites The Official Patient s Sourcebook on Huntington s disease A Revised and Updated HealthRelated adipex diet pill allergy antiaging arthritis pain http://www.zeekzy.com/healthrelated/huntingtons-disease.html

huntingtons disease - news and websites Related Searches for huntingtons disease skin disease heart disease gum disease crohns disease ... Order Online Drugs With Delivery at US Pharmacy Buy your medications online and have them delivered to your doorstep the next day. Review by U.S. licensed physicians with prescription. Ship your order discreetly, via Fed-Ex. This is the fastest most convenient and least costly way to order prescription medications. Search Results For huntingtons disease Search over 50,000 senior housing communities including assisted living, retirement communities, nursing homes, and alzheimer's care. Obtain free assistance from experienced family advisors. Medical Search Engines, Healthcare Resources, Find Disease Specific Clinical Information on Diseases using Search Engines Designed for that purpose. EBay.com - Save Money and Buy Huntingtons Disease On Ebay! Find Huntingtons Disease and anything you are looking for on Ebay. Opening an account is free. Bidding is free. Try it today. Official Patient's Guide On Huntington's Disease "This book has been created for patients who have decided to make education and research an integral part of the treatment process."

45. Medical Books At Rbookshop.com Immunohistochemistry (5) Diagnostic Radiology (474) diet (750) diet Therapy (750 19)Hulda Clark (7) Human Anatomy (750) huntingtons disease (15) Hypertension http://www.rbookshop.com/medical/

AMAZON.COM Search: All Products Electronics Books Classical Music DVD Kitchen Popular Music Software Toys VHS Video Video Games Enter keywords: Related Stores Aromatherapy Products Medical Ethics Books MCAT Review Books Vitamin Venue ... Colloidal Silver Welcome to Rbookshop.com The easy-to-use Discount Medical Books store. Shop here for thousands of Medical Books by topics such as Acupuncture, Lung Cancer, Aromatherapy, ADHD, Mental Disorders, Occupational Therapy, Diabetes, Bioterrorism, Natural Health, Holistic Medicine, Impotence, and more. See our complete list of Medical Books . Thank you for shopping at our store! Complete Listing of Medical Books 127722 Products Online and Available as of 6-9-2004. Home A Abdominal MRI (4) Acupuncture (354) ADD (396) ADHD (166) ... Ayurvedic Medicine (96) B Bacterial Diseases (112) Bacterial Infections (54) Behavioral Intervention (51) Behavioral Medicine (155) ... Breast Cancer (569) C Cancer (750) Carcinoma (82) Cardiac Catheterization (18) Cardiac Pacing (38) ... Cystic Fibrosis (48) D Degenerative Diseases (21) Dementia Disorders (260) Dental Assisting (141) Dental Hygiene (112) ... Drug Handbook (388) E Eating Disorders (488) ECG (78) Echocardiography (117) Electroencephalography (56) ... Eye Disease (427) F Family Medicine (750) Family Practice (749) Fasting (85) Fertility (496) ... Fractures (616) G

46. Center For International Rehabilitation Research Information And Exchange: Thesa Cerebral palsy; Epilepsy; huntingtons disease; Multiple sclerosis syndrome; Lou Gehrig sdisease; Myasthenia gravis. Prevention Use for diet; dietary; dietician. http://cirrie.buffalo.edu/thesn.html

Return to Search A B C ... X-Y-Z For a more detailed explanation of subject heading entries, please refer to the CIRRIE Thesaurus main page. N Narcolepsy Use: Sleep disorders National surveys [SCOPE NOTE: Surveys conducted on a national scale] Broader terms: Surveys Related terms: Census; Demographics; Questionnaires; Research methodology; Survey forms Natural supports Use: Community resources Needs assessment [SCOPE NOTE: Includes priorities, community needs, problem identification, and program needs] Broader terms: Evaluation Related terms: Accountability; Problem solving; Research methodology Use for: Assessment Negative reinforcement Use: Behavior modification Disincentives Neonatals Use: Infants Nerves [SCOPE NOTE: Bundle of fibers which connect parts of the nervous system with the other organs, conduct nervous impulses, and are made up of axons and dendrites together with protective and supportive tissue] Broader terms: Anatomy; Body; Nervous system Related terms: Neurological disorders Nervous system [SCOPE NOTE: Used for documents dealing with the nervous system as a broad category] Broader terms: Anatomy Narrower terms: Brain; Nerves; Spinal cord

47. Holistic Health Yellow Pages Horseshoe Kidney Horsetail Hoshino Therapy Houston valve Hoxsey, Harry Human PapillomavirusHuntergatherer diet huntingtons disease Hydrangea Hydrastis http://www.findhealer.com/yellow/research.php3

M y H o l i s t i c . c o m F i n d H e a l e r . c o m A B C D ... Z Ailments/Treatments/Medicine click character bar on the left will bring you to right character. For example, If you look for Massage, click M, Acupuncture click A, so on. A 5-HTP Abcesses Abdominal Bleeding Abdominal Bloating ... Ayurvedic Medicine B B Complex B Vitamins Bach Flower Remedies Back Pain ... Butyric acid (BA, 4:0) C Cadmium Calcium Calcium Deposits Calendula ... Cytospaz-M D Damina Leaf Dandelion Root Dance Therapy Darvocet N 100 ... Dysuria E Eagle-Barrett Syndrome Ear Ear Infections EAV ... Eyebright F Fa Factor Factor V Factor VIII ... Fungus Infection G GABA Gadolinium Gallbladder Gallbladder Attack ... Guided Imagery H Haelan Work Hafnium Hahnemann Hakomi ... Hysteria I IBS ibuprofen IICM Ileocecal valve ... Itch J Japanese Honeysuckle Jejunum Jock Itch Jojoba Oil ... Juniper Berries K Kava Kava Keloids Kelp Keratin ... Krebs Cycle L L-Alanine L-Arginine L-Ascorbic Acid L-Aspartic Acid ... Lysine M Macrophage Macular Degeneration Malignant Manganese ... Myrrh N N-acetyl-D-glucosamine N,N,DimethylGlycine NAC NADG ... NutraSweet O Obesity Olestra Oligomeric Proanthocyanidins Olive Leaf Extract ... Oxygen P P-5-P Paget's Disease Palladium Panax Ginseng ... The Weston A. Price Foundation

48. Creatine And Other Research and consumption through the diet. Matthews RT et al. (1998) Neuroprotective effectsof creatine and cyclocreatine in animal models of huntingtons disease. http://www.doctorbach.com/training02/villanova.htm

Creatine and Other Research Marcello Villanova, MD, Ph.D. (Typed from a faxed copy where some portions were not readable.) Vitamin B12, Folic Acid, and Creatine Monohydrate in Spinal Muscular Atrophy Marcello Villanova, MD, Ph.D. Neuromuscular Unit Casa Di Cura "Nigrisoli" Bologna, Italy Lines of Research Molecules that stimulate SMN2 gene. More copies of SMN2 correlate with milder SMA.. [graphic] Molecules that protect neuronal degeneration [graphic] [graphic] Vitamin B12 and Folic Acid in Spinal Muscular Atrophy-1 Researcher at the University of Pennsylvania showed that to perform it function SMN protein interacts with numerous proteins in the cell. These functions will be efficient if the proteins to wh? needs to interact are first bind by specific enzymes. This tags are made up of many groups that are attached through the amino acid arginine (the process called 'methylation'). Vitamin B12 and Folic Acid in Spinal Muscular Atrophy-2 The methyl group are tags by 'methyl donor' called S-adenayimethionine that receives this methyl? from folic acid through a pathway that requires vitamin B12. Deficiency of folic acid and vitamin B12 could result in methylated mentholated which are exactly the kind mentholatedens SMN needs to find to function properly.

49. Grave Group Support Unhealthy Department Health Social State Washington First Ai pulmonary health prevention diseases diet health prevention grave iodine radioactivetreatment disease long term herbal medical errors huntingtons photo us http://www.atoz-health.com/

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50. The Anti Aging Book Eternal Health Answer You diet should be comprised mostly of fruit, vegetables and fish. and hasbeen CLEARED of having *huntingtons disease, *Parkinson’s disease, *MS. http://www.eternalhealth.org/qa/qa_archives/2004.03.02sa.htm

Anti Aging Products and Information Archives Dr Michael Elstein Anti Aging program Anti Aging Medicine ... Buy The Book * Conditions may apply Previous Questions and Answers Segment Your questions answered every 2 weeks. If you have a question for Dr Elstein, click here. QUESTION 1: I am being treated for bladder cancer and I am wondering what foods and liquids I should avoid. I don’t smoke or drink alcoholic. Answer: You diet should be comprised mostly of fruit, vegetables and fish. Reducing red meat, dairy products and refined carbohydrates such as biscuits, cakes, chocolate and pastries would be helpful. Vitamins A, B6, C and E plus zinc have been found to be useful in reducing bladder cancer recurrence. A probiotic called Lactobacillus casei has also been shown to have a favourable effect as might garlic and an immune boosting nutrient known as lactoferrin. QUESTION 2: A Web site dealing with environmental issues, e.g. wood pulp plants near waterways, says that beta sitosterol interferes with estrogen and fish reproduction. Do you know if that is true? And what the repercussions might be for child producing age human?

51. HDA NORTH WEST LANCASHIRE BRANCH Information for Teenagers. Fact Sheet 6 Eating and Swallowing Difficulties. FactSheet 7 Huntington s disease and diet. Fact Sheet 8 The Importance of Dental Care. http://members.aol.com/hdanwlancs/

HUNTINGTON'S DISEASE ASSOCIATION North West Lancashire Branch Dedicated to the Care and Support of Huntington's Families General Information Branch Meetings Local and National Contacts Young Carers ... The whole world owes a debt of gratitude to this community without which the Human Genome Project would not be where it is today! Fact Sheets from the Huntington's Disease Association Fact Sheet 1 All about the Huntington's Disease Association Fact Sheet 2 General Information about Huntington's Disease ... EMail Webmaster - John Griffiths s="na";c="na";j="na";f=""+escape(document.referrer) View My Guestbook Sign My Guestbook [Previous] [Join] ... [Skip Next] This webring is hosted by: HACKERSONS E-Mail: Ringmaster

52. Huntington's Disease medications in applesauce if a person is on a pureed (blenderized) diet. Huntington sDisease is a devastating illness that affects every aspect of a person s http://www.asha.org/public/speech/disorders/Huntington-Disease.htm

@import url( /styles/importmenuP.css ); Skip to: content navigation Our site's pages are optimized for Web browsing software that supports current Web standards, as established by the World Wide Web Consortium (http://www.w3c.org/) . Content is accessible from older or less standards-compliant technologies, but its presentation will not be identical to visitors with standards-compliant software. Read more on our site's changes and accessiblity. My Account Find a Professional Shop Logged in as: Guest Login Search for: ADVANCED SEARCH Home For the Public Speech Language and Swallowing ... Disorders and Diseases Huntington's Disease Based on a brochure developed by Lynn Rhoades, M.S., CCC-SLP for the Huntington's Disease Society of America ( www.hdsa.org ) with financial support of the American Speech-Language-Hearing Association. Why Communication and Swallowing Symptoms Arise As brain cells become depleted in Huntington' s Disease (HD), problems may develop in the following three areas: motor control (movement); cognition (thinking); and behavior. Speech and swallowing problems arise when the centers of motor or cognitive control are affected that cause muscle weakness or discoordination, chorea, and problems with memory, sequencing, new learning ability, reasoning, and problem solving. Typically, speech and language functions are primarily controlled in the left side of the brain and swallowing function is controlled in the brainstem (at the base of the brain). Cognitive function is believed to be controlled in the right side of the brain. HD typically begins in the caudate nucleus and putamen, which are located in the central part of the brain (core), and spreads to these other control centers, causing communication and swallowing problems as the disease progresses. Communication

53. Huntington's Disease - Hope Through Research The individual s physician can offer additional advice about diet and about Organizationssuch as the Huntington s disease Society of America (see listing on http://www.ninds.nih.gov/health_and_medical/pubs/huntington_disease-htr.htm

National Institute of Neurological Disorders and Stroke Accessible version Science for the Brain The nation's leading supporter of biomedical research on disorders of the brain and nervous system Browse all disorders Browse all health organizations More about a disorder Studies with patients Research literature Press releases Search NINDS... (help) Contact us My privacy NINDS is part of the National Institutes of Health Huntington's Disease — Hope Through Research Get Web page suited for printing Email this to a friend or colleague Request free mailed brochure Table of Contents Introduction What Causes Huntington's Disease? How is HD Inherited? What are the Major Effects of the Disease? ... Information Resources Introduction In 1872, the American physician George Huntington wrote about an illness that he called "an heirloom from generations away back in the dim past." He was not the first to describe the disorder, which has been traced back to the Middle Ages at least. One of its earliest names was chorea which, as in "choreography," is the Greek word for dance. The term chorea describes how people affected with the disorder writhe, twist, and turn in a constant, uncontrollable dance-like motion. Later, other descriptive names evolved. "Hereditary chorea" emphasizes how the disease is passed from parent to child. "Chronic progressive chorea" stresses how symptoms of the disease worsen over time. Today, physicians commonly use the simple term Huntington's disease (HD) to describe this highly complex disorder that causes untold suffering for thousands of families.

54. Huntington's Disease - Dietary Considerations. to remember Common complications of Huntington s disease (HD) include dysphagia),particularly as the disease progresses. to make sure the diet is nutritious http://www.betterhealth.vic.gov.au/bhcv2/bhcarticles.nsf/pages/Huntington's_dise

55. Bbc.co.uk - Health - Illnesses And Conditions Huntington's Disease can ease many of the symptoms and help a person with Huntington s disease lead as Adiet high in calories can help maintain weight and also improve symptoms http://www.bbc.co.uk/health/conditions/huntingtons.shtml

@import url('/includes/tbenh.css') ; Home TV Radio Talk ... A-Z Index WEDNESDAY 9th June 2004 Text only BBC Homepage Health Home Lifestyle Home ... Conditions QUICK GUIDE A-Z Children's Ailments IN-DEPTH Addictions Allergies Arthritis Asthma ... Help Like this page? Send it to a friend! A-Z Illnesses and Conditions Huntington's Disease by Dr Trisha Macnair and Dr Rob Hicks A significant step forward in science A progressive brain disease Genetic testing brings problems ... Related links Nearly 150 years ago American family doctor George Huntington went out riding, joining his father (also a doctor) on his rounds. They came across 'two women, mother and daughter, both tall, thin, almost cadaverous, both bowing, twisting, grimacing...'. Huntington was amazed and almost fearful, and the encounter triggered his lifelong interest in the disease now named after him. First called Huntington's chorea (a term which describes strange dancing movements) it's now known as Huntington's disease. A significant step forward in science How Huntington's Disease progresses Early symptoms include mood swings, depression, irritability, memory problems, difficulty learning new things or making decisions

56. Huntington's Disease chinese approaches Huntington s disease. diet Huntington s disease. dietarysupplements Huntington s disease. symptom remedy Huntington s disease. http://www.icongrouponline.com/health/Huntington's_Disease.html

ICON Health Publications Official Health Sourcebooks The Official Patient's Sourcebook on HUNTINGTON'S DISEASE (Artificial insemination; Chronic Progressive Chorea; Chronic progressive hereditary chorea; Degenerative Chorea; Hereditary Chorea; Hereditary Chronic Progressive Chorea; Huntington chorea; Huntington's chorea; Huntington's disease; Very Early Onset Huntington's Disease; Woody Guthrie's Disease) Revised and Updated for the Internet Age P A P E R B A C K Paperback Book Paperback Book Order by phone: 800-843-2665 (within USA) 1-201-272-3651 (from outside USA) Paperback Book Shipped in 3 to 5 business days E B O O K Electronic File * E-Book version sent via e-mail in 2 business days Electronic File *E-Book version sent via e-mail in 2 business days Pages Price $28.95(USD) ISBN Published Synopsis A comprehensive manual for anyone interested in self-directed research on Huntington's Disease. Fully referenced with ample Internet listings and glossary. Related Conditions/Synonyms Artificial insemination; Chronic Progressive Chorea; Chronic progressive hereditary chorea; Degenerative Chorea; Hereditary Chorea; Hereditary Chronic Progressive Chorea; Huntington chorea; Huntington's chorea; Huntington's disease; Very Early Onset Huntington's Disease; Woody Guthrie's Disease Description Table of Contents Introduction Overview Organization Scope Moving Forward PART I: THE ESSENTIALS Chapter 1. The Essentials on Huntington’s Disease: Guidelines

57. Huntington's Disease Drug Works Update 23 Feb 2004. HeartBrain Health Fights Huntington disease Medication, diet, exerciseand other lifestyle choices common to good heart health could promote http://hdlighthouse.org/TreatmentNow/updates/0075Sep-Oct03.phtml

New to the Huntington's Disease Lighthouse: Welcome, start here Beginners Search TREATMENT NOW ... TREATMENT Huntington's Disease Drug Works Update HD Lighthouse Editor's Comment: At long last treatment for Huntington's disease will reach the clinic. The light of the HDL and our small group of self treating pioneers are being greated by the rising sun of the HDDW. It is wonderful. Jerry Posted to the HDL: 07 Oct 2003 This Path "It is the wish of all of us on this path not to interfere with any of the workings of other HD organizations. We are exceedingly grateful for the work, sweat, and tears of all of our researchers and HD physicians. You have brought us to the hopeful stage of potential treatment. We are also truly grateful to HDSA for the work of patient care in Centers of Excellence." LaVonna Goodman M.D. SEPTEMBER/OCTOBER UPDATE HDDW by LaVonna Goodman, M.D., 06 Oct 2003 This will be the last update that HD Lighthouse will directly publish. We will finally have our own HDDW website by the time mid-October comes along. We extend a great big THANKS to Jerry for allowing us a safe place, and to Lighthouse readers who have responded. Treatment for this generation of HD was the chord first sounded by Jerry, then amplified by HDDW. The tune may have its differences, but the theme is the same. HDDW will have our own website (www.HDDrugWorks.org), thanks to great volunteers, which will link to HD Lighthouse and others. Jerry will continue to provide a link to HDDW, so you can find us here too. The "Treatment Now" slogan originated with Jerry, and as such will remain at the HD Lighthouse. For purposes of less confusion for readers of both websites, the proposed work of HDDW will be named "HDDW Therapeutic Drug Trials."

58. $500,000,000 Market For Huntingtons' Disease Treatment New to the Huntington s disease Lighthouse Welcome, start here Beginners Search. HDL Update $500,000,000 Market For huntingtons disease Treatment, http://hdlighthouse.org/treatment-care/treatment/drugs/lax101/human/updates/0034

New to the Huntington's Disease Lighthouse: Welcome, start here Beginners Search Treatment Now ... EPA-DHA Drugs Related Haldol bench human ... human HD Lighthouse Editor's Comment: From this we can estimate the cost of LAX-101 treatment for Huntington's disease. $500,000,000/30,000=$17,000 per patient for a year. Laxdale will get about half. They deserve every penny. Jerry Posted to HDLighthouse: 04 Dec 2002 18:21 HDL Update: $500,000,000 Market For Huntingtons' Disease Treatment Investors waiting "When you cut through all the detail, this could be a drug that is very significant for the treatment of Huntington's", Rick Stewart, Amarin CEO Amarin Corp is a $25 million British company that licenses and sells drugs to treat nerve disorders, like Parkinson's Disease. Amarin's chief executive, Rick Stewart, hails from SkyePharma a British drug developer. Stewart says that Amarin's research partner, Laxdale of Scotland, will follow up any day now on preliminary findings from a Phase III study of LAX-101, a treatment for Huntington's Disease. "This is the first time we have seen anything positive for Huntington's," says Stewart, who is shaking his head about the market's treatment of the preliminary findings. A study of 83 qualifying patients took place at Harvard, Emory and Johns Hopkins universities, and in the United Kingdom and Canada. Huntington's, a genetic disorder, has been diagnosed in about 30,000 Americans and an equal number of patients in Europe. The U.S. Food and Drug Administration has granted LAX-101 a so-called fast-track designation.

59. Huntington's Disease - 101 - Suite101.com Information about Huntington's disease. What it is, how it is passed down, early symptoms. A beginners page if you will in understanding Huntington's disease. huntingtons disease transcends the http://www.suite101.com/article.cfm/huntingtons/29118

Topics Articles Links Courses DIRECTORY COMMUNITIES BOOK CIRCLE SUITE U ... MY SUITE Search Suite101.com Within: Huntington's Disease Health Search The Web Member Central Join Our Community! Login What's New Become a SuiteU Affiliate ... MemberUpdate Suite University About Suite University Suite University News Visit the University Course Listing ... FREE Demo Course New Topics Parenting Babies and Toddlers Views of a Young Appalachian Woman SpiritWell Travel Book Reviews ... More... Suite Events Teacher Appreciation Event 2004 Family Focus 2004 In Tune With Johann Sebastian Bach More about Suite101 About Suite101.com Advertise With Suite For more information - Select a related topic - Agoraphobia Alexander Technique Alzheimer's Disease Aromatherapy Asperger's Syndrome Asperger's Syndrome and A BodyWork Techniques Breast Cancer Canadian Health Carrie Writes About Disab Celebrating Life Child Sexual Abuse Chiropractic Health Care Clinical Nutrition Creative Therapy Depression In Women Dissociative Identity Dis Eating Disorders Fibromyalgia Friends Fitness Fluoridation Graves' Disease Health Psychology Herbal Healing Hypochondria Hypothyroidism I May Be Getting Older, B

60. Huntington's Disease centers can be obtained from the Huntington disease Society of As the disease progresses,persons with HD may can offer additional advice about diet and about http://www.medceu.com/tests/huntington.htm

HUNTINGTON'S DISEASE Objectives By the end of the course the student will be able to: A. Demonstrate knowledge of the history of Huntington's Disease, its causes and familial nature B. Recognize characteristics of the disease including major effects and rate of progression C. Describe methods of diagnosis, testing, treatment and required care. In 1872, the American physician George Huntington wrote about an illness that he called "an heirloom from generations away back in the dim past." He was not the first to describe the disorder, which has been traced back to the Middle Ages at least. One of its earliest names was chorea, which, as in "choreography," is the Greek word for dance. The term chorea describes how people affected with the disorder writhe, twist, and turn in a constant, uncontrollable dance-like motion. Later, other descriptive names evolved. "Hereditary chorea" emphasizes how the disease is passed from parent to child. "Chronic progressive chorea" stresses how symptoms of the disease worsen over time. Today, physicians commonly use the simple term Huntington's disease (HD) to describe this highly complex disorder that causes untold suffering for thousands of families. In the United States alone, about 30,000 people have HD; estimates of its prevalence are about 1 in every 10,000 persons. At least 150,000 others have a 50 percent risk of developing the disease and thousands more of their relatives live with the possibility that they, too, might develop HD.

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