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HD Blog Main June 29, 2003 HD Blog FAQ's What is a 'blog'? A blog, short for 'weblog', is a website that contains a log of messages. HD Blog will focus on news that relates to Huntington's Disease research. When possible, the information will be linked with commentary. This is a community, so feel free to add your comments. Can I suggest a link? Please do! If you found something interesting it might be of interest to others. You haven't returned my email, are you rude or did I offend you? No! I receive hundreds of personal, business and blog related emails. If I answered all my emails I wouldn't have time to update this blog. Also, I own a business that takes quite a bit of my time. Who is this Dave at the bottom of the messages? My name is Dave Bowdish and I live in Colorado. How do I reach you? You can email me at: Dave-at-Huntingtons-dot-info Are you an Expert? Nope, not even close. I'm not a medical expert, legal expert or financial expert. Always consult a qualified expert before acting on anything you read here or anywhere else. Is the HD Blog associated with any particular HD organization?

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HD Blog Main October 28, 2003 The State of HD Research Newsday has a great article on Huntington's Disease. While it does have a couple of minor errors, overall it is a great synopsis on the fight for a cure. Here are some excerpts: There is a lot of excitement ," said Dr. Peter Como" "Several experimental drugs for Huntington's, including riluzole,are now in the final phases of testing . The results may seem like small advances: For example, some patients have recovered the coordination to be able to shave for the first time in years. Others are able to hold a teacup, or stack plates. But these are big things to the 30,000 people in the United States with the disease, and the 150,000 others at immediate genetic risk." "We finally have some good hypotheses in Huntington's and it has implications for many genetic diseases," added Dr. Chris Ross, a Huntington's disease expert at Johns Hopkins Medical Institutes in Baltimore. " This is a hopeful time "In the co-enzyme Q10 trial, almost 400 patients are taking the pill in an attempt to slow progression of the disease, something the substance has done in animal models. The first studies showed modest improvement, and doctors are now enrolling patients for a study using a higher dose "(With the PHAROS study) (t)he hope, Como said, is to identify environmental modifiers - such as caffeine consumption, exercise, stress, social support, diet - that may bring on the disease earlier in some or push it back in others."

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