101. ::Ãà ÌÎÔÈËÈß Â ÐÎÑÑÈÈ:: The summary for this Russian page contains characters that cannot be correctly displayed in this language/character set. http://www.hemophilia.ru/

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102. Friends Of The Iranian Hemophilia Society Friends of Iranian hemophilia / haemophilia Society. UK charity hemophilia is an inherited, lifelong bleeding disorder. Without appropriate http://www.fihs.co.uk/

Hemophilia is an inherited, life-long bleeding disorder. Without appropriate treatment, hemophiliacs suffer from spontaneous bleeding which can cause pain, crippling disability and death. The friends of the Iranian Hemophilia Society was founded in 2001 with the aim of providing financial assistance to the Iranian Hemophilia Centre, a non-governmental, non-profit organisation inaugurated in Tehran in April of the same year. The Centre aims to: Diagnose and treat patients suffering from hemophilia and other inherited bleeding disorders Identify the precise defect by direct DNA analysis, provide carrier detection, and pre-natal diagnosis Provide out-patient care such as physiotherapy, preventive dentistry, rehabilitation and genetic counselling Provide training courses for doctors, nurses, physiotherapists, scientists and technicians throughout Iran and regional countries Introduce computer software to create a national data-base This entire project has been - and will continue to be - funded through the generous donations of people like you. To find out how you can help, please do to our Donations/Contact page.

103. The Coalition For Hemophilia B, Inc. The Coalition for hemophilia B, Inc. newsletters From the Coalition for hemophilia B John Taylor is the Chairman of the Coalition http://www.boygenius.com/cfb/

The Coalition for Hemophilia B, Inc. newsletters From the Coalition for HEMOPHILIA B John Taylor is the Chairman of the Coalition for Hemophilia B. He and his wife, Joyce, are the parents of a young child who has moderate/severe Hemophilia B. They started the Coalition when they began to encounter the many problems that Hemophilia B families must face on a day to day basis. They were encouraged to act by many scientists and research doctors who felt the same frustration that they did about the snail's pace of the progress with the disease. The Coalition is guided by a Board that includes researchers, doctors, lawyers, parents, and patients. There are nine in total but the reach among the medical research communicty is exteneded by a Scientific Advisory Board. The Coalition is funded by a large gift from John Taylor and his wife as well as by a fund raising effort that targets foundations interested in research and in developing cures for diseases. The Coalition tries to work closely with anyone who is interested in improving the therapies and general well-being of those who suffer from Hemophilia B; however, the Coalition's focus is on improving the future through research, development of products, advocacy, and therapeutic advances. Many of the day to day operations of the Coalition are handled by Kim Phelan. For more information please contact Kim.

104. Hemophilia Association Of The Captial Area The hemophilia Association of the Capital Area (HACA) is a taxexempt, non- profit organization established in 1961 to serve persons with bleeding disorders http://www.hacacares.org/

The Hemophilia Association of the Capital Area (HACA) is a tax-exempt, non- profit organization established in 1961 to serve persons with bleeding disorders and their families in northern Virginia, Washington, DC, and Montgomery and Prince Georges Counties in Maryland. It is a local chapter of the National Hemophilia Foundation. HACA's mission is to improve the quality of life for persons with hemophilia and Von Willebrand's disease and their families; to act as an advocate; to educate; to improve services to its members; to promote research and to raise money to fulfill this purpose. Annual Golf Tournament Monday, May 17, 2004 2:00 pm Shotgun Start Gunston Course at the Fort Belvoir Golf Club Among other exciting prizes, we have a car to give away for a hole in one. Please call the office at 703-352-7641 if you're interested in sponsoring this event or donating items for our silent auction. registration form: Click Me Hemophilia Association of the Capital Area phone: 703-352-7641 email. hacacares@aol.com

105. Hemophilia hemophilia. Definition hemophilia is a hereditary bleeding disorder in which it takes a long time for the blood to clot and abnormal bleeding occurs. http://www.healthscout.com/ency/article/000537.htm

Advertisement Search HealthScout Web MEDLINE Special Offers TV Specials Top Features Schizophrenia Hair Loss Liver Disease Allergies ... Impotence Resources Healthscout News 3D Interactive Human Atlas Health Videos Health Encyclopedia ... Drug Library Channels Home Today Women Men ... Drug Checker Advertisement Disease Injury Nutrition Poison ... Prevention Hemophilia Definition: Hemophilia is a hereditary bleeding disorder in which it takes a long time for the blood to clot and abnormal bleeding occurs. This disease affects mostly males. Diseases in this category include: hemophilia A hemophilia B von Willebrand's disease Review Date: 6/2/2003 Reviewed By: Scott Howard, M.D., M.S., Department of Pediatric Hematology/Oncology, St. Jude Children’s Research Hospital, Memphis, TN. Review provided by VeriMed Healthcare Network. Advertisement New Features Stress Test Free Eczema Information Kit Hiatal Hernia Mental Disorder Advertisement We subscribe to the HONcode principles of the Health On the Net Foundation About The HealthScout Network Contact Us Site Map Advertisement

106. Hemophilia Association Of San Diego County Golf Tournament Event Date(s) Thursday, May 13th, 2004 Location Torrey Pines North Golf Course Click here for more details. http://www.hasdc.org/

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107. Hemophilia Association Of New Jersey - Hemophilia, Bleeding Disorders The hemophilia Association of New Jersey offers assistance to persons with hemophilia and their families from our office located in East Brunswick. http://www.hanj.org/

You are visitor since 01.01.98. An Website. The Hemophilia Association of New Jersey was founded in August 1971 by 10 concerned families, and offers assistance to persons with hemophilia and their families from our office located in East Brunswick, New Jersey. We hope that you find our web site informative as well as comprehensive. Don't forget to periodically check out the "What's New" page to keep up to date on current events that affect the hemophilia community. If you have questions, suggestions or need further information, please feel free to call us or E-mail us All information that appears on the Hemophilia Association of New Jersey website, including links to other websites, is for your general information only. The Hemophilia Association of New Jersey makes no endorsements for or against medical treatments and/or therapies. Please consult your physician, or local treatment center before pursuing any course of treatment. E-mail the Web Master

108. Blood Clotting Loss of the genes for tissue factor or; factor 7. in knockout mice is lethal. hemophilia A and B. Treating hemophilia A and B. What can be done? http://users.rcn.com/jkimball.ma.ultranet/BiologyPages/C/Clotting.html

Index to this page Initiating the Clotting Process Amplifying the Clotting Process Platelets Bleeding Disorders ... Angiogenesis Blood Clotting When blood vessels are cut or damaged, the loss of blood from the system must be stopped before shock and possible death occur. This is accomplished by solidification of the blood, a process called coagulation or clotting. A blood clot consists of a plug of platelets enmeshed in a network of insoluble fibrin molecules. Platelet aggregation and fibrin formation both require the proteolytic enzyme thrombin . Clotting also requires: calcium ions (Ca )(which is why blood banks use a chelating agent to bind the calcium in donated blood so the blood will not clot in the bag). about a dozen other protein clotting factors . Most of these circulate in the blood as inactive precursors. They are activated by proteolytic cleavage becoming, in turn, active proteases for other factors in the system. By tradition, these factors are designated by Roman numerals. I find this somewhat confusing and will use Arabic numerals instead. Initiating the Clotting Process Damaged cells display a surface protein called tissue factor TF Tissue factor binds to activated Factor The TF-7 heterodimer is a protease with two substrates: Factor and Factor Let's follow Factor first.

109. The DRM WebWatcher: Hemophilia This section of The DRM WebWatcher describes the best online resources about hemophilia. http://www.disabilityresources.org/HEMOPHILIA.html

Home Subjects States Librarians ... Contact Us The DRM WebWatcher Hemophilia Updated 7/17/2000 A B C D ... About/Hint/Link Hemophilia is a sex-linked hereditary bleeding disorder where one of the plasma proteins needed to form a clot is missing or reduced. Here are some good places to find out more. Centers for Disease Control and Prevention - Hematologic Diseases Branch (HDB) The HDB is mandated by Congress to reduce the complications of hemophilia and other bleeding and clotting disorders. This site provides information about the branch; the archive includes statistical documents and related material. Hemophilia Home Page This is an extensive personal home page compiled by an individual with hemophilia and AIDS. Topics range from general information to HIV compensation/litigation, research, gene therapy, AIDS-related information, Spanish resources and much more. There's also a chat server and listserv information. National Hemophilia Foundation Information about bleeding disorders, news, research, programs, documents, and much more. Check out the new online education program. World Federation of Hemophilia The federation is an international nonprofit volunteer-based organization "dedicated to introducing, improving and maintaining care for persons with hemophilia and related disorders." Its web site includes an extensive online library, a Treatment Centre Directory, product recalls and info, events, "Ask the Doc," and an extensive, well-organized list of links and mailing lists. Visitors should note that the site is sponsored by several medical companies.

110. Department Of Medicine - Hemophilia Treatment Center The hemophilia Treatment Center provides comprehensive services to children, adults and their families with hemophilia, Von Willebrand Disease and related http://www.lij.edu/lijh/hemophilia.html

LINKS: Comprehensive Hemophilia Treatment Center At Long Island Jewish Medical Center Richard Lipton, MD, MPH; Physician-In-Charge Steven Arkin, MD, Pediatric Hematologist Martin Schachter, DMD, Hemophilia Dentist Jahan Roofeh, MD, Orthopedist About the Hemophilia Treatment Center The Long Island Jewish Hemophilia Treatment Center serves as the Federally designated regional hemophilia program for Long Island. The center provides comprehensive services to children, adults and their families with hemophilia, von Willebrand Disease and related disorders. The Treatment Center is located in the Hematology/Oncology Building in Room 350. Telephone: Fax: ER Hotline: E-Mail: hemophilia@lij.edu Mission/Purpose "We are committed to providing lifelong, accessible, state of the art, family centered hemophilia treatment. Our mission is to foster a high level of autonomy in the management of hemophilia through continuous family and patient education. We believe this goal is facilitated through community advocacy that promotes optimum treatment for all affected families." The Team Approach The Regional Comprehensive Hemophilia Treatment Center offers the skills of experienced hemophilia specialists and provides the following services:

111. Hemophilia Foundation Of Oregon | Welcome Welcome. Welcome to the hemophilia Foundation of Oregon s website! This site is dedicated to providing information to Oregon and http://www.hfo.info/

Hemophilia Foundation of Oregon HOME CONTACT ABOUT MEDICAL NEWS ... FAQS Welcome to HFO. Find out who we are, our mission and links to our services here How Can I Help? Sponsor Your Camper with a "Camper Connection" Welcome Welcome to the Hemophilia Foundation of Oregon's website! This site is dedicated to providing information to Oregon and SW Washington families who are affected by Hemophilia or von Willebrand disease. If you or a member of your family have been diagnosed with an inherited bleeding disorder, we invite you to contact us for more information. What is HFO? The Hemophilia Foundation of Oregon (HFO) was founded in Portland in 1963 by a small group of parents of children with hemophilia. Its goal has always been to improve the quality of life of those living with bleeding disorders and related diseases, and those who care for them. It serves individuals, their families and friends living in Oregon and Clark County, Washington. HFO is a volunteer organization dedicated to providing education and support to families affected by hemophilia and other bleeding disorders. Nationally, there are approximately 20,000 individuals with hemophilia; 400 with bleeding disorders in the Foundation's service area alone. Including family, friends and caregivers, many thousands of people are touched by hemophilia.

112. Center For Cancer And Blood Disorders At Children's Medical Center Dallas hemophilia The hemophilia condition. Program Highlights • Membership on various committees of the National hemophilia Foundation. • Nurse http://www.childrens.com/ccbd/hematology/hemophilia_index.cfm

Oncology Stem Cell Transplant Hematology Hemophilia Dr. George Buchanan and Dr. Janna Journeycake , remains active in patient care, education, clinical research and advocacy. In 2002, 107 new patients were evaluated for inherited bleeding disorder, including 51 children diagnosed with a specific condition. Program Highlights National Hemophilia Foundation Research and Future Plans Hemophilia program patient statistics New patients evaluated von Willebrand disease Factor VIII deficiency Factor IX deficiency Other Bleeding disorder ruled out Active patients Ambulatory visits Day surgery procedures Inpatient admissions Inpatient days Home Refer a patient online General oncology Neuro-oncology ... Contact Us

113. Midwest Hemophilia Association - Home Improving the quality of life for those affected by hemophilia and other bleeding disorders. The Midwest hemophilia Association http://www.midwest-hemophilia.org/

Improving the quality of life for those affected by hemophilia and other bleeding disorders. The Midwest Hemophilia Association is a non-profit organization formed to promote awareness, provide group support, educate, and facilitate communication for the bleeding disorders community of Kansas and Missouri. We provide information on available treatments, insurance and reimbursement issues, and related legislative efforts. We also sponsor educational seminars and conferences, publish a quarterly newsletter, and hold special social events for the benefit of our members. In an effort to ease the adjustment to living wtih a chronic bleeding disorder, MHA's First Steps program provides an avenue of support and education for families of newly diagnosed hemophiliacs. In addition, the MHA collaborates with Children's Mercy Hospital to have a one-week camp every August in Lawson, Missouri specifically for kids with bleeding disorders. This is free of charge to the camper and his family. Networthy, Inc.

114. Hemophilia Of Indiana - Home HomePage . Welcome! hemophilia of Indiana, Inc. has a 40year history of serving persons with bleeding disorders throughout Indiana http://www.hemophiliaofindiana.org/

About Us Programs/Services Benefits Events and Projects News ... Home document.write(menu.div) HomePage Welcome! Hemophilia of Indiana, Inc. has a 40-year history of serving persons with bleeding disorders throughout Indiana while working toward the ultimate goal... A CURE.

115. HealingWell.com Library - News And Articles HealthPortal Diseases and Conditions Genetic Congenital hemophilia. Gene Therapy for hemophilia Passes Test Altered cells may correct genetic flaw. http://healingwellhemonco.subportal.com/health/Diseases_and_Conditions/Genetic_C

Search Site: Search Web: HealthPortal Diseases and Conditions Genetic Congenital Hemophilia News: Discovery May Jumpstart Gene Therapy Technique fixes bad genes, leaves good alone Gene Therapy for Hemophilia Passes Test Altered cells may correct genetic flaw Sponsored by: Research Your Illness! Get Your Medifocus Medguide Bookstore Video Health Center Watch Doctor Produced Webcasts Free HealingWell Newsletter! Get our best features delivered directly to you. HTML Text AOL Sponsored by: Research Your Illness! Get Your Medifocus Medguide We subscribe to the HONcode principles of the Health On the Net Foundation Visit WellnessBooks.com Home Conditions ... Search HealingWell.com, Version 3.0 HealingWell.com

116. NovoSeven® US Patient Information En Español. Introduction hemophilia and inhibitors. More than 15,000 people in the United States have hemophilia. Of those, as many http://www.us.novoseven.com/content/us_vers/us_patient_information.asp

Change Country Sitemap Home Hemostasis ... Visit novonordisk-us.com Patient information Print What is hemophilia? How do you get hemophilia? What are the signs and symptoms of hemophilia? ... En Espa±ol Introduction: Hemophilia and inhibitors More than 15,000 people in the United States have hemophilia. Of those, as many as 20% can expect to develop inhibitors (antibodies) to their coagulation therapy. The following questions were prepared to explain what inhibitors are, how they affect choice of therapy, and how they can be "outsmarted" so that people with hemophilia are able to receive effective treatments. A glossary is also provided in this web site to help define terms that are related to hemophilia. This information is supplied to help patients and their families gain a better understanding of hemophilia and its treatment so that they can more easily discuss their questions and concerns with healthcare providers. What is hemophilia? Normally, when bleeding occurs, the blood launches into a 2-phase response to stop it. First, platelets become sticky and clump together at the site of the injury forming a platelet plug. Next, blood coagulation rapidly replaces this unstable platelet plug with a chemically stable fibrin clot. This takes place through a series of chemical reactions in the blood that involve substances called clotting factors. When there is a deficiency or absence of either blood factor VIII (factor 8) or factor IX (factor 9), it short-circuits the coagulation process resulting in uncontrolled bleeding that is called hemophilia. People lacking sufficient factor VIII have hemophilia A and people lacking sufficient factor IX have hemophilia B.

117. HemophiliaSupport.org : National Hemophilia Foundation, Delaware Valley Chapter http://www.hemophiliasupport.org/

118. InteliHealth: Hemophilia surgeries that is listed and crossreferenced in an AZ format. hemophilia. Reviewed by the Faculty of Harvard Medical School hemophilia http://www.intelihealth.com/IH/ihtIH?t=10115&p=~br,IHW|~st,408|~r,WSIHW000|~b,*

119. Disease Category Listing (379): Hemophilia Clinical Trials hemophilia. Arizona. Phoenix; Phoenix Children s Hospital and von Willibrand s Disease. The hemophilia Research Society. http://www.centerwatch.com/patient/studies/cat379.html

Clinical Trials: Hemophilia Arizona Phoenix; Phoenix Children's Hospital An Open-label Study to Characterize the Safety and Efficacy of BDDrFVIII Manufactured by the Albumin Free Process (ReFacto AF) in the Treatment of Previously Treated Patients (PTP) with Severe Hemophilia A California Duarte; City of Hope National Medical Center Restoration of Factor VIII/IX Function in Hemophelia A/B Patients with Nonsense Mutations Using Therapeutic Doses of Gentamicin: A Pilot Study Duarte; City of Hope National Medical Center Epidemiology and Treatment of Circulating Anticoagulants in Patients with Hemophilia and von Willibrand's Disease. - The Hemophilia Research Society Duarte; City of Hope National Medical Center The FENOC Study: A Cross-Over Clinical Study to Compare the Hemostatic Effect and Cost-Efficacy of a Single Dose of Feiba VH With That of Two Doses of Novo Seven in Hemophilia A Patients With Inhibitors Duarte; City of Hope National Medical Center An International, Randomized, Controlled Trial of Immune-Tolerance Induction Duarte; City of Hope National Medical Center

120. Haemostasis Forum This is a web site dedicated to supplying information on haemophilia to medical and health care professionals, providing an excellent opportunity to interact http://www.haemophilia-forum.org/

This is a web site dedicated to supplying information on haemophilia to medical and health care professionals, providing an excellent opportunity to interact with worldwide specialists in the field of haematology. Each month the contents of these pages are updated and reviewed by a panel of independent haemophilia specialists. Please click on Faculty Info. This forum is supported by an educational grant from Novo Nordisk A/S. If you would like to access this site, please click on 'Register Now' and submit your details. If you have already registered, please enter your username and password and click on 'accept'. Enter your details here please User name: Password: Cancel Accept Preview this site Register ... Forgot Password

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