41. A Little Web Page About Me... Personal information, photos, growing up with hemophilia and favourite links. http://hometown.aol.com/jscott420/JScott420.html

Main Other Disabilities htmlAdWH('7002568', '234', '60'); CNN, MSNBC, FOX NEWS Growing up and living with Hemophilia... I am 26 years old, living with severe Hemophilia A. As a kid, dealing with hemophilia and/or other types of bleeding disorders is a little bit more difficult than when you get older. When I was a young kid, I had to learn what my body could handle without causing internal bleeding. I wanted to play football, I wanted to wrestle, I wanted to jump on our trampoline with my older sister and cousins.. :) just had to learn the hard way in some of those cases.. well, this is me.. just chillin gettin ready to head out for a bit.. I'm a very romantic guy, always out to please my lady.. ;) My main interests are camping, rafting, hiking, rock climbing, boating, playing the lastest video games, fixin up my car, checkin out the stars at night when its clear. I am a counselor for a youth camp for kids with bleeding disorders, helping kids have a chance to experience activities that they otherwise would not have the opportunity to fully participate in. E-mail me for additional information about camp. Up Down Top Bottom Links I Recommend BAYER EQUALS DEATH.COM

42. Care For Life Provides products and therapies designed to treat hemophilia and other bleeding disorders. http://www.careforlife.com/

Post 9/11 Travel Form Because of heightened airport security, we have drafted a letter to help you in avoiding unnecessary inconveniences. Print this 2-page document prior to traveling. We take your privacy seriously! Our Patient Confidentiality statement shows you exactly how we protect you and your information. Are you a mental health care provider? Learn what Care for Life can offer you and your patients! Factor Mat These effective learning tools were developed for you by Care for Life's experienced clinical staff. Ask the Pharmacist Bleeding Disorders Infectious Disease States MentalHealth ... HIPPAA Privacy Notice To learn more about Care for Life¹s JCAHO accreditation, click here

43. Hemophilia: Nevada, Coumadin, Von Willebrand’s Disease & Deep Vein Thrombosis. Information about the organization, bleeding and clotting disorders, research projects and contact details. http://www.htcnevada.org

The Hemophilia and Thrombosis Center of Nevada 2020 W. Palomino Lane Suite 110 Las Vegas, Nevada 89106 since June 1 The Hemophilia and Thrombosis Center of Nevada (HTCN) was founded in 1997 as the first treatment center in the state of Nevada dedicated to the diagnosis and treatment of patients with bleeding or clotting disorders. The HTCN is a non profit corporation. We support ourselves with educational grants and research grants. All team members are employed through community organizations who donate their time to the treatment center. We currently care for patients and families throughout Nevada and the neighboring underserved regions. While clinics are held in Las Vegas, we attempt to coordinate care through the primary care physician's office locally. We have an active advisory board composed only of affected and concerned persons. This board promotes the mission of the HTCN and helps to guide the activities of the treatment center staff. If you are interested in volunteering at the HTCN or helping support us, please call the center at the number below. We always need help with our newsletters published three times per year and special events. Our Mission The HTCN is dedicated to improving the care of patients with bleeding or clotting disorders regardless of the ability to pay.

44. FACTOR FOUNDATION HOME Locating financial support for those dealing with hemophilia and related bleeding disorders. Membership. http://www.factorfoundation.org/

Foundation Report Spring 2004 View the latest newsletter... Factor Foundation Founder David B. Madeiros Leaves Legacy: As Founder and Executive Director of Factor Foundation of America... Factor Kids Factor Games FAQS Latest in ... Disorders

45. Hemophilia Update: 1997 hemophilia UPDATE 1997. Background effective. Antibody inhibitors are more likely to occur in individuals with severe hemophilia. http://www.nhlbi.nih.gov/health/public/blood/other/hemo_97.htm

HOME SITE INDEX CONTACT US TIPS ... Publications HEMOPHILIA UPDATE: 1997 Background Safety of Products Used in Treatment Over the last few years, improved procedures have led to high purity plasma-derived factor VIII and factor IX products which appear to be safer when subjected to viral inactivation procedures than were the previous lower potency materials. "First generation" recombinant factor VIII, produced without human plasma, became available in 1992. This added a measure of safety especially from non-enveloped viruses, although the need for human albumen to stabilize the factor left a tiny and currently hypothetical risk of human infectious agent transmission. The first recombinant factor IX preparation is now in clinical trials. It is a "second generation" product which is manufactured and packaged without any human or animal plasma proteins. A similarly produced factor VIII concentrate is under development. The Goal Future Directions Conclusion February 5, 1997

46. Welcome To HFA Our Mission. The hemophilia Federation of America is a national nonprofit organization that assists and advocates for the blood clotting disorders community. http://www.hemophiliafed.org/

Main Home FAQ ER Treatment Fundraising ... Patient Notification Symposium 2004 Information News Dateline Federation Legislative News Industry News Informational Items ... West Nile Virus Hepatitis C Archives Inside HFA Annual Report Board of Directors Board Service HFA Committees ... Board Members Only Membership Join the HFA Member Organizations Links Organizations Mailing Lists Industry Contact Us Home Office Staff E-mail Officers' E-mail Webmaster Our Mission The Hemophilia Federation of America is a national nonprofit organization that assists and advocates for the blood clotting disorders community. Our Vision The vision of the Hemophilia Federation of America is that the blood clotting disorders community has removed all barriers to both choice of treatment and quality of life.

47. Welcome To Hemophilia Health Services Why HHS Bleeding Disorders Bloodstone Magazine Just For Kids Terms HIPAA Privacy Policy (English) (Español) ©Copyright 2002 hemophilia Health Services http://www.accredohealth.net/hhs/

Home About Us FactorCare Why HHS Home About Us FactorCare Why HHS ... (English)

48. TSE - Transmissible Spongiform Encephalopathies List of all transmissible spongiform encephalopathies affecting humans. http://www.hemophilia.ca/en/4.2.php

TSE - Transmissible Spongiform Encephalopathies TSE - Transmissible Spongiform Encephalopathies What are TSE's Animal TSE's Human TSE's Risk of Transmitting TSE's

49. Home The hemophilia Foundation of Nevada is a nonprofit consumer advocacy and service organization founded in 1990 to help meet the vast education and support needs http://www.hemophilianevada.org/

Who we are: The Hemophilia Foundation of Nevada is a nonprofit consumer advocacy and service organization founded in 1990 to help meet the vast education and support needs of the bleeding disorders community in Nevada. Our Mission Statement: "To improve the quality of care and life for persons with inherited bleeding disorders, including hemophilia and von Willebrand's Disease , through education, peer support, and advocacyl". Our services are state-wide and include: Education Disseminate information on inherited bleeding disorders and their complications, including hepatitis and HIV/AIDS, to consumers, health care providers and the public. Sponsor seminars on inherited bleeding disorders and their complications. Publish a newsletter, "Hemophilia Foundation News and Views". Maintain a large Library of brochures, books, articles, videos and audio tapes Peer Support Host picnics and social events. Telephone Support Network Resources/Referral Maintain listings for specialized hemophilia care and emergency clotting factor acquisition Sponsor youth to Hemophilia Camps.

50. GeneReviews: Hemophilia A Your browser does not support HTML frames so you must view hemophilia A in a slightly less readable form. Please follow this link to do so. http://www.geneclinics.org/profiles/hemo-a/

Your browser does not support HTML frames so you must view Hemophilia A in a slightly less readable form. Please follow this link to do so.

51. GeneReviews: Hemophilia B Your browser does not support HTML frames so you must view hemophilia B in a slightly less readable form. Please follow this link to do so. http://www.geneclinics.org/profiles/hemo-b/

Your browser does not support HTML frames so you must view Hemophilia B in a slightly less readable form. Please follow this link to do so.

52. Matt Klimshuk's Home Page Information on von Willebrand's Disease and links to von Willebrand's and hemophilia sites. http://www.mindspring.com/~mattrk/

"Information is Power" Providing Information on von Willebrand's Disease Go To Personal Information What Is Von Willebrand's Disease? Von Willebrand's Disease (vWD) is not a disease at all, but the most common genetic disorder in the world (classic hemophilia is more well known due to its connection with the royal families of Europe). In fact, vWD is times more common than classic hemophilia! It was discovered by a Finnish doctor in the 1920s, who named it after himself and called it a disease. Later, Dr. von Willebrand discovered in truth that the illness was linked to a missing blood factor, which assists with the clotting of blood. He named the factor after himself as well - von Willebrand's Factor (vWF). The disorder is not sex linked (autosomal), meaning that both men and women can have it, but some can be carriers only and not manifest any of the symptoms. VWD occurs when the body makes either inferior vWF or none at all. Other blood factors can be short-changed as well. Generally, vWD is divided into three types: Type I (mild), Type II (Medium) and Type III (severe). The lower the type, the less the symptoms will occur and the less strenuous they will be. What Are the Symptoms?

53. Bayer Hemophilia Awards Program Bayer hemophilia Award Recipients for 2002/2003, who gathered in Birmingham, UK, during the recent ISTH congress. For more than http://www.bayer-hemophilia-awards.com/index.cfm

Application Process Deadlines for 03/04 Awards Review Process Research Priorities ... Browser Requirements Attention: Your browser does not support Javascript, or Javascript support has been disabled. This web site utilizes the latest Internet technology, and in order to experience the full functionality of this web site you will need to ensure that Javascript is enabled. Bayer Global Bayer US General Conditions of Use Regulatory Statement ... SEE DEADLINES FOR 03/04 AWARDS Bayer Hemophilia Award Recipients for 2002/2003, who gathered in Birmingham, UK, during the recent ISTH congress. For more than 30 years, scientists and researchers at Bayer Biological Products have been dedicated to developing and producing novel treatments that extend and enhance the lives of people with hemophilia. Bayer believes the Hemophilia Awards Program can improve the lives of patients with hemophilia by supporting research and education worldwide.

54. Canadian Hemophila Society: BC Chapter Information about the organization and its mission, news archive, links and contact details. Also an in depth look at the disease itself including management. http://www.hemophiliabc.ca

Home Our Mission Who We Are About Hemophilia Pictures ... Contact Latest News You are invited to join us on Friday, June 20, 2003, when we host the first annual BC Hemophilia Charity Golf Classic We tee off at Swan-E-Set Bay Resort and Country Club with a 12:30 shotgun start. After a round of golf and lunch, the day wraps up in style with a banquet dinner, speeches and charity auction. Come out as an individual golfer or really get into the game and enter your team of four to support the BC Chapter of the Canadian Hemophilia Society. Ongoing Events Our Charity Car Donation Program is a way for you to turn your unwanted vehicle into a cash donation for the Hemophilia Society of BC. A-Part Auto Wrecking will arrange for pick up of your car, processes the sale of your vehicle, and forwards the proceeds directly to Hemophilia BC. For more information please contact: A-Part Auto Wrecking Ltd . 13491 Mitchell Road Richmond, BC, V6V 1M7

55. Royal Hemophilia Pedigree A Pedigree of hemophilia in the Royal Families of Europe. Selected members of the pedigree I1 = King George III; III-1 and III-2 http://www.people.virginia.edu/~rjh9u/roylhema.html

A Pedigree of Hemophilia in the Royal Families of Europe Selected members of the pedigree I-1 = King George III III-1 and III-2 = Prince Albert and Queen Victoria IV-5 and IV-6 = Alice of Hesse and Ludwig IV of Hesse V-13 and V-14 = Alix and Nicholas II (Tsar of Russia) VI-16 = Alexei VIII-1 = Prince Charles A Case Study of Hemophilia An Alternate Diagnosis World Federation of Hemophilia National Hemophilia Foundation ... The British Monarchy This document maintained by Robert J. Huskey Last updated on August 11, 1998.

56. Copernicus Therapeutics, Inc. Developing human gene therapy products for cystic fibrosis and hemophilia B and DNA vaccinations. The company creates proprietary PLASmin Complexes which are efficient nonviral vectors and REPLIsome vectors which allow replication of non-viral vectors. http://www.cgsys.com/

You will be redirected if not click here HOME

57. Hemophilia Pedigree A Pedigree of hemophilia. Fortunately, the family shows genetic segregation for a RFLP polymorphism which is tightly linked with the hemophilia gene. http://www.people.virginia.edu/~rjh9u/hemaped1.html

A Pedigree of Hemophilia The sister (II-1) of the boy with hemophilia (II-2) will be getting married soon and wants to know if she is a carrier for the hemophilia allele. Fortunately, the family shows genetic segregation for a RFLP polymorphism which is tightly linked with the hemophilia gene. The unaffected father (I-1) has the 3 kb polymorphism on his X chromosome (F) and must contribute that to each of his daughters. The mother has both the 3 kb (M2) and the 4 kb (M1) polymorphisms, one on each X chromosome. Since the affected son must have received his X chromosome from his mother and he has the 3 kb polymorphism, the hemophilia allele (indicated by a red area on the fragment M2) must be segregating with the 3 kb (M2) polymorphism carried by the mother. So, the ready to be married daughter received the X with the 4 kb polymorphism from her mother and an X with the 3 kb polymorphism from father. Since she didn't receive the 3 kb polymorphism from her mother, she is not a carrier for hemophilia. On the other hand, the other daughter (II-3) is homozygous for the 3 kb polymorphism receiving one copy from her father and the other copy (with the hemophilia allele linked to it) from her mother and she is a carrier for hemophilia.

58. ïÂÝà ÓÔ×Ï âÏÌØÎÙÈ çà ÍÏÆÉÌÉà Ê óÁÎËÔ-ðà Ôà ÒÂÕÒ ÐŸÑ€Ð¾Ð±Ð»ÐµÐ¼Ñ‹ гемофилии в СанктПетербурге, деятельность местного Общества БольныѠГемофилией. Актуальные материалы, связанные с гемофилией, для врачей и больныѠ, подписка на новости, форумы. http://hemophilia.spb.ru/

59. THE MERCK MANUAL, Sec. 11, Ch. 131, Hemostasis And Coagulation hemophilia. About 50% of cases of severe hemophilia A result from a major inversion of a section of the tip of the long arm of the X chromosome. http://www.merck.com/mrkshared/mmanual/section11/chapter131/131c.jsp

60. HemophiliaVillage.com An information resource on the bleeding disorder hemophilia and its causes, treatment and management. Also includes information on hemophiliaVillage. http://www.hemophilia-village.net/

and our Terms and Conditions www.wyeth.com

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