1. Hemophilia Of The Sunshine State Are You Newly Diagnosed? Adult Child. hemophilia of the Sunshine State is a hemophilia Service Organization designed to accept the challenge of today's hemophilia community. http://www.hemophilia.com/

Are You Newly Diagnosed? Adult Child Hemophilia of the Sunshine State is a Hemophilia Service Organization designed to accept the challenge of today's hemophilia community. Our mission is to understand and meet the needs of persons affected by hemophilia, their families, clinicians, and comprehensive treatment centers. Our goal is to offer the hemophilia community the most cost effective and comprehensive range of products and services possible. JCAHO Accredited Extranet

2. Hemophilia hemophilia. Objectives. By the end of the course the student will be familiar with A. Medical advancements and prospect for the future. B. Management of hemophilia and treatments for the disease. C . http://www.medceu.com/tests/hemophilia.htm

HEMOPHILIA Objectives By the end of the course the student will be familiar with: A. Medical advancements and prospect for the future B. Management of Hemophilia and treatments for the disease C. Safety products for Hemophiliacs Hemophilia is the oldest known hereditary bleeding disorder. There are two types of hemophilia, A and B (Christmas Disease). Low levels or complete absence of a blood protein essential for clotting causes both. Patients with hemophilia A lack the blood clotting protein, factor VIII, and those with hemophilia B lack factor IX. There are about 20,000 hemophilia patients in the United States. Each year, about 400 babies are born with this disorder. Approximately 85% have hemophilia A and the remainder has hemophilia B. The severity of hemophilia is related to the amount of the clotting factor in the blood. About 70% of hemophilia patients have less than one percent of the normal amount and, thus, have severe hemophilia. A small increase in the blood level of the clotting factor, up to five percent of normal, results in mild hemophilia with rare bleeding except after injuries or surgery. Enormous strides made in assuring the safety of the blood supply and in the genetic aspects of hemophilia research allow us now to focus on issues, which will improve the quality of life of the hemophilia patient and, ultimately, develop a cure.

3. National Hemophilia Foundation Broadway The Golden Age to benefit hemophilia and Bleeding Disorders. Walk the red carpet at the starstudded premiere of a major http://www.hemophilia.org/

May 18, 2004 NHF Board Update Sign up to to receive the latest news via e-mail Save the Date! November 4 to 6, 2004 Hyatt regency Dallas at Reunion Dallas, TX To receive a 10%* discount on your registration fee, Travel Grants cover any of the following: airfare, hotel, per diem and related expenses. Walk the red carpet at the star-studded premiere of a major new motion picture on June 7th in New York to benefit NHF! NHF's Fourth Annual Gala NHF's Fourth Annual Gala, to be held in New York City on June 12, 2004, will honor seven NHF chapters for their impressive history of fifty or more years of service to the bleeding disorders community. The Delaware Valley Chapter, Hemophilia Foundation of Illinois, Hemophilia Foundation of Maryland Inc., Mary M. Gooley Hemophilia Center, Northern Ohio Hemophilia Foundation, Inc., the Western Pennsylvania Chapter of NHF and the Hemophilia Foundation of Southern California will be honored. New Materials and Resources Available for Women with Bleeding Disorders on Project Red Flag Website View the wide range of new resources that are available for women with bleeding disorders on the Project Red Flag website, including a video news release, press kit, von Willebrand's Disease awareness video and medical professional outreach materials.

4. World Federation Of Hemophilia The World Federation of hemophilias comprehensive web site offers a wealth of information for the global hemophilia community. It includes publications on hemophilia and other clotting World Federation of hemophilia. 1425 René Lévesque Blvd 2004 The April issue of the World Federation of hemophilia's Safety and Supply News features the following updates and http://www.wfh.org/

English Français Español Home ... WFH Library / Publications World Federation of Hemophilia 1425 René Lévesque Blvd. W. Suite 1010 Montréal, Québec H3G 1T7 Canada Tel.: +1 (514) 875-7944 Fax: +1 (514) 875-8916 E-mail: wfh@wfh.org Hemophilia 2004 World Congress, Bangkok, Thailand 17-21 October 2004 Planning your trip to Bangkok? Visit the congress section for on-line registration travel tips special airfares official congress hotels tours program information and more! AVIAN FLU (bird flu) Click here to read the WFH's statement on the Avian flu. Chronic Hemophilic Synovitis: The Role of Radiosynovectomy The purpose of this monograph is to review the pathogenesis of chronic hemophilic synovitis, its clinical characteristics and therapeutic options, with special emphasis on radiosynovectomy performed with 32P Chromic Phosphate. Pathogenesis of Hemophilic Clinical Characteristics of Hemophilic Arthropathy (read more ) Hemophilia Association of New York - Requesting Proposals for Research Grants To study novel methods of immune tolerance for hemophilia A patients with high titer inhibitors. Proposals should involve laboratory scientist/clinician collaboration and may be multi-institutional. They should be designed with the goal of a translational clinical trial being feasible at the end of the two-year funding period.

5. Hemophilia Galaxy Support information specifically designed for people with hemophilia, their families, and health care professionals. http://www.hemophiliagalaxy.com

6. Canadian Hemophilia Society / Société Canadienne De L'hémophilie Translate this page Dedicated to improving the quality of life for persons with hemophilia and other inherited bleeding http://www.hemophilia.ca/

7. Hemophilia Resource Network Clinical care pathways and administrative services to hematologists managing hospitalized persons with hemophilia. http://www.hemophilia.net/

The Hemophilia Resource Network (HRN) is a consultation service working with hematologists, hospitals, and insurers. To facilitate optimum inpatient management for persons with bleeding disorders, HRN provides: Clinical Care Pathways Educational Resources for Healthcare Professionals Outcome Analyses This site includes case presentations, journal summaries, and links to other sites focusing on hemophilia. While this site is primarily directed toward healthcare professionals, please visit the Hemophilia Awareness page for information of more general interest. Home Products and Services Contact Information For Hematologists ... Hemophilia Awareness Please bear with us as this site is still under construction. Questions or problems regarding this web site should be directed to webmaster@hemophilia.net Last Modified January 17, 1998.

8. MedlinePlus: Hemophilia hemophilia Frequently Asked Questions hemophilia ( World Federation of hemophilia) Also available in Spanish. hemophilia ( Mayo Foundation for Medical Education http://www.nlm.nih.gov/medlineplus/hemophilia.html

@import url(http://www.nlm.nih.gov/medlineplus/images/advanced.css); Skip navigation Other health topics: A B C D ... List of All Topics Hemophilia Contents of this page: General/Overviews Coping Diagnosis/Symptoms Treatment ... Teenagers Search MEDLINE/PubMed for recent research articles on Hemophilia You may also be interested in these MedlinePlus related pages: Bleeding Disorders Blood/Lymphatic System Genetics/Birth Defects General/Overviews Frequently Asked Questions: Hemophilia (World Federation of Hemophilia) Also available in: Spanish Hemophilia (Mayo Foundation for Medical Education and Research) Hemophilia in Pictures (World Federation of Hemophilia) Also available in: Spanish Hemophilia: Facts for Families (World Federation of Hemophilia) Clinical Trials ClinicalTrials.gov: Blood Coagulation Disorders (National Institutes of Health) ClinicalTrials.gov: Hemophilia A (National Institutes of Health) Coping Information for Teachers and Childcare Providers (National Hemophilia Foundation) Tips for Travellers (World Federation of Hemophilia) Diagnosis/Symptoms Symptoms and Diagnosis (Mayo Foundation for Medical Education and Research) Specific Conditions/Aspects Bleeding Disorders: Financial and Insurance Issues (National Hemophilia Foundation) Factor I Deficiency (Afibrinogenemia) (National Hemophilia Foundation) Factor II Deficiency (Prothrombin) (National Hemophilia Foundation) Factor V Deficiency (Mayo Foundation for Medical Education and Research) Factor VII Deficiency (Proconvertin or Stable Factor) (National Hemophilia Foundation)

9. Iranian Hemophilia Society Resources and news. http://www.hemophilia.org.ir/

Skip intro ... Iranian Hemophilia Society Skip intro ... Iranian Hemophilia Society

10. HEMOPHILIA the Public ». Publications. hemophilia. Background hemophilia is the oldest known hereditary bleeding disorder. There are two types of hemophilia, A and B (Christmas Disease). Both http://www.nhlbi.nih.gov/health/public/blood/other/hemophel.htm

HOME SITE INDEX CONTACT US TIPS ... Publications HEMOPHILIA Background Challenges : The most important challenges facing the hemophilia patient, health care provider, and research community today are: Safety of products used for treatment; Management of the disease including inhibitor formation, irreversible joint damage, and life-threatening hemorrhage; and Progress toward a cure. Safety of Products Used for Treatment : In the past 10 to 15 years, advances in screening of blood donors, laboratory testing of donated blood, and techniques to inactivate viruses in blood and blood products have remarkably increased the safety of blood products used to treat hemophilia. Although treatment-related infection with the AIDS virus or most of the hepatitis viruses is a thing of the past, these measures do not completely avoid viruses such as hepatitis A and parvo virus. These infections are rare; nevertheless, they can pose a threat. Researchers are working to improve procedures to destroy these viruses. To ensure absolute safety from transfusion-transmitted viruses and other agents, hemophiliacs may now be treated with factor VIII which has been produced through biotechnology. This product, recombinant factor VIII, is manufactured by a process entirely free of blood products. It, thus, contains only the factor VIII necessary to treat the disease and none of the other components of blood or attendant unwanted agents. Although the cost of this product exceeds that of the blood-derived product, it is clearly the treatment of choice for those, such as newborns, who have not yet been exposed to blood products. A factor IX product has also been produced by such a process and is currently in clinical trials. Once this product is shown to be safe and effective, all hemophiliacs will have available a treatment for bleeding which is totally free of any contaminating agents.

11. The Body: Hemophilia And HIV/AIDS A collection of resources related to hemophiliacs and HIV, including topics such as the safety of the blood supply and tained blood products, from The Body. http://www.thebody.com/whatis/hemophilia.html

Hemophilia and HIV/AIDS HIV Hemophiliacs: "Too Easy to Forget" (December 2, 2003) Meet Robert James, one of more than 1,200 British hemophiliacs who received HIV-infected blood products in the 1980s From BBC News New Hemophilia Treatment Has Virtually No HIV Transmission Risk (August 8, 2003) In The Prevention News Update , from Centers for Disease Control and Prevention Lawsuit Alleges Companies Sold Contaminated Blood Overseas (June 3, 2003) In The Prevention News Update , from Centers for Disease Control and Prevention Report: Documents Show Bayer Unit Sold HIV-Risky Blood-Clotting Medicine Abroad (May 22, 2003) In The Prevention News Update , from Centers for Disease Control and Prevention World-Wide Legal, Financial, and Public Health Consequences of HIV Contamination of Blood and Blood Products in the 1980s and 1990s (March 5, 2002) From Annals of Internal Medicine The Forgotten Ones: Chatting with Jack Silliman, a Hemophiliac with HIV/AIDS (May 2001) From AIDS Project Los Angeles Ricky Ray Fund Begins Payments to AIDS Patients and Families (October 2000) From Body Positive HHS Begins Notifying Ricky Ray Hemophilia Relief Fund Recipients of Payments (August 28, 2000)

12. Hemophilia Foundation Of Michigan Information about the organization, the services offered, education, research, camp programs and events. http://www.hfmich.org/

Get Involved Events Medical Services Client Services ... Home HIGHLIGHTS Swinging for Smiles Golf Benefit Register Online NEW Von Willebrand See video NEW Reflections on Path Free Memorial Membership 2005 Re-New Online NEW 2002 Building Fire See video Camp Bold Eagle Get Application HFM construction See Site Photos Ivan C. Harner Watch the Comcast Newsmakers video Must See Camp Bold Eagle See our video We are building a new home to serve the bleeding disorders community. The HFM building campaign supports this initiative. We need your help. Learn more at, www.hfmich.org/BuildingCampaign.cfm Golf Outing and Dinner Auction Supporting Camp Bold Eagle The Hemophilia Foundation of Michigan annual charity golf outing and dinner auction, Swinging for Smiles will take place on Monday, June 21st 2004 at the Eagle Crest Resort ( www.eaglecrestresort.com at 1275 South Huron Street Ypsilanti Michigan Golfer spots are filled, but openings are still available for the dinner and auction. CLICK HERE to learn more and register online!

13. Welcome To Hemophilia Ontario This website is generously supported in part by Worldwide Online. hemophilia Ontario welcomes your comments on our site. http://www.hemophilia.on.ca/

news: June 2/04 Camp 2004 updates ! ... [more] Mar 29/04: Annual General Meeting and workshops, April17 ... [more] This website is generously supported in part by Worldwide Online Hemophilia Ontario welcomes your comments on our site.

14. Hemophilia hemophilia resources, support groups, clinics with genetic counselors and geneticists hemophilia. National hemophilia Foundation. 110 Greene St, Room 303 Web site www.hemophilia.org. World http://www.kumc.edu/gec/support/hemophil.html

Hemophilia National Hemophilia Foundation 110 Greene St, Room 303 New York, NY 10012 Phone: (800) 424-2634 or (212) 219-8180 Contact: Cathy Crosby Fax: (212) 966-9247 Web site: www.hemophilia.org World Federation of Hemophilia 1310 Greene Avenue, Suite 500 Montreal, Canada H3Z 2B2 Phone: (514) 933-7944 Fax: (514) 933-8916 E-mail: wfh@wfh.org Web Site: www.wfh.org/ World Federation Links International Resources: Association Française des Hémophiles , France Association for Persons with Hemophilia (Russia) Belgian Haemophilia Society Canadian Hemophilia Society Danmarks Bløderforening , Denmark The German Haemophilia Association The Haemophilia Society , United Kingdom Haemophilia Foundation Australia Icelandic Haemophilia Society Italian Hemophilia Foundation Federazione delle Associazioni Emofilici - ONLUS Netherlands Hemophilia Society Norwegian Haemophilia Society Spanish Hemophilia Federation / Federación Española de Hemofilia South African Haemophilia Foundation ... Swiss Hemophilia Society Other information Hemophilia Page (Bleeding Disorders, Haemophilia)

15. Bayer Hemophilia Village 血友痠の患耠家族や学校の教師向けの疾患解説と惠報誌を掲載。メーカー提供サイト。 http://www.bayer.co.jp/byl/hemophilia/

Bayer Global Bayer Pharma Bayer in Japan Bayer Yakuhin ... ‚²—˜—pã‚Ì’ˆÓ ŒŒ—F•aŠ³ŽÒ‚³‚ñŒü‚¯î•ñŽuƒGƒR[v’ÊŠª51†‚ðŒfÚ‚µ‚Ü‚µ‚½Bi2004.3.29j ŒŒ—F•aŠ³ŽÒ‚³‚ñŒü‚¯ î•ñŽuƒGƒR[v

16. HemophiliaVillage.com Wyeth. © 2004, Wyeth. Please read our Privacy Policy and our Terms and Conditions. www.wyeth.com. http://www.hemophiliavillage.com/

and our Terms and Conditions www.wyeth.com

17. HFI - Hemophilia Of Illinois Supports those affected by hemophilia, related bleeding disorders, and complications of these disorders or their treatment. Activities and events, programs and services offered are featured. Offices in Chicago. http://www.hemophiliaillinois.org/

18. Medical And Hemophilia References Medical And hemophilia References. Hope these references are useful if you know any more links that fit in please email me. Hot Links. COTT. hemophilia Page. http://www.geocities.com/HotSprings/3160/medpage.html

19. International Hemophilia Club International hemophilia Club, a platform for people suffering from hemophilia to interact and discuss things related to this bleeding disorder like Hematology http://www.geocities.com/hemophiliaclub/

20. National Hemophilia Foundation | Research provide Career Development Awards for projects that would yield scientific information contributing to a cure for bleeding disorders such as hemophilia and von http://www.hemophilia.org/research/research.htm

Treatment Guidelines Gene Therapy HOME NHF funds a broad range of research. Funds raised under NHF's It's Time for a Cure campaign are used to provide Career Development Awards for projects that would yield scientific information contributing to a cure for bleeding disorders such as hemophilia and von Willebrand disease. Areas of investigation may include, but are not limited to, gene therapy. Studies may be carried out at the subcellular, cellular, animal, or patient level. NHF has also fostered bleeding disorders research by awarding Judith Graham Pool Postdoctoral Fellowships to physicians and scientists embarking on research careers. The 2002-2003 recipients of NHF's Judith Graham Pool Fellowship and the Career Development Award have been awarded. Click here to read more about the recipients and their projects. The National Hemophilia Foundation Clinical Fellowship Program, funded through the generous support of Baxter Healthcare Corporation, is intended to increase the number of skilled clinicians committed to providing comprehensive care for individuals with bleeding and clotting disorders and to prepare candidates for academic careers. The program is designed for licensed physicians who are seeking hands-on training in bleeding and clotting disorders care and research. Training will take place in qualified hemophilia/thrombophilia treatment centers in the United States.

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