81. Copernicus Therapeutics, Inc. Developing human gene therapy products for cystic fibrosis and hemophilia B and DNA vaccinations. The company creates proprietary PLASmin Complexes which are efficient nonviral vectors and REPLIsome vectors which allow replication of non-viral vectors. http://www.cgsys.com/

You will be redirected if not click here HOME

82. Cystic Fibrosis Information cystic fibrosis Information site containing information about CF, it s symptoms, diagnosis, treatment, coping, helpful links to other sites and hope! http://pw2.netcom.com/~yourman/webdoc1.htm

83. Walkentalk - Christopher Walken Home Page - Neptune Pictures Film and video company dedicated to the art of storytelling. Projects include Thunderpoint, The Seventh Day and the cystic fibrosis film SWAY. http://neptunepictures.com/

"BEST SHORT WE'VE SEEN THIS YEAR! A hilarious short film.... Wowee wow wow!" Film Threat "Brilliantly funny!" Indie Slate Magazine UPDATE 6/7/04: WALKENTALK wins Best Short Film at the Annapolis Reel Cinema Festival ENTER SITE

84. Surviving Cystic Fibrosis 1. Don t read any newspaper or book printed prior to 1992. cystic fibrosis information changes very rapidly. Surviving cystic fibrosis In Other States. http://pw2.netcom.com/~yourman/cystic_a.htm

First things first..... 1. Don't read any newspaper or book printed prior to 1992. Cystic Fibrosis information changes very rapidly. There has been a tremendous amount of research in the last few years to give you an even brighter outlook toward the future. 2. Talk with your pediatrician. Chances are he/she may not be aware of the recent strides made with CF and paint the picture of gloom. That's not the way anymore! 3. Gather as much information about the illness and become knowledgeable about it. Ask questions.....Tell family and friends and mostly talk to other people in the same situation. You are not the only one! Many publications can be found on the internet. One good source is Amazon Books . Use their search function using cystic fibrosis. 4. Talk to other people with either CF or parents of children with CF. There are many exciting tips that you can learn from each other. 6. Contact Special Child Health Services Case Management Unit within your county. Every "special child" with either a birth defector serious illness must be registered with SCHS. The main resource number is in Trenton at 609-292-5676. They can refer you to the office in your county.

85. Www2.dal.ca/distsite/frank/cf.html GeneReviews cystic fibrosisYour browser does not support HTML frames so you must view cystic fibrosis in a slightly less readable form. Please follow this link to do so. http://www2.dal.ca/distsite/frank/cf.html

86. Cystic Fibrosis - Information And Support Resources Page with basic information on cystic fibrosis symptoms, incidence in people of Jewish descent (Ashkenazi Jews), diagnosis, treatment, and screening. http://www.mazornet.com/genetics/cystic_fibrosis.asp

Jewish Genetic Diseases A Mazornet Guide VISIT MazorNet's other Jewish Guides The MazorNet-Jewish Celebrations Kosher Restaurant Guide The MazorNet- Jewish Celebrations Vendor Directory ( ... Photographers, Kosher Caterers, Bridal Gowns, and Much More) Important Information Home Page Genetic Counseling and Screening Genetic Screening Laboratories - A Directory A Brief Key to Basic Genetic ... s Select Disorder Bloom's Syndrome Breast and Ovarian Cancers Breast Cancers - Prevention and Resources Canavan Disease ... Ulcerative Colitis Recommended Reeading Genetic Diversity Among Jews - Diseases and Markers at the DNA Level Provides an authoritative, up-to-date account of the impact of molecular genetics on our understanding of genetic diseases prevalent among Jews. Jewish Genetic Disorders : A Layman's Guide Guide to genetic disorders that tend to affect the Jewish population more than the non-Jewish, including a short history of the Jews and basic facts concerning genetics and genetic disorders. Interactive Jewish Genetic Diseases Boards Cystic Fibrosis Symptoms Incidence in People of Jewish Descent Diagnosis Treatment ... Resources and More Cystic Fibrosis is an inherited disorder that causes problems with breathing and digestion. The majority of people stricken with Cystic Fibrosis are diagnosed in childhood.

87. The Boomer Esiason Foundation - Fighting Cystic Fibrosis Call To Action S.1053 Genetic Information Nondiscrimination Act Last October the Senate in a bipartisan vote unanimously passed S.1053 Genetic Information http://www.esiason.org/

AC_VHost_Embed_9808(188,250,'FFFFFF',1,1,134729,0,0,0,'85f12d7de130ee79a59f119fbc25081f',6); Samsung's Four Season's of Hope Charity Webcast- June 7, 2004 at 8:30 pm (EDT). Click here for webcast Call To Action: S.1053 Genetic Information Nondiscrimination Act Last October the Senate in a bipartisan vote unanimously passed S.1053 Genetic Information Nondiscrimination Act of 2003. Since then no action has been taken by our representatives in Congress. We need your help in getting this important legislation passed into law, write your U.S. representative and ask them to take action and pass S.1053. Contact Your Elected Officia ls Sample Letter (MS WORD .DOC) S.1053 Genetic Information Nondiscrimination Act of 2003

88. Cystic Fibrosis cystic fibrosis national and international groups, clinics with genetic counselors and geneticists. Image cystic fibrosis. Cystic http://www.kumc.edu/gec/support/cystic_f.html

Cystic Fibrosis Cystic Fibrosis Foundation 6931 Arlington Road Bethesda, MD 20814 Phone: (800) 344-4823 [FIGHT-CF] or (301) 951-4422 Fax: (301) 951-6378 E-mail: info@cff.org Web site: www.cff.org/ Chapters and Care Centers Teachers Guide to Cystic Fibrosis Legislataive Action ... What is CF International Sites: Association Quebecoise de Fibrose Kystique , Canada, french Belgian Cystic Fibrosis Association , flemish, french Cystic Fibrosis Foundation Canada, research, chapters, clinics, therapy english, french Cystic Fibrosis Worldwide merge of International Cystic Fibrosis Adults (IACFA) and International Cystic Fibrosis (Mucoviscidosis) Association ICF(M)A or (ICFMA) CF - Selbsthilfe Bundesverband e.V , german la Fibrosis Quistica (FQ), JM Pulido, Spain Fibrosis Quistica , AE González Menéndez, Spain Landsforeningen til Bekæmpelse af Cystisk Fibrose Danish CF Association Mukoviszidose e.V. (German CF Association) Nederlandse Cystic Fibrosis Stichting (Dutch CF Association, The Netherlands, English section) S.O.S. Mucoviscidose

89. 112 Voor Cystic Fibrosis [Spreek Je Moerstaal.nl] Actiedag van hulpverleners voor cystic fibrosis. http://www.112actie.zaandamnet.nl/

112 voor Cystic Fibrosis Actiedag van hulpverleners voor CF patienten Deze pagina vereist frames en javascript....

90. Cystic Fibrosis: What Is It? Your Genes, Your Health, DNA Learning Center s multimedia guide to genetic, inherited disorders cystic fibrosis, autosomal recessive, mutation, genetic http://www.ygyh.org/cf/whatisit.htm

Concept 1 : Children resemble their parents. Learn how Mendel worked out inheritance in pea plants. Concept 10 : Chromosomes carry genes. Find out how genes are arranged on chromosomes. Concept 27 : Mutations are changes in genetic information. Find out how mutations affect gene expression.

91. Connecticut Children's Medical Center: Pulmonary Medicine Provides services for children of all ages with asthma, apparent life threatening events, and bronchopulmonary dysplasia, as well as children and adults with cystic fibrosis. http://www.ccmckids.org/departments/pulm.htm

Staff Office Locations The Pulmonary Division provides services for children of all ages with asthma , apparent life threatening events, and bronchopulmonary dysplasia, (the Chronic Infant Lung Disease (ChILD) Program). The Division also provides care for children and adults with cystic fibrosis as well as for children with all types of acute and chronic respiratory disease. Fiberoptic bronchoscopy, pulmonary function testing for infants and older children including exercise testing and bronchial challenge testing can be performed by members of the division. Sweat tests may be ordered by contacting the Division. Office Locations Location: 2B Telephone: 860.545.9440 After hours: 860.545.9440 Pulmonary Function Lab: 860.545.9447 Fax: 860.545.9445 Home About Us Children Departments ... Website Information

92. Cystic Fibrosis Carrier Testing: The Decision Is Yours This booklet was prepared to give you information about cystic fibrosis (CF) and CF carrier testing. Carrier What is cystic fibrosis? Cystic http://www.acog.org/from_home/wellness/cf001.htm

T his booklet was prepared to give you information about cystic fibrosis (CF) and CF carrier testing. Carrier testing is being made available to you on a voluntary basis. Testing can be right for some people and not right for others based on many factors. These include your level of risk, your family situation, plans and needs, and your religious and spiritual beliefs. Whether or not you are tested is a personal decision that belongs to you and your baby's father. Before deciding, you should read this booklet so you understand what CF is and what carrier testing is about. On page 9 of this booklet, there is space for you to write down any questions you may have. Whether or not you are tested is a personal decision that belongs to you and your baby's father. If, after reading the booklet, you want to be tested, or simply want to know more about the test, you should tell your health care provider that you are interested in learning more about CF carrier testing. You may also want to check to make certain that the cost of CF testing is covered by your insurance company. What is cystic fibrosis?

93. Informationdocuments From the European Thematic Network for cystic fibrosis. In depth information in PDF. http://www.med.kuleuven.ac.be/cme/cf/Informationdocuments.htm

European Thematic Network for Cystic Fibrosis Information documents A manual for Cystic Fibrosis patients and their families A manual for the CF patients and their families has been designed to provide cystic fibrosis-patients and their families a better understanding of the disease. This leaflet is part of a European initiative undertaken by the European Concerted Action for Cystic Fibrosis. The text is based on the manual of the World Health Organisation (WHO) and the International Cystic Fibrosis (Mucoviscidosis) Association (ICF(M)A). The manual includes the following topics: what is cystic fibrosis what happens in the lungs what happens in the pancreas when to suspect cystic fibrosis how is cystic fibrosis inherited from the parents treatment of cystic fibrosis hospital relatives and friends you are not alone These leaflets are presently available in sixteen languages: English French German Spanish ... Polish and Macedonian version We would like to thank the translators (translation bureau of AstraZeneca Diagnostics, Milan Macek Jr., Katarina Stepankova, Adriana Zigova, Antonija Redovnikovic, Branko Simat, Jadranka Sertic, Zita Krumina, Dragica Radojkovic, Tatyana K. Kascheeva, Ludmila A. Livshits, Natalia V. Gryschenko, Krisztina Nemeth, Gyorgy Fekete, V. Kucinskas, A. Utkus, J. Kasnauskiene, K. Konciute, Michal Witt, Lucyna Majka, Svetlana Koceva) for all their efforts and cooperation, Orchid, Innogenetics and Nanogen for printing these manuals!

94. MayoClinic.com - Cystic Fibrosis It used to be that most people with cystic fibrosis didn t live beyond their teens. May 20, 2004. More Information. cystic fibrosis By Mayo Clinic staff Overview http://www.mayoclinic.com/invoke.cfm?id=DS00287

95. ClinicalTrials.gov - Information On Clinical Trials And Human Research Studies: Search results for cystic fibrosis ALLFIELDS are shown below. 1. Recruiting, Tissue Collection from People with cystic fibrosis Condition cystic fibrosis. http://www.clinicaltrials.gov/search/term=cystic fibrosis

Home Search Browse Resources ... About Search results for cystic fibrosis [ALL-FIELDS] are shown below. Include trials that are no longer recruiting patients. 19 studies were found. Recruiting Tissue Collection from People with Cystic Fibrosis Condition: Cystic Fibrosis Recruiting Studying Patients with Cystic Fibrosis and Other Pulmonary and Pancreatic Disorders Conditions: Bronchiectasis; Cystic Fibrosis; Pancreatic Insufficiency Recruiting Safety and Efficacy of Recombinant Adeno-Associated Virus containing CFTR in the treatment of Cystic Fibrosis Condition: Cystic Fibrosis Recruiting Safety and Efficacy Study of Nutropin AQ to Treat Growth Restriction in Children with Cystic Fibrosis Condition: Cystic Fibrosis Recruiting Study of Tauroursodeoxycholic Acid for Hepatobiliary Disease in Cystic Fibrosis Condition: Cystic Fibrosis Recruiting Study of Hepatic Glucose Production and De novo Lipogenesis in Patients With Cystic Fibrosis Condition: Cystic Fibrosis Recruiting Phase II Study of Growth Hormone in Children With Cystic Fibrosis Condition: Cystic Fibrosis Recruiting Study of Total Energy Expenditure in Infants and Children With Moderate to Severe Cystic Fibrosis Condition: Cystic Fibrosis Recruiting A Pilot Trial of Phenylbutyrate/Genistein Duotherapy (for Cystic Fibrosis) Condition: Cystic Fibrosis Recruiting Randomized Study of Alendronate in Adult Patients With Cystic Fibrosis Related Osteoporosis Conditions: Osteoporosis; Cystic Fibrosis

96. Connecticut Children's Medical Center: Otolaryngology Special programs include a pediatric cochlear implant program, endoscopic sinus surgery for children with cystic fibrosis, and a program for management of the pediatric artificial airway. http://www.ccmckids.org/departments/otol.htm

Staff Office Locations Links The Department of Otolaryngology maintains a full service pediatric program. In addition, special programs include a pediatric cochlear implant program, endoscopic sinus surgery for children with cystic fibrosis, and a program for management of the pediatric artificial airway. The service coordinates its activities as part of the craniofacial team to serve these children with special needs. OFFICE LOCATIONS CCMC: 2K Telephone: 860.545.9650 Fax: 860.545.9214 Satellite Offices: All appointments are made by calling the Hartford office, 860.545.9650. Glastonbury Hartford Hospital Healthcare Center, Suite 204 704 Hebron Avenue I-84 East or West Take Exit 55 (Rte 2E) Follow Rte. 2E to Exit 8 (CT-94/Hebron Ave) At end of ramp, turn Left onto Hebron Ave At 3rd light, turn right onto Oakwood Drive The Hartford Hospital Healthcare Center Building is on your immediate left- Turn Left into parking lot From Eastern CT Take Rte 2W towards Hartford Follow Rte. 2W to Exit 8 (CT-94/Hebron Ave)

97. Cystic Fibrosis Newborn Genetic Testing Home Newborn Genetic Screening Full Medical Reports cystic fibrosis cystic fibrosis. References. cystic fibrosis. http://gslc.genetics.utah.edu/units/newborn/infosheets/cf.cfm

Genetic Science Learning Center at the Eccles Institute of Human Genetics University of Utah Home ... Full Medical Reports Cystic Fibrosis Cystic Fibrosis Cystic fibrosis (CF) is caused by changes in a protein that controls the transfer of chloride and sodium ions (salts) across cell membranes. Disruption of salt transfer results in abnormal gland secretions and dehydration due to increased loss of salt and water during sweating. CF affects almost all of the glands in the body that secrete fluid, resulting in a variety of symptoms. Secretions may be thick and cause blockage in the pancreas, intestines and lungs. Mucus blockage also provides places for bacteria to multiply, increasing the probability of infection. CF children show poor digestion, dehydration, coughing and vomiting. As the disease progresses, teenagers show slowed growth, delayed puberty and reduced physical endurance. Adults show more serious complications such as collapsed lung, heart failure, infertility and frequent infections that eventually lead to death. Genetics Cystic fibrosis is caused by mutations in the cystic fibrosis transmembrane regulator (CFTR) gene on chromosome 7 which codes for the protein that controls ion transfer across cell membranes. Molecular analysis has identified approximately 100 mutations in the CFTR gene. Different mutations determine the severity of symptoms seen in CF patients.

98. Cystic Fibrosis Foundation ... Adding Tomorrows Every Day Works to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. Features news, volunteer opportunities and events. http://www.cff.org/chapters_and_care_centers/chapter_detail.cfm?chapterID=18&

99. Cystic Fibrosis Research Directions Every year, 1,000 children with cystic fibrosis (CF) are born in the United States. One in 3,000 Caucasian babies have the disorder http://www.niddk.nih.gov/health/endo/pubs/cystic/cystic.htm

Symptoms of CF New Approaches to CF Treatment The Molecular Basis of CF Gene TherapyA Look Into the Future Every year, 1,000 children with cystic fibrosis (CF) are born in the United States. One in 3,000 Caucasian babies have the disorder, making CF one of the most common lethal genetic diseases in Caucasians. Overall, there are 30,000 Americans with CF, and an estimated 8 million people carry one copy of the defective gene that causes the disease. These carriers do not have symptoms of CF, because a person must inherit two defective gene copies-one from each parent-to develop the disease. However, each child of two CF carriers has a one in four chance of being born with CF. Genetic testing is now available to identify couples at risk for having children with CF. Improved therapy has transformed CF from a disease characterized by death in early childhood to a chronic illness, with most patients living to adulthood. But despite this progress, there still is no cure for the disease and most patients eventually succumb to infections of the airways and lung failure. Since the 1989 identification of the gene which is altered in CF, the pace of basic research has increased rapidly, and scientists hope to translate new knowledge about the molecular basis of the disease to new therapies to improve the lives of patients with this genetic disease. The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), in partnership with other components of the National Institutes of Health and the Cystic Fibrosis Foundation, continues to foster research on the molecular processes contributing to CF, exploration of gene therapy to cure the disease, and efforts to develop other new and effective treatments.

100. Welcome To Cystic Fibrosis Western Australia Includes a calendar of events, information for people with CF who travel to Australia from other countries (what their healthcare entitlements are), pointers for teachers of children with CF, and a list of services and support. http://www.cysticfibrosiswa.org

Cystic Fibrosis WA website is sponsored in memory of David Goldberg Welcome to Cystic Fibrosis Western Australia COMING EVENTS CFWA Raffle Member seminar 15th May Country Mums' Weekend 28th-30th May Siblings workshop 8th June SEE COMING EVENTS PAGE FOR INFO The Niche 11 Aberdare Rd (Cnr Hospital Ave), Nedlands WA 6009 PO Box 959, Nedlands WA 6909 Ph: (08) 9346 7333 Fax: 9346 7344 Freecall: 1800 678 766 Last Update: Friday, April 16, 2004 L.J. Hooker Supporting Cystic Fibrosis Australia All queries to info@cysticfibrosiswa.org Download our

A  B  C  D  E  F  G  H  I  J  K  L  M  N  O  P  Q  R  S  T  U  V  W  X  Y  Z

Page 5     81-100 of 178    Back | 1  | 2  | 3  | 4  | 5  | 6  | 7  | 8  | 9  | Next 20