1. Cystic Fibrosis Foundation... Adding Tomorrows Every Day Great Strides, •, cystic fibrosis Foundation Therapeutics Awards $21 Million to Vertex 5/23/04. , About the cystic fibrosis Foundation. •, News. http://www.cff.org/

Cystic Fibrosis Foundation Therapeutics Awards $21 Million to Vertex GREAT STRIDES Weekend Makes CF Foundation History! 5/18/04 FDA Mandates Approval for All Pancreatic Enzyme Replacement Products About the Cystic Fibrosis Foundation News Publications ... Special Event Prizes

2. MedlinePlus: Cystic Fibrosis Nutrition for Teens with cystic fibrosis ( cystic fibrosis Foundation) Links to PDF File Replacement in People with cystic fibrosis ( cystic fibrosis Foundation) - Links to PDF File http://www.nlm.nih.gov/medlineplus/cysticfibrosis.html

@import url(http://www.nlm.nih.gov/medlineplus/images/advanced.css); Skip navigation Other health topics: A B C D ... List of All Topics Cystic Fibrosis Contents of this page: News From the NIH General/Overviews Diagnosis/Symptoms ... Teenagers Search MEDLINE for recent research articles on Cystic Fibrosis You may also be interested in these MedlinePlus related pages: Lung Transplantation Genetics/Birth Defects Lungs and Breathing Latest News Nonaerobic Exercise Helps Kids with Cystic Fibrosis (05/14/2004, Reuters Health) FDA Announces Recall of "DU" Brand Nasal Decongestant Due to Possible Health Risk (05/14/2004, Food and Drug Administration) From the National Institutes of Health Cystic Fibrosis (National Heart, Lung, and Blood Institute) General/Overviews Cystic Fibrosis (Mayo Foundation for Medical Education and Research) Cystic Fibrosis (Patient Education Institute) - - requires Flash plug-in Also available in: Spanish JAMA Patient Page: Cystic Fibrosis (American Medical Association) Clinical Trials ClinicalTrials.gov: Cystic Fibrosis

3. CysticFibrosis.com cystic fibrosis Articles News. cystic fibrosis Information CF is a genetic disorder that affects the respiratory, digestive and reproductive systems. http://www.cysticfibrosis.com/

Home CF Centers Associations Clinical Trials Gene Therapy ... New Design! Welcome to the newly designed CysticFibrosis.com website! comment on our forum... Through the eyes of CF I have learned through the years, that having insight and foresight are two valuable tools to have while surviving an illness. read more... Proper nutrition is vital I have learned through the years, that having insight and foresight are two valuable tools to have while surviving an illness. read more... Cystic Fibrosis Information CF is a genetic disorder that affects the respiratory, digestive and reproductive systems. Frequently Asked Questions While there are so many questions that are asked, some are left unanswered. We've got some answers to your FAQs! Just for kids! In terms that they can understand! Learn important information about daily living nutrition stories games ... snacks , and much more... CysticFibrosis.com latest Forum topics Adults - The Vest Families - babies and coughing ... Join our forums, it's compltely free! You may also post anonymously as well!

4. Cystic Fibrosis Trust Homepage 40 years of making a difference to those with cystic fibrosis, through research, care and support. advice, information and general help to those affected by cystic fibrosis. http://www.cftrust.org.uk/

Join Our Mailing List CF Trust News and Info Aims and Objectives What we do ... Alice Martineau We face the future with growing confidence and hope... 2004 is special for the CF Trust - as it recognises 40 years of making a difference to those with Cystic Fibrosis, through research, care and support. Current Highlights: Holidays in the Sun and wanting insurance? CF Trust launches new travel insurance for people with CF. more details Soccer legends Kenny Dalglish and Peter Beardsley were among a team of celebrities that faced opposition from prominent MPs including Gerry Sutcliffe MP, Andy Burnham MP and Jim Fitzpatrick MP in the charity football match. For a detailed report and photo gallery on this and other news stories go to News and Info Living with CF has practical information for families and gives advice about nutrition and physiotherapy. Our Support Service gives advice, information and general help to those affected by Cystic Fibrosis. Fundraising contains information about how you can help us see off cf either as an individual or as an organisation. Also find out about our fantastic outdoor and challenge events including our new calendar of Golf events Detailed, scientific information about CF can be found in

5. Cystic Fibrosis Resource Center Directory about cystic fibrosis, including books, medical news, articles and information, links, message boards. http://www.healingwell.com/cysticfibrosis/

window.open ('http://www.healingwell.com/popupnewsletter.asp','newWindow','height=118,width=258,top=230,left=250,scrollbars=0,resizable=no,status=0') Search Site: Search Web: Cystic Fibrosis Resource Center New Books on Cystic Fibrosis Find new book releases, featured titles, and reviews about books on Cystic Fibrosis at our Amazon affiliate bookstore, WellnessBooks.com What is Cystic Fibrosis? Browse this comprehensive guide to causes, symptoms, approaches to treatment, and ongoing research into this disease. Cystic Fibrosis Resources Online Looking for an organization, support group, chat room, information site, book, or research on your illness? Browse our directory for links to the web's best resources. Resource Centers Select - Home AIDS Allergies Alzheimer's Disease Anxiety/Panic Disorders Arthritis Breast Cancer Chronic Fatigue Syndrome Crohn's Disease Cystic Fibrosis Depression Diabetes Epilepsy Fibromyalgia GERD (Acid Reflux) Headaches Heartburn Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Migraines Multiple Sclerosis Parkinson's Disease Prostate Cancer More Conditions/Diseases Community Forums Select - Forum Home AIDS Allergies Alzheimer's Disease Anxiety/Panic Disorders Arthritis Breast Cancer Chronic Fatigue Syndrome Crohn's Disease Cystic Fibrosis Depression Diabetes Epilepsy Fibromyalgia GERD (Acid Reflux) Headaches Heartburn Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Migraines Multiple Sclerosis Parkinson's Disease Prostate Cancer

6. Cystic Fibrosis Research, Inc. (CFRI) News about CF research. Site also has a newsletter available. http://www.cfri.org/

7. Cystic Fibrosis Test what you know about cystic fibrosis. http://www.aarc.org/patient_education/iq_tests/cf/cf_form.html

The following statements test what you know about cystic fibrosis. Fill out the test by choosing true or false, then press the submit button. True False Cystic fibrosis (CF) is a hereditary disease. CF is more common in white children than in children of other races. As many as 30% of Americans of European descent carry the gene which is responsible for CF. The lungs are the only organs affected by CF. A person with CF may have difficulty keeping off excess weight. Treatment of CF has not changed much in the past twenty-five years. The gene responsible for CF has been identified. There is no way to tell if a newborn will get CF. Gene therapy is a standardized treatment for CF. People with CF require treatment only when they have an attack. Reviewed: August, 2002.

8. Ask NOAH About: Cystic Fibrosis Carrier Testing for cystic fibrosis Canadian cystic fibrosis Foundation ( PDF File of 12 Pages) (also in French So I Have a cystic fibrosis Gene, But My Partner's Test Was Negative http://www.noah-health.org/english/illness/respiratory/cystic.html

Ask NOAH About: Cystic Fibrosis What is Cystic Fibrosis? Care and Treatment The Basics Diagnosis and Genetic Testing Information for Parents, Teachers, and Children ... To Genetic Diseases Main Page What is Cystic Fibrosis? The Basics About CF - Canadian Cystic Fibrosis Foundation (also in French Check Your Cystic Fibrosis I.Q. - American Association of Respiratory Care Cystic Fibrosis - American Association of Respiratory Care Cystic Fibrosis - New South Wales Genetics Program, Australia ... Cystic Fibrosis - MEDLINEplus (also in Spanish ) (Interactive Flash Presentation) Cystic Fibrosis - Methodist Health Care System, Houston TX (also in Spanish Cystic Fibrosis - Your Genes, Your Health (Interactive Flash Presentation) Facts About Cystic Fibrosis - National Heart Blood Lung Institute Facts About Cystic Fibrosis (PDF) - National Heart Blood Lung Institute PDF File of 6 Pages) What is CF? - Cystic Fibrosis Foundation You Were Asking - Canadian Cystic Fibrosis Foundation PDF File of 6 Pages) (also in French Diagnosis and Genetic Testing Carrier Testing for Cystic Fibrosis - Canadian Cystic Fibrosis Foundation PDF File of 12 Pages) (also in French Causes - Cystic Fibrosis Trust The CF Gene - Cystic Fibrosis Trust Cystic Fibrosis (CF) Carrier Screening - March of Dimes (NOAH PROVIDER) (also in Spanish Cystic Fibrosis - Lab Corp PDF File of 2 Pages) Cystic Fibrosis: Confidentiality and Genetic Information - Canadian Cystic Fibrosis Foundation PDF File of 7 Pages) (also in French Cystic Fibrosis Testing: The Decision is Yours - American College of Obstetricians and Gynecologists Cystic Fibrosis Testing: What Happens If Both My Partner and I Are Carriers? - American College of Obstetricians and Gynecologists

9. Cystic Fibrosis - Doctor's Guide To The Internet The latest medical news and information for patients or friends/parents of patients diagnosed with cystic fibrosis and cystic fibrosisrelated disorders. Dermatitis. Contraception. COPD. Cystic http://www.pslgroup.com/CF.HTM

10. Nederlandse Cystic Fibrosis Stichting Website van de Nederlandse cystic fibrosis Stichting met Engelstalig gedeelte. Dit is de website van de Nederlandse cystic fibrosis Stichting. http://www.ncfs.nl/

moveTo(0,0);resizeTo(screen.width,screen.height); Dit is de website van de Nederlandse Cystic Fibrosis Stichting. U vindt hier informatie over Cystic Fibrosis (CF), de NCFS, op vakantie gaan met CF, andere websites op het gebied van Cystic Fibrosis enz. Deze website gebruikt zogenaamde frames. Uw internetprogramma is helaas te oud en kan deze frames niet weergeven. Daarom ziet u deze tekst. Probeer uw internetprogramma te vervangen door een nieuwere versie. De Nederlandse Cystic Fibrosis Stichting is geen vereniging, maar een stichting. Zij heeft dus geen leden, maar aangeslotenen. De NCFS is een ouder- en patiëntenorganisatie en behartigt de belangen van CF-patiënten en hun omgeving. Andere namen voor Cystic Fibrosis luiden CF, taaislijmziekte, mucoviscidose, mucoviscidosis, cystische fibrose of kystische fibrose. In Nederland spreken we doorgaans over Cystic Fibrosis. In het Engels duiden wij onze organisatie aan met Dutch Cystic Fibrosis Foundation, Dutch Cystic Fibrosis Organization, Dutch Cystic Fibrosis Organisation, Dutch CF Organization, Dutch CF Organisation of Dutch CF Association. U kunt ons e-mailen via info@ncfs.nl

11. Cystic Fibrosis Disease Information On Symptoms, Treatment And Causes BUPA health information factsheet cystic fibrosis (CF) is an inherited disease that affects the lungs and causes chest infections cystic fibrosis. http://hcd2.bupa.co.uk/fact_sheets/Mosby_factsheets/Cystic_fibrosis.html

search home services health information ... BUPA Products and services Health insurance Financial protection Hospitals Care homes ... International cover Visitor interest areas Individuals Business Intermediaries Health professionals ... BUPA members Facilities finder Find local health and fitness facilities World of BUPA BUPA services around the world at bupa.com health information ABC of health Cystic fibrosis Published by BUPA's Health Information Team January, 2003 Download this factsheet Cystic fibrosis (CF) is an inherited condition. It can have many symptoms, affecting different parts of the body, particularly the lungs and digestive system. CF is the most common inherited disease in white people, affecting about 1 in every 2,500 children born. It is much more rare in people of African or Asian descent. Diagnosis of CF About one in five babies with CF are diagnosed at birth, when their gut becomes blocked by extra thick meconium (the black tar-like bowel contents that all babies pass soon after birth). This condition may need surgery. Just over half of people with CF are diagnosed as babies because they are not growing or putting on weight as they should. This is because the pancreas is not producing chemicals (enzymes) which pass into the gut as food leaves the stomach. Without these enzymes, the fat in food cannot be properly digested. In children who are affected, the fat passes straight through the gut. The child does not benefit from the energy from the fat. Since the stools contain an excess of fat, they are oily and very smelly.

12. Cystic Fibrosis Foundation ... Adding Tomorrows Every Day The cystic fibrosis Foundation supports a broad range of medical research to achieve its mission of finding a cure or control for cystic fibrosis (CF) and to http://www.cff.org/research/

CF Research in the News Therapeutics Development Program Research Centers Clinical Trials ... You can make a difference! Take part in clinical trials today! The Cystic Fibrosis Foundation supports a broad range of medical research to achieve its mission of finding a cure or control for cystic fibrosis (CF) and to improve the quality and length of life for people with the disease. Over the years, CF Foundation-funded science has exponentially increased the understanding of the disease, building a strong base of knowledge. For instance, a team of CF scientists discovered the gene that causes CF and its symptom-provoking protein product. These discoveries, and many others, continually inspire completely novel strategies for scientists to explore innovative CF therapies. Curcumin Information for Patients and Families - Questions and Answers In addition to supporting research to discover and develop new life-saving therapeutics for CF, the CF Foundation invests in: Clinical research investigations that will improve patient therapies;

13. Cystic Fibrosis Learn more about this condition, the causes, and what it is like to live with CF. http://www.kidshealth.org/kid/health_problems/heart/cystic_fibrosis.html

KidsHealth Kids Kids' Health Problems Every day when she wakes up, Lisa's parents thump her back and chest for at least 20 minutes to help clear her lungs of the thick mucus that sometimes makes it difficult for her to breathe. At school, Lisa coughs a lot. She keeps a box of tissues on her desk - just in case - that she uses to cough up mucus. In gym class, she participates in sports but often gets tired easily. At lunchtime, Lisa takes pills to help her digest her food and get all the vitamins she needs. It's especially important that she keep up her strength so she can deal with a condition she's known all her life - cystic fibrosis (say: sis -tick fi- bro -ses). What Is CF? Cystic fibrosis (CF) is an illness that affects more than 30,000 children and young adults in the United States. It can be mild or severe, depending on the person. Cystic fibrosis affects the lungs , plugging them with mucus that often makes breathing difficult. If the mucus isn't cleared out of the lungs, it will trap bacteria and other germs , sometimes leading to serious infections.

14. STICHTING LEVEN MET CYSTIC FIBROSIS Een Site Voor Mensen Met CF - Taaislijmziekt Stelt zich tot doel het verhogen van de kwaliteit van leven van pati«nten met cystic fibrosis en het vergroten van de naamsbekendheid van cystic fibrosis http://www.levenmetcf.nl/

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15. Cystic Fibrosis Nurses: The International Specialist Group Includes objectives, constitution, officers, events, meeting archives, and discussion forum. http://www.cfnurses.net/

UK CF Nurse Specialist Group's Consensus Standards for the Nursing management of CF T H E I N T E R N A T I O N A L N U R S E S P E C I A L I S T G R O U P - C Y S T I C F I B R O S I S c/o Susan Madge, Department of Cystic Fibrosis, Royal Brompton Hospital, Sydney Street, London SW3 6NP, UK. Tel +44 207 352 8121 ext 4053, bleep 6013 email: S.Madge@rbh.nthames.nhs.uk Comments, suggestions, ideas ? Send us an email Last update: March 20, 2004 Webmaster: Filippo Festini, RN, BA, BSN Visitors:

16. Cystic-L - Cystic Fibrosis Info & Support CYSTICL is a free email service dedicated to the exchange of information and support specific to cystic fibrosis. Members include people with CF and those who share their lives medical http://www.cystic-l.com/

What's New The CF Shop by Thunder-Bay Productions

17. MedlinePlus Medical Encyclopedia: Cystic Fibrosis cystic fibrosis. cystic fibrosis is an inherited disease that affects sodium channels in the body and causes respiratory and digestive problems. http://www.nlm.nih.gov/medlineplus/ency/article/000107.htm

@import url(http://www.nlm.nih.gov/medlineplus/images/advanced.css); Skip navigation Medical Encyclopedia Other encyclopedia topics: A-Ag Ah-Ap Aq-Az B-Bk ... Z Cystic fibrosis Contents of this page: Illustrations Definition Causes, incidence, and risk factors Symptoms ... Prevention Illustrations Clubbing Postural drainage Clubbed fingers Cystic fibrosis Definition Return to top Cystic fibrosis is an inherited disease that affects sodium channels in the body and causes respiratory and digestive problems. Causes, incidence, and risk factors Return to top Cystic fibrosis affects the mucus and sweat glands of the body and is caused by a defective gene. Thick mucus is formed in the breathing passages of the lungs and this predisposes the person to chronic lung infections. Many pancreatic enzymes involved in the breakdown and absorption of fats in the intestine are absent, causing malabsorption (inadequate absorption of nutrients from the intestinal tract) and malnutrition. Most males with cystic fibrosis are infertile. About one in 2500 Caucasians is affected, and 2-5% of Caucasians carry the cystic fibrosis gene. It is the most common fatal hereditary disorder affecting Caucasians in the United States. It is most common among Caucasians of Northern or Central European descent and is much less common in other ethnic groups. Risk factors include a family history of cystic fibrosis or unexplained infant death.

18. The Boomer Esiason Foundation - Fighting Cystic Fibrosis of the symptoms of CF, causes, treatments, and current research....... http://www.esiason.org/?page=cystic_fibrosis_defined.html

19. Cystic Fibrosis Foundation ... Adding Tomorrows Every Day What is CF. Progress in CF Research. Gene Therapy and CF. Patient and Family Education. The Story of 65 Roses. About the cystic fibrosis. Foundation. News. Publications. CFF Sponsors. Special People . http://www.cff.org/facts.htm

What is CF Progress in CF Research Gene Therapy and CF Patient and Family Education ... Special Event Prizes What Is CF Printer-friendly version Cystic fibrosis (CF) is a genetic disease affecting approximately 30,000 children and adults in the United States. A defective gene causes the body to produce an abnormally thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections. These thick secretions also obstruct the pancreas, preventing digestive enzymes from reaching the intestines to help break down and absorb food. More than 10 million Americans are unknowing, symptomless carriers of the defective CF gene. An individual must inherit two defective CF genes one from each parent to have CF. Each time two carriers conceive, there is a 25 percent chance that their child will have CF; a 50 percent chance that the child will be a carrier of the CF gene; and a 25 percent chance that the child will be a non-carrier. CF occurs in approximately one of every 3,200 live Caucasian births (in one of every 3,900 live births of all Americans). About 1,000 new cases of CF are diagnosed each year. More than 80 percent of patients are diagnosed by age three; however, nearly 10 percent of newly diagnosed cases are age 18 or older.

20. Cystic Fibrosis Information cystic fibrosis Over 2094 links! One of the most complete sites about CF available! cystic fibrosis. Be notified when this page changes. it s private. http://personal.nbnet.nb.ca/normap/CF.htm

Cystic Fibrosis Be notified when this page changes it's private powered by ChangeDetection Join Cystic-L, the best e-mail discussion/support group on CF. This is for people with CF (pwcf), parents of children with CF, spouses of, children of, and friends of pwcf, and for anyone else just wanting to learn more about it, such as students, teachers, medical personnel, etc...if you have any questions that may not have been answered here on these pages, please join our group! I have been with them since August of 1996, and love it! Cystic-L: Latest STATS (Updated Feb. 25, 2003) Search my site: Symptoms of CF (Updated Feb. 4, 2004) Stories of how difficult it was for some to get diagnosed with CF (Updated Aug. 30, 2003) If it's not CF, then it could be one of these diseases (Updated May 15, 2004 History of CF (Updated Sept. 10, 2002) (Updated May 15 Common Misconceptions with CF (Updated June 6, 1999) Effects of CF Respiratory Pseudomonas (Up dated Mar. 27, 2004) Burkholderia cepacia and other Burkholderia species (Updated Dec. 22, 2003) ABPA (Allergic Bronchopulmonary Aspergillosis) (Updated July 7, 2003)

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