The Following Links Will Provide More Information About HD And ghtaylor/index.html ABOUT huntingtons disease GENERAL INFORMATION gov/health_and_medical/disorders/huntington.htmhttp driving, swallowing diet, living with http://www.ahda.com.au/Pages/links.html
Tube.html that involve positioning issues, feeding techniques, diet consistency changes theKansas University Medical Center and by the Huntington s disease support groups http://www.kumc.edu/hospital/huntingtons/tube.html
Extractions: There are many interventions and strategies that can help to preserve swallowing and to lessen the risk of choking. If all attempts fail to improve swallowing, alternative methods of feeding such as tube feeding will be discussed with families. The task of deciding what is best can be difficult and emotional. This issue usually arises when a person with HD is in the end stages of the disease. However, this issue should be discussed well in advance by the person with HD, their family and the health care provider. By the late stages of HD, the person is often unable to meet nutritional needs, tends to become dehydrated, or aspirates all possible food consistencies, often reflected by frequent bouts of pneumonia. Because of the choking the eating process may have become unpleasant. Tube feeding is a method of providing nutrition to people who cannot sufficiently obtain calories by eating or to those who cannot eat because they have difficulty swallowing. Tubes which transport nutritional formulas can be inserted into the stomach (G-tubes), through the nose and into the stomach (NG-tubes), or through the nose and into the small intestine (NJ tubes). The NG and NJ tubes are considered to be temporary and the G tube is considered more permanent but it can be removed. With all tube feeding approaches, if a person is able, he/she may continue eating and drinking while the tube feeding provides the consistent caloric intake needed for weight maintenance or gain. Thus oral intake can be continued for more pleasurable sensations, such as small bites of a favorite food.
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Extractions: Buy your medications online and have them delivered to your doorstep the next day. Review by U.S. licensed physicians with prescription. Ship your order discreetly, via Fed-Ex. This is the fastest most convenient and least costly way to order prescription medications. Search over 50,000 senior housing communities including assisted living, retirement communities, nursing homes, and alzheimer's care. Obtain free assistance from experienced family advisors.
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Creatine And Other Research and consumption through the diet. Matthews RT et al. (1998) Neuroprotective effectsof creatine and cyclocreatine in animal models of huntingtons disease. http://www.doctorbach.com/training02/villanova.htm
Extractions: [graphic] Researcher at the University of Pennsylvania showed that to perform it function SMN protein interacts with numerous proteins in the cell. These functions will be efficient if the proteins to wh? needs to interact are first bind by specific enzymes. This tags are made up of many groups that are attached through the amino acid arginine (the process called 'methylation'). The methyl group are tags by 'methyl donor' called S-adenayimethionine that receives this methyl? from folic acid through a pathway that requires vitamin B12. Deficiency of folic acid and vitamin B12 could result in methylated mentholated which are exactly the kind mentholatedens SMN needs to find to function properly.
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Extractions: liquids I should avoid. I dont smoke or drink alcoholic. Answer: You diet should be comprised mostly of fruit, vegetables and fish. Reducing red meat, dairy products and refined carbohydrates such as biscuits, cakes, chocolate and pastries would be helpful. Vitamins A, B6, C and E plus zinc have been found to be useful in reducing bladder cancer recurrence. A probiotic called Lactobacillus casei has also been shown to have a favourable effect as might garlic and an immune boosting nutrient known as lactoferrin.
HDA NORTH WEST LANCASHIRE BRANCH Information for Teenagers. Fact Sheet 6 Eating and Swallowing Difficulties. FactSheet 7 Huntington s disease and diet. Fact Sheet 8 The Importance of Dental Care. http://members.aol.com/hdanwlancs/
Huntington's Disease medications in applesauce if a person is on a pureed (blenderized) diet. Huntington sDisease is a devastating illness that affects every aspect of a person s http://www.asha.org/public/speech/disorders/Huntington-Disease.htm
Extractions: @import url( /styles/importmenuP.css ); Skip to: content navigation Our site's pages are optimized for Web browsing software that supports current Web standards, as established by the World Wide Web Consortium (http://www.w3c.org/) . Content is accessible from older or less standards-compliant technologies, but its presentation will not be identical to visitors with standards-compliant software. Read more on our site's changes and accessiblity. My Account Find a Professional Shop Logged in as: Guest Login Search for: ADVANCED SEARCH Home For the Public Speech Language and Swallowing ... Disorders and Diseases Based on a brochure developed by Lynn Rhoades, M.S., CCC-SLP for the Huntington's Disease Society of America ( www.hdsa.org ) with financial support of the American Speech-Language-Hearing Association. Why Communication and Swallowing Symptoms Arise As brain cells become depleted in Huntington' s Disease (HD), problems may develop in the following three areas: motor control (movement); cognition (thinking); and behavior. Speech and swallowing problems arise when the centers of motor or cognitive control are affected that cause muscle weakness or discoordination, chorea, and problems with memory, sequencing, new learning ability, reasoning, and problem solving. Typically, speech and language functions are primarily controlled in the left side of the brain and swallowing function is controlled in the brainstem (at the base of the brain). Cognitive function is believed to be controlled in the right side of the brain. HD typically begins in the caudate nucleus and putamen, which are located in the central part of the brain (core), and spreads to these other control centers, causing communication and swallowing problems as the disease progresses. Communication
Huntington's Disease - Hope Through Research The individual s physician can offer additional advice about diet and about Organizationssuch as the Huntington s disease Society of America (see listing on http://www.ninds.nih.gov/health_and_medical/pubs/huntington_disease-htr.htm
Extractions: Request free mailed brochure In 1872, the American physician George Huntington wrote about an illness that he called "an heirloom from generations away back in the dim past." He was not the first to describe the disorder, which has been traced back to the Middle Ages at least. One of its earliest names was chorea which, as in "choreography," is the Greek word for dance. The term chorea describes how people affected with the disorder writhe, twist, and turn in a constant, uncontrollable dance-like motion. Later, other descriptive names evolved. "Hereditary chorea" emphasizes how the disease is passed from parent to child. "Chronic progressive chorea" stresses how symptoms of the disease worsen over time. Today, physicians commonly use the simple term Huntington's disease (HD) to describe this highly complex disorder that causes untold suffering for thousands of families.
Huntington's Disease - Dietary Considerations. to remember Common complications of Huntington s disease (HD) include dysphagia),particularly as the disease progresses. to make sure the diet is nutritious http://www.betterhealth.vic.gov.au/bhcv2/bhcarticles.nsf/pages/Huntington's_dise
Bbc.co.uk - Health - Illnesses And Conditions Huntington's Disease can ease many of the symptoms and help a person with Huntington s disease lead as Adiet high in calories can help maintain weight and also improve symptoms http://www.bbc.co.uk/health/conditions/huntingtons.shtml
Extractions: Nearly 150 years ago American family doctor George Huntington went out riding, joining his father (also a doctor) on his rounds. They came across 'two women, mother and daughter, both tall, thin, almost cadaverous, both bowing, twisting, grimacing...'. Huntington was amazed and almost fearful, and the encounter triggered his lifelong interest in the disease now named after him. First called Huntington's chorea (a term which describes strange dancing movements) it's now known as Huntington's disease. A significant step forward in science How Huntington's Disease progresses Early symptoms include mood swings, depression, irritability, memory problems, difficulty learning new things or making decisions
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Extractions: (Artificial insemination; Chronic Progressive Chorea; Chronic progressive hereditary chorea; Degenerative Chorea; Hereditary Chorea; Hereditary Chronic Progressive Chorea; Huntington chorea; Huntington's chorea; Huntington's disease; Very Early Onset Huntington's Disease; Woody Guthrie's Disease) Revised and Updated for the Internet Age P A P E R B A C K Paperback Book Paperback Book Order by phone: 800-843-2665 (within USA) 1-201-272-3651 (from outside USA) Paperback Book Shipped in 3 to 5 business days E B O O K Electronic File * E-Book version sent via e-mail in 2 business days Electronic File *E-Book version sent via e-mail in 2 business days Pages Price $28.95(USD) ISBN Published Synopsis A comprehensive manual for anyone interested in self-directed research on Huntington's Disease. Fully referenced with ample Internet listings and glossary. Related Conditions/Synonyms Artificial insemination; Chronic Progressive Chorea; Chronic progressive hereditary chorea; Degenerative Chorea; Hereditary Chorea; Hereditary Chronic Progressive Chorea; Huntington chorea; Huntington's chorea; Huntington's disease; Very Early Onset Huntington's Disease; Woody Guthrie's Disease Description Table of Contents Introduction Overview Organization Scope Moving Forward PART I: THE ESSENTIALS Chapter 1. The Essentials on Huntingtons Disease: Guidelines
Huntington's Disease Drug Works Update 23 Feb 2004. HeartBrain Health Fights Huntington disease Medication, diet, exerciseand other lifestyle choices common to good heart health could promote http://hdlighthouse.org/TreatmentNow/updates/0075Sep-Oct03.phtml
Extractions: "It is the wish of all of us on this path not to interfere with any of the workings of other HD organizations. We are exceedingly grateful for the work, sweat, and tears of all of our researchers and HD physicians. You have brought us to the hopeful stage of potential treatment. We are also truly grateful to HDSA for the work of patient care in Centers of Excellence." LaVonna Goodman M.D. by LaVonna Goodman, M.D., 06 Oct 2003 This will be the last update that HD Lighthouse will directly publish. We will finally have our own HDDW website by the time mid-October comes along. We extend a great big THANKS to Jerry for allowing us a safe place, and to Lighthouse readers who have responded. Treatment for this generation of HD was the chord first sounded by Jerry, then amplified by HDDW. The tune may have its differences, but the theme is the same. HDDW will have our own website (www.HDDrugWorks.org), thanks to great volunteers, which will link to HD Lighthouse and others. Jerry will continue to provide a link to HDDW, so you can find us here too. The "Treatment Now" slogan originated with Jerry, and as such will remain at the HD Lighthouse. For purposes of less confusion for readers of both websites, the proposed work of HDDW will be named "HDDW Therapeutic Drug Trials."
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Extractions: "When you cut through all the detail, this could be a drug that is very significant for the treatment of Huntington's", Rick Stewart, Amarin CEO Amarin Corp is a $25 million British company that licenses and sells drugs to treat nerve disorders, like Parkinson's Disease. Amarin's chief executive, Rick Stewart, hails from SkyePharma a British drug developer. Stewart says that Amarin's research partner, Laxdale of Scotland, will follow up any day now on preliminary findings from a Phase III study of LAX-101, a treatment for Huntington's Disease. "This is the first time we have seen anything positive for Huntington's," says Stewart, who is shaking his head about the market's treatment of the preliminary findings. A study of 83 qualifying patients took place at Harvard, Emory and Johns Hopkins universities, and in the United Kingdom and Canada. Huntington's, a genetic disorder, has been diagnosed in about 30,000 Americans and an equal number of patients in Europe. The U.S. Food and Drug Administration has granted LAX-101 a so-called fast-track designation.
Huntington's Disease - 101 - Suite101.com Information about Huntington's disease. What it is, how it is passed down, early symptoms. A beginners page if you will in understanding Huntington's disease. huntingtons disease transcends the http://www.suite101.com/article.cfm/huntingtons/29118
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Huntington's Disease centers can be obtained from the Huntington disease Society of As the disease progresses,persons with HD may can offer additional advice about diet and about http://www.medceu.com/tests/huntington.htm
Extractions: C. Describe methods of diagnosis, testing, treatment and required care. In 1872, the American physician George Huntington wrote about an illness that he called "an heirloom from generations away back in the dim past." He was not the first to describe the disorder, which has been traced back to the Middle Ages at least. One of its earliest names was chorea, which, as in "choreography," is the Greek word for dance. The term chorea describes how people affected with the disorder writhe, twist, and turn in a constant, uncontrollable dance-like motion. Later, other descriptive names evolved. "Hereditary chorea" emphasizes how the disease is passed from parent to child. "Chronic progressive chorea" stresses how symptoms of the disease worsen over time. Today, physicians commonly use the simple term Huntington's disease (HD) to describe this highly complex disorder that causes untold suffering for thousands of families. In the United States alone, about 30,000 people have HD; estimates of its prevalence are about 1 in every 10,000 persons. At least 150,000 others have a 50 percent risk of developing the disease and thousands more of their relatives live with the possibility that they, too, might develop HD.
